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Winter

Baby Hazel, Stillborn Due to a Tragic Handgun Accident: Mom Bailey’s Story

January 15, 2024 by Winter

Mom Bailey tells about how she was shot below the hip in a tragic handgun accident, being 37 weeks pregnant with her first child. Her daughter Hazel died en route to the hospital due to the injuries she sustained because of the gunshot wound. Because Bailey was in stable condition, but starting to labor and in a lot of pain, they performed a C-section. She didn’t get to meet Hazel when she was born because she was in and out of consciousness due to her pain from the wound.

Watch her story here on YouTube:

Listen to the podcast here:

Shownotes:

Pregnancy:

Bailey discovered she was pregnant, when on a whim she decided to take a pregnancy test after watching YouTube videos about different families who were getting pregnant. She and her boyfriend were both shocked.

Despite being pregnant during the COVID-19 pandemic and experiencing morning sickness and weight loss, the baby remained healthy and Bailey received a lot of support from her family. They learned they were having a girl at a gender reveal party. As the due date approached, Bailey and her boyfriend prepared Hazel’s nursery, receiving gifts from a virtual baby shower due to COVID restrictions. They eagerly awaited Hazel’s arrival.

Handgun accident:

Bailey recounts the events of Memorial weekend, where she had maternity photos taken at a lake, despite her initial reluctance to have the pictures taken. The next day, while spending time with her boyfriend and some of their other friends, her boyfriend mishandled a gun and accidentally shot Bailey who was sitting next to him in the bottom of her hip, nicking part of her uterus. Despite initial confusion and attempts to locate the exit wound, Bailey’s primary concern was the well-being of her unborn baby. The EMTs arrived, and her anxiety intensified until she heard that they were able to find Hazel’s heartbeat.

Bailey, at 37 weeks pregnant, was airlifted to a hospital after the accident. In the hospital, they did an ultrasound and discovered that Hazel had died during the transport due to the injuries she sustained from the gunshot wound. The medical team also got x-rays and CT scans to determine the location of the bullet and found that it was lodged in her other leg, the bullet narrowly missing a major artery. Because Bailey was stable, but had started laboring and in a great deal of pain, her study team decided on a C-section to deliver Hazel stillborn. Because she was in and out of consciousness during the C-section, she didn’t get to meet her daughter, but learned that the doctor had placed Hazel on her for skin-to-skin contact before being taken away.

The medical team waited a few days to operate on Bailey further to remove the bullet, which they did successfully. Bailey remained in the hospital for a few more days and had to do rehab in order to walk again.

Funeral:

Returning home was challenging, especially with Hazel’s nursery all set up and ready. Family and friends thought ahead and helped pack everything up before Bailey and her boyfriend arrived home. Bailey with the help of her family started to plan Hazel’s funeral, and Bailey expressed her desire to walk before the funeral. Meeting with the funeral home, they decided on cremation. After the autopsy and before Hazel was cremated, Bailey and her boyfriend were able to spend time with her. She brought meaningful items like her baby blanket and her boyfriend brought his military name tag. During the hour spent with Hazel, Bailey touched her, read to her, and took pictures of her hands, legs, and feet. However, she couldn’t bring herself to look at Hazel’s face, because she was unsure of how she would look from the gunshot wound.

The funeral service was emotional, attended by a supportive community, and Bailey chose to bravely walk down the aisle unaided as a tribute to Hazel.

Autopsy:

After the tragic incident involving the unintentional gun discharge, Bailey was grieving her daughter Hazel’s death and regretting she had not looked at her face when she could. Her sister encouraged her to reach out to the doctor who performed Hazel’s autopsy. When she called the office, Bailey asked if they had pictures she could see and told them her story. She went to the office and discovered that the staff had made a slideshow of pictures, some edited and some unedited, to show to her. Bailey also describes the significance of obtaining pictures from the autopsy, highlighting a special moment where she saw unedited images that provided a more complete and beautiful picture of Hazel, bringing her a sense of closure.

Healing:

Bailey shares the aftermath of the incident, detailing her emotional journey and the impact on her relationship with her then-boyfriend, who was involved in the gun discharge. She emphasizes the challenges in coping with grief, anger, and the strain on their relationship. Bailey discusses her decision not to press charges, the support she received from her family, and the eventual end of her relationship. Over time, therapy, particularly EMDR, played a crucial role in her healing process. Bailey expresses gratitude for the support of friends and family and the podcast that provided solace during her difficult moments.

Time Stamps:

  • 00:52 Introduction
  • 02:02 Bailey’s pregnancy
  • 18:36 Handgun accident
  • 25:37 Hospital and Hazel is stillborn
  • 42:17 Going home and planning the funeral
  • 51:07 Hazel’s funeral
  • 57:21 Hazel’s autopsy
  • 1:04:34 Healing after

    Full Transcription:

    Bailey 0:00
    Hazel Kay

    I always remember her long hair, it was an inch and a half long.

    Winter 0:13
    Welcome to still a part of us a place where moms and dads share the story of their child who was stillborn or who died in infancy. I’m winter. And I’m Lea, we

    Lee 0:21
    are grateful you joined us today. Please note that this is a story of loss and has triggers thanks to

    Winter 0:26
    our loss parents who are willing to be vulnerable and share their children with us. If

    Lee 0:30
    you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

    Winter 0:37
    Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us. They’re still a part of us.

    Welcome to Silla part of us. We are so grateful to have Bailey here with us today to talk about her sweet daughter, Hazel. I am really looking forward to this conversation. I’m a little nervous, to be honest, because of a part of her story that is, is a little tricky. So I’m so grateful for you, Bailey for coming on today. So welcome.

    Bailey 1:11
    Thank you. And thank you for having me. I’m happy to be here.

    Winter 1:14
    Yeah. Well tell us a little bit about yourself. Tell us where you’re at and what your family looks like the time that Hazel was born. I

    Bailey 1:23
    live in a small town in North Dakota. I was just with my boyfriend and I at the time we just got a house. We’re starting jobs were young, 21 years old. Okay.

    Winter 1:35
    What were you doing for a job? And kind of what maybe what were some of your hobbies?

    Bailey 1:40
    Um, I was working at a daycare. And it was during COVID. So there wasn’t much going on. Yeah. I love to be in with my family and my nieces and nephews. Yeah.

    Winter 1:53
    That’s great. And just a little bit of point of reference. How long ago was Hazel born?

    Bailey 1:58
    She was born three and a half years ago, three and a half

    Winter 2:02
    years ago. Okay. Yep. So right smack dab in the middle of COVID. You guys I like it’s it’s nuts, talking to people that have gone through the COVID experience and having been pregnant or given birth. So there’s like an extra dose of sympathy from him. Because I just feel like that is hard. It is hard. So. Okay, so you guys were you had purchased a house together? You guys were young living together? And were you planning on getting pregnant? Was that something that was in your? Oh, no. Not at all. Okay, so super surprising. Yes. Okay, so tell me how that went then. Like when you found out? Or? And then did you tell your ex about that?

    Bailey 2:46
    Um, yeah. So I, it’s kind of a funny story. But I was by myself at the house. And I was just watching some videos on like YouTube. And some, like families that I watch recently, or whatever, and they’re all getting pregnant or whatever. And I was like, oh, that’s like, I don’t know, I just had a random test in my closet. And I was just like, let’s just take it like no signs of pregnancy at all. None. And then get there was

    Winter 3:19
    no way. Yeah, it

    Bailey 3:22
    was very shocking. I had no signs of pregnancy. Didn’t even miss my period yet. Like it was. Very soon, obviously. Yeah, completely. Yeah. And then yeah, I called him right away. And it was a shock to us both. We didn’t know how to take it in. We didn’t know what to do. He was working out of town at the time. And I was like, well, there’s always those things of like, false positives. I was like, that could be a thing, right? It was late at night is like 9pm. And I was like, I’ll run to $1. General real quick, because we live in a small town and went to grab a couple more tests took them and sure enough, I was pregnant.

    Winter 4:05
    I just can’t believe that you just took a test on a whim. Like, you’re like, Man, that is so funny. But yeah, sometimes I guess you get it when you get a feeling you get a feeling about something. Yes.

    Bailey 4:15
    Oh, yeah. I was not expecting that at all. Yeah.

    Winter 4:19
    So did you end up telling anybody like

    Bailey 4:23
    my mom, okay, right away. So by myself, and I was told her I started bawling. And I was like, I don’t know what to do. I’m young. I don’t have like a secure job. I was like, I don’t know how I’m gonna afford this. It’s like a big step in the life. Yeah. And, yeah, it was. And then I called my dad. And I said the same thing to him. And he’s like, we got this. I’ll be there for you. I’ll help you out when you need. You guys will be the perfect parents.

    Winter 4:52
    Okay, so you got a lot of support. That’s good. Yes, very. Did your boyfriend at the time tell his His family or is he from the same town by the way? Or is

    Bailey 5:03
    the same town His family lives in town? My family lives like 3045 minutes away. Okay.

    Winter 5:09
    Okay.

    Bailey 5:10
    So did you tell them how old? I think one of his parents I want to say his dad. And it was kind of the same thing. Like there’s obviously there’s a lot of anger, like, what did we just do, but also excitement, but also wondering, how are we going to do this? And he has a very supportive family as well. So it’s nice to support our families. Yeah,

    Winter 5:35
    that’s great. I, it’s always a little tricky. Yeah. When, especially when it’s a surprise, and you’re like, Wait a second. This is not part of the plan right now. Yeah. Yeah. Okay. So you guys, you’re pregnant? And obviously, like you said, quite early for you not even to notice that. I mean, nothing, had your period hadn’t been skipped or anything. Did you end up like, setting up an appointment with an OBGYN? Did you have a regular OBGYN that you were gonna go see,

    Bailey 6:08
    actually, my cousin works at the OB GYN in the town. And she kind of knew who to put me with or who to try put me with. I called them and made an appointment. Yeah, I found out in early October. And think I didn’t my first appointment in November. Yeah, I was. I wanted I was by myself. Because my boyfriend at the time was in the National Guard. And he had to leave for some training. Okay. Yeah. The town or the state. And so I went to the appointment by myself. Was

    Winter 6:42
    that around? It was a kind of early, like, eight, nine weeks or so.

    Bailey 6:46
    Yeah. Yeah. And my sister came, met me there. And then they did the bedside ultrasound. And they’re like, just the heads up. Like sometimes we can’t always see the heart or hear the heart because it’s it’s so little. And then I remember like, hearing everything go away. And they’re like, Well, you gotta be good. And then, yeah, so that made it feel all real bad. A little bit of pictures there. So I got to send it to my boyfriend. And that was pretty special.

    Winter 7:23
    Yeah, it is really amazing. Seeing that little. It looks like a little bean with a heart. Yeah. Okay, and then, how are you feeling at the time? I mean, now that it was a little bit farther along, were you starting to feel some of that any morning sickness or any other pregnancy symptoms? Ah, yes,

    Bailey 7:42
    I got really sick. But, I mean, ever over the sickness, it was all okay. And all other problems going on? So that’s always a plus. Yeah, total. It’s really sick and tired, obviously. But, yeah. And working and doing COVID started. Yeah,

    Winter 8:05
    I know. I was like, so you because you got pregnant at the very beginning of COVID. Is that right? So early? 2020. I think the United States shutdown in May in March, I think. Yeah, essentially. So. So you guys went? So you’re, you’re going along, and then tell me about how some of these doctor’s appointments are going. Kind of early on?

    Bailey 8:28
    Um, they’re going really good. I just went in came out because like, the quickest appointments ever,

    Winter 8:35
    because it was it? Yeah. It’s like, oh, everything looks

    Bailey 8:39
    fine. Yeah, yeah. Yeah. And when we came around that 20 weeks, when we were finding out the gender, um, we didn’t want to know, but we wanted to have like a little surprise party. Okay. Yeah. So that was kind of a cool ultrasound getting to see her for the first time, like, up on the big screen, seeing her feet move and her toes and her hands and just her Wiggles. And I remember the doctor kept telling us to, like, look away, and then we can look and then he’s like, I just got to double check. Again, so then we’re like, oh, maybe it’s a boy then. We didn’t know for sure. Yeah,

    Winter 9:19
    yeah. Okay. That’s, I’ve always kind of wondered how that works. But like, oh, yeah, look away. Yeah, I’m checking things out. Yeah. That’s cool. Okay, so And was your boyfriend able to be there at that appointment? Yep.

    Bailey 9:36
    Yeah, that was his first appointment coming to and seeing her. Oh, good. Cool. Yeah. Yeah.

    Winter 9:41
    And how did she look at that time?

    Bailey 9:44
    Um, good. Any issues they

    Winter 9:47
    or was Everything looking good with your placenta, everything

    Bailey 9:52
    was on track. Okay. Awesome.

    Winter 9:56
    Okay, and then tell me how how things went along with your Your next appointments and anything that you guys did to kind of celebrate Oh yeah, maybe tell me a little bit about your the your gender reveal party. Yeah, it’s always kind of fun to hear this

    Bailey 10:10
    is kind of funny too. Um, so we went to my sister’s afterwards and I dropped off the little envelope. And I was just wanted to look at it. It’s got to be a surprise for everyone. So put it in their mailbox and we drove off out of town. And what we did was my sister boiled eggs and then color them pink and blue. And then there is obviously a one raw egg. That was pink or blue. And, and so we had a couple of our friends and family over at my sister’s and we had a crack an egg over our head. Our color was cracked. But it’s so fun. Yeah. And I was like, Oh no, like, you get your hair done. You get all prettied up or whatever. And I was like, the egg is gonna crack on me. I just know it. But my boyfriend took one. He took a pink one right away. And there it was. It cracked right away the first one very first one.

    Winter 11:19
    Yes, that’s perfect, then yeah, it was like, Oh my gosh. Were you guys expecting what? Well, obviously, he grabbed the pink one. So I’m was he expecting a girl? Or was that just

    Bailey 11:31
    he kind of said, like, I’ll start on this end. You start on this end, and then we’ll meet like in the middle, but I was like, okay, whatever.

    Winter 11:39
    So are you were you told me? Were you excited for girl? Boy, I

    Bailey 11:43
    was so excited for a girl. Yeah, but I knew my bank account was not going to be excited.

    Winter 11:47
    No, girls are expensive. Seriously.

    Bailey 11:51
    But no, I was excited. Growing up, I always thought it was gonna be a boy mom. So it’s kind of cool to change it around. And then I was like, Oh my gosh, I gotta learn how to do hair. I gotta learn how to do all these things. That so?

    Winter 12:07
    I know. There’s not

    Bailey 12:11
    a girly girl. So I was like, Oh my gosh, you’re gonna have to paint her room pink. It can’t be gray.

    Winter 12:16
    It’s gonna be tough. Yes.

    Bailey 12:18
    But no, it was so much fun. Oh, good. Yeah. Googled all the things afterwards buying all the things and

    Winter 12:25
    you just get so it’s so exciting. It’s It is

    Bailey 12:29
    so exciting. Yeah. And the first girl grandchild on my side,

    Winter 12:35
    on your side. And that’s so so exciting. Yes. Yeah. Grandparents gets so excited about that kind of thing. Because that they get they get to buy stuff, too. Yes, yeah. When you guys found out that you were having a girl, did you guys start thinking of names? Or did you really have a list kind of go in? Um, names? Yeah. So

    Bailey 12:55
    we got that. I always want to say it’s like a tinder app, but it’s for names. Like you pick and they pick and then if you guys come together on one, it shows up on your guys’s list or whatever. So we went through that. And I always liked Hazel. It was always a name that was probably on the top of my list or in my list. I use a nanny a little girl. And her name was Hazel. And I always loved it from that second on, I was like, I am going to have a girl name here. So one day,

    Winter 13:23
    this is sweet. Sweet name is so cute. Yes. And

    Bailey 13:27
    yeah, we came up with a couple names kept going back and forth. And we picked one I think we picked like a I think we said Delilah right away. And then I was just like, No, I’m just not feeling it. We gotta come up with different ones. And you just go back and forth for more pregnancy. But yeah, we had a couple that we liked. But we didn’t want to tell anybody the name.

    Winter 13:46
    Yes. Oh, that’s good. Okay. Yeah. Because people have opinions about names. Yes, yes. They’ll shoot you down. You’re like I used to know somebody in high school. They were a jerk. Right? Yeah. Yeah. Well, awesome. That I think that’s that’s a cute name. Okay, so then the pregnancy is going along at two you had the at 20 weeks you found out well, right. I guess it was about right around 20 weeks. Yeah, that you guys had that. Okay. And then how else how were you feeling the rest of your tell me about any other appointments after that? I

    Bailey 14:20
    was feeling really good. Until about I want to say like 3435 weeks I started getting really sick. Oh, and throughout my whole pregnancy I dropped 30 pounds. So I never gained I dropped. So how sick I was. I wasn’t able to eat kept going into the ER getting fluids. Oh, no. Yeah. And then I like broke out. And like cold sores all over my mouth one day and I just couldn’t eat or drink anything. So then I had to go in and get flu words and then they sent me up to a different town with a more high risk pregnancy doctor. Okay, and so I went in there and that’s actually where I got the last 3d photos of her. Oh, so they did that. And then I got to see this video of like her hair through the ultrasound you could like see it like standing up?

    Winter 15:23
    That is cutest. That is the cutest.

    Bailey 15:26
    Yeah. But then, after all the medications I kind of felt a lot better than I was feeling good again.

    Winter 15:33
    She it just was like a viral infection or something. Yeah. Oh, that’s no clear. But yeah, yeah, that’s i It’s so tricky. Especially like, you mentioned you were doing COVID and all sorts of other things were popping up to you know,

    Bailey 15:48
    I thought I had COVID. And then when I was first starting out, you’re like, oh, my gosh, you have COVID Like, it’s a big thing. Yeah.

    Winter 15:56
    But you didn’t have that it was something else. Yeah. Crazy. Okay. Was, but Hazel was doing okay. Even

    Bailey 16:07
    the whole time. It was nothing with her. So that’s all I was like, alright, I’ll go through it all. You’re gonna be alright.

    Winter 16:13
    Yeah. You’re being miserable. I know. Yeah, we do so much for kids, right?

    Bailey 16:18
    Yeah, for real. And I was pretty much by myself. My boyfriend at the time had an older town job. So he was gone during the week. And so, yeah, there’s a lot by myself, but yeah,

    Winter 16:29
    that is. Did you take anybody with you though, to some of those appointments like your sister, your mom?

    Bailey 16:34
    Yeah. My mom and my sister usually came with me. Oh, bigger ones. Yeah, small ones. I just went in by myself, but okay. And

    Winter 16:42
    okay, so then tell me so that’s around 34 weeks that you got quite sick. Was that like a week or so? Um, how long was that? Second?

    Bailey 16:52
    Yeah, that was actually probably a couple of weeks. Two weeks. Oh, you

    Winter 16:56
    were sick a long time? Oh, yeah.

    Bailey 16:58
    It was it was miserable.

    Winter 17:02
    No. And then yeah, just tell me as as you go on, tell me what happens.

    Bailey 17:07
    I went on. Obviously COVID was there. And so places were shut down. We didn’t really hang out with friends. Unless it was like a small gathering in the house or whatever. And then it came to be made. And things were going good. We got her nursery all set for nursery was ready. It was ready to go or babies were packed. Around the 37 weeks. You

    Winter 17:36
    guys had to you guys probably had a baby shower and everything. Before actually.

    Bailey 17:41
    I said yeah. My baby shower was going to take place in March. Like right won the pandemic hit so so yeah, I had to have everyone just mail me the gifts. Oh, really

    Winter 17:52
    had a baby shower. Yeah, darn it. Yeah.

    Bailey 17:54
    But I just remember like, gifts coming in. And it was like Christmas every day. You walk up to the door and there’s a bunch of packages. Like we’ll take it. Yep. And so I actually just kept all the packages until my like, Baby Shower day. Yeah. And then we opened it up on that day. Oh,

    Winter 18:13
    yeah. Okay, that’s, that’s, I guess a good enough way to have a baby shower during Yeah. Yeah.

    Bailey 18:21
    I don’t think we need anything else. Her room is tactful. Okay.

    Winter 18:25
    So you guys were well stocked, though. I mean, yes. We got a lot of love from family and friends. So that’s great. Yes, very supportive. Okay, so sorry to interrupt here. So everything was packed nursery was ready to go.

    Bailey 18:36
    Yep. Yep. And it was Memorial weekend. And it was that Saturday, the 23rd. My sister has been begging me to do maternity photos. And I’m not a photo girl. I don’t like being in photos. But she’s like, You need to remember this too. first pregnancy. I was like, Okay, fine. So I got ready, we got ready. And then we headed out to the lake that was only like 20 miles away. And my sisters, and she had this arm land in the back of her like place. And that’s where we just took our maternity photos. And they turned out wonderful. I’m very thankful I have them. And that was the 23rd. And then the next morning was the 24th, obviously, and woke up and I was gonna go out to the lake to see my family again, while my boyfriend at the time went out to a friend’s house out in the country. And so is separated in different ways. And I decided to hide my family and then they were packing up to leave. I was like, oh shoot, like, you’re leaving. So I got to figure out a different thing to do today. And so I said goodbye to them and then I went back to the house and I called up my boyfriend’s like, what do you guys do mean? And he’s like, Well, you can come out here if you want, there’s nothing really going on. I was like, Okay. And then I always remember like going in and out of the house, like, I would go to my car, then I’ll be like, Oh, I forgot my water bottle, like go back in the house, and I come back out. And I’m like, oh, I need to do this. So it’s like those little things that you always remember. Like, were they all signs? I don’t know. But it was just took the felt like forever to get out there. And so I went out there on the country, and a couple of my friends were there, which was nice. So those people to talk to while the boys hung out. And the boys are just talking less girls got bored. So we went driving. And then we came back. And some more people were coming over. And it was kind of a first time like hanging out with friends with the whole COVID going on. Yeah. And so we’re sitting down around the table. And I remember like the topic about guns kept coming up. And which is whatever. And I remember there was a certain thing that they were talking about. And it was like about the grips on a gun. Oh, the grips, do whatever, I’m a gun. And I remember there was a gun brought out it was on the table. And again, talking about the grips or whatever. And then the person next to me, grabbed the gun, looking at the grips, checking it out, or whatever. And like when I say next to me, like we were literally right next to each other. And that’s when all of a sudden I was in shock. And I was in did not know what happened. My ears were ringing. And I knew the gun went off. And I remember just like what is happening, and everyone’s just like, freaking out around the table. And I looked down and I was like, I just got shocked. Oh, and that was neat. So

    Winter 22:07
    the person that was right next to you had grabbed the gun was just kind of messing with it. Yeah. And it discharged.

    Bailey 22:16
    It discharged. Yeah.

    Winter 22:20
    And so where was the where you said it was on the table, but this person had it in their hand or, like, from

    Bailey 22:29
    the table. And I’m guessing it was on my lap. I think I was talking to somebody else on this side. And then the person next to me was on the other side. So we were talking and then all sudden, it went off. And then you’re just in so much shock right away. And I just remember everybody just freaking out. Oh, yeah. Yeah.

    Winter 22:52
    Where did you get shot? Um,

    Bailey 22:55
    it was right in my bottom of my hip.

    Winter 22:59
    So bottom of your hip area and did it go?

    Bailey 23:03
    It’s like, where are your hip and your leg needs?

    Winter 23:05
    Yes. Okay. So through there. Yeah. So did it go through? You did? Or was the I’m assuming the bullet was lodged somewhere? Yes.

    Bailey 23:16
    Well, actually, that’s the first thing that everybody did. They came over and tried to find the exit. Yes. And we couldn’t find it. Couldn’t find it anywhere. I wasn’t bleeding. I wasn’t nothing was happening. That they just couldn’t find it. I remember someone calling 911. Yeah, and were

    Winter 23:38
    you in pain? I mean, like, I know, you were in shock. Were you Did you feel any pain? I mean, cuz shock can help protect you. For sure. Yeah.

    Bailey 23:50
    No, not that. I remember. I I wasn’t in any pain until later on when I went into back labor. But no, I know. I they kept telling me I couldn’t move. I couldn’t do anything. Okay. I remember I was sweating. I started feeling lightheaded. I was starting to like be a thing do you feeling Yeah. And I just like kept telling them what I needed as I need an ice rake. I need this. While they’re still checking me out all over trying to find this exit one and nowhere to be found. And so, obviously, my first thought was my baby. Is my baby going to be okay? And if I go is my baby going to be okay. I did not know what was happening. I didn’t know if I was just gonna be alive for a little bit and then I go, I was like, I just need to know that my baby’s gonna be okay for me to be stronger. In this moment, I just wanted to close my eyes and like go, Yeah, but I kept closing my eyes and then forcing myself to stay awake because I didn’t want to pass out until the EMT came and It was a bunch of them. They came and they brought. I remember a stethoscope and listening to Hazel’s heartbeat. And I could just kept telling me like, I don’t want to know, I don’t want to know right now, if you can hear it or not. And then later I was like, I want to know, I need to know if you can hear it. Please let me know if you can’t. And he’s like, I can hear it. I think she’s still alive. Okay. Okay. Okay, we got this, then I was like, I’m going to be strong. We’re gonna do this.

    Winter 25:31
    And then, can you tell me again? What about week? Are you 3637 3737

    Bailey 25:37
    was just gonna go in for my next appointment that week. And I was actually going to be asked if I could be induced because my boyfriend at the time was leaving for 80. So they take like, two and a half, three weeks. Yeah. Long content. Yeah. Sounds like for him to be there with her for a little bit. But yeah, I was 37 weeks. And so I was like, well, that’s a good if she was have to be born right now. And if she’s alive, then there’s a possibility that she can make. Yep, she’s full term. And so yeah, I remember the EMTs coming up. Then it was up up on the stairs. So they had to put me on a stretcher, and then carry me down to lifeflight. I remember, like flight flying and meeting us in the driveway. And I kept asking if somebody could come with me. And they kept saying, No, I had to go alone. And then I remember if I need to go to my doctor that I’ve been seen, that is in a different town. But I had to go to the high risk hospital that had better people for please, actions. And so I remember going in there, or into lifelight, I kept asking someone to call my mom. And I just really wanted my mom to be with me. Yeah. And going into lifelight. And just talking to her asking her, like you feel like it’s gonna be forever to get there in the moment takes forever, but it’s just a quick trip. Like, I think it took seven minutes. And yeah, I remember flying and landing on the roof and going in through the door, and then all sudden, there’s a bunch of people, yes, and white, just all ready to go. I want to say there’s like 20 People just waiting for me. And they’ll push me in into this room. And I lay down and there’s a doctor there that was going to do an ultrasound and there’s a nurse by my head that’s just kept saying we’re gonna pray it before we find out and I pray that everything’s gonna be okay. Right that everything’s gonna be alright, and you’re gonna make it and I remember the doctor but the Jelani, but the ultrasound on? And she’s like, do you want to see the screen? Or do you not want to see the screen and I said, I want to see the screen. And so I remember her checking. And obviously it took a while. And then that’s when it hit me that I knew she didn’t make it. There’s no way. And then the doctor brought over another doctor and kept asking if they see anything. And then they push the screen away. And then that’s when it really hit that should not make it. And obviously I’m still in shock. At this point. No feelings are going through me. no emotions, no nothing. I was by myself. I didn’t know what to do. And then they turn the screen back over. And that’s when she said I’m sorry, really, your baby did not make it. And I was like, Okay, and what is the next step? Like I am by myself. This is gonna feel real at the moment. I feel like this is a dream. But I said, Am I going to die? Is there a chance that I’m going to die? And she’s like, we we do not know at this point. I said, she’s like you need to go and get a CAT scan because they said that if she was alive that they were just going to go straight into emergency C section. Yeah. But since she wasn’t they took the time to get the X rays to find more where the bullet was more aware what things were going on inside. And so I remember that I kept going in and out. At this point. There’s the stuff that like I can’t really remember but I remember going into the CAT scan And I kept telling them, they can’t lay on my back. There’s, there’s no way I can lay on my back because I was just in pain. They said it will only be a quick 10 minutes tops like, and I was like, okay, so they helped me out and put a pillow on my back. And then I went in, and they checked it all out. And that’s where kind of like my memory kind of stops. Yeah. Because then I went into emergency C section. I went out, obviously. So I remember a thing about it. And I remember waking up in the room. The doctor was there. And she’s kept repeating me like, What just happened? I lost my baby. And I was still by myself. And I was like, and I was my mom, here is my sister here. Is anybody here? And they said, Yeah, your mom’s here. She can come in. Said, Okay, so it was my mom, my sister, and my cousin that came in. And I didn’t know what they knew, and no idea. But I told them, I said, maybe that make it and I remember my mom saying I know. And that was kind of that was tough. Yeah. Tough knowing that. I don’t know, you get the nod. The blame comes for yourself. Like I was I there? What was I doing? You know,

    Winter 31:34
    after the CAT scan, they just took you or emergency C section right away. Right? And then did they? Did you get to see Hazel at all? Um,

    Bailey 31:45
    so right away? No. When the doctor was there that woke me up. Or when I woke up, she was there. She kind of told me that they placed Hazel on my chest and did that. A few minutes of skin to skin before they took her back. So I mean, that is really nice knowing but obviously it sucks not not being there in the moment and not remembering it or singing it or because

    Winter 32:15
    I mean, most emergency C sections. I mean, yeah, they kind of put you out sometimes and other times you’re I mean, yeah. But I was gonna say they were probably working on you as well. Right? They were sewing you up finding whatever needed. I mean, they need to find the bullet they needed to take care of you. What, what, what was all involved in that surgery to take care of you? Um,

    Bailey 32:38
    so basically, it was just a C section right now. They found where the bullet was a bullet was actually stuck on my other leg. Oh, well, I went through. I went through my uterus. And then but obviously very low. Yeah, yeah. And then was stuck between two bones on my left leg. Okay. Yeah. And the bullet was they told me it was point five millimeters away from a big artery. Holy cow. That I could have lost it. Yeah.

    Winter 33:15
    Holy cow. That was Yeah. I say lucky. But that is not. Right. Right word.

    Bailey 33:21
    I mean, obviously, the scenario I wish I would have went into would have been Yeah, no.

    Winter 33:26
    Okay, so they did the emergency C section. And, and then you came out again, and then were they going to prep do you prep you for what was gonna have to happen for the rest of the surgeries? And yeah,

    Bailey 33:39
    so they are? I think since I was doing all right, that they were okay with waiting a couple days before I did think it was two days waiting for my other surgery to get the bullet out. Okay. So we came back into the array was back in the room. And I remember, my boyfriend at the time went to go see a nurse to see if he could see Hazel, okay. And I’m pretty sure he got told No, not right now. And so he came back in. And that’s when the first time that we saw each other again. Then the doctor came in. And she’s like, do you want to see Hazel? Or, actually, I should maybe backtrack a little bit. So it was my boyfriend, my cousin, my mom and my sister. And they said, Do you have a name for her? And I was like, um, I don’t know. And then I looked at my boyfriend at the time and I said, he’s okay. And he said, Absolutely. And so that’s when we named her he’s okay.

    Winter 34:52
    That’s cool. And where did you get case? I should have asked Is that a family name or?

    Bailey 34:56
    Yeah, so my sister and my mom. See middle name. Okay, okay.

    Winter 35:00
    Yeah,

    Bailey 35:02
    that’s fun. Well, yeah, I named it after them. And then the nurse came in and asked if I wanted to see Hazel. And I said, or something along the line of my boyfriend saying, No, you didn’t want me to see her in the circumstance. And then then there’s

    Winter 35:23
    he said, No. Yeah, yeah, were you.

    Bailey 35:26
    And, um, and then I thought about as like, Well, maybe not. I don’t know what happened to her, you know, and has told me nobody has. Okay. Okay. I don’t know, if the bullet hit her. I didn’t know if I didn’t know. I didn’t know thing. Yeah. Um, so I was like, Yeah, I don’t want to see her. And it’s one of the biggest regrets in my life. But so we moved on. And she said, Well, I took some photos of her, just in case you didn’t want to see her. But I took these photos whenever you’re ready, if you want to see them. She just took them on her phone. It was something very special that she didn’t have to do. But she did. Yeah. And I said, Yes, I would like to see them. And so I think I backtracked a little bit.

    Winter 36:21
    Yeah, that’s Oh, no, that’s okay. No, it’s totally fine. I think that is we, I wanted, we should definitely spend some time on what you did with hazel, or what your decisions were with hazel? Because that’s like the Yeah, it’s important.

    Bailey 36:35
    Yeah. So obviously, we’re grieving together. And we had family come in throughout the night, it was a long night of just our immediate family come in right away. Yeah. And obviously, COVID going on, right away, I only could have one person, and then they bumped it to three people, and then all sudden, they’re like, whoever wants to come and see you can come in and see you. And I was very grateful for that. And yes, they gave me a big room. And I’d stay in that room until for a couple days until my next surgery. So family kept coming in friends kept coming in visiting us. And then a couple of days later, is when the doctor came in and told me that she took pictures on the phone. Oh, okay. And so this is when I already knew that Hazel was off to the autopsy place to get all her autopsy done. And then she was going to head to the funeral home.

    Winter 37:40
    So you guys did get an autopsy? I just I’m not familiar with because there was a gun in involved. The autopsy is an automatic. Is that correct?

    Bailey 37:52
    I think so. Yeah. Okay. Okay. Well, they had to do an autopsy. Okay,

    Winter 37:56
    gotcha. Okay, to make sure to kind of rule out whatever happened. And so yeah, okay. Yeah. Okay. And

    Bailey 38:03
    so the doctor showed us these pictures off of her phone. And obviously, we just bought looking at her how much actually at the time, we could not see her hair. Her hair was covered too is she had a little hat on, and then a blanket. And we couldn’t see anything else. I was just like, Oh, her face. And I mean, it was still very special. And we’re just, I’ll bet her nose was her chubby cheeks like it was actually like, I mean, we like, you know, you’re pregnant. You know, you’re gonna be a mom, but like seeing them in real life is a big. It’s a big difference. Yeah, that’s how I knew I was like, I That’s my daughter, my daughter right there. And I would say I just stay in a hospital for a couple of days. And before my surgery, and then I went back and got the bullet removed. And then I had to stay a couple more days. I think my total stay was a week long. The doctors brought in the mold of her feet, or hands. Oh, good. I have those which was really special. They took the stamps. And then they cut out cut off some hair. They did have a little envelope of her hair. Oh, good. Yeah. And that was pretty much our hospital stay away. People coming and going. We had funeral homes coming in. We had people to talk to for therapy, obviously it’s a big Oh, yeah. Big thing with making sure that we’re okay. And knowing the next steps. I mean, obviously you don’t plan for this in your life. Nobody plans this when they’re pregnant. And I never really thought I would be in charge of a funeral. Yeah. For my daughter.

    Winter 39:58
    So Bailey when you did finally show, talk to the doctor, and she showed you the pictures of Hazel, did you ask her any questions about maybe how she passed away? Obviously, you, you had a major trauma just that basically happened to you. So I’m curious if and it had gone through your uterus. So entered like, did it? Did it hit any bones or shatter any bones or anything like that? Okay, no, no,

    Bailey 40:29
    no, it just went straight through. Okay.

    Winter 40:32
    And then launched into your other leg into the bone itself. So, okay, but didn’t break that. Didn’t it just launch there? Okay. Yep.

    Bailey 40:41
    Yep. And, obviously, I, I was in a catheter for most of my stay. I wasn’t able to walk right away. I had therapy coming in, it was basically learning how to walk again. Yeah, no, I mean, how to get up. And I remember one of the days that they came in, they’re like, alright, we’re taking the catheter out. And I was like, no way. There’s no way I’m gonna be getting up and going to the bathroom. And so we pushed for it took a little steps day by day. Then I finally moved on to going up and down steps. And obviously, it was very slow, very hurtful. It was very painful. Yeah. They wanted me to be able to go upstairs, downstairs and be able to walk as our house had serious to get up to Yeah. Before going home. And finally got to the point where I was able to leave. We had a funeral in mind. But nobody was pushing things at the time, which was very nice. They said, let us take us at a at our own rent or at her own time. Yeah. And I remember packing up everything. And obviously, all the flowers, all the things that you get from everybody just very special. But also, it’s very hard to go walk down the halls afterwards without baby. Yeah. And I see other families being happy, which they should be, but it’s hard.

    Winter 42:13
    Yeah, you don’t have

    Bailey 42:17
    the drive home. Like I said, it was about 45 minutes from our house. So that drive home was really long. Really sad. And then getting home was probably another hard thing. Obviously, her nursery was set. We had everything ready, ready to go. We actually had family and friends come to the house while we were in the hospital. And they kind of helped us pick up everything. And we told them right away that we wanted the door shut to Hazel’s room. I mean, I had her bottles outed the clean mean stuff out. And so they kind of just packed it all up for now. Yeah. And so we didn’t have to walk in to everything baby girl for everything, baby. So we got home as long and then we’ve had to start doing the funeral process. And I always said that I wanted to walk before her funeral. That’s one of my goals. I want to walk without my walker. Yeah. So I don’t want to have her funeral until then. And we knew that she wanted or we wanted her to be cremated. Okay. So we met with the funeral home a couple of days later. And then they told us that she should be coming back from her autopsy. And then that will be a time where we can finally say our goodbyes before she goes and gets cremated. I remember waking up that day and feeling very sick. Like it was like the first time that I ever felt like a real elephant was sitting on my chest. I couldn’t breathe. I couldn’t. I didn’t know what to expect and didn’t know what to do. But I actually had my cousin who was a nurse was actually made a connection with their hospitals. I want to say aggrievement person who comes in and talk to them. Yeah. She gave me yeah, she gave me a phone call. And she kind of went through all the steps about how today’s gonna go. She’s like you can do anything you want. You can tell them anything you want. This is your child. If you want to write down a journal of what you want to say to his or you want to sing her lullaby if you want to bring anything to be cremated with like your baby blanket or a certain outfit, she’s like, you can do literally anything. She’s like, I want to give you some points. You take it and you can do whatever with them. That’s good. Yeah. And so I gathered Oh, my baby blanket. My boyfriend took his name tag from the military. And so we brought that in. And I wrote a little note that I still have what I wanted to say. And remember, our families came with us, our parents came with us to the funeral home, we kind of went over the steps of the funeral home what we wanted. And then it was finally time to go into the room and see her. And they kind of gave me some advice. So they said, We, I don’t know if it was that word for word, but it was something around like, not sure about holding her as she won’t feel like a baby. And I was just kind of crushed by that. I didn’t know how to take it, and didn’t know what that meant that No, like fluid or thing got to her. She was like, lopsided, like I still at this point, had no idea what truly happened to her. Okay. And and so we went in, they said that right away, she’s gonna be covered with two blankets. And then as you want, you can take off a blanket. And then you’ll see her arms. And then you can take off another blanket, and you’ll see her feet and her legs. And so obviously, you go in there and you see blankets covering your child is very hard to see. And so just took my time. And that was the first time I got to see her hands. And it was very special. She had really long fingers at the top. And then she had like, chunky from the knuckle down. Oh. That’s kind of like a memory we always have and what we kind of can laugh about is her. Only say her funny hands so long and skinny and chubby. It’s like her mom’s hands in the front. And then the bottom was her dad.

    Winter 47:05
    That’s funny is a hand. Yeah.

    Bailey 47:10
    Um, yeah. And then her legs and her feet. She had long legs. She was 20 inches long. And she weighed about five pounds in 10 ounces. Oh, yeah. And then we saw little hairs on her legs and our arms. And that’s kind of how I came out. I came out with a lot of hair came out a lot with a lot of hair on my body. My dad always made the joke that I was half monkey. Oh, yeah. But um, so it’s kind of special, like, seeing those resemblance of you on your child. And then I still didn’t see her face. It was covered. And it was something that I couldn’t do. And then obviously, the another regret that I wish I would have pushed for and pushed for my child and pushed for myself as being able to see her in person. Yeah. At the time, I was just listening to everybody else. And worried about everyone else’s feelings and not really on my own. And I knew that I I shut it on it. I should have looked at her. So I held her anything I wanted. Um, and then I think we spent about an hour in there. And then it was finally time to say our last goodbye. We gave her all the things covered are up on my blanket. And then we came back out. And there’s another tough day. Yeah, so my walker. I say it’s exhausting. You just don’t know how to cope with it. Yeah.

    Winter 49:04
    Right. In the funeral home is yeah, not. No, not great. It’s not

    Bailey 49:11
    at all I see this walk in and it’s just your motors. But

    Winter 49:18
    Bailey, can I ask you a quick question? What are some of the things that you guys did with her? For that hour that you spent?

    Bailey 49:27
    Um, obviously, I touched her the whole time. Yeah. I kind of got I read her what I wanted to say to her just apologizing for everything. And wishing things were different. Obviously, we had a couple chuckles about our fingers. So it was kind of nice when we’re just sobbing and crying. We had a couple laughs Yeah. But, and then I wanted to take some pictures pitches that I had. And so we took pictures of our hands and our legs and feet. And then we took them off holding them in our hands. So it’s kind of like us both. And then her feet were on. Those are pretty special pictures. Yeah. Basically what we did during the time, lots of crying lots of holding hands and just spending that time with her. Yeah, the first time really.

    Winter 50:24
    And and you did mention that you were worried about looking at her face. Up until that because it nobody still had told you what had happened or how she looked or anything like that. Is that right?

    Bailey 50:38
    No, no, nobody. I mean, I guess it’s not really a question I asked either, because I kind of just assumed, yeah, but I also did not know what, yeah, okay. Yeah. Obviously, I knew that that’s how she passed was from the bullet. But I didn’t know where it went in. Or if it went in or if it hit something. I had no idea at this

    Winter 51:01
    point. Yeah. You did have some other pictures from the doctor that showed her face and everything.

    Bailey 51:07
    Okay. Yep. Yep. So you hands more? Yeah, I had a picture of her face. And it was actually just a picture of her half face. There was a blanket covering the half of her face. So that’s kind of where I put into my mind that she that was where she got hit. Yeah. But again, I didn’t confirm it with anybody. It was just in the back of my mind. And so we planned the funeral that day. I think it was like a week or two later, I asked my sister, she would sing because she has the most beautiful voice. And she said, if you want me to I will. And so it’s a song I always remember. It’s jealous of my angels. And she’s saying that. And the other day of her funeral. We had an early morning. And I remember getting to the church. And all of a sudden this church was just packed. Sure. From top to bottom. We had a very supportive community. Yeah, I’m forever thankful for it. They were there for us. It was a packed church. And then the pastor told me, it’s pretty packed in there. I don’t know if you want to walk down the aisle or else you can come out from the side. Yeah, it won’t have to face anybody. And so we decided to come out from the side and go in the pew. And it was a beautiful service, a lot of cries. And then finally, I wanted to walk by myself down the aisle back. It’s just something that I wanted to do for her. I wanted to be brave, I wanted to be strong. And so we exited. We went down the aisle. And we had people come out. I was trying to get away and head to the house. But obviously when people come out, they want to see you they want to give you the hugs. And so I think I held almost everybody in there, which again is it’s grateful for

    Winter 53:09
    that support. Yeah, that’s awesome. That’s great. Yeah, yeah.

    Bailey 53:13
    But yeah, posters made or canvases. And I had her mold out. And then we got these like dog tags from the hospital too. So I had those out. And I have just like a little table of remembrance for her. Yeah. And so that was pretty special to have that.

    Winter 53:32
    That’s great. And then did you get the autopsy results after that? I know it takes a while to and autopsies to actually come back. Yeah,

    Bailey 53:45
    so yeah, we went through, obviously, you go through your own grieving process, your own therapy. And then one of the things I wanted to do was meet with a doctor. That was in my surgery, and I just wanted to go have an appointment with her. And I wanted to ask all the questions. Yes. I had a list of questions I wanted to know about her. And, and so it was a couple of weeks later that I went in, and I talked to her. And well, I also had to get my staples out, too. And so I got staples out on my stomach and staples out on my leg too. Yeah. And so

    Winter 54:22
    Oh, man, that’s like a lot of like, your surgeries, like your emergency C section and then plus your other surgeries like I Yeah, yeah, there’s a lot. That’s so much Bailey. Like, holy cow. This is crazy. Okay, so you went in and had those taken out? And then what did you ask her all of your questions?

    Bailey 54:41
    Yeah. So I asked her and I said, I want to know if the bullet hit her where it had her and where it came out or and I said, and then I asked, did she feel like a baby being held? And she said yes. And then that’s what I broke down, knowing that I made the wrong choice. And she told me that it did go through her head. And it came out to her head, went in her back behind her ear, and then came out on the bridge of her nose. Oh. So that kind of put into place by the picture that we had of her was covered. Yeah. We kind of talked about it, how she had tan skin. Her hair was crazy. It was super long, and did a little wave to it. And it was kind of I finally got that. I want to say I don’t like closure, a little bit of knowing what happened to her. Yeah. And, and so then, after that, I kind of just did a remembrance of her every month, we let go of balloons. And then obviously picking out her gravestone. We knew, obviously, she wasn’t gonna be buried there. But we want to do some Memorial bench for her or people to come and visit and just spend the time or. And so picking that out. It’s a lot. It’s crazy for parents just pick that up for a little baby. Yeah. And so we found the perfect one. And we got to make it personalized for her. And then I think I want to say it was about December, my sister and I were sitting at her house. And we’re just like talking talking about her. My sister was the most supportive person ever. It couldn’t have done it without her. And she’s like, did she go in for an autopsy? And I was like, Yeah. And she’s like, because I always told her he was one of my biggest regrets was not being able to see her. And she said, Oh, why don’t we reach out to the place that took it? And see, because obviously, they have to take pictures for them

    Winter 57:18
    for their reports and everything. Yeah.

    Bailey 57:21
    So she’s like, why don’t you reach out to them, and just see if they have any pictures. They’re like, we know what’s over that six month I was like, I don’t know if there’s a certain time limit that they keep everything or what they do with it. So I reached out to them. And the lady called me back a couple days later, and said, Yeah, we have pitchers. We have things if you want. And I said can I am I able to come and see them. I was like I told her kind of the story. I said, I didn’t, I wasn’t able to see her. I wasn’t able to do anything. I just want to see her I want to see it before her. And she said absolutely. So we arranged a time. And my sister came with me. And we came in and it was pretty special. Like they they could have just given me these pictures. And that’s it. But this girl went above and beyond. And I walked in and it was like a slideshow. Oh, Baby Hazel. Oh baby girl, Hazel. And I was like, This is awesome. So kind. Yeah. And so her and I talked about it. And she said the first picture is this. The second picture is this. And then the third is when you’ll see her like fully without edited without anything because she said that her and another person she worked with, they actually took the time to edit photos between the time that I called now. And so she told me she’s like, this is an edited one. And it was like her full face. Yeah. And it was just beautiful. I could see her for who she was. Yeah, the whole her. And that’s when I first time I saw her hair. And I looked at my sister and I was like, holy cow. She has a lot of hair. Yeah. And that was pretty special. I mean, it was dark. And that’s when she told me that her eyes were brown. Oh, okay. And I was like, oh, that’s something I just didn’t think of I didn’t think to ask I didn’t think of what the colors they would be you know. And so at the time, yeah, her eyes were brown. So that was pretty special. Because I got blue eyes. Yeah. But um, yeah. And so we went through those pictures. And then it was she’s like this next one is unedited. You’re gonna see it and I said it, okay. And she’s like, I’m just gonna give you a heads up, like where it is on her work, what you will see and everything. And then I look at it and my stomach just dropped. And I said this is this is her, and is actually pretty special to know. Like, you couldn’t really see anything at all. There was no, I mean, obviously there was damage, there’s blood there was a little bit but nothing that I was pictured in my head. Okay. You couldn’t fully see the exit hole you couldn’t really see much. And it was just the most beautiful picture. Oh, okay. Yeah,

    Winter 1:00:45
    that’s a nice thing right there. Holy cow. That is

    Bailey 1:00:48
    Yeah. And then. So that was a close up of her. And then the next one was her full body. And those are the two pictures that I have on my phone that I just I love them. Because I can see her full body. Like I can see your stomach. I can see her legs. I can see your neck. I can see your head like just everything. And it’s it’s just perfect. Perfect little baby. Yay.

    Winter 1:01:12
    Yeah, those little babies. Yeah. So they’re just, they’re perfect. Right? They

    Bailey 1:01:19
    are? Yes.

    Winter 1:01:21
    What a special. First of all, I’m going to say your sister is a godsend because like even just to put that in your head to just go try and see if you can get that file or or the picture. Absolutely. I think that was a big deal. And then the people there at the coroner’s office was they, they Yeah, they sound amazing. Like, it kind of people not

    Bailey 1:01:42
    expect anything like that. And they did. And they actually gave me a flash drive. I have these pitchers forever. Yeah.

    Winter 1:01:49
    That’s awesome. Yeah, that is wonderful. That’s wonderful. Did that feel like a bit of like you said before, it’s not necessary closure. But did you feel? Yeah,

    Bailey 1:02:01
    I did. I did feel I felt like my last step that I always wanted, was met. And I got to see her for who she was. And I got to see the full her without edited without covering. Yeah. And I know, everybody was just trying to protect me. And maybe it was, but it was, it was, it’s what I needed is to see the full thing who she was. Yeah. Yeah. And it was a picture that I hid for, honestly, two years. And then show anybody until this past year.

    Winter 1:02:39
    Really? Yeah. Sometimes those are sacred. Those are special and just you kind of hold them close to your heart. And that is that is wonderful. So because those are, yeah, there’s a few of them that I don’t share of my son yet, either. Not really, just my husband I’ve seen I’ve seen them. So I’m just so sorry. This is like I’m assuming your recovery for your your legs, muscles, all everything that was essentially damaged by the bullet was okay was progressing. Well, any permanent damage damage that you are aware of? Um,

    Bailey 1:03:19
    no, no, I, I recovered, and they said it that I was able to have more babies when I was ready. Okay. And so that was one of the most the biggest concern that I wanted if I was ever going to be a mom again. Yeah,

    Winter 1:03:35
    especially if it went through your I mean, yeah, it hidden obviously hit Hazel. So went through uterus and everything. Yeah. So. Okay, so they they do feel like it is a positive. You have a it looks positive for you. So yeah, yeah. Good. That’s great. Bailey, I think that there’s going to be a few people that want to know a little bit more about the whole the gun discharging so I’m wondering if you can go a little bit into that and what happened and like what happened afterwards? Because obviously, there was actually one right there’s one casualty and and your life you’re you have been hurt significantly. So can you tell us a little bit about how that was handled and and if you don’t want to get into certain things, you don’t have to mention that. I’ll try not to pry too much. But if you want to share then I’m sure others will be curious to know what happened and and if there was any resolution to that.

    Bailey 1:04:34
    Yeah. So the person next to me that was sitting next to me was actually my boyfriend at the time. Okay. And he was the one that the gun went off in his hands. And so that is why he couldn’t come with me right away. We didn’t know what was was gonna happen. But afterwards after we got home the sheriff came over. And I kind of had to say my statement. And it was an accident. And accidents do happen. And I press no charges. It just something that we have to learn from this day forward. Yeah.

    Winter 1:05:30
    Probably was quite heavy. And

    Bailey 1:05:34
    it was a hard, really hard recovery with going through grieving. Yeah, when we’re both on two different pages of the story. Yeah. And supporting one another, it was really hard.

    Winter 1:05:48
    Did you find that you’re getting getting some support from him? Or, I guess I can imagine there was a lot of obviously anger and, and guilt. And there’s, yeah. Yeah. Along with the grief and right, there’s like, there’s all of it. There’s like so many layers of it. So how, how was that?

    Bailey 1:06:14
    Um, yeah, it was hard. But obviously, we went through right away, we’re really together, we were supporting one another, really listening to one another. We kind of kept to ourselves for a while. And then as months go on, I think is when anger started to come out. And just things that it was kind of it was really hard, actually, because I wanted my house to be full of her. I wanted her to be everywhere in my house. And my boyfriend at the time can take it, you can take looking at her. And I think that was the one of the biggest things that hurt me the most. Is the baby that we made, baby that we created. Maybe that I carried for almost nine months. Yeah, that I just have to not have her in the house. But we came to terms and we had one little area of her. We still had a nursery up for a long time. Yeah. And but yeah, there was a lot of anger, a lot of anger. And, obviously, I think, a couple of years, or a year and a half after is when those are falling out. We couldn’t be together anymore with what happened. It was really hard to support one another and love one another. And to be on the same page again, it was something that we knew that we probably wouldn’t ever be on. So in that time, it was his house. And so I had to pack up everything. And that was the first time packing up Hazel stuff.

    Winter 1:08:12
    Oh, so Bailey, I know that we kind of went over a number of the details in your birth story. And not really talking that not really mentioning that it was your then boyfriend that had that had discharged the gun. So I suspect that there was a lot of I personally, if I if this happened to my sister, this I would have I would have been all up in his face, honestly. So I’m i How did your family take that information? And news and yeah, how did how did that work out?

    Bailey 1:08:52
    Obviously, the first thing was to make sure that I was okay. Yeah, everyone was there for me. But it was a long process. It was a long road of being able to face my parents and still being together. Obviously, there’s a lot of anger, a lot of anger with our family between our my mom and dad really and my sister. But they kind of kept quiet as they knew that I I was kind of basically I was protecting him. I didn’t let my feelings come out. I didn’t protect myself and my life. I was really worried about him in the ways that I probably shouldn’t have been. But you think of it when you’re young. You’re in love you think that that is your forever and it really wasn’t. And it was just, it was really long. It was yeah, it was long. It was a long couple of I think it was a year and a half afterwards. And

    Winter 1:10:02
    So were your parents. I know that you, you said that you kind of put hit him a little bit first and kind of put your feelings in the, in the background there. Did you? Or did your parents say anything to you or your sister say anything to you about it or question you about not pressing charges, that type of thing?

    Bailey 1:10:24
    Not really, I think everyone was still in shock right away. And I knew there was a lot of anger. But I remember my dad always saying if if you’re okay, and if this is how you want to live your life, then I have to keep my mouth shut, and I have to protect you. And he said, If you’re happy, then I will support you in any ways that I can.

    Winter 1:10:56
    Good, right.

    Bailey 1:10:57
    Yeah. I never thought about pressing charges. It was never really a thing that came to my mind. I knew it was an accident. And I knew that it wasn’t on purpose. Yeah, I’m in accidents do happen. And I don’t know, I don’t know how I would have been if it was a friend that did it. Or if it was somebody else that did it. Right. I mean, you think of it, then yeah, maybe I would have pressed charges. But knowing that it was a boyfriend at the time, and knowing that it was an accident that it wasn’t really something I thought of as we grieved of losing her together that I didn’t really want to do it by myself.

    Winter 1:11:39
    Yes, because it is hard. It’s a hard road anyway. So Bailey, thank you so much that I think that will help others feel like knowing that sometimes it’s a journey. And sometimes you learn a lot about yourself. And as you go through life and sounds like you’ve had in the three and a half years, you’ve really been able to like, heal and grow and learn some stuff has been important. Yeah,

    Bailey 1:12:10
    I think this last six months, has been the happiest that I’ve ever been since then. And I’m pretty proud of it. That’s

    Winter 1:12:18
    great. Because it does take work to to be in that place.

    Bailey 1:12:23
    Yeah,

    Winter 1:12:24
    that’s great that you have felt like peace and happiness for the last six months. I’m wondering, is there anything that has been helpful to you to in that healing in that? Yeah, the growth? Is there anything that’s been helpful for you?

    Bailey 1:12:38
    Yeah, I went to therapy right away. There’s a couple that I went in, I didn’t really like. And then I finally found a girl. And she did EMDR training, which is the eye movement, dissonance, annotation processor, diarization, yeah. Processing. And I did not have any idea what it was. And so we took it. So basically, that’s how I’m able to tell my story. It’s how I’m able to say it fully. And what we did is we broke up the trauma, and the accident by little pieces. And each session that we did, we focus on the one section, and it was about talking about it, and then thinking of like a different room, you’re in something that calms you. And think of different things when we were able to say it. And so I think that really helped me process the full traumatic event. And, and I’m able to say it to the state. And I think that is really amazing. I am thankful for the EMDR therapy that I did. And really just my friends, and my family just being there for me every year. celebrating her birthday is a big thing. We get together and we all release balloons. And I let the kids draw on these rocks that I bring out to her memorial bench. And I think the biggest thing is letting go of the relationship that I was in. I think that had to do a lot with the and truly happy now. Yeah, it’s a big weight that is off my shoulder that I didn’t think was ever there but it was but

    Winter 1:14:32
    it was. That’s, that’s great. I just, well a couple of things. EMDR has been it’s very has been a very helpful therapy for me honestly and I think Lee has also found it helpful when we have done that mode of therapy. So I think that’s awesome. If you don’t know much about it is it does help process trauma like and this is a big T trauma type of situation like there’s there’s a lot that you have dealt With and, and it’s great that you were able to find somebody, oh, that was going to be another thing I’m going to throw in there is that you got to shop around for a therapist until you find the right person. Because you really do, you’re not going to click with everybody. So that’s just another little tip. If you are going through this chopper route, it’s okay. If somebody doesn’t click with you. It’s not, it’s not the right might not be the right person. So yeah. And then I think that’s really cool that your family is so supportive of honoring Hazel remembering her, they seem to be very involved in and wanting to talk about her and wanting to do they

    Bailey 1:15:37
    are and I am very thankful that they’re actually see her as a grandchild and, and actually a person, not just an event that took place. And not just the trauma that took place. She was actually the baby, she was the person to she was there. And it’s somebody that I will never forget. And I do want to say thank you for providing this podcast, because during my time, I was searching on podcast, and I found you guys. And that’s what really helped me the first year was listening to other people’s stories, and connecting with them and just driving in my car crying alone with them. And that is another thing that helped me a lot. And I’m thankful for you guys.

    Winter 1:16:27
    I’m so glad that’s what we we we wanted to have a podcast to listen to, but there was nothing there. So we’re like, let’s just start it. We’ll just do it. Yeah. So I’m glad that that was a comfort to you. And thanks to all the parents that have shared other stories that were willing to be vulnerable just like you Bailey to tell your story. Bailey I thank you again for your time today. I want to just ask you one last thing that anything that you would like to share about Hazel briefly before we close today, what to remember about her and say to her,

    Bailey 1:17:03
    um, that I will always remember her a little cakes and our hiccups in my belly. And that she was forever my hero. She saved my life. If I would have been for her that I know that I wouldn’t have made it and that I always say that she is forever my five pound 10 ounce sweet baby girl who is my hero.

    Winter 1:17:30
    Thank you this beautiful thank you

    Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: c-section, stillbirth

    Her Baby Died–5 Things NOT to Say + Bonus Tip

    March 9, 2023 by Winter

    In Honor of Pregnancy and Infant Loss Awareness Month, we are sharing some of the worst things people have said to us and other moms and dads that have lost a baby either by stillbirth or infant death.

    If you’re a loss mom/loss dad, what are some of the things you’ve heard that you would recommend people NOT say?

    Check out Winter’s interview with Nicole at Mamas and Misses about Pregnancy After Loss (PAL): Here
    Shout-out to Ashlee of Presentlee for words of wisdom and beautiful, encouraging jewelry. See their mission and shop here: @presentlee

    Watch here (YouTube):

    Listen here (podcast):

    Time Stamps:

    00:00 What?!?
    01:00 Disclaimer
    01:16 Why would you say that?!?
    02:20 Are you kidding me?!?
    03:36 Yikes!
    04:03 I can’t believe you just said that!
    04:53 Oh c’mon!
    06:29 BONUS!
    08:06 Last advice

    You might appreciate these other episodes:

    • Watch/listen to Waves of Grief | Bereaved Mother’s Day episode: Click here
    • Watch/listen to Mom Winter (and co-host of Still A Part of Us) birth episode of son Brannan: Click here

    Wanna help?

    • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
    • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
    • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.

    Filed Under: advice, podcast episode Tagged With: advice

    A Dad’s Grief Process After Stillbirth | Baby Lydia

    February 17, 2022 by Winter

    In this interview, dad Jonah talks about the things that helped him after his daughter Lydia was stillborn at 30 weeks because of an umbilical cord accident. He understands that he and his wife Danielle mourn differently and they both strive to help each other in the moment. Jonah also talks about the anger he had after Lydia died and how he had to acknowledge it as part of the grief process.

    Watch here (YouTube):

    Listen here (podcast):

    Time Stamps:

    00:00 Welcome
    02:27 Open communication with his wife
    05:24 Overlooking insensitive comments
    08:52 Writing after Lydia’s death
    10:06 Homemade Molly Bear
    12:23 People grieve differently

    You might appreciate these other episodes:

    • Watch/listen to Jonah‘s birth episode of daughter Lydia: Click here
    • Watch/listen to Danielle‘s advice episode of daughter Lydia: Click here

    Wanna help?

    • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
    • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
    • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.
    Baby Lydia, stillborn at 30 weeks

    Full Transcription:

    Filed Under: advice, late term stillbirth, podcast episode, stillbirth

    In Loving Memory of Baby Lydia Jaelle | A Dad’s 30-Week Stillbirth Story

    February 17, 2022 by Winter

    Dad Jonah recounts the events of his wife Danielle’s first pregnancy, and how he remembers Danielle asking the doctor about whether she should be monitoring the baby’s movements. Danielle noticed decreased fetal movements, and when they get to the hospital, they are unable to find Lydia’s heartbeat. Lydia Jaelle was stillborn at 30 weeks due to an umbilical cord accident.

    Watch here (YouTube):

    Listen here (podcast):

    Time Stamps:

    00:00 Lydia
    02:42 Pregnancy and finding out
    07:28 Going to the hospital
    10:52 Birth
    16:25 After birth
    19:46 Going home
    30:37 Funeral arrangements

    You might appreciate these other episodes:

    • Watch/listen to Jonah‘s advice episode of daughter Lydia: Click here
    • Watch/listen to Danielle‘s birth episode of daughter Lydia: Click here

    Wanna help?

    • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
    • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
    • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.
    Lydia’s tiny hand

    Full Transcription:

    Jonah 0:00
    My daughter’s name is Lydia.

    Jonah 0:07
    When she was born, and we got to see her for the first time, I was at an absolute loss of words to describe how beautiful I thought that she was. I’ve never seen anything more beautiful in my entire life. It was– I’d never experienced anything like that before, where I just could not comprehend how beautiful that she was. So I remember she had curly hair, dark curly hair. Which was a bit of a surprise that she had dark curly hair. We always thought that she would have blonde hair. I think my wife was hoping that she would have blonde hair like her. Then blue green eyes like me, but we never got to see her eye color. She had big feet. Very similar. I think Danielle said that she thought that her feet reminded her of my feet. That was the thing that I just remembered the most about her. I just could not comprehend how beautiful she was. I mean you see babies and people talk about babies all the time. About how cute they are, and all that. I will be the first person to admit that when my son was born there was a period of time where I was like he’s a little bit scary looking. But once she was born, she was absolutely the most beautiful thing I’ve ever seen in my life.

    Winter 1:42
    Welcome to Still A Part of Us. A place where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter.

    Lee 1:49
    And I’m Lee, we are grateful you joined us today. Please know that this is a story of loss and has triggers

    Winter 1:55
    Thanks to our loss parents who are willing to be vulnerable and share their children with us.

    Lee 1:59
    If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

    Winter 2:06
    Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us. They’re Still A Part of Us.

    Lee 2:20
    Well, wonderful, thank you so much, Jonah.

    Jonah 2:22
    Yeah.

    Lee 2:23
    For this podcast tell us a little bit about the time period leading up to the pregnancy of you and your wife, Danielle? And then where were you guys at? What were you guys doing? Was this a planned pregnancy, or was it a nice surprise or?

    Jonah 2:42
    So we had just moved to South Carolina in 2013. It was actually in April when we found out I think it was April 15th. So tomorrow I believe would be the anniversary, I guess. If you want to call it that of when we found out that we were pregnant. We had been discussing definitely wanted to have children. At the time, I kind of wanted to wait a little bit longer. Just because I mean, we had only been married for maybe two years. So living together was all new and all that to me. You have a wife, and you’re still trying to figure out how to live with one person. Then not even 10 months later, you get another person come in here. It’s difficult to figure that all out.

    Jonah 3:42
    So we had been talking about getting pregnant. Then it turns out that we were. So at the time I was working at a hospital in cardiac rehabilitation. Then Danielle was working remotely. So she worked from home full time. She’d occasionally have to travel for various meetings and whatnot, or presentations. So back to Virginia or Maryland or various other places.

    Jonah 4:16
    So we were renting a home at the time. So it was in August of 2014 that we had purchased our first home together. It was just two months after that when we found out that Lydia was not going to make it and she was stillborn. So that was very difficult. Because only being in our home, two months in a brand new home and then having to go through that experience. That was like not starting off on the right foot or so to speak and whatnot. So we had some, I would say negative–

    Lee 5:04
    Probably negative feelings yeah.

    Jonah 5:07
    Yeah. But we figured that out. I remember details about the evening very clearly, so. I believe, so that time, obviously this was well before COVID, and all that craziness. I went to pretty much all of the doctor’s appointments.

    Jonah 5:29
    I remember very clearly, my wife asking the doctor, if she should be counting kicks. Monitoring movement, maybe, the baby’s movement patterns and whatnot. He hesitated for a second, and then said, No. There’s no need for you to do that. I can remember it very clearly like it happened yesterday. That was seven plus years ago.

    Jonah 5:59
    So one night, we were watching TV, and it was actually we’re watching The Walking Dead, it was on a Sunday night. So it was kind of later; it was after nine, around 10 o’clock or something like that. And Danielle noticed that Lydia wasn’t moving much. And I could see that she was getting pretty frustrated or pretty concerned, we were at 30 weeks at the time. So I think she had called into the doctor’s office and the doctor’s office suggested that we go to the emergency department. So we went upstairs to get ready.

    Jonah 6:37
    I remember praying about the situation and never having considered for a second that we would find out that our daughter was gone. It was quite the opposite. I remember when I was closing the door to go out of the garage to get in the car. I was thinking to myself, I was like, I looked and looked into our home. And I was like, when we come back from the hospital, we’re going to be bringing a baby back home with us. And that was absolutely not the case. So we jumped in the car about what to–

    Lee 7:16
    About time was this? You were watching The Walking Dead?

    Jonah 7:23
    Yeah.

    Lee 7:23
    You called, got ready. Was this about midnight, that you started to leave for the hospital?

    Jonah 7:28
    No, it was a little before that. So it was before 11 o’clock, and all this stuff started. So we got to the hospital late. That’s about a 45 minute drive, something like that from where we lived at the time. Couldn’t figure out what entrance to get into, we were on the wrong side of the hospital, I had to go around to the other side. Then we got in there, they got us back into one of the rooms.

    Jonah 7:54
    They started off doing a Doppler and I can remember, there were two or three nurses in the room. They just kept trying to do an audio capture of the heartbeat and they couldn’t find it. Then they got the doctor who was there that night. He came in for an ultrasound, I can remember as clear as day seeing our daughter inside of my wife’s belly. Seeing her face, I can remember her face. She was laying on her right side. You could see the outline of her rib cage, all of that. I remember clear as day. You could just see her heart that wasn’t beating. So that’ll be something that sticks with me the rest of my life. It was absolute shock, disbelief. The doctor said I’m sorry, but your baby doesn’t have a heartbeat.

    Jonah 8:58
    It’s just the exact opposite of what I was literally thinking when we left .I was fully expecting that something would happen and we would deliver. Even though it was at 30 weeks I was still expecting somehow that we would deliver a baby that night. And in a couple days we’d come home and that you’d be home and my wife would be fine. Our baby would be fine. So it was definitely not the exact opposite so.

    Lee 9:27
    Yeah, no. It seems like it’s a running thing with parents. It’s always like, you never expect that. You never expect to not come home with a child. I remember cause we were sitting in church and my wife’s like, Oh, I haven’t felt him move in a while. I was like, No, he’s just getting big. It’s no– there’s not a lot of room in you for a baby. So we went up to the hospital. The whole way there I was like, yeah, I’m glad we’re going because it’s going to put her at ease. I never expected like what you said, I never expected to hear those words. That your child, your child’s not alive.

    Jonah 10:11
    Yeah.

    Lee 10:12
    About what time was this just to sort of set? You left about 11 o’clock. You got up to 45 minutes ish to get to the hospital?

    Jonah 10:22
    Yeah, it was probably after one o’clock. When they actually did the ultrasound and they determined that her heart wasn’t beating.

    Lee 10:33
    What are the next steps after that? Did the medical staff give you options? With us they said we could start the delivery process right now. We can hook you up to pitocin and get you guys going. You can go home? What were the options in the steps that they told you?

    Jonah 10:52
    Yeah, they did, I guess, give us the option. I do remember them saying something about, you guys could go home and come back for delivery, but you’re gonna have to deliver the baby. So we did not do that, we stayed there. So at the time, we had a dog. So I think we had to call a neighbor or friend to take the dog out that kind of stuff. So we stayed in the hospital, though.

    Jonah 11:23
    They moved us to another room. The experience and I guess this is kind of like a bittersweet thing to say. The experience that we had and the care that we received in the hospital was spectacular. The nurses were amazing. I would say as bad of a situation as it could have been. It was great to have the care and the staff that were taking care of us.

    Jonah 11:53
    Still to this day, my wife is friends with a couple of the nurses who were there. So, each year we try to go back on her birthday, October 13th. We try to go back and take doughnuts over to the labor and delivery or something. Treats or something like that. We’ll see some of the nurses that had been there that night and talk to them and whatnot.

    Jonah 12:20
    Anyways, we decided to stay there. They put us in another room that was kind of away from the rest of the other rooms that had mothers and babies in them. Extremely difficult. Slept in the room and Danielle probably didn’t really sleep a whole lot. Then it was late. I think they induced the next morning and she was in labor for several hours. Then we delivered the next day later in the day early evening. That was on the 13th we went in on the 12th. So on the 13th we delivered in the evening. Then I think we stayed a day after that.

    Lee 13:06
    So let’s go back to the labor. Was it an extremely hard labor for your wife Danielle? Was it like, with our situation winter got an epidural. She was already in a lot of pain, mentally. She’s like, I don’t really want to experience it physically. So we had an epidural. It was yeah. It was good for us to do that. But how was it for you guys? Was it a long?

    Jonah 13:38
    Yeah.

    Lee 13:39
    Or?

    Jonah 13:39
    Yeah. Yeah, I think it was. I mean, obviously the mental state of my wife at least was not good. Understandably so. I believe she tried to go without an epidural. It was either with Lydia or maybe one of our next children. But she did get an epidural. So yeah, so I’m pretty sure they induced in the morning. Then it was 10 ish hours, maybe around 8 to 10 hours of labor.

    Lee 14:20
    You mentioned that you guys had moved from a different part of the country to the Carolinas. Did you have family that had come in? Or do you have family in the area or friends that came in to support you? Or did you guys just want to be alone?

    Jonah 14:35
    At that time we had my mother in law and her husband were there as far as family goes. Then we had friends from our small group from church. People were still in contact communication with at least via social media like today.

    Jonah 14:58
    So I had called people to let them know. I called my family, called my wife’s family, and let them know. Her family was there pretty quickly. Her dad flew down from Virginia, which was awesome. He made the sacrifices and did what he had to do to get there so quickly. Then my mother in law and her husband were there, not too long, and then our church group friends were there very, quickly as well.

    Jonah 15:35
    That made a big– that had a significant impact. Just the negativity, the weight of the negativity that comes with the loss of a child. It’s necessary to have friends that are supportive, and want to help. And want you to not hurt and to be in pain and, and all that. So, they were, it was great support that we had was awesome.

    Lee 16:05
    That’s good. That’s good to have support and people who love you, around you, so.

    Jonah 16:11
    Yeah. It’s necessary.

    Lee 16:13
    And so you said that you were able to be with Lydia for about a day?

    Jonah 16:19
    Yeah. Yep.

    Lee 16:21
    How was that stay in the hospital for that day?

    Jonah 16:25
    So it was obvious we had no expectations of how it was going to go. I was battling internally about what to do. How to handle the situation, as far as I have my firstborn child here that I am never going to get to see again. In a matter of hours, and I kept debating or battling within myself about should I take pictures of her? Is there something wrong with that? Is that acceptable? Is that not? Is that normal? Is that not normal? That kind of stuff. Fortunately, one of the nurses had mentioned something to us about an organization called now–

    Lee 17:14
    Lay me down to sleep?

    Jonah 17:15
    Yeah, Now I Lay Me Down to Sleep. They said that they have a photographer that can come in and take pictures. We were definitely like, Yeah, absolutely. So, I took a few pictures on my phone. Then we had her come in, and that was awesome. We still have those pictures of her up still at our home. So that we see her every day.

    Jonah 17:38
    But it’s just the people you don’t know what you don’t know. Then when you’re in one of those situations, you have all these thoughts going through your head and the emotions of it all. It’s just, you don’t know which way is up. You don’t know which way is right thinking, or which way is wrong thinking. To have somebody be able to say we have somebody that can take pictures, so that you can remember your daughter. It was something that was in my head before they had mentioned it. Then I kept battling with myself about whether there’s something wrong with wanting to take pictures of my daughter, even though she’s not alive.

    Jonah 18:25
    So, fortunately as I said, before we had a nurse that mentioned that to us, and they came in and we took several pictures. That was, again, as bad an experience that it can be there was good. We now have pictures that we can have forever, and our children, after Lydia will be able to see pictures of their big sister.

    Lee 18:49
    It really is one of those weird things, nobody in the hospital really knows what to do. It seemed in our situation, nobody really knows what to advise you to do. I sort of sometimes wish somebody was like, yeah you should do this. Or you should think about doing this. You should think about doing that. And it really was like, fly by the seat of your pants and you hope you’ll never regret it. There are things that I personally regret that I didn’t do or that I did do or that I didn’t ask. I don’t know. Yeah.

    Jonah 19:02
    Yeah.

    Lee 19:02
    I’m glad you guys were able to get some photos.

    Jonah 19:29
    Yeah.

    Lee 19:30
    What happened after you guys left the hospital? Did your wife Danielle, have any complications? Or I don’t know how to say this. Was she released on a clean bill of health? And you guys had to go home and figure out stuff?

    Jonah 19:46
    Yeah, I think we stayed like, at least part of an extra day. So that we could get, I guess. Well, our time that we had with Lydia was limited. Just due to her state decreasing.

    Lee 20:05
    Yeah the body is decomposing.

    Jonah 20:07
    Yeah, yeah, exactly. So our time was kind of limited. We had to see her for like kinda periods of time. She couldn’t stay with us the entire time. She had to go back into where the nurses were. Back in the room. So, after they were like, we have to take her. She’s not in a good place right now and it’s gonna get worse soon.

    Jonah 20:29
    We stayed a little bit, like at least half a day longer just because I think it was best for Danielle. She needed to have other people around her and that sort of thing. Because it was just her and I at our home. Being very new in the neighborhood and living there only two months. We hadn’t made a bunch of friends and all that. Both of us are, for the most part, pretty quiet, not like super extroverted. I’m quite the opposite of extroverted.

    Jonah 21:16
    It was just the atmosphere was good, because of the things that the staff had done for us there. So it was, I think that was the best place for her. She was released with a clean bill of health and all that. Then going home was difficult, we had painted the nursery, gotten everything set up and all that. So she really wasn’t comfortable, and wasn’t able to go into the nursery. I think we closed the door for a period of time. Then as time passed, she was able to get into the nursery and start going through the clothes and whatnot.

    Jonah 21:55
    One of the things that I think that I kind of battled with a lot was life afterwards. I had spent hours and all possible time that I was able to just thinking about that scenario of not really moving on, but moving forward. The thing that I had kind of thought of, or that came to me was that life was, there was a new normal that was created by this event. I think that I had read some things about that afterwards where that was something that other people would say that you’re not moving on or away from that experience and whatnot, but you’re moving forward. Creating a new normal with the memory of your child. So it’s not you’re not forgetting just moving forward which we know we have to do that’s what life is.

    Lee 22:59
    I’ve heard that phrase moving forward not moving on. That is a good way to put it. That event is such a the event of losing a child is such a life changing, life shattering. You’re not able to put it behind you and say that it was a good experience. But you have to move forward, so.

    Jonah 23:24
    Yeah, that was difficult. Danielle being at home by herself. Working at home. All of the alone and kind of secluded time so to speak I think that maybe made things more difficult.

    Jonah 23:43
    We did go to some– found a support group through one of the hospitals in Charleston. That was really good. Met some friends and some families there. Got to hear others talk about their experience and whatnot.

    Jonah 24:03
    My I guess kinda grief process. I took– I was off work for about a week. Then I went back to work. My grief process kind of unfortunately had to deal with anger. So that was kind of my main reaction: anger and impatience, that kind of stuff. None of it was towards Danielle or anything like that. It was just kind of general impatience and anger about everything or anything.

    Jonah 24:39
    So we were in our group for pregnancy and infant loss. Then I started seeing a counselor through work as well. Sure talking about the extent It’s that’s. I guess that’s fine. It wasn’t, I didn’t feel that it was super beneficial. But it’s always good to have somebody that is there to listen to your thoughts on things that you’re going through. Sometimes it’s difficult to talk about all your problems with somebody that you’re in the middle of this kind of a situation with, because it’s like, obviously, you’re both down low, and then the PAL, you’re bad or you’re low, from your day on to the other person who’s already low can make things a little bit worse.

    Lee 25:39
    So sometimes it feels unfair to be like, Oh, sure, I can’t, I can’t do this, and I can’t have you do that on me too. So?

    Jonah 25:47
    Yeah, yeah, we both are, I guess, kinda introverts. So we literally had to tell each other to talk to me. Tell me how you are doing. Tell me where you are. We have to make sure that we’re not doing the things that we feel we want to do. Make an effort to do the things that we know, that we should be doing.

    Jonah 26:14
    So we had some friends and family come to our home. One of the small groups kind of arranged things. We had people from out of town come in, and it was great, but still being very fresh off the loss of a child. Both not being big people, people. I guess, we kind of had to take breaks from things and kind of get our time. Where it was the two of us and get our thoughts and minds back in order.

    Jonah 26:53
    So, but it was, yeah, I mean, it’s necessary again. My natural tendencies are to just push everybody away. Go off by myself, figure it out mentally. Decide on how I’m going to proceed and get through and make it happen. Being relatively newly married, and having done those things throughout the course of my life. Then going through this experience, and then my wife is almost the opposite of how– handles things almost the opposite of how I handle things. There’s a whole bunch of consideration and thinking that has to be done to understand that she doesn’t handle things differently. Her experience with this loss is much different than mine, or having carried a child for 30 weeks, and the child living inside of her. That’s something that I’ll never understand, just to respect and support, so.

    Lee 28:04
    The experience of each individual is so unique to them. And you mentioned that you felt the anger and frustration. I felt those exact same things. I had to, and I couldn’t, I didn’t, like you said, I didn’t show the anger to people, or the frustration. It was all internalized. It just ate me up. Until I– and counseling helped me quite a bit to understand. I could feel those basic feelings of anger and frustration. But I didn’t have to hold on to them. Like, I could feel them. I didn’t have to act on them. Then I could release them. It was like, until I could understand that I always had– I can’t pin it on anybody, so I’m just going to pin it on myself. But yeah, the individual’s experiences are so unique to themselves. So yeah.

    Jonah 29:09
    I discovered that for me my outlet or release of anger was managed by doing something. Being active using my hands to do something, refinishing furniture, building something, fixing something that was broken like whatever. I mean, something along those lines, and that’s how I figured out that kind of my release of anger. And that helped me tremendously.

    Lee 29:46
    You were able to parlay that anger and that frustration into something that you could release it into something so.

    Jonah 30:16
    Yeah.

    Lee 29:53
    That’s good. Did you have a service for your daughter? Did you bury her? Did you have I was that being a young husband and father? For myself, I had no clue what to do. I’ve only been to funerals that were planned by somebody else. And it was– So I had a one track mind. I got it done, but I had no clue what I was doing. And it happened. There was a lot of help from the people around me. But I didn’t– I don’t know how that funeral ever got planned. Nothing, I really did myself. How was it for you? How was it for you guys?

    Jonah 30:37
    Yeah. So we did, we did have a viewing or memorial service. Then also a funeral where she is buried in a mausoleum, so she’s not like down in the ground. So she’s on a structure above ground. So we had a chance to remember who I guess it was somebody from the hospital, who had given us suggestions on different funeral homes or whatnot. They literally had a list of five different places. Their list was like, this places the nicest, this places the next nicest, this is the next on then the bottom one. The bottom one, basically, they said, this is the one that’s the least nice. It was the closest to our home. That’s what was important to us. So that’s what we went with.

    Jonah 31:05
    At the time, I would pass that cemetery every day, twice a day minimum, when I drove to work and took my kids to school. Then when I drove home from work and brought my kids home from school it was less than 15 minutes from our home. Early on, after we put her in the mausoleum or buried. We would get over there more frequently for visits.

    Jonah 31:54
    So as far as planning everything. We had family members present to help with planning and organizing. My parents were there, my brother, one of my brothers was there, my father in law, and maybe my mother in law and her husband as well. So we had input from family as far as how things were to go. How we should kind of proceed with things.

    Jonah 32:42
    We were completely blessed by our, my father in law, and my brother who and this is just a horrible thought, but you know, horrible thing, but it’s something that’s necessary. All these things have to get paid for. So we were completely blessed by my father in law and my brother, and they paid for everything. So, a blessing that was to us that we didn’t have to pay for any of that. It’s just an absolute, it’s mind boggling to think that parents should be paying or parents have to pay for their baby’s funeral. But I mean, when reality is that there are things done, and people have to, unfortunately get paid. In that situation for that.

    Jonah 33:31
    So our family was a huge part and helped to organize the funeral service. We had a viewing and it was an open casket. That was something that we debated as far as where we’re going to barrier, or cremation. We didn’t do the cremation. We got a casket and buried her. Again, as we were talking about earlier, you don’t know what you don’t know. Just how odd and unreal the situation is of carrying your daughter out in a tiny casket into the back of a car. Then riding to a cemetery and then putting the casket inside of a tomb, or whatever they’re called the mausoleum. It’s just yeah, it’s difficult to describe.

    Lee 34:33
    I got to carry my son in his casket. I’ve been pallbearers for a couple of other funerals. It’s usually with six people. I was able to carry my son by myself.

    Jonah 34:47
    Right.

    Lee 34:47
    It was such a juxtaposition to how small and delicate it felt. To pick up and carry my child to his final resting place. It was like, Oh, thank you for talking about that.

    Jonah 35:08
    Sure.

    Lee 35:08
    Is there anything else that you would like to talk about?

    Jonah 35:12
    I would say the impact that this child still has in our lives, six and a half years later, it’s indescribable. I mean six and a half years later, I’m talking to a stranger that I just met about an hour ago. We’ve been talking about our children for the past hour plus. Like I mentioned early on, I’m always trying to find the good in situations. Again, has terrible of a situation this is it’s created new ways of seeing things and life and value. In things that I never would have considered before or would have just taken for granted.

    Jonah 36:08
    Giving thanks for every single thing that we have that I don’t deserve, and all these things. So it’s her life. While it was brief, in terms of, from when she was conceived till the day that she was born. Just that 30 weeks time frame has changed my life and so many other people’s lives. And will continue to change until the day I’m no longer on this earth. So I’m thankful for that experience and thankful for being able to see things from that perspective. To allow them to change me as a man to be a better man, a better father, a better husband.

    Lee 37:00
    It is amazing how impactful the situation is.

    Jonah 37:05
    Yeah.

    Lee 37:05
    As you said, the brief life of Lydia for 30 weeks has impacted you and will impact you and your whole family for the remainder of your lives.

    Jonah 37:16
    Yeah, absolutely.

    Lee 37:18
    It’s all awe-inspiring and sad.

    Jonah 37:22
    Yeah, there’s no single word. I don’t think there’s any single word to define all the emotion. From all the different directions, the highs, the lows, yeah, it’s very difficult to describe or define.

    Lee 37:43
    Well, Jonah, thank you so much. Thank you for coming on the podcast and thank you for talking about your wonderful daughter, Lydia.

    Jonah 37:52
    You’re very welcome. Thank you. I appreciate your time.

    Transcribed by https://otter.ai

    Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: stillbirth

    Mom of Stillbirth Encourages All Pregnant Moms to Count the Kicks

    February 17, 2022 by Winter

    Mom Danielle talks about how she’s grieved, mourned, and celebrated her daughter Lydia’s life after she was stillborn at 30 weeks. She died due to an umbilical cord accident.

    Danielle talks about her 2 pregnancies after loss (PAL) and how she coped with the anxiety, and encourages other pregnant moms to “count the kicks” using the Count the Kicks phone app. She also started a local Walk of Remembrance with her friend and fellow loss mom Emily as a way to honor Lydia.

    Watch here (YouTube):

    Listen here (podcast):


    Time Stamps:

    00:00 Welcome
    2:17 After Lydia’s birth
    7:17 Pregnancy after loss with Luke
    10:29 Count the Kicks
    17:08 Work and how’s she’s coped
    27:23 Therapists and grief support
    36:14 Coping as a couple
    44:06 Keeping Lydia a part of her life

    You might appreciate these other episodes:

    • Watch/listen to Danielle‘s birth episode of daughter Lydia: Click here
    • Watch/listen to Jonah‘s birth episode of daughter Lydia: Click here

    Wanna help?

    • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
    • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
    • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.
    Sweet baby Lydia

    Full Transcription

    Winter 0:00
    Welcome back, everybody to Sill A Part of Us.

    Winter 0:02
    I am winter and I’m so grateful to have Danielle here with me today to talk about how she has navigated this time after she’s lost her baby Lydia.

    Winter 0:13
    First of all, before we get started. There are a couple of housekeeping items, this conversation is going to be full of triggers. So we are talking about infant loss, we’re talking about stillbirth, we are talking about grief and actually pregnancy after loss. So please do not watch this episode, if this is something that would trigger you and be too difficult to listen to. We just want you to be safe and happy. And well, I mean, you can be sad to be safe, we want you to be safe.

    Winter 0:42
    If you are just joining us for the first time, please consider subscribing to this podcast or this channel. We are a community of loss parents and we are trying to help and support each other. So hit the subscribe button. That helps us out and helps other people find us as well.

    Winter 0:56
    So Danielle, thank you again for coming on. If you missed her birth episode, I encourage you to listen to it. It was really nice to hear about Lydia and to honor her in that story. So thank you so much for coming on and sharing Lydia with us.

    Danielle 1:13
    Absolutely. It was my honor. Thank you for having me.

    Winter 1:16
    Oh, yeah, most definitely. Most definitely. So for some context and background, can you tell us how long ago Lydia was born? And what happened to her?

    Danielle 1:26
    Sure. Lydia was born about six and a half years ago on October 13, 2014. She was stillborn at 30 weeks pregnant. After a picture perfect pregnancy. We lost her due to an umbilical cord accident where the cord got really tight around her neck and her right ankle. So yeah, it was very, very unexpected, and very heartbreaking. She was our first baby. And the daughter who we love and miss very much every day.

    Winter 1:59
    Yeah. I’m so sorry. Just it is– it’s so unexpected and devastating. Yeah, there’s nothing more to say just I’m sorry.

    Danielle 2:09
    Thank you.

    Winter 2:11
    It’s been six and a half years. How has that looked for you? How has that grief landscape looked for you?

    Danielle 2:18
    Um, it’s been full of lots of ups and downs. Grief is really crazy. I found over the years, especially as more time goes on, I’ve learned to live with the grief a lot better. Of course, early on, it’s all consuming for so long. But now it’s just kind of a part of me. I’ve accepted that. It has its ups and downs. I definitely have a lot more good days now than I did after we first lost Lydia. There are still times where something comes up. And it really triggers the fact that she’s not here, or triggers something that we experienced around the time we lost her. It just makes it feel so raw and fresh again.

    Danielle 3:02
    So it’s crazy that even as so much time has passed there can still be those moments where it feels like it just happened. Like I just held her and one funny thing I found about grief, even kind of early on as in that first year. I get more upset the more time that passes, because it’s been so long since I got to hold her. So it’s almost like I feel those memories are getting further and further away. That feeling of holding her. I can still feel her against my chest. But now that more time has passed. It’s just hard to accept that it was even longer ago. The memories are not as fresh as they once were.

    Winter 3:47
    Yeah.

    Danielle 3:47
    So that’s been kind of a hard thing. Yeah I guess every day is another day closer to being reunited with her and heaven one day, I believe so. There’s that part of it too but yeah, grief’s been crazy. We have had two other babies since then. Actually we have another one on the way right now.

    Danielle 4:12
    Congratulate

    Danielle 4:13
    So yeah, after Lydia died, she was our first baby and I just felt so empty. I mean I’m sure every mother who’s lost a baby feels so empty, but it was so hard to return home to a quiet house. I was just so devastated about that and so desperate to have my baby in my arms. I wanted Lydia so it’s not like I just wanted any baby. I really wanted Lydia, but at the same time I just want to have a baby here to hold. I just felt that so desperately.

    Danielle 4:54
    We talked about trying for another baby pretty soon after Lydia died. Another part of me was also just scared. Since she was our first baby, I’m like, are we ever going to have a living baby? Oh, I was so scared, it would never happen for us. So I wanted to hurry up and —

    Winter 5:11
    Make sure you can get–

    Danielle 5:13
    Like, are we gonna be able to have a baby to bring home? So we started trying. The doctor suggested we wait six months, but he said after three months is really the minimum. So we started trying about three months after Lydia passed away. It took like a few, three or four months, but then I did get pregnant. About six months, I guess it was I think we found out in April. So about six months after he had passed away that we were expecting another baby. So that was just absolutely terrifying experience. It was happy on one hand and terrified, on the other hand. About if something is going to go wrong with this pregnancy.

    Danielle 5:59
    Yeah.

    Danielle 6:00
    So that was just pregnancy after loss. It’s just a total own experience. I was terrified the whole time. From the very beginning. I was in and out. I had a wonderful doctor, and I found a new doctor. She was so understanding and let me come in all the time, even early on.

    Winter 6:19
    Great!

    Danielle 6:20
    I kept coming in and–

    Winter 6:22
    Just checking.

    Danielle 6:23
    Yeah, like, can you check my hormone levels? Can you check this? Let’s make sure everything’s good. I was a crazy person. And we did have a scare at 11 weeks. I was close to the end of the first trimester. My husband and I went to the airport with our first rainbow pregnancy. We were going to Virginia, and I went to the bathroom and I was bleeding heavily all of a sudden. And having cramps and we left the airport and went to the hospital, thinking for sure we had a miscarriage. But lo and behold, our baby was still there with a strong heartbeat. We both just cried and later learned it was a sub chorionic hematoma. A blood clot type thing that can cause bleeding. It can also cause lots of extra anxiety that after loss moms do not need to know.

    Winter 7:10
    Yeah, and it does happen. I mean we’ve had a couple people on and it’s concerning. It’s scary. Scary.

    Danielle 7:17
    Yeah, for sure. So that was the big scare with that baby. We found out it was a boy, our son Luke, who’s now five.

    Danielle 7:26
    How’d you feel about– Yeah, I was gonna say, how’d you feel about having a boy?

    Danielle 7:31
    Yeah, that if I’m completely honest, and I feel so bad saying it, especially because I love my son so much. I wouldn’t change him for the world.

    Winter 7:41
    Yeah of course!

    Danielle 7:42
    It was really hard for me to accept having a boy after Lydia died. I really, I think it was just kind of in my head. I don’t think I could fully take it all in. It was just really confusing and hard. It was only six months after my loss. And I was pregnant again. I’m still deeply grieving. Anxious and confused, like so much going on. And I’m yearning for Lydia. I also want another girl because Lydia was a girl, but I really want Lydia.

    Winter 8:13
    Yeah.

    Danielle 8:14
    But then it’s a boy. I was struggling with how to feel about that. On one hand, I was so grateful because it made the pregnancy more different.

    Winter 8:22
    Yes.

    Winter 8:23
    You know?

    Winter 8:24
    Yeah.

    Danielle 8:24
    This is making it– that made it a little bit easier. I feel like if it had been a girl I would have been even more terrified. If that’s even possible, though.

    Winter 8:24
    Yeah, yeah.

    Danielle 8:34
    I had a little bit of a hard time with that for a while. But ultimately, what was most important was just having a healthy living baby. So that pregnancy thankfully progressed, without any issues. Due to our stillbirth with Lydia, our team of doctors like I was seen by the OB and then the Maternal Fetal Medicine Specialist.

    Winter 8:59
    Oh, great! Okay.

    Danielle 9:00
    Yeah, they monitored me very closely throughout that pregnancy, especially in the third trimester, twice a week. Biophysical profiles and on stress tests. So I felt pretty good about that. I felt good at the time that I was there for my monitoring. In the time in between, I was like, is everything still okay? But I was very, very good about counting my kicks in that pregnancy.

    Danielle 9:24
    In that time, after Lydia died, I actually had become an ambassador for count the kicks. Which is a nonprofit organization that educates expectant mothers about the importance of monitoring your baby’s movements during the third trimester of pregnancy and why that’s so important. How a change in your normal baby, or in your baby’s normal movement pattern in the third trimester can signal a problem. So I found that organization and I became involved with that organization. So I was a count the kicks ambassador and pregnant after loss. So I was using my count the kicks app all the time. I was fully educated on the importance of it and how to do it.

    Winter 10:10
    I think that I just want everybody to know that is a really if you can– if you are an expectant mother, this is something that you really should get on your phone. It doesn’t take very long to do. I think it’s 10 minutes, or basically until you get 10 movements. Is that right?

    Danielle 10:28
    Yeah, yeah. So basically, there’s an app, count the kicks app. And yeah. Once you’re in the third trimester, you pick around the same time each day when your baby’s typically active, and you just track how long it takes for your baby to do 10 movements. Like kicks, punches, jabs, rolls, anything like movement, not actual hiccups, but like movements. And you track how long that takes. Over time, you’ll see a normal pattern for your baby. And if your baby, if their normal time to reach those 10 movements changes significantly. If it’s a lot slower than normal, or even if it’s a whole lot faster, those can be warning signs. Those are definitely reasons to contact your provider and get monitoring. I mean, chances are everything could be fine, but it’s definitely better to be safe than sorry. By counting kicks, and using that app, you’ll get a chart of how long it takes, you’ll have that quantifiable data to show your doctor and then you won’t be guessing. Like his baby slower today?

    Winter 11:33
    Yeah.

    Danielle 11:34
    You’ll have your record of it.

    Winter 11:35
    Yeah. It’s a really nice little app. Yeah, I used it with this last pregnancy and–

    Danielle 11:41
    Oh, good!

    Winter 11:42
    With our son Felix and I, that was one thing that was actually really surprising. That’s why I’m glad you said this. But I was expecting, oh, if he has decreased movement, that’s what it was in my head. But it could be increased movement, too.

    Danielle 11:56
    Right!

    Winter 11:56
    Because you mentioned during the birth story that Lydia was going crazy, probably the day that she maybe got a little bit more tangled up in the umbilical cord, or something. I’m not totally sure, but that has been kind of the pattern in some of our interviews. Where they, the mom, felt a lot more movement like crazy movement that is not normal for that baby and the time of the day. So that was surprising for me to learn that when I was counting kicks this go around.

    Danielle 12:29
    Right! Yeah, most people would not expect that. But it does seem to be kind of a common theme. A lot of the stillbirth stories I’ve heard. I definitely wonder about that. Wonder that about Lydia since that night before we found out she passed. She was going crazy. And I’m like, yeah, so that was when she got tangled up?

    Winter 12:48
    Yeah.

    Danielle 12:50
    But anyway, yeah, the app really doesn’t take long to do. I mean it’s gonna be different for every baby depending on how long it takes for them to get to 10 movements on average. I know with my son, Luke, and then with my other daughter, Laila, my second rainbow pregnancy, I was usually able to get my 10 movements in like five or six minutes.

    Winter 13:07
    Yeah.

    Danielle 13:07
    It’s not like you’ve got to sit down for an hour.

    Winter 13:11
    No. Yeah.

    Danielle 13:13
    At least not typically, I wouldn’t think.

    Winter 13:16
    Yeah. I think that’s really cool that you became an ambassador and searched out more information to help you. Did that feel like that was a little bit of semblance of control, or trying to figure out what happened after she passed away?

    Danielle 13:30
    Yeah, yeah. So after Lydia died once I was kind of settling in back home, I took some leave from work. I was in no state to return back to work. I just spent time googling stillbirth. And I’m like, how does this happen? Because I had no idea. Perfect pregnancies with healthy mothers can suddenly result in stillbirth. I was baffled.

    Winter 13:57
    Right.

    Danielle 13:58
    I was shocked when I saw 1 in 160 pregnancies end in stillbirth. Anyway, through my research, I came across kick counting and somehow landed on the count the kicks.org page. I was reading about it and these five women in Iowa who have all lost babies, they started the organization together. Based on research that they had seen in Norway where the stillbirth rate decreased.

    Winter 14:22
    Yeah.

    Danielle 14:22
    So they brought it to the US. Then on the page I stumbled across, they were looking for volunteer ambassadors. So for me when Lydia died one thing that was so important for me and still is, is to continue to honor her in as many ways as I can carry her legacy on. That’s just something that is really, really big for me as her mom. This sounds scary to me to get involved in this, but this is a great way to honor Lydia and to help save babies because I don’t want this to happen to anybody else.

    Winter 14:22
    Yeah.

    Danielle 14:59
    I want everybody to know. I didn’t know. I truly, truly believe if I had been counting Lydia’s kicks, and knew that her movements were changing and her not moving that day was not normal. I could have gone to the hospital, possibly. I mean, I don’t know for sure, but she could have been saved. If I had gone in earlier Sunday was she still alive at that point? I don’t know.

    Danielle 15:24
    Anyway, I had reached out to that organization. They’re like, yeah, we’re looking for ambassadors. They were actually having a training in Iowa. Not long after that, like, six months after Lydia passed. I’d actually just found out I was pregnant with Luke, when I went. I traveled to Iowa, and went through the training to become an ambassador. I met these other ambassadors too. Most of them have lost babies themselves. Some have baby safe stories. I know we talked before about finding your tribe.

    Winter 15:55
    Yeah.

    Danielle 15:55
    I’m like, these people are my tribe. When you find other loss moms.

    Winter 16:02
    Yeah.

    Danielle 16:03
    You just connect so easily. It’s such a great support system. I just met all these women I never knew. It was just– I don’t know, I felt so supported being there. I knew I was in the right place and doing the right thing, so.

    Winter 16:20
    That’s cool.

    Danielle 16:21
    I was really glad to be involved in that. Then yeah, it was a big part of my pregnancy with Luke too, for sure.

    Winter 16:27
    Which is great. So when you went back, you took some time off from work right after? Did you take 12 weeks, or did you just end up kind of like, I’m gonna make sure Luke gets here okay or like hang out at home or whatever?

    Danielle 16:43
    Yeah. So after that, are you asking about after Lydia died? Or-

    Winter 16:48
    After Lydia died. Yeah.

    Danielle 16:49
    Yeah. After Lydia died. I took six weeks off of work. So-

    Winter 16:53
    Okay.

    Danielle 16:53
    I went back in December, I believe, or? I don’t know, like, right around the New Year.

    Winter 16:59
    Yeah.

    Danielle 16:59
    So I was already back at work before I even got pregnant with Luke.

    Winter 17:04
    How is that going back to where– did where people at work? Okay. Do they know?

    Danielle 17:08
    Well, yeah. So thankfully, I work with the most amazing people. They’re all super caring and supportive. I do work remotely. So I work from home, but I travel from time to time as well. Everyone was super supportive and told me if you need to take time in the middle of the day do it. Do what you need to do. So–

    Winter 17:30
    That’s great.

    Danielle 17:30
    That was helpful. Being able to work from home was helpful. At least I wasn’t having to be around people and lose it in the office. I could just walk down the hall and lose it privately.

    Winter 17:41
    Good.

    Danielle 17:43
    Yeah. So that, in a way, was good. But also I was just in my house all by myself every day. My quiet house, and it was kind of, I think it made me even more depressed. Just being there alone every day when I should have been having a baby.

    Winter 18:01
    Yeah.

    Danielle 18:02
    –To take care of. So it had its pros and cons. But yeah, I spent much of that time off just kind of researching and trying to actually, I should say, I was gonna say trying to understand what happened because I was doing that. But also, I had started blogging at the time. Writing letters to Lydia in a blog format. That was super helpful for me and my grief. There was a way for me to share about Lydia.

    Danielle 18:31
    I would share my blog on my Facebook page. I think it kind of opened a way for other people to not understand because nobody can understand fully without going through it. But I think it kind of helps people to know a little bit more about where I was at. And how I was feeling and that kind of thing. So the blog was helpful for me just writing. I felt so much better when I would write to her and felt so connected to her. But I also found it helpful to even share that.

    Danielle 19:02
    Everybody’s different. Some people are super private, and that’s totally okay. I wasn’t super private. I just, I thought it was helpful, because I felt people were really supportive of me, which I needed. I was hearing from people that I hadn’t heard from in years. People reaching out and offering their support. Our family was great, our siblings, parents and best friends. We had a lot of support. But I think through all of that as well, you also kind of noticed who’s not supporting you?

    Winter 19:34
    Oh, that’s interesting.

    Danielle 19:35
    You quickly figure that out as well.

    Winter 19:37
    Yeah.

    Danielle 19:39
    Overtime those people take more of a–

    Winter 19:41
    A backseat. It’s fine.

    Danielle 19:43
    A backseat in your life because they weren’t there when you really needed them.

    Winter 19:47
    Yeah.

    Danielle 19:47
    So I blogged a lot while I was off and the weather was really beautiful. During that time here in South Carolina it’s not really cold in the fall. It was just that nice cool beautiful pretty weather. So I would just– we had a hammock in the backyard and I would just lay there. And look up to the sky and think about Lydia and heaven. There would always be these yellow butterflies flying around. I don’t know. It’s just special. I’m like, oh, like tying everything to Lydia. Like Lydia’s up in heaven like dancing around. I don’t know the butterflies. Everything. Everything beautiful made me think of her.

    Winter 20:02
    That’s great.

    Danielle 20:02
    That’s how I spent my leave. I was just reflecting and crying.

    Danielle 20:11
    Yes, so much crying.

    Danielle 20:36
    Crying non stop. Feeling shocked and miserable, but also, really just trying. I don’t know, I feel like I noticed things a lot more after she died. I noticed the beauty and life too after she died. Just everything reminded me of her. Everything beautiful reminded me of her. So, that was kind of a nice part of it. If that’s even the right way to put it, anyway.

    Winter 21:05
    I know. It’s Yeah. Unfortunately, sometimes we need big things like this to happen for us to stop and notice stuff. Which is not the best way of putting it. But yeah, that’s kind of how I felt after Brandan passed away. Yeah, you just see things differently.

    Danielle 21:20
    Yes, for sure. Some things in a good way. And some things maybe not so much.

    Winter 21:25
    Yeah. Yeah, exactly.

    Danielle 21:28
    I know for me, and probably for you, too. It’s like there’s a before and after. I see pictures of me. I’m like that was before.

    Winter 21:34
    Yeah.

    Danielle 21:35
    Lydia died. I see pictures of me and that was like two different lives almost. Because your life just changes drastically. You’re so different.

    Winter 21:44
    Yeah, you’re so different after that. So you are six months after and you’re pregnant with Luke and you’re terrified.

    Danielle 21:55
    Yes.

    Winter 21:56
    So you guys went in quite a bit and got checked. It sounded like you had a great team that was really trying to take care of you and make sure you we’re good. How was his birth? Was that just something that was? It’s such a crazy experience, isn’t it?

    Danielle 22:14
    Yeah.

    Winter 22:15
    Birth after loss is like crazy.

    Danielle 22:17
    Yeah.

    Danielle 22:19
    Yeah, that was terrifying again. I was so scared, something was going to happen. They did induce me at 39 weeks. That was the earliest, they would induce me unless something else is significantly wrong. But they induced me at 39 weeks and everything went pretty smoothly.

    Danielle 22:37
    I do know when he first came out I felt like he didn’t cry right away. I was waiting. There was that second, and I was getting terrified. But then he just started screaming so loud.

    Winter 22:48
    And you’re like, Okay?

    Danielle 22:51
    He was an angry baby. He really was. He was so red. He was so mad when he was born. He did not want to get out of there. Like why are you taking me out of here? My husband says that the cord was around his neck. I didn’t see it.

    Winter 23:10
    Yeah.

    Danielle 23:11
    I guess they like unraveled it. So that was a little unnerving to hear. So I don’t know if that’s why it took him a second to cry or not. I mean, it wasn’t that long. It was long enough for somebody who’s been through loss to like–

    Winter 23:24
    Know, yeah.

    Danielle 23:26
    But he was healthy and everything went well. So yeah, it was just surreal to have a living, breathing baby in my arms. We saw so much of Lydia in him. That was really nice to see. We had her pictures there with us.

    Winter 23:45
    Oh, good.

    Danielle 23:45
    At the hospital and our Lydia bear.

    Danielle 23:48
    Yeah.

    Danielle 23:48
    Our weighted bear that Jonah’s cousin made for us. That weighs three pounds, eight ounces, like Lydia did. So, we felt like she was there with us. What’s really crazy is so Lydia was born on October 13th. Then Luke was born on December 13th.

    Winter 24:07
    Oh!

    Danielle 24:07
    So the same date. Then our rainbow baby after Luke, Laila. She was born on November 13th.

    Winter 24:15
    Whoa!

    Danielle 24:16
    Yeah. All of our 13th babies. I was like, this is like a sign from Lydia. I don’t know. I just always look for these little signs.

    Winter 24:28
    Me too! I totally do that too! Yes, yes, I think that’s cool!

    Danielle 24:36
    It’s really nice that they all kind of share that date in common. But yeah, I mean, bringing Luke home it was a wonderful thing. It was also really hard. It had only been just over a year since Lydia died and I was still like, I felt like being pregnant so soon after she died really made it hard for me to fully grieve. I was so distracted by my anxiety.

    Winter 25:02
    Yeah.

    Danielle 25:02
    You know?

    Winter 25:03
    Yes.

    Danielle 25:04
    So it’s like I hadn’t, I don’t know, it’s like a really great place to be honest to the outside world. You’re probably so happy you had this baby at home and I was, but I was really looking back. I know, I had postpartum depression, or even just depression and grief, with everything going on. I was in a really bad place for a while. I didn’t want to take anything. So I’m like, I’ll be fine. This is just grief. But looking back, I’m like, I should have probably tried to take something to help. I was just having a hard time but at the same time, Luke brought lots of joy to our life that we really needed.

    Winter 25:47
    Yeah.

    Danielle 25:47
    And gave us those sleepless nights that we so longed for with Lydia.

    Winter 25:53
    Right. Isn’t that funny?

    Danielle 25:54
    Yeah.

    Winter 25:54
    You long for those when you don’t have them?

    Danielle 25:57
    Yes, for sure.

    Winter 25:59
    We are experiencing the first three months of our parenting after loss.

    Danielle 26:05
    Yeah.

    Winter 26:05
    It really is. You are so excited. You’re so excited. You’re so happy and so joyful. But then yet there’s like, this layer of guilt too.

    Danielle 26:13
    Yes.

    Winter 26:14
    You’re just, like, how can I be so happy when I’m missing somebody in my little family. So yeah.

    Danielle 26:22
    Right! My family never feels complete. Then also just seeing the baby go through–

    Winter 26:27
    Yeah.

    Danielle 26:28
    –the milestones and things like that, that you never got to see.

    Winter 26:31
    Yeah.

    Danielle 26:32
    That was hard for us too. One reason we picked Luke as his name is that it means brings light. And I just think that’s so true for him. He brought, and still brings, so much light back into our lives that we really needed. We’ll always have our pain from Lydia not being here. But he has helped to heal. I always feel weird about seeing healed because like, to me healed is like when you’re completely better. And I’m like, we’ll never be completely better. But like, I feel like he’s brought a lot of healing.

    Winter 27:02
    Yeah.

    Danielle 27:03
    To our lives. And he’s an amazing boy, so.

    Danielle 27:06
    That’s great. After you lost Lydia, and you had become a count the kicks ambassador and you kind of found your tribe, found your people. Were you going to any other sort of grief support groups, any therapists, or anything too during that time?

    Danielle 27:23
    Yes, yes, I did try a couple of grief therapists and I did not have the best experiences. There was one I went to who I was talking about Lydia dying. Toward the end of the appointment, she gets out her wallet. And is like, oh, look at this picture of my new baby granddaughter. I’m like, did you not hear what I just talked about for the last hour. So that was just one experience. I don’t know, I just had a really hard time finding a good grief therapist at the time.

    Danielle 27:55
    I did have a really great support group. They have one down here through one of our hospitals in Charleston. I had gotten involved in that. That was super helpful. Again, being able to connect with other loss moms and dads, mostly moms, not a lot of dads really attended at the time. But that was very needed in my life at the time.

    Danielle 28:16
    So I always recommend support groups to other people who are going through loss. Some people like it, some people probably not so much. It was really helpful for me too. Not just to talk about all the grief and everything like that, but some of them were further out than me and had another baby. It was like glimmers of hope to see another loss parent.

    Winter 28:40
    Yeah.

    Danielle 28:41
    So that was really helpful. After Luke was born, I found another therapist who specialized in grief and talked to her. So that was like a year after Lydia died, but she was a lot more helpful than the prior.

    Winter 28:55
    You’ve got to shop around.

    Danielle 28:56
    Shop around for a while.

    Winter 28:56
    Yeah, I was gonna say you’ve got to try out those therapists and counselors.

    Danielle 29:00
    Yeah, for sure!

    Winter 29:01
    Not everybody’s a good match so.

    Danielle 29:03
    No, no. So now it’s been six and a half years. So I don’t do that support group as often anymore. I do try to hop in there sometimes. Just to connect, or offer support or advice. That’s how I met my friend Emily, who’s one of my best friends now. Who is also a loss mom.

    Danielle 29:22
    I feel like having those support groups is so vital because people understand what you’re feeling. You can have a deeper connection with them than you can with people who have not been through the experience.

    Winter 29:35
    Yeah.

    Danielle 29:36
    I also was in support groups on Facebook. They were stillbirth support groups that was my lifeline.

    Winter 29:44
    Yeah.

    Danielle 29:45
    That first year after Lydia died. I connected with two girls in particular who were my best friends. Like my best virtual friends. I’d never met them. They were in other states. One was Kim and one more Holly and we messaged each other every day after we connected. We had lost our babies at the same time. We understood what each other was going through. Then we also went through pregnancy after loss at the same time.

    Winter 30:13
    Really?

    Danielle 30:14
    Yes. So we would always be so terrified. It’s like, Oh, me too! We were like–

    Winter 30:19
    You’re in it together.

    Danielle 30:22
    I am so grateful for that. Like, I don’t talk to them as often as I used to. But they are always going to have a special place in my heart.

    Winter 30:30
    Yeah.

    Danielle 30:31
    I even got to meet one, one day. One lived in Canada, and she came down to Myrtle Beach. We got to meet.

    Winter 30:35
    Oh, that’s great.

    Danielle 30:37
    Hopefully, I’ll get to meet Kim one day too. She’s up in Massachusetts. New Hampshire not Massachusetts. But yeah.

    Winter 30:44
    One day that might should happen.

    Danielle 30:47
    I know!

    Winter 30:48
    Yeah, that’s cool. I know, I was gonna say there are– I feel like there’s a lot of resources. I think one of the silver linings of the pandemic is that a lot of these grief support groups are online. They’re all virtual nowadays.

    Danielle 31:01
    Yeah!

    Winter 31:01
    Right now. And it is– you can jump on to any of those. It seems like there’s a lot of resources, which is great.

    Danielle 31:09
    Yeah, for sure. I was so grateful to find it. I’ve just felt like I couldn’t survive without it. I needed people to talk to who could understand. So that was huge for me.

    Winter 31:20
    You mentioned Emily before. So Emily actually came on the podcast early on. So I will link to that in the show notes and in the description box, so that you can listen to that because you guys are in the same area. I think you guys met at one of the grief support groups, right?

    Danielle 31:37
    Yeah, yep. We met at the one through the hospital, actually, like a yoga instructor. I had taken yoga when I was pregnant with Luke, to try to help with my anxiety. Later Emily did yoga during pregnancy. So Emily went through it before she lost Margaret. So that yoga instructor reached out to me once Emily lost her baby. I’m pretty sure, I don’t remember if I had given the yoga instructor the grief group information to pass on to Emily or if she found it on her own. But regardless, she found the grief group and I ended up going to offer my support. Emily and I just started emailing and then that turned into texting. Now we text each other every day.

    Winter 32:23
    Yeah!

    Danielle 32:25
    She lost Margaret, almost two years ago, two years ago next month.

    Danielle 32:29
    Yeah.

    Danielle 32:29
    To stillbirth as well. They didn’t really have a conclusive reason, but she and I have really connected on that level.

    Danielle 32:38
    I appreciate those kinds of connections. You guys do the walk of remembrance for your hospital or your area, right?

    Danielle 32:40
    Yeah.

    Winter 32:40
    In October, usually.

    Danielle 32:40
    Yes. So shortly after Emily and I met, there used to be a walk of remembrance hosted by the hospital. Then they had to stop doing it. I guess they didn’t have anybody who was willing to, or who had the time or resources to continue. I was so sad. This is one of the only ways that we all get to come together each year and honor all of our babies.

    Danielle 33:10
    So I talked to Emily about it. I was like, I wonder if we could start looking at our own walk. She was so fresh in her grief, but she was like, yeah, let’s do it. She was willing to help me. So I was like, okay as long as I’m not doing it on my own. Let’s do this.

    Danielle 33:24
    So we started planning a walk of remembrance. We call it Walk of remembrance miles for Margaret, Lydia, and all babies gone too soon. We started that two years ago. We decided to do it also as a fundraiser for count the kicks.

    Winter 33:37
    Yeah. Which is great!

    Danielle 33:39
    Yeah, that organization is so important to us. So we’re like, we can honor all of our babies and we also raise money to help prevent stillbirth.

    Danielle 33:47
    We had a really successful turnout the first year and the second year was even more successful. Which is crazy, because that was during COVID and it was virtual. So we are planning to do that again this year. We don’t have a date yet. But, yeah we usually do it early fall. We like to do it in October because of pregnancy and infant loss Awareness Month. So it may be early October, however, I am pregnant again and due around that same time. Not a 100% Sure. Maybe September, or maybe the first weekend in October this year. We’ll definitely share the Facebook page and everything that people can follow.

    Winter 34:26
    Yeah, Yes, for sure.

    Danielle 34:28
    For updates. We do like an in person walk. We didn’t last year with COVID and I’m hoping we can do one this year. But we also always open it up to like anybody across the I mean anybody anywhere who wants to walk and honor their baby and put their baby’s name on the back of the shirt. Yeah, anywhere I can put Lydia’s name and like Sign me up. Yeah, we’d love to have anybody join us and help raise money for count the kicks with us as well.

    Winter 34:52
    Yeah, I will put links also for that in the show notes in the description box. Because I think it’s so cool what you guys have done. I just think that in general, like you said, anytime we get to talk and get together to talk about our babies it’s great. It’s a wonderful opportunity. Then what you’re doing for count the kicks, because I’m all about that too. I was like, oh, maybe I should become an ambassador for that, or something. Cause I’m all about it!

    Danielle 35:17
    I’ll recruite you.

    Winter 35:20
    Fine! Do it! Let’s do it!

    Danielle 35:21
    You’re in Utah, right?

    Winter 35:22
    Yes. I don’t think there’s anybody in Utah.

    Winter 35:24
    Yeah I don’t think they have anyone.

    Winter 35:25
    Oh, yeah, I don’t think so either.

    Danielle 35:26
    Signing you up!

    Winter 35:27
    My friend Lindsey, who we had on the podcast. Also, just became an ambassador for Idaho. So I’ve been paying attention to what she’s been posting. It’s kind of fun to see all that.

    Winter 35:38
    They are doing great work. So if you guys need a place to donate money or to We can we can save some of these little babies. So yeah, using that education.

    Danielle 35:50
    Exactly.

    Winter 35:51
    So I do have a couple of things that I’d like to ask you. I know that loss can be so taxing on a marriage, and other relationships in general, right.

    Danielle 36:05
    Yeah.

    Winter 36:05
    With friendships and other things. I’m wondering how you and Jonah have done with the loss? Like how is that? How has that been for you guys?

    Danielle 36:14
    Yeah, it was really hard. I mean, I don’t feel like or I guess I’m trying to think of how to answer it. I feel like we did get closer in a way afterward, just because we went through such a traumatic experience together. We were both just so devastated. So it’s like, in a way we drew closer to each other. But we also grieved very differently. My husband is a very hands on kind of guy like wanting to be in the garage and stuff. I know, after Lydia died he’s building shelves in the garage. It’s kind of like, that was how he–

    Danielle 36:48
    Oh!

    Danielle 36:48
    Like kind of working on things or things to keep him busy.

    Danielle 36:54
    I was more the one who just needed to sit and cry and stuff. But he was always and he still is always very supportive of me. He always wants to know if I’m having a hard time, or if I’m struggling. So he can be there to support me, which I appreciate. I will say I’m not the best at always letting him know. Sometimes I’m just very private about when I’m feeling down. I don’t like to share it. But he always wants to know, because he wants to be there for me. He’s always been super supportive of the count the kicks stuff I do. Like the walk and wanting to help and support me and honor Lydia in that way. So that’s been really nice.

    Danielle 37:38
    But yeah, I feel like we do grieve in different ways. But we’re very supportive of each other. And yeah, I guess that’s kind of how I put it. I mean, I feel like over time, I think I struggle with things more now than maybe he does like in terms of like maybe I have those like fresh grief moments more than he does at this point. But again, he’s still very supportive and wants to honor Lydia just like I do. So. That’s been really helpful.

    Winter 38:07
    Yeah, that is super helpful. And just even acknowledging that we’re different people, right. And that’s how, how he handles things and how you’ve handled things, or it’s just different. So it’s not wrong. It’s just different.

    Danielle 38:20
    Yeah, exactly.

    Winter 38:22
    Yeah. This is the part that I kind of enjoy actually quite a bit. I was gonna say, was there anything that anybody did or said to you, that really stuck out to you as being super helpful? That you appreciated? They said that or helps you kind of move through a part that was difficult during your grief?

    Danielle 38:41
    Yeah, there were people who just said I’m here for you and just showed up. Our small group that I talked about last episode, from church, they would just bring stuff over. Like food or just jump into help. Some neighbors did that as well without asking. Like, what do you need, but then another person that was super helpful for me was my best friend Nancy. She wouldn’t say the cliche things to try to make you feel better. She just always let me know that she’s there. She went above and beyond to help me honor Lydia and she still does.

    Danielle 39:19
    Lydia was due in December. We lost her in October. When Lydia’s due date approached, she completely surprised me. She reached out somehow to our family and friends and arranged so that people started sending us anything with angels on it.

    Winter 39:36
    Oh!

    Danielle 39:36
    With Lydia’s due date. Yeah, like I kept checking the mail. Every day we’d get a new like a willow tree Angel sculpture, or the most beautiful things. People were having their kids draw Angel bars, and it was just the sweetest thing and I’m so grateful. She did that. I’m so grateful for everybody who participated in that. I now have a whole Curio cabinet with angels that people have sent us back then on her due date. And over the years, just to show us that they were thinking of Lydia and thinking of us.

    Danielle 40:15
    So that’s really just been the most helpful, just her, or anybody like our family members or our close friends. Just saying I thought of Lydia today, or I saw this and it made me think of Lydia. That’s what’s most important for me is just knowing that she is remembered. She is important to other people, too. That her life, her legacy carries on that’s, that’s what’s been biggest for me and most helpful for me.

    Winter 40:40
    Yeah, just remember them. Yeah, remember them and say their name, say her name.

    Danielle 40:46
    Yeah, just say Lydia.

    Winter 40:48
    Yeah!

    Danielle 40:49
    I don’t know. I was at the doctor recently. They’re like, you know, in my new pregnancy, and they brought up something about Lydia. They’re like, I’m so sorry, I keep bringing this up. And it’s like–

    Winter 40:58
    No! don’t say sorry.

    Danielle 41:00
    Don’t be sorry. This is something that I think about all the time. So it’s not like you’re just suddenly reminding me of something. I am happy to talk about Lydia anytime you want. You know?

    Winter 41:12
    Yeah.

    Danielle 41:12
    It’s not.. They have such a different perspective.

    Winter 41:15
    Yeah. I think they’re just worried everybody’s always just a little bit worried that they’re going to say something wrong. And yeah, bring it all up again. And you’re just like, this is? Yeah, I’m living with this. This is who I am now. So yeah, for sure. And on the flip side, is there anything that you would recommend not saying? Yeah, maybe a loss mom or loss dad. And that can be when it’s still very fresh. And also, later, now that it’s been a little bit longer if there’s anything that you would recommend people not say? Yes, as time has passed on.

    Danielle 41:47
    I mean, that’s just this thing. Like people said to me early on, like, oh, like, I remember, I went to get a manicure with my mom. And I told the lady doing my nails. What happened? She’s like, Oh, well, something may have happened later that now she’s been saved from that. Maybe she would have gotten really sick. Like, what? Like, things like that. They’re trying to make it like, Oh, well, it’s a good thing that happened, because something worse could have happened. I don’t know. It was so bizarre and horrible. Just things like that really downplay it, or were other people. They’re trying to make themselves feel better. I think those things are not helpful.

    Danielle 42:27
    There was something else I was gonna mention. Oh, like, you can have another baby.

    Winter 42:31
    Oh, yeah.

    Danielle 42:31
    It is a common one. Yeah, I want to have another baby, but, and I do have Luke, and Lailay, and my rainbow babies and another one on the way. These babies are never going to replace Lydia. Lydia was her own person, just like Luke and Laila are their own people. So that’s just not helpful. It’s almost more of a stab in the heart than it is helpful.

    Winter 42:58
    Yeah.

    Danielle 42:59
    So things like that. I Try to be as understanding as possible when people say things like that, just like they’re trying to help. So I try to give them the benefit of the doubt. But those things are not helpful. So yeah.

    Winter 43:15
    Yeah. You just did, like, okay, whatever. You just move on, right? Sometimes, like, yeah. should just say I’m sorry. That’s always good.

    Unknown Speaker 43:24
    Yeah. Yeah. Just say you’re sorry. And that you’re there or just show up and yeah, bring things and send things like and yeah, say the baby’s name or send something with the baby’s name on it. Those things are the most powerful for sure. Yeah,

    Winter 43:40
    exactly. Danielle, this has been so fun to talk to you and fun. I yeah, yeah, it has been fun. I know. It’s one of those things where we’re like, we’re talking about a really difficult topic. But it’s been really delightful talking to you, actually. And so nice talking to you, too. I really appreciate you coming on. And I actually wanted to ask you if you had any last little bit of advice, or anything that you would like to share with anybody about Lydia too.

    Danielle 44:06
    Yeah, I mean, in terms of advice, I would just say even though your babies are no longer physically here you can still keep them very active in your life. That’s something we’ve done in our family. Whether it’s including her in a picture with a Lydia bear, or doing things to honor her like the walk or raising money. I think we can still very much parent or babies even though they’re not with us, it’s just in a much different way and not in the way that we would like to but I just encourage other loss parents to find ways that work for them to do that. I mean, it may be something more private. Not everybody is open to different things, but find what works for you. Ways that you can continue to keep that baby’s spirit alive in your family.

    Danielle 44:55
    Then the other thing I would say is just try not to compare yourself too much to other parents. Which is something I’m still working on.

    Winter 45:02
    We all do.

    Danielle 45:03
    I’m connected with a lot of loss parents now through online and grief groups. Some of them are doing things all the time. I’m like, Oh, I’m not doing enough to honor my baby. So just know we’re all different. We all love our babies. Like you do you?

    Winter 45:22
    Yeah, yeah, you do you. You figure out what you’re doing

    Danielle 45:25
    Just because you’re one doing more than me. Or you feel like somebody is doing more than you or just try not to get too caught up on that. Do what works for you and your family. And yeah, what makes you feel connected to your baby.

    Danielle 45:41
    Then the thing I’d share about Lydia would just say that I’m just so grateful to be her mom. I wouldn’t trade it in the world for anything in the world. Even though she’s not with us, and I wish she was. I’m just so so grateful to be a mom to her. I really think she’s a special little girl and it’s just an honor to share her little legacy with other people. Yeah, I love my Lydia. My Lydia Jaelle.

    Winter 46:08
    I love it. Thank you so much, Danielle. Once again. Thank you so much.

    Danielle 46:13
    Thank you.

    Transcribed by https://otter.ai

    Filed Under: advice, late term stillbirth, podcast episode, stillbirth

    Baby Lydia’s Birth story | Stillborn at 30 Weeks

    February 17, 2022 by Winter

    Mom Danielle recounts the stillbirth story of her first pregnancy with baby Lydia and how incredibly excited she and her husband Jonah were to have her. Near 30 weeks, she noticed that Lydia wasn’t moving around as much one day, and were concerned enough to go in to be checked out. They didn’t find a heartbeat, and Danielle later delivered Lydia, who was born sleeping.

    Watch here (YouTube):

    Listen here (podcast):


    Time Stamps:

    00:00 Lydia Jaelle
    01:23 Introduction of Danielle and Jonah
    04:17 Pregnancy
    11:20 Lydia’s name
    17:08 Less movement and going to the hospital
    27:45 Silent, silent, silent
    31:12 Birth
    38:02 After birth
    45:42 Pictures
    47:35 Arrangements and Lydia’s service

    You might appreciate these other episodes:

    • Watch/listen to Danielle‘s advice episode of daughter Lydia: Click here
    • Watch/listen to Jonah‘s birth episode of daughter Lydia: Click here

    Wanna help?

    • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
    • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
    • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.
    Baby Lydia dressed in a tiny gown

    Full Transcription:

    Danielle 0:00
    Lydia Jaelle.

    Danielle 0:08
    She was absolutely beautiful and perfect in every way. She had curly brown hair. She had my chin and her daddy’s feet, the cutest button nose. And she was just absolutely adorable at three pounds eight ounces.

    Winter 0:26
    Welcome to Still A Part of Us a place where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter.

    Lee 0:32
    And I’m Lee. We are grateful you joined us today. Please note that this is a story of loss and has triggers thanks to our loss parents who are willing to be vulnerable and share their children with us. If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

    Winter 0:39
    Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us. They’re Still A Part of Us.

    Winter 0:43
    Danielle, thank you so much for coming and talking with us today on Still A Part of Us. I have heard about you for so long. And now it’s just a privilege to meet you. And have you on today to talk about your sweet Lydia. So welcome. Welcome, welcome.

    Danielle 1:05
    Thank you. Thank you for having me. I’m excited to be here.

    Winter 1:07
    Yeah, we’re excited for you to be here. So can you tell us a little bit about yourself? Tell us about who you are, kind of what you do. Right right now? And then can you tell us a little bit how your family looked? When Lydia was born?

    Danielle 1:16
    Absolutely. So I live in South Carolina and the Charleston area with my husband and two living children, Luke and Lyla. I work full time for a large Senior Living company doing leadership development for our team members. I’ve been in this role now for almost 10 years. I’m actually working remotely from here for that company. So I work full time. My husband, Jonah, and I, we’ve been married for almost nine years. So yeah, we moved here to South Carolina, about eight. I guess it was almost eight years ago, I always get so thrown off by it. So this is not our original home.

    Winter 2:28
    Oh Okay.

    Danielle 2:28
    We just wanted to come south.

    Winter 2:31
    Why not?

    Danielle 2:32
    My husband had found a job here. So we kind of made our way here. But yeah, that’s a little bit about us. Just staying busy with work and with my five year old son and three year old daughter.

    Winter 2:46
    I’m sure that they do keep you busy. Do you guys like to do you guys have any things that you guys like to do as a family or any personal hobbies?

    Danielle 2:55
    Yeah, um, we really love the outdoors, we like doing anything outside, whether it’s going on a hike, or even just hanging out in our backyard or going to the park or the beach. We’re not too far from the beach. So we love doing outdoor stuff. I also really enjoy shopping. More antique kind of shopping, like people are really cute antique shops down here. So I really like going to those and looking for unique home decor or furniture or things like that. And my husband’s pretty into that kind of stuff as well. So that’s kind of a non kid related thing that I like to do. And then I spend too much time shopping for my daughter as well.

    Winter 3:42
    Little girls are super easy to shop for. I’m just saying. Boys. Boys are just the clothes are just not as cute. Exactly. Oh, that’s awesome. Okay, well, and as a little bit of just background, how long ago at the time of this recording was Lydia born?

    Danielle 4:06
    She was born almost six and a half years ago. So it’s been a good while now. It was October 13, 2014.

    Winter 4:17
    Yeah. So it’s been a few years now. So I’m grateful that you’ve come on, because I think this will lend a little bit of a different perspective, having a little bit of time. Since your loss. So thank you again, for coming on.

    Danielle 4:31
    Of course. Yeah.

    Winter 4:32
    Um, so I understand that Lydia was your first child. Is that right?

    Danielle 4:38
    Yes. Yep. She was our first baby.

    Winter 4:40
    Were you guys planning on getting pregnant with her? Was that something that was a little bit more of a surprise, or did you guys have fertility issues, I think kind of runs the gambit. Right?

    Danielle 4:51
    Yeah, I laugh a little bit because we weren’t exactly trying. But there’s a little bit of a story to it. So we had started to talk about trying, and my husband didn’t really quite feel ready at the time. But I had been on birth control for many years before that. Once I stopped my cycles were so out of whack. Really long, and I was worried about it. I’m like, oh, gosh, am I gonna have trouble conceiving, and I went to my doctor and talked to him about it. He’s like, well, it’s possible, you’re not ovulating. He had given me some tips on tracking it.

    Danielle 5:27
    So in the meantime I had started researching, and I came across this herbal tea called fertility. I had read that it could help get your cycles on track. Like, oh, let me try this because I love to drink tea.

    Winter 5:41
    Yeah.

    Danielle 5:42
    I was not intending to get pregnant quickly on it, I was really only taking it just to get my cycles to be regular. So that we’d be ready when it was time to try. So I started drinking the tea. I don’t know how long it was like, probably a month later. I noticed like, I don’t know, I started getting these weird symptoms. I’m like, Huh could I possibly be pregnant? I didn’t exactly miss a cycle because I had such long cycles, but I ended up taking a test. Surprisingly enough, I was pregnant within a month of starting that tea and I’m like, What?

    Winter 6:22
    That was not the intention.

    Danielle 6:22
    Like I did not really know it was gonna happen so fast.

    Winter 6:28
    So you were kind of planning, but not necessarily planning it either.

    Danielle 6:32
    Yeah, I’d say buying that tea kind of pushed things along, but we were both super excited over the moon. Yeah, we were just really, really thrilled. So it was the best surprise. Yeah, it was a little bit of a surprise.

    Winter 6:47
    Yeah. Had you guys been– You’d been married for a few years by that time?

    Danielle 6:54
    Yeah, we had been married. Gosh, I guess it was. I want to say a year and a half. It was either a half or two and a half years. I get so confused thinking about the timing of all that.

    Winter 7:05
    Yeah.

    Danielle 7:06
    But we had just, I guess it was a year and a half because it was July 2012. When we got married , we had just moved to South Carolina. The summer prior.

    Winter 7:17
    Oh Okay.

    Danielle 7:18
    The spring got right after we had moved and I found out I was pregnant. So we’re in this new place.

    Winter 7:25
    Yeah.

    Danielle 7:26
    New job. No family around.

    Winter 7:28
    Yeah.

    Danielle 7:29
    Yeah. And now we’re gonna have a baby. So it was a crazy, but exciting time for sure. .

    Winter 7:35
    Yeah. Sounds so yeah. Always crazy. It happens that way. So how was your pregnancy? It sounds like you were a little on the sick side. Or had weird-

    Danielle 7:45
    Yeah.

    Winter 7:45
    –symptoms.

    Danielle 7:47
    My pregnancy really wasn’t too bad. I did have some nausea with her. That was the worst of it in terms of symptoms. It really was not that bad. The nausea was on and off. Just in the first trimester. We were really nervous when we found out. We were afraid to tell people because we do know people who’ve had miscarriages. We knew that that was really common. So we waited until we had our first ultrasound before we really started telling too many people, but then the pregnancy itself went really well.

    Danielle 8:24
    Again, I didn’t have any issues. I felt great after the first trimester. Yeah, I was just super happy. I felt really good. Everything was just going perfectly.

    Winter 8:36
    Yeah.

    Danielle 8:37
    Really and she looked great. Every time we went to the doctor to have our appointments, everything always looked perfect with her. So we really didn’t have any concerns, especially after we passed the first trimester. Because at that time, I was under the mindset that once you get through that point and your anatomy scan. If everything looks good with those two things, then you’re fine. I guess I was one of those people who thought, oh, we’re gonna bring home our baby, everything’s going so well. So yeah, I really didn’t have any, any big issues or, or concerns or anything like that throughout the day. And it was, it was a blessing to feel so good.

    Winter 9:19
    Yeah. Oh, yeah. It is totally because some people are just sick the entire time. And you’re like, yes. Yeah. And at her anatomy scan, were you guys planning on finding out the gender?

    Danielle 9:30
    Yes. So I am rather impatient. So actually, I booked one of those little boutique ultrasound. I don’t remember if it was 14 or 16 weeks. Whenever it is that you can book those and find out the gender. So we went to one of those places to do that. And we did it in a little bit of a unique way. My husband found out the gender but I did not and then he surprised me and captured it on video. So we went to the store and picked out a boy outfit and a girl outfit. He was supposed to wrap up the outfit in the bag and then watch me open it and record me opening it just to capture the surprise on camera. The ultrasound person told him the gender and then we went to this little Greek restaurant and sat outside and we have a really nice video where I opened it up and Oh no, the little pink outfit.

    Danielle 10:34
    I was really shocked to be honest, for some reason I always had in my mind that I would only have boys. I don’t know why, oh. I always wanted a girl but I just always was like, I’m never gonna have a girl. I know I’m only gonna have boys. I’m not saying that there’s anything wrong with having boys. But I just always had that in my mind that I would only have boys. So I was really surprised. Super happy. My husband was surprised too. And yeah, that’s how we found out that she was a girl.

    Winter 11:09
    Awesome. And did you guys choose the name Lydia for? I guess I guess when did you guys choose the name? Did you kind of start formulating when you found out that she was going to be a girl?

    Danielle 11:20
    Yeah, we started thinking about it pretty early on and debated for a while. And then we picked the name Lydia. Probably sometime when I was in the second trimester, so not too long before she was born. But yeah, we decided on the name Lydia, my husband really wanted it to be a bit biblical name. So I was kind of going through all the female names in the Bible. I really liked Lydia. I liked that it’s somewhat unique as well. Just a pretty name.

    Winter 11:52
    Yeah.

    Danielle 11:52
    So that’s how we picked Lydia. Her middle name is actually pretty unique as well. Again, it’s Jaelle. J-a-e-l-l-e. My husband had read about a name and the Bible, which I think is your L is JL it’s like a heroine in the Bible. I don’t know, I was familiar with it.

    Winter 12:13
    Okay.

    Danielle 12:14
    And I was like, Well, if we spell it j-a-e-l. People are gonna think it’s jail. We gotta change it. I was not really feeling it. So we had not actually decided on her middle name. But then when we were at the hospital after I gave birth to her, I thought that it was the best name because I knew my husband really liked it. It was unique and, and on. Another cool part about it is the e-l-l-e it’s kind of like my name, Danielle.

    Winter 12:45
    Yeah.

    Danielle 12:46
    There’s a little bit of tie.

    Winter 12:47
    Yeah.

    Danielle 12:48
    That it has that feature. So that’s how we picked her name.

    Winter 12:50
    Yeah, very cool. Very cool. Okay. Well I always like to know how the names come about. So. Yeah. So everything is looking great. You’re feeling good. And tell us what happens? What? Yeah. So when do you find out?

    Danielle 13:08
    Yeah, everything again, was going really well. Actually, at that point in our life. We had rented a place when we first moved here to South Carolina, and there are at least came up. So we ended up house hunting, and bought a new house in August. Then again, Lydia was born in October. So we had just moved into a new house. Every house we went into we were imagining this is where we’re gonna raise our baby.

    Danielle 13:36
    So anyway, we had moved into this new house, everything in life just felt like it was going so good. We were approaching the end of the pregnancy, or at least I was getting to the third trimester. So I had a baby shower. We had started painting her new room in our new house, and getting the crib set up and everything like that. Everything was just going perfectly fine.

    Danielle 14:02
    I even remember at one point I just felt so guilty. I kept thanking God every day that we were being I just felt like we were so blessed. We had this beautiful new house. We lived in this new location. We’re having a baby. I don’t know why. I just felt like things were going so good. I just had this weird worry in my mind that something was gonna happen. I don’t even know how to explain it. I just remember having that feeling. Now looking back on it, I’m like, oh, I don’t know. It just always stands out to me that I kind of had that feeling before anything that actually happened.

    Winter 14:38
    Yeah.

    Danielle 14:40
    Anyway, yeah. So everything had been going well for about a week or I guess it was two or three weeks before. We had the baby shower and everything. And so it was then a weekend when everything kind of happened. I had been a little bit sick the week before. With sore throats and I can’t remember if I had a little bit of a fever or not. So I had been a little bit sick the week prior. Then by the time the weekend rolled around, I started feeling much better. So I was just excited to be feeling better and doing a lot of stuff. It was a beautiful weekend, we were running errands and going to lunch, and I was washing the mountain of baby clothes that we had for Lydia. We had tons of stuff, not just from our baby shower and gifts that we were given like hand me downs.

    Winter 15:35
    Oh yeah.

    Danielle 15:35
    When we were in Virginia for my baby shower we stumbled upon a yard sale that had tons of the cutest baby stuff really lined up all the way up to 18 months.

    Danielle 15:49
    So anyway, I was doing all this laundry and folding the baby clothes, and I just have this vivid memory from that weekend, standing in my laundry room looking at the little bitty socks and just smiling to myself thinking about how excited I was to be become a mom and how close we were getting to her being born. Again, just feeling so grateful and excited. Because nothing was wrong at that point.

    Danielle 16:20
    So that was that was Saturday and then also into Sunday, I was still kind of doing doing the laundry. Sunday morning, we actually let me backup. So that Saturday, I went to chick-fil-a for dinner, and picked up food and I picked up a strawberry milkshake because that was one of the things I always craved with Lydia.

    Winter 16:43
    Really?

    Danielle 16:44
    Strawberries and ice cream. So I treated myself to a strawberry milkshake that night and came home. I remember saying to my husband, oh, Lydia is dancing around like crazy. Tonight, like she was going nuts in my belly. And I thought it was so cute. Like, Oh, she loved that strawberry milkshake.

    Winter 17:04
    Was she fairly active generally, or like,

    Danielle 17:08
    It was on and off. So at that point in my pregnancy, I was 30 weeks. So once you get to 28 weeks, their movements should be pretty predictable, which I had no idea at the time. But I have since learned that. But yeah, her movements would kind of be on and off. So even the weekend prior to that, and the weekend before that there would be times where I’m like, is she moving enough? And I wasn’t really sure.

    Danielle 17:35
    I had expressed it to my husband and I even mentioned it to the nurse at my last doctor’s visit, which was two weeks prior to the time we lost her. I said is it normal for her to be quiet sometimes and not move as much? And she’s just like, Well if that happens, just drink some juice, lay down, or eat something cold, some ice cream. And that should get her going again. So she really kind of just made it seem like it wasn’t a big deal. Maybe she just needs something to wake her up. So I had that in the back of my mind. And I’d even I guess mentioned, I don’t remember this specifically, but my husband remembers me asking the doctor at that visit. Should I be counting kicks? Because he asked me Are you feeling the baby move? That’s all the doctor asked.

    Winter 18:25
    Yeah.

    Danielle 18:25
    I was like, Well, yeah… What is strange? I don’t know. That’s a strange question to me. Because that’s a yes or no.

    Winter 18:32
    Yeah, yeah.

    Danielle 18:33
    A question. And yes. Like, that’s not really going to tell him much. And then No, it’s like, that would be a horrible thing.

    Winter 18:40
    Yeah.

    Danielle 18:40
    Just here.

    Winter 18:42
    But you basically asked him, you specifically asked him if you should be counting kicks?

    Danielle 18:48
    Yes. So you didn’t even remember it till my husband brought it up. Then once he mentioned that, I do kind of remember asking him that, like, do I need to count the movements because I wasn’t really sure what you were supposed to do.

    Winter 19:00
    Okay. Okay.

    Danielle 19:01
    And my doctor was a much older doctor. So he’d been practicing for many years. I kind of feel like he had that old school mindset. I would ask him different things. I even asked him Can I sleep on my back? Because I had read that you should not sleep on your back during pregnancy, and I was having trouble getting comfortable. He told me Oh, that’s fine. It’s an old wives tale, do what you need to do to get comfortable. So, I’m like, okay, so looking back on it, I’m like, oh, I loved him as a person. He was a great man. But as a doctor, I’m like, gosh, I really, really wish I had gone to somebody who was more focused on the latest research.

    Winter 19:44
    Right.

    Danielle 19:44
    Really telling me what I need to do to keep my baby safe.

    Winter 19:48
    Yeah.

    Danielle 19:48
    Versus thinking these things are old wives tales. So anyway she again, she was somewhat active I guess, but I just wasn’t. I was not aware that I really needed to pay attention to her movements that like. It wouldn’t be normal for her to slow down sometimes.

    Danielle 20:07
    Yeah.

    Danielle 20:09
    I was in one of those due date groups on Facebook. I don’t know if you’re familiar with those, but

    Winter 20:15
    Yep.

    Danielle 20:15
    It’s the December due date group for all babies.

    Winter 20:19
    Yep. Yeah.

    Danielle 20:20
    We’re all women who were pregnant with babies during December. So I was in one of those. I remember sometimes I’d see people post about their baby not moving much. Then everyone’s like, oh, they’re probably just sleepy. Like, my baby did that too, when they woke up. So I remembered reading posts like that. So I just assumed that sometimes babies get sleepy and they slow down.

    Winter 20:40
    Yeah.

    Danielle 20:41
    So that’s all I knew about movement. So anyway, that Saturday night again, she was moving around like crazy. Then my husband and I watched a movie. It was super late that night. I went to bed, and I was wiped out that night. I remember laying down in bed. I do remember thinking at the time Oh, she’s not kicking around. Usually when I’d lay in bed, she’d give me some kicks once I lay down, but I was like, Oh, I’m up later than normal. I’m so tired. I’m sure she’s tired.

    Danielle 21:13
    So I went to bed and I swear, I slept on my back that night, because I was so tired. Again, my doctor, I remember thinking I probably shouldn’t, but I’m like, well, he said, it was okay.

    Winter 21:24
    Yeah.

    Danielle 21:24
    I’m so tired. I just need to get comfortable. So I slept that way that night. Then the next morning, it was a Sunday. So we got up and went to church. Like we normally do on a Sunday morning. After church, we went to lunch, and we finally decided, like, yeah, let’s get maternity photos. I was gonna book those. Then we went out shopping for rugs. It was just a totally normal day.

    Winter 21:55
    Yeah.

    Danielle 21:57
    Then we got back home. And I started doing more of that laundry that I was talking about earlier. At one point that day it was probably mid afternoon. I was just sitting on the floor, in the room going through that laundry, and my sweet dog was there with me. I remember I was sitting on the floor, and she came in and rested her head by my belly. I just thought it was the sweetest thing. Like she wanted to be close to the baby or something.

    Winter 22:24
    Yeah.

    Danielle 22:24
    At that moment, I remember I just started crying. It was so weird. I just felt really emotional out of the blue. Now when I look back on it, I’m like, did I subconsciously know, something was going on? Did my dog know something was going on? At the time, mentally I didn’t think anything was wrong, but I was super emotional. My dog was being all cuddly.

    Danielle 22:49
    Then soon after that, I was like, gosh, I’m really not feeling Lydia move much today. So I went downstairs and told my husband, he was outside on our screen and porch. I told him, I was feeling a little bit worried because she really wasn’t moving much. We talked about it for a few minutes. But he’s like, Well you’ve felt that way last weekend, too. Which was true the weekend prior I was like, is she moving enough? So we talked about what we’re like, Yeah, that’s true. She’s probably just sleepy. So we decided there’s really nothing to be worried about, and carried on about the day

    Danielle 23:29
    that I remember, I took my dog for a walk and the day kind of went on.

    Danielle 23:34
    Then that evening, like I mentioned being emotional before , I wasn’t in a horrible mood. I just wanted to cry about everything. Again, it was so weird. I didn’t want to cook dinner, like we had nothing to cook. I remember we drove to Walmart, just to go get something to cook up really quick. And I just wanted to get out of there cause again, I was so emotional for whatever reason, and then came home and cooked dinner.

    Danielle 23:34
    We sat down on the couch after dinner. At the time, we were really into this show The Walking Dead, which is not something I would typically be into zombies, but my husband was totally into it. And I got into it. So we sat down to watch the walking dead. And gosh, she’s not moving and that was really concerning to me. Because after dinner at night when I sat on the couch that was her guaranteed movement is now. So since she still wasn’t moving, and I had already been worried earlier in the day, I was like okay, this is freaking me out a little bit, but I didn’t actually say anything to my husband yet. I didn’t want to overwhelm him.

    Danielle 24:42
    So I got up and I made a bowl of ice cream. I was doing everything that the nurse told me to do. I got ice cream. Then I drank orange juice right after. It was a really disgusting mix. I’m like all the sugar.

    Winter 24:55
    I know I’m like you’re all sugared up now.

    Danielle 24:57
    Yeah, like oh, I was doing anything I could to get her to move and poking my belly.

    Winter 25:04
    Yeah, yeah.

    Danielle 25:05
    And nothing was going on. And so in my head, I’m really starting to worry, but trying just to stay calm. And then I started texting my best friend Nancy. She’s had a baby before or had a baby before at the time. So I was just telling her what was going on. I’m not really feeling the baby move. I don’t know what to do. And she was like you probably should call your on-call doctor, just to let them know.

    Danielle 25:34
    At that point, it was a Sunday night. So I’m like, should I really call or should I just wait till tomorrow? I was like, Yeah, she’s right. So I called. And they said, Yeah, why don’t you come on down to labor and delivery, and we’ll hook you up to the monitor and check things out, just to be safe. And that has always kind of stuck in my mind that she said, just to be safe. Um, so I was like, okay, so I went back downstairs, told my husband everything that was going on. At that point, I hadn’t even told him I was calling because I just didn’t want to know. And he was totally supportive. You know, all right. Well, let’s go.

    Danielle 26:15
    So we went and started getting ready. We almost didn’t even take our dog out to go potty cause I was thinking we’re gonna go, we’ll be back in a couple hours. But we decided just to let her out real quick. So we took her out. Then I changed my clothes. Again I lost it in the bathroom. I just started bawling. I didn’t really think that something terrible had happened to our baby. The last thing on my mind was that she had died. But I was just so worried and like, what’s going on? Are we going to have a baby tonight? I’m not ready yet.

    Winter 26:49
    Yeah.

    Danielle 26:51
    Because again, I was 30 weeks at the time. So I just was like, What is going on? So we made our way to the hospital, which was about 30-35 minutes from our house. Yeah, I vividly remember that drive. My husband held my hand the whole way.I just had my hand on my belly. In my head praying and praying and talking to Lydia in my head, like, come on, just kick me just do something. And I felt one time I thought maybe she did kick but I wasn’t really sure. Um, so we got to the hospital. And we had to go in through the emergency room, because of the time of day, it was late at night. I don’t know, 10 o’clock by that point. I even remember, I was like, I’m sorry to my husband, cause he had to work at five the next morning. I’m like, you’re going to be so tired. I was just worried about all these random things.

    Winter 27:44
    Yeah.

    Danielle 27:45
    So anyway, we got to the hospital. And then this nurse from labor and delivery, named Susie, she was super sweet, super cheery and upbeat. She came in and greeted us. We were just making small talk walking down to the labor and delivery and we got to a room, she had me change into a gown. I did that and I remember changing into the gown and feeling like okay, we’re finally gonna make sure everything’s fine.

    Danielle 28:15
    So I got into the hospital bed, and Susie got the Doppler out to try to find Lydia’s heartbeat. And yeah, at that point it was, I know, a lot of people saw this. And it really was the loudest silence I’ve ever heard. It was just pure seeing if she’s moving all over my belly. And usually right away, they pick it up at that point.

    Winter 28:39
    Yeah.

    Danielle 28:40
    It was just silent, silent, silent. But then a few times, they would pick up my heartbeat. I didn’t know that it was mine or hers. But I’m like we found it! Oh, there it is, but it was just mine. So that was going on for what felt like forever, but I don’t know how long that was. She went and got another nurse to come and help her. So she came in, they were scrambling around. I’m just thinking in my head what in the world is going on? My husband’s next to me holding my hand still. Then they’re like, Okay, let’s go, we have to go get the doctor to do an ultrasound. So I’m like, okay finally please bring the ultrasound in here. Let’s see that everything’s fine. I was getting really kind of frustrated in my head at that point, because I just wanted to know that everything was fine.

    Danielle 29:34
    So this doctor came in who we had never seen or met before, and rolled in this little ultrasound machine and pulled it up on my left side. I looked over and first thing I saw was Lydia’s perfect little profile with her little button nose and then he moved the wand and it was right over her heart. And he said, I’m very Sorry, I can’t remember his exact words. It was like, I think at first he said I think there’s no heartbeat. But then he’s like, I mean, I know there’s no heartbeat. She’s gone. I was just in complete shock. I couldn’t look at him, I couldn’t look at my husband, I was just sitting or laying there in the bed, and looking at this wall in front of me staring at this wall in complete shock, trying to understand what he just said.

    Danielle 30:35
    It was just the worst, worst possible thing to have to hear. As a mother that was really, really hard to take in. Immediately I started thinking what did I do? How could this happen? You know? Did I? Was it something from me being sick last week, the nurse told me I could take a Tylenol should I have not taken the Tylenol? Like, did I eat lunch and not microwave it long enough?

    Winter 31:09
    Yeah.

    Danielle 31:10
    Every-

    Winter 31:11
    Every possible thing.

    Danielle 31:12
    I was totally blaming myself. What did I do? Because I am her mother. And it was my job I felt to protect her. I was just completely shocked and we had known that at that point that she was healthy. So it didn’t seem like something else happened. But we weren’t really sure at that point. But anyway, I was just laying there in shock. And my sweet husband dropped down to the floor and started praying, which was very sweet and needed at the time. Then, after the doctor left the room I don’t even remember the conversation my husband and I had, we were both just completely shocked, and trying to understand what happened.

    Danielle 31:59
    Then they had the doctor on call come in the one who I had called, and she came in soon after, and started talking about the plan. Obviously, she said, She’s very sorry, she was very caring and everything like that. But then it’s like we need to talk about next steps. You need to be induced. I hadn’t even thought about that yet.

    Winter 32:21
    Right.

    Danielle 32:22
    Like, wait a minute I just found out my baby died. I guess my mind hadn’t gone yet to what happens next., Obviously, she’s not just going to disappear. Um, so she started talking about that. And I had already been like, I don’t know why I was so terrified about the whole process of giving birth, even to a live baby. So I was way even more terrified of having to do that with my baby who died. So I’m like can’t we do a C-section? Is there anything else? At that point my mind’s not really even working the way that it should? I just wanted wanted it? I don’t know, I don’t know.

    Winter 33:07
    Yeah.

    Danielle 33:07
    It’s like, is a C-section an option? She said that it was but that they wouldn’t recommend it, the recovery is longer. Then also that would make it more difficult for having another baby or like, we’d have to wait longer, we wanted to have another baby. I thought about it some more. It was so late that night, they weren’t going to start anything till the next morning. So I did think about it more and decided to move ahead with the induction versus doing a C-section. But they did end up rolling us to another room where that would be a little bit more private, because we’re in labor and delivery. There’s all these moms giving birth to living children, lots of crying, lots of baby noises going on. So they moved me down to another room. That would be a little bit more private.

    Danielle 34:02
    At that point my husband, I asked him to let a few people know. I think my best friend Nancy had been checking in on me since I had been texting with her and he called my dad and at some point called my mom too, and I don’t know, I just couldn’t bear to talk to anybody. I couldn’t bear to text anybody. I just could not bear to be the one to get the words out to anybody to let them know that our daughter had died. So thankfully, my husband found the strength to make those phone calls and, and do those things.

    Danielle 34:56
    So anyway, we stayed at the hospital that night. I guess somehow I slept. I think they’d given me some Ambien. So I slept for a little bit. Then the next morning, early in the morning, they put in the site attack and started the induction process. By then, my dad had driven down from Virginia. I think he drove down. Yeah, I think he drove down. He was in New York and flew back to Virginia and drove down to be with us and my mom and stepdad, they were living nearby at the time, they had just moved down here as well. So they came to the hospital and visited with us.

    Danielle 35:42
    But anyway, early that morning, they started the induction process, and that kind of went on throughout the day. I did have an epidural. That was recommended to me and I was just like, so nervous about the pain and stuff. I was like, okay, so I did the epidural.

    Danielle 35:56
    Then throughout the day things were progressing slowly, they weren’t, weren’t really moving along that fast. I even remember early evening, I wasn’t that far along. I don’t remember how dilated I was, but it really wasn’t that much. So I was okay, but then all of a sudden not very long after the doctor checked me. I started feeling a lot of pressure and had to get them to come in and check.

    Danielle 36:10
    All of a sudden I was ready to go. They’re like, you need to start pushing now. I was like no. I don’t know, at that point. I guess waiting up to it I was obviously very upset throughout the day. But I was hanging in there. But then once I found out it was time to push I was so upset. I guess I just didn’t want– I felt like I was approaching the end, I guess. Once she goes out this is really going to be over. I didn’t feel ready, but I don’t think I ever would have felt ready.

    Danielle 35:56
    So anyway, I started pushing and it really wasn’t anything too bad. I don’t know exactly how long I pushed, but throughout the whole thing, I just kept praying for a miracle. Like, please God, let them be wrong. Please, let us hear her cry. This is all still thinking in my head. There can be some kind of miracle. They could be wrong. But she was born and that. I know. I said earlier that not hearing the heartbeat was the loudest silence, but I guess truly once she was born, and we heard the silence that was really the loudest silence I’ve ever heard.

    Danielle 37:40
    I knew she was out and I wasn’t hearing anything. They had asked me like, did I want her to be cleaned up before they handed it to me? Or did I want them to just hand her to me and I was just so scared. I didn’t know what she was gonna look like. So I’d ask them to clean her up.

    Winter 37:58
    Nobody had talked to you and none of the nurses or doctors had?

    Danielle 38:01
    Well..

    Winter 38:02
    Talk to you?

    Danielle 38:02
    That is a good question. They did. The nurses there were amazing. They were so sweet. and supportive. Yeah, before I gave birth throughout that day, they talked to me some. Do you want to hold her and I was like, Oh, I don’t know. I was so scared and didn’t know what to do, but they really encouraged me to do that. I’m so– I can’t imagine if I hadn’t held her.

    Danielle 38:29
    Then they also talked about Now I Lay Me Down to Sleep photography. They asked if we wanted pictures. Again at that time I’m like pictures? It’s not something I ever thought about, but I’m so grateful that we said yes and opted to do that. But yeah, they did say I could have cleaned up, or put on me. They didn’t really know how she would look. I guess it’s kind of hard to say cause they don’t know how long she has been– Yeah, how long she’d been gone and that kind of thing.

    Danielle 38:59
    So I had them clean her up, but I could see them taking her over to the warmer thing to get her cleaned up and I remember it was so sad. I’m like I just want her now. That’s what I was thinking of, like give me my baby. But they cleaned her up and handed her to me and she was just absolutely beautiful. I was truly amazed because I didn’t know what to expect especially since she had passed away, but she just looked perfect. She looks like a perfect beautiful baby. She had these cute little lips and again, I was shocked by her hair. I couldn’t believe she had dark hair. The little waves in it were so cute. She was just precious and so beautiful. I held her in my arms and did not want to let her go ever.

    Danielle 39:58
    We did learn that the umbilical cord was very tight around her neck and her right ankle both. It was so tight that there were indentations on her neck and her ankle. So they were fairly certain that is what happened to cause her to pass away, unfortunately. It was 7:56pm. Okay, and that is so weird. I literally just said that and the clock on my laptop is 7:56pm.

    Winter 40:33
    Yeah, I was about to say I was like, Oh, yeah, that is so.

    Danielle 40:37
    Um, so she was born at 7:56pm. We held her that night for as long as we could. Again, my dad was there, and my mom and stepdad, they all got to meet her. At the time again, we were new to South Carolina, we didn’t have many friends here or much of a support system. But we had been in a small group at church and had some friends through that.

    Danielle 41:07
    They were just the biggest blessing throughout all of this. They came to the church to or I’m sorry, to the hospital too. A couple of them got to meet Lydia at some point. We were just so grateful. I was proud to show her off. It is kind of weird. You know it was so horrible what had happened. But to me, she’s this beautiful, perfect baby. I wanted everybody to see her and know her. I wanted as many people to know her as we could.

    Danielle 41:39
    So anyway, late that night, the nurses did suggest that she go to the morgue. I don’t think they actually said it that way. I wasn’t even really thinking about it. But they really encouraged me to try to rest. They would bring her back in the morning. So I reluctantly agreed to it. They had to give me Ambien to get me to sleep again. But I did sleep a little bit.

    Danielle 42:07
    Every time I woke up, I’m just like, Where’s my baby? I want my baby back. So as soon as I woke up that morning, I was trying to page the nurse to bring her back to me as quickly as possible. Because it was terrible to be without her. I just wanted her there. I wish I could have held her all night like I wanted to. But I was afraid that I dropped her or something because I really was getting so tired. And they brought her back that morning. And then we spent some time with her for several hours that day, the day after she was born.

    Danielle 42:45
    We didn’t have a cuddle cot or anything like that. So I just held her in my arms, and my husband held her some. But I will say I do feel kind of guilty that I didn’t really let anybody else hold her other than my husband. I never let my mom or my dad hold her. I really wish I could have given them that experience. My husband’s parents did come down too, but it was later that day. So they didn’t actually get to hold her or anything either. It makes me sad now that nobody else got to know what it was like to hold her except for me and my husband. But selfishly, I was like, this is the only time I’m going to get to hold my baby. I want to do it for as long as I can.

    Danielle 43:33
    So we had talked to the doctor about whether or not to do an autopsy. The doctor that we had seen at the time did recommend it just to make sure there were no other issues. It was pretty obvious that it was the cord accident. But with that being our first baby, they said it’s probably good just to rule other things out. So we did agree to do the autopsy.

    Danielle 44:00
    So throughout that morning, the nurse kept talking to me about how they have to start the autopsy within a certain amount of time. That we’d have to move ahead with that fairly soon. Throughout that day, Lydia was changing a lot. Her color was changing her skin, it started peeling some and that was really devastating to see. In my mind it wasn’t gonna. I was gonna hold her forever. Nobody was gonna take my baby from me, but the nurse kept telling me. Then my husband, he’s like, It probably is going to be time soon just because of how she was changing so.

    Winter 44:43
    Did your hospital have a policy on how long you could actually keep her? Or was they didn’t tell you and there was nothing in particular?

    Danielle 44:51
    Yeah, they didn’t really say anything like that there was any sort of policy but yeah, let’s just like that next morning after we had are they Were pretty, like, I felt like the one nurse. Like she was trying to be nice, but I felt like she was getting a little pushy like with, we have to, it’s time to take her. I don’t know exactly what time it was, but it was probably around 12 or one that day that I handed her over to the nurse, which was really hard to have to hand her over kind of for the last time. So

    Winter 45:24
    Yeah, that’s the worst thing ever.

    Danielle 45:27
    It really is. Yeah. So that was our time spent with Lydia at the hospital. Sorry if that was a super long story.

    Winter 45:37
    I actually wanted to ask you so you got your picture. At least you got pictures, say and with. So I lay me down to sleep. And were you guys able to get handprints or footprints or molds or anything like that while you were there?

    Danielle 45:52
    Yes. Yeah, the now I leave me down to sleep photographer. She was amazing. She got beautiful pictures that I’m forever grateful for. They did get Lydia’s handprints and footprints, which I’m so thankful for as well. I do wish I had been given more guidance in terms of how to make the most of our time with her because I just felt so scared. I just had her wrapped up in that blanket and her gown for so long.

    Danielle 46:22
    I was scared to really look at her all over. I didn’t think that I could give her a bath. None of these things crossed my mind, or brush your hair. Things that I’ve heard other parents have done when their babies are stillborn. I wish somebody had told me I could do those things. Because, again, they didn’t cross my mind. I was just too scared to even think about it. I was too scared to lift up her gown and see all of her because I didn’t know what she would look like?

    Winter 47:00
    Yeah.

    Danielle 47:00
    So, I’m very grateful for what they did to give us just those things. I wish we could have done– I wish there was some kind of guide book for somebody who’s lost a baby. Which I’ve actually thought about making one to give to the hospital to give to parents going through loss. Just things for them to consider because nobody goes in there prepared for that, or knowing what to do.

    Winter 47:27
    No, you don’t have any clue what you’re doing.

    Danielle 47:31
    Yeah.

    Winter 47:32
    You have no clue. It just blindsides you.

    Danielle 47:35
    Yeah. Also in the hospital they’re asking us what we plan to do. Do we want to have her cremated or buried? That was an awful decision to have to make, we had no idea what to do. It felt like they kept coming in asking have you made your decision? Have you picked your funeral home yet? I’m like, No, like, I don’t even know anything about a funeral home. What ones there are.

    Danielle 48:05
    Eventually, we just picked one that was somewhat close to home. For me I could not let my mind think about cremation as an option at the time. I guess it was just too much for me to understand. That she would just suddenly like, I don’t know, I felt like her body would just suddenly disappear. I just couldn’t for myself. I couldn’t wrap my head around it.

    Danielle 48:30
    I remember some people trying to encourage me to do that because then she could technically be with us wherever in our home. Again, we were new to this state. So we don’t know where we’ll be buried one day. We did not have her cremated. So what we did is we found a cemetery that has a mausoleum.

    Winter 48:49
    Oh okay.

    Danielle 48:51
    She’s in a mausoleum so she could easily we could take her casket out and move her at some point. But I have mixed feelings about that now too looking back. When she first passed away we would, I could not go to sleep without going to the cemetery and telling her goodnight. I just felt so terrible leaving her there all by herself.

    Danielle 49:18
    Even now six and a half years later, every time I visit her, I’m just like, I’m so sorry. I hate leaving, even though I know she’s not actually there. Personally, I believe she’s in heaven. But just remembering her little cast it in her body going in there is really hard and leaving her there, but that was kind of what I guess was best. At the time when we had to make that decision that that was all I could get myself to do.

    Danielle 49:50
    We did have a memorial service for her. It was a smaller service. My best friends came down for it and some of Jonah’s family up in Virginia and West Virginia came down. We did a service for her a few days later.

    Danielle 50:11
    We had opted, even for an open casket, because again I just felt so proud of her and wanted people to meet her and see her. That was really hard. I wasn’t expecting her to look so different. In the casket I felt like she didn’t look like the Lydia that I held a few days before. So that was really hard. I kept holding, or putting her hand around my finger, and her hand was so stiff. That was just really, really hard for me. But I was really grateful to see her again, though, and give her that service. That service was really difficult for me. I can hardly remember anything about it other than actually seeing her and touching her. I don’t remember anything that anybody said, or anything like that. I was just still in too much shock.

    Danielle 51:11
    I do remember my brother asked if I wanted him to take any pictures at the service, which I think was really nice of him to ask. He and my sister in law had come down a couple days prior to that to be there for us. I was like, No. I don’t know, I was just so angry to be at a funeral service for my daughter. I told him no, but looking back, I really wish I had said yes, because I don’t remember a lot about it. I was not in a good place at the time. But I really wish I could have had some memories of that service to look back on.

    Winter 51:52
    Yeah.

    Danielle 51:54
    Then when we got to the cemetery. That part was nicer. They had taken us in one of those small limos, my husband and I. It was just such a surreal experience. We were in the backseat, me, then our daughter’s casket and my husband. I remember driving there and like, this is not real. This is not happening.

    Winter 52:13
    Oh.

    Danielle 52:14
    It was so bizarre. Then we got to the cemetery. My best friends had gone and picked up my dog, which was so sweet. So she could be there. We had balloons, so we did a balloon release and laid her to rest there. So that part of it was beautiful. I do remember that. It’s just the actual service itself was really hard for me. I wanted to hide from everybody. I actually did go in this back room for a while just to hide because I couldn’t face everybody. Everybody was so sad. Obviously I was so sad too. But at that point, I couldn’t even cry anymore, because I was in this weird shock phase. I was like, I just want to be alone. I just don’t want to be here.

    Danielle 53:01
    Yeah.

    Winter 53:02
    Yeah. Yeah.

    Danielle 53:04
    So yeah, that’s kind of how we, how we honored her life at the time and laid her to rest. Which is still so bizarre to say and think about that.

    Winter 53:21
    I’m so sorry. I really appreciate you telling that story. I

    Danielle 53:27
    Thank you for listening.

    Winter 53:29
    Yeah. I just, there were quite a few things that you said that brought back some memories and some emotions and Yeah, kind of a little bit of regret, actually. Because of Yeah, I wish I would have done this or so. But thank you so much for sharing. About Lydia. I think that’s

    Danielle 53:50
    Yeah, anyway the story is. I love any opportunity I have to share about her and just let people know how loved she was and how precious and important she was to us. The event itself is sad. The fact that she died is sad, but she herself. She’s an amazing little girl. So I just don’t know, I love sharing about her any chance I can.

    Winter 54:18
    Because you’re a proud mom. So I think that’s great. That’s wonderful. Thank you so much again, Danielle. Thank you.

    Transcribed by https://otter.ai

    Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: stillbirth

    Angel Mom Miranda Gives Advice On What To Say (And NOT Say) To A Loss Mom | After George’s Stillbirth

    February 17, 2022 by Winter

    Mom Miranda talks about how the grief journey has looked like for her and her husband Graham, after she gave birth to her son George who was stillborn at 39 weeks due to growth restriction, during the COVID-19 pandemic. She shares how having a support network, that includes a grief midwife, a grief doula, therapist, and support groups, has helped her process her loss, and shares advice on what to say and what not to say to a mom who has lost a baby. She also talks about how she remembers George with tangible things like necklaces, tattoos, and his memorial bench along the river.

    Watch here (YouTube):

    Listen here (podcast):


    Time Stamps:

    00:00 Welcome
    01:34 Not going home after George was stillborn
    06:50 Miranda’s sanctuary
    11:43 Her new full-time job
    20:22 Grief support groups
    23:43 Running
    30:33 Her husband Graham
    35:43 Physical reminders of George
    41:41 Things that were helpful and things that were NOT helpful

    You might appreciate these other episodes:

    • Watch/listen to Miranda‘s birth episode of son George: Click here
    • Watch/listen to Tiffany‘s birth episode of daughter Khyana’s: Click here

    Wanna help?

    • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
    • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
    • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.
    George’s memorial bench along the river

    Full Transcription:

    Winter 0:00
    Welcome, everybody, this is Still A Part of Us. It’s a place where moms and dads get to talk about their kids that have died either in stillbirth or an infant loss.

    Winter 0:08
    We are so grateful to be back here with Miranda, she told the story of her son George. We’re going to talk to her a little bit more today about some things that she’s experienced as she has grieved his loss.

    Winter 0:19
    Once again, I am Winter and I want to just do a really quick warning of that we are going to be talking about stillbirth today and it is full of triggers. So please just be healthy and be safe. If you need to not listen to this episode, please do not listen to this episode. We just want everybody to be safe. So and if you are joining us as a lost mom or lost dad, welcome, we’re sorry that you’re part of this club that nobody wants to be a part of. If you feel the desire to subscribe to help others find other stories then hit the subscribe button. We can help each other out and support each other.

    Winter 0:54
    So Miranda, thank you again, so much for coming on today. I really enjoyed hearing about George and your experience in the UK. As having lost him about 10 months ago, 11 months ago, right at the time of this recording?

    Miranda Markham 0:55
    Thank you so much for having me. It’s been good to talk about him.

    Winter 1:14
    Yeah. Good. I’m glad. Just for a little bit of context. So it was about 11 months ago. What happened to George, how far along were you when he passed away?

    Miranda Markham 1:23
    Yeah, so I found out that George had no heartbeat when I was 39 weeks and one day pregnant. So I was ready to meet him. We were in the homestretch. It was my very first day of maternity leave, when we got the devastating news that his heart had just unexpectedly stopped.

    Winter 1:44
    Yeah. Please go listen to her birth, the birth episode of George because I just can think of all these terrible things that were I mean, all these terrible things that happen to Miranda, but it was also compounded with the COVID pandemic, and all of those wonderful things that come along with it right, it’s worth it’s worth a listen. So if you can jump over there, please do.

    Winter 2:07
    So Miranda, I know that you mentioned before, in your other episode that after George passed away, you and your husband Graham, basically escaped a little bit, you guys didn’t go back to your flat in the UK, in London, and you just ended up going to, you stayed in a hotel for a few days. Then you were in Edinburgh for a couple months and you made a point to say that Graham basically took care of you.

    Miranda Markham 2:32
    That’s true. I sometimes joke that I became the infant. I was waking up at night crying. I needed to be fed my breakfast. Who told when to? When to have a nap. I was afraid of the dark. I really turned a bit child like myself, and he really did take care of me. I wouldn’t have, I wouldn’t have got out of bed, I wouldn’t have fed myself properly. I don’t know how long it would have been until I did. But he really, I mean, he saved me in a way. Not only did he make sure I took care of myself, but he did things and arranged things to make sure that we were taking care of our mental health and I think escaping was probably one of the best things we did.

    Miranda Markham 3:19
    Although it was lonely, there was a certain comfort in being anonymous, or we were and one of the things that we did. I don’t know if anyone who’s listening has been to Scotland or to Edinburgh, but it was summertime. So arguably the best time to be there. We just did beautiful walks in nature. We climbed mountains as my physical recovery started getting better. We picked big mountains to climb. Full day hikes and I think that everything else in your life feels like a complete failure. There was something really uplifting about doing something that felt like an accomplishment.

    Winter 3:55
    Yeah.

    Miranda Markham 3:57
    Honestly, if it wasn’t for Graham, finding those mountains to climb and finding the direction driving us there planning at all. There’s no way I would have done any of it and honestly, I owe him such gratitude for just not giving up on me during that time. He was the only thing that kept me going.

    Winter 4:19
    Yeah, it’s amazing, especially those out it’s just it’s so the pain is so acute in those early days and you just you really don’t know how to function. I just Yeah, I remember thinking like I was pretty proud of myself when we got out of bed and had something nutritious to eat like in the morning.

    Miranda Markham 4:36
    It really does feel like a big accomplishment.

    Winter 4:39
    Yeah.

    Miranda Markham 4:40
    Simply having a shower, I blow drying my hair, you’re putting on actual clothes. I really felt like wow really an accomplished person and you step back and think of that what I was doing prior to George was comical and suddenly felt like a big deal in my life but it was baby steps. To rebuild the tiny, tiny stuff.

    Winter 5:03
    Yeah, I really, because you do feel there’s just that. Yeah, that first bit of grief is just so intense. Just yeah, it just takes over. I think so. Then how did you guys came back? After those two months, you came back from Edinburgh? What? What was that transition? Going back to your flat? Did you have an entire nursery all put up? What did you guys do about that?

    Miranda Markham 5:30
    That was hard because I knew it was there lurking and the thing that we had to deal with on our return. We had very kind friends that asked if we wanted them to talk everything out for us while we were gone and take it away. It was really nice of them to offer. But it was something I really wanted to do myself, I felt quite passionate that I wanted to put away his things the way I wanted to put them away. Even though he had never seen them or interacted with any of the things they were very much in my mind George’s things.

    Winter 6:04
    Yeah.

    Miranda Markham 6:05
    I remember very early, we entertained selling some of them. I just thought Absolutely not. George didn’t get to use these, no one will.

    Winter 6:11
    Yeah.

    Miranda Markham 6:12
    So I decided we would get a nearby storage room. I would pack everything up in neat, tidy labeled boxes. We’d bring them to this nearby storage room where I could visit his things when I wanted, which I continue to do to this day. I didn’t know the sort of ceremony after his funeral, I just put everything away. I think I was really adamant that I didn’t want the door to his room to just be permanently shut and be this sort of awful place that no one ever went in anymore. It was really important to me to turn his room into something like a nice space where we’d want to go.

    Miranda Markham 6:50
    So I kind of tore apart our living room and that room. I rearranged all the furniture and I turned it into this sort of budget, I called it a bit of a sanctuary. I put a bookshelf and loads of plants. A little desk where my computer is now and I spend a great deal of time in that room. There’s a little area on top of the dresser, where his ashes are and some of his things that I think are quite special. I don’t know, I just sort of feel like I’m there with him. I bought this beautiful light. It’s kind of like a bonsai tree with sort of pearlescent bulbs on the end, and I turn it on at night because I just don’t like that the room is dark at night. Oh, I’d like there to be a bit of ambient light in there. It just feels like there’s a presence in there. It probably all sounds a bit unnecessary. But it just makes that room feel very sort of alive and special. Not the kind of terrible tomb that we just shut away forever.

    Winter 7:46
    Yeah, no, I think that’s actually a great idea, too. Because, yeah, it could feel very, so sad. It sounds like you’re trying to give it a little bit of a different take a reframing of what that room is in. And it sounds like you’re in your home office kind of also, where you work right now.

    Miranda Markham 8:03
    Yeah, yeah, it is. Yeah. So I spend a great deal of time there. It has memory boxes there, behind me on all my calls, and tonight sort of feels like I can be there with him. I I know people might find that hard to imagine, but I don’t know, it makes me feel close to him. I can think of him while I’m in there and just feel like his presence is there somehow.

    Winter 8:25
    Yeah. It sounds very, like a calming place for you. As you’ve gotten a little bit farther out, how were those days looking like? Because I think by then you were maybe are, how long was your maternity leave? Like how long were you able to take? Still on maternity? Oh, awesome yay! Okay.

    Miranda Markham 8:47
    Yeah. So it’s Yes, unlike the United States, we very kindly got a year as a maximum. So take a year off. I think there was some conversation with my employer that maybe I’d like to come back sooner, obviously. But I think it was working in the world of PR, which is in client service. I just simply don’t have the energy or the enthusiasm for that kind of work right now. I hold myself to very high standards professionally. I know that I can’t be reliable. I wouldn’t do that to clients, or to my team.

    Miranda Markham 9:23
    So we’ve worked out a different arrangement where I’m now the editor of a fitness website. Which is much more part time in terms of hours. It’s something I do on my own terms of my own time. If I need to disappear for a day because it’s a bad day, I’m not letting anyone down. I think that works really well for me right now. Because I think while I’m worlds away from where I was last June, there are still good days and bad days. If I was having one of those bad days and we had a client that needed something, there is a 0% chance I could be there for them. For that reason, I’m still sort of hanging on to this not leave for as long as I can.

    Winter 10:05
    Yeah, you might as well. I mean if you have the opportunity, that’s great. Was that easy to? I guess being at home is, obviously you guys are home because of COVID. Then Also being on maternity leave that did that. Did that give you the lux– Well, I’m not saying the luxury, but did that give you the time to process everything that had happened? Because this is the one thing that I’ve learned is that stillbirth is this big, huge shock, because you’re like, everything’s going great. Then everything is not going great and you have to do all of these things. It’s just a whirlwind of things that are just sad, terribly, and horrible. Then all of a sudden, you stop and you’re done. You’re like, What just happened? I always felt like I was in shock. So I’m wondering, was that time good to sit and think. How did you– have you gone about trying to process that grief? What happened?

    Miranda Markham 10:57
    I think it’s a really, really good question. I’m really grateful for being able to have this time. I think at first it was really difficult, because I’m quite a high energy person. My job was a huge part of my life. Fitness and running was a big part of my life. I wrote a blog. I scarcely had any free time, I was always on the move doing something. Generally, I don’t deal with aimlessness very well. So to have just shut off, everything in my life that contributed to my identity was massively shocking. It just completely rocked your sense of self. It took me months to try to rebuild, the only thing I could think to do was to basically make self care my new full time job.

    Miranda Markham 11:49
    So I was broken, and I needed to fix myself. I needed to do everything I could to get myself in the best shape I could mentally and physically. I had the time. So I’ve been doing things like meditating. I might have squeezed in like a 10 minute morning meditation in the past, I can spend one hour doing a deep meditation now. I read books voraciously. I indulged in old hobbies that I’ve long forgotten. I just went on long walks. Anything I could, that just felt like it was good and soothing for the soul.

    Miranda Markham 12:27
    He sort of was able to do it unapologetically. Because there was nobody demanding my time anymore. It took me a long time to stop feeling like I was wasting my time, and started reframing that as this is what I need to do to get better. I guess on top of that, also, working with a therapist as well has been helpful, I think, started working with trauma therapists pretty much the week after George died, and I think that was extremely helpful. I know that therapy is not for everyone. But I think in managing extreme grief and shock, having an expert in your corner, at least for me, was extremely helpful.

    Miranda Markham 13:04
    I often maintain that everyone should have a therapist regardless of whether you think you have problems or not. I mean, I think it’s just from a self development perspective, I think it is really helpful. But in the course, in dealing with trauma, I think it has been particularly useful. So being able to schedule those calls in the middle of the afternoon without worrying about work obligations, I think, has also been really helpful in terms of my recovery.

    Winter 13:28
    Yeah, and you had a trauma therapist. That’s very, I wish everybody just has a counselor, a therapist, and this person actually specializes in trauma that’s so interesting. Is there anything that has been pivotal or kind of aha moment type things that your therapist has brought up or helped you with?

    Miranda Markham 13:53
    Yeah, so I think, also good questions. I think there’s lots of different types of therapy out there. I would encourage people to do research if they are looking for a therapist. I think the most common type is CBD. So cognitive behavioral therapy, which is a sort of a talking therapy, very useful. What my trauma therapist does specifically as a technique called EMDR.

    Winter 14:14
    Oh, yeah.

    Miranda Markham 14:15
    Which you may have heard of, yeah. Which sounds completely wonky. It’s basically rapid eye movements, while you recount traumatic experiences. Even saying that it sounds truly awful. I’m not going to pretend that it’s not painful. We usually start the session by talking about what the most painful memory is, and sort of getting sucked in with that.

    Miranda Markham 14:38
    It’s hard. It’s hard work. But I think perhaps like many people, I was extremely skeptical at first. I just thought this is completely bonkers, like, how can this work and especially how can it work through zoom? Or through video conference? Is it even going to be effective through a screen? It’s one of those things where scientifically even though there’s enough research to show that it works. Scientists aren’t really in agreement about why it works. Which is interesting to me, the theories around it. It has to do with the way that the mind processes information similar to rapid eye movement, sleep. But as far as this kind of therapy goes, it’s a bit inconclusive as to why it works. All they know is that it does work.

    Miranda Markham 15:22
    So I thought, I mean, I’ll give it a try. If it’s completely nonsense, then I will try something else. The very first session after I had, we processed George’s that, basically his death and then birth. It was the most exhausting second to the actual event itself, in terms of in terms of it being chaotic. I was so tired after I slept for like three hours after the call.

    Miranda Markham 15:51
    Then the next day, we were speaking to a bereavement doula, another person in my support network. She asked me to describe what had happened. This was many weeks following George’s death. I remember it was the first time that I was able to talk about what had happened without being a blubbering mess. I didn’t cry, I finally could, I could talk about it without sort of almost a bit of space from it, it was still very sad, very emotional. But it was like, there was just a bit of space between the events and how I felt. I remember thinking straight away, like, that’s really interesting. That, to me, seems like a direct result of the therapy we just did.

    Winter 16:38
    Yeah.

    Miranda Markham 16:39
    I think I’ve seen that trend over and over again, as we’ve worked together. Where things that feel really intensely emotional, whether it’s grief, or sadness or anger, they’re just so debilitating almost in their intensity, after our sessions. That feeling is still there. But it’s not quite as explosive or all consuming, though, I can sort of engage with it if I want to, or not, I sometimes describe it as it’s like, as if it’s in a glass box. I can see it and say sort of hello there anger, to shut the door if I want. But I can also open it and go be with it if I want to. It’s probably a really difficult thing to explain, I think. But if you’re open to it, and you have, you have the option to have a therapist who practices EMDR, I would highly recommend that for people who have suffered the shock of stillbirth for sure.

    Winter 17:36
    My husband Lee actually has done EMDR off of it. Another friend recommended it when she had experienced quite a traumatic experience in her life. He has found it extremely helpful as well. So I will second your recommendation there.

    Miranda Markham 17:54
    I’m glad I don’t sound like a crazy person.

    Winter 17:56
    He came back and he’s like, I am so tired. I remember him specifically. He would just be like I’m exhausted, because you just repeat things over and over again. Just to kind of that’s how he explained it to me. So it was interesting, but he felt like it was extremely, very, it was very good for him. So yeah, so I second that recommendation.

    Miranda Markham 18:14
    Good!

    Winter 18:15
    Did you so it sounds like you have a great little team that has helped you through all this. No, seriously like and I was like, I don’t think people realize that they need to kind of create a team to get past these. Such a traumatic event, I think. It sounds like you have a bereavement doula, up Abreu, you have your therapist, um, any other people that have have that seem to be a part of your, your quote unquote, team and because I would encourage people to create a team like that, I think that is a great way to put it is like you need help to get out of this, where you’re at right now.

    Miranda Markham 18:54
    I would agree 100% I know. I mean, even in the earliest days, if you had told me go find different elements of support. I would still be in a very much in a state of I’m a victim and everything was hopeless. It’s okay to be there for a little bit, but not forever. But as soon as I started taking a bit of control, I guess, or feeling like I needed to be able to sort of collect all these experts in my network to help me. I sort of created this little army of people to assist me, who all have different areas of expertise.

    Miranda Markham 19:31
    So you mentioned obviously the doula and my therapist. Another one was the bereavement midwife who was assigned to us at the hospital. I mean, we didn’t have a choice about who that was. So I think we maybe just got quite lucky because she’s turned out to be a huge source of support, even almost 11 months on, we’re still in touch. I don’t know if that’s ordinary for her or not, but she’s, she’s been amazing. Any question I have about quite literally anything. She is just an email. From Calaway, which has been nice to have a person like that in your life, I also investigated quite a few support groups or maybe lost, which, due to COVID, any of the in person support groups were canceled. So again, much like my therapy, I was skeptical to be digital version with VHS.

    Winter 20:20
    Yeah.

    Miranda Markham 20:22
    But I think I was pleasantly surprised to find it, at least in the early days, there’s a baby loss charity called sans, that held a monthly meeting on zoom, that I joined for the first couple of months after George’s death. They were hugely helpful, because I think they ‘re run by people, mostly women who have lost babies, but they’re many, many years on from that loss. Many have gone on to have at least one or several other children. The one woman who led most of the calls lost a baby something like 22 years ago. So I mean, she’s quite a long way on that journey.

    Winter 20:59
    Yeah.

    Miranda Markham 21:00
    I think I found speaking to those people extremely helpful, and hopeful. Because I think what I found with some of the online forums and Facebook pages is that it’s too many people who are in the midst of their own grief, people who have lost babies yesterday or a week ago, or a month ago, and it was just stories of tragedy after tragedy after tragedy. While there is some sort of camaraderie in that, and it’s an element where he sort of doesn’t feel as alone, it also feels your anxiety because it feels like this happens all the time.

    Winter 21:35
    Yeah.

    Miranda Markham 21:37
    It’s like, I suddenly know 1000 ways the baby can die. I thought this was a rare occurrence. It’s like, every possible disaster that could happen, has happened. I don’t think that those forums had anything to offer me because it’s not anyone supporting each other, if it’s everyone talking about their own grief.

    Miranda Markham 21:54
    So, for me, the best thing was the groups where people were much further on in that journey, and could talk to me from a more hopeful future place. In doing that, I eventually connected with one of the women from the charity who lives nearby who lost a baby boy in a similar situation to George, but eight years ago, and she’s gone on to have two boys since then. We’ve gone for walks. We talk on whatsapp. I asked him lots of questions about what did you do about this? When this happened, how did you react? I know, there’s no rulebook for how to deal with the death of your child, but I think to just have somebody who, when they say, I get it that they really sincerely do. To tell you what they did, I think is there’s been a huge source of comfort,

    Winter 22:41
    That is great. I have found that I’ve, we’ve gravitated towards the people that are a little farther out, especially at the very beginning, because you’re like, I just don’t think I’m going to be okay. And you look okay. It’s like, you look okay, okay, we might be able to do this. So

    Miranda Markham 23:00
    I think that was it. It’s like, you seem like a normal functioning.

    Winter 23:03
    Yeah.

    Miranda Markham 23:03
    You have two healthy kids. You’re so sad about your baby. I see that because I met this particular woman, the place where we decided to meet the first time was at her son’s Memorial tree. Oh, so we looked at it. She’s a runner. So she ran there. I ran there. Yeah, we met well, but I wish this was all very, felt very appropriate. I get quite tickled when people say comments to me, like, Oh, I know how you feel. It’s like you may have an idea of what grief is like, but you don’t have this particular feeling. Unless you are, of course, this woman who I’ve connected with who has very much been in my situation. Where she says stuff like that, I think you do actually know and I believe you. You’ve come out the other side and seem to be a functioning contributing member of society who actually appears happy. I find that quite helpful.

    Winter 23:54
    Yeah, yes, it is very hopeful. We need that at the very beginning. I think we need that. You have, you were a very big runner, a very big you’re in the fitness industry. It sounded like the running had kind of petered off for you for a while there.

    Miranda Markham 24:14
    It did. I think I have a very complicated relationship with exercise these days. When I was pregnant with George, I had a real chip on my shoulder. I think about not letting the pregnancy impact my very sort of rigid and high intensity fitness routine for as long as possible. I wasn’t determined to do anything unsafe, of course, but I was very adamant that I was going to continue being as fit and active as I could be. Maintaining that same level of activity for as long as I felt I could. I ran a half marathon when I was six weeks pregnant. I continued going to orange theory classes until I was shut down from COVID. But until I was 20 weeks pregnant in hindsight, I think those things were too much.

    Miranda Markham 25:03
    There is an element of me that believes that level of intensity, especially in the early days, contributed to George’s death. I know practically, that that’s not true. I’ve asked multiple medical professionals if excessive exercise can cause death, which was growth restriction. They all say no, that wouldn’t have been the cause at all. Even when I wanted to run that half marathon, I remember asking my GP if it was okay. The rule of thumb was essentially that if you were fit before, and you were training for this before you got pregnant and you feel okay, carry on.

    Miranda Markham 25:39
    But I think I know, in my heart, there were many, many times where I pushed it when I didn’t feel okay. Because I felt like I had a point to prove. So after everything, I think there was a period where I was almost sort of using exercise to punish myself a little bit like, forcing myself to try and get back into this fitness routine, both because I needed to get back to where I was as quickly as possible. But also, because my body was a reminder of loss. I think all through pregnancy, people tell you, and they certainly told me, that when you are pregnant, that all the changes to your body is worth it. That, yes, you might gain weight, and you’ll be a little softer. You might not be physically where you were, but it’ll all be worth it. I think that’s really only true if you get to take your baby home with you. Because when you don’t, your body is this reminder of how much it failed you and how it just kind of strategically let you down. I hated myself for it. I hated it. I hated looking at myself, every time I did, it was just a reminder of how I failed.

    Miranda Markham 26:57
    So I started exercising a lot to try and just get back to where I was. So I didn’t have to constantly remind myself, every time I looked in the mirror, I think I’m past that in a much healthier place now. But running is still hard for me. Because I mean, it’s a high intensity activity, and I just never kind of fell in love with it. Again, I’m not as possessed by it as I once was. It’s hard because it was such a big part of my identity. I ran because I was a runner. That’s who I was. When you don’t do that anymore, it’s really Who are you? So I’m reevaluating, I’m trying to find different ways of staying active, that are more about feeling good and feeling healthy. Then they are about beating myself in the gym. Which I think was perhaps maybe where I was bordering on before was just like it was always like, harder, faster, heavier. Otherwise, it wasn’t good enough, it was a waste of time. I think I really need to reframe that meaning is sometimes actually just like a walk outside is, is fine. Also exercise

    Winter 28:06
    Yeah.

    Miranda Markham 28:06
    You don’t need to be dripping in sweat and on the verge of vomiting for it to count. So it’s hard work. This is a hard area of my life. It probably sounds trivial to some people who might be listening to this compared to everything else. But it’s, I’m really working on my relationship with it.

    Winter 28:24
    Yeah, I understand where, where you’re coming from just because like, when you do feel like, well, there’s a couple things. What do you feel like your body has betrayed you. Taking care of your child. Right, like that, that in itself is one issue that I’ve dealt with myself. Then the other issues that there was the winter before and then there’s the winter after right? Like it’s the Miranda before and the Miranda after. It feels like now that you’re I feel like I’m a new person. Like I’m a different person. Something’s different about me because of this, this little event, that little big event that happened in my life. I’m just I don’t know, like, I always feel like, Can I go back to that person that was kind of innocent? Did all these things that you did, there’s like associations with that old self that sometimes are like, Oh, that’s that’s not who I am anymore. So just interesting. I,

    Miranda Markham 29:23
    I understand that I feel like I often now divide my life into before George and after. I look at photos sometimes of myself from several years ago, and I think I don’t even know that person.

    Winter 29:37
    Yeah.

    Miranda Markham 29:37
    Who is that? Sometimes that makes me really sad. I get quite nostalgic for that sort of easy ignorance. So I kind of lived my life with this very privileged life where I’ve never really experienced anything that bad and just assumed that I never would. It’s hard now to imagine a life where part of my life maybe doesn’t include the word runner. It includes the words of bereaved parents. That’s not really what I wanted to add to the list of words that describe me. But it’s part of my identity now. So it’s a work in progress.

    Winter 30:16
    Yeah,we all are works in progress. It’s, ah, yeah, it’s frustrating when you’re like, Oh, this is not what I planned it to be. Or this is not what I envisioned my life to be like, and so, but this happens. It is what it is. I know that. It sounds like Graham has been a huge support to you. I’m wondering if you saw a difference between how you guys grieved, the loss of George, in this last year?

    Miranda Markham 30:46
    Yeah, definitely. I think, Well, I mean, anyone that has been through this or done any research or looked up anything related to grief. I mean, I think it’s a very common understanding that men and women grieve very differently by first hand experience. So that is extremely true. I think in the early days, Graham basically fell into a kind of autopilot mode, he realized that I couldn’t handle basically anything. He took it on himself to manage all of the practicalities and the administrative stuff around George’s death. I often don’t realize that there are actually a lot of admins associated with the death of someone. You have to register the death with the council, and you’ve got to fill out all this paperwork.

    Miranda Markham 31:37
    On the more personal side there were loads of family members that had to be informed and communicated with and they knew not to contact me, because Graham told them not to, and also my phone was off for weeks.

    Winter 31:50
    Yeah.

    Miranda Markham 31:51
    But I think it was quite troubling for people to not be able to see or speak to me in those early days, or at least I’ve heard from others that they were quiet, because I just disappeared, they didn’t know how I was. So Graham took on the role of Chief communications officer he then managed every incoming communication from family and friends. Regardless of what the questions were.

    Miranda Markham 32:14
    It was a full time job, it was a lot of work. He shielded me from a lot of stuff. I mean, and terribly around the same time, many of our close friends were also expecting babies. He very carefully kind of managed the details around that. Making sure that I wouldn’t see anything or hear anything as much as he could. It still happened, of course, but trying his best, you’re trying to do it in the most sensitive way possible. I think when, when the bulk of that was done, which arguably took many, many months, I think it was only then that he started realizing that he hadn’t really actually processed anything around George’s death. He’s sort of. He had his nightmares, it was very unusual for him. His job was quite stressful at the time. He just was, he was a bit burnt out. But he’s a problem solver. He’s extremely resourceful. So I think he recognized that this was a problem. Also he is self aware enough to know that he needed something he needed help with some kind of. So he also found a therapist who he worked with. Certainly not as long as I’ve been, but for, I think six weeks or so sessions. I think he found that really useful.

    Winter 33:34
    That’s good.

    Miranda Markham 33:36
    I think in all of it, I think we just stayed really close in terms of communicating with each other, which I know is quite hard for some couples. Maybe if communication wasn’t the strong point in the relationship before. Throwing a crisis into the next doesn’t usually help.

    Winter 33:51
    Yeah.

    Miranda Markham 33:52
    So I’m very grateful that we were probably already decent communicators in the first place. I think that helps. He’s also just relentlessly optimistic. Like to a ridiculous point where sometimes I’m like, I just want you to say things suck. Agree for five seconds. He’s constantly looking on the bright side. Sometimes it’s infuriating. You feel like the world is just closing in on you. You just want somebody to just sit with you and just tell you like, Yes, it is. It is all bad. But like, most times, it was what I needed to hear. He never gave up on me. I think it would have been really easy to give up on me because I wasn’t a good version of myself for a long time. So he just had no he just kept he kept he just kept on being supportive and his amazingly optimistic self. He was always positive for our future, which I think helps both him and I both passionate about sort of self development as well. Encouraging us to do things together like meditate, or do self improvement. Normally in courses stuff that we could do together like that, where that was both good for him and good for me. So, if I could summarize it, it’s probably that his grieving process is very kind of practical. Very, or the problem that I resolved.

    Winter 35:14
    Yeah.

    Miranda Markham 35:15
    I think that’s very ordinary, or common, I should say, for men to assume that role. I think, from what I read, and what I hear it sounds like losses, men do that. But it does often mean that they don’t process their emotions. They do bubble up down the road. That may still happen. I think he’s very aware of that. That may still happen. But my hope is that if it does, I will be in a place where I can support him.

    Winter 35:40
    Yeah.

    Miranda Markham 35:41
    I owe him.

    Winter 35:43
    Yeah, we all owe our spouses big time. Yeah, exactly. He sounds like you guys sound like you have done very well, trying to stay close together and to support each other when the other person may not be at their best.

    Miranda Markham 35:58
    Yeah. I hope though, I think if there’s any silver lining, if anything, I think that it’s our relationship that has remained good. It’s certainly not been without its challenges. But sure, I know that in lots of situations where babies died, it often brings couples to the end of their relationship. That’s just another layer of tragedy on top of an already very trying situation. I’m very thankful that it wasn’t the case for us.

    Winter 36:28
    Yeah.

    Miranda Markham 36:29
    I sincerely don’t know how I could have managed if things went a different way.

    Winter 36:34
    Yeah. I want to jump over and just talk about anything that you do specifically to remember George, I know you have your office, that is kind of a space that you get to remember him and his remains are there as well. Are there any other physical things that you have that remind you of him, or you try to bring into your life so that you can, you’re reminded of him.

    Miranda Markham 36:58
    There are lots of things. I’m quite like a sentimental person, I like physical things to sort of look out or like touch and feel. In the absence of a lifetime of memories with a person, it’s really hard to do that for a baby that you didn’t get a chance to get to know. But one of the big things and I was very convinced by this very early on that I wanted it, we had a memorial bench installed on the river outside her house in London, which is, sort of kilometer long, maybe mile long River. I’d spend endless hours walking on that river when I was pregnant. I imagined one day walking on it with George and feeding ducks with him. Spending a sunny summer day sitting in the grass and having really fond memories and walking there. I always look at the memorial benches that are already there. I like reading them and thinking of the people that have died in my memory. I thought, well, we have to get a bunch for George because I think having him cremated means we don’t have a gravestone or somewhere to go and visit. So the bench now becomes a place for you where if I’m feeling like I want to go and be with him, I can sit on his bench and think of him. Maybe fortunately, or unfortunately, I picked what I perceive to be the best spot on the river for the bench. So the bench is almost always occupied. Oh, of course. Especially when it’s sunny. So every time I think I’m going to go sit on jargons it’s usually someone there, that also puts a smile on my face.

    Winter 38:30
    Yeah.

    Miranda Markham 38:30
    That means that somebody has read his name, and they’re thinking of him. Next year, I eventually also had a tree planted. Because I really liked the idea that he can’t grow big and strong, then the tree can for him. The Tree of the maple tree, which sort of a Canadian nod to his parents. It’s a sort of, I think it’s just a nice sort of thing every time I leave this button like, I can see it there.

    Miranda Markham 38:58
    People often said if you move away from London, will you be sad, but I just thought no, because I think it’s this thing that will stay there forever. Anyone that passes by will see this beautiful tree with a beautiful bench and they’ll read his name. They’ll think of him and in terms of keeping his memory alive. I think that’s felt very important to me. So it took a long time in many emails with the local council to get that sorted but it was finally installed in November of– Oh, wonderful. Not the best time in London for an outdoor bench. It was basically a mud pit for three months.

    Winter 39:36
    But it’s been done so I think that’s so that’s so sweet. I yeah, any other things you want to share.

    Miranda Markham 39:44
    A few other things I don’t know with any of my friends or family will listen to this. So that might come as a surprise to them. But both Graham and I got tattoos. Surprise. We didn’t tell anyone. I mean they’re not certainly a sort of crazy fullback tattoo. Mine is on my wrist, it’s the little lowercase letter G, where the tail leads up into a heart that looks like a balloon. Graham’s has the same as on an on forearm instead of his wrist. I don’t know, I just looked at it all the time. Sometimes the sleeve of my shirt just shows a little balloon poking out. Every time I look at it, it just makes me think of him. The little g was because well, we were sometimes referring to him as little G. Graham was the big G and George was

    Winter 40:33
    Oh, that’s so sweet.

    Miranda Markham 40:36
    It’s small and it’s subtle. For me, it was important, because I wanted something visible on my body that people might ask me about, because then it gives me a reason to talk about him.

    Winter 40:47
    Yeah.

    Miranda Markham 40:48
    Especially to people who may not have ever even known he existed. This was something we came up with in the days in early June following his death. We’re both very convinced that we would do this with St. Paul again, as soon as COVID allowed tattoo Pro. So we snuck in there in November, just.

    Winter 41:08
    Oh, yeah.

    Miranda Markham 41:10
    I mean, the tattoo is so simple. It took all of the gods 30 seconds to put on my body. I mean, for anyone that knows me, I was very not not opposed to tattoos, but I was very much the person that was never ever going to get one. I could never possibly think of anything important enough to put on my body forever. This seemed like the thing, the most

    Winter 41:30
    important enough there. So I want to look into his eyes. One of my favorite parts of this part of the interview is that I like to know what people have done and said that were so helpful to you that you’re like, if you’re going to say something to somebody that has lost a baby, then this is something that you might want to consider. Let’s just talk about some of those things that people did or said that felt extremely helpful for you.

    Miranda Markham 42:01
    Yeah, sure. I think I said this to friends and family at the beginning. One of the things they often said was what can we do? They wanted us to come up with the things that they could do to support us. That was really hard, because we had no idea. We didn’t have any idea for a long, long time. But I think the thing that helped the most was just to check in with us regularly. Instead of asking let me know what I can do to help you, the people that said things like, I’m going to call you on Tuesday next week and check in with you. Or let’s have a call every Thursday morning, and just chat. That was so I know, it sounds like the simplest thing on earth. But having someone else make the executive decision on that was helpful at a time where I was incapable of basically even feeding myself.

    Miranda Markham 42:57
    The other thing was that there was an appointment to keep me accountable for it was something to look forward to when everything else in my life had evaporated. Because the worst thing was feeling like everyone has forgotten about us. Or that they’ve sent their obligatory ‘ ‘I’m so sorry” message and disappeared. The people that stayed close and connected to us. Long after the initial days and weeks following George’s death were invaluable to me. They didn’t have to do much. I mean, I think there was this real sort of sense with people that they had to have to say the perfect thing or say something that takes away the pain. It’s a fool’s errand because it’s impossible. Yes, there was nothing that could have made me feel better. But the single best thing people did was just to, just to check in. When they asked how I was, I said I was terrible, to just be okay with listening to how terrible I really was. Do not try to sugarcoat it or make it sound better or look for a silver lining. Either No, try to just take away that pain, just to allow me to be sad. I think that was really nice. On a more practical note, I think some people sent food, which I think can be really nice. But I think I said this to you before, there’s like so many frozen lasagna as a girl. It was very helpful to have things kind of out there ready that you could make, especially in the early days when I couldn’t cook anything and I didn’t want obviously the lion’s share of the work to falter Graham. That was helpful. I would just say maybe check in with the rest of your friends and family. Make sure you’re not overloading the poor person.

    I think the other thing was when people actually asked me about George. People were so afraid to talk about him. Even say his name and for the very brave friends and families that tried. I’m really thankful to them. Because one thing I think people don’t necessarily realize is that the mother of the baby that died still had a baby. I think there was a part of me that still really wanted to talk about him. Nobody asks you all the normal questions, they asked somebody when they had a baby. Nobody asked me what the birth was like, or why we picked the name we did. For the few people that did bravely venture into that territory, I will be forever thankful for them. I think for anyone listening, if you’re worried about asking those questions to a friend or family member that lost the baby, maybe to start by asking if it’s okay, if you ask a question. Some people said things like, Is it okay, if I asked you, about George? Or would you like to tell me about George’s birth? And I think being able to make that decision myself? And either say, yes, I do want to tell you about this or no, I don’t, was really helpful. It was certainly much more helpful than people just saying, I’m so sorry. I can’t imagine how you feel. Good luck with your grief. I’ll talk to you when you’re better.

    Winter 46:17
    Right? Yeah.

    Miranda Markham 46:20
    I don’t mean to us, or I don’t mean to trivialize those sorts of messages, I think people, they were doing the best they could with the words they had available to them. I definitely don’t expect people to know the right thing to say, it is really hard. I wouldn’t have known the right thing to say to me either. In fact, I probably would have used a lot of those phrases, for lack of even any experience with grief myself before George’s death. But

    Miranda Markham 46:47
    I think if I can say anything that was helpful is to not be afraid to mention the baby’s name, and to allow the family to talk about that baby without being visibly uncomfortable or, or trying to shut it down. Because it’s too sad.

    Winter 47:05
    Yeah.We just want to talk about our kids. Right? I think that there’s a sense of pride in being able to say that I birthed that, you know, I gave birth My child, that is like a big deal. You’re right. People don’t ask about the details. I remember, a good friend of mine was dropping off some food after we lost our son. She’s like can I ask you a question? Can you tell me about the birth? I was like, Yeah I want to talk about that. Because it’s a big, in itself a big accomplishment to have given birth. That was your first time too?

    Miranda Markham 47:39
    Exactly, exactly. People don’t know if they should, because they’re so afraid of upsetting the grieving person. I get that I do. Because the worst thing someone would feel as if they just cause you more pain and upset you more. But I think I don’t want to speak for everyone. But I think for me, the thing that was most painful was feeling like I couldn’t talk about it.

    Winter 48:02
    Yeah.

    Miranda Markham 48:02
    I was having to pretend that George never existed because it was too uncomfortable for other people. That’s just another layer of just insult to injury with the loss of a baby is that not only are you grieving, and going through shock. Dealing with this tremendous tragedy, you feel like you have to do it alone, because it’s too horrifying for anyone else to engage with.

    Winter 48:24
    Yeah.

    Miranda Markham 48:25
    For those brave friends that allowed me to talk to them about something that was truly their worst nightmare. I will be very thankful to them forever. Because those moments were really important to me. For the ones that are just out to the normal questions about giving birth and having a baby. They didn’t make me feel like I was invalidated from being a mom. I think that’s really important.

    Winter 48:50
    Yeah, that is so so important. I want to bring up one thing that you mentioned, we’ve talked about your friend before, and she was the one that actually referred you to us. You said something about what she did. I want you to repeat it again. Because she because I think that it was really great. She did something that was kind of out of the ordinary, right? She found a podcast and said, Hey, I’m just trying to understand where you’re coming from. She did something that was a little different. I’m not saying like, join our community if you want to, but she did something that was just trying to understand what you’re experiencing. That is huge. I think.

    Miranda Markham 49:32
    I think I had a couple friends who I think displayed an extremely evolved level of emotional intelligence. That Sakina sort of realizes that they have no idea what I might be going through. In an effort to try and help me find podcasts like yours, or read books about baby loss. So that they were better equipped to have those conversations. I mean, that That, to me, is kind of the next level. level of grief support that I wouldn’t expect most people are capable of doing. But this particular friend found was basically looking for ways to understand something that she has no, no ability to understand or know, sort of anything in her life that was similar. For that reason, she was able to just so much more easily talk to me about things because she suddenly realized what was okay to ask and not ask. Just felt a bit empowered to be able to even talk to me at all. Her and her husband were hugely supportive in the early days. It was making sure that they mentioned George and remembered his milestones. Every second of the month by sending a message saying they were thinking of him and lighting a candle for him. I mean, people don’t have to do that. That’s above and beyond, but for the ones that did in the world to me.

    Winter 50:53
    Yeah. I think that, I just think, Oh, you’re so lucky to have good friends. You know, like, yeah,

    Miranda Markham 51:00
    It’s wonderful. Having I think it was, I mean, in the absence of also being able to see anyone in person because of the lockdown, which was seemingly endless. That was also a huge help, because I think it was very easy to be in Greece, to isolate yourself, and obviously very easy to isolate yourself in a lockdown. I think it’s quite easy to be forgotten, in the midst of everyone else struggling and suffering to a degree. It’s easy to get caught up in your own world as well. So for those that kind of put their own troubles aside, and remember to send me a text message or, took the time to listen to a podcast or read a book. I mean, I really, I can’t say enough about how much that meant to me. So people are listening and you have something you feel capable of doing. I really would encourage it as hard as it is, this is a hard topic. It’s heavy, it’s not easy. But if you can do that, and allow it to educate yourself to be better for your friends, or your family, they will notice.

    Winter 52:04
    Yes, they will notice. There’s so few people that do that above and beyond those things. On the flip side, are there some things that you would probably recommend not saying and or doing that were maybe that graded on you, or kind of made you mad or anything like that? Because those are the things that I think people want to try and avoid? Yeah, let’s hear that and anything that in particular that–

    Miranda Markham 52:34
    There are a few things and I think there I may offer subtle adjustments.

    Winter 52:40
    Oh, okay. Okay. Yeah we always like those.

    Miranda Markham 52:42
    I think it will help people. I mentioned this before, but I think one of the most common phrases that we heard, which was the sign off to virtually every text, message, and email that we received was, let me know if there’s anything I can do to help. I hate that phrase. I know that phrase comes from a place of good. And please, if any friends and family are listening, and you said this, to me, this is not me saying you did the wrong thing. But I think it was impossible for me to ever let what you could do to help because I had no idea. Even if I had the capacity to come up with something, I already felt so vulnerable. The last thing I was going to do was to reach out to somebody and say, Please, can you do this for me? Right? I just simply wouldn’t have done it.

    Miranda Markham 53:32
    I think for the friends and family who instead just took the executive decision and said, Hey, I’m going to do this thing. You tell me if this is helpful or not exponentially more helpful. So even small things like I’m going to call you next Tuesday, or we’re going to send you a food bundle that’s going to arrive on this day. We’ve, I don’t know, booked you an appointment for something at this place. It doesn’t really matter what it is.

    Miranda Markham 53:32
    Obviously, it depends on the person that you’re speaking to. I mean, you would know your grieving person best, but I think allow them to tell you yes or no, instead of putting the onus on them to come up with the solution for you. Yes. That was hard for me, because it felt like sort of a throwaway comment where it was just like, Alright, well, I’ve put the offer out there. And if I don’t hear from them, I guess I don’t need to do anything now. I know a lot of situations that were lost I have heard from people.

    Miranda Markham 54:27
    Again, this is not to say that they’ve done the wrong thing. But I think for those that tried and just made an effort to come up with a solution was a lot more helpful in the early days. I think now I’m much better at saying what it is I want or don’t want. That’s only with the benefit of 11 months of even understanding my own triggers in my own my own heart really. So I think that’s one thing. Yes. The other one is a very sensitive one. But one of the things that happens really frequently and continues to happen is a lot of friends, or women in my network, shared stories of their own loss mostly earlier or early, maybe early or late miscarriages, or something like that.

    Miranda Markham 55:20
    On the one hand I know that people share those stories as a way to relate and kind of help me feel less alone. To show that they have some experience with loss in a way. But I think I would just caution people to be a bit careful about the way they share those stories with somebody who’s experienced a stillbirth. I might suggest instead that you ask if they want to hear about your story first, before you just unload your story on them. For example, say Would it be okay if I told you about my own baby loss story? Or would you like to hear about my experience with miscarriage? Because I think there was a time where I did want to hear those stories, and I was receptive to them. But there were also a lot of times, I definitely was not, and to be blindsided with those stories is just a message in your inbox, or a method of Facebook Messenger message from someone you hadn’t spoken to in many years. It was really, it’s tough, because then I feel like I need to then offer empathy and support when I don’t have a lot to give right now on that front. Equally, I don’t have any experience of miscarriage. So I don’t want to pretend like my situation is the same. Similar to the way I would hope that they wouldn’t necessarily think that theirs is the same.

    Miranda Markham 56:36
    Comments that really prickled me were when people had experienced an early miscarriage who said things like, I know exactly how you feel, or I’ve been there. I thought to myself, and being there it’ll hold is not the same thing at all. While there are elements of shared grief there, there are some similarities and that stories are our stories.

    Miranda Markham 56:59
    I often try to use the analogy sometimes with people that it’s like, it’s like telling someone in a wheelchair that you understand what it’s like to be paralyzed because you broke your leg once. Like, you might understand what it’s like to be inconvenienced by crutches but you most certainly don’t know what it’s like to be paralyzed. Maybe that’s a crude analogy, but I feel like it’s similar in a way and that any loss, of course, is tragic. There are similarities in the grief that accompany it. But I think I would just caution, women who have experienced a miscarriage to just tread a bit carefully when you share those stories with someone who’s had a late term loss, because the experiences are quite different.

    Winter 57:41
    Yeah.

    Miranda Markham 57:42
    So just to maybe ask for us if they want to hear that story.

    Winter 57:45
    Yes. Yeah. That’s a good way to do it. Just letting people know. Yeah.

    Miranda Markham 57:52
    Yeah. Sorry. I think that was all I wanted.

    Winter 57:55
    Okay, perfect. Any other? It sounds like keep going, let’s hear it was, here’s some more things that you would perceive.

    Miranda Markham 58:04
    I do know one other thing that the last thing was I think, I think phrases along the lines of this happened for a reason, or it was God’s will. Or you will realize down the road why this happened, or it’ll make you a better person or any comment that seemed to suggest that there was a reason why George died, some grand design by the universe really rattled me.

    Winter 58:32
    Yeah.

    Miranda Markham 58:34
    It rattled me because it made me feel like if I don’t change my life radically, or do something grand. Like I don’t know, devote my life to placenta research or open the wing of a hospital named after George. I’ve somehow missed the point of his death. I suddenly felt this enormous pressure to do something grand that if I wasn’t then I was messing this up somehow. This notion that there’s this God that this is a sort of doling out punishment like this is, is not a helpful thing to say. Even though that may be your belief, and that’s perfectly within your right to have it. I think those might be better, but are kept to yourself. There’s no doubt that having a stillbirth or any sort of loss changes you in a way. Lots of people’s lives do change quite dramatically as a result. But that’s a symptom. That’s an outcome. That wasn’t a strategy by the university.

    Winter 59:34
    Yes, exactly. Yeah.

    Miranda Markham 59:36
    So I think I would just basically eliminate those phrases, from anything to get rid of it.

    Winter 59:46
    They’re just not helpful. They are not helpful at all. They just kind of make you feel the lost parent makes you. They just feel worse. Yeah. It’s just a lot of pressure.

    Miranda Markham 59:58
    I know that again, I do just want to say that I know that all of these things come from a place of good. Anyone that said things like this to me, I never, I didn’t get mad. I’m not mad. I just think they’re in hindsight. And with the benefit of experience and time to reflect on this, there are different things that would have been more helpful. So I think if this helps someone say better things, to someone who is grieving in the future, that makes me feel like George’s life hadn’t had impact.

    Winter 1:00:31
    Yeah, exactly. Thank you so much, Miranda, this has been such an enlightening conversation. I would like to ask you, though, one last thing, is there anything? Any last bit of advice that you would want to give to loss moms, loss dads, and maybe those who are supporting them or helping them?

    Miranda Markham 1:00:53
    I think for those that are supporting them, I think one thing I’d just like to leave people with is to just, if you can try to get a bit comfortable with sadness. I know that sounds weird. But we have the sort of cultural notion that sadness is bad, and that we have to make it go away. If there’s a sad person, we have to get away because it’s contagious, or something. But all that really does is make the grieving person feel more lonely.Like you have to just grieve in silence. All of these things happen in your mind while you’re alone. You feel like you can’t talk to anyone about it.

    Miranda Markham 1:01:34
    Then there’s a period of time that goes by where we’ve decided that’s the prerequisite time in which a grieving person can be grieving. But after that, we then close the door on that, and you’re normal, and you’re fine. And we never speak of it again. Honestly, I think that it will be damaging ways to treat grief. As a society, as a human race, we have to get better at this because everyone is going to experience some kind of loss in their life. No, it’s not going to be the loss of a baby. But a parent or grandparent or close friends.

    Miranda Markham 1:02:08
    There are similarities. I agree broadly how to say we are terrible at supporting people. So I don’t think you need to say the right thing, or be obsessed about saying the right thing. You didn’t even really need to say anything. I think it’s best to be okay. Being a sad person, and just allowing them to be sad in your presence, and not shy away from that. The way that we so routinely do because it’s uncomfortable. Because that’s the best thing you can do is to really just sit in sadness with them.

    Winter 1:02:45
    It’s so comforting. Yeah, when somebody is okay, just being there with you.

    Miranda Markham 1:02:48
    Yeah. I mean, for parents I don’t know that I have any nuggets of wisdom, necessarily. I still feel like I’m early in this journey myself. But I think the thing that everyone tells you in the beginning is that, even though it doesn’t feel possible, things will get better. I know that if you’re listening to this and you’re at the early stages, you probably don’t believe that. Maybe you do, but you think it’s an impossibly long future, or time ahead.

    Miranda Markham 1:03:18
    But it is true time does help. It never goes away. I think that maybe the thing is that you can’t get over grief. Or even get through it. I think you just find ways to live alongside it. Maybe that’s a grim prospect. But my hope is that I can think of George and remember him without that searing pain that accompanies so much of this. His life had a major impact. It’s not just on me, but people who know us and know of him. Simply keep his memory alive and that feels important.

    Winter 1:04:03
    Thank you so much, Miranda. It was so good to hear from you and to hear your words of advice because they were helpful to me too. But thank you so much.

    Miranda Markham 1:04:14
    You’re very welcome. Thank you so much for having me.

    Transcribed by https://otter.ai

    Filed Under: advice, late term stillbirth, podcast episode, stillbirth Tagged With: stillbirth

    REMEMBERING GEORGE | Stillborn at 39 Weeks During COVID-19 Pandemic in England

    February 17, 2022 by Winter

    This is the stillbirth story of George Robert, told by his mom Miranda. Originally from Canada, Miranda and her husband Graham have been living in London for work, and they made the decision to start trying to have a baby. She talks about her pregnancy and “going to” appointments (telemedicine) and how George was progressing during the COVID-19 pandemic.

    After feeling no movement from George one morning around 39 weeks, Miranda headed to the hospital to be checked. They couldn’t find a heartbeat, and Miranda gave birth to George the following day. She and Graham did not want to see George after he was born, and with some encouragement from their bereavement midwife, they both did see him and spent time with him. This is George’s story.

    Watch here (YouTube):

    Listen here (podcast):


    Time Stamps:

    00:00 George Robert
    02:21 Introduction of Miranda and Graham
    09:01 Pregnancy
    19:10 Something is wrong and going to the hospital
    30:09 Birth
    36:26 After birth
    41:17 Leaving the hospital
    45:50 Funeral
    55:04 Autopsy

    You might appreciate these other episodes:

    • Watch/listen to Miranda‘s advice episode of son George: Click here
    • Watch/listen to Tiffany‘s birth episode of daughter Khyana’s: Click here

    Wanna help?

    • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
    • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
    • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.
    George’s 17 Week Ultrasound

    Full Transcription:

    Miranda Markham  0:00  

    My baby’s name was George Robert.

    Miranda Markham  0:08  

    Things I remember about him most of all. The first was that throughout the entire pregnancy, I was absolutely convinced he would be blonde like me. I don’t know why it’s the recessive gene. My husband and I have dark brown hair, but I just assumed 100% he’d be blonde. He was born with a full head of dark brown hair, which surprised me. The other thing was that leading up to his birth, the weather was unseasonably warm, beautiful sunny days, pure blue skies every day for what seemed like weeks on end. Then he died five days before his due date. On his due day, the sixth of June, the weather absolutely turned, it got really cold. There was a thunderstorm. I do remember sitting and staring out the window and watching the rain pour down and just think this is so perfect. I couldn’t stand a happy, sunny day on what was the saddest day for me. I just felt like the world was grieving with me somehow. I don’t know, it felt like a very fitting weather turn to mark what should have been a very joyful day.

    Winter  1:21  

    Welcome to Still A Part of Us. A place where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter.

    Lee  1:28  

    And I’m Lee, we are grateful you joined us today. Please note that this is a story of loss and has triggers.

    Winter  1:34  

    Thanks to our lost parents who are willing to be vulnerable and share their children with us. 

    Lee  1:38  

    If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

    Winter  1:45  

    Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us. They’re Still A Part of Us.

    Winter  1:58  

    We are so grateful to have Miranda on with us today to talk about her son, George. This is actually kind of a fun experience to get to know Miranda. So I’m excited to have you on today. Miranda, welcome. 

    Miranda Markham  2:10  

    Thank you. Thank you so much for having me. 

    Winter  2:12  

    So tell us a little bit about yourself, Miranda. Who you’re married to, where you guys are living right now, and what do you do on a day to day basis?

    Miranda Markham  2:21  

    Yeah, sure. So my husband’s name is Graham. We just celebrated our 8th wedding anniversary on the 13th of April. 

    Winter  2:29  

    Congratulations.

    Miranda Markham  2:31  

    16th of April. It was in 2013. We are originally from Canada. We moved to London, England six years ago, both of us had job opportunities that came up around the same time. It was not in our life plan. We had just got married, we just bought a house and lived in that house for approximately a year. It was very much the plan to stay in Toronto, where we lived. We just kind of packed it all up and fled with the intention of staying in London for two years. That was six years ago. 

    Miranda Markham  3:15  

    We both changed jobs a couple times since moving to London. But broadly, my role has been in the world of public relations. I’ve worked in all sorts. Started in consumer PR, so for large consumer businesses and then transitioned into health and fitness PR specifically, which is very much my area of expertise and my passion. My husband’s done a fairly significant career pivot after a career in mining. He went into an MBA program at the London Business School, and decided he wanted to get into the world of food tech, which is where he’s working now. So plant proteins and alternative meat. Yeah,

    Winter  3:55  

    Very interesting. So you guys have just found yourself in London. Do you enjoy living there? Has it been good for you?

    Miranda Markham  4:04  

    It’s been amazing. I think we wouldn’t have stayed, we wouldn’t have stayed for three times the length of time if it wasn’t. I think we were really naive when we first moved to London thinking that after two years, we would have done it all and seen it all. Done everything made all these friends and could have just packed up and moved to Toronto. I mean, I think it really took us two years to feel like we lived in London, and to make some solid friendships. By the time that had happened, it seemed like a shame to reverse it all. So we just stayed, but the city is amazing. I mean, there’s everything you have at food entertainment events. I think a big thing for us was proximity to the rest of Europe and an opportunity to travel extensively which we’ve done over the last six years.

    Winter  4:51  

    Which is so wonderful. You kind of alluded to this that you are very much into the– you do PR for a fitness company. I know that you are a big runner if I’m not mistaken. Tell me a little bit how long you’ve been running? Is that like a pretty big hobby for you?

    Miranda Markham  5:12  

    Running was a huge part of my life. I started running in my late 20s. A friend of mine was the leader of a local running club and basically invited me to come and join at a time where I never really put two feet in front of her. I really enjoyed it. So I kept going back. As part of the group she was in, they wanted two new runners to train for and run their first half marathon and blog about it in exchange for free clothes and shoes. So I thought, Yeah, why not? Why not? I had every intention of running one half marathon and saying that was what got my free shoes. I’m out of here. 

    Miranda Markham  5:54  

    Obviously, you know where the story goes. But I fell in love with it. I suddenly just awakened to this desire to see how far I could go. If I can do this, how much more can I run? How much faster can I get? How much further can I go? It was just this massive source of pride and accomplishment for me. So I continued, and over the last decade or so, less than a decade, I’ve run over 55 different races. All my two full marathons and five triathlons. I would say I’m still very much a recreational runner, but posted some times in the past a couple years that I would have thought inconceivable in my early days. So, I think there was something really rewarding about getting older and still being able to improve. 

    Winter  6:45  

    Yeah. 

    Miranda Markham  6:46  

    So I say it was a big part of my life. I think it’s sort of dropped down the priorities these days. But it’ll be there for when I want it back again.

    Winter  6:55  

    Yeah, exactly. That’s a nice thing about it. So it sounds like as a couple you guys like to travel. Any other things that you like to do in London or around?

    Miranda Markham  7:08  

    Definitely travel, but eat. Think of there’s no shortage of amazing cuisineI in London. I think it gets painted with a bad brush. People think that English food is just a bunch of fish and chips and fried stuff. I mean, if you want that you can have it. But it’s also a very worldly city where if you want any type of cuisine from anywhere around the world, you can get it. 

    Winter  7:31  

    Right. 

    Miranda Markham  7:32  

    So I think nights out with friends and enjoying great food. Either in their homes or at a restaurant has been a huge part of our social calendar. I think just the entertainment side of things. I mean, there’s aside from the obvious theaters, and kind of Western shows, there are just so many interesting events that you can go to. Whether it’s festivals or secret cinemas, or interactive art exhibits, I mean, it’s endless. You can find something to fill your weekend, every week, if you want.

    Winter  8:02  

    That is so fun. I think that is great. Thank you for letting us know. I think you’re technically our first international. Yeah, international guests. So welcome.

    Miranda Markham  8:14  

    Hey! All Right. 

    Winter  8:15  

    Yeah. For a little bit of context, can you also tell us how long ago George was born at the time of this recording? 

    Miranda Markham  8:24  

    It was coming up on 11 months ago.

    Winter  8:29  

    Yeah, it’s right. June.

    Miranda Markham  8:31  

     So it was June, June of 2020. 

    Winter  8:33  

    Right. Okay. So it’s you and your husband, Graham, and any other members of the family? Just, it’s just the two of you. Right?

    Miranda Markham  8:43  

    It’s just us and the puppy who joined us in December of last year. 

    Winter  8:48  

    Okay.

    Miranda Markham  8:48  

    His name is Eddie.

    Winter  8:50  

    Wonderful. So were you guys planning on getting pregnant then? Was that part of the big picture? Or was that something that was a little bit of a surprise?

    Miranda Markham  9:00  

    It was not a surprise. I think we really, as a couple, I don’t want to say struggled, but certainly postponed the idea of starting a family for quite a long time. We like our lives. The freedom of being able to pack up and travel and do whatever we wanted when we wanted. It was really difficult for us to envision a life where that suddenly came to a standstill. 

    Miranda Markham  9:29  

    I think at the same time, both being very career focused. We were busy. It was hard to imagine how a baby would fit into our lives. So we really delayed our thinking around starting a family for quite a while. But I think we sort of have complete predictability. The second I turned 35 I suddenly felt like okay I’m ready now and we need to start. We need to start because obviously there’s no reason to believe that we would have any issues, and I wasn’t concerned about any fertility challenges. But I think age being a factor certainly weighed on my mind. It sort of felt like it was now or never. 

    Miranda Markham  10:15  

    I think the other thing was that I’m an only child. I always said my whole life that I would want to have two kids. So it was trying to plot that timeline. I’m a bit of a control freak. So trying to plan how that would look. Really sort of thought, okay, at 35, we’ve got to start the process. I think we took a very sort of laid back approach to it. It’s not like I was tracking anything, we just sort of, I don’t know if they say this and other countries that pulled the goalie, as they say. We just said, and just thought, if it happens, it happens. And that’s how it will be. 

    Miranda Markham  10:53  

    So it wasn’t a quick process, because, as it turns out, it’s really actually hard to make a baby. You spend your whole life worried that you’re gonna get pregnant by accident. And when it comes down to it, it’s like some Einstein level science experiment where the moon has to align with something or another. Anyway, it eventually happened. A month before my 36th birthday, I found out that I was pregnant. 

    Winter  11:18  

    Awesome. Were you guys excited? Was that just like, okay, we have been planning for this. How did you feel about that?

    Miranda Markham  11:24  

    I remember the day that I told Graham, I was pregnant. I did the test in the morning before work, and it was positive. I came and told him. We both kind of went, hmm, all right. Well, I gotta go. We’ll talk later. It was like the most anticlimactic thing there was no celebration, jumping up and down. It was kind of like, Okay, this is the thing we’ll deal with later. 

    Winter  11:44  

    Yeah. 

    Miranda Markham  11:46  

    So I wouldn’t say the initial emotion was one of overwhelming excitement. I think there was certainly happiness, but also an element of being terrified as well. This is suddenly everything is going to change. 

    Winter  12:01  

    Yeah. 

    Miranda Markham  12:02  

    So we could eventually talk about it. I think as time went on, I became more and more excited. But yeah, certainly it was scary. I think we were mostly focused on how our lives would change. 

    Winter  12:15  

    Yeah because it is a big change when a child comes into your life. How was the pregnancy? Were you? I would say that you are relatively fit. I’m just wondering how the pregnancy went. Morning sickness. How did the baby look?

    Miranda Markham  12:32  

    Yeah. I mean, overall, I would say my pregnancy was really smooth and really easy. I had really intense food aversions in the first trimester, which caught me a bit by surprise. I thought I knew about morning sickness, obviously I didn’t know that I would literally feel like rushing at the smell of my own refrigerator. I subsisted on a diet of bagels and crackers for probably 12 weeks. I also made hiding the pregnancy from people at that time extremely difficult knowing both my love of food and my high level of activity, when suddenly I started acting like a slob and eating nothing but carbs. It was a rather difficult thing so I’m sure most people had a suspicion before I ever mentioned this. 

    Miranda Markham  13:24  

    Otherwise, I think as soon as I passed the first trimester, I felt great. I had a high level of energy. I continued running until I was 25 weeks pregnant, I think. Carried on with a fairly high intensity fitness schedule. Group after five classes modified Of course. I also worked with a personal trainer who specialized in prenatal fitness, just to make sure that I was– I have a tendency to push myself too hard all the time. So I needed someone to kind of pull me back and make sure that I was still exercising safely. 

    Winter  13:53  

    Yeah.

    Miranda Markham  13:54  

    But yeah, and we still traveled. We went to Mauritius, when I was probably about 26 weeks, maybe 24 weeks pregnant, and had a luxurious holiday at this beautiful resort. Then in March of 2020, we went to France and my friends went skiing. I snowshoed and booked a massage therapist to come to the chalet and massage me. I mean it’s all very luxurious. 

    Winter  14:20  

    Yes, that sounds nice.

    Miranda Markham  14:22  

    Yeah, I didn’t have any issues. I was very mobile, very new. I felt good. I felt great. There were certainly no warning signs that anything would go badly. 

    Winter  14:35  

    Yeah. I am not totally sure how healthcare is in London or in the UK. But do they generally also do a kind of anatomy ultrasound around 20 weeks? Is that a fairly common practice still?

    Miranda Markham  14:51  

    Yes. So I think similar to most places, they do a 12 and 20 weeks again. My particular hospital also offered a third a six week scan, but due to COVID, it was canceled. So I never actually had that one. But I think potentially unlike other countries, I don’t know this for sure. But there’s lots of private care options where there’s several clinics that will do private scans for a fairly reasonable price. So if you are concerned, you can book what’s called a reassurance scan and go in and have another scan. Your cost, of course. 

    Winter  15:24  

    Right, right. 

    Miranda Markham  15:26  

    It’s certainly affordable, I think, for most people, and I think what’s the price of reassurance?

    Winter  15:31  

    Yeah, yeah. So you guys got your scans at 12 weeks and at 20 weeks. And how was George looking at that time at those times, looking good?

    Miranda Markham  15:41  

    He looks great. He was, I mean, it was, I think we totally took for granted at the time, but I went into all of those appointments, assuming that it would all be everything is fine. All graphs trending upward. Everything is perfect. So I always left feeling quite smug that everything was great. And therefore everything would be great. 

    Winter  16:01  

    Yeah. I know. So tell us a little bit. So you, just to kind of back up a little bit. I just want to point out that you had George, basically in the middle of the pandemic. It was probably full, like you guys had shut down? I mean, I think the UK had shut down quite a bit of stuff by June, May, June. 

    Miranda Markham  16:20  

    Yeah, so just to set the sort of timeline. I think I was entering my third trimester in March of 2020. 

    Winter  16:29  

    Okay. 

    Miranda Markham  16:30  

    So right when the world was basically pulling the panic alarm on COVID. I left work one afternoon of I think, March 17, or so. thinking it would be thinking it would be a couple of weeks, and I’d be back. It was the last time I was ever in the office.

    Winter  16:49  

    Right.

    Miranda Markham  16:49  

    I haven’t been back. Everything shut down. Like fully locked down after that. It was at first kind of a funny thing, a novelty. But it was this sort of bizarro world that everyone assumed would be temporary. And it was made bearable by the fact that the weather was beautiful. 

    Miranda Markham  17:12  

    Oh good. 

    Miranda Markham  17:13  

    I just thought, well, great. I’m working from home, I’m pregnant, I don’t have to get on public transit. I’m just going to lounge in the garden and drink 100 iced tea while in between meetings. 

    Miranda Markham  17:25  

    I don’t think initially, I was terribly concerned. I think when things started to become more concerning was when obviously hospitals became overrun. The NHS was at a breaking point in terms of being able to accommodate all the critical patients. Of course it wouldn’t have necessarily impacted maternity care. But what they did do in order to prevent more people from entering the hospital was to cancel what they called all non essential appointments. So for anyone like me, that was deemed low risk and healthy. 

    Miranda Markham  18:03  

    Pretty much all of my appointments, with the exception of one of 38 weeks was canceled, or done over the phone. Which I was deeply concerned about, at the time, because I thought, How on earth could they possibly know, if something’s going wrong with a phone call? I panicked. I remember calling multiple other hospitals to see if I could switch. But they all basically had the same rules in place. So there was no point. I kept trying to tell myself that they have to make changes in an unprecedented situation. So if they tell me that this is the right thing to do, and that the risk of going into the hospital is greater than staying home, then I have to just believe that that is in fact, true.

    Winter  18:51  

    So you have had basically telephone phone call, I mean, telephone appointments, and or none at all, basically, for your last trimester?

    Miranda Markham  19:00  

    Correct. 

    Winter  19:01  

    Were they having you do any sort of checks of, say blood pressure or? So nothing extra?

    Miranda Markham  19:10  

    No. So I think this is the other thing I thought normally they take blood or they check your urine, or they do your blood pressure, none of that was happening. They basically just asked how I was feeling. I think the question that stays with me is the midwife who called me and asked, Are you happy with the baby’s movements? And I thought, like, what an absolutely absurd thing to ask a first time mom, and I said, I don’t know what you mean. Like, yeah, like, give me more to go on. What should I be looking for? I remember her sounding quite exasperated with me, as if I was just wasting her time. And she just basically asked if the movements were regular. If I’d noticed any difference in the patterns and at the time, I just thought, I mean, I’m not paying attention. I was working 15-16 hour days because working in the fitness industry, when all of our clients that basically had to shut our business was in a tailspin. We were trying to save clients who were leaving us in droves. It was really stressful. The last thing I was paying attention to was counting my baby’s movements. So I just sort of said, Yeah, I guess so. And she said, Great, okay, call us if anything changes. The conversation lasted 45 seconds.

    Winter  20:24  

    So you’re in your third trimester, you are told to note down. I mean, it sounds like there was not very good direction given regarding what you’re supposed to be looking for in regards to movement. 

    Miranda Markham  20:36  

    Not particularly.

    Winter  20:37  

    Not particularly and they are and you are just kind of starting to get worried. Right. I mean, I would be, like you said,I would be panicking. 

    Miranda Markham  20:47  

    I panicked, I was properly panicked. And not just about the baby, but about all aspects of my life. What was going to happen with my company? What was happening? It sounds trivial now. But fitness was such a huge part of my life, and all the places I would go to fit and do classes were shut down there for the foreseeable. I mean even our families for travel, they live in Canada, they wanted to come visit us when the baby was born, would that be possible? 

    Miranda Markham  21:15  

    I remember, I was awake in the night, I couldn’t sleep because I was so worried about things. I woke up and I wrote, feverishly, six pages of worries. Months and months later, I went back and looked at those and it is shocking. How many of those things actually happened. Most people say when you write down your worries that most of them end up not coming to fruition. In his particular case, I would say 50% plus actually, indeed did happen. Which is a terrifying thing. 

    Winter  21:45  

    Yeah, it is. So tell me what happened. Yeah, tell me kind of what happened when you found out about George.

    Miranda Markham  21:55  

    I mean, things carried on through the third trimester. I did actually go to an appointment at 38 weeks, where everything appeared to be fine. So then I carried on working right up until the end. I worked until the 30th of May. I think that was the right day, 30 or something around there. 

    Miranda Markham  22:15  

    I remember being quite smug having done the best job I could, I was on great terms with my boss. We’ve done a lot of great work together in order to kind of salvage a lot of things that were going wrong. So we had a friend over that evening, and you’re having some food in the garden. I remember feeling quite smug. I could feel George moving around, and was feeling quite good about everything. 

    Miranda Markham  22:40  

    I woke up the next morning, I guess this was now June. June, the first, which was Monday, my very first day of maternity leave. I sat up in bed, and I just remember I normally every morning when I would sit up in bed, and I would have my morning drink, the baby would start moving. He’d start moving straight away. I start noticing his movements, especially if he could hear me or Graham talking. But this morning, there was nothing. I didn’t panic, not straight away, because I knew not to. I’d read enough by this stage on my own and based on my own research that you shouldn’t panic. 

    Miranda Markham  23:17  

    So I did everything that I was told to do. I had something cold to drink, I ate something sweet. I lay down on the couch, and I tried to feel if I could feel any movements. I still didn’t believe that there was anything too wrong. So I had a shower, dried my hair. By this point, more than an hour had gone by, and I still hadn’t felt anything. I thought I should just go in just to be sure. I’m sure it’s fine. But I’ll go in. I told Graham not to come even though I think he could have despite the COVID restrictions, but I told him not to go because in that moment, I was sure that everything would be okay. 

    Miranda Markham  23:58  

    I remember getting in. I just took an Uber to the hospital. I remember on the way there. I didn’t know just suddenly getting this increasing sense of dread. I even googled, I know I did this because like the web page was still open on my phone weeks and weeks later I googled rate of stillbirth. I just I don’t know, I just had a horrible dreadful feeling that something was wrong. I got to the maternity ward and they still had me wait, even though I said I was concerned about the baby’s movements. I still waited in the waiting room for 25 minutes before someone saw me.

    Miranda Markham  24:36  

    Then finally a midwife came and put the doppler on me and couldn’t find anything. That’s when I really started to panic. I kept shouting at her, is something wrong? Something is wrong and she just kept telling me that it was fine and not to worry. They brought in a different midwife and she checked and still nothing. 

    Miranda Markham  24:53  

    Then they told me to move and I had to go to a different area where they did a proper ultrasound with a more senior I don’t know if she was a midwife or an obstetrician, I’m not sure. That’s when she told me, well, she didn’t actually need to tell me. I just remember looking at her actually all three of them. There are three midwives there. They were all wearing masks because of COVID. I just looked at her eyes. They were filled up with tears. I knew before she even said anything. She just said the words I’m so sorry. I don’t know. I kept screaming at her. Are you sure? I demanded that she check again, over and over. She kept telling me that she was so sorry that he had no heartbeat. 

    Miranda Markham  25:42  

    After a few moments of trying to absorb this news, she told me that we had to go to a different room. I mean, understandably, I was hysterical. We’re separated by curtains in a room full of other pregnant women. Obviously, it’s not a good scene. I couldn’t function, I couldn’t move. Then I obviously had to call Graham, I had to call him, how do you call your husband and tell him that your baby’s dead? I’ve somehow managed to get through to him. I just shrieked something down the phone and then threw my phone at whoever was sitting or standing next to me and told them they had to sort it out. 

    Miranda Markham  26:25  

    So they took me to this other room. I remember sitting there just crying and asking, are they sure ? They kept telling me they could check again. But the woman who checked me is the most senior. I don’t know what her title is, a senior kind of ultrasound technician in the hospital and that if she had not seen a heartbeat, it was very unlikely that it would be any different. I remember I just kept asking what do we do now? What do I do? What do I do?

    Miranda Markham  26:56  

    They wouldn’t answer me forever, they just wouldn’t tell me anything, they wouldn’t speak to me other than just to sort of try to calm me like they wanted Graham to be there first. In hindsight, that was the right thing to do, because I don’t think I would have heard, or I would have heard, but I wouldn’t have listened to anything they said.

    Miranda Markham  27:16  

    Anyway, eventually he arrived. We talked about the different options, it is exceedingly difficult, in that moment of extreme shock to try and make rational decisions about what to do next. They give you the sort of doctor’s perspective of you can have a C-section or you can be induced, and they give you a bunch of various sort of sexual risks and benefits of each. But ultimately, it’s up to you to decide. And that’s horrible, because all I wanted in that moment was for somebody to tell me what to do. So to force me to make decisions like that, I think was cruel and horrible. And equally, I think the worst thing was that even once we decided, it’s not like it could happen immediately, we had to just go home. 

    Miranda Markham  28:05  

    At this stage, maybe 10 o’clock in the morning. We just had to go home to a house that had a baby’s room completely set up and ready for a baby that was never going to use it. And just sit with that fact for an entire day and night, that was the worst. I think people often say to me how awful they think certain things would have been like the funeral or packing up his room, or all these different things. But I think for me, that was the worst, having to turn around and leave the hospital and go home, and just be there with that. With that feeling completely helpless and out of control, and not able to do anything to help myself or the baby that had died. It was the worst 30 hours of my entire life.

    Winter  29:01  

    Did you guys decide to be induced or to have the C-section then?

    Miranda Markham  29:07  

    I think that if they had told me that I could have had the C-section immediately, I would have done it. Because I couldn’t imagine the idea of what I’ve just described as having to go home and just sit with that fact that they said regardless of what option I chose, it would have to be the following day. They had explained that the induction would be safer for me. An easier recovery and the safest option should we want to try and have children in the future. That seems like a good enough reason to me. So that was what we decided despite the fact that the thought of it was utterly inconceivable. But based on those facts alone, that’s what we decided.

    Winter  29:53  

    When Graham finally came, got there and everything, was he also in shock? I just imagine him getting the news on the other side of the phone. Do you know how he reacted?

    Miranda Markham  30:09  

    It’s really hard for me to remember because I was so in my own head, but I remember him running in. He had my hospital bag, I remember the one that I had packed for going to the hospital if I was in labor. I don’t know if he brought that out of his own accord, or if they told him to. He just ran in and hugged me. I don’t know if he cried, I can’t remember. He’s a very sort of practical and rational person. I think that in that moment, in those, especially that momentum, the many moments to follow, he really sort of assumed the role of sort of managing all practical things. Being the clear headed one that is going to deal with the sort of administrative and necessary parts of this. Because I couldn’t, I was incapable. So he asked all the questions and he listened to the answers. He knew where we had to go and when, because I just didn’t have the capacity to listen.

    Winter  31:13  

    So you guys stayed at your home for the day and for the night, and then went back to the hospital the next morning?

    Miranda Markham  31:23  

    Yes.

    Winter  31:24  

    It was obviously going to only be you and Graham that were able to come in. 

    Miranda Markham  31:30  

    Yeah, I think that was the only time certainly in the early days where I saw Graham panic. When we woke up the next morning we’re just sort of forcing ourselves to eat breakfast together. I think he just, I don’t know. I just remember him panicking, and he called our friend and told him what had happened. I don’t actually know what he asked him for. Now, I’m saying this, but I think he just needed it. I don’t know, he just needed to tell someone and to let them know that if he fell apart and needed help that somebody could help us. 

    Miranda Markham  32:07  

    But somehow we managed to choke down breakfast and call ourselves an Uber. I remember the Uber driver asked if I was in labor, absolutely the worst journey to the hospital ever. The worst part is that Uber driver actually lives in our area. So I see that van multiple times a week parking near our flat, even today. Every time I just shudder to think that was the vehicle that drove us to the hospital that day. 

    Miranda Markham  32:39  

    Anyway, yeah, so we got there sometime in the morning. I remember they brought us to, I guess, like a delivery suite or delivery room. Then we waited forever. We needed some additional, some kind of tablet to start the labor. We waited for it for four hours. I remember thinking like, how can this not be the hospital’s number one priority? Like, we’re just supposed to sit in this room and just do nothing, for four hours? They kept apologizing and they kept coming back being like we’re looking for the pharmacist, we’ll get it soon. I just thought like why would you have me come in at 9am or 8am. 

    Miranda Markham  33:25  

    Anyway, so eventually, we got the tablet that was required. Very thankfully, things progressed really quickly from there. It sounds weird to say, but I was so thankful to just start the process. Because I felt so helpless before, at least now there was something I could actively be doing. It meant that we were moving forward from this extremely painful state of limbo. 

    Miranda Markham  33:29  

    Once things started, they were quick, the entire labor was only three and a half hours. There were no complications at all. There was, I mean, I don’t even remember it being particularly painful. Other than emotionally painful. I didn’t have an epidural. I remember they sort of thrust this pamphlet of pain relief options at me and sort of had me decide which one I wanted to go with. All I can remember reading on the pamphlet was all these sort of vanishingly small risks associated with the different options for pain relief. I remember thinking to myself, well, I can’t have an epidural because I’ll probably be paralyzed. Like anything that was on there. I was just convinced that the risk would happen. So I just said, I don’t want any of it. 

    Miranda Markham  34:09  

    I ended up I don’t even remember what it’s called, but taking some kind of pain relief. It’s administered through the cannula like the intravenously I guess. With gas and air, I don’t think it was tremendously effective because it was one of these like self administered ones that you have to use. I had to press a button preemptively to every contraction and it’s like you’re not even, I don’t know who can do this effectively. So I would say it virtually didn’t work. Whether it worked or not, who knows. 

    Miranda Markham  35:12  

    Anyway, thankfully, everything was fast. George was born. I mean, that’s another horrible moment is the silence that followed that. I mean, they just whisked him away so fast. I remember I didn’t even see him. I was facing away sort of on my knees on the bed. George came out, and they just– by the time I’d turned around, he was gone. It was like he didn’t exist. Now, in hindsight, Graham tells me that they asked if I wanted to see him. He says that I’d said, No. I have zero recollection of that conversation ever happening. I trusted that it did happen. I probably just don’t remember due to some cocktail of emotions and drugs. 

    Miranda Markham  35:58  

    So I suppose they were doing what they thought I wanted. But it’s very weird to give birth to a baby and turn around and there’s just nothing. Nothing there. So yeah, and that was kind of it. It was kind of anticlimactic after that. I didn’t have any significant tearing. I think they put too little stitches. Then I took a shower and went to another room to recover.

    Winter  36:23  

    So you really did not see George at all?

    Miranda Markham  36:26  

    No.

    Winter  36:26  

    Not that day?

    Miranda Markham  36:27  

    Not that day.

    Winter  36:28  

    Okay.

    Miranda Markham  36:32  

    After that they eventually introduced me. I think the same day to a woman named Sarah, who was our bereavement midwife. She was amazing. She continued to encourage me to see George even though I was convinced I never wanted to. Eventually, not on the day he was born, he was born on June 2, on the third. 

    Miranda Markham  36:59  

    We were still in the hospital, they basically said, we can stay as long as I wanted, even though there was no real medical reason for me to be there. I didn’t know where to go. We didn’t know where to, we felt like we couldn’t go back to the flat. So we just sort of stayed until we could formulate a plan.

    Miranda Markham  37:17  

    Anyway, Sarah continued to give us the option to see George and encouraged us to do it. Graham eventually went to see him first. That was extremely hard for him, really emotional. I think he felt like at that time that he was doing that for both of us. And that I would never see him and that he felt like he needed to go and say something to our son on behalf of both of us. Eventually, Sarah suggested that I might like to look at some photos that they had taken of George first and see how that felt. 

    Miranda Markham  37:50  

    Again, at first I said no, that I couldn’t do it. So then on the morning of the fourth of June, we were still at the hospital. I remember I started feeling a bit jealous that Graham had seen George and I hadn’t, which I thought was an odd emotion even at the time, because I kept asking what did he look like? Did he look like this? Did he have this shape of nose? What color was his hair? What does his hand look like? And he’s just, I don’t know Miranda. It wasn’t on the top of his mind to strip the baby down and look at his, every crevice of his body. 

    Miranda Markham  38:22  

    I remember feeling jealous that he got that opportunity and I didn’t. So when Sarah came back, I said, I did want to see the photos. So she brought them in for me. I looked at them. I remember immediately I thought my reaction might be that I’d be scared or horrified. That he would look like a baby that he’d look like some horrible version of a baby. I was completely just like, took my breath away, just to see him that he just looked like the perfect sleeping Angel. I wasn’t scared of him at all. I was actually the emotion that I remember having overwhelmingly was that I felt proud. I felt proud of him. So right away I said I wanted to see him. That I needed to see him. 

    Miranda Markham  39:25  

    Two days later, after he was born, I finally saw him. They brought him into my room. Graham left because he couldn’t he couldn’t see him again. They brought him in this little thing they called a cold cot. A horrible little refrigerator instead of a nice warm bed. He still looked perfect. Like he literally looks like he could just start moving at any point.

    Miranda Markham  39:54  

    I remember asking what he was wearing because it didn’t occur to us to bring clothes to the hospital for a baby who had died. But he was wearing a little baby outfit and a hat. She said that there’s a woman who knits things for babies that have died. So he was wearing one of those hats and this little outfit that was too big for him. So I just spent some time with him. I held his little hand and I talked to him.

    Miranda Markham  40:36  

    I don’t know, even now I look back and think that it just wasn’t enough. I’m so grateful that I saw him at all because there was a long period of time where I wasn’t going to. I know deeply now that would have been such a huge source of regret for him. One of my biggest regrets now is that I didn’t hold him. I couldn’t at the time, I just like it just seemed inconceivable to me. But I just keep reminding myself that I did. I did the best I could at the time. 

    Winter  41:08  

    Yeah. So you left three days later, after he was born? Is that right?

    Miranda Markham  41:17  

    Yeah. So I think we left on the morning of the fifth of June. Again, we didn’t feel like we could go back to the flat. But while we were in the hospital, they were really kind to us. They fed us really well. And they were really attentive. I had really low blood pressure, actually. I actually fainted and fell in the hospital, which was not right. If you were to have this conversation with Graham, he would recount that story as being one of the worst and serious moments for him. For me, I barely remember it. I do, however, remember the massive bruise I had on my head for the six following weeks. In fact, I would even maintain that that fall in the hospital hurt more than the birth is an absurd thing to say. 

    Miranda Markham  42:11  

    Anyway, we stayed there and they were very kind to us. While we were there, we basically formulated a plan that initially we would go to a hotel. This doesn’t sound like a tremendously large undertaking, except that you have to remember that this was in the peak of Coronavirus, lockdown, and only key workers were allowed to stay in hotels, otherwise, they were completely shut down. So a very kind friend of ours called a local hotel and explained our situation, basically begging them to give us a room. Very thankfully, they agreed. 

    Miranda Markham  42:49  

    I think that was a good thing for us to do, at least initially, because it afforded us a bit more time to just be in a neutral space. Away from all the reminders and everything in our flat and work out what we were going to do next. Just the way to shut away from the world for a little bit. So we stayed in that hotel for I think three days. I barely left the room. It’s funny now, it’s hard to remember what we did all day. I mean, we never turn the TV on. We barely left. I don’t know how we filled the days. But somehow we did. 

    Miranda Markham  43:31  

    We got through it and eventually made the plan to go to Edinburgh. My parents own a flat there. It’s normally a rental property, especially in the summertime, but again, because of COVID it was vacant. Nobody had been there for many, many months. Actually my parents were thrilled to be able to offer it to us and be just that somebody would finally be going there and checking on their place. 

    Miranda Markham  43:57  

    It did mean that we had to go back to the slot. We had to pack up some stuff. So we did so in the most sort of formulaic and sort of mission critical kind of way. I made a list. It was very rigid. I went in with the sole purpose of putting stuff in a bag and then to leave immediately. That’s what we did. Then we stayed in Edinburgh for two months. 

    Winter  44:19  

    Wow, that’s– Yeah. Did you and– I’m assuming you guys just took some time off. You were on maternity leave. 

    Miranda Markham  44:28  

    Yeah.

    Winter  44:29  

    Graham was able to take some time off I’m assuming too?

    Miranda Markham  44:31  

    Yeah, so I was already on maternity leave. So obviously there was no work obligation to do anything. By that point, we had communicated with sort of the main people what had happened. My team was included in that. Graham took a month off work. I don’t think it was really ever like an agreement. I think it was his boss at the time who basically just said, do whatever you need to do. 

    Miranda Markham  44:59  

    His full time job essentially became taking care of me. I was– I could– I didn’t– I couldn’t have taken care of myself. I would not have gotten out of bed, there is a 0% chance I would have done anything. I wouldn’t have eaten. It took me months to get my appetite back and enjoy food again. Eating was such a challenge. I made a goal for myself in the early days to eat breakfast before noon. That was my only day objective was to get out of bed. I didn’t even have to put clothes on or shower, just go and put food in my mouth. Even that would take me hours, hours and hours. Those were really hard days. 

    Winter  45:41  

    Yeah. When you guys were in the hospital, did they approach you about what you guys wanted to do with George’s body?

    Miranda Markham  45:50  

    Yes, they did. They very kindly talked us through the different options. I remember we continued to ask well, what do people normally do? Because there’s no rulebook for this. I think when you’re so blindsided as we were, you have no guideline. 

    Miranda Markham  46:15  

    I think for lots of families, religion often becomes something to lean on when the unexpected happens. There are very specific customs and traditions around what happens when someone dies. I think for us we’re not tremendously religious, or spiritual people, or we weren’t prior to George’s death. We had nobody in our lives, other than you know grandparents had died. That wasn’t really our responsibility to arrange any funerals or anything right? We had no idea what to do. Our families couldn’t really help us because they’re so far away, and with no option to get to us. 

    Miranda Markham  46:59  

    So we were told many, many times, we didn’t have to decide right away at any point. Again George, because stay at the hospital, and he would be well taken care of, and that we could decide when we decided. 

    Winter  47:16  

    Oh, okay. 

    Miranda Markham  47:17  

    I remember waking up in an absolute panic on so many occasions, just needing to know where George was. Where is he ? Who is taking care of him? Is someone looking after him? Calling the hospital and asking our bereavement midwife, if she could just tell me where he was at. Every time she would very kindly go and check and tell me that he was in the, whatever they call it mortuary or morgue, and that a really nice man named Simon was looking after him. It did provide me with a bit of comfort, whether or not Simon was actually looking after him or not, I don’t know. I just thought his little body is just locked away in some cold, dark place, and we’ve just left him there. It defies every instinct in your body to do. 

    Miranda Markham  48:14  

    Your body still reacts as if you’ve had a baby, it still thinks you have one. Mine thought I’d abandoned ours. It was really, really difficult. So for that reason, the easiest thing to do was not make a decision about what to do, because that felt very final. We didn’t want to do anything impulsive, because we didn’t want to regret it. So we took our time, and ultimately decided that we would have him cremated for the probably most practical reason. Which is we’re not sure that we will stay in London forever. If we bury our son there, and we leave the country, it’s like abandoning him all over again. I couldn’t do that. 

    Miranda Markham  49:02  

    So we decided to have cremated. Once we decided that we were given a date, that we could do the funeral. I didn’t actually know this, but you legally must hold a funeral. For anyone that dies, including–

    Winter  49:18  

    Oh!

    Miranda Markham  49:19  

    –a baby. It was some sort of legal requirement. I mean, I think we would have liked to anyway, but I’m probably paraphrasing that too, simply. I remember it being that we had to conduct some kind of funeral for George, which was fine. 

    Miranda Markham  49:34  

    So I think the sad thing was that nobody could attend. It’s not like we would have had a big congregation of friends and acquaintances, but I think it would have been nice for our families to be there. Unfortunately, given the fact that they’d be flying from all over Canada and the US. None of them can come because this was now July of 2020. 

    Miranda Markham  50:01  

    So we were given the option to do a live streaming thing of the funeral, which we both just felt was really sort of weird and trivialized the whole thing. So instead, what we did was, we arranged the funeral we picked songs and readings that were meaningful. We both wrote quite lengthy comments to say to George. The only other attendee at the funeral was Sarah, our bereavement midwife.

    Winter  50:32  

    Oh really?

    Miranda Markham  50:33  

    She is the only other person on planet Earth who met George. So we felt like that was appropriate. She offered to come, which I don’t know is her usual offer. I like to think that we were special, but maybe she makes that offer to everyone. I don’t know. But it was nice to have her there. So we did our little funeral, we had a 30 minute slot. That was that.

    Winter  51:03  

    Just at the hospital then?

    Miranda Markham  51:05  

    So it’s arranged through the hospital with the City of London cemetery and crematorium. So we didn’t have to pay for it. Which I’m sorry I don’t know it sounds awful to be talking about the practicalities of such a thing. But I know lots of people are concerned about how do you pay for a funeral? It was just part of what was offered, which, I mean, maybe I need to go and reflect on that and be more grateful for it. I think if financially that became a concern, that would have been another layer of challenge on an already very challenging situation. It was all sort of coordinated and paid for through I’m not really sure through who. Through the NHS, the National Health Service, and in collaboration with the City of London.

    Miranda Markham  51:52  

    The cemetery that we went to was beautiful. It was a beautiful, sunny, gorgeous summer day. This I mean, if it sounds awful to say, but the funeral was really nice. It was I think the absolute best thing we could have done for a send off for George. 

    Miranda Markham  52:12  

    My aunt had sent me and members of the family this storybook called wherever you are my love will find you. It’s a children’s book, but I think that it seemed very appropriate. As the final thing on the agenda for the funeral, I read the story to George. Because I always thought about reading stories to him as a child or boy. So it was just a nice way to end it. 

    Miranda Markham  52:41  

    Then afterwards, because it’s I mean, obviously it’s a city run thing. So there’s funerals right before one and after another. It just was sort of a conveyor belt of funerals. Which just sounds awful again, but it wasn’t. There were loads of people outside after who were all gathering for other people who have died, mostly much older people.

    Miranda Markham  53:03  

    When people are cremated, they put these little stands with their name on it in this area where you can come and lay flowers, but nobody told us that. So we didn’t have any flowers. So George’s little stand was just there. It said baby George Robert and nothing. Somebody had put this dried old flower on it from I think somebody else’s area. I just felt so guilty that we hadn’t brought flowers. Then this really lovely family that was next to us, who were sending off their grandmother Jean came and gave us this huge bouquet of white flowers. They told us that we could leave them for George.

    Miranda Markham  53:56  

    I just thought it was so nice, because I just couldn’t leave without his little area being there. So they also told us about Jean and said they were releasing balloons for her and they would release one for George too. So they tied it together with one and said it was for both of them. There was such a nice gesture from complete strangers. So that really stayed with us and felt like a really important way to end that day. 

    Miranda Markham  54:29  

    I think we both felt sort of a sense of closure after that. Because I mean George was born on June the 2nd and his funeral was the 31st of July. So I mean, this is a long time after. It took us a long time to just figure out what we wanted to do and then get it sorted. I did feel guilty about that. But I’m happy that we took time to do it right because I don’t think we have any regrets about his send off. I think it was the best we could do. 

    Winter  55:03  

    Yeah. Did they find anything conclusive about what had happened? Did you guys do an autopsy? Was that something? I’m not? Like I said, I’m not totally sure about the UK health system. So was that something that was offered? Or is it pretty typical? Tell me a little bit about that?

    Miranda Markham  55:22  

    Yeah. So along with everything I think they were very persistent in a kind way about all of our different options. Including having a postmortem or sort of autopsy for George. We didn’t need a lot of convincing. I think both Graham and I were very convinced from the very beginning that if there was a way to get answers and information we wanted it. I don’t know if I ever said this out loud. But I was fairly sure in my head before we even left the hospital that we would try for another baby. I needed to know that if there was anything wrong, that caused George to die, we needed to know about it. 

    Miranda Markham  56:07  

    So many, many weeks later, this is now sometime in mid August, they finally got the results of the postmortem. It was actually the same day that we were allowed to go pick up George’s ashes at the crematorium, which seems like an odd thing to do on the same day. But I remember we drove back to the crematorium, picked up George, and then drove to the hospital to do his post mortem review. I remember Graham and I parking the car. And I said to him, what should we do with George? And he looked at me, he’s like, we can’t leave him in the car. That’s just bad parenting. I was like how can you make jokes? How? So that’s how George ended up in my handbag, at his own postmortem. Honestly, it’s so terrible. But it’s also amusing, in a way. 

    Miranda Markham  57:07  

    So I carried him in my case, it was in a little box. And he sat in my handbag, so we brought him back to the hospital where he was born. He sat in the room with us with the obstetrician and Sarah, the bereavement midwife. We went through his whole post mortem and in great detail, they were very generous with their time. Ultimately, they told us that his cause of death was growth restriction as a result of my placenta, which was very small. So under fifth percentile. 

    Winter  57:40  

    Oh!

    Miranda Markham  57:40  

    So basically, it just failed to support him. I think that it’s odd to say that we feel grateful for that result. But I think it’s because we now know that loss families never get an answer, and it’s inconclusive. So for us to now know that this is the thing that happened, there is no reason to assume that it would ever happen again. But if it did, there are things that we can do to prevent it. 

    Miranda Markham  58:12  

    So what they would do for a subsequent pregnancy is more regular growth scans starting from 20 weeks. What baffles me is that we can literally see a baby growing inside of someone, but we can’t measure the size of the placenta. Apparently you can’t. I don’t know why. But what they can do is make sure that the baby is growing properly, and the right sort of rate of growth. Also I can be induced early. So basically what we know is that if history were to repeat itself, we know that the placenta was good enough until 39 weeks. So basically, I would get to full term, so 37 weeks, and they would induce me early. 

    Miranda Markham  58:54  

    I think for us that was a real comfort, because it sounds like this is not likely to happen again. But even if it did, history will repeat itself. So we and then of course alongside that, I mean, we absolutely grilled them on everything we wanted to know in terms of what if this had happened, would this have made a difference? I was particularly adamant about the missed appointments and had the 36 weeks appointment had happened would this have indicated that there was a problem. The response that I continue to get was that it may or may not have made a difference. It’s impossible to know, that’s a really hard thing to live with. Because I think in my mind, it definitely would have made a difference. 

    Miranda Markham  59:42  

    Even having spoken to third party Obstetricians in the aftermath of George’s death, a lot of them have said that based on what they see and all of my information, everything was done exactly as it should have been. Regardless of what hospital I was at in London. It likely would have been the same outcome. That’s also hard to hear. But it’s also a bit of a reassurance. I think there was a time where I held a lot of anger towards the NHS and to the hospital for letting me down and that they had failed. I think just to set the record straight, there was no negligence. I’m not claiming that they did anything negligent or wrong. I think they had to make changes given an unprecedented situation. It’s impossible to know if those changes contributed to George’s death. Personally, I believe that they did, but we will never know.

    Winter  1:00:36  

    How big was George when he was born?

    Miranda Markham  1:00:39  

    He was small, he was 5.9 pounds, so just under six pounds. It is interesting because I had a private scan at 36 weeks. 

    Winter  1:00:50  

    Oh, okay. 

    Miranda Markham  1:00:50  

    No, sorry, maybe slightly earlier, 34 weeks, because I was worried. With everything happening. I just thought it’d be good to go get a bit of reassurance and make sure he’s growing okay. At that stage everything was fine. He looked really good. They projected his birth weight would be seven and a half pounds. 

    Winter  1:01:07  

    Oh.

    Miranda Markham  1:01:09  

    So, you can clearly see that’s quite a shortfall. Obviously, at some point between 34 weeks and 39 weeks, his growth just plateaued, basically. Because it wasn’t being checked regularly, no one would have noticed. And because at 38 weeks, as far as they were concerned, he still fit within the range of what was normal. I’ll be it perhaps a bit small. It was nothing. It would have not raised any alarm bells for anyone. So, that’s frustrating. Because I think in my mind, had they been measuring me more regularly, they would have seen that graph had suddenly leveled off instead of increasing upwards. But as it was, I was only measured twice the entire pregnancy. 

    Winter  1:01:54  

    Right. Yeah, that would be frustrating. Miranda, thank you so much for sharing George’s birth story. I had one last question that I want to ask you. How did you guys choose the name George?

    Miranda Markham  1:02:06  

    Right. I came up with it I think when we were on our trip in Mauritius. I’d love to have the story that it was this family name and it has all this meaning. But ultimately, we wanted a boy’s name that was easy to pronounce, easy to spell. Could also translate reasonably well to other languages. My sister in law, husband is Spanish, my husband loves speaking French. So George is a name that kind of can work in all those languages. We also like that George is the patron saint of England; he’d be born in England, which is nice. It just sort of felt right. 

    Miranda Markham  1:02:49  

    His middle name Robert does have family significance. Robert is the name of my husband’s grandfather, who was a much beloved patriarch of the family. He lived to be 97 years old, and was an excellent member of the family. ‘m so grateful that I got to spend some time with him before he passed and got to get to know him. So we wanted to honor him and his legacy with the firstborn grandson of the family.

    Winter  1:03:23  

    That is wonderful. Thank you so much. That was very good to get to know George A little bit better.

    Miranda Markham  1:03:30  

    I’m very happy to talk about him. So thank you for asking me all those questions and giving me an opportunity to talk about George.

    Winter  1:03:38  

    Of course.

    Transcribed by https://otter.ai

    Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: stillbirth

    Mom Jess Talks About The Aftermath of Her Daughter’s Death of Fetal Hydrops

    February 11, 2022 by Winter

    Mom Jess is interviewed about the time after her daughter, Addelyn was born at 30 weeks and died shortly later due to a severe case of fetal hydrops, and what she did to heal, what helped (and didn’t help), and what she and her husband Patrick did for baby Addy’s memorial service.

    Watch here (YouTube):

    Listen here (podcast):


    Time Stamps:

    00:00 Welcome
    02:47 Grief shortly after Addy’s death
    06:54 At work
    12:11 Transitioning to a new home
    15:44 Her sister
    18:55 Memorial Service
    25:51 What has helped
    28:37 How Patrick and her relationship has worked
    35:17 What not to say

    You might appreciate these other episodes:

    • Watch/listen to Jess’s birth episode of daughter Addelyn: Click here
    • Watch/listen to Tiffany‘s birth episode of daughter Khyana’s: Click here

    Wanna help?

    • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
    • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
    • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.
    Baby Addy’s feet

    Full Transcription:

    Winter 0:00
    Welcome, welcome, everybody. Thank you so much for joining us here at Still A Part of Us. We are so grateful, grateful grateful to have Jess here with us to talk about her sweet Addy. This is a place where we talk about infant loss and stillbirth. So please be warned that we are going to be talking about a lot of things that could be possibly triggering. So keep yourself healthy and happy, Make sure that if you shouldn’t be listening to this, don’t listen to it.

    Winter 0:27
    Once again, thank you so much Jess for being on with us today. I so enjoyed hearing Addy’s story. You’re gonna cry people I’m just saying. I would recommend listening to that episode. It was beautiful. It was so hard to listen to you. But it was so good to hear about it. So welcome again, Jess. We are so happy to have you here today.

    Jess Hennessey 0:49
    Yeah, I’m so happy to be here.

    Winter 0:51
    For everybody that is joining us just on this episode of we’d love to– can you give me a little bit of a recap? Tell me who Addy was and when she was born and how long ago she was born and passed away?

    Jess Hennessey 1:03
    Absolutely. So my daughter, her name is Addelyn Renee, so we lovingly call her Addy. She was born October 8 of 2020 and passed away October 10 of 2020. As of this date that we’re recording this, it’s actually been six months to the day that she passed. So we’re bringing more value and remembrance to her life today by talking about her.

    Jess Hennessey 1:27
    She passed away from a couple of very rare conditions, late term pregnancy conditions that were not detected. She passed away when I was 30 weeks and three days pregnant. After giving birth, she had pretty severe hydrops non immune hydrops. As well as kind of figuring it out after she was born. She also had a pretty significant left heart defect in her chamber called hypoplastic left heart syndrome, as well as underdeveloped lungs that were not detected earlier in pregnancy. She was alive for 26 precious hours, and she passed away in our arms.

    Winter 2:06
    It’s quite the story. So I once again encourage you all to listen to that. It was that it was just wow, it was just powerful. So thank you so much for sharing that. So it’s been six months. That is still very fresh. All this sadness and grief. I’m wondering how that has been for you since Addy passed away. Because I know that you mentioned on the other episode that there was some anxiety and there was some anger. But yeah, tell me a little bit about how the first little bit was and how it’s been today.

    Jess Hennessey 2:47
    Yeah, six months. It feels like a lifetime ago and it feels like it’s just yesterday. I feel like I’m in that really interesting transitional phase that six months. Very early on, after she passed I would say I experienced a myriad of different feelings without any control over the feelings. So very acute sadness and very strong anxiety. Then also a lot of anger that came, and it came in waves, it manifested in a lot of different ways for me, right? So my anxiety would come almost irrationally in my mind and it would take me to a really deep dark place that I would never even think of. This was my fault she passed away, it was my fault. Or if I had not done that one thing and then having a lot of anxiety and the physical parts in anxiety which I’ve never experienced. So, not being able to breathe properly in my body. Just kind of breathing which is not good when you’re trying to function and have work and life and jobs.

    Jess Hennessey 3:47
    Then I would say that those feelings specifically the anger has, slowly I’ve been able to control it moreover the last six months. I’ve been able to feel like all of this is coming on. I need to remove myself from a situation or, almost I’m getting to the point now where I can tell myself, I want to feel these things, but I can’t do it right now. Right? Whether I’m in a conversation at work, or I’m on the phone with somebody who and they’re sharing something happy with me. I’m like, I just need to tone it down for a second. But those same feelings are very much there. I still specifically have a lot of anger that comes out often. It just is. The anger just is and I don’t know if it’ll ever go away, but it’s getting more of a control over it. At appropriate times and healthier ways to release that.

    Winter 4:37
    Yeah.

    Jess Hennessey 4:37
    Not just lashing out at people, or playing the blame game specifically with myself because I did that a lot. I was incredibly hard on myself. I still am, but yeah. So that’s how I’m feeling I would say today. It’s progressively getting better, but it’s never gonna go away.

    Winter 4:54
    Yeah, it doesn’t.

    Jess Hennessey 4:57
    You learn to live with it.

    Winter 4:58
    Yeah, you do. It just makes you kind of a new person. Yeah, I like the way you put it, though. You just said, I kind of have gotten to the point where you’re like, Okay, this is not the appropriate time for this feeling. I will acknowledge it at some point in time, but not right now, because I’m in the middle of doing this thing at work or whatever. So I kind of like that, because sometimes you do have to kind of figure out how to put them in check, but then also acknowledge them. Because when you don’t acknowledge them that that causes the problems, I think.

    Jess Hennessey 5:30
    I think the other feeling I’m having a lot is, which, at first, I think shortly after her passing, it didn’t hit me as hard. I know it was there, but missing her. Just missing her in all senses of the forms. Missing the what-ifs could have should have. Missing her physically. I mean, for me, I felt like my pregnancy was very much ripped from me. So I didn’t have an opportunity. Not in a sense, at least in my mind, that’s how it felt. So I didn’t get that closure of even being pregnant. So at times, I still just miss being pregnant. So all those missing her and that whole experience is still also really, I would say very prevalent right now.

    Winter 6:11
    Yeah.

    Jess Hennessey 6:11
    Six months post.

    Winter 6:12
    Yeah. Well, I was gonna say you were, I mean, you gave birth to her at week 30 weeks. 30 weeks and three days, I think if I’m not mistaken. So I mean, that’s a good 10 weeks right there that you were missing out on that time. To have a big belly and just enjoy that, that is kind of a nice time. You were a pregnancy unicorn. So of course, you would have enjoyed it. So you mentioned something that I want to bring up. So after you had Addy, were you able to because you are working, you had just graduated with your master’s degree? Were you able to take some time off from work? How did that look for you?

    Jess Hennessey 6:54
    So I took three weeks off to work, which sounds like not yet not a lot of time. It wasn’t, I had every opportunity to take much more time off. I am an HR manager. So I knew I had all these different protected rights and there was state disability available. For me in my mental state, we were still very much in the midst of COVID. So I was able to work remotely. So I needed to feel normal, I needed for my mental health to have something to get up every day and to feel like I’ve accomplished something, and I’m still me. I’m still this person without Addy, even though she’s obviously changed every part of me, but I still have to just feel normal.

    Jess Hennessey 7:39
    So I actually chose to go back to work three weeks after and it was very minor work. It was not like a full scope job. My company at the time was incredibly gracious and allowed me to take on things as I felt. I didn’t speak to anybody. So I did a lot of work where it was, dealing with data or doing payroll, so still being an HR function, but not directly in the sight of people. They literally did not have very much communication about me. All of a sudden I was there and then I was gone. So not a lot of people knew about what had happened. They wanted to be really gentle with that, that communication. So I went back two or three weeks post her passing away in a remote function. Then I think after five weeks, I started going back into the office. That was right when things kind of ended in 2020. I would do a little bit going in person and seeing people about five weeks after but yeah, three weeks was when I started to go back to work.

    Winter 8:37
    Wow. Did people know at work that you were pregnant?

    Jess Hennessey 8:43
    Yes. I was the HR manager. So I was a very big part of the organization. I had a lot of visibility on a lot of different team members across the organization. Even during COVID I mean, I had planned the day when she was born and I had had my OB appointment. Then things kind of happened the way that they did. I was dressed up and I was ready to go to the office. So yeah, actually, I was on the phone with a manager saying, Hey, I’ll be in the office in 30 minutes, let me just get my quick appointment done and get to Starbucks. I’ll be there. So people were very much aware of my pregnancy and I was getting very big at that time. So people knew when she was due and everything. Yep.

    Winter 9:22
    Yeah. How did that go like when you did come back? Because I just remember some of the experiences I had when I came back and thankfully my manager was so good about spreading information, and just letting people know what had happened. So people were so gentle with me, which I was so grateful for.

    Jess Hennessey 9:43
    I think some of the communication came directly from me. So I had the other interesting part of me returning to work is I actually the day before she was born, notified my executive team that I was leaving the company we had bought a house in a different state. I basically gave them a four month resignation notice and said after she’s born, I just don’t plan to come back. So let’s plan for training my replacement. So, I think some of that communication came directly from me. I think some of it was just hearsay. I never truly stated exactly what happened. Besides that I was pregnant. She was very sick. Now she’s not here anymore.

    Winter 10:28
    Yeah.

    Jess Hennessey 10:29
    I can’t wait to share some of this with them. Because I think all of them truly care about me and have the best intentions. They were so gracious to me at that time. I want them to hear the story now, so they can hopefully get to and then partake, because I’m still very close to a lot of them. So yeah. I just kind of wanted to put myself back to work and focus on work, and focus on feeling any type of normalcy that I could grasp. Because it was such a non normal situation.

    Winter 10:57
    Yeah, that routine really helps to kind of reset some stuff. Because Oh, you can sit and wallow. You could easily sit and wallow for a while, and it is not a good place to be so.

    Jess Hennessey 11:13
    Well I think it was kind of strategic for me and my husband. My husband and I. Because we were very fortunate that we partly I think because I work in HR, and I know how the laws are applied. We were moving in a couple months, right? We both gave notices, we had planned to have her and now she wasn’t here. But we still had a house that we bought. We had a new life that we were going to start because of her that was due because of her. So we ended up going back to work so quickly as well, because we wanted to bank up that state leave.

    Winter 11:44
    Yeah.

    Jess Hennessey 11:44
    Once we moved to our new home in California, and we did. We both got multiple months off to just finally breathe, and we got it paid through the State. It was all medically certified. So part of us also, I felt like let’s get back to work. Let’s finish out this chapter with our dignity and our heads held high. Then we will come to California in our new home and continue to feel those feelings and grieve. We got to have that time.

    Winter 12:11
    Wow, that is so lucky. I just like yeah, that was great that you’re able to do that. I mean, once again, just to have a little routine, but then also to kind of plan being able to spend that time together. I think that’s great. Oh, that’s really good. Okay, so now that you guys are in your new home then. How has that been? I was gonna say that probably was a little bit of a reset too. Because there’s trauma, right? The trauma that was kind of associated with a different area, and then coming to California, and being in a completely different area. Starting a new I guess. How’s that felt?

    Jess Hennessey 12:53
    No, it’s one of the things that you and I spoke about a lot in the birth story. There were these little moments of things that are not so crappy. In a really crappy situation. Having a house that we already had bought. We were just waiting to close. I mean, it felt like this new chapter and this new life. We were able to not start over start fresh, necessarily, because of what had happened, but we got to basically rework some of those. Trying to come up with, we’re trying to, I guess, in our mind, gain a little bit of control about the next chapter and what that looks like. If that makes sense. So, we’re going to be able to start new jobs. Where necessarily, I could look, that gives me a lot of anxiety, because I now have to start over and that’s okay. But also I get to start over. No one really knows some of the history and some of that sadness. They didn’t have to live that through with me.

    Jess Hennessey 13:52
    So that’s kind of a nice starting point. We were able to get our puppy and that was a nice kind of starting point to have something to pour into love. Yeah, it has been really refreshing. We’re so close to my family. I live a mile from my sister who was incredibly important through all of Addy’s birth and one of my best friends, and she’s having her first baby. So I’m feeling like it’s all just really good stuff. It’s the good and it’s not a really crappy situation.

    Winter 14:20
    Yeah, yeah. That’s a great way of putting it.

    Jess Hennessey 14:24
    Yes, it’s been great. It’s been really great for my mental health. Because I am able to, especially the first month I was able to pour myself into unpacking. It was very difficult. I think we brought all Addy’s things with us. So we have this beautiful nursery that’s completely not unpacked and still boxed up. But I love going in there. I love just being able to sit on the floor and say, I’m gonna use this someday. And all of her things are there and I can’t wait to see how that looks. We bought this house to build a family and that’s going to happen, it’s just not today. So I think that first month was very therapeutic to have unpacking and putting things in their place saying, this is how it is today. I can’t wait to see the day where it gets to change. We expected to have a newborn in this house, but we will someday again, God willing so.

    Winter 15:12
    Yeah, yeah. That is so interesting. That is kind of how it happened. Like, yeah, maybe some blessings there. You did mention that your sister is pregnant. When I had heard that, that actually brought up some things for me because for a while there I did not want to go to any baby showers. Like, I’ll send a gift, but I’m not going to go to a baby shower. Do you know what I’m saying? So I’m wondering how I mean, cause I know you and your sister are so close? How is that playing out for you?

    Jess Hennessey 15:45
    My sister specifically and others– I have a lot of incredible family members who just had babies, or they’re currently pregnant. It was a very interesting feeling of being so incredibly happy for them. So much joy in and you’re living through that with them. While also feeling complete devastation, and sadness and heartbreak for yourself. That is a balance that I’m really feeling absolutely the last six months. I think I feel it the most with my sister.

    Jess Hennessey 16:14
    I had a co-worker who actually was a week behind me and my pregnancy, and she had a daughter. Her daughter is perfectly healthy. She’s here. That was a really difficult milestone. One of my other family members, my aunt, who had her first baby, and she was 12 weeks behind Addy. She also had a daughter, and she’s perfectly healthy. I have so much joy to give to them. Because I love being pregnant. I love pregnancy. It’s incredible. Also feeling so sad.

    Jess Hennessey 16:14
    I think my sister and I luckily, we’re very open with each other. Very communicative. There’s been points in the last few– She’s 20 weeks, actually, as of last Wednesday, and she’s having a little boy. There were parts where I would say I don’t feel connected to you. That was absolutely because I was not wanting to open up, or tell her how I was feeling either. So yeah, it’s been a really interesting balance. But being able to identify it and being able to say let’s work through it. I think it has been key for me, because they also want to talk about it with me, right? It’s not like she just disappeared either. She’s part of now their story and their babies stories. They’ll know about it, too. It’s been a really interesting balancing act, especially with my sister. But luckily, we are very close. We talk about things. She wants to talk about Addy still, and she was very much part of her birth story.

    Winter 17:32
    Oh yeah, she was so present. I just love the fact that she was able to be there in times when you were physically not able to be there. So I think that’s really good. Just kind of keeping that communication open. Then yeah, acknowledging that. It’s not going to be easy to be totally happy about things. But I love that you are, you have such great love to give to those other families. Those other little babies that have come along, or will come along.

    Jess Hennessey 18:03
    I feel like I have more love to give because I’m trying to provide more value to Addy’s life through loving others. I think that’s a perfect way of putting it.

    Winter 18:11
    Yeah, I love it.

    Jess Hennessey 18:15
    Yes.

    Winter 18:15
    That’s so great. So, tell me what have you done? I know that this is actually kind of a thing that people look forward to listening to or hearing about. I’m so excited that we have a videos portion now. Are there things that you have done that you have physically, like in any jewelry or momentos? Or stuffed animals or anything that you have to help you remember Addy? I mean, it’s not like you’re gonna forget Addy. But A lot of these things kind of show up and they help. I think having something physical helps. So tell me if there’s been anything that you, or Patrick have used to kind of have Addy around.

    Jess Hennessey 18:55
    Yeah, absolutely. Well, and one thing too, that we’ll touch on is her memorial service, because that has a lot of physical things to tie to that specifically. Just things that I have around me at all times. So I have a teddy bear that my sister gave to me. Actually it sparked a good friend of mine who was one of my guardian angels through this process. She’s lost a few early miscarriage babies and it’s awful. She told me one day, we also work together. I told her I’m like, I’m not sleeping anymore, partly anxiety and trauma and all these things. Very normal! She said you also miss her. It’s almost like you need something to cuddle. You miss her presence and my sister went and found this amazing company who has teddy bears. They actually make them the length and the weight of the baby who passed away. So this is my little Addy bear. My Addy bear weighs five pounds one ounce, which is what her weight was and the bear is also 15 inches long, which is how long she was.

    Winter 19:57
    That is cool.

    Jess Hennessey 19:58
    So this has been a huge Support for me, I cuddle it often, it brings me just a lot of joy. Sometimes it’s difficult. Sometimes I definitely cry my eyes out. I’m like, give me my teddy bear because I get angry. It’s been a vessel of just helpfulness for me.

    Jess Hennessey 20:15
    Then I also have some necklaces. I try to wear one piece of jewelry that reminds me of her every day. Currently, because it feels like some of my strength a little bit like in one of the pieces might take away. We’ll talk about it further. But it’s just like it’s, it’s empowering to go through the absolute worst possible thing you can imagine in your life and being on the other side. She’s a vessel for that. So I have a necklace on right now that says her name Addelyn Renee. Then I have a couple of other necklaces and some earrings that my family members have gifted me. With her birthstone, or somebody, a dear friend of ours gave me a balloon, which is part of her memorial service. So it’s a necklace with a balloon on it. Those are things I tried to wear at least a piece a day. So that when I feel that anxiety, or those feelings that are really difficult to overcome, I’m able to hopefully use that as a weapon of strength in my mind at least without words.

    Winter 21:11
    I love that! A weapon of strength. Yeah, because some days are just like, I just can’t, I cannot. I think that’s so cool. Yeah, I know I was like, yeah, I like that a lot.

    Jess Hennessey 21:22
    I have a lot. I use those a lot just when I’m channeling her feeling like I need comfort. I used to have those two things often.

    Winter 21:30
    That’s great. Tell me about your memorial service. Because we actually didn’t get into that too much in the first story. We talked about what you guys did after, but I didn’t even ask about the memorial service. I apologize.

    Jess Hennessey 21:40
    No, that’s okay. It was a really special event. I thought of it at three in the morning, when I was having an anxiety attack and thinking, I want to do something that celebrates her. Also, we were in the middle of COVID.

    Winter 21:55
    Right.

    Jess Hennessey 21:56
    There were a lot of things with limitations that we had. So many of my family and friends had wanted to provide support. So we actually have a really amazing pub and brewery right down where we lived in Washington State. They were just opening up that they had an area and event space for private parties. So you could basically book it out for the night and you can have a certain amount of people. So we decided to book it out and invite only our immediate family. Then we decided to have a Facebook Live balloon release for a celebration of life. We had picked out balloons that said forever in our hearts. They were biodegradable. So the environmentalist in me would not feel guilty.

    Winter 21:56
    Good job!

    Jess Hennessey 21:56
    We actually had all of our family and friends purchase the balloons prior to the event. Then we set a time. I had all of our family and friends across the entire country film them releasing a balloon and I had a lot of people actually put notes in the balloons, like I wrote a note to her and let that go. Multiple people just would write these notes or write little things on the balloons little things to Addy. At the same time, we all let them go and we all recorded it. We did it on the beach and next to this pub. Those are things I will forever cherish.

    Jess Hennessey 23:10
    Every year now I have more of those balloons, and I will order more. Every year we’re going to go. They were white. We will release this white balloon or forever in our hearts every year on her birthday. Anybody who wants to participate. Our family and friends, which I know they will, will remember her every year. So.

    Winter 23:26
    That is so cool. I love that so much. What a way to support and then also just kind of the remembrance. That is so great.

    Jess Hennessey 23:38
    She was born in October too.

    Winter 23:40
    Yeah.

    Jess Hennessey 23:40
    Which is crazy, which is of course, which I didn’t even know the significance of that. So I think it’s just going to be every October, it’s just going to be something to hold on to and to celebrate.

    Winter 23:50
    Yeah.

    Jess Hennessey 23:51
    Yeah.

    Winter 23:52
    Yeah, pregnancy and infant loss Awareness Month. That was–yeah. That’s perfect. Actually, I want to see a video of that now. Like, well, you’ll you I’m gonna ask you to send me that video because I just want to see because I bet it was cool.

    Jess Hennessey 24:06
    I have like 25 of them.

    Winter 24:08
    Oh I’m sure.

    Jess Hennessey 24:09
    I posted them to this Facebook group on the event page. So I can always go and look back. So many of my incredible family and friends all participated and they uploaded their videos. It just felt so special, especially during COVID because we all would have been together if we could. So I wanted to keep my family and friends safe, but we were able to have the immediate family on the beach with us as we released them.

    Jess Hennessey 24:32
    We actually did it a month to the day she was born. So we did it on November 8th. So it was kind of at that point I’d healed up from my C-section pretty well. I was able to be more– I could move around more and I was walking again. Well I mean I was walking after my C-section. Really like feeling right, more strength with my own body. I dealt a lot with body shaming issues after she was born. So with myself again blaming my body didn’t do its job and hating looking at the scar from the C-section. All of those things too. So it felt really empowering to be able to walk on that beach and release that for her.

    Winter 25:08
    Yeah, but that’s so great. I was thinking, like, Oh, they didn’t have a service or a memorial. But you did, you just thought about it in the middle of the night, because you wanted to honor her. I think that’s so great. What a great idea. What a beautiful idea.

    Jess Hennessey 25:25
    Thank you, and hopefully others are able to take away from that. It doesn’t have to be essentially during COVID and even post COVID. I know we’re so close, or I can feel it, we’re getting there. But honoring your baby even if miles away from each other. Right? The other thing is family in Kansas and family who were in Washington, DC and Alaska. We all got to do this together for her. So that was really special.

    Winter 25:51
    Yeah, that is really special. I think that’s a cool idea. I was like, I kind of want to try something like. Let’s just jump back really fast. I do want to cover something that it kind of ends up being a little bit of a recurring theme, actually. You mentioned, there was some body shaming for yourself. Feeling like your body had failed your baby, basically? How are you? I guess, how are you confronting that? How are you dealing with that? Are you seeing a therapist? Tell me some of your thoughts that you’re doing to try and combat that? I guess.

    Jess Hennessey 26:29
    I am seeing– Well currently as needed, but was very heavily seeing a therapist, both for myself individually. Also with my husband. So we did marriage counseling. That was volunteer. Like we wanted to do that.

    Winter 26:43
    Right. Yes.

    Jess Hennessey 26:43
    Because I refuse to let something like this destroy our marriage. I love you too much. She was created out of love and purity. So we did do a lot of therapy. That was one of the things that came up for me. I was fully anticipating a postpartum body. Like that’s almost like I was excited to be proud, like, I produced this incredible being. Then to have her not here with me, and to still have all of the postpartum stuff happen. Suppressing the milk and big scar from the C-section, it was incredibly difficult it still is.Once I was able to get some of my physical health back and being able to do longer walks. Doing some hiit workouts that really helped, because then I felt like I still have that strength.

    Jess Hennessey 27:28
    One of the things that really resonated with me, and I can’t share this enough is with Addy specifically. I know everyone’s stories are different. But she was very sick for a long time and it wasn’t detected. My doctor said your body is what kept her alive. Like you did that, right. So that was for me, I’ve been trying to embrace that more of I was able to carry her for the full 30 weeks. Opposed to maybe a lot of people with the same condition can only carry for 16 to 20 weeks, because they find out and the babies are sick.

    Winter 28:04
    Right.

    Jess Hennessey 28:04
    So she said, that’s a true reflection of how strong your body was. So I’m just trying to use that moving forward. Especially if I go down that tunnel of my body’s not strong enough. I can’t know all these things. I don’t want to be scared to get pregnant again. I could go down a very deep path. So I’m trying to look at it more of like, no, my body was strong enough to carry her for that long. To keep her here as long as I possibly could. So I’ve been using that tool a lot. That was something that my doctor said and my therapist said. You should really hone in on that piece because that’s really powerful.

    Winter 28:37
    Yeah, just a little bit of reframing there. Yeah, cause that’s true. You mentioned that they usually detected it between 13 to 17 weeks, I think. By then it’s I mean, the baby might have already passed away. Your body was keeping her alive. I think that is a great way to think about it and reframe it.

    Jess Hennessey 28:57
    Yeah.

    Winter 28:58
    Yeah. That’s regardless, it’s still hard. So you, you guys did go to therapy, you have gone to therapy. You have gone together as a couple. How has Patrick your husband dealt with the grief? This is also another recurring theme is that it seems like everybody says, Yeah, my spouse grieves way differently than I do. And it’s surprising. So I’m assuming it’s the same way for you guys.

    Jess Hennessey 29:24
    Yes, he does. He has grieved very differently. I think the thing that I’m really proud of us and we’ve been together almost 10 years. She was our first baby and very planned, very, very planned, baby. We both just looked at each other and we said we will not let this destroy us. We will do whatever it takes for the other person to make sure that person feels supported through this process. His grief form has been very quiet. He wants to not not move on because you don’t move on, but to move forward.

    Jess Hennessey 29:57
    The move to California and the puppy all those things. They were just aided for him. For me, I keep getting stuck back in certain periods of time. So one of the things that we have to continue working on and we are working on all the time is communicating about that. I’m not saying I want to talk to you for hours and hours. That’s why I have this fantastic community, but just hey today’s not a good day. I’m really having a bad day. You know why, obviously, you lived it with me. I think we’ve done a really great job of that.

    Jess Hennessey 30:23
    One thing I feel really guilty of, is with some of those feelings as both parties, one of the things that I brought up is, I have had a lot of anger. That’s something that is new for me. I’ve never been an angry person. But I will have days where I just get so stressed and immediately just lash out, or I get so sad. Then that turns into anger and he is the person I live with. He’s the one closest proximity and I feel so bad for him sometimes. But he manages a lot of that lashing and that’s not fair to him. So that’s another thing that we’re also working on. Which is a direct result from what we went through. But I think us going to therapy and just saying we’re on the same grounds, we’re just dealing maybe with some of the other intricacies of that a little differently. But having the same platform has been key for us and how we’ve grieved. Because yeah, we both agreed very differently.

    Jess Hennessey 31:15
    Yeah. Oh I like that. Acknowledging that he has kind of been the brunt of some of the things that he might be feeling. But then just being able to say thanks for sticking with me. Yeah, that’s–

    Jess Hennessey 31:30
    Oh he has. He’s now turning into six– Now we’ve been managing that for six months. It’s to the point where he can pull me out of it, he’ll look at me, like, Jess you’re doing that thing again. I know you don’t want to do that, but you’re doing that thing. I’m like, you’re right, and he’ll pull me out of it now. So it’s I think, gonna forever morph and change. It’s made our marriage stronger. When you go through a trauma like that. I just said I refuse to let this destroy us. Everyday is building on our marriage and the love that we have. This next chapter, so.

    Winter 32:02
    Yeah, it is so taxing on– it is stressing on a marriage. So it’s good to hear that you guys are working on it actively?

    Jess Hennessey 32:12
    Yes.

    Winter 32:13
    Yes.

    Jess Hennessey 32:13
    Yes. It’s actively working on it daily. It’s so easy. Yes. Because it is I can’t I mean, there was I mean, there were days after she passed where I didn’t want to talk to anybody. I just wanted to be by myself and you could easily go to that place. I still can, it is an active effort for me to bring in those I love, or to let people ask me about Addy. Because I could easily just go into this one. He’s my closest partner, my best friend. He’s right here living it with me and I could still isolate him too. That’s not what I want to do.

    Winter 32:13
    Yeah. Yeah. Yes. That’s just kind of realizing he’s part of this. He went through this too. So giving a little grace to our spouses, right, our partners, and all this too.

    Jess Hennessey 32:46
    Yes.

    Winter 33:02
    Okay. So tell me, you pointed out so many awesome things that people did for you in the birth story. I like, namely, your sister, your sister sounds awesome. She went above and beyond. I’m wondering if there were other things that she did, or anybody else that did. Or even said after Addy passed away that really stood out to you that helped. We want to offer ideas, I guess, for others who may be looking to help somebody that has lost a child. So what things stood out to you?

    Jess Hennessey 33:37
    Absolutely. So what really stood out was how close colleagues or friends would say, I don’t know what to say, there is nothing to say. But let me do this act for you. So it would be bringing a sandwich or, here’s a bottle of wine or, here’s just a socially distanced hug. They’re like, I can’t tell you anything, I can’t say anything to make this better, or for it to go away. It just is. I just want you to know that I’m here to support you. So I had a couple of close friends do that.

    Jess Hennessey 34:08
    I had a couple of close friends. For me, after the C-Section, I wanted to get back to being active because it was kind of that control thing with my body. I wanted to feel like I had some sense of control. I had friends just say, look, can I just walk with you? We don’t have to talk, can I just go on a walk with you. It was great for the friend and great for me because I needed it. I should have had a chaperone anyway, walking after a C-section. So that was really, really gracious of them.

    Jess Hennessey 34:34
    I think to just a few folks, mainly people I worked with, again, kind of in that sensitive environment, we just text me. Here’s a heart. Don’t say anything but a heart. That was perfect. It was so helpful to just acknowledge that there was presidence outside of the situation of people who truly cared. They didn’t have to say anything and there was nothing right to say there isn’t there still isn’t anything right to say.

    Winter 34:56
    Yeah.

    Jess Hennessey 34:56
    So I think just small acts, whether it was bringing– I really wanted Jimmy Johns while I was pregnant and I didn’t have it. So bringing me a Jimmy John’s sandwich, or going on a walk with me. Because that was the only thing that let me feel human again during that time period after all of that happened. So those were really great recommendations that I’d love to share for others.

    Winter 35:17
    Yeah, that is also I will say the small things make the biggest impact I feel like. So that’s cool that you’re had a lot of support through this. Okay, well, on the flip side, then I want to know if there was anything that you would maybe just recommend people not say, or not mention? After somebody lost a child, because I know that everybody has, it’s different for everybody. But I’m curious to know, if there was something that really kind of rubbed you the wrong way. Don’t call anybody out.

    Jess Hennessey 35:52
    I will say I want to say this because I absolutely was guilty of saying this to others before I went through something this traumatic was, everything happens for a reason. That to me, I read Megan devisor, I guess I listened to her audiobook, it’s okay not to be okay. That was another gift. Somebody just sent me a book. They’re like, just when you have some time to read this, but it ended up being transformational. In her book she talks about kind of those actions and the intent is usually absolutely not negative. But sometimes people, when they go through trauma, you just don’t know how to react, or your first reaction is just an affirmation.

    Jess Hennessey 36:31
    That specific one really was difficult for me was everything happens for a reason. So you’re saying that she was made and was perfect and she died? That’s okay? Or that there’s a reason for that? Do I believe that there’s a reason for how I can make her life valuable and provide remembrance every day and make my life better? Because of her? Absolutely. Hearing that? Oh, well, everything happens for a reason. That was really, it’s still difficult to hear, because I’m like, she’s a perfect young, innocent baby. How is that? So, that one specifically for me? I know, there’s other affirmations as well, like, Oh there’s a plan for everything. I would like to believe that events have transformed me and we’ll continue to do so. Which is just again, providing value and remembrance to her life. But I mean, her dying like I don’t think there should I don’t know just that one for me is really difficult.

    Winter 37:33
    Yeah, yeah, it’s because you’re just like, what? No, yeah.

    Jess Hennessey 37:39
    I know, they don’t mean it to be ill will.

    Winter 37:41
    No, no.

    Jess Hennessey 37:42
    No, no, no. I know that it’s just that one for me was really difficult. Especially in a time when you don’t feel like you’re grasping onto whatever you can to feel normal, or to feel okay, and to feel some sense of happiness. Then to hear like, Oh, no, no, you’re supposed to go through this. Again, I know, that’s not that but, it’ll happen, and you’ll find out why later. That one to me was–

    Winter 38:04
    Yeah, cause you’re just like, really, no, yeah. I have issues with those. Both of those platitudes as well. So, like you said, you are trying to bring value in remembrance of her. Yeah, you just feel like so I was meant to lose her. Yeah it just does not sit so well. So. Yeah.

    Jess Hennessey 38:27
    So that one was really difficult to sit with. And I heard it quite a bit. And it continued. Part of me wanted to be brave, and just tell them hey I know you mean this in the best way possible, but this is how it’s perceived for me right now. Right? I never did, because they’re coming from a place of love and care. But yeah, be really gentle with that after somebody has had a significant loss like that.

    Winter 38:49
    Yeah. Have you had any kind of a-ha moments or any realizations about this grief journey? About grief in general about you, yourself? Yeah. Tell me, tell me if you’ve realized anything?

    Jess Hennessey 39:05
    Yes. So I would say this realization came about, I would say four months, post her passing. When I think about the worst thing that could have happened when getting pregnant and feeling that joy, the worst thing in my mind that could have happened is that I would lose a child and in life losing a child. That happened, I did. I lost a child and all these different things happened, of course. Intertwined with that, but that’s the absolute in my whole life, what now presently, in the future, what could be the worst thing is losing a baby. I faced the worst absolute thing you could face, in my mind, at least for me as a person, everything moving forward. Now I’m living my life with the sense of fearlessness because I’ve already lived through the worst thing possible.

    Jess Hennessey 39:55
    That feeling and I do believe that this was a gift from Addy. In some sense, I do that. Everything else, it’s like, Hey, I didn’t get that job or that interview didn’t go well, or, hey, we can’t afford that really nice car that we’ve been looking forward to. Or we have to sell our things because one of us lost their jobs, or there’s just so many things that it doesn’t matter. Like, you face the worst thing that could possibly happen. There’s this sense of fearlessness that I’ve been able to really hone during this grieving period, and will continue to, and I think it’s a gift from her. That feeling of, I used to be so attached to outcomes, and not such a planner. You can’t plan what happened, and no one can plan to lose a baby. I’m really proud of myself for being on the other side, six months later, to say, I miss her, and I love her. She gave me this gift of fearlessness, because I lost her. So that would be a-ha moment for me. She’s changed my life.

    Winter 41:01
    I had chills from that. That Is so beautiful, that she’s given you this really different perspective. Just realizing that it’ll be fine. You’ve gone through the worst of it. What a tribute to her, actually, your life will be attributed to her. So is there any last piece of advice or anything else you’d like to share with us today? About Addy about anything that’s helped you anything that we haven’t covered that I’m sure I missed?

    Jess Hennessey 41:37
    No, I would. So I would just say as a lasting thought, people’s lives continue to move forward. Even if they were to those immediate people during that acute period, or they were there, and they’re not. It’s not like their support has gone, but life moves forward. They’ve got things in their life that are moving forward. So finding little things to remember your child by and one of the things that I’m doing to honor Addy. My husband and I are doing this new house, we currently have a completely dirt backyard. So we’re getting to transform that and spend way too much money on a backyard. We’re actually making a garden for Addy. One of the things that somebody gifted us with a bench plate, and it has her name and her date of birth and death. We are going to create a garden.

    Jess Hennessey 42:20
    I always associated white and pink flowers, any kind of flowers with her being a little princess. We’re going to make a garden for her with only white and pink flowers. That’s something that every day I get to go and I get to love on it, and I get to care for it. It’s going to provide me with daily remembrance. When things bloom that to me is one thing that we’re doing, but that I cannot wait. We’re close, just out of money on a backyard, but we’re very close. That’ll be the first project that we get done. So yeah, that would be my lasting thought is whatever that looks like in your life and something to take care of daily. It’s for them because they would be here normally to take care of for you. I hope that she would have been here everyday to take care of and she’s not.

    Winter 43:03
    Yeah. Jess, thank you. That was beautiful. I love that idea of just having something daily to take care of and then remember you’re your child by.

    Transcribed by https://otter.ai

    Filed Under: advice, early neonatal infant death (<7 days), infant death, podcast episode Tagged With: infant loss

    Mom Jess: C-Section Birth and Death of Our Baby Addelyn from Fetal Hydrops During COVID-19 Pandemic

    February 10, 2022 by Winter

    Mom Jess recounts the birth story of her daughter Addy, from their planned pregnancy during the pandemic and her pregnancy being perfect until around 30 weeks. Jess tells about how she became more swollen and gained 22 lbs in 2 weeks, and one of her non-stress tests came back abnormal. They discovered that Addy had a severe case of hydrops, where there was a lot of fluid buildup in her body, and Jess also had developed Mirror Syndrome (mimics preeclampsia), where as Addy became sicker, so did Jess.

    Jess and her husband Patrick decide on a Caesarean section, since Jess was getting so sick, so Addy was born on October 8, 2020. Addy was later diagnosed with hypoplastic left heart syndrome, where the left side of her heart stopped developing, as well as underdeveloped lungs, from either being too early or from the hydrops. Addelyn deteriorated within 8 hours of her birth and passed away peacefully, surrounded by her parents.

    Watch here (YouTube):

    Listen here (podcast):


    Time Stamps:

    00:00 Addelyn Renee
    01:49 Introduction of Jess and Patrick
    04:38 Pregnancy
    08:28 Anatomy Scan
    15:37 30-Week Appointment
    24:29 Mirror Syndrome
    30:50 C-section
    41:58 Saying goodbye
    49:58 Spending time with Addy after her passing
    54:04 Discharge and home
    01:03:51 Autopsy

    You might appreciate these other episodes:

    • Watch/listen to Jess’s advice episode of daughter Addelyn: Click here
    • Watch/listen to Tiffany‘s birth episode of daughter Khyana’s: Click here

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    • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
    • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
    • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.
    Baby Addelyn’s hand

    Full Transcription:

    C-Section Birth and Death of Our Baby Addelyn from Fetal Hydrops During COVID-19 Pandemic

    Jess Hennessey 0:00
    My daughter’s name is Addelyn Renee and we lovingly nicknamed her Addy. So Addy or Addelyn Renee.

    Jess Hennessey 0:03
    I, you know, remember so clearly about her is she actually has my dark hair, had my dark hair. I threw out my pregnancy expected her to come out with really light colored hair like my husband and I did as babies. He still has really light, lighter color hair, and she came out with really, really dark hair.That was not how I pictured her when I was pregnant and it was such a surprise to see that.

    Jess Hennessey 0:19
    Welcome to Still A Part of Us a place where moms and dads share the story of their child who was stillborn, or who died in infancy. I’m winter.

    Lee 0:23
    And I’m Lee, we are grateful you joined us today. Please know that this is a story of loss and has triggers.

    Winter 0:27
    Thanks to our loss parents who are willing to be vulnerable and share their children with us.

    Lee 0:30
    If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

    Winter 1:02
    Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they’re still a part of us.

    Winter 1:17
    Thank you again so much for joining us here today on Still A Part of Us. We are excited to talk to Jess who is going to tell us a little bit more about her sweet daughter Addy. This is Still A Part of Us and here we are talking about our babies and infant loss and stillbirth. So please keep yourself protected. Once again. Thank you so much for being here today, Jess. Can you tell us a little bit about yourself? Who are you? What do you do on a day to day basis? Where are you guys? Where are you based out of?

    Jess Hennessey 1:49
    Yes. So I am an HR Manager. I have been working in HR for seven years. At the time when it was, you know, I was pregnant. When she was born I was an HR Manager. And still currently am and during the time of my pregnancy and her birth, I was actually living in the Vancouver Washington area. So right outside of the border of Portland. Then my husband and I recently relocated to Sacramento, California, in January of this year, actually. So she was born in Washington, in the Portland area. Now we are in California, which is where I grew up. So we came back home.

    Winter 2:28
    Gotcha. Okay, that makes sense. Do you guys you referred to we, so is that you and your husband?

    Jess Hennessey 2:35
    Yes. Yes. And now our 19 week old Golden Retriever puppy, Kelso.

    Winter 2:39
    Wonderful, wonderful. And what do you guys like to do? Just like hobbies, things that you like to do on a regular basis and in your free time.

    Jess Hennessey 2:49
    We are big advocates of getting outside as much as possible. So camping, hiking, especially during the last year of COVID were huge activities, anything outdoors,we could get our hands on. We also really enjoy TV shows together. So you know rewatching a lot of Gordon Ramsay shows.

    Winter 3:04
    Oh!

    Jess Hennessey 3:06
    Yeah. So a lot of cooking shows, and fun kind of like survivor Shows like, you know, Wilderness, Naked Afraid. Anything where people are putting themselves in crazy situations. They’re like, I could never do that.

    Winter 3:18
    I know, I couldn’t I always freak out when I was like, Oh, that’s making me anxious. I’d be dead, I think.

    Jess Hennessey 3:26
    Yeah. Then the last few months have just been really all about, you know, we recently moved and we bought our first home and we bought our first dog. So the last few months have been really just centered around, you know, building our new home and getting it to where we want it to be and hanging out with our new puppy and being close to family. Finally, for the first time in my adult life.

    Winter 3:45
    That’s great. I think that’s awesome. I think we’re gonna get a little bit more into your move as well. So I do want to touch on that in a little bit. Just a little bit of context for our listeners. Tell us how long ago was Addy born?

    Jess Hennessey 4:02
    Yeah, so she was born October 8 of 2020. She passed away October 10 of 2020. Today the day we’re filming this is exactly six months from the day that she passed away.

    Winter 4:16
    Yeah. So I think it was kind of fun to like let’s do this is a nice way to honor her. I really really liked that we chose this day for you so.

    Jess Hennessey 4:24
    Me too. I cannot think of a better way to put value, or continue to put value to her life, you know to celebrate such a turbulent time and coming out on the other side of it and being able to look back at the last six months.

    Winter 4:37
    Yeah, exactly. So were you guys planning on getting pregnant then with Addy was that part of the whole grand scheme of things for your family?

    Jess Hennessey 4:48
    Oh man, her pregnancy. It was so planned. It is not even. I mean it was so planned to the month. At the time that you know my husband and I had so much going on, you know. We were approaching 10 years together, we were approaching six years married. I always joked with him, I really wanted to be together with him for 10 years and kind of live our young adult life. Then I really wanted to get a master’s degree before we had children and started a family.

    Jess Hennessey 5:14
    So, I got pregnant with her, we found out April 1, 2020. We had been very meticulously planning getting pregnant. Doing the whole regimen, six months prior to pregnancy and getting our bodies in good shape and good health. I actually graduated with my Master’s in August of 2020. I was almost six months pregnant. So we had planned it to be like, Oh, yes, I’ll you know, get my, finish my degree while I’m pregnant. Let’s do it, and then we’ll be in tandem with what our plans were. So yeah, she was very much, we set a month. And we said, This is when it’s happening, and we felt very lucky that it did. It happened almost immediately for us.

    Winter 5:54
    That is awesome. That is impressive, Jess, it sounds like you guys are very like we’ve got our stuff together.

    Jess Hennessey 6:01
    I would absolutely say I am very much a planner. My husband is more let’s go with the flow. Let’s see what life throws at us which in this case, he was obviously very thankful that like you planned this really well. I’m like, thank you.

    Winter 6:15
    Yes, I did plan that very well, didn’t I?

    Jess Hennessey 6:19
    Yeah, she was very much planned and very much wanted.

    Jess Hennessey 6:22
    Oh, that is wonderful. So how did your pregnancy go? Was it fairly easy? I mean, you were six– you graduated in August. I’m like, can you– I’m just thinking I’m like, oh, if I was pregnant while I was going to school, that would have been rough. So how was your pregnancy?

    Jess Hennessey 6:40
    You know, I knew what I was getting into, towards the tail end of school. And of course, we found out we were pregnant, just as stay at home shelters were put into place. So she was actually conceived prior to the kind of shelter in place happening. We didn’t really know how big COVID was gonna get. So in my mind, I mean, there were so many other obstacles that happened in my pregnancy, but I felt very thankful I was healthy. I had a very easygoing pregnancy. I think I experienced some, you know, first trimester symptoms, a little bit of nausea, exhaustion, and headaches, but nothing that didn’t stop me from working full time. I worked full time, even though it was in remote capacity because of COVID. I went to school full time, and that all became online. I actually felt like I was so thankful, like, wow. COVID and what happened what’s still happening is awful. But I got to be pregnant at home. Basically, I’m like, I couldn’t have planned this better. And this wasn’t even my plan.

    Winter 7:34
    Yeah, that’s a little bit of a silver lining, isn’t it? I just–

    Jess Hennessey 7:38
    Yeah!

    Winter 7:39
    It’s kind of as awful as the pandemic has been. There’s definitely some silver lining to that. So that’s good. I’m glad to hear that your pregnancy wasn’t too awful.

    Jess Hennessey 7:49
    No! You know, I was active. I went on walks almost every day. And yeah, I had no hiccups in my pregnancy whatsoever.

    Winter 7:58
    That’s awesome. So when you guys hit, like, how were your doctor’s appointments? Were you looking good? Was Addy looking good?

    Jess Hennessey 8:06
    Everything was normal. My doctors– during COVID, I went to not everything alone, they let my husband and for a lot of big milestone appointments. But–

    Winter 8:19
    That’s good, because I know that there were a lot of people that did this alone. And that is crummy. So I’m glad that he was there for some of those appointments. Great.

    Jess Hennessey 8:28
    Yes, he got to be there for the anatomy scan, we actually had two anatomy scans. Just because of some imaging that they could not see. Then we were able to see, but outside of that every appointment was very normal. I was growing and gaining weight appropriately. She was growing and gaining what she needed to do. And I felt good. I loved being pregnant. Everyone just thought I was just beaming. I just loved it. It was one of the best times in my life.

    Winter 8:56
    Oh, that’s so good to hear. You’re one of those pregnancy unicorns. Did you know that? That’s what it sounds like.

    Jess Hennessey 9:04
    It was just it was– I mean, it was just incredible. I couldn’t have imagined when I had put this plan in forth for me and my husband and what our life would look like. I just, I couldn’t have imagined how wonderful it truly would be right? You can’t plan how incredible it’s going to feel to have a baby kick inside of you, or to be so empowered to finish.

    Jess Hennessey 9:26
    I remember giving my final speech for my master’s program in front of a large audience on zoom, which was not how it’s supposed to be. But she was kicking inside me as I was giving this final you know, I mean, those are just things. It was incredible. And I loved every minute of it.

    Winter 9:40
    Oh, that’s so great. That’s so great. So you guys did go and do the anatomy scan at 20 weeks isn’t? Well, yeah, at 20 weeks, probably around there. Did you guys plan on finding out if it was a girl or a boy?

    Jess Hennessey 9:54
    Yes, we did. We actually found out with the first genetic testing blood work. She was 10 weeks old at that point.

    Jess Hennessey 10:02
    Oh okay,!

    Jess Hennessey 10:03
    We did all the genetic testing the first trimester. We actually held the results until the Fourth of July weekend because we wanted to be surprised with my whole family. She was the first grandbaby across the whole board.

    Jess Hennessey 10:16
    Are you serious? Oh.

    Jess Hennessey 10:18
    Yeah. So my in-laws, and my dad, my mom has actually passed away. So my dad like she was the first grandbaby in the whole family. We wanted to be surprised together that she was a girl. I genuinely thought she was a boy. So when I found out at 17 weeks that it was a girl, I was shocked. I was like, there is no way. I just always pictured her being a boy. So yeah, we had the genetic testing done for blood work. Then we were able to find out a little bit earlier than the anatomy scan, but we actually had two anatomy scans, one at 18 weeks and one at 22 weeks.

    Winter 10:52
    Okay. And those looked good. And I was gonna ask, did the genetic test, how did that look?

    Jess Hennessey 10:59
    Fine, everything was great. They didn’t see any chromosomal issues. Everything looked good. Same with the anatomy scans. We went for my first one at 18 weeks. They were able to get good imaging, except for they wanted a little bit more of her brain and a little bit of her heart. She just would not position correctly. It was not a big deal. They were like she’s really stubborn. So we’re just gonna come back in a couple weeks, and we’ll get those images.

    Jess Hennessey 11:27
    So we felt lucky, because we’re like, great, we get to see her twice, then almost a month later, we got to have basically a repeat. An hour with our baby seeing her. They got all the scans that they needed of her brain and her heart. There was no concern after that. That was at 22 weeks.

    Winter 11:45
    Okay. That’s great. It’s always kind of reassuring to have those kinds of time points. But I love the fact that you guys were able to get to see her twice, in a sense, right? I mean, you get to see her on the ultrasound, which is always I think it’s a special treat, actually.

    Winter 12:01
    Okay, so you’re, you’re going along, and you have defended your masters. I don’t know if that’s defended your masters, but you did your final presentation for your masters, and everything’s going really well. Can you tell me a little bit more of what happened then?

    Jess Hennessey 12:16
    Yeah, absolutely. So in terms of timeline, so I finished up my master’s degree in August, I actually came back to California for my baby shower. We had a really small get together. But this is where my family is from. We were able to make it happen even during COVID. It was everyone again, she was the first baby in the family. So everyone just really wanted to celebrate her.

    Jess Hennessey 12:38
    So at 28 weeks, I actually came home at the time we were building our house. So we had purchased a house in early June after we found out we got pregnant. It was a new build, so I actually was able to come into the house with my mother in law, my dad, and my sister. We looked at the house, it was now about halfway being built. I’m you know, being pregnant, and we got pictures of me in the front door that was incomplete. It was so fun.

    Jess Hennessey 13:04
    I had my baby shower in late September. Then I got home and at that point, so I would say very late September to early October, I definitely started feeling pretty significant third trimester symptoms. I became really swollen, a lot of pelvic pressure, a lot of back pain. At this point, I’d had no kind of concerns in my pregnancy.

    Jess Hennessey 13:31
    She wasn’t moving as much as normal. Which again, I know my doctor, she explained to me that hey, you know, things are gonna move a little bit differently in the third trimester. They’re a lot bigger, they’re not gonna have as much room. I’m 5’1. She started like, you don’t have a lot of capacity to begin with. So it wasn’t in my mind a big concern, but a little bit of decreased fetal movement, just not as you know. jabby kicking and still very active after eating so she would still move around with sugar and things like that.

    Jess Hennessey 13:56
    But yeah, I just started just getting really swollen and tired even more. I knew that was in my mind, at least, you know, that’s the third trimester. Right? Everyone says the third trimester, you get really tough, right? You’re past that glowing second trimester, and your body’s preparing for the birth. So I just attributed all of those things to I’m going into my third trimester.

    Jess Hennessey 14:19
    I remember trying to stretch at night and every night my thighs were more and more swollen. I couldn’t stretch as far as I remember telling my husband, you know, getting really uncomfortable. So I had seen my obgyn at 28 weeks right after my baby shower.

    Winter 14:37
    In person? Was it in person?

    Jess Hennessey 14:38
    In person.

    Winter 14:39
    Okay.

    Jess Hennessey 14:39
    Yup in person. I addressed the concerns of being a little bit more swollen. She actually had said that my belly was measuring a little bit bigger at that point, but nothing that gave her concern. I mean, even at my baby shower is still one of the things that’s difficult for me to hear. But it’s true is you know, some of my family and friends and they said this out of complete love. They’re like, wow, you’re really, really big for being 28 weeks. I had been so normal sized. And I mean, I’m like, Yeah. I mean, maybe she’s just really growing and she’s got long legs that we know of.

    Jess Hennessey 15:10
    So I definitely was getting bigger very quickly. And it was not a normal speed, essentially. And I was getting uncomfortable. So my obgyn just said, Look, at this point, I don’t have any concerns. You’re still walking, you know, we’re not really seeing any symptoms of potential concern for you at this point, or her. So we’ll just keep going through the program. And if things change, let us know. At that point, I started seeing my obgyn, it was on a two week schedule.

    Jess Hennessey 15:37
    So I saw her again, for a normal, just a normal appointment. That morning of my appointment, it was just a normal appointment. I remember feeling something was wrong, and I couldn’t pinpoint it. I did not think it was what had, I didn’t think it was as extreme as it was. We found out what’s going on. I just figured something was a little off.

    Jess Hennessey 16:01
    The night before I actually she was moving, but not as much. Actually my husband and I took out our doppler and we listened to her heart and everything sounded fine. She was moving just not as much I couldn’t pinpoint it.

    Jess Hennessey 16:13
    So I went into my obgyn that morning, the morning she was born, which was October 8, for a normal appointment, it was my 30, about 30 week checkup. I was 30 weeks and three days at that point. I just was feeling uncomfortable. I got on the scale, and I gained 22 pounds in two weeks. I knew something was very, very wrong.

    Jess Hennessey 16:33
    I was not one of those, you know, for me, I did not weigh myself frequently, when I was pregnant. I really wanted to let my body do its job. My obgyn agreed to that, because I was not, you know, I wasn’t gaining weight at a rapid–, you know, it was very normal, essentially. So she had no concerns with me just getting weighed at my appointments, we didn’t see a concern with that. So I knew something was very wrong at that point.

    Jess Hennessey 16:58
    I knew I’d been feeling more uncomfortable and clothes weren’t fitting like normal. Again, I just thought maybe the third trimester. But she was okay, she was moving, her heartbeat was beating. So I got back into the exam room and I just at that point, lost it and just broke down. You know, my obgyn came in and said, You know, that’s a lot of weight to gain in a short period of time, it’s obviously fluid. So we need to have a closer look at the baby and you.

    Jess Hennessey 17:23
    So we got her on a stress test. I am so grateful I actually recorded that thinking, I’m going to go home tonight and be able to share this video with my family. I did not know what was about to happen. I just didn’t know. I got a video of me and my big belly and the stress test on and I’m you know listening to her heartbeat. I remember thinking in that moment, like she’s okay, that’s what mattered, right? She’s okay, she’s here heart’s beating, she’s wiggling. But I still have that sense that something was wrong.

    Jess Hennessey 17:53
    So after the stress test, my obgyn looked at the results. And you know, I could see her face looking at that piece of paper, and I knew I could just sense something was a little bit more serious than we thought. She said, “Well we’re seeing some normal rhythm, but we’re seeing quite a few not normal rhythms. I listen back to the video, I hear it now. There were drops in her heartbeat.

    Winter 18:17
    Oh.

    Jess Hennessey 18:18
    Yeah. So we decided that it was time to get an ultrasound. So they decided to admit me into the OBGYN floor, or the birth center floor. Which was on the fifth level of my hospital. We had actually never been up there. It was like this kind of coveted you only go up there when you’re in labor, active labor. It was a brand new floor. I asked my obgyn if I should call my husband. She knew my husband, Patrick. She’s like, yes, you should call Patrick. He was at work. And again, it had just been a normal appointment. I was used to doing that.

    Jess Hennessey 18:48
    So I called Patrick and I said, you need to get over here. And I don’t know how long we’re going to be. So we met in the lobby, and we went up to the fifth floor together. I called my boss and I had some scheduled interviews that day. I just said, I’m so sorry, you need to take my calendar and I just don’t know what today is going to look like. But I should be home tonight. I remember just thinking in my head telling my family and my employer, I’m going to be home tonight. We’ll talk about it then we’ll figure out what I missed. I’m so sorry. You know, putting on the career woman part of me.

    Jess Hennessey 19:18
    We headed to the fifth floor and got admitted. They immediately started me on some IV’s which I’ve never had it before. It took like six or seven pokes in different spots on my hands. I just remember thinking like, Oh my gosh, I mean, it’s fine. This is the worst of today, which absolutely was not the worst day of being poked at least. But I finally got a couple IV’s in and they started me on fluids. Then the ultrasound tech came in and she spent probably I would say about 30 minutes on ultrasound and it was very quiet. Which had not been the previous experiences during my anatomy scan. She was just very quiet and could go after–

    Winter 19:59
    Could you see the ultrasound while she was doing it?

    Jess Hennessey 20:02
    You know what if I, my husband remembers it perfectly. I actually think at this point, I was starting to block out some of this, I knew something was wrong. I was getting that feeling. I remember looking at my husband more than the computer screen. I just, I don’t know, I didn’t know what I was supposed to be looking for. But I knew something was wrong.

    Jess Hennessey 20:26
    I guess the last ultrasound I’d had, she was 22 weeks and she was perfect. Right? That was the last time I saw her.

    Winter 20:31
    Right.

    Jess Hennessey 20:31
    It was the joyous moment. I just didn’t want to take away from that. So I remember, just almost trying to not look at the screen. It was fully visible if we wanted to look at it. I didn’t know what we were looking at. Then I remember at the end of the ultrasound, the tech said, Hey, you know, I want to show you guys something, and she was putting on you could tell, she was trying her very best to put on a smile for us. And she said, I want to show you her spine and her legs and her arms. She just said, I just really want you to look at this. I just and at the time, I didn’t know. And we’re like Okay, thanks.

    Jess Hennessey 21:07
    I didn’t realize she was trying to show us probably the last time we’d see her on the screen, at least in this form. She was trying to make that part of it at least still somewhat positive, which I appreciate so much. I’m so grateful she did that because then I looked and there was my Addy. She was perfect, right.

    Jess Hennessey 21:27
    I still, you know, couldn’t tell what was going on. I just thought, you know, she was kind of moving. I could feel her with the ultrasound, she didn’t really like being probed. She would move around with it. And I’m like, Okay, and so then, at that point, everyone kind of left the room and my husband actually called my sister, who is a nurse. She is not an OB, she doesn’t work with an OBGYN directly. She knows about the time that most nurses have during nursing school for, you know, birthing and care of infants. My husband called her and just said, Hey, like, this is what’s going on. I remember my sister saying if they give her magnesium, something is seriously wrong. Just you need to call me immediately because at that point, they had just been giving me fluids. So if they give her magnesium, something is wrong.

    Jess Hennessey 22:20
    So I kid you not two minutes later, in comes a nurse with magnesium shot. I said what’s going on, and they’re like, your doctor is gonna come in, and they’re gonna let you know. I’m like, okay, and I didn’t realize it, but magnesium at the time, but magnesium is to help the baby’s brain develop more quickly. They gave me a steroid shot as well. That’s supposed to help with their lungs for premature birth. So that’s why my sister had said, they’re giving her magnesium. I don’t remember if she had said steroids, but she just said then something is gonna happen. Something’s wrong.

    Jess Hennessey 22:59
    So my obgyn about 10 minutes later came in and she sat on my bed and she took my hand and she said, Addy has something called hydrops. I said, What is that? And she said, there’s quite a bit of fluid buildup inside of her. It’s pretty significant. It’s around her vital organs, including her lungs, her heart. It’s around her brain. She actually pulled up the ultrasound and showed us kind of the rim of her head specifically, I remember that. She said there’s about a two centimeter gap basically, between where her skin line and her skull. She said, That’s fluid. That’s not supposed to be there.

    Jess Hennessey 23:44
    I just remember being like, oh, and then she said the other thing. So Addy has hydrops. She’s, it’s very severe. We need to get her out. And I just said what I said she’s 30 weeks. I just remember at this point, almost like going into that, like fight or flight. Like what? My obgyn had two premature, beautiful baby boys. That’s partly why we connected and they were premature. I mean, she had twins and I really liked that about her. So that’s why I chose her as my ob. I just thought you’ve got this experience. You’re a mom of two boys that had twins. She said, you know, my boys were born at 30 weeks. She kept grabbing my hand and she started to cry, which I know as a doctor.

    Jess Hennessey 24:29
    She knew what was coming and she knew what I mean she must have known at that point. But of course, my hospital was a small local hospital not equipped to take care of and NICU baby in this capacity. So at that point, she said the other thing that’s going on is that you have something called Mirror Syndrome, which happens to about 50% of cases with babies with hydrops. It is when the mom is essentially getting sicker the sicker the baby gets.

    Jess Hennessey 25:00
    She said at this point, have you felt any type of tightening in your belly over the last week? And I said, Well, yeah, I mean, but I thought that was Braxton Hicks. Right? I’m in my third trimester. That’s normal, right? And she said, “No, I think your body’s been in labor for about a week. It’s in complete distress right now. You’re dying, if we don’t get her out, mirror syndrome is very serious. It’s basically mimicking preeclampsia.” And even though I didn’t have some of the other preeclampsia symptoms, like headache, and you know, my blood pressure at this point was okay, I was getting incredibly swollen. She said, “We need to get her out.” They said, “We can’t perform care for her here.” We’re going to send you to basically OHSU, which is the major hospital in Portland. They have a fantastic NICU unit.

    Jess Hennessey 25:51
    We said, okay, and she’s like, the ambulance is going to be here in five minutes to come get you and you have to go. I’m like, Patrick can’t drive me and she’s like, no, you’re you’re in critical condition as well. I’m like, Oh, okay. I remember at that moment, you know, looking at Patrick, and I said, How long are we going to be there? I asked my doctor, and she’s like, I don’t know. She didn’t have a lot of answers. I asked if the baby, for sure was coming tonight. She’s like, I don’t know, I asked if it would be a C section. She said, I don’t know. So I looked at my husband and said, I just remember blurting off, like, we’re gonna need our pillows, and I need you to feed the cat. I need you to pack me a couple of sweatpants. And you know, we didn’t have our hospital bags together and like, we’re 30 weeks pregnant, we didn’t have our plan in place at this point for being such a planner.

    Winter 26:38
    So they were just going to transfer you there? Then hand you over to I’m assuming maternal fetal medicine, or some the basically the doctors, they’re the team of doctors at OHSU?

    Jess Hennessey 26:50
    Yes, exactly. They said, at that point, they’re going to reassess me and Addy, and then they’ll be able to put a plan of care for me together based on what they also come up with, and some of the resources that they had there.

    Winter 27:04
    Yeah, yeah. Okay.

    Jess Hennessey 27:08
    So after that, I had to pee, of course, because when you know you pee all the time when you’re pregnant. So I went finally, for the first time in this whole event. I finally had a minute to myself and my husband came into the bathroom, and he was crying. I said, What’s going on? I said, we’re going to be okay. I said, you know, this is not the plan. But you know, we’re going to get her out. It sounds like there’s gonna be a plan in place, and we’re going to care for her and we’re going to the right place. And he said, I googled hydrops, Jess and it’s not good. He said, we’re going to need a miracle.

    Jess Hennessey 27:40
    I think at that moment, I knew, I think I knew that it switched in my mind from you know, she’s really sick. And I’m really sick. But it’s, you know, we live in 2020. There’s a lot of resources available to care for sick babies. I realized that this was a lot bigger than just that.

    Jess Hennessey 28:03
    Then we got transferred to OHSU, where they got me set up. My poor husband had to deal with multiple cars and his work and trying to manage getting the house together. He did such a great job. And I’m over there, getting examined some more so they have their own team. So we had about a team of six people pretty immediately taking care of me and Addy. So during our ultrasounds, they had the echo cardiologist for her to take a look at her heart primarily and some of her other organs had two doctors at that point. It all happened so quickly.

    Jess Hennessey 28:42
    They had two Fetal Medicine specialists come in after everything and say, you know, at this point, I think you really have three options and they said it doesn’t look good as of right now. So we need to move quickly. Option A is we can continue monitoring you and her things are moving very quickly and pretty significantly and at that point, they were actually able to measure that fluid buildup was increasing even inside me from the time I left my normal local hospital. to OHSU you could already tell that more fluid is building up. So they’re like this isn’t getting, it’s not getting any better.

    Jess Hennessey 29:24
    But we can continue to monitor and they also recommended at that point we would go in with my gosh, what are the needles called? It’s blanking– With a–

    Winter 29:35
    Epidural?

    Jess Hennessey 29:37
    Pericardiocentesis.

    Jess Hennessey 29:40
    I see what you’re saying.

    Jess Hennessey 29:43
    Yeah, to basically start draining her fluid and some of the fluid surrounding her in my stomach. And around the placenta, to try to provide some relief. They said, you know, she’s continuing to have buildup of fluid so, that would be a short term fix. They also said we could induce you. I was at that point just in active labor, but distressed labor. So even though my body was in distress, there was no movement in terms of dilation, or effacement. So she, it would be, you know, let’s reduce her, and then we could get her out. But it could be anywhere from 24 to 48 hours. They said your health is incredibly declining very quickly. So they said, those are two options, but we don’t recommend them.

    Jess Hennessey 30:28
    And I said, I understand why they said she’s going to pass away probably anyway, tonight, if we don’t get her out. So they said, The other option would be an emergency c-section. They said, that’s what we would recommend, we could get you ready for surgery and get her out. Then you can begin your recovery, and we can get you stabilized. Then we can assess her on the outside, because there were still limitations with, you know, the scans. They, at this point, had suspected potentially something could have been wrong with some of her other organs .

    Jess Hennessey 31:02
    So her heart, they couldn’t get a full visual. But while she, while we got some scans, you know, there were some concerns with her heart growth and prolonged development. They said at least we could assess her on the outside. It was without a question that that’s what we needed to do. And I said, get me ready for surgery.

    Jess Hennessey 31:19
    When I thought about getting pregnant, I absolutely knew that C-sections are a life saving surgery, and in my mind, I’m like, I just will never have that. Like it just never crossed my mind, even though it was always possible. I’ve never been in any type of major surgery before. And so I’m like, we’re doing this.

    Jess Hennessey 31:43
    My husband is updating our family. I didn’t even know where my cell phone was, at this point. I hadn’t looked at anything, which sounds so silly, like in the, in the moment, I just remember feeling so discombobulated and not oriented. At this point, I hadn’t eaten anything in the morning, since my first cup of coffee that morning, because my OBGYN kind of knew what was coming. She’s like, no more food and more liquids. I mean, she probably anticipated the C-section, so I was hungry. So all of those things. And I just didn’t feel ready to meet my daughter. I was like this is happening very quickly. It happened in a matter of six hours. She was born within eight hours after my appointment.

    Jess Hennessey 32:25
    So they prepped me for surgery. I went back and I mean, I think a C-section if it wasn’t something that we were ready for mentally it was something Patrick and I we hadn’t discussed or what that looked like, I don’t even think he understood really what a C section was. I mean, we were still finishing our birth classes. Right. So yeah,

    Winter 32:47
    Yeah.

    Jess Hennessey 32:49
    So he didn’t know and he remembers the sounds very vividly. But we got her out. I remember them holding her up in front of me and looking at her for the first time. She was perfect, but she was so sick. Her ears were so swollen. A little face. I mean, she looked like a newborn baby. She did not look like she was 30 weeks. She had 10 perfect toes and 10 perfect fingers. They told me she’s a big kid. And we all kind of joke in my pregnancy. She had longer legs, but she looked like a full size baby because of all the fluid right?

    Winter 33:39
    Yeah.

    Jess Hennessey 33:41
    They immediately took her way. I remember Patrick asking me, what do you want me to do? I’m like, go with her. Like, go and he said okay, and he followed them into the NICU when they started. I know she was breathing, but not very well. So they were doing some resuscitation with her.

    Jess Hennessey 34:03
    Then they were working on me. I remember the doctor, the surgeon, she was so wonderful. After everything was done and I was of course very loopy, disoriented and in shock. I was shaking and she put the curtain down and she’s like, I want you to know, I did a standard bikini cut basically. I said okay, she’s like, it means that you’re likely going to have healthy pregnancies and potential vbacs in the future. I just remember her saying that because this whole team of doctors they all knew what was going to happen. They all knew and they just were all trying to give me comfort in their own way. I remember being so appreciative.

    Jess Hennessey 34:38
    So yeah she was in the NICU and they got me. They got me into the postop room and Patrick was able to come visit while I was still waking up from surgery and kind of getting myself oriented. He would be bouncing back and forth between the NICU room and coming to see me. I mean the next 20-26 hours. It’s something yeah. It was really difficult. It was having a lot of people coming in and out to check on me at that point. Thankfully, after I gave birth, I became more stabilized. Because I think in this whole scheme of things, you know, Addy was very sick. We knew, I mean, I think at this point, there’s a pretty well rounded decision that she needed to get out, and she was probably going to pass away, but we’re at least going to give her a fighting chance.

    Jess Hennessey 35:39
    Based on statistics, and the doctors, you know, telling me it was less than a 5% chance of how severe her hydro drops were. Then if there were other concerns on top of that, which there was that we found out, she was born and assessing her. I mean, it was just very, very slim. Even if it was any type of chance to get through these hurdles, her quality of life would be very, very poor. She would likely never, ever be able to walk. We didn’t know her brain functionality. I know she knew who I was.

    Jess Hennessey 36:15
    I got to meet her about two hours after she was born. Officially meet her. She was in one of those little NICU beds with the heating lamps and they took it off for me to see her. I remember putting my hand right next to her fingers. And at this point, she was not sedated. So they resuscitated her but she was not sedated. So I was able to still, you know, she was still wiggling a little bit. I remember putting my finger right by her hand and saying, Hi, Addy. She just squeezed it. It was the most magical moment. She knew exactly who I was. You know, they spend how many months in your belly listening to you. As an HR manager, I did. I cannot even tell you how many phone interviews and conversations I would have and over zoom, and she was right there for it all. She was my little buddy in quarantine. Being alone and pregnant for the first time. I always had her. So yeah that was really the last time I saw her up until she passed away.

    Jess Hennessey 36:16
    There were some steps in place, which I don’t— I have no ill will towards the hospital. They were incredible. I still am very close with some of the nurses who took care of me and were there for me. But I was trying to get through having a C-Section A major surgery. They wanted me to walk and they needed me to go to the bathroom and things like that. As soon as I could hit some of these milestones, I could go see her again. My husband was able to go see her as often as he wanted. So he’d often bounce back and forth.

    Jess Hennessey 37:50
    Then they moved us from you know, we were in the mother’s quarters. When we first got kind of wheeled into our room for the night. All I heard was the crying babies and I said I can’t be here. They were able to move me. So I got this kind of private quarters in the hospital, which still is very quiet. That night, it was just a lot of monitoring me because I was trying to get stabilized and Patrick going back and forth between visiting me and Addy. She was breathing at that point. They don’t like to put a couple chest tubes in. We didn’t know the extent to what else was going on. Besides they were trying to drain fluid at this point.

    Jess Hennessey 38:29
    Then the next day, which was the 9th. The next morning, I woke up to my sister who flew in, she lives in California, but she actually was on vacation in Boston at this point. So that was another whole— Yeah. Because again, we had planned everything, you know, up until we thought her due date, really. So she had planned this trip. I woke up to my sister in the hospital room. I just remember saying how are you here? We’re in COVID.

    Winter 38:59
    How did they get you in?

    Jess Hennessey 39:02
    My sister and I were very close. She’s a year and a half younger than I am. Which does not matter. But she’s a little bit younger than me. Our mom passed away three years ago, and we went through that together.

    Winter 39:02
    Yeah.

    Jess Hennessey 39:14
    I actually live a mile away from her now. So we purposely bought our home and—

    Winter 39:18
    Oh! That’s great.

    Jess Hennessey 39:20
    Yeah, we live a mile away from each other because we always imagined raising our children together and being so close. I woke up to my sister and she was able to tell me that they made a hospital exception to let her in, which is incredible. She actually had just gotten back from the NICU. She got to be with Addy. They could only allow one person at a time, but she said I’ve seen Patrick and I saw Addy. She’s beautiful. She’s perfect.

    Jess Hennessey 39:49
    The next part of that day was spent with a lot of specialists coming into our room. You know, hey, I’m so and so I am at Addy’s cardiologist or different specialties, and we found out that she was very sick. Her heart was very sick as well with something called hypo plastic left heart syndrome. Essentially, her left heart chamber had stopped developing, and it wasn’t detected at 22 weeks, which is incredible because it is usually something that’s caught usually between 13 to 17 weeks is what the doctor explained. So normally, it’s that in itself as a terminating illness, you have to have heart transplants if the baby’s healthy enough, and she obviously was very sick with hydrops. Even though they were how I kept trying to understand, as I said, she’s got these and her lungs were underdeveloped. So I said, all these different things were happening. And I said, but they’re different things. So it’s not like one caused the other it’s not good causation. I just kept trying to ask those questions and understand, and they said, correct. So she has had a heart condition, likely since conception that was undetected, her lungs then stopped really forming probably in the last, three to five weeks, because then she developed hydrops. They’re all kind of interrelated to just that she’s sick, but it’s not like one caused the other.

    Jess Hennessey 41:12
    That was really hard for me. I remember just trying to understand because I was so—everything was so confusing. I was so lost, and you know, eight hours prior, and now the next day. I mean, she was healthy in my belly, and now it’s not healthy anymore. She’s not well, and so yeah.

    Jess Hennessey 41:28
    We have a lot of specialists coming in telling us different things. Essentially, you know, we were at this point where she was making some very small improvements, and then would take 10 steps back. And essentially, they just said, Look, you know, we will continue giving her and you the best care possible until it’s not. It’s not appropriate anymore. I said, Okay, I said, my biggest thing is, she can’t suffer. I said, I’m her mom, like, she can’t suffer. They agreed. So I said, If I asked you how she is, be honest with me, and this was her doctor, he’s amazing. And he said, I promise you, I will.

    Jess Hennessey 42:09
    So it was nine o’clock the night post surgery. So it was the ninth of October. At this point, I can see my cell phone, my sister’s there and my husband’s there. They’re updating the family, which is all that mattered. I didn’t realize all of my in-laws had driven into the hospital. They were all five hours away from us. They were all there, but they could not physically get in the hospital.

    Winter 42:30
    Right.

    Jess Hennessey 42:30
    Because of COVID.

    Winter 42:31
    Yeah.

    Jess Hennessey 42:31
    So they’re literally on the outskirts of the hospital hanging out in parking lots and bringing my husband and my sister food. Jenny, my sister, Jen. Jen, and Jess, my mom, and dad were very creative. She would just kind of go run and eat and go check on me and go check on Addy. It kind of became this circle thing.

    Jess Hennessey 42:48
    I of course could not go see Addy until I met those milestones. When I did, it was amazing. It was about nine o’clock at night. I was able to go see her. They wheeled me down. She at this point was sedated. So she wasn’t moving. She still was all toasty in that heat thing. I remember saying I need to stand up and they’re like, you just had surgery I’m like I don’t care. I’m like, I want to get as close as I can to my daughter because I don’t know how much time I have left. So I stood up and I was able to talk to her. I actually had a little cuddle lovey that they gave me which I thought was very sweet that they said just you know, cuddle with this. We’re going to give it to her so that she has your smell. We did that. So she had my cuddle little lovey.

    Jess Hennessey 43:32
    At that point when it was time to say good night, I was really tired. I needed some more medicine. I was in a lot of pain. So they got me back up to the room. I got some medicine, my sister Patrick and I went to bed. Then at 12:26 they woke us up. The nurses came into my room and said, it’s not good, something’s not going, it’s not good. I’m not, it’s not well, it’s not good. We need to get down to the NICU right away.

    Jess Hennessey 43:57
    I just remember postsurgery flying out of my bed and adrenaline is rushing in. They put me in a wheelchair, they wheeled me down right to the NICU. My sister had to stay outside, but they let Patrick in. Because they only allowed one person and of course in this instance her doctor, who I am so grateful for. I looked at him in the eyes and I just knew. He said I could put another chest tube in. Another chest tube and at this point it was five chest tubes. And I said no. No. My husband and I looked at each other. I just remember saying I’m not ready. I’m not ready to say goodbye

    Jess Hennessey 44:41
    But as a parent, and I waited— Sorry. Sorry Winter. Okay.

    Jess Hennessey 44:51
    I’m a parent and being a first time mom. She was my first baby. I couldn’t ever let her suffer. I knew she was suffering. This was not giving her the life she deserved or the quality of life that she deserved. So we said just stop. And they did. They took all her chest tubes out, and they were able to hand her first to me. And it was the first time I held her. She was so perfect. The nurse had told me she weighed five pounds one ounces. So I got to hold her. Then they handed her to my husband. Actually, that is the first baby he’s ever held, which is very, very special. So she will always be the first baby he’s ever held.

    Jess Hennessey 45:37
    Then the hospital again, we’re just incredible. They let my sister into the room. My sister got to hold Addy while she was still alive. So the three of us got to be with her. It was incredibly peaceful. If you can imagine being in turbulence, and having that moment with her was just, I mean, it was my goodbye. But we got to hold her. And she passed away. Somewhere in between me and Patrick. Patrick and I, she said she passed away. But she was pronounced deceased. She was pronounced dead in my arms. We got to meet her. We got to hold her and she passed away in our arms. Yeah. So that was her birth. She’s perfect.

    Winter 46:33
    Yeah.

    Jess Hennessey 46:34
    She has, you know, it’s amazing how life can change so quickly. Eight hours is, you know, from the time of her diagnosis to the time she was born. And of course, all of the aftermath following, but in those few moments with her. Some people don’t get that opportunity and I did. And so I’m very lucky. She was perfect.

    Winter 47:04
    Jess, can you tell me how you guys chose her name because it’s so beautiful?

    Jess Hennessey 47:08
    Oh, thank you. Absolutely. So really, her first name is a really fun story actually. So we—

    Winter 47:15
    Oh is it?

    Jess Hennessey 47:15
    Yes. So I told you, we thought she was a boy. So we had all of these boy names lined up. We’ve been thinking of boy names. Really since you know we first met. We never— Yeah, my husband has brothers. There’s just a lot of boys in the family. So we just kind of assumed we’d have a boy. So there’s an app called Kinder and it is a name app. Similar to Tinder.

    Winter 47:40
    Yeah?

    Jess Hennessey 47:41
    Where you swipe left, it’s exactly what it is. Swipe left for a name that you like, swipe right for a name you don’t. You match with your partner’s phone. So if it’s a name that you both matched on, it’ll Yeah— So we and I don’t remember, I must have heard that from one of the mom apps or the mom podcast, I was listening to you. I’m like, this would be fun. So we were actually on our living room couch one night. This was before we found out she was a girl and the only name that we matched on that was for a girl was Addelyn. So yeah, the only name matched on so we’re like, great. So if it’s a girl, it will be Addelyn and it was so fun how we came up with that. Now her middle name Renee is actually my mother in law’s middle name. So it is a name a namesake for the family.

    Winter 48:27
    Right.

    Jess Hennessey 48:28
    My mother in law is one of the most important people in my life. I could not think of anybody more deserving to have a name and baby named after her. So that’s where Addelyn Renee came in. So yeah, Addelyn was really fun and Addy. We just thought that was so cute. You know, I can picture her so perfectly, a little Addy. You know her blonde pigtails is how I pictured them running around and crazy.

    Jess Hennessey 48:52
    Yeah cause she would be the only girl really and the first grandbaby. So that was really exciting for everybody. Just Oh, it’s a girl. And, you know, she’s the first and yeah, she would have been. She would have been a little princess. I just imagined her like that. Getting anything she wanted. My husband always said, oh, we’re in trouble. Because you know, she’s gonna get whatever she wants. And so yeah, that’s how we came up with her name. And I love her name.

    Winter 49:20
    I love it. It’s so cute. I just love the story behind it. That’s so great.

    Jess Hennessey 49:27
    So I read this app. I’m like, geez, and so of course, we still have all of our boy names. Don’t have another girl name, but we have Addy.

    Winter 49:37
    That’s good. That’s good. Oh, man, that is? That’s great. Tell me a little bit more about after Addy passed away though. So you guys, she was in the NICU. So I imagine you guys were able to stay there for a little bit? What was the policy? I don’t know the policy at OHSU.

    Jess Hennessey 49:58
    We were able to stay and spend some time with her. Then they asked if we wanted a professional photographer to come in. They had a volunteer service. We said absolutely. They were able to actually capture some pictures which are so treasured. Her little toes and her little feet, her hands and her fingerprints. Then she also, the photographer was able to capture some pictures of us holding her while she was still alive.

    Jess Hennessey 50:23
    Then after she had passed away, I don’t know if I was in a state of shock, necessarily, or just, I mean, I was still feeling all that pain. I think at this point, it was probably more hard, you know, emotional pain and physical pain. But they said, Do you want to go back to the room for a little bit, and we’ll bring her to you. I said, I would actually love that. To have her in an environment that’s not so busy with the doctors and the nurses kind of standing around.

    Jess Hennessey 50:50
    So my sister actually was able to stay with her while they dressed her. They asked if there was a specific outfit we had brought, which we didn’t. Even though I had the entire nursery set up and all of her clothes, they were all at home. I already had everything ready to go. But of course I didn’t. My poor husband, when I told him to pack everything, you can. He didn’t pack that because we didn’t know.

    Winter 51:10
    Yeah, of course.

    Jess Hennessey 51:11
    They did have some nice options. So we were able to choose an outfit for her. Actually, my sister stayed and was able to change her diaper for the first time and dressed her. So her Auntie had that privilege. I am so grateful.

    Winter 51:25
    Yeah.

    Jess Hennessey 51:25
    She was absolutely my sub in while I was not myself and physically not doing well. I was still recovering from ear syndrome and all that. So then they were able to— about I would say an hour later, they got the pictures of her hands and her feet. They got the prints. They were able to do a mold for me of her feet and hands. So they did all that.

    Jess Hennessey 51:45
    Then they brought her to me. Then surprise, the hospital made another exception. My mother in law and my father in law. So my husband’s mom and dad. They had been kind of on the outside of the hospital. They let them both in to meet Addy.

    Winter 52:01
    Oh!

    Jess Hennessey 52:02
    So they got to both be with Addy. She had already passed. But my mother in law got to hold her and be with me to comfort me and Patrick. That was really a difficult moment, of course, to be in that room with them because she was the first grand baby. I think we all— Yeah, so. But we did get to spend some time together with her.

    Jess Hennessey 52:23
    They really gave me unlimited amounts of time. I don’t remember how much time had passed. It was all just very, you know, I held her and was with her. But at some point, it just felt like it was time to say goodbye to her body because her soul, her soul was perfectly perfect. So, they took her. At that point, they asked Patrick and I if this was okay. We said yes. Then it was just Patrick and I. I’m pretty sure they gave me some really great sleeping meds because I was able to sleep a little bit.

    Jess Hennessey 52:56
    Then the next morning, they asked some of those logistical questions that you don’t think about when you get pregnant. Like would you like to cremate your daughter? Or do you want to have her buried? I think COVID posed an entirely new element to the conversation. Like we might need to embalm her or preserve her. Those are just things that you don’t want to hear as a parent and going through this horrific experience. So OHSU is also a school for the it’s not a university, but it’s a school study program. They do a lot of Medical Teaching.

    Winter 53:33
    Yes, yeah.

    Jess Hennessey 53:35
    Yeah, so they asked if they could keep her organs actually, for studying. because babies with hydrops are still pretty rare. Then to have all these other kinds of things going on with her organs, they asked if they could preserve them to study them. We said yes. We couldn’t imagine a better place for her to hopefully help other future babies. It would be the idea and continue to give value to her life.

    Winter 53:58
    Yeah, that is Oh, that Wow. Okay, that’s so great. I just yeah.

    Jess Hennessey 54:04
    So we were able to, we consented to having them preserved her organs. And then we had the rest of her cremated. I remember, you know, just like during that period in the hospital, we’d try to make light of Oh, well, this is a less crappy thing that happened. One of the less crappy things that happened was this incredible funeral service home, anybody who lost a child, they would do all the services 100% free.

    Winter 54:31
    Oh!

    Jess Hennessey 54:31
    So I just remember thinking like how? I didn’t even think that was people— when you’re a parent, and you’re so devastated. You lost your baby and to just have some type of like, wow, there is still good in this world and how I felt at that moment, at least. So, you know, we talked through the logistics of transportation. They said they’ll come pick her up and this is where she’s going to be. She’ll be safe here at the hospital. We’ll move her there. Then you guys will go and find paperwork with her there. You can ask them whatever you need. They could do more prints for you guys. But it’s typically about a week to two week turnaround until you get her ashes.

    Jess Hennessey 54:32
    I had all of my family there. So I wanted to be at that point admitted out of the hospital or discharged as soon as possible. So I was actually only in the hospital for another day.

    Winter 55:02
    Oh for a C-section?

    Jess Hennessey 55:21
    Yeah, yeah. They let me go home. I think it’s partly and also at that point, I’d made huge recovering strides with my mirror syndrome. I was losing fluid like crazy. In fact, in the month after her birth, I lost, I think, 60 pounds.

    Winter 55:33
    Oh!

    Jess Hennessey 55:34
    All of it was fluid. Yeah.

    Winter 55:36
    Oh, my goodness.

    Jess Hennessey 55:37
    Yeah, it was I mean, so I was losing weight rapidly with all the fluids coming out. I think so too, because my sister had been there. She was a nurse and she ended up living with us for three weeks after Addy had passed. My mother in law was there, they felt comfortable discharging me. I had made all the right strides.

    Jess Hennessey 55:54
    After that, I just wanted to be home. At that point, as difficult as I knew that going home would be to her things, all of that without her. So I was able to get home discharged as soon as possible. I think within a day or two, we went to the funeral home, and we signed paperwork, and they did some more prints for us. They didn’t ask if we wanted to see her there. I wish I would have thought about that. Because I know that some funeral homes allow you to go see babies. Your baby or family or loved one after they’ve deceased that passed away. I wish I had asked maybe to see her. I would have liked to have seen her one more time, but I didn’t .

    Jess Hennessey 56:34
    They were incredibly kind. My sister and I went online. We found this amazing place in Maine who did custom urns. We were actually able to get her feet and hand next to her name on her urn. So it’s actually her life size hand and footprint which is incredible.

    Winter 56:52
    Yeah.

    Jess Hennessey 56:54
    They were able to rush ship so that way we could get it to the funeral home. We were able to have her and you know, within a week, we went and picked her up. We actually my dad, he offered to pay for things that needed to be paid for which were 100% free. One thing we did buy is her colors. In my mind, like I said she was a little princess, were pink and white. My whole baby shower. I’m not the girly girl type. So it was always this joke. Like I never wore pink in my life. Then all of a sudden I have pink flowers around me. We’re gonna make a garden outside of our new house that is pink and white flowers only. My dad actually bought this beautiful little metal flower that was pink, and we have some of her ashes stored in there as well. That’s a little bit more mobile.. It’s a little bit more mobile.

    Jess Hennessey 57:44
    So we were able to donate her organs to be studied, and we decided to have her cremated and we actually kept her in her safe box. We did not take her out and actually have her here until we moved into our new home. So that was the first night we moved in. That was a big moment for all of us. We took out the urn, and she was here with us. So yeah.

    Winter 58:07
    Wow. So many— That was hard. I was like, I don’t know how you guys did it? I don’t know how you did it. I am sure that that was very, I guess I kind of want to know how you were feeling after she passed away was it— I’m sure that there was some gratitude for being able to show her off to your family since they were able to come in which is so great. But were you also feeling— I mean, I guess tell me how you’re feeling after all of everything. Because it is just a whirlwind sometimes. It’s just like how do I feel about all of this that just happened?

    Jess Hennessey 58:46
    I was, I think, first just very numb. I tend to, you know, when horrible things happen. I tend to go into what I call a kind of automation mode. So I remember coming home and wanting to just clean my house and pack up her things and just, I don’t know, feel some type of normalcy. So I was like, numb and wanting and seeking normalcy.

    Jess Hennessey 59:12
    Then I became incredibly sad and actually very anxious. In the days following her passing I had some incredibly severe anxiety attacks, which was the first time in my life I’ve ever suffered through anxiety. I remember , you know, we were talking about vitamins my sister and I something so miniscule, and she had said Oh, too much potassium, you know, could cause heart defects. It was not that intent, but I immediately just had a panic attack. What if I did this right? What if that’s what caused this?Or, I was cleaning the showers when I was pregnant once and and oh my gosh, what if that chemical caused this? Or even I was so careful or that one glass of wine I had, you know a week before my two week waiting period. What if that caused this? I just remember having a lot of feelings of this is My fault I caused this. Then having that sadness of what if I did cause this? What if this was my fault, and it was all of this heartbreak and trauma in her life, it was my fault. I remember being incredibly sad, and then moments of numbness, but a lot of anxiety in those few days following her passing and even coming home, a lot of anxiety, which was not normal for me.

    Winter 1:00:23
    That has got to be such a traumatic experience also, just in general. So I can imagine the anxiety like I can relate to the anxiety.

    Jess Hennessey 1:00:33
    It’s a different type of anxiety, right? It’s, for me, I never I mean, like I said, I’ve had nervousness or, you know, moments of it before. Job interviews or wow, you know, looking back at a day, like it was a really bad day.

    Winter 1:00:47
    Yeah.

    Jess Hennessey 1:00:47
    Feeling anxious about it. But this was like, wow, I had life inside me. Then it was just suddenly, like, my pregnancy was ripped from me. All of a sudden, I was still feeling like the Phantom kicks, right? So your body is still trying to adjust to not being pregnant now. And it was. Then I think that anxiety morphed pretty quickly into anger. I had a lot of anger, following her death, and just feeling different things at every moment, which was not normal for me. As the planner who is structured, who has all these things in her life, just kind of meticulous, and you know, my whole house is in baskets normally. Then to have all these feelings that are all over the place, and not being able to control them. Because you’re just in such a traumatic state at that point. So that’s how I was feeling post her death. Yeah.

    Winter 1:01:37
    Yeah. Just, it’s just so it’s devastating. It’s Yeah. Jess tell me I just want to hear a couple last things about Addy. I want you to tell us something that you remember about her that you want to just share with people. Like I kind of want to know a few more things like, How big was she and how long was she? You said she had dark hair when she was born, which was a surprise to you, which is so delightful. I was like, oh, that wasn’t I didn’t expect that. Tell me tell me a little bit. Last things that you want to tell us and remember about your Addy?

    Jess Hennessey 1:02:14
    Yes, I would love to. So she was born 15 inches long, which at 30 weeks. I mean, we knew she had long legs. So that was, you know, right in line with what we thought so she was 15 inches long. She was born five pounds one ounces, which a lot of that I know was maybe fluid. Her little hands and little pills were perfect. She had dark hair just like me. It was actually very thick. I’m like, wow, this I mean, I can she had a full head of hair. She’s gonna have a full head of hair and no wonder I had all that heartburn. The only thing is that we did not get to see her eyes because they were so swollen when she was born. But my husband and I both have pretty blue eyes. I can just imagine her blue eyes if we had been able to see them.

    Winter 1:03:01
    Did you guys end up having an autopsy or anything outside?

    Jess Hennessey 1:03:05
    We did.

    Winter 1:03:05
    You did? Okay. Anything inclusive in that? I mean, were they able to kind of pinpoint any other things?

    Jess Hennessey 1:03:15
    That’s a great question. So we did have an autopsy. They found nothing conclusive. Besides that she had hypoplastic left heart syndrome with just an underdeveloped left heart chamber that, you know, resulted in blood flow being improper. The valves are not closing. They also found that her lungs were underdeveloped. The hydrops was likely again, a symptom not a causation necessarily of one or the other. It was not an immune hydrops. So the difference between immune hydrops is that it’s usually related to the mother and the baby’s blood, which is pretty meaning they’re different. And it causes basically kind of—

    Winter 1:03:50
    — attack on the—

    Jess Hennessey 1:03:52
    Yeah, exactly on the immune system of the baby. But that is pretty rare now because they test the mother and the baby’s blood very early on. So she had non immune hydrops. So essentially, it could be a variety of different things, mostly related to some type of defect in the heart or major organ. But all of her chromosomes came back completely normal. So genetically, there was nothing. We actually went and had further testing done. OHSU continued to advocate for Patrick and I, and, of course, wanted to continue our journey to having a family. We had maxed out all of our insurance claims for the year. So we said why not? Let’s go get this crazy, you know, $10,000 genetic tests, but I also might as well moving forward. We actually had that done in both of them and came back that we were completely compatible. So there were no genetic potential abnormalities if we were to try to conceive again, and there was nothing that through those tests, either that came back that they could see an ad each genetic testing, and so everything was 100% fine.

    Jess Hennessey 1:04:51
    With all of the tests. Her autopsy just showed things that we knew essentially led to her being so sick and passing away. They could not find a cause. So they said that this is— they can’t explain why this happened. The only thing that they told me is that it likely happened at conception. So whatever that looks like, and I they’re like, so you did nothing wrong. That is so hard to hear, because I almost wanted to know, this cause this caused this and here we are today, right? That’s not her story. You never know what happened, or why it happened. So yeah.

    Winter 1:05:28
    Thank you for sharing that. Jess it has been delightful hearing little Addy’s story I just I am so grateful that you were able to give voice to her and, and share her with us. So thank you so much.

    Jess Hennessey 1:05:41
    Thank you for having me. And thank you again, for everything that you do for this community. Winter, you and Lee, and a time of real sadness and feeling very alone, essentially, in COVID times I found your podcast, and I found a community of incredible parents who we all have a very different story. But it feels very nice to not be alone when you face something this horrid. So thank you for doing this and allowing me to be a part of that and hopefully reaching others the way that you’ve reached me in this time. So thank you.

    Winter 1:06:11
    You’re welcome! It is our pleasure. It is our pleasure. I mean, as much as it stinks to be a part of this club, right.? We’re in it together.

    Jess Hennessey 1:06:11
    Yes we are.

    Winter 1:06:23
    Well thank you again.

    Transcribed by https://otter.ai

    Filed Under: birth story, early neonatal infant death (<7 days), infant death, podcast episode Tagged With: infant loss

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    We're Winter and Lee Redd. Because of our sweet son Brannan who was stillborn at 38 weeks, we created this place where other moms and dads can share the birth story of their baby that was stillborn or who died in infancy.

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