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Winter

After Stillbirth: Angelica, Grieving Mom Shares How She’s Dealt With The Loss of Her Son

February 9, 2022 by Winter

Mom Angelica sits down with Winter in this interview to talk about the trauma of finding out her son would be stillborn and giving birth to him via Caesarean section, how she transitioned back to work as a NICU nurse, and what’s she’s done to cope after Ezra’s death. She also shares things that you should and shouldn’t say to a loss mom or dad.

Watch here (YouTube):

Listen here (podcast):


Time Stamps:

00:00 Welcome
02:09 After Ezra’s birth (stillborn) and what helped
07:57 Work
15:02 Physical reminders of Ezra
24:54 How has Nick (husband) handled everything
36:27 What not to say and what to say

You might appreciate these other episodes:

  • Watch/listen to Angelica’s birth episode of son Ezra: Click here
  • Watch/listen to Tiffany‘s birth episode of daughter Khyana’s: Click here

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Ezra, born still

Full Transcription:

Winter 0:00
Welcome, everybody to Still A Part of Us.

Winter 0:02
I am Winter. I’m one of the hosts of this show. We’re going to be talking with Angelica a little bit about her experience with the stillbirth of her son Ezra. A couple of things before we get started, just housekeeping things, this conversation is full of triggers. So if you are not in a good place, please do not listen, do not watch, we want to be as helpful as possible. And if you’re not in a good place, please just be aware that we will be talking about a lot of different things that could be hard to listen to. So please just be aware of that. If you are part of our community, if you are a lost mom, lost dad, hit the subscribe button. We are here to help build community. So please join us and help each other out.

Winter 0:43
Once again, Angelica, thank you so much for coming on and chatting with us about Ezra. If you did not get a chance to hear her birth story, you will cry. Because I did. Please check that birth story out. Angelica, thank you once again for coming on today. And discussing some things that have helped you and have not helped you. So welcome. Once again.

Angelica 1:06
Thank you so much and thank you for again wanting to hear my sons story.

Winter 1:10
Oh, yeah.

Angelica 1:11
It is so wonderful to be able to tell it.

Winter 1:12
Yeah. Yeah, it is. It is. Tell us again, just so that everybody is kind of brought up to speed. How long ago was Ezra born?

Angelica 1:21
He was born on June 1st of 2020.

Winter 1:25
So at the time of this recording, it’s been just about 10 months or so. So still very new still very raw. I’m going to just be like– that first birthday coming up is that can be that’s going to be a milestone that can be a little tricky. We’ll talk a little bit about that as well.

Winter 1:45
Also, just a little bit of context, Ezra was stillborn at 33 weeks, so that everybody knows where we’re coming from. So, Angelica, tell me how it’s been these last 10 months for you. How’s your grief been? How have you approached it, I guess? And how have you dealt with it?

Angelica 2:09
To start with it was really, really rough and dark. It just was. Everything just got so dark. This first couple of weeks, I think I was actually so despondent that my husband was concerned that I would do something drastic. That’s what he told me. I’ve done talk therapy before, but he looked at me, he said, “If you’re willing to do it, just for a week, you know, I really think you should.” So I did start to go to counseling in the first two to three weeks, following Ezra’s death. That did help quite a bit. I went about twice a week for several months, and then eventually went down to once and for several months. Now it’s kind of been titrated to about once a month for the past two months or so.

Winter 3:10
It sounds like it has been somewhat helpful.

Angelica 3:14
Yes, yeah. I found that it was really helpful for me to talk about him. To talk about what happened. I just didn’t realize how much it would be helpful to talk about him. Because there are so many other instances where I’ve met parents who just don’t want to talk about what happens at all. If you want to sweep it under the rug for the moment, and just kind of move forward. I thought to myself, am I doing this wrong? Because I feel like I want to talk about him more? Or am I productivities support groups, that kind of thing.

Angelica 3:58
I didn’t actually start going to support groups until about two months after and it started with local support groups.

Winter 4:04
Yeah.

Angelica 4:06
That I found another organization. It’s called the Star Legacy Foundation.

Winter 4:10
Oh, yes.

Angelica 4:12
Which I imagine somebody has to have mentioned.

Winter 4:14
Yeah.

Angelica 4:15
Once before here, but they had a physician who was doing a seminar on umbilical cords. Because we don’t really know what happened to Ezra I thought, well, maybe he’s got information that will give me an a-ha moment.

Winter 4:33
I see.

Angelica 4:33
So I can talk to my doctor about it and see if that could have been part of what happened. Then from there, found the support groups on there.

Winter 4:43
Great. It makes a huge difference when you are sitting with somebody that has had a very similar experience to you. Not having to kind of explain all those feelings that you have and if they’ve never experienced before, because you mentioned that before in your birth episode. Your background is as a NICU nurse, a neonatal intensive care unit nurse. So you’ve always had that idea that there’s a possibility, right? You’ve seen people have lost before. But you said something that struck a chord with me where you said, “I had no idea, even though I understood it, until you actually have felt the loss yourself.” It’s totally different. Right?

Angelica 5:25
It really is. Because in a report, when we’re talking about our patients, we talk about their moms, we talk about the birth history, and that includes mom’s birth history as well. So if parents have had a previous loss, then we generally know about those. Anytime that you hear about somebody who has had previous losses, it just– before losing Ezra, would just make my heart sink. But now it makes me weak at the knees, just thinking about what that person is going through. So yeah. What other people will have the ability to imagine doesn’t even touch with the actual experience, regardless of how much they worked on it, how much they tried to understand it. I’m grateful for that. I am so grateful. But there are people out there who try– who work with those who have lost, but who have never experienced that loss themselves.

Winter 6:31
Yeah.

Angelica 6:32
I think that’s– I’m grateful that they haven’t been through that themselves.

Angelica 6:37
Yeah, but are willing. Oh, yeah, I was gonna say shout out to my therapist, same thing with her. She’s never experienced that kind of loss, but she has helped us so much. So yes, I completely agree with you. Then there are some people that are still doing wonderful things, despite not having had that loss. Thankfully not having that loss. So you have gone to see a therapist. Also some of these grief groups that are– you can also you can find them kind of online, you can meet electronically, I guess, which is so so nice. Especially at this time when meetings, like in person meetings, are not happening. I believe my hospital– I don’t think has any of those in person meetings. It’s all zoom right now. Anyway, so. So yeah.

Angelica 7:26
That’s us too. I think that the pandemic has made this technology more accessible.

Winter 7:34
Yeah.

Angelica 7:34
And, and so I think, as awful as things have been over the last year for so many different reasons. You know, I think that aspect of things has been helpful.

Winter 7:48
Yes.

Angelica 7:49
It’s been really helpful to have the access to those people. electronically, virtually.

Winter 7:55
Yeah, virtually. Yes, it is. Yeah, it is a blessing. That’s a little silver lining of the pandemic, right. And when you obviously you had Ezra, and he was, this was a big surprise. Obviously, not expected you were 33 weeks. Were you allowed to take some time off to after his birth?

Angelica 8:18
Yes, yes. I originally asked them just to allow me to take whatever I was allowed for maternity leave. Originally, I was approved for nine weeks off. As I was getting to like the seven, eight week mark, I started to panic about thinking about going back to work.

Winter 8:38
Yeah.

Angelica 8:38
Because I just didn’t know if like, I didn’t even know if I could physically enter the hospital, let alone walk those same halls.

Angelica 8:47
Yes.

Angelica 8:48
You know, go back into the unit where I was just hours before I was admitted. And found out that he was gone. So I just didn’t know. So I petitioned for three more, which I had. It was within the policy to allow me to have that extra time.

Winter 9:11
Right.

Angelica 9:11
But they were very gracious. So I was able to take 12 weeks off. And I needed every last day.

Winter 9:18
Yeah. Great. That’s great. And transitioning back to work. So you did you go back to the NICU?

Angelica 9:26
Yeah I did.

Winter 9:28
How did that happen?

Angelica 9:29
It has been a whirlwind. I started off the first week or so. The first week or so I was with a fellow employee, one of my peers. Almost like I was being oriented back onto the floor. Because I knew that if something happened, I needed somebody who’s going to be able to watch my assignment. Right then and there. I wasn’t going to be able to wait for somebody who could come and take over for me in 20 minutes when they were done with their assignment elsewhere. I just needed someone who could take over the reins. I knew that the kids were safe, because my biggest concern was that I wasn’t going to be a safe nurse that I was going to be distracted. It started out in small increments. So I think I started out with four hour increments, went to eight and then eventually worked my way back up to full 12.

Winter 10:39
Right, right. I think that’s and was that something that kind of worked out with your nurse manager too? To create something that kind of schedule so that you could feel like you were easing back into things?

Angelica 10:54
Yeah, I did talk with my nurse manager. They kind of worked out what types of assignments I should be taking as well as to make sure that they weren’t giving me little boys named Ezra, or 33 weekers. You know, just to kind of be sensitive about the details surrounding Ezra’s birth. And helping me to come back just because– don’t ask me why they want me back. Because I feel pretty worthless as a NICU nurse somedays. But they’ve been very kind too. They’ve been trying to help me to adjust back.

Winter 11:44
Yeah, praises to you– seriously, they have just to pay attention to like you said the details. The fact that they’re like if this patient is a like a 33 weeker– that this baby is a 33 weeker. That’s those little things that can be triggering. The fact that they are paying attention is cool, like that is very sensitive and cool of them to do that. Or to be aware of that.

Angelica 12:08
Yeah they are amazing.

Winter 12:09
Yeah.

Angelica 12:10
My co-workers have been amazing. And actually, so because he was born early, because we delivered early, I didn’t have those extra weeks PTO. So I think I was able to cover seven weeks of PTO on my own. All the rest of it was PTO donation.

Winter 12:32
Oh.

Angelica 12:32
From my co-workers.

Winter 12:34
That is awesome. That is so kind.

Angelica 12:38
They fed and clothed my family and kept the lights on for five weeks. It’s hard to know how to say thank you to them.

Winter 12:50
Yeah. Yeah. That’s really great. I think that’s– good job coworkers!

Angelica 12:59
They are just amazing.

Angelica 13:01
Yeah, yeah. Now your backup to like, full time shifts. And how is it? How’s that been? Are you doing? Are you? How’s that? Are you? Are you doing? Okay? Like, I just I can’t imagine honestly, working on the NICU so. I just like oh, oh, yeah.

Angelica 13:16
I’m actually not working full time I’m point six.

Winter 13:19
Oh, okay.

Angelica 13:20
I’m working two days a week.

Winter 13:21
Okay.

Angelica 13:22
That was always the plan.

Winter 13:23
Oh.

Angelica 13:24
That was always the plan for us, for me to go to point six after Ezra was born because our intent was for me to be able to spend more time with the kids. Then to kind of minimize the amount of childcare.

Winter 13:35
Yes, Yes, for sure.

Angelica 13:36
But after Ezra passed I just thought to myself, I don’t know that I can force myself to be on the floor any longer than that. You know what I mean?

Winter 13:43
Yeah.

Angelica 13:44
Just because, as you probably know it, you spend all of your days off, just accruing as much energy as you can so that you can be functional and have your head on straight. I feel like those two days at work every week, they take every ounce of energy that I have collected over, you know, a couple of days at a time.

Winter 14:14
Yeah. That is a great way of putting it. You do need to store it up. To yeah, to be on task, I guess. Yeah.

Angelica 14:25
Yes and for me, I just, I don’t want to be a liability.

Winter 14:34
Right. Yes.

Angelica 14:36
After losing my own child, I couldn’t live with myself knowing that I had contributed to the loss of somebody else’s child. So when I’m at work I try to be–

Winter 14:48
You’re on, Yeah.

Angelica 14:50
Focused as I possibly can be.

Winter 14:52
Yes.

Angelica 14:53
And as attentive to detail as my brain will allow.

Winter 14:57
Yeah.

Angelica 14:57
So far, they haven’t asked me to leave. I think that’s a good sign.

Winter 15:02
Yeah I think that it’s a good sign. Well, yeah. Angelica tell me what you have done in order to kind of remember Ezra. I know you mentioned in your birth story that they gave you a weighted teddy bear. I think some people don’t know about these kind of weighted teddy bears or weighted stuffed animals where it’s the same weight as your child. Oh, you’re going to go grab it yay!

Angelica 15:36
So I have two.

Winter 15:39
Oh look at that!

Angelica 15:40
So this is the teddy bear that they gave us in the hospital.

Winter 15:44
Uh huh. Oh, he’s really cute.

Angelica 15:46
He actually weighs less than Ezra, but it’s strange when you’re cradling them in your arms. They just feel so small.

Winter 15:56
Yeah.

Angelica 15:57
And so weightless. So when I was holding him, I thought to myself that you know that they had to be around the same weight, but they aren’t. At least not with the Molly Bear that we got later on. I think this is a brand that’s called the comfort cub.

Winter 16:17
Cute.

Angelica 16:21
This is the Molly Bear that we made.

Winter 16:25
It’s got his name and everything. That’s so cute.

Angelica 16:29
It sas his metrics on the foot.

Winter 16:30
Oh, that’s great. Is that something that you can have like custom with the Molly Bears?

Angelica 16:36
Yeah.

Winter 16:36
Okay because we don’t have one. That was not on our radar because I did not know that there was something you could do like that. Then I started talking to more people. I was like, oh, maybe I should get a Molly Bear. That would be fun to have something that is his weight kind of represents our son.

Angelica 16:54
You can get one at any point.

Winter 16:56
Yeah.

Angelica 16:57
My mom actually had a pregnancy loss between my brother and me. So that’s, you know 30 plus years.

Winter 17:09
Yeah.

Angelica 17:10
And she got a Molly Bear.

Angelica 17:11
Oh, that’s great. So, how far along was her loss? I’m curious.

Angelica 17:20
She was about 17 weeks along.

Winter 17:22
Yeah.

Angelica 17:23
But it was the 80s, so I mean, in circumstances where maybe a nurse would have offered to let her hold the baby, or see the baby they didn’t give her that opportunity. They didn’t let her labor. They just did a DNC patched her up and sent her out the door.

Winter 17:41
Yeah.

Angelica 17:42
They don’t even really know what happens to the baby.

Winter 17:44
Yeah, isn’t that just I’m so grateful when I hear stories from different times that I’m like, we are a little bit– it seems like we get a little bit more time to be with our child to figure out things. To be able to mourn and grieve. That it just yeah, so grateful that it’s a little different than back in the 70s, or a different time. That’s cool that she was able to get a Molly Berry. I think that’s great. Um, any other things that you guys have to remember Ezra by?

Angelica 18:20
A lot of people have given me jewelry. So I have a ring with his name on it? I don’t know if you can see it.

Winter 18:27
Oh, yeah, it’s a little small but that’s okay!

Angelica 18:29
Bracelets and then I actually had this necklace made.

Winter 18:30
Oh look at that.

Angelica 18:35
It has his picture on one side then–

Winter 18:42
Oh, I love that!

Angelica 18:45
Then his date of birth on the other.

Winter 18:46
Look at his cute little footprint. Those are so cute. Did you just have that made?

Angelica 18:53
You send the photo files to them. Then they just adjust them to size.

Winter 18:59
That is great.

Angelica 19:00
Then they put it on there. Other people have sent us lots of things like that to just really thoughtful things, but then we have the things from the hospital as well. So we have his little footprint.

Winter 19:14
Oh, I totally can’t see that. It’s a little too. Oh, I see it there it is! That’s perfect. That’s perfect. Okay.

Angelica 19:24
Then the hospital gave us– so this is a blanket that they said for Philippa.

Winter 19:29
Oh for her.

Angelica 19:32
Then they also sent her a teddy bear.

Winter 19:34
Oh, that’s so sweet.

Angelica 19:35
Then we have photo books like I made this one for Pippa because the one that Now I Lay Me Down to Sleep got made for us is really big.

Winter 19:47
Oh!

Angelica 19:48
Every time she tried to pull it down, I was worried that she was going to give herself a concussion. So I made her a little one that has so you can write on the inside out.

Winter 20:00
That is so cool.

Angelica 20:03
It’s small for small hands.

Winter 20:05
Yeah, so she can reference that. Oh, that. So um, so the big album is from, so I lay me down to sleep that is cool. I didn’t realize that they made albums.

Angelica 20:17
It’s actually from I can’t remember the name of the company, but they’re contracted through the hospital.

Winter 20:28
Okay.

Angelica 20:29
So the hospital kind of links them together.

Winter 20:32
Yeah.

Angelica 20:32
Now I lay me down to Sleep. Then they just make a photo book for you.

Winter 20:36
That is really cool.

Angelica 20:38
Using the files that they took when they got the photographs.

Winter 20:42
Yeah.

Angelica 20:42
In the hospital and having it.

Winter 20:46
Yeah. Yeah. Oh, yeah, that looks awesome. And what a beautiful, like, kind of just a remembrance, being able to flip through those photos regularly and easily. So I think that’s awesome.

Angelica 21:01
Then they made– When I thought about what I was going to do for a baby book, because I was thinking about that after the fact, I just broke down. I was looking online, and there is a memorial baby book that they make called I love you still.

Winter 21:17
Yes, I have seen that. But I have not gotten it. So you can just put–

Angelica 21:23
That’s Pippa’s contribution. But it has information about you and you can put pictures in what your family looks like before that. So then it goes month by month. So for seven months, and eventually, you get to the point where you were when you lost. So there are just blank pages. But it’s a way to kind of include that information. I feel like it’s almost like a self help book too. Because at the back it’s got prompts like, how have you changed? What things have helped you? I am grateful for.

Winter 22:10
I think that’s so–

Angelica 22:11
You can use it like a journal.

Winter 22:14
I am, I will share a link to that because I have like I said, I that just barely showed up on my radar. And I was like, Oh, I might need to check that out. That is really cool. There’s kind of this option to create a baby book in a sense. Yeah, cuz you would record you would record all those things.

Angelica 22:34
I remember writing them down after we came home from the hospital. It was pretty quick after that, I started to write things down just because I could feel the fog starting to set in. It’s still there. You know, I still feel so foggy. But having some of those things in writing.

Winter 22:54
Yeah.

Angelica 22:56
Is helpful. It can help me to jog my memory a little bit. Every time that I feel like his memories are slipping away, I just feel like I’m losing a part of him. It’s just hard.

Winter 23:09
Yes. Yeah, those memories are– Writing it down writing things down has been key for us, too. So even if it’s just a quick note on my phone. If I remember something I try– we tried to do that, like I do that on my phone, my husband, I know that he usually keeps a little notes file as well. And so yeah, I think writing it down as quickly as possible is always super helpful. Then I have actually really enjoyed going back and looking at some of the things that I wrote. I do notice some changes, right? Like you.

Angelica 23:47
Yeah.

Winter 23:48
Yeah, you kind of notice changes in yourself. Then also, like, Oh, I don’t remember that. But then now it jogs my memory to something else that I had felt at the time. So yeah, so–

Angelica 23:59
I’ve always been horrible about writing, started journal, and then put in a couple that five years later stumble upon it again. But I was amazed by the number of people who gifted us journals.

Winter 24:14
Yeah.

Angelica 24:14
I thought, okay. So I did start writing in a journal.

Winter 24:19
Great!

Angelica 24:19
I figured that, you know, I can’t, I often can’t write in a diary, like dear diary, you know, because for some reason, it just doesn’t. It doesn’t establish a habit for me.

Winter 24:34
Yeah.

Angelica 24:34
So I’ve started writing letters to him.

Winter 24:38
Oh, okay.

Angelica 24:39
Letters to Ezra like I’m talking to him about the day. Things that I was thinking about that day, ways that I was thinking about him. The things that reminded me of him, just like having a conversation with him.

Winter 24:51
Yeah.

Angelica 24:52
That’s been helpful.

Winter 24:54
That’s awesome. A little bit of inclusion in your day. I like that a lot. So, Nick was, you mentioned your husband, Nick, he was very, how has he handled all of this in this? The last 10 months?

Angelica 25:14
He like me, he has just been kind of all over the map because it’s just a roller coaster of emotions. It really is. But to start with, he just seemed so strangely serene. You know, I mentioned that when they first wheeled me into the recovery room, and I saw him there holding Ezra. He was telling me that another baby had been born. And I said, I started to cry. And he said, No, it’s okay, we’re grateful that their baby is okay, and grateful that everything is okay for them. He just kept repeating that word for the subsequent three or four weeks. I’m just so grateful and grateful, I had a chance to meet him and hold.

Angelica 26:02
As time passed, I could tell that he was definitely just trying, he was trying to kind of keep it together for me. To a certain extent, because he has definitely had his moments where he needs to be the strong one, or he just needs somebody else’s support. I kept telling him not to do that at the very beginning, because I knew that he was bound to. I just didn’t want him to feel like he had to bear the weight of everything, and do all the hard stuff, especially when you’re making plans for a funeral. One of the photos that I shared with you is the final draft of Ezra’s headstone. Nick actually designed that. So, you know, just having to do all of these hard things, and to not have help and support yourself. I just wanted him to know that he didn’t have to do that to himself, you know, that he is worthy of having help.

Winter 27:07
Yeah, I am actually a little curious about if Nick, how the process of designing Ezra’s headstone was for him. My husband, and I designed our we, we actually got a little bench for our son. I found it strangely therapeutic to do that, because it was like, I would be, you know, setting up a crib for him, or, you know, doing something, it felt like a thing I could do for him. Like I was gonna create something. So I’m just curious to know if Nick felt some sort of, like, Hey, I’m doing something for my son, like, I’m making him something, you know, like just interesting.

Angelica 27:53
You know, I had never asked him that specifically, but I know that after he would after he passed a couple of hours of work on the design. He would seem like he was pretty emotionally depleted.

Winter 28:09
Really?

Angelica 28:12
You know, but they came out so lovely. It just I can’t help but think of it as a labor of love.

Winter 28:21
Yeah.

Angelica 28:22
On his part.

Winter 28:23
Yeah, for sure. I that’s really cool that he did that. Because that is, I’ll be honest, I was totally checked out that fog had set in when we were planning funeral stuff. I was so grateful for Lee because he really just like I said, he, I felt like he stepped up. He was like, I gotta take care of this. I gotta take care of my family. This is the way I’m going to take care of my family as best as possible. So sounds like Nick was that way as well?

Angelica 28:53
Yeah. It is amazing. Oh, my gosh, it was amazing. Just how the shock affects you. There are so many beautiful things that I’ve heard other parents have done for their kids. I think to myself, that’s an obvious one. Why didn’t I do that too? Like, for example, at Ezra’s funeral there were no flowers. It was June. You know?

Winter 29:19
Yeah.

Angelica 29:21
I didn’t even think about the fact that there should have been flowers. Some people said that they played music. My head just was not there.

Winter 29:29
Yeah.

Angelica 29:31
And I don’t know why.

Winter 29:32
Well, I mean when was the last time you planned a funeral? Angelica, like really? It’s, it just is that you just don’t ever think you’re going to be planning a funeral, you know, at our age, right? So why would you know, to get flowers. The only reason why we had flowers for our son was because my mother in law said, usually, you get some flowers and I’m like, Oh, okay. We’ll order some flowers. Like Somebody had to tell me what to do. And I was grateful for that. Because like you said, I just didn’t have a head on my shoulders at that time I was completely out of it.

Angelica 30:08
It’s not like we didn’t have flowers. We had flowers.

Winter 30:14
Yeah.

Angelica 30:14
I think before all of us, we had one vase that would disappear every single time that we needed it. Now I have a closet full of vases. I almost kind of can’t stand having flowers in a vase in my house, just because of how many flowers that were, it’s almost a triggering thing.

Winter 30:35
Yeah.

Angelica 30:37
But I could have gathered together any one of those and had like, you know, a big bouquet for his funeral. My brain just was not there.

Winter 30:48
Yeah. That, I think, is completely understandable. It’s completely understandable. So I am curious, if you have had, if somebody did something for you, or said anything to you, that was like, you want to remember that. And it was so you, you really appreciated what they said or what they did for you, in the last 10 months.

Angelica 31:13
That varies. So that morning, the morning that Ezra was born, we were sitting in a hospital room, and flowers arrived. I don’t have the butterfly, the butterfly is somewhere else. But it was this arrangement from downstairs. It had a butterfly on it and had a card. It was from the neonatologists and nurse practitioners on my floor. Because they knew what had happened. It’s not like I had told anybody.

Winter 31:46
Yeah.

Angelica 31:46
But they knew what had happened. They cared enough to send me something to say we understand. This sucks. Since then, so many people have done the same that they’ve brought forward and I feel like I am eternally indebted to so many people. The list is just too long for me to really pinpoint any one particular person because

Angelica 32:15
I just felt so much love and support in a time when that kind of thing feels impossible. With a pandemic and with the concerns that you have of potentially making somebody else sick. You know, people who would come up and look at me and say, I’ve got a mask on you’ve got a mask on can I give you a hug? I think one thing I remember is that I hadn’t been hugged by anybody other than my husband and daughter for months, right. I got more hugs in the couple of days following my son’s death than I had from January, February on.

Winter 33:12
Yeah.

Angelica 33:13
I mean, it was just that human touch that I had forgotten was so necessary. They were there when I needed them. There were so many people who showed up, who I haven’t talked to in ages. But they offered to make food and take my daughter to the park and sit with me and cry with me. Like I was saying with my co-workers who sacrificed their own time off, so that I have a couple of extra weeks to pull myself together. To determine whether or not I was going to be able to go back to work. Now I feel like I have no choice. You know, how can I? How can I leave someplace full of some wonderful, amazing human beings?

Winter 34:07
Yeah.

Angelica 34:09
I just feel so grateful. Despite the awful nature of the experience, though. I feel so grateful to have so many people in my life who love me, it just gives you this, this renewed faith in humanity.

Winter 34:29
Yes, that is a perfect way of putting it actually. Because Yeah, we felt, yeah, just the love, like we just felt so cared for and loved. Sounds like you had a similar experience, which is very, it’s wonderful. It’s wonderful.

Angelica 34:47
And just hearing people wanting to talk about him. Even though it’s really awkward sometimes triggering things that people say regardless of how many of those I have countered, I just find that anybody who is willing to talk about him with me, I just appreciate them so much.

Winter 35:12
Yeah.

Angelica 35:13
Because I know that when you’re talking about a stillborn baby it’s kind of a conversation stopper. But anybody who looks at you and says tell me more, or I getcha, you know, you can talk, talk about him any time or call me anytime that you’re having a really rough go of it. Those people who have reached out to help when you have no clue what to do, when the only thing that you can say is, what do I do next? Because I think that was the question just cycling in my brain for, you know, in the hours and weeks following Ezra’s death. I was just thinking to myself, what do I do now? You know, I just need somebody to tell me what I need to do. Because I can’t make those decisions. Or I can’t make this. I can’t determine what needs to be done on my own anymore. My brain just is not there anymore.

Winter 36:24
Yeah, that’s. You say that and I was like, Oh, yeah, that’s exactly how I was. I could not wrap my brain around things that I needed to do. Like, yeah, thank goodness for people that kind of kept our lives together for those months after. Yeah. It’s just so traumatizing. It’s just so traumatizing. Is there? You have mentioned that people have said some awkward things, obviously. Is there anything that maybe is not the best thing to say to a lost mom that maybe has rubbed you a little wrong? I don’t want you to call anybody out. I don’t want you to. Yeah, I don’t want you to call anybody out. But if there’s anything that is because I know that people just want to know what to say, right? They just want to know what to say. And they kind of want to know what not to say I think so that it just makes it like not so awkward, I guess.

Angelica 37:22
To start with, like if at the very beginning, I really struggled with religious platitudes. You know, God has a plan for everything. You know, there’s a reason for everything. Just because I, my husband and I, we’re, we were raised Catholic, but we haven’t been practicing. So there was just a part of me that just couldn’t wrap my head around this idea that there was a, you know, at the moment that there was a reason for his death. I just thought that stung a little bit.

Angelica 38:01
But I think as time has passed that it’s become less triggering. But initially, it was extremely triggering. Then just anybody talking about, you know, somebody else’s pregnancy for somebody else’s baby, really close on. Really close to the loss itself.

Angelica 38:24
I remember there was a friend of mine who came in and she’s very sweet and asked her how she was doing because she’d asked me how I was doing. I was just trying to normalize things. In the days after we got home from the hospital. Oh, things are good. She was talking to me about a mutual friend of ours, she said, yeah you’re not going to see them for a couple of weeks. Because they’re going into quarantine for about two or three weeks before their baby’s born. But the babies do like early June or something like that. Early July, early July or something like that. Ezra was due on July 15. His c-section was scheduled for July 9. I just fell apart.

Angelica 39:10
So I think that just talking about babies and pregnancy in general can be good for green, but I think it’s so hard. It’s just so so hard. And I feel like anybody who is even willing to try should be given grace.

Winter 39:29
Yeah.

Angelica 39:30
Because they’re willing to enter that awkward zone with you. Knowing that, you know that not everything they say is going to feel just right. For every person. It’s so different. But I think the thing that helps the most is just all of those comments that are validating, you know, like giving those people the space to talk about what they’re feeling. Thinking and then saying, Yeah, it does suck. Yes, this is hard. Yes, I hear you. Just confirming that they’re not alone.

Winter 40:13
Yeah.The validating and the confirming of your feelings. I think sometimes we’re so apt to you know, like you mentioned before you kind of push away those feelings or you sweep them under the rug or you just kind of push them away like I’m not sad. I’m not angry, I’m not all of these things, I’m not depressed, I’m not anxious, whatever. We have these feelings and to have somebody say, yeah, this really is hard. And this is horrible. This is devastating. That helps us emotionally when somebody validates what I’m feeling.

Angelica 40:53
Yeah, that’s a great way of putting it. There is this book that one of our friends gave us. Actually, it was a whole family, they pulled together and they got a book, and then they got a little bunny rabbit. For Pippa, it looks like the bunny rabbit.

Angelica 41:11
It’s called the Rabbit listened. It’s the story about this little boy who had built up this tower with blocks. Then this, you know, this flock of black birds came down and knocked it down. He’s just sitting in the midst of this beautiful thing. Various animals are cutting through. You know, the bear says I want to be angry about it, you know, let’s be angry. But even the little boy doesn’t say anything because he doesn’t want to be angry at that point. So it just goes through these animals. At the end, it has a little bunny rabbit who just sits there. And then just comes and sits next to me a little bit quietly until the little boy is ready to say something. Then eventually the little boy doesn’t want to be angry, a little boy does not want to talk about what he remembers, and he doesn’t want to be sad if he tells him what to hide. The little rabbit is just sitting there just listening. So it’s a good reminder to me to do that for the other people in my life. Because I’m not the only one who lost someone.

Angelica 42:17
You know, my parents and Nick’s parents lost a grandchild. Our siblings lost a nephew.

Winter 42:25
Yeah.

Angelica 42:27
You know, our close friends. We always refer to them as aunts and uncles. I mean, they may well have lost a nephew as well. And, they all have really complex feelings around them. So, you know, no one can be together. And even though you’re not experiencing things the same way. You can be together and it helps so much.

Winter 42:50
Yeah. That grace that you give others as well. Is really important.

Angelica 42:57
Yeah.

Winter 42:58
So important because it’s really easy to forget that there are other people that lost someone important to them, too. Yeah. Yeah. Oh, that just reminded me of my in-laws, who they love. They love our son so much. And they have expressed that. So that’s a good, that’s a good reminder. This has been a really wonderful conversation. I really appreciate all that you’ve said and shared with us. Is there any last bit of advice that you would like to share with either somebody that is going through this right now, or maybe somebody that’s supporting a lost mom or lost dad?

Angelica 43:44
Lost parents I would say, just be gentle with yourself. There is no wrong you’d agree. And anything for anybody, anybody whose parent has lost a baby or somebody who’s trying to support them to reach out, just continuing to continue to reach out for those resources. For those people who can help you there are so many wonderful ways that you could help each other through it. You know, when you’re ready, those resources will be there.

Angelica 44:23
You don’t have to go to a support group right away. You don’t have to start searching for other lost parents trying to grant yourself right away. But when the day comes that you feel like you’re ready they’ll be there. Those organizations will be there. There are actually support groups for families for family members. One of them is through the Star Legacy Foundation. They have a monthly meeting for grandparents, aunts, uncles, friends, people who just want to be there. Just keep reaching out because for as lonely as this feels, you’re not alone.

Winter 45:16
Thank you so much Angelica, that’s some very good advice.

Transcribed by https://otter.ai

Filed Under: advice, late term stillbirth, podcast episode, stillbirth Tagged With: advice, stillbirth

C-Section Birth Story of Ezra, Stillborn at 33 Weeks | Rest In Peace, Sweet Baby Boy

February 9, 2022 by Winter

Mom Angelica, a NICU nurse based in Idaho, USA, tells of how she and her husband Nick expecting her 2nd baby Ezra. Her pregnancy was going fine till around 33 weeks, when she noticed that he wasn’t moving around as much during a work break. She went home, worried and tried to calm her fears, but got even more worried when she couldn’t find his heartbeat using her own stethoscope. She and her husband wen to the hospital (during the COVID pandemic), and were told that there was no heartbeat.

Angelica delivered her son Ezra in June 2020 via C-section. Despite all the restrictions due to the pandemic, their parents and some family were able to meet Ezra after he was born. At the time of the recording, the cause of Ezra’s death was unknown.

Watch here (YouTube):

Listen here (podcast):


Time Stamps:

00:00 Ezra
01:22 Angelica’s intro
05:32 How was pregnancy
12:06 When they found out
31:27 C-section and meeting Ezra
36:57 Time with Ezra
48:07 Funeral arrangements
53:50 Did they find anything?

You might appreciate these other episodes:

  • Watch/listen to Angelica’s advice episode of son Ezra: Click here
  • Watch/listen to Tiffany‘s birth episode of daughter Khyana’s: Click here

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  • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
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  • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.
Angelica with her sweet Ezra

Full Transcription:

Angelica 0:00
Ezra Wilde

Angelica 0:08
He had dark blonde hair, and his second toe is longer than his big toe. Just like his papas. And when he was born he looked like his sister.

Winter 0:22
Welcome to Still A Part of Us a place where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter.

Lee 0:29
And I’m Lee, we are grateful you joined us today. Please note that this is a story of loss and has triggers.

Winter 0:35
Thanks to our lost parents who are willing to be vulnerable and share their children with us.

Lee 0:39
If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

Winter 0:46
Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they’re still a part of us.

Winter 1:02
We are so excited to have Angelica here today to talk about her sweet son, Ezra. Angelica, thank you so much for coming on to talk to us about Ezra. Tell us a little bit about yourself. Where are you? Who are you? Where are you from? What do you do? Yeah, where? And guess where you were at the time of Ezra’s birth.

Angelica 1:22
Thank you for having me. I really, really appreciate you wanting to hear his story. My name is Angelica. I am 32 years old. I live in Idaho. I’m a registered nurse. I have worked for eight years, but the last four years have been in the neonatal ICU, which has been kind of an especially interesting challenge as of late.

Winter 1:49
Yes, I am sure.

Angelica 1:53
But I was working full time when I was pregnant with him. Kind of through COVID, too, but nothing really ever changed for me because I was still working in a hospital setting. So–

Winter 2:06
Yeah.

Angelica 2:07
Still going in a few days a week.

Winter 2:11
Great. And what does your family look like who you mentioned Ezra’s papa? So–

Angelica 2:20
I have been married for almost 10 years to my husband, Nick. We have a three and a half year old little girl named Philippa.

Winter 2:30
Awesome. That’s wonderful. And anything you guys like to do in your spare time, any hobbies as a family? Or personally?

Angelica 2:39
My husband and I met in college in the marching band.

Winter 2:43
You did?

Angelica 2:44
Yes.

Winter 2:45
So what Okay, I got to ask what did you play in the marching band? Because I was in the marching band too.

Winter 2:51
Oh, really?

Winter 2:52
Uh huh.

Angelica 2:52
Oh, I played alto saxophone.

Winter 2:55
Nice.

Angelica 2:56
Nick played the trombone.

Winter 2:59
Wonderful. That is, I have fond memories of the marching band. So I love that you guys met in the marching band.

Angelica 3:08
I mean, after college, we would play in wind ensembles together. But it kind of dwindled after Philippa was born. Now with COVID it’s not really all that safe to be playing the wind instruments.

Winter 3:22
Exactly.

Angelica 3:25
But that was what we used to do for fun. Then just spending time with our family. We have extended family fairly close. Nick’s parents live about two minutes away. Mine are about five minutes away.

Winter 3:37
Oh, that’s great.

Angelica 3:39
My brother and sister in law live about two minutes away as well.

Winter 3:42
Now, that’s a blessing I have found to have family nearby. So that’s wonderful. I know we’re going to touch on this a little bit later. But I just wanted to point out that you are a NICU nurse. That is quite heavy I’m sure. So I appreciate you coming on because this can probably lend a little bit more of a different perspective for our listeners. So thank you so much for coming on again.

Angelica 4:13
Thank you so much.

Winter 4:15
So yeah, and when was Ezra born? Can you give us kind of some context, you don’t have to give his exact birth date, but can you give us like, how long ago was it that he was born?

Angelica 4:27
He was born on June 1st of 2020.

Winter 4:30
Okay.

Angelica 4:31
It has been a little over 10 months?

Winter 4:33
Yeah, it’s still very new for you. I’m so sorry that it is so raw still I’m sure for you. So tell me, were you planning on getting pregnant with Ezra, any fertility issues, or was that something that was part of your general family plan?

Angelica 4:54
We were really fortunate to not have any fertility issues. But it did take us about seven months before we found out that he was on the way. It took a while and sometimes it can feel like forever. When you’re trying.

Winter 5:09
Yeah.

Angelica 5:10
When you’re talking when you’re trying to build your family, and you have this timeline in the back of your head, and you just realize exactly how little control you have over it.

Winter 5:20
Yeah, it’s so frustrating. But that’s great that you guys found out you’re pregnant. So he was planned and how was your pregnancy?

Angelica 5:32
It was actually, it was really good. Until, it wasn’t.

Angelica 5:36
Yeah.

Angelica 5:37
We found out we were expecting him in November of 2019. I just remember being really excited, but also really nervous, kind of anticipating something bad to happen before anything ever did happen. You know, I’ve just always been a very anxious person, and especially working in the NICU. I know, I’ve seen a lot of things that can go wrong. So I guess, in my head I’m trying to anticipate those things all the time. Which is not especially good for my mental health, but I was kind of cautiously optimistic.

Winter 6:18
Okay.

Angelica 6:18
When we found out that we were expecting.

Winter 6:21
Now as I’m actually a little curious, how did Philippas’ pregnancy go? Were you still cautious? Because of that?

Angelica 6:28
Yeah, probably for different reasoning. Well, somewhat. So I had just started working in the NICU when we found out about Philipa.

Winter 6:39
Okay.

Angelica 6:41
Before that I was working in the adult world. So they put me into all of these kinds of orientation types of courses with the new grads, because working with the neonatal population is very different. So I was learning about all of the things that could happen as they were happening. As I was meeting each of these milestones in my own pregnancy with my daughter. I was so worried, just so anxious that something could happen. Kind of bracing myself for something to happen and nothing did. I just was building up all of this anxiety. And oh, gosh, I don’t know. It’s just the way that my brain works I guess. If there were an Olympic event for worrying, I would have so many gold medals. I wouldn’t know what to do with it.

Winter 7:43
Yeah, I usually am very, I guess, cautiously optimistic as well. Because you know, you just have a few things. You’ve seen enough things you’re like, something’s going to go bad. Yeah. So your pregnancy was good. Did you guys find out that he was going to be a boy at the 20 week scan? Is that something you guys wanted to do and make sure that you knew?

Angelica 8:10
Yeah, mostly because when it comes to naming our children, we wanted to cut the name cooldown by half if we could.

Winter 8:21
Smart.

Angelica 8:22
So, it was actually about 17 weeks that we found out that we were having a boy. We were actually able to bring Philippa with us to that appointment, not because we planned it that way. But we just couldn’t find anybody to take care of her that particular day. So it was the three of us there. They didn’t plan to do an ultrasound, but did one so that Philippa could see him and hear his heartbeat. And the doctor said, “Well, you know, we’re still a few weeks early, but would you like to know if it’s a boy or girl?” And he said, “Tentatively, I can tell you you’re having a boy.” And then three weeks later, it was confirmed.

Winter 9:03
That’s great. Oh, that’s special that Philippa was able to be there too. That’s so fun. That was probably before. I mean, that was probably in the middle of COVID, too, wasn’t it? When you had that appointment?

Angelica 9:16
It was before lockdown.

Winter 9:18
Okay.

Angelica 9:19
Before lockdown at that point they were still allowing family to come with you–

Winter 9:26
Okay.

Angelica 9:26
–To your appointments. They hadn’t told us anything about not allowing children and we just figured that we would keep her the distance in case she happened to be one of those asymptomatic carriers, or something like that. Keep her away from the other parents.

Winter 9:40
Yeah.

Angelica 9:41
Then bring her into the office and keep her on the opposite side of the room from the doctor, but just you’re considering what happened. I’m just so grateful that she was there. I know that she probably won’t remember it. But–

Winter 9:54
Yeah, what a blessing really that is so special. For her to have been there. How are your other appointments? Were there? Was there anything at all that was of concern? I guess?

Angelica 10:06
Not really, actually. That was one of the things that made me feel so perplexed about this, just this feeling of impending doom that I constantly had through the pregnancy. About the only thing that was a little bit abnormal, was during the 20 week ultrasound when we were taking a look at his heart. There were three areas of echogenicity. I think it was his left atrium. Philipaa had one in her left atrium as well. I talked with the doctor about a little bit, but he said, “Unless there were more, more spots or more areas of echogenicity, that you can see that, he wouldn’t recommend a fetal echo.”

Winter 10:53
Okay.

Angelica 10:54
Just that they were small areas of calcification, and that he wasn’t concerned about it. So I tried to not be concerned about it, too. But he was healthy and strong and so active. I remember Philippa, she moved around a lot, but he was a little ninja in there.

Winter 11:21
Oh, that’s so great. So super active?

Angelica 11:26
Yes, extremely active and his movement was extremely predictable too. Which was something that I was really grateful for. Because that gave me a little bit of solace, when I would start to worry about something, you know. I think to myself, “Oh, I haven’t felt him move for a little bit.” Then he would give me a little jab and I know, he was okay.

Winter 11:47
Like, I’m hearing you mom. So that is going along just fine. Tell me what happened. What were those series of events that led to you finding out that Ezra was going to be still born.

Angelica 12:05
So it was a string of three days that I was working, starting from May, oh goodness, I think it was May 29. It had been really busy on the unit, just a lot of acuity. High census. Just a lot of work for all of us to do. I got to day number three.

Angelica 12:35
So at that point it was May 31st. I had a really busy assignment, and was finally able to slow down and get some lunch. It was about three o’clock at that point, three, or three thirty. I remember feeling him move around the time when I was eating lunch. But then I went back to my assignment. With everything that I was doing, I guess I just wasn’t paying attention to see if he was moving anymore, or at any point after that.

Angelica 13:05
So I finished up my shift and gave a report. I still had so much charting to do. So I sat down and was drinking cold water, expecting him to move, but he wasn’t moving. That set off alarm bells in my head. But I know that I’m an anxious person already. So I thought that I was just overreacting a little bit, that something just didn’t feel quite right.

Angelica 13:38
I finished charting and left the unit. I was walking to my car, and just checking my phone for any messages that I had missed. My mom had sent me a photograph of my grandmother. I realized that it had been 12 years since her passing. So she passed on the 31st. I don’t know why I felt like that was strangely significant. I just felt so sad.

Angelica 14:11
But you know, I was still talking to Ezra, still kind of rubbing my belly and walking to my car. Telling him that we were going to go home and see what his sister and Papa were doing. I got home and I remember just thinking to myself, like he hadn’t moved while I was in the car. I told my husband and at that point Philippa was already in bed asleep. So I actually think I’d given her a kiss on the forehead that morning when I went to work, but I hadn’t seen her beyond that. I was so preoccupied with the fact he wasn’t moving that I didn’t go in to kiss her goodnight.

Angelica 14:55
So, we had dinner and I tried to kind of elicit a little bit of movement. I think I ate an orange, trying to get him to move. Even brought out ice packs and kind of held them on either side of my abdomen to see if I could get him to do anything. My husband said, “Oh there, I thought I felt something.” And so I took a little bit of a deep breath. I thought, okay, well, maybe I’m just overreacting at this point.

Angelica 15:27
I took a shower, but I still wasn’t feeling that really significant movement I was accustomed to, and then we started to get ready for bed. It was a Sunday. My last day of work, I wasn’t going into work the following morning, but Nick was. So he started to get settled for work, or settle the bed prior to the new work week.

Angelica 15:53
I see that for a little bit and started a kick count. I actually pulled out my stethoscope and tried to find him. I could usually find him if I couldn’t hear him terribly well, at the very least I could hear his heartbeat. Even if it sounded distant there, you know, but I couldn’t find him. I started to panic a little bit. So about 23 minutes into the kick count, I stopped. I knew that I was supposed to go for about two hours or so, but I just haven’t felt anything for at least that one. So I called L&D and asked them what they thought, because I wanted to get their opinion. And make sure I wasn’t going in unnecessarily. They told me to go.

Angelica 16:50
It was also very late at that point. It was after midnight. So at that point, Nick had fallen asleep. So I went and I got dressed. I even remember looking up and down at things in my closet thinking to myself, okay, so if something is wrong, there’s something really awful has happened. What clothing do I not mind hating for the rest of my life?

Angelica 17:18
I woke my husband up and I told him that I was gonna go to the hospital. He asked me if I wanted him to have him go with me. I told him not to because if I was overreacting, I didn’t want to wake up our family and make them worry for nothing. Especially since everybody else had to work too. So I told him to stay with Philipa.

Angelica 17:47
I left and I remember leaving with a phone charger that I could have in my hospital room, my ID, my insurance card, my clothes and that was it. I didn’t even have a hospital bag packed and honestly, the unpacked hospital bag is still hanging where it was 10 months ago. I haven’t been able to touch it.

Winter 18:16
Angelica, can I ask you a quick question?

Angelica 18:19
Yeah.

Winter 18:19
What week are you at this time?

Angelica 18:23
Oh, sorry about that. At this point I am 33 weeks and five days.

Winter 18:28
Okay.

Angelica 18:28
Gestation.

Winter 18:29
Okay.

Angelica 18:30
I remember that really distinctly because I remember having read so many stories, just with COVID-19 being so unpredictable. I had read a story about a mother who had lost her life at about 33 weeks or so. And because we were about at the same place in our pregnancies, I thought to myself, okay, if I can just to get through this week, I’ll be okay. If I can get to 34 everything will be okay.

Angelica 19:06
I was seriously doubting that things are gonna be okay, at that point. So I was driving, and I went to the same hospital that I work at. Triage for labor and delivery is right down the hall from the NICU. So I had been there earlier in the day. I could have gone at any point in the day. And that’s been a really hard thing, actually, knowing that I was there all day long. I could have gone over and that maybe things would have been different.

Angelica 19:39
So I’m driving and I’m talking to him. I’m driving in silence. Just thinking to myself, what might be happening. Considering what could cause decreased fetal movement in him at that point. Trying to determine what was going on, if anything. How he was going to do if he was going to be delivered that night, or I guess at that point that morning, because it was really early on June 1st. I kept telling him, it’s okay, we’re gonna be okay, you’re gonna be okay.

Angelica 20:18
I arrived to the hospital and I parked the car. I had forgotten the mask. So I entered through the emergency room, which is where they were having everyone enter, and they handed me a mask. The nurse who was at the front desk asked me if I knew where L&D was, and I told them that I did. Then, you know, seeing me with my giant protruding belly, he looked at me, he said, good luck and sent me upstairs.

Angelica 20:50
I just remember feeling so much dread, at that point, so much dread walking those halls and waiting for the elevator to come up, or to come back down. The elevator to come down to get checked in to triage. They got me into my room and started to set up the doppler, but my nurse couldn’t find him and couldn’t find Ezra anywhere. She asked me where we normally were able to find him. So I pointed on my abdomen to where she could go and still nothing. She told me, she said, “You know what, I’m going to call the doctor and see if the doctor can bring down a machine. An ultrasound machine so that we can see what’s going on.”

Angelica 21:44
There’s a part of me that knew what was going on when she said that, but I didn’t want to believe that anything was severely wrong. So I just kind of took a breath and talked to him until the doctor came. I ended up falling asleep a little bit. Because I hadn’t slept at all since about 6:45am the morning before. So I was nodding off. I thought to myself, there’s no way that I could be falling asleep if something is seriously wrong.

Angelica 22:26
I was awoken by the doctor on call coming through. He said, “I am so sorry that it took me so long.” He said, “I got here as soon as I could and they even said some prayers on the way down.” There was a part of me that thought that is so sweet, but then there’s another part of me that thought, oh, gosh, you know, if you’re praying that things are okay, then my guess is that things really aren’t. So he even told me to take my mask off at that point. I told him “No, it’s okay. You know, I feel fine. I’m comfortable. It’s okay.”

Angelica 23:02
So he started the ultrasound. Taking a look at Ezra and the screens at a little bit of an angle and there was no movement. As he was passing up along his rib cage, I was trying to see if I could find his heartbeat, but I couldn’t see anything. I wasn’t hearing anything either. I thought to myself, this is not okay, something is really, really not okay. But then I thought to myself, you were not trained to do an ultrasound. So just take a minute. Maybe everything’s fine. He traced back and forth along my abdomen for a long time. At least it felt like a long time.

Angelica 23:52
Then he looked up at me, and his eyes had started to get a little bit glassy and said, I just need to be absolutely sure. In the back of my brain I’m screaming, absolutely sure of what? Absolutely sure of what? Then he put the wand down and he looked at me and he said, “I am so so sorry.”

Angelica 24:20
At that point, nobody, not one of us had said the words gone, dead or no heartbeat. He didn’t need to say anything more for me to know what happened, or to understand what he saw or didn’t see. I started to fall apart. The nurse asked me if there was anyone that I needed for them to call. I said yes please to my husband.

Angelica 24:55
At that point I felt my phone buzz and I guess Nick had woken up and realized how long I’d been gone. Asked me if everything was okay. So I told him and I was just in tears struggling to get words out. I didn’t even tell him what had happened. All I asked him was if he could come to the hospital. I don’t know if it was because I genuinely was just forgetful. Like I had forgot to mention something. Or didn’t want to say it out loud, because that would make it real. And he said, “Yes, yes. You know, I’ll be there. I’ll be there soon.”

Angelica 25:43
He started to call around and try to find someone to be there with Philippa. To stay with her overnight. So I hung up the phone, and my doctor was really kind. He sat with me for a little bit, but then he had to go. It took Nick about 20 minutes to get to the hospital. We live about 15 minutes away. But he struggled to find anybody awake at that point. It was two am I think, two, two 15. But he ended up getting ahold of his dad. His dad came to stay with our daughter.

Angelica 26:36
That time period, it felt like forever. But for that time period, I just remember rocking back and forth and crying. Holding, clutching my abdomen and then saying I’m so sorry. I’m so sorry. Over and over again, I didn’t know what to say, or what else to do. When Nick arrived I gave him a big hug.

Angelica 27:06
It wasn’t too much longer after that, that the doctor came back in with the ultrasound machine. He said, “Guys, I’m sorry, I’m not trying to torture you here. But this is the doctor in me wanting to be 100% sure of what I saw. Because if I’m wrong, then there’s no way that I can forgive myself.” So he did another ultrasound. At that point, Nick knew. Nick knew it. Later when I talked to him, he said “That I almost didn’t need to mention what had happened. To say out loud what had happened. Because he knew something was very wrong. Like beyond, we’re going to deliver him tonight and he’s very sick, wrong.”

Angelica 27:59
So after that second ultrasound, the doctor dealt with one, he said, I’m so sorry again. Then he told us that he and his wife had experienced a loss like that about a decade before. He said not to blame ourselves for anything. And not to turn pain and the anger inward. You know, he said that he would come back in a little bit for us to determine what the next steps were going to be.

Angelica 28:36
At that point Nick he held my hand. He said what are we gonna call him? ”Philippa, what are we going to call him? And we had actually narrowed our names down to Felix and Ezra. For some reason, blessed you know, the days leading up to that I had been calling him Ezra just kind of trying, you know, it felt great. That was what we named him. Ezra Wilde like Oscar Wilde because Philippa, his middle name, is danger.

Winter 29:26
I love that so much.

Angelica 29:30
It was Nick’s idea. So we figured we needed to follow the theme. Then Nick looked at me, he said, “Well, at least the hardest part is over.” And I looked at him and I said, “No, the hardest part is not over.” You know, for as awful as it is to be told that your child is dead. Now we have to deliver him.

Angelica 30:04
The doctor came in and talked a little bit about it. We have a scheduled c-section that we had actually made at eight weeks, which I thought was way too early for them to be putting me on the OR schedule. Just nursing superstition, I guess, very much akin to that feeling that you get when somebody says the word quiet on the floor?

Winter 30:30
Yes.

Angelica 30:31
You know that he was scheduled c-section repeat c-section because I’d had a C-section with my daughter and been diagnosed with a supple pelvic disproportion. I just was not built to have a vaginal delivery. So instead of attempting a V back, I said, “No, just go ahead and put us on the schedule whenever.” I was fine with not waiting until my doctor, my attending actually came on to came on duty. The anesthetist came and chatted with us too. He was surprisingly cheery, which I thought would be bothersome, but it really wasn’t. It was almost kind of helpful.

Angelica 31:27
Then I fell asleep. And I woke up a few hours later, when they came in for surgery. They put me on the schedule for about 630 or so. Yeah, I remember waking up and then all of a sudden I felt cramps. You know, just kind of the beginning of contractions, I thought anyway. I started to feel really sick to my stomach, just really, really nauseated. They had, they’d already talked to me. So they wheeled me out and said, “Don’t worry, we’ll get something in your system.” They started an IV, they did a lot of blood, a lot of blood for testing on me to determine what had happened.

Angelica 32:29
They wheeled me into the OR, and put me onto the table and told me that we’re going to do a spinal block. So they kind of sat me up and Nick was getting ready into hospital scrubs. So they told me to sit up and I did. When I did, I looked off into the corner where my heart chart was sitting and there was a giant butterfly pasted on the front of it. Then I fell apart I just fell apart. Because that made it that much more real.

Angelica 33:08
Then at the same time, I was thinking about the fact that before my husband even knew the true nature of what had happened my co-workers probably knew because they probably saw 33 weeker coming to triage. We’re anticipating potentially getting said 33 weeker. Then the status went from you know, absent fetal movement to fetal demise, and just all of it just was too much. It’s just way too much.

Angelica 33:39
They pulled up the drape and started the surgery. Shortly before that my husband had come in and he was sitting at my side. I mean, neither of us really were in a great headspace. We just didn’t know we were both in such a shock. For Philippa’s birth Nick brought in his phone, and he was taking pictures as they were doing surgery. This time around, he forgot his phone. So the only photo that we have in the OR is the one that the anesthetist took for us with his phone. I’m just laying there and just crying. The OR is silent, just painfully silent.

Angelica 34:34
Later someone asked me “Oh, which NICU team came to attend your C-section?” Because that’s just standard protocol in the NICU. You attend every c-section. I had to look at them and say nobody was there. Nobody attended my C section because why would a NICU team be there for a babys who dead?

Angelica 34:54
I felt a lot of pressure and then I felt no pressure at all, just emptiness. That was when I knew that he had been born because I could just tell he was gone. I just thought, you know, hr is not physically there anymore. No one had told me that he had been born, but I could hear a nurse begin to cry. And she said, “Oh, he’s so beautiful.”

Angelica 35:26
She brought him over to a little warmer, and laid him down on a swaddle blanket. The swaddle had trucks overtop of it. And she began to swaddle him up. My husband went over a little warmer and took a look at him and said, “He looks just like Phillippa, he looks just like her.” Just if I had started to get any degree through the calm. It was shattered at that point, and I just started to sob again. Then the nurse handed him to my husband, and he brought him over put his cheek against mine. If I didn’t know any better for as warm as his cheek was I would have thought that he was still alive. He was born at 6:42am on June 1st.

Angelica 36:27
Not too long after that my attending physician came in. He said, “I’m so, so sorry.” You know, he just kind of ducked into the OR. He said, “I’m so, so sorry. We’ll figure out what happened. We’re gonna figure out what happened.” And he gave my shoulder a squeeze and he left. They took Nick into the recovery room before they had finished closing on me.

Angelica 37:00
It wasn’t very long before they dropped the drape. I could tell that the obstetrician who was working on me he was the same doctor who told us that Ezra was gone. I could see that he’d been crying the entire time. His eyes were beat red. And I asked him “What happened?” He said, “I’m not sure.” He said, “The assessment looks perfect. It’s perfect. There’s nothing wrong with the umbilical cord. Nothing that I could see. I’m not even sure that y’all want to have the placenta tested, because I just don’t see anything. Well, I don’t see anything wrong. I’m not sure what happened.”

Angelica 37:48
So once they were done, they wheeled me out. They took me into labor and delivery. I thought that maybe they were going to take me on to a different floor, or something away from other laboring moms and living babies. But I was wheeled into room 10 I can remember. I remember going in there thinking to myself, the last time I was in the room, we were here for a code for another baby. Just, you know, the awful things that you remember, having worked in the same hospital.

Angelica 38:24
When I got in there, Nick was cradling Ezra. They got my bed situated. They helped me to sit up a little bit. Nick looked at me and said, “I heard another baby being born a few minutes ago.” While they were kind of showing him into the room. I started to cry again. And he said, “No, no, it’s okay. I’m just so grateful that their baby is okay.”

Angelica 38:56
We got to rock him, talk to him, and sing to him. We weren’t sure because of the pandemic if our family was going to be able to come and see him. But we talked with our nurse and she talked to her charge. The charge talked to the house supervisor and they’re like, “No, we’re going to get people in here for you. Just give us a list of names.”

Angelica 39:19
So they allowed my parents, Nick’s parents, my brother and sister in law to come up. Nick has a sister and a half brother, but both of them live Upstate. Then he looked at me and said, “Well, wait a minute, what about Philipa?” And I said ,”No.” I would have loved her to be there. For her to have been there. I would love that. But at the same time, I didn’t imagine that they would be too keen on the idea of having a two year old in my hospital room.

Angelica 39:59
So slowly, our family members started to trickle in all of them just as just as red eyed and perplexed, as we were. Our nurse got a bunch of footprints, she got sets of footprints for all four couples. So my husband and I, his parents, my parents, my brother and sister in law.

Angelica 40:32
They told us that we could have two visitors at a time. So they came in couples. It started with my parents. They went to leave and my nurse came and she said, “Oh, you know, wait a second, you know, weren’t your parents going to stay for longer?” And I said, “No, we’re only supposed to have two sets of parents, to two visitors at any one given point in time.” She’s like, “No, forget about that. You can have all of them in here if you want, we don’t care.”

Angelica 41:07
So we called them back. Then all the grandparents were there with him at the same time. Eventually, when everybody had a chance to say hello, and goodbye. They all left. There was just the three of us. I asked Nick if he wanted to call one of our family members and show Phillipaa her baby brother. He said that he wasn’t sure that he could handle that. He wasn’t sure that she would really understand what was going on anyway.

Angelica 41:50
I kind of regret it at this point. Not at least asking if we could have had her come up. Even for a couple minutes. Not being more insistent on having somebody call us and show her Ezra through the phone.

Angelica 42:11
I remember holding him. At that point he was swaddled, but he was swaddled with his arms straight down. I wanted to see his hands. So I unswaddled him a little bit and brought his arms up. I remember saying out loud, he should have been swaddled with his hands close to face, because that’s what was developmentally appropriate. Then I realized how ridiculous that sounded. I just held them.

Angelica 42:47
I remember holding his hands and staring into space. We kind of looked at his hair. Nick said his hair was so dark. And I said, “No, it’s not. He just hasn’t been washed yet.” And so he kind of dusted up and held his hair a little bit. And I said, “No, look at his hair. It’s blonde, it’s dark blonde.” For anyone who maybe isn’t looking at a picture of me at this point, I am not blonde haired or blue eyed. I have relatively dark skin, hair, and eyes. So, you know, the fact that either of my children had blonde hair is it, I have no idea where they came from.

Angelica 43:35
I just looked him up and down which was just so amazing. Someone loved him. He weighed 4 pounds, 15 ounces, which is a pretty decent size for a 33 weeker. I was worried that maybe he wasn’t getting enough or something. No, he was getting enough.

Angelica 43:54
We were able to hold him for almost nine hours. They would have let us keep him for longer I think. At that point we noticed that his skin started to shear a little bit in different places. It was just getting progressively worse as time passed. So at that point, I mean, I didn’t even think to ask someone to bring clothing for him. I didn’t have a going home outfit for him, or anything like that I had nothing prepared for him. So he wasn’t clothed, and we didn’t bathe him because I had just been through surgery and I couldn’t breath very well.

Angelica 44:39
I was just so worried about damaging his skin that much more. So I didn’t want them to bathe him because even though I knew it wouldn’t hurt him. It would break my heart to continue to injure his skin. We sang to him, we gave him a bunch of kisses and I handed him over to Nick. I said, “Here you hold him last.” He said, “No, no. You should be able to hold him until he goes. I said, “I had 33 weeks with him. I got to feel him move. I think that you deserve to hold as long as we have him.” When the time came, we handed him over to our nurse and that was that.

Angelica 45:46
They gave me a weighted bear afterwards, which I proceeded to sleep with for about six months straight. We ended up staying in the hospital another two nights and going home on Wednesday morning. I remember my doctor, my own personal obstetrician coming in and he said, “Hey, you look like you’re feeling okay? Do you want to go home today?” I just thought to myself no. There is no way I can go home just yet. Not yet not to silence. I ended up staying for two nights and going home on Wednesday morning. They ended up putting me in a different department, so that I didn’t have to be up on newborn where you could hear babies cry. And that’s Ezra’s birth story.

Winter 47:06
Thanks for sharing that. I’m so glad that you got some time with him. That your hospital was willing to get your parents in there and your brother and sister-in-law. That just made me happy to hear that. I’ve heard so many stories that people have not had that chance and it’s so sad.

Angelica 47:35
It’s absolutely heart wrenching. This pandemic has made that process so much harder than it already is to begin with.

Winter 47:49
Yeah. You guys gave them Ezra and you stayed in the hospital for a couple more days. Did you guys end up deciding to have a funeral, or was he cremated? What did you guys decide to do with him?

Angelica 48:07
I actually grew up alongside an undeveloped portion of land built into a cemetery. It’s the house that my parents still live in. So we decided to have him buried there. I’ve had a couple of coworkers, three of them who have lost babies.

Winter 48:31
Oh really?

Angelica 48:33
Yes and their babies are buried in the same cemetery. Most recently, a friend of mine, she lost her little girl. She was about a month old or so. She had been in the NICU. She was very tiny, very premature. But she passed away. I remembered where she had buried her little girl. So that was actually when I was still in the hospital that my husband and my father-in-law, because my father-in-law and my mother-in-law, offered to pay for everything. For everything that the funeral home didn’t cover. For everything that the cemetery didn’t cover. They offered to pay for everything. Then they went over and we’re looking for a plot. So I told my husband to look for my friend’s little girl. It turns out that the plot right next to her was vacant, so they’re buried side by side.

Winter 49:43
That’s so nice.

Angelica 49:45
We didn’t get to have a funeral per say. We were raised Catholic, but at that point, you know, having a mass for him was completely out of the question which I completely understood. That was okay. So we had a graveside committal. The priest came in, he did a blessing over Ezra’s grave.

Angelica 50:11
We only had a small group of people there, including my friend. Because her little girls are right next to my son. We had a very small group of people and all of us were spread out because of the pandemic. Trying to keep this the cemetery’s staff safe in the process.

Angelica 50:40
Then, after that, I feel bad because I feel like there are so many things that I could have done, but did not. Because in the moment, I just wasn’t thinking about it. I was just shocked that this was happening. You know, I always knew that it could happen. I always knew that there was a possibility that something like this could happen. But regardless of how much I thought and I understood about child loss prior to this, as a nurse, I knew nothing. I knew nothing. What I understood, barely scratches the surface.

Angelica 51:22
So you know, in that moment, we didn’t play any music or anything like that. One of my other friends is super sweet. She brought a couple of pinwheels for him. We knew that eventually the pinwheels would be taken away because the cemetery cleans everything up periodically. So we buried one of them actually in there with him.

Winter 51:45
Oh you did?

Angelica 51:46
He was a pinwheel on top of his casket. Then my husband he quoted I don’t know if you’ve ever seen a Muppet Christmas Carol.

Winter 52:01
Yes, we love that movie.

Angelica 52:05
It’s the scene after they find out that Tiny Tim has died. He said in this life, there are meetings and partings. That is the way that we will never forget Ezra and the love that he brought into our lives. It was something along the lines of that I very distinctly remember the reference to Muppet Christmas Carol.

Angelica 52:37
Then that was it. There was a small gathering that my mother and father in law had at their house. My brother and sister in law came from Washington. They cooked everything you know, made sure that we didn’t have to do anything. He just had a small gathering with everybody who was able to go to the service. Yeah. And it was wonderful. In a very melancholy kind of way.

Winter 53:14
Yeah. I’m so glad that you were able to be with family and friends it sounds like.

Angelica 53:25
We were very fortunate.

Winter 53:28
Angelica did you? I know that your ob said that he was going to try and find out as much as possible of what happened. Did you guys end up having an autopsy done? Sounds like you got blood also taken? Were they able to find anything, or is there anything conclusive about what happened to Ezra?

Angelica 53:50
No, unfortunately. We ended up drawing blood on me to determine if there was some kind of a clotting issue. Everything came back normal for me. They also wanted to do a cytogenetic microarray to determine if there was anything you know, anything genetically that would have caused his stillbirth. That was all completely normal as well.

Angelica 54:27
Originally, we thought that they were going to have to do the cytogenetic microarray on his own tissue. So you know, kind of maybe a tendon or something in the back of his ankle. But they were able to do it on the placenta. That came back normal with the offer to do an autopsy.

Angelica 54:50
I wanted to know what happened. So I was leaning toward yes, but my husband Nick didn’t even pause. He just said, “No. No, we’re not doing that.” You know, and the same thing with cremation. He said, “No, no, I just can’t, I can’t envision us doing that to him.” He said, “I know that he’s gone. And I know that he doesn’t hurt me more, but I can’t do that to him.” So at this point, we don’t know why. I don’t think we ever really will.

Angelica 55:28
I later asked the OB who delivered him. If under the same circumstances, he would have had an autopsy done. And he said, “As the doctor who has done autopsies on infants I don’t think I would have. I don’t think that there would have been anything of note to find, just based on his physical assessment.” He said, “He was perfect. There was nothing to indicate that there was an infectious process and the blood work showed that as well.” He said, “I just don’t know that we will have any answers. I don’t think we’ll have any answers. But under the same circumstances, no. I would not have done an autopsy on my child.” So it’s still just kind of up in the air.

Winter 56:22
It is kind of nice to hear and hear somebody say he looked perfect. And like he said, all intents and purposes he’s perfect. Angelica, thank you so much for sharing your story. It never ceases to surprise me how much I cry on this podcast even though I’m very familiar with some of these stories already. I appreciate you coming on and sharing Ezra with us.

Angelica 56:48
Thank you for allowing me to share him.

Transcribed by https://otter.ai

Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: stillbirth

Celebrating Her Baby After She Died | How Mom Tiffany Has Mourned

February 7, 2022 by Winter

Mom Tiffany talks about how she has both grieved and celebrated the short life of her sweet daughter Khyana, who was born at 26 weeks and died four days later due to an infection because of a hole in her bowel. She talks about how grief is not linear and the many ways she celebrates her daughter.

Watch here (YouTube):

Listen here (podcast):

Time Stamps:

00:00 Welcome
04:42 Celebrating 1st birthday
07:53 How Tiffany’s relationship changed with her then-boyfriend
08:51 What not to say to a loss mom
10:54 Grief is not linear
12:12 What she does to honor her daughter

You might appreciate these other episodes:

  • Watch/listen to Tiffany‘s birth episode of daughter Khyana: Click here
  • Watch/listen Bianca and Michael share their experience of delivering their son Jalen: Click here

Wanna help?

  • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
  • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
  • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.

Mentioned links

  • How 2 Survive Loss Facebook
  • Amazon link to Book: Celebrating the Life of Your Infant After Death: Ways to Keep the Memory of Your Infant Alive
Baby Khyana in the NICU

Full Transcription:

Winter 0:00
Everybody, welcome. We are so grateful that you are joining us here for another episode of still a part of us. And I am winter and we are so grateful you’re here.

Winter 0:09
I just wanted to do a really quick warning that there are a lot of triggers in this conversation, this interview that we’re going to have today with Tiffany. So please just keep yourself safe and healthy. If this is not a good time for you to listen to this, please do not listen to this episode.

Winter 0:25
If you are a lost mom or lost dad, feel free to subscribe. We want to make this community a place that people can find support and help. So once again, we want to welcome Tiffany. We were able to hear the birth story of her daughter Khyana. If you haven’t checked that out, please jump on over and listen to that episode, or watch that episode as well.

Winter 0:45
So Tiffany, welcome again. Thank you so much for coming on today.

Tiffany 0:48
Thank you for having me.

Winter 0:49
A little bit of context. Can you tell us how long ago Khyana was born and when she passed away?

Tiffany 0:55
She was born– next month it will be three years. She was born on May 23, 2018 and passed away May 27, 2018.

Winter 1:05
So she lived a short four days, but four really impressionable days for you I’m sure.

Tiffany 1:11
Yes.

Tiffany 1:12
It’s been three years. How did grief look like for you in those first early days, those first few months?

Tiffany 1:18
I was grieving– well it first happened I was devastated. Afterwards it’s been a switch. It is on and off certain moments are more painful than others.

Tiffany 1:30
In the beginning I went to– I think the day after actually went to a grocery store with my boyfriend. We went in there, but it was around the holiday period. So there were so many children and babies. I sat in the car and cried. As soon as we got to the car I cried. I ran to the car. I couldn’t do it. Just being in the grocery store with all the kids and families.

Winter 1:53
Isn’t that amazing? You’re like there’s a lot of kids here.

Tiffany 1:56
Yeah. Usually that’s something I don’t care about because I love dealing with kids. I work with kids sometimes. Well, not as much here, but when I was in the states. I worked with kids more. My mom owns a daycare in Georgia. So every time I come back to Georgia even now when I come back to Georgia it doesn’t bother me to go see the kids play with the kids and stuff. Children don’t usually bother me, but around that time period it did.

Winter 2:20
Well, I think it’s so raw and new for you, too, have just had that loss. So yeah, of course it wouldn’t be so hard. How has it looked as you’ve gotten farther away from her birth and death?

Tiffany 2:33
It is still up and down, but it’s better. I guess I got used to as I can handle it more now. The month of May hits me the hardest. Mother’s Day, the day she was born, the day she died, is all in the same month. So the month of May hits me the hardest. Other months are here nor there and it is always in the back of my mind. But for the most part I at least seem okay. I learned to live with my new normal.

Winter 3:03
Yeah, yep. That’s exactly what it is. It’s a new normal, isn’t it? You’re like, Hi, I guess I’m a different person now.

Tiffany 3:10
Yeah.

Winter 3:10
What does healing look like for you? Has there been anything that’s been super helpful for you to kind of process your grief? Is there anything physical that you have that you try to hold on to to remember her?

Tiffany 3:25
I have her molds. They’re supposed to be coming. I had my stuff shipped from Turkey to here. So that was in the shipment, it’s supposed to be here soon hopefully. I really miss them.

Winter 3:38
Yeah.

Tiffany 3:40
I got necklaces as well. I have pictures of those. But I have necklaces that people gave me. Some of them have her name on them. Some of them have angels on them. I adore it. It’s like four of them and I adore all of them.

Winter 3:52
I’m wearing my necklace too. So that’s exactly what you do. things to remember your kids by.

Winter 3:58
I just wanted to point out if you are unfamiliar, Tiffany is currently in Japan right now. So that’s why she’s having her stuff shipped. She just barely moved there about a month ago, right? A month or two ago.

Tiffany 4:09
Yeah.

Winter 4:10
So if you’re wondering what that’s about, because I was like Turkey? You had your stuff shipped from Turkey. I’m sure that was the stop on the route over to Japan. So what is your go to thing that you tried to do to sit and remember Khyana? To kind of mourn her. Was there anything in particular you did early on, or maybe even now that you do to help with that?

Tiffany 4:35
Early on, like right after she passed away. We did have a celebration of life cookout, which took place in Georgia, my hometown. After that every year I usually do something. Her first birthday, I got a little cake with a candle on it, and had some food just for me and my boyfriend at the time. Last year, I actually had a small event with brownies, jello shots, cake, games, stuff like that. I had several people over. This year because I just moved here, I’m not really sure what I want to do yet.

Winter 5:15
Yeah, cause you’re just there by yourself, right?

Tiffany 5:19
Yeah, I’m here by myself.

Winter 5:20
Yeah, so that’ll be tricky. I know birthdays are hard to maneuver sometimes I feel like. It sounds like you’ve done something to kind of honor her birthday every single year. It sounds like you had a lot of fun actually last year, which is great. Got together with my family.

Tiffany 5:34
Yeah.

Winter 5:36
That is great. Holidays can be so tricky, especially Mother’s Day. Mother’s Day, I feel, is brought with anxiety and some sadness, especially if you’ve had a loss. So yeah, that’ll be hard and that’s coming up here in the next little bit. So I really hope that it goes well, or that you take some time to yourself to remember her.

Tiffany 5:55
I will try to because I used to work on a Sunday. So luckily, I’ll be home. I won’t be at work.

Winter 5:59
I know. Yeah. Breaking down at work is super fun, isn’t it? Did you by any chance take advantage of anything like a therapist or a grief counseling group? Anything like that to help you as you transition from your loss?

Tiffany 6:14
I did see a counselor a little bit afterwards. I wasn’t sure how I was supposed to be feeling at the time. Because I was also dealing with the postpartum hormones as well.

Winter 6:26
Oh, yeah.

Tiffany 6:28
At first I was crying because Khyana died. Then I was crying and didn’t know why. I did go see a counselor to make sure that was normal. But I didn’t really know what was normal. What was it?

Winter 6:41
Yeah.

Tiffany 6:42
She was like, you know, this is normal that you’re feeling this way. She helped me. I went to go see one once just to make sure everything was okay. She was like, you know, you’re fine. I didn’t– I never took any, me personally, I never took any medicine. I didn’t want to. They offered it when I went back to my doctor’s appointment. They offered me some pills or something else. Like I don’t want to take pills. I just want to let everything pass.

Winter 7:09
Okay, so you were okay, you were okay. Like, you’re just like, I’m gonna just cry it out. Or I’m going to feel all the feelings or I’m going to– that’s kind of what it sounds like. You ‘re trying to like, I don’t want to take anything to suppress any emotions?

Tiffany 7:24
Or numb me out, or something that you have to take forever. I mean, just me personally, I just didn’t want that.

Winter 7:30
Yeah. And I think it’s obviously different for everybody, especially with postpartum people. Some people obviously struggle with that. They may need some medication, but it sounds like you were like, I’m gonna, I’m just gonna ride this out.

Tiffany 7:44
Yeah, it wasn’t as bad to the point where I tried to hurt myself, or hurting myself or anything like that.

Winter 7:50
Good.

Tiffany 7:50
It never made it to that point.

Winter 7:52
Okay, gotcha. It sounds like your boyfriend at the time. He was there along with you. Was he struggling also with the loss?

Tiffany 8:00
He was struggling, but it was more in a different way than I was.

Winter 8:04
Yeah.

Tiffany 8:04
I guess he needed to constantly see me sad about it. I know he feels sad as well. But he just dealt with it in a different way.

Winter 8:12
We’re all different. So I mean, so he was just dealing with it a little differently. Did that change your relationship at all? When you guys were navigating? After her death?

Tiffany 8:23
It did. It changed a lot. Um, I won’t discuss the details. But there was other things going on that eventually broke up. I eventually left and I moved to Turkey.

Winter 8:34
Yeah. Okay.

Tiffany 8:36
A year later.

Winter 8:36
Gotcha. I think it does change relationships. It’s tricky. It’s super tricky. So tell me, was there something that somebody did for you? And or said to you, that was really super helpful as you’ve navigated this?

Tiffany 8:50
Yes, actually, they did. Someone told me once because a lot of people– sometimes people say dumb things. They don’t know what to say. Instead I’m so sorry this happened to you. They try to find a reason that it happened to you. I don’t really like that at all. You wouldn’t be doing this if she was still alive, or she would have been in a ton of pain and stuff like that. Or you don’t want her to be in pain. I’m like yeah I don’t want her to be a pain. And I didn’t want her dead. I want her to be alive and healthy.

Winter 9:23
Yeah.

Tiffany 9:23
It is one of those things. Yeah, I hate that kind of stuff. Even in terms of my job in Turkey. I got a position in Turkey to work there. People are like well, someone said to me, you wouldn’t be going to Turkey. You know if your daughter was still here. It hurt. It hurt.

Winter 9:44
Yeah.

Tiffany 9:44
But you have to sit back and realize that people say dumb things when they don’t know what to say.

Winter 9:52
Yeah.

Tiffany 9:53
To try to make it make sense when it doesn’t really make sense at all.

Winter 9:55
Yeah, exactly. You’re just like, you don’t need to make an excuse. I mean, you don’t need to have a reason for things. I think people try to reason things out because they don’t know how to come to terms with it. So they like you said they do and say dumb things sometimes. So what would you encourage people to say to you if you had a loss

Tiffany 10:16
To say I’m so sorry that happened to you. What can I do for you, or I mean, a lot of times even a gift card. Or just giving them something to eat, or just come in and check in on them and sitting with them.

Winter 10:28
That’s huge.

Tiffany 10:29
Yes, huge, there is no need to, try to rationalize it.

Winter 10:34
Oh, I like that. There’s no need to rationalize that. Crappy stuff just happens. She was born at 26 weeks that will be tough physically on her regardless. So I guess throughout all of this, have you had any lightbulb moments about life and death or things that you have realized about grief or loss that you’d like to share with our audience?

Tiffany 10:54
I thought grief was more, I guess, linear. Like, you’ll be okay. Like that. It’s not like you reverse back to certain stages. Grief is just like, Okay, I’m sad, and now I’m over it. It is more like, Okay, I’m saying, I’m okay now. I think I’m in a decent area. Okay, now, this isn’t working. This holiday happened, or this month that happened. Now I’m sad again. So it’s not like a linear thing. You’re still gonna have moments where you sit back and you think, or you’re upset that it happened, like, it’s happening over again.

Winter 11:28
That’s the thing that’s so surprising, because you just think that okay, I pass through the anger phase. Okay, I pass through this phase. I’m done. I’m done with those. I should be fine. No, yeah, it’ll come right back to you. So that is a good a-ha moment. I think that is probably what I would say that was the key takeaway from this. So I want to know what you do or have done in order to honor Khyana. What are some things that you have done to remember her to celebrate her to kind of keep bringing her up? Because I know a lot of people still like to talk about their kids, even though they’ve passed on. In fact, this is the reason why we started this podcast and this channel is so that people could talk about their kids. So what are you doing to celebrate her?

Tiffany 12:12
Besides the parties and stuff? I always try to keep her memory alive in my house. I think it is definitely shifting. But I actually had like a magnet in my freezer or refrigerator with her on it.

Winter 12:26
Oh.

Tiffany 12:27
Yeah. I hope it is in my shipment because I really miss it. I can get another one, but I really miss that one. But yeah, that was amazing, I try to keep her memories alive by pictures and stuff. I still have some I need to set up that just got here. But yeah, it’s things like that. I’ve also made a Facebook page, it’s called Rise up, Surviving the loss of your infant. And I’ve also written a book called Celebrating the life of your infant after death. It is basically a way, or ways that you can celebrate your child after they’ve passed away.

Winter 13:06
That is great. So let’s dive into the Facebook group. Is that just a Facebook community that people can go to and kind of interact with each other kind of a community page?

Tiffany 13:18
Yeah. So more of a Facebook page at the moment.

Winter 13:21
Okay, awesome. So I can put a link in the description in the show notes. Then this book, so what inspired you to write that? When did you write that?

Tiffany 13:31
I wrote this and published it in October 2020.

Winter 13:36
Okay.

Tiffany 13:37
Pregnancy and Infant Loss Awareness Month.

Winter 13:38
Oh, yeah.

Tiffany 13:40
That’s when I did that. I wrote it because I tried to incorporate ways to celebrate Khyana after she passed away. I know some people sometimes will think it is weird when I throw the celebrations I’ve had because they’ve never heard of that before. I never heard of, oh, you’re celebrating your daughter’s life every year. They never heard of doing that. They think people just sit in a corner and say it on birthdays or whatever, but I celebrate every year. I’m like, Okay. I’m sure other people want to celebrate as well. So I decided to write a book on ways to celebrate your infant, your child’s life after they passed away.

Winter 14:20
That would be really nice to have a stash of ideas to go through because sometimes you’re like, oh, what am I going to do this Christmas, or on their next birthday? So October is pregnancy and infant loss Awareness Month. So that’s kind of cool that you decided to do that. Publish it at that time. So have you been working on it for quite some time?

Tiffany 14:42
Yeah, I’ve been working on it for a while. On and off for a while.

Winter 14:46
Yeah.

Tiffany 14:46
It ended up being the day. I think it was October 1, where I was able to publish it on Amazon. It’s also on Pay help as well.

Winter 14:55
Okay, great. I will put some links in the show notes as well as in the description box below. I think that’s great because we need resources, we need resources, right? This is a place that we both probably didn’t expect to find ourselves in, and having experienced it. We just don’t ever know like I’m always surprised when people are like, I didn’t think I was going to be this young and planning a funeral you know. Those are things that you just don’t think that you’re going to do in your mind’s eye of what your life is going to look like. So, having those resources is great.

Winter 15:29
So thank you so much for sharing that I will like I said, please check out the links in the show notes and in the description box below. So you are going to be navigating this next you’re gonna have Mother’s Day here and her birthday and her death date. You’re not quite sure how that’s going to look, do you have any ideas of how you’re going to celebrate it talking about ideas of how to celebrate or honor your child’s life.

Tiffany 15:53
I’m thinking about just going somewhere in Japan, and having her cake or just having a few people over and just having maybe a small party. There’s also things you can make that I’ve made as well. I might do that again to wear her name on it.

Winter 16:09
Okay.

Tiffany 16:10
There’s ways to celebrate or remember her every year.

Winter 16:13
That’s great. I love birthdays. So I think that’s something to look forward to.

Tiffany 16:17
I do too.

Winter 16:17
Yeah. Even though it has a little bit of a sad memory to it. Do you also celebrate her death date? Does that make sense? Like, I know that they’re two different days. I know some people try and they don’t focus so much on the death day, but more for the birthday.

Tiffany 16:31
That’s basically what I do. I don’t do anything for the death day. I just celebrate her birthday.

Winter 16:38
Yeah. Okay. Well, Tiffany, I have really appreciated the time that you have given us today. It’s been delightful talking to you. Do you have any last piece of advice that you would like to give any other lost moms or lost dads? Or if you have any advice to give to somebody that supporting a lost mom or lost Dad?

Winter 16:55
Yes, I do want to say to the people who lost their child or children, don’t take offense. Try not to take offense. When someone says something to rationalize your child’s death. That’s not something that they mean. Most of the time. It’s just something they tried to say to make you feel better, even if it makes you feel slightly worse. To people who’re supporting someone who’s lost a child. Please just tell them that you’re sorry, don’t try to rationalize anything. Just try to be there to help them.

Winter 17:27
Thank you so much for coming on and talking about Khyana.

Tiffany 17:30
Thank you.

Transcribed by https://otter.ai

Filed Under: advice, early neonatal infant death (<7 days), infant death, podcast episode

Birth Story and Death of Premature Baby Girl at 26 Weeks | RIP Baby Khyana

February 7, 2022 by Winter

Mom Tiffany tells the birth story and death of her daughter Khyana, of how she got pregnant with her boyfriend at the time, but she found out that she had an incompetent cervix. She was 1-2 cm dilated around 24 weeks, so they admitted her to the hospital. Tiffany’s water broke a few days later and she developed an infection a week later. She was induced and gave birth to her daughter Khyana, who needed to go to the NICU because her lungs were not developed and needed assistance breathing.

The doctors discovered an infection, likely due to a hole in Khyana’s bowel, and were prepping her for a procedure to fix it, but her heart stopped before the surgery and she died 4 days after she was born.

Watch here (YouTube):

Listen here (podcast):

Time Stamps:

00:00 Welcome
02:43 Pregnancy
05:51 Problems with pregnancy
07:13 Admit to hospital
10:47 Giving birth to Khyana
20:03 Khyana in the NICU
23:49 Khyana has an infection
26:45 Her heart stops
31:49 After she Khyana dies

You might appreciate these other episodes:

  • Watch/listen to Tiffany‘s advice episode after Khyana‘s death: Click here

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Baby Khyana in the NICU

Full Transcription:

Tiffany  0:01  

Khyana.

Tiffany  0:08  

I loved her hair. She was so small. I wasn’t expecting her hair to look like that. She has beautiful black hair.

Winter  0:19  

Welcome to Still A Part of Us, a place where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter.

Lee  0:26  

And I’m Lee, we are grateful you joined us today. Please note that this is a story of loss and has triggers.

Winter  0:32  

Thanks to our loss parents who are willing to be vulnerable and share their children with us. 

Lee  0:36  

If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared. 

Winter  0:43  

Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us. They’re still a part of us. 

Winter  0:56  

Tiffany, thank you so much for coming on our podcast today. And we are so so grateful that you have joined us and are willing to tell your story about Khyana. Tell us a little bit about yourself and kind of who you are. What you do, where you’re located currently, and maybe where you were located at the time of Khyana’s birth.

Tiffany  1:18  

Well, at the time of her birth, I was in the DC area that was actually working in DC. That was the first job I had out of college. I’d been there for a little over two years at that time. A little over two years, I think. Um, and now I am in Japan.

Winter  1:43  

Okay, so you’re in Japan for your work specifically? 

Tiffany  1:47  

Yes, ma’am. 

Winter  1:48  

Awesome. And are there any things that you like to do per your, like, as hobbies? Or what kind of things do you like to do on a regular basis?

Tiffany  1:57  

I like to travel. That’s been hard with COVID. But I like to travel and see new things. Since I just got here. I can see new things. Because they’re new to me right now. I know later on they probably won’t be new. Right now. I’ll see new things. 

Winter  2:15  

Yeah, I’m sure you are enjoying that. That’s great. That is awesome. So and then just as a little bit of credit, for context. How long ago did Khyana’s birth happen?

Tiffany  2:27  

Next month it will be three years.

Winter  2:29  

So it’s been three years since that. So it’s, there’s a little bit of time that has passed by. Okay, well, then, can you give me an idea of what your family looks like? At the time of the birth?

Tiffany  2:43  

At the time of the birth it was just me and my boyfriend. He’s my ex now. But it was when we were together. 

Winter  2:51  

Gotcha. Okay.

Tiffany  2:52  

I don’t have any other kids.

Winter  2:54  

Okay. Were you always planning on getting pregnant? Was that something that was on your radar?

Tiffany  3:02  

No, it was just something that happened. I actually just had PRK about a month before I had gotten pregnant. You’re actually supposed to wait, if you are going to even try to get pregnant. You’re supposed to wait six months to a year. So it was a surprise. Luckily, I can still see.

Winter  3:22  

That’s good. Just for everybody PRK is a surgery for your eyes so that you can see a little bit better. Is that correct? 

Tiffany  3:29  

Yes. It’s similar to LASIK. 

Winter  3:31  

Yes. Okay. Wonderful. So you were that was a little bit of a surprise for you. Um, so were you concerned about that? Was that something that you were, you know, mad about? Or happy about? Like, were you okay with it? I guess that is the question. 

Tiffany  3:50  

Um, I was actually kind of surprised that I was pregnant at the time. I was shocked because first like I said earlier, I hit PRK. So it’s like, oh, you’re not supposed to get pregnant. I’m like, I wonder if I lose my eyesight. But the second thing was like okay, we’ll be here in the DC area. Is it expensive to live in the DC area, but I was actually kind of happy. 

Winter  4:16  

Okay, that’s great. What about your ex? Your boyfriend at the time? What did he think about it?

Tiffany  4:24  

He was happy when he actually believed I was pregnant. I don’t know what was going on with him. He was like the pregnancy test lies, but I feel horrible. I feel terrible right now. Like, I feel so sick. Like this is my way of telling the lies out. Eventually I got another test to confirm and he was excited about it after that. He thought the pregnancy test was wrong.

Winter  4:48  

You’re like it’s a false positive. Come on. No. Okay, well, that’s great then. How did your pregnancy go? Was it okay? Was it? Were you really sick? It sounded like you were a little sick.

Tiffany  5:05  

I was sick. At the time, I was actually morbidly, I’m not morbidly obese anymore, but I was morbidly obese. Um, I had bad eating issues as well. Like my throwing up. I constantly threw up. Anything in my stomach was going to come right back up. 

Winter  5:23  

Oh.

Tiffany  5:24  

Yeah, that first trimester was pretty rough. They told me what medicine–The doctor told me what medicine to take. And it helped a lot. By the time the second trimester came. I was a little more comfortable.

Winter  5:37  

Great. Okay, well, that’s good. I know. It’s always tricky. How were your checkups? And as you were going along, were there any health issues, anything that was brought up that was of concern?

Tiffany  5:51  

Well, um, first trimester other than I was like throwing up and being morbidly obese, I was fine. The second trimester, they discovered that I had an incompetent cervix. It’s called IC. And with that your cervix is dilating before it’s time. It wasn’t really a fertility issue, it was an issue of staying pregnant.

Winter  6:14  

Yeah. Did they do– did they propose anything to try and help make sure that you didn’t go into premature labor?

Tiffany  6:23  

They tried. What happened was they gave me progesterone pills to use. I had to take those. Well it took about a week because of insurance to even get them. So they had to do some kind of authorization. As soon as I got that I took them religiously. I went back to the doctor to find out that I am like a centimeter or two dilated already.

Winter  6:47  

What week were you with that– would you say that was?

Tiffany  6:50  

That was 24 weeks. 

Winter  6:53  

Oh. 

Tiffany  6:54  

I was about to be I think I was about 25 weeks. I was 24 weeks. I had just taken a picture with a sticker saying “I’m 24 Weeks Pregnant.” 

Winter  7:02  

Okay. Oh, man. Okay, so you were taking the progesterone, any other things that they were trying to help? Kind of, like you said, Keep you pregnant.

Tiffany  7:13  

They admitted me to the hospital when they saw that I was dilated. I stayed in the hospital for I think about two weeks. 

Tiffany  7:21  

Oh.

Tiffany  7:21  

Yes, in the hospital for about two weeks. And that included having her, but before they found out I was dilated, they took me to I guess like labor and delivery and put me on magnesium to help keep her in. 

Tiffany  7:37  

Then I went down to another floor after that. The labor and delivery floor was more serious. So after they put me on a magnesium, I was done. They took me to another floor. I forgot the name of it. But it’s for people who are waiting to have their babies who don’t need to be in labor and delivery. They might have a few complications or people who’ve already had that baby. 

Winter  7:54  

Gotcha. Okay. 

Tiffany  7:54  

They put me in that area and they gave me– tried to give me medicine and stuff. And make me do bed rest. But unfortunately, it didn’t work. When they were thinking about sending me home, because they thought it might be good to go home soon. So like probably the next day or two. Something like that. That same day my water broke. 

Winter  8:16  

Oh, it did?

Tiffany  8:18  

It was the same day that I was trying to get home. I don’t like hospitals. 

Tiffany  8:23  

Yeah.

Tiffany  8:23  

I don’t like hospitals at all. My water broke that day. So I called the nurse in and they took me back upstairs. They gave me more magnesium, and a ton of pills and antibiotics. Then they took me back downstairs again because they were gonna try to keep her in even though my water broke. As long as I didn’t have an infection.

Winter  8:45  

Gotcha. And tell me were you feeling any sort of contractions or anything? Nothing?

Tiffany  8:50  

I never felt contractions during that time. 

Winter  8:53  

Okay, so they were just basically trying to see if she would stay in. As long as there was no sort of infection then they would just kind of proceed as like just keep her in there as long as possible so that she can grow?

Tiffany  9:06  

Yeah, they were gonna try to keep I forgot how many weeks 32, 35 or something like that. They were going to try to wait. As long as I wasn’t sick there wasn’t a question. Nothing was going too bad. They have to keep me in the hospital because my water broke. So I couldn’t leave the hospital after that. 

Winter  9:20  

Right. 

Tiffany  9:21  

Anything can happen.

Winter  9:22  

Yeah. Yeah, exactly. And just to go back a little bit, did you?– It sounds like you guys found out that you were having a girl at maybe the 20 week ultrasound scan?

Tiffany  9:34  

Yeah, I think it was around 18-20 weeks. 

Winter  9:37  

Okay, great. Yeah, yeah, that’s so exciting. 

Tiffany  9:41  

We both wanted a girl.

Winter  9:42  

Really?

Tiffany  9:42  

We thought she was gonna be a boy at first, that’s the thing. Because I went to an ultrasound before that with my regular Dr. They were like well, I think it is because I was like, Can you see if it’s a girl or boy? Because it was around that time. She’s like, I can’t make any promises, but I’ll try. She tried to look and she couldn’t really see much because she didn’t want to move. So she’s like, well, I think it might be a boy but don’t buy clothes yet. She’s like, I’m 80% sure it’s a boy. So I was like, wow, okay, and then we had another ultrasound two weeks after that. We found that it was a girl. So we were very happy because we both wanted a girl. 

Winter  10:19  

That’s so great. That’s kind of fun or different. You’re like, Oh, just kidding. I guess we are having a girl. That’s great. 

Tiffany  10:26  

Yes.

Winter  10:28  

Okay, so then you were in the hospital. You have been on bedrest? Yeah, you’ve been on bed rest for two weeks. Then the day that you decide to go, you’re like, we’re going to get you discharged. They are trying to get you out of your water breaks. Is that 26 weeks at that time, then?

Tiffany  10:47  

Um, so I was on bed rest. I got there around 24 weeks. I was on bed rest for like, a few days. Then my water broke. It was close to a weekend when my water broke.

Winter  10:58  

I see. Okay, yeah. Okay. 

Tiffany  11:01  

After that, then they say, okay, we’re gonna try to keep her in. But about a week after my water broke, I had started feeling very bad, I felt bad. I woke up one morning and was just really tired. I tried to do the normal stuff. There was a set schedule every day. I knew what was going on. I was laying in bed, a bunch of doctors coming in. That was what’s going to happen. I knew the same shows on TV already, because I had been watching TV. 

Tiffany  11:31  

So that day, I felt really bad. Later on that evening, I couldn’t eat. I could barely eat lunch. That was weird. I was always hungry. I could barely eat lunch. Then later, I just started feeling worse. So that was like, what you call it, maybe a resident or something came in and I told him I said, You know, I don’t I really don’t feel well. He asked me if I had a fever? I thought it was their job. But he asked me if I have a fever. And I was like, I don’t think so. He was like, oh, okay, then you’re probably just tired or something like that. But it’s the thing. It was the evening. So the doctors come back to that . 

Tiffany  12:10  

So even though he said that there was gonna be somebody else coming in at least two, three minutes later. They always play me like that in the evening. I said that, I’m just going to talk to the next nurse. I said, I want to talk to the next doctor nurse that comes in here. 

Winter  12:22  

Yeah. 

Tiffany  12:22  

So another two or three minutes later, another nurse came in. And I told her, I said, I don’t feel good. She asked me a few more details to describe what was going on. I did and she was like, hold on. I’m going to go and get something to check your temperature. I’ll be right back. So she came in, she checked my temperature. And she was like, Okay, I gotta look at the doctor. Because I had a fever and the way I was describing how I was feeling, she was like, yeah, I gotta go get the doctor. I’ll be right back okay. 

Tiffany  12:48  

So the doctor came in and the doctor was like, I’m gonna do some more blood work on you. But I think we need to go to labor and delivery. And she’s like, I’m gonna get you prepped and I’m gonna do the blood work really quickly. I’m gonna get you prepped, then we’re gonna go up to labor and delivery. It is time for you to give birth because you have an infection. I think you have an infection.

Winter  13:08  

Okay. What were you thinking at that time? When they’re like, Okay, it’s time. 

Tiffany  13:12  

Yeah, I cried. I cried when she told me that because I was only like, 26 weeks, 26 and a half weeks. So I cried. My ex at the time I called him because he was at home. So he came to visit and stuff of course, but he was working. 

Winter  13:27  

Yeah. 

Tiffany  13:28  

He had gotten off at the time. So he was at home. I thought he was at home. I call him like, Hey, I’m gonna have to give birth, you’re going to have to come up here. And he’s like, Okay. He’s like, he was leaving the grocery store or something. He’s like I’m gonna throw this in the house. Then I’m coming right up there. 

Tiffany  13:44  

So he came. They put me in a room. They put me back on magnesium again. And they let him in. And then they gave me the pitocin to induce contractions, because throughout the whole thing, I never had contractions. I never really was in pain the whole time until they gave me the pitocin to start the contractions. 

Tiffany  14:10  

Yeah. And those can be powerful contractions.

Tiffany  14:15  

Very powerful contractions. It was pretty bad. So because I wanted to give birth without an epidural, but because I was given pitocin I was like, I need the epidural.

Winter  14:25  

Yeah, you’re like, bring it on.

Tiffany  14:28  

Yeah, I’m basically like, bring it on. But it was pretty quick. Because that night is when I was induced. I had her that next morning. 

Winter  14:34  

Oh, wow. Okay. Yeah, very quickly. Um, so obviously, when you were told that you had to have your baby basically because you have an infection. You’re at 27 weeks, have the doc-

Tiffany  14:49  

–26 weeks.

Winter  14:50  

Excuse me. 26 weeks, had the doctors talk to you about what that meant if the baby was going to be born at that time. What did they tell you?

Tiffany  15:01  

Um, they told me about learning disabilities and breathing issues. They told me that when I first got to the hospital and got admitted in general I was like 24 weeks. They tell me that then. Then as I was, before I gave birth, when I was laying in the hospital bed on labor delivery, before I had her. They were telling me about the complications. They told me that girls have a slight, slightly higher chance of surviving the boys. They told me neurological issues, you know, things like that could happen. Breathing issues, and they told me that they were going to try to help her. And you know, stuff doctors usually say.

Winter  15:38  

Yeah. What were you thinking about what they were saying? Were you worried about all those things? Well, I guess the other thing is that you were worried about the possibility that she wouldn’t make it?

Tiffany  15:51  

I was. I told my ex when we first got to the hospital when I was in labor and delivery. I told him at the beginning I said, she’s not gonna make it. I said, she’s gonna die. We’re gonna lose her. I told him that at 24 weeks. I said she’s not gonna make it. He said yes she is. I’m crying and I said no she’s not. She’s not going to make it. She’s not gonna make it. The second time that the doctor was talking to me right before I gave birth. I was actually Okay, at that point. I wasn’t crying or anything. I was fine at that point.

Tiffany  16:29  

When I gave birth to her that morning, she came out and she didn’t cry. I was like why? I couldn’t see it at first, because the way they had me positioned. Why wasn’t she crying? Why didn’t she cry? My ex Corey is explaining that she’s just looking around. Like, she wasn’t crying. But she was so amazing. She was so surprised she couldn’t cry. So I was laughing because she wasn’t crying. She tried to cry a little bit after they tried to get her away. But she was so surprised. She just looked around the whole time.

Winter  17:03  

Really?

Tiffany  17:05  

Really.

Winter  17:05  

She’s just looking around observing the world. She’s like, wait a second.

Tiffany  17:09  

In shock observing the world. That’s why she didn’t cry. So she came out and my ex is like, look I told you she was gonna be okay. Look, she’s looking around. She’s looking around. She’s, she’s gonna be okay. He went over there to look at her while they were doing work on her and stuff. They took her as soon as I had her. They took her and they put her in a room kind of connected to mine. They put her in that tube and put the bags and everything on her. And he was like, you know, I looked over and she’s okay. She’s fine. And I was like, okay, and one other thing. They told me before I gave birth, they say I might not see her for 24 hours. And I was thinking why I said I was like, that’s not gonna happen. But oh, yeah, I made sure that didn’t happen. I went to see you.

Winter  17:51  

Oh, good. So you labored. They started you on pitocin the night before. And then you gave birth to her in the morning? What time is it in the morning? 

Tiffany  17:59  

I think it was like five. I’m not exactly sure about the time. I forgot the actual time. It was like five or something in the morning.

Winter  18:06  

Okay, so several hours of laboring and when you gave birth, what, what was your feeling? Like? And it sounds like you were a little concerned that she wasn’t crying. But um, how did you feel?

Tiffany  18:18  

I was happy after I gave birth to her. So they said, you know, we’re going to take it to the NICU. And after they took her away, I fell asleep immediately.

Winter  18:24  

Oh?

Tiffany  18:24  

Like as soon as they  took her away, I fell asleep. And then after that, I woke up and I was like— because they told me before I fell asleep they said call us when you’re ready to get up and go to the restroom. Okay. So I fell asleep and I woke up and I was called by the nurse. I said, Okay, I’m ready to go to the restroom and I’m ready to see my daughter Khyana.

Winter  18:46  

Okay, yeah. 

Tiffany  18:48  

They helped me and put me in a wheelchair. The first time I went down there.

Winter  18:53  

Okay.

Tiffany  18:54  

To see her because it was a lot. Then they moved me. They made sure I was okay and they moved me back downstairs again since I’ve given birth. After that, I knew what they showed me where the NICU was at. So I just used the rail and walked myself— using the rail I dragged myself down there. Kind of like walking. They were like Wow, you’re doing great. I was like yeah my daughter’s in the NICU. I can’t wait for somebody to bring me a wheelchair. I gotta go see her. 

Winter  19:19  

Yeah, that’s great. Was it on the same floor at least?

Tiffany  19:24  

It was on the same floor.

Winter  19:24  

Okay good because I was like oh man! 

Tiffany  19:25  

It was a long hallway or what felt like a long hallway. It was on the same floor.

Winter  19:31  

Okay. 

Tiffany  19:33  

Yeah, everybody’s like you’re doing amazing after all that. I can’t believe you can get up and go down the hall. Because of everything that happened. I was like, yeah.

Winter  19:42  

Yeah. So she is. So when she came out, was she breathing on her own? Was she doing okay, like how? Was there any physical things that she was kind of struggling with? I guess she is only 26 weeks old. So that’s why I’m wondering.

Tiffany  20:04  

She didn’t have anything like her outside. She didn’t have any physical deformities or anything. They did have to help her with breathing. They actually took her off the breathing thing at one point for a very short period of time, I think maybe about an hour, hour and a half. But she wasn’t ready for it yet, so they’ve kind of put her back on there.

Winter  20:24  

Yeah.

Tiffany  20:25  

It was mostly her inside. Her outside was perfect. She is still very small, but she was a pound and 14 ounces.

Winter  20:32  

Oh, that’s small. 

Tiffany  20:33  

Extremely small, but her outside looked perfect. It was the inside that we’re having the issues with.

Winter  20:39  

Yeah, so her lungs were probably not developed and any other things that they told you about?

Tiffany  20:46  

It was mainly just her lungs and there’s like, you know, certain parts of her, you know, insides might not have developed fully, but it was mainly I think her lungs until she was about four days old.

Winter  20:59  

Gotcha. Okay. So tell me her name is Khyana. How did you guys choose that name? Is there any special meaning behind it?

Tiffany  21:10  

Not really. See we didn’t want her to have a name that everybody else had. My ex and I were watching something on TV and something or someone’s name was Tiana. He was like, he was like, how about Tiana? I said no, not Tiana. He was like, Okay, how about Khyana? I was like okay, I want to do Khyana. So that’s what we decided to call her and my sister actually came up with the spelling. So I wasn’t sure how I was going to spell it. My little sister came up with it.

Winter  21:40  

Nice. Okay, well, that’s, I love it when people are like, this sounds good. This fits her.

Tiffany  21:46  

Yes. That’s basically what happened. 

Winter  21:48  

So she is in the NICU and you are basically hanging out with her going and visiting her as much as possible. So what happens when she’s in the hospital?

Tiffany  22:01  

So the hospital that I gave birth at that’s where she stayed until she was four days old. So I told my boyfriend at the time. I was like, Can you bring a children’s book up here so we can actually read to her while she’s in the NICU. So that’s what we would do. We would both go to the NICU together and we would sit down and read to her.

Winter  22:22  

That is great. She’s all hooked up though. And everything to a breathing machine. 

Tiffany  22:28  

Yeah. It was hard. The first time I saw her I broke down crying because I saw all the tubes and stuff. All these machines and I started crying.

Winter  22:37  

Yeah. Were you able to hold her at all

Tiffany  22:41  

Not until she passed away unfortunately. I was able to hold her hands and stuff. But they wouldn’t let me pick her up and hold her out of the incubator type thing until she passed away.

Winter  22:52  

Yeah. That’s that doesn’t. That’s not great.

Tiffany  22:57  

Yeah. It was horrible.

Winter  23:00  

Yeah. So you guys are taking some time and spending it with her. She’s doing okay. It sounds like for a few days. Obviously, she can’t breathe on her own. But she is still doing okay. Is she putting on some weight.? I’m assuming they were giving her some tube feeds or something like that?

Tiffany  23:17  

Yeah, they were tube feeding her. And I was also pumping.

Winter  23:21  

Oh Okay.

Tiffany  23:22  

She did end up losing an ounce though. Going down to a pound and 13 ounces. And yeah, that was pretty rough. But I mean, it was only so much feeding her and giving her stuff that they could do to keep her weight up.

Winter  23:36  

Yeah. And babies usually do lose a little bit of weight while they’re in the hospital. In that first little bit. So what then happens?

Tiffany  23:45  

Day four we go in and we leave the house. We leave our house, we drive to the hospital. We go in and we see this x-ray machine over her. I was like why do they have that x-ray machine over her? The doctors are just like standing around. I noticed her stomach was distended. I was like what’s going on. The doctor was like, you know, we need to talk to you. I guess we came in at perfect timing before they called us. I was like, No. They said well we need to talk to you. They thought she needed surgery. She had some issue with her bowel and she needed surgery. And we need to transfer her to another hospital. To a children’s hospital with a level four because that’s a level three NICU I was at with her. She needed to be transferred to a level four NICU for surgery.

Winter  24:40  

Oh, wow. Was that hospital far away from the current hospital? 

Tiffany  24:45  

They were actually right beside each other. 

Winter  24:47  

Oh, okay. 

Tiffany  24:47  

So they are pretty much beside each other. 

Winter  24:49  

Okay, so it wouldn’t have been a super crazy trip or anything to get her there.

Tiffany  24:56  

Yeah, it wasn’t a crazy trip. It took a minute though because the ambulance had to get all the equipment on her. Then get her there with all the equipment and stuff. So that’s what took a minute really.

Winter  25:12  

When the doctor said that there was something wrong with her bowels, did they tell you it was a blockage? Did they give you any idea of what was going on specifically and what they would have to do for surgery?

Tiffany  25:26  

Yeah, they thought maybe there was a hole or something in her bowel. They kind of told me it was some procedure that they wanted to get the air out because her stomach was so distended.

Tiffany  25:35  

Okay. 

Tiffany  25:37  

So they want to do something to let the air out of her stomach when they transfer her. They couldn’t do it there, so they want to do it the other hospital.

Winter  25:44  

Okay. So they transferred her and then she went into surgery. Is that right?

Tiffany  25:51  

Yeah, I told her bye at the hospital. That was the last time I saw her alive at that hospital. At the level three NICU the one I gave birth to her in. When they transferred her. I didn’t see her. I saw the cart. The thing that she was in, but I couldn’t see her when they went past me. 

Winter  26:12  

Because you are still admitted in the hospital? 

Tiffany  26:15  

I just got out like I think a day or two before that. I just got out of the hospital. 

Winter  26:19  

Okay, so you really had not you hadn’t been spending tons of time with her. You were there and I’m sure you were in the NICU a bit, but you didn’t really get that the last time you saw her alive was right there in the NICU. So, what kind of risks and I guess what kind of odds and risks did the doctors tell you about even that surgery as she was going into it?

Tiffany  26:44  

They told me that the surgery, it does come with risk, but it will. It will help and it’s better than leaving her the way she was. The thing is she never ended up getting the surgery. They were preparing to give her the surgery. They were prepping like cleaning up like wiping down stuff like that. They were prepping her for surgery. That’s when her heart stopped. 

Winter  27:09  

Oh?

Tiffany  27:10  

So, she never even got the surgery. 

Winter  27:12  

Oh, wow. So her heart stopped when she was in the OR basically. I’m assuming they tried life saving measures as best as they could?

Tiffany  27:24  

They did. They came out and they told us about her. Because I heard a light go off. I saw a light go off. I knew honestly I just didn’t want to believe it. But I knew it was hers.

Winter  27:37  

Really?

Tiffany  27:38  

It was code blue, or something like that. A light had gone off. It was making noise and everybody took off into that room. So we weren’t in the room at the time it was in a waiting room.

Tiffany  27:47  

I knew it at the time before they even told us. I knew. We both– me and my ex we both kind of figured that was hers. 

Winter  27:54  

So you see everybody head off into that room. You kind of have this feeling. Do they come out and tell you shortly afterward? What’s the time timeline of events there?

Tiffany  28:07  

They tried. They came out and told us. 

Tiffany  28:09  

Okay, so after we saw everybody go into the room somebody later came out. It was two people who later came out and they said hey, like we’re trying to resuscitate your daughter. We are trying the best we can and stuff like that. It was another parent. There were more parents in the room. I started crying after that. That’s before we even got to go back there. But I started crying and everyone was like it’s okay, this happened to my son as well or something like that. She said that this happened to my son before to– Yeah, I think it’s her child. Her child as well and she’s like it will be okay because I was crying in the waiting room. 

Tiffany  28:47  

So the next time somebody came back out, they took us back. They didn’t tell us that they wanted to stop at a time. They just said we’re gonna take you back there with her. We walked in and we saw all these people over her like people putting drugs into her IV. Trying to give her CPR. We saw all of that when we walked in. I was just shocked. 

Tiffany  29:11  

The doctor was like,– what was the exact word that she said– There’s only one next step to take or something like that. And I was like, What is it? So we want to stop with resuscitation. We want to stop. And I started crying. The doctor put her hand up. She told him to stop. But after that honestly I do not think there was no bringing her back anyway. But the doctor told her to stop. 

Tiffany  29:42  

After that my ex stormed out of the room. I was just in the room crying because somebody had brought me some water in there or something. So, somebody went and found him and brought him back, but we were devastated. 

Winter  29:59  

Yeah. Yeah, how could you not be? So did you get to spend some time with her?After she passed away? 

Tiffany  30:08  

After she passed away, they let us hold her. They let us hold her and hold as long as we wanted to. Someone, I think a chaplain or pastor asked if we needed anyone at the moment. I was like no. No, we don’t want to talk to a chaplain or pastor or anything right now. 

Tiffany  30:31  

Then, you know, the doctors and nurses, they kept coming in and checking on us. They let us do the molds with her, as well as let us take pictures with her after she passed away. I can’t look at those pictures that they took. It’s been almost three years and I still can’t put that jump drive into my computer and look at them.

Winter  30:50  

Yeah, it’s too hard. Sometimes. It’s so hard.

Tiffany  30:54  

Yeah. There was actually a nurse there that had lost her son. Her son was I think her son was stillborn. So she came in and checked on us a lot. She was really sweet. She actually started crying too because I was asking her what to do? And she started crying too.

Winter  31:13  

Yep, it’s such a terrible thing. It’s so yeah, it’s devastating. And to have to remember all of that. So were we able to do the hand and foot molds?

Tiffany  31:25  

Yes.

Winter  31:26  

Awesome. 

Tiffany  31:29  

One they did with her father actually came out better than mine. Those did come out a little better.

Winter  31:38  

Then you guys got some photos, which is great. And Was that something that the hospital did like that? Were they able to take pictures? Or were you guys just have cell phones and that type of thing and took pictures with her?

Tiffany  31:49  

Actually, right after she passed? I told my ex I wanted a picture. I wanted a picture with them. So I can look at the one that was actually on my phone. I took a picture with her. I’ve never posted it. I never shared it with anybody. Because for me personally, I didn’t see her alive. I don’t want to post pictures of her not being alive.

Winter  32:10  

Yeah.

Tiffany  32:11  

So that was it for me. Like they’re there for my viewing only. They’re not for like the world’s viewing. So I’ve never shared those.

Winter  32:19  

Yeah, those can be so precious. And so personal and private. I think that’s great. That those should be yours. So you’re in the hospital. You guys get to spend some time. What were the next steps? What did they tell you about that? About what needed to happen after she passed away?

Tiffany  32:44  

Oh, they basically told us a social worker will be in contact with you. I remember that part. They gave me a few resources, but those were the main two things. I had a doctor. Well, I think she was a nurse who came out and told me she was like, you know, I didn’t know her long. But she was very feisty. Yeah it hurt a lot.

Winter  33:10  

Yeah. I like that. She was very feisty. 

Tiffany  33:13  

Yeah, actually, I was happy that you know, someone said something good about her.

Winter  33:17  

Yeah, exactly. We want people to talk about our kids in a good light, right?

Tiffany  33:24  

Yes.

Winter  33:26  

So a social worker comes in, you get some resources. Do they tell you what needs to happen? Like do they offer like, okay, you need to figure out what, what needs to happen in regards to her body. 

Tiffany  33:39  

Um, that came later the social worker came later they gave, they said, someone’s got to be in contact with me. So I think there was a social worker there. But that’s not the person that I ended up talking to afterwards. They assigned me to someone else. She was the one who called, she told me about, well, first, I need to think about it after she died. 

Tiffany  33:59  

That’s the weird thing. I didn’t think about what to do with her body. I never thought about that part. Like it never crossed my mind until they called me and asked me if I wanted to cremate her or have a funeral. I told them I will call them back later while I was crying. Because at that point, well, I’m not gonna back up a little bit. So I might Yeah, I might start off a little bit. So we left the hospital.

Tiffany  34:22  

 Okay. 

Tiffany  34:23  

With the baby stuff. Like all the stuff we had her because we were in a program. There was some program in the DC area where if you went to a few classes, they would give you stuff for your baby. So all this stuff, my ex had gotten the stuff while I was in the hospital and put it in the house because he was like, okay, so she’s in the hospital and now she’s probably going to give birth early. We’ll go ahead and give you everything. 

Tiffany  34:46  

So all the stuff was basically in the living room. 

Winter  34:48  

Oh?

Tiffany  34:50  

I went immediately to our bedroom and cried. I couldn’t I couldn’t deal with the stuff in the living room. 

Winter  34:58  

Yeah.

Tiffany  34:59  

I had my ex move everything into the second bedroom that we had at the apartment,so I can come out. My family actually came the next day after everything happened because they’re in Georgia and were in the DC area. So they were afraid. 

Winter  35:18  

Yeah. 

Tiffany  35:19  

So they ended up coming as well.

Winter  35:22  

That’s great. So they were able to be with you and help you with everything.

Tiffany  35:28  

Yeah, they were able to come and help me. Um, it was pretty difficult because I would just wake up and I would cry every day. Pretty much like that’s there. Yeah, the first few days that she died every day, I woke up in the morning, just crying because I knew she wasn’t there anymore.

Tiffany  35:42  

I couldn’t pump because I was full of milk, but I couldn’t pump it because I’m like, I don’t want to use the machine. I just didn’t want to touch it. I guess it hurt. It hurt too much emotionally to touch it. So I was just in pain. I could get a little bit out like in the shower and stuff. But I was hurting a little bit physically too. Someone told me some over the counter stuff that can help. I did stuff like that. That dried it up versus trying to pump anymore. 

Winter  36:13  

Yeah. Okay. 

Tiffany  36:15  

I couldn’t do it anymore. I couldn’t do it. 

Winter  36:18  

Yeah, it’s just another painful reminder. I think it’s another painful reminder that your baby’s not there. It stinks. So your family’s home with you. It sounds like obviously, you are so sad and crying a fair amount. Then is that when the social worker or the hospital calls and asks what you guys want to do with Khyana’s body? 

Tiffany  36:42  

Yes, she called right– Because my ex, he actually went back to work like two days later, I think. Because the next day was a holiday, Memorial Day. The next day was a holiday. The day after that he went back to work. So he wasn’t there, my family was there, but he went straight back to work immediately. 

Tiffany  37:01  

So when they called the social worker, I talked to her a little bit before that. But then she called one day and asked. I knew they were doing an autopsy. So I knew that part. But I didn’t. I just didn’t think about what they would do with the body afterwards like no clue. When they call and ask, I’m like, I don’t know what to do. I’m just crying really hard. My mom, she kind of brought me down. 

Tiffany  37:24  

So my ex came, my boyfriend at the time, he came to the door. We talked about it because at first I kind of wanted to do a funeral. Then I decided not to. I didn’t do that. To me. Me personally. It feels weird to have a body just sitting in the ground in a casket forever. So I didn’t. I didn’t want that for her. So we decided on cremation. We actually were able to actually cremate her for free. 

Winter  37:54  

Okay. 

Tiffany  37:55  

Yeah, it was some program that they had.

Winter  37:58  

I do want to go back, Tiffany about the autopsy. So they wanted to so I’m assuming you consented to having an autopsy on Khyana to figure out what happened. So what was it? Was there anything conclusive about that?

Tiffany  38:13  

Um, yeah, they told me that when it was finally over with, they called me up. They called me up and picked out a day. They told me that it was– a hard day because the doctor that was there for the day a social worker was like, “Hey, we thought she was going to be available. She was supposed to be available, but something happened. Did you want to reschedule it, or do you just want to talk to the person who did the autopsy?” I’m like, well, I’ve been waiting long enough for this at this point. I’m like, I just want to talk to the person who did the autopsy?

Winter  38:47  

Yeah. And how and how long was that? Before you got that information?

Tiffany  38:52  

Um, I can’t quite remember. I think it was about two months. 

Winter  38:56  

Okay. I was gonna say–

Tiffany  38:57  

–It wasn’t an immediate thing. 

Winter  38:59  

Yeah, exactly. I know a lot of people think that the autopsy is done. And then it’s like, oh, it’s like a you know, three days later, but I think that’s one thing that people–

Tiffany  39:07  

I wish. 

Winter  39:07  

Yeah, that’s one thing people I don’t think realize is that autopsies take a lot of time to do because they have to evaluate tissues and write reports and everything like that. So it does take like two months, like two or three months sometimes. So you did talk to that doctor, or yeah, you probably talked to the doctor who performed the autopsy. So what did they say?

Tiffany  39:28  

Um, they told me that because of the hole in her bowel. She was it— the whole in her bowel was pretty much what killed her and the fact that she was only like a pound and 13 ounces as well. I think that’s– I’m not really sure what they said about her heart and lungs and stuff. I think those were kind of weak as well, which was typical. But the main thing that killed her was her size and the infection that she had because she also had an infection in the hole in her bowel. 

Tiffany  39:58  

Yes, okay. So that would be so hard. Did you guys do any sort of memorial service? I know that you cremated her, but did you guys have any sort of yeah memorial service for her? Since it sounds like your family was there and or nearby anyway?

Tiffany  40:19  

Um yeah, we did. We went to Georgia and had it because my ex he’s from Georgia and I am as well. We’re from different parts of Georgia.

Winter  40:27  

Gotcha.

Tiffany  40:28  

We are both from Georgia. So we went to Georgia, and went to my parents house and hadit. His side of his family came as well. We had this big cookout. We had someone say a prayer before we ate it. It was nice. We had drinks. It was fun. It was fun. I enjoyed it wasn’t like a sad thing. That’s why I don’t like funerals personally. 

Winter  40:53  

Yeah.

Tiffany  40:54  

I wanted to do a celebration of life thing and just enjoy the life that– the short life that she did have. I don’t want to sit around and cry at a funeral that is just me personally. 

Winter  41:04  

Yeah, yeah. No, no, I think that’s how you would want to honor her. Right? I mean, you don’t want to be sitting around being sad. So that was probably quite the, that sounded like that was good. Maybe healing to have that time together as a family and to think about her. Now I guess the question is, how are you doing now? Like, how has it been for you?

Tiffany  41:33  

The month of May is always the hardest for me because her birthday ,her death day, and Mother’s Day are all in the same month. 

Winter  41:40  

It is just that’s like–

Tiffany  41:42  

-It destroys me every year until the end. I managed from the beginning of that month to around the 29th or 30th is when I’m okay. 

Winter  41:51  

Yeah.

Tiffany  41:52  

But that whole month I am a disaster. 

Winter  41:55  

Yeah. Just a reminder, right. 

Tiffany  41:58  

A painful reminder.

Winter  42:01  

Just a reminder. Well, can you tell me a little bit more? Anything more that you would like to tell us about Khyana about who she was and like yeah anything that you want to tell us that you’d like to remember about her?

Tiffany  42:17  

Um, I like to remember how sometimes she actually had a tight grip to be so small with her hands she actually had a really tight grip. I was really happy that she actually was –I mean she was four pounds 14 ounces so she was weaker, but she really didn’t look like it. She actually was a little strong. I saw muscles in her calf and stuff. I was like wow, I wasn’t expecting that. I was expecting a frail baby. A very frail deformed baby. I wasn’t expecting that. I know her insides we’re not formed correctly, but on the outside. She’s just an extremely small baby.

Winter  43:04  

Yeah. Yeah. That’s awesome.

Winter  43:11  

Well, Tiffany, thank you so much for sharing the story of your sweet daughter Khyana. We appreciate you sharing it. It’s always hard and I hope this honors her. 

Tiffany  43:24  

Thank you.

Transcribed by https://otter.ai

Filed Under: birth story, early neonatal infant death (<7 days), infant death, podcast episode Tagged With: infant loss

After My Son Died, I Learned To Ride The Waves of Grief | Emergency C-Section Birth

February 7, 2022 by Winter

In this interview, mom Lori Ann describes what grief and mourning has looked like for her after her son Owen David was born via emergency C-section one week before the COVID-19 pandemic shut everything down in her area. He was 26 weeks old and passed away a short time after he was born. She tells of how she incorporates him into their lives on daily basis, how she and her husband have learned to support each other, and that grief is like waves and how you learn to ride them.

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Time Stamps:

00:00 Baby’s name

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Owen’s First Birthday, celebrating with Owen Bear

Full Transcription:

Winter 0:00
We are so happy to be here together. I’m so excited to have LoriAnn on this episode to talk a little bit more about her son Owen. He passed away last year in 2020. If you haven’t had a chance to listen to her birth story, please go back and listen to it because it was so powerful and so touching and it will make you cry. Just a heads up, it will make you cry. So, but LoriAnn thank you so much for coming on today and talking to us a little bit about grief and what it looks like for you in the last year. So thank you. Welcome again.

Lori Ann 0:34
Thank you.

Winter 0:36
As a little bit of context, your son Owen. When was he born? And how long ago was it when everything went down?

Lori Ann 0:44
He was born March 10 of 2020. His due date was June 14, but he was born at 26 weeks.

Winter 0:54
26 weeks? Yeah. So obviously, when he was born at 26 weeks, there were a lot of issues because your water had broken at 21 weeks.

Lori Ann 0:55
Yeah.

Winter 0:58
He just didn’t have a lot of time to develop and, and was struggling to–

Winter 1:10
Yeah.

Winter 1:10
–to kind of thrive on his own. Right?

Lori Ann 1:12
Yeah, the doctors actually say that the most important stage of a fetus’ time to grow their lungs is between 21 weeks and 24 weeks. So when my water broke at 21 weeks, and he made it to 26 weeks, he missed that most important part of when the lungs develop.

Winter 1:41
Yeah.

Lori Ann 1:41
So they just didn’t, they just couldn’t develop. Enough. So um, that’s ultimately why he passed away.

Winter 1:49
Yeah, it was just so hard to listen to his story. But I’m really grateful for that. So this last year, it’s been just a little bit over a year, and you just barely celebrated his first birthday. What does that grieving process look like for you? Everybody talks about it being a journey, but I’m sure it looks really differently for you than other people. What? How has that been?

Lori Ann 2:13
I think COVID has made it a little bit more difficult in the sense. The night that Owen passed away, I was in a fog. But I had apparently found a therapist online that night, when he passed away, I guess I reached out to somebody that night, knowing that I knew that I would need help and to talk to somebody. That person had gotten back to me, but it took me a month to get back to her.

Lori Ann 2:48
I finally reached out to her. So even having a therapist, as much as I love my therapist, and she’s been amazing. With COVID it’s not in person. It’s either over the phone, or even over a zoom phone call, which I think that’s been fine. We’ve been doing a lot of work. She’s been extremely helpful.

Lori Ann 2:48
I do wish there was some sort of group because I know before COVID you could have group therapy sessions with people.

Winter 2:51
Yeah.

Lori Ann 2:51
You would all meet and then get together and have that support system. I feel like I didn’t get to have that. But I did find different Facebook groups where women have lost their children. I’ve actually made a couple of friends there that I talk to pretty much on a regular basis now. That has been really helpful with the healing process just because it’s helpful to talk to somebody who has gone through, what you’re going through. It’s a very hard thing to understand. It’s something that I would never want anybody to have to understand this type of grief. But it is definitely a very specific type of grieving.

Winter 4:07
I totally agree with you, because we also have a great therapist, and she helps us. She has helped us work through a lot of things. But you are completely right. My little group of women that I have met that have gone through the exact same thing and we meet kind of regularly it’s huge to be able to say, Oh, you know what, it’s like to have lost something so big in your life.

Lori Ann 3:34
Yeah. So yes, and then to understand all the emotions that come with it. One of the things that I have learned in this year is that you need to feel every emotion if you’re angry, it’s okay to be angry or if you’re sad. It’s okay to be sad. That’s been a little tough for me, in the beginning, because I feel like I’m one of those 10s of people that when something happens, I go through it and I handle it. And then it’s like, okay, move on.

Lori Ann 4:42
Obviously this is not something that you can just, you know, kind of work through and then move on like this has been, it’s pretty much I feel like learning how to live your life with this emptiness, or this pain almost every day. I mean, I feel like my husband has been my biggest supporter. I think our communication has been key through all of this, and learning the different grieving stages, because people grieve differently at different times.

Lori Ann 5:59
My husband and I have always been on different friends, parts of our grieving, but my therapist has helped us understand how everybody grieves differently and what it looks like for me to grieve. Then what it looks like for him to grieve. It’s learning how for each of us to learn to communicate with each other, where we’re at. We do that when we literally check in every night together.

Winter 6:30
What does that look like? Is it a “How are you doing today?” Kind of a thing? Or?

Lori Ann 6:35
Yeah, some days it looks different on different days. Sometimes when I’m feeling really sad, I can’t talk. I shut down a little bit. I think it’s just because I need to process and Matt had to learn okay, that’s how she does it.

Winter 6:56
Yeah.

Lori Ann 6:57
It’s not that I’m trying to shut him out, or not telling him things because I just don’t want to tell him I just need to process things before I can spill it out.

Winter 7:09
Yeah.

Lori Ann 7:10
So it’s like we’ve had to learn that. And that it’s okay. If I can’t tell you, right, the second what’s wrong, it’s okay. Give me a minute. And I’ll get him in it. Then we can come together and we can talk about it.

Winter 7:27
Yeah. How does Matt usually process things that you’ve noticed?

Lori Ann 7:32
He, I feel like has a little bit of a tougher time processing things. He had a rough childhood growing up. He has a lot of PTSD from issues from his past. So it’s very hard, I think, sometimes for him to talk about and to even acknowledge a feeling. He’s working on that. We’re figuring out when I do this, it doesn’t mean I’m angry. It might just mean I’m sad.

Winter 8:09
Yeah, exactly.

Lori Ann 8:11
I think for a while Matt is the type that wants to take care of me, and wants to always make me feel better, or, you know he wants to do something to help me. What we’ve come to realize in this is that there’s not always going to be something you can say or do that’s going to fix how someone is feeling.

Lori Ann 8:36
I can remember one night where I think it really hit us. He was sad that– I actually think it was the day before Owens birthday. He was sad. I was sad. Normally, not that we would argue, but one of us would be rushing around trying to help the other person feel better. But instead, we’re learning to almost be in those moments together. That night, we were both sad. We were both like, this stinks. It’s nothing we can say to each other that is going to fix anything at this moment. We were able to just cry together and be in that moment.

Lori Ann 9:30
I felt such a strong connection with him. Just because we were okay with it. You know what I mean? We weren’t looking to fix the other person. It was like, this stinks. We’re in this together. Nothing we can say can fix this. Let’s just be here with each other in this moment. And then we move forward.

Lori Ann 9:57
I really feel it’s taken us this year to be able to do that. Because I mean, you don’t want your significant other to be in pain, or to feel sad, or you don’t want that. You know, you always have that urge to just fix it for them. For us to know alright, there’s really nothing we can say or do right now. It was just a very strong moment. For us, I feel like where it was okay, we’re crying together, we’re, you know, holding each other, we’re doing what you need to do. It meant a lot, I feel like to both of us that we reached that point where we felt okay with that.

Winter 10:50
I feel like that’s a huge step in a relationship to just realizing that you can be together in your feelings, whatever those feelings may be, especially in this crazy process. So that’s a lot of that’s really like, a lot of maturity right there in the sense of a relationship in a relationship. So that’s–

Lori Ann 11:08
Yeah.

Winter 11:09
–that’s pretty cool that you guys got to that point, or at that point, right.

Lori Ann 11:13
Yeah.

Winter 11:14
Not saying it’ll be like that every time.

Lori Ann 11:16
Right? But of course, of course, yeah.

Winter 11:17
You’re just hoping things get better, you know, but you can’t ever split

Lori Ann 11:22
In that moment.

Winter 11:23
It was good. We were talking a little bit earlier. I do want to kind of explore this a little bit more, what kind of things do you have? Or have done to kind of remember Owen. I know that you mentioned that you got a tattoo in your birth story. Then also, there’s something right behind you that I want you to talk a little bit more about. Can you tell us all the things that you’ve done to help you remember him on a daily basis? Because I think you’re right LoriAnn is that I don’t think people realize that there are some things that you can do to remember your child by. So can you show us all of those?

Lori Ann 12:09
Yeah, definitely. Um, the first thing I did was get a tattoo, which I know a lot of people do. I don’t even know if we can see it.

Winter 12:19
Yeah, you can kind of see it.

Lori Ann 12:21
Yeah I have, the mom and the son it says “Always on my mind forever in my heart.” Then it’s got his hand and footprint.

Winter 12:34
Oh, just right there. Okay.

Lori Ann 12:36
Yeah. Then it has his date and then it says, “Owen, are you here?” So that’s always here because then I have my dog’s footprints. Then I love turtles, so it’s got turtles.

Lori Ann 12:51
So it’s an entire sleeve?

Lori Ann 12:53
The whole sleeve is done there. Then another thing that I always have is my necklace that has his ashes in it. I wear this all day every day besides when I take a shower, but this is always– I always feel comfort knowing that he’s with me in this sense.

Winter 13:17
LoriAnn is that one where you can put some ashes into it and it kind of has a lid and it screws down, or is it one that was kind of encased into it?

Lori Ann 13:27
No, this is one where it’s in a kind of see there’s a tube.

Winter 13:32
Oh, okay. Yeah.

Lori Ann 13:34
That’s where his ashes are.

Winter 13:36
Gotcha. Okay.

Lori Ann 13:37
Then you have to super glue it just so it cinches on and stays on. So I have that.

Lori Ann 13:47
Then I had his hand and his footprint. I mean he was two pounds so he was very tiny. I had the idea of wanting a necklace of his actual size, hand and footprint. So I took his hand in his footprint to a jeweler. They actually were able to cut out–

Winter 14:19
Look at that!

Lori Ann 14:19
This is the actual size and outline of his hands.

Winter 14:26
They are so tiny.

Lori Ann 14:28
I know the same thing with his footprints.

Winter 14:33
Uh huh.

Lori Ann 14:35
This was his exact size. It has all the details of it of his foot. These are something else that I kind of wear every day too. I find it just really special that this is his size. This is his exact size of hand and footprint. I did get a necklace once of them, they printed his hand and his footprint on it. But I was like, I don’t know I want the actual size.

Winter 15:10
I’m gonna say they were really small, right on the other necklace?

Lori Ann 15:14
Yeah, it was just like, you know, the tiny little, and they just put it on a little necklace, which is fine, that’s okay. But I just find this to me it’s special, because it’s his exact everything.

Winter 15:31
Yeah.

Lori Ann 15:31
It’s just another way of me honoring him and of keeping him with me every day.

Lori Ann 15:40
Then I have my Molly bear. Which they made this awesome bear where they put Owen David on.

Winter 15:54
That’s so cute.

Lori Ann 15:55
Which is so cute. It weighs two pounds, which is how much he weighed. We actually, for a while I struggled with the idea, but I thought people would judge us. If I took this bear places with me, or did things with it. For a long time I couldn’t do that. I can’t take that with us.

Winter 16:26
Yeah.

Lori Ann 16:27
Then I’m like screw it.

Winter 17:20
Yeah.

Lori Ann 17:20
This is helping me heal. This is one of my ways that I want to remember and honor and keep my son alive in memory. If my husband and I go on hikes, we put the bear in the backpack. Then if we’re at a special spot, then we’ll take it out and we’ll take some pictures with the bear.

Lori Ann 17:20
On his birthday, we actually went to New York City. We went to a whole bunch of different places. We got pictures of the bear with us.

Winter 17:20
All over the place, right?

Lori Ann 17:20
Yeah, his all different locations and on holidays actually. I thought my family was gonna think I was crazy. I brought– because I had text my parents before a holiday and I said, “I’m bringing the bear. I don’t care if any of you think I’m crazy. It’s helping me keep his memory alive. He’s just always with us.”

Lori Ann 17:20
When I went to my parents house, my mom actually took out this little rocking chair. It was this little one. It was apparently her great grandma’s chair, a doll chair from years and years ago. But she had went and pulled it out and said, “I think this would be perfect for Owen’s bear. We can just you know, put it you know where everybody else is. Then you know, the bear can sit there and then he’s still with us during the holidays.” And I was yeah. Yeah, that’s perfect.

Winter 15:49
That’s awesome.

Lori Ann 18:31
You don’t think I’m crazy?

Winter 18:33
Well, I also think that there’s something to be said that you kind of gave him like, I’m doing this. You kind of gave him a heads up. I’m doing this.

Lori Ann 18:42
Yeah I’m doing this.

Winter 18:43
Yeah. So whether you approve or disapprove and the fact that they embraced it.

Lori Ann 18:48
Yeah.

Winter 18:49
The fact that they embrace it is huge, yeah, and they were able to incorporate that into how you guys were celebrating the holiday. So I think that’s awesome kudos to your mom.

Lori Ann 18:59
Even Matt was like, a little eeehhh about it. Because he’s like we’re gonna bring a bear everywhere with us. Then the one hike, I was like, “Okay, take a picture of me and the bear.” And he was like, “Uh, okay.” But then by the next hike, literally, he has the bear on his back like he’s walking through the woods and people are walking by. He finally understood what it meant to me and that it’s just us honoring him and keeping his memory alive.

Lori Ann 19:45
For his first birthday, we actually did a photo shoot for his birthday and we got this nice cake. We had the pictures with the bear with the cake and we did this whole photoshoot. It actually came out super cute. And I was so happy about it.

Winter 20:05
They are so cute. The pictures are so cute. I will share, I’ll share them. If you get a chance go look at her birth story because they will be in that slideshow.

Lori Ann 20:14
Yeah.

Winter 20:14
So.

Lori Ann 20:15
When I got the pictures back, I felt happy. That’s what I wanted. I feel I’m honoring my son. This is my way of always keeping his memory alive and keeping him a part of our life. That’s so important to me.

Lori Ann 20:39
That’s another reason why I’m so thankful that you are allowing me to share his story.

Winter 20:46
Oh, of course.

Lori Ann 20:48
One of my biggest fears. One of my biggest fears was he’s gonna be forgotten. No one’s gonna remember him or, you know what I mean? That’s a general fear. I don’t, he was here he meant he means something. But even if he’s not here anymore, and he made impacts on people’s lives, I just don’t want that to be forgotten.

Lori Ann 21:18
Thank you so much for letting me share his story. This alone is helping me heal. Just listening to other people’s stories, too, has helped me heal in so many ways. I’m just so thankful that you guys are doing this. It means so much to me. And I’m sure many, many other people.

Winter 21:46
Oh, you’re welcome. This is a space where it’s to honor our son too. So that’s exactly the reason why, you said, we did not want anybody to forget our son, just like you don’t want to forget your own and have anybody forget him, you know. So thanks for saying that. That’s really kind of you.

Lori Ann 22:07
Yeah.

Winter 22:08
Thank you for sharing all of those fun things that you’ve done. I think that’s so great. We all have different ways of doing it. I think I’m getting more ideas. Sometimes it’s really nice to say “Oh, I want to do it that way.” I think that’s pretty neat.

Winter 22:21
So this last year has been obviously really tough. I’m sure that after you had mentioned that after you had come home, you had an emergency C-Section, which obviously is very hard on the body. Then you’re also mourning the loss of Owen. Thankfully you didn’t have to go back to work. Hashtag silver lining of COVID. Right?

Lori Ann 22:43
Yeah.

Winter 22:43
I mean, but how was the first couple of months? Was there anything that you guys did in those first, that really raw, really terrible time? It’s just so so hard those first couple of months. Did anything? Was there anything that you did to help? Or was there anything that really kind of stuck out to you during those first couple of months?

Lori Ann 23:06
I feel like every day, something popped up that was so difficult. I have not birthed another child. So this was my first time. I can remember sitting on the couch and I started lactating. I just did not even no one even mentioned that. I didn’t even I didn’t even think about that.

Winter 23:38
No, no, no, nobody told you? Oh, it’s the worst.

Lori Ann 23:44
Nobody told me that. I was sitting on the couch. That was one of the roughest times and honestly, I don’t know what I would have done without my husband. He was grieving. Oh, and also that at that time, but he still found it in him to take care of me every step of the way. I mean, helped me shower. Because I know a C-Section that’s painful.

Lori Ann 24:20
But I was still in that shock stage like this happened. I think I mentioned before that I suffer from anxiety and depression already. Before any of this, I was frozen and numb and was just so lost. He picked me up when I was so down and I still to this day I don’t know how he did it. You know what I mean.

Winter 24:55
Yeah.

Lori Ann 24:55
He just did so much for me. I’m just so thankful that he did everything. He literally helped me out physically, mentally. I’m thankful that this brought us closer together. Because I have heard not such good stories, you know, when couples don’t make it through a tragedy like this. I could see how that could happen, because it’s not easy, and you need to work at it. You need to communicate, and not say that we’re perfect ever, because that’s not true. But I just have learned from those first couple of months we needed each other.

Lori Ann 25:45
We were there for each other. I know that sounds cliche, or kinda lame or whatever. But honestly, because even with COVID we weren’t seeing people. Well, yeah, I mean we were unsure everybody was so unsure of this thing, and people were afraid to see their family. Not going out, and everybody was in quarantine.

Lori Ann 26:14
I have amazing friends that reached out every single day, or would send flowers, gifts and cards to me. Check in on me every single day. I just learned that you just need to have people that you can lean on during those times. The people that understand when you’re angry. That’s okay.

Winter 26:46
Those are good friends when they know.

Lori Ann 26:48
Yeah and it was tough. Because my best friend of 12 years, when I found out I was pregnant, she got pregnant. She was like let’s raise our babies together. She thankfully was fine. Her baby was born and he is growing. He’s so perfect and adorable and amazing. Despite me losing my son, she is still always there for me.

Lori Ann 27:19
Then in the fact of what do you need from me? I don’t want to upset you. I want to make sure that I’m that. Communication and being able to tell people what you need in the moment is so key. It was what I found helpful between my relationship with my husband, my friends, and my parents. It’s not always easy, trust me, because that’s one of the things I work on with my therapist all the time. How to tell people what I need in the moment.

Lori Ann 27:54
But having those people that truly care and want to know how to help you. It’s just, I don’t know what I would do without any of them. I definitely have a very, very strong support system. That is definitely what I learned in those first couple of months that you need to have those people.

Winter 28:16
Yeah, for sure. I want to point out something that you said that was so so good. Your best friend who had a baby the same time you I mean, right. She’s pregnant the same time you guys would have.

Lori Ann 28:30
She was like a month behind me.

Winter 28:32
Yeah. So the fact that she asked you specifically, what do you need from me? And like, that just says a lot too. Because some people can just kind of be like, I want to help you and do everything. She was kind of waiting for your cue of like, I need you now or I don’t need to see you right now. Because I personally think it would have been difficult. For me anyway, if I was kind of doing that same track with a friend. Then I’m like, I didn’t have a baby. Now you’re pregnant and I don’t want to see you. You know what I’m saying like that, that would have been hard. But the fact that she was she said Where do you need me to be? What do you need me to do?

Lori Ann 29:09
Yeah, or like, what do you need me to not complain about? Or what do you need me to do? She’s just been amazing through it all. She still talks about Owen too though. I mean obviously we had so many plans of what we wanted to do. She also had a boy also, so it was you know we’re gonna raise two boys together. We’ve been best friends for years. There were just so many plans and now those plans were ripped away. Even the simple ones.

Lori Ann 29:48
If I post something I always post like a purple our blue heart next to Owen and the one day she even just like said to me like I just want you to know that I hope, you know, when I post pictures of my son, I post a green heart, because I associate the blue heart with Owen. Owen is the blue heart. I don’t want to take that from Owen, just like things like that, that’s just so thoughtful, and amazing. Definitely need more people like that.

Lori Ann 30:27
I mean sometimes people try to help and they don’t mean any harm by the things they say. But sometimes it can be painful. But again, there’s no right or wrong thing to say. It’s such a heavy topic.

Winter 30:47
Yeah.

Lori Ann 30:48
I feel as long as it’s being talked about, and people are being open, and people don’t have to feel ashamed of hiding anything, or just with this bear. I literally was almost feeling ashamed that I was going like, I have five outfits for this bear. You know what I mean? At first, I was like, I’m crazy. There’s something wrong with me. But then you know what, it’s helping me heal whatever.

Winter 31:19
I was gonna say. That’s the nurturing part of you. Right? I mean, you’re trying to nurture something that you can’t.

Lori Ann 31:25
Yeah.

Winter 31:26
Yeah. So I think that is really, that’s really cool of your best friend. That is really, your support system sounds amazing.

Lori Ann 31:36
Yes.

Winter 31:36
Sounds like you have had people surrounding you, which is awesome, especially in this weird time. We lost two and a half years ago and that was hard. But I can’t imagine not having all that physical support, like having actually having people come to the hospital and visit us and, and meeting meaning our son. I’m glad your parents got to meet Owen.

Lori Ann 31:59
Yes, definitely. Because it was just two days after he was born, they quit having any visitors allowed at all.

Winter 32:09
Yeah.

Lori Ann 32:09
I’m glad that my parents were at least able to be there.

Winter 32:14
Yeah.

Lori Ann 32:14
To meet him.

Winter 32:16
You mentioned that you had a therapist, you have a therapist, and you apparently contacted this therapist at the hospital and didn’t remember it. How has that been working through with the therapist? Is that something that has been helpful for you?

Lori Ann 32:34
I think my therapist has helped me a lot. Sometimes I feel it’s just 45 minutes of me talking. That’s what I might need to vent.

Winter 32:50
Yeah.

Lori Ann 32:51
She also allows us to do a family session. So, Matt’s allowed to join in sometimes into the session. I think that helps too, she’s just helped me in such a way of understanding grief, and understanding that it’s not so clear cut. It literally comes in waves. When people say grief comes in waves. I fully understand that concept now. You know, you’re like Oh, I’m okay. Yeah. And then it’s you see you as a toy, a baby toy. And it could be you’re drowning now and it could come out of nowhere. I’ve walked past that same toy for the past week, and nothing happened. But then who knows grief can hit you at any point at any time.

Lori Ann 33:59
I feel like you’re learning to ride though it was like a ride. And I’ve learned the hard way to do that. I used to just build up in me, all my emotions. Instead of saying, if I was in the store, and I was feeling sad. I would just let it build up. Then maybe later something happened, I was mad. I would just keep it in. I would be tipped over by my stress or whatever. I would explode with anxiety, anger and all these different emotions. This past year I’ve been really working on trying to ride that wave. If I’m in the store and I’m feeling sad about something. I’m not gonna lie, I have cried in the middle of a store and whatever.

Lori Ann 34:58
That’s another thing. I’ve learned whatever, those people can judge me all they want, but there’s no way to survive unless you learn to handle those feelings that you have in the moment.

Winter 35:14
Yeah, I like what you said, riding the wave, right?

Lori Ann 35:18
Yes, they are, you’ll be able to ride it.

Winter 35:20
Yeah, because they ebb and flow. They peak and they trough. Yeah, there’s gonna be times when you are not just sad, but you could actually be happy.

Lori Ann 35:30
Yeah.

Winter 35:31
You can have good memories of your son, or feel really sad. I think it’s just really good emotional intelligence that actually to do that, it’s hard for a lot of people to ride the wave like you said.

Lori Ann 35:43
It’s definitely not easy. Obviously, there are certain situations where you’re not really going to be able to. Like at work, if you’re feeling a certain way, you might not necessarily be able to ride that out at work. I’m extremely grateful because I work with a small group of people. They all know everything that I’ve been through. So if I need a moment, if I’m feeling some sort of way, I just say to them I need a moment. They’re like, I got it, go for a short walk, take it a little break. They allow me to do that. I’m definitely very grateful for that. Because I don’t know if everybody’s job would be, you know what I mean? If everybody’s job could allow that to happen.

Winter 36:41
Right. And also, just the kind of it sounds like they care about you to let you do that, you know?

Lori Ann 36:47
Yeah, definitely. And I’m very grateful for that.

Winter 36:52
That’s awesome.

Lori Ann 36:54
Yeah.

Winter 36:54
Lori Ann, so I know that you mentioned this earlier of like, you know, there’s not really any one right thing or wrong thing to say in this situation. I think I would agree with you on that. Because I think it just depends on the person, right? I mean, it’s really tricky. And also, depending how you feel that day, or even in that minute,.

Lori Ann 37:14
One hundred percent.

Winter 37:16
Is there. I’m wondering, but was there anything that somebody said to you that really impacted you, or was helpful to you?

Lori Ann 37:24
One of the positive things would be like what my friend said to me: what do you need in that moment? That would be something, I think, would be a good thing to say to somebody, especially because I know a lot of people don’t mean harm when they say certain things. But I think acknowledging, I don’t know what to say to you, or I don’t want to offend you. Or I don’t really know how to say this. I think those things would be good to say to somebody, instead of just spitting out when’s the next child coming, or are you going to be trying again? Or it’s just being aware of someone’s situation. If somebody got into a motorcycle accident I don’t think I would bombard them with when are you getting back on your bike? Are you gonna get on it now? What’s taking you so long?

Winter 38:31
That’s a really good way of putting it actually, I’ve heard that before.

Lori Ann 38:35
But yeah, if you would probably or hopefully trying? I don’t know if you really want to talk about it, or if you’re ready to talk about it. But do you think you’re gonna ride a motorcycle again? It’s just being aware of how, you know, you’re gonna bring up a topic that might be a little hard to talk about.

Winter 38:55
Yeah.

Lori Ann 38:57
It gives that person a way to answer and a way of “No, I don’t want to talk about that. right now.

Winter 39:02
Yeah.

Lori Ann 39:03
Or thank you for acknowledging that. It could be difficult, or whatever it might be.

Winter 39:12
And it’s interesting, because you mentioned before that you started to become very open about your fertility issues that you guys have had. And so if they read the situation gosh, maybe they’re not ready, and so I’m not gonna ask about that kind of thing. I know it is that what are you gonna have another one that one is you’re just, Hey, I’m still I’m still working on this one. I need to, I need the time to process right.

Lori Ann 39:38
Yeah, just with being open with fertility, I think I was saying before I started being so open about it, because I was so tired of feeling so down on myself. When being asked, why don’t you have kids yet? Where’s your kids? You should have four by now. Where are they? Why don’t you have any? Those types of things where I would just laugh them off and Haha, yeah, yeah, we’re getting there. Well, but meanwhile, we’re struggling to get pregnant and it’s not easy. And it’s not a joke.

Winter 40:20
Yeah.

Lori Ann 40:20
It’s hard. Those things led me to be open about it. So people can maybe think a little differently. Before they start asking questions to people.

Winter 40:34
Yeah. Lee, my husband, is notorious for making people feel super uncomfortable when they ask him questions about if we’re gonna have kids or whatever. He’s, he just makes him super uncomfortable. I think it is kind of a personal question when you ask that. So, because you don’t know what people are going through.

Lori Ann 40:53
Yeah.

Winter 40:54
You just never know what they’re going through.

Lori Ann 40:55
Yeah. That’s funny that you said that. Somebody made some kind of comment about it, it was a stranger. They’re, Oh, you guys are such a cute married couple, you gotta have kids by now and I’m like our son died. My husband said you can’t just say that. Well, yes I can. Our son died.

Winter 41:27
It’s the truth.

Lori Ann 41:28
He asked and that’s the truth. It’s not my fault that now he has no idea what to say. So, I might be a little bit too straight forward sometimes.

Winter 41:45
It’s fine. Well, it hopefully will make him pause, that guy pauses the next time he wants to ask.

Lori Ann 41:55
Yeah, exactly.

Winter 41:58
That’s kind of a little bit funny. It’s the truth, right? Well, it’s totally the truth. I know that you guys had a photoshoot, you made it. You actually had a special cake made for Owen’s first birthday, which was just a couple of weeks ago. I think that’s awesome. Are there any other kinds of things that you guys have done for the holidays? Because I mean, you guys have basically been through an entire year of holidays? Did you do anything special or anything that you really that you’d to share with anybody that is maybe going through the same thing.

Lori Ann 42:34
For Christmas I actually made it because we hang stockings, and we have two dogs. So we’ve always had our Matt, Lori Ann, Sadie, Ellie stockings. And I was really looking forward to having Christmas, you know, this year with Owen and I was super bummed about it. Then I’m like you know I’m making him a stocking and I did. I made him this cute stocking, but I added angel wings to it. I did that for us to keep his memory alive or to honor him again, still.

Lori Ann 43:18
I’m still trying to find ways to honor him. And to just continue to do that. Then again, any holiday, we do just have the bear, you know, and it sits in the special chair.

Winter 43:35
Yeah.

Lori Ann 43:36
For his birthday, we had the photo shoot, the birthday cake, and we had some family over. It was a good time. I didn’t want it to be sad. I wanted it to be where our family got together. Everybody hung out, we actually sang Happy Birthday to him. So that was nice. Yeah, I mean, we’re still trying to figure out a bunch of different things, but so far, those are the things that have helped us.

Winter 44:08
That’s great. I think those are great little traditions and things that you’re trying to do to incorporate him.

Lori Ann 44:13
Yeah.

Winter 44:14
Lori Ann Thank you so much for coming on the podcast I actually do on this episode. I am wondering if you have any last advice or tips that you would give to a lost parent or even those who are supporting a lost parent?

Lori Ann 44:28
Um, well, if you’re a lost parent, my main advice would be, do what’s best for you. You need to take time for yourself as a lost parent. If you’re not ready to go back to work, don’t rush to go back to work, don’t let anyone try and pressure you. Tell you that it’s been four months and you need to go back. No, you’ll know when you’re ready to go back to work. Or don’t put so many people’s pictures up on the wall of them they’re not here anymore. No, if you want to put those pictures on the wall, put the pictures on the wall.

Lori Ann 45:09
People don’t understand if they haven’t been through it, everybody grieves differently. Everybody has different needs and wants. Just do what you want and what you need to do to help you move forward, not move on. Because I hate that saying.

Winter 45:27
Yeah.

Lori Ann 45:27
We’re not moving on, we are moving forward. If you’re helping somebody that’s grieving a child, be patient, and understanding. Listen, and don’t ask, how are you and expect good. I’m great. Or if you’re gonna ask how are you really mean it. Really wonder how somebody is feeling and just be there for somebody. For whatever they may need at that time. Because one day one thing might be right, and then the next step might be wrong. So communication is key.

Lori Ann 46:16
Yes, we are fickle beings.

Lori Ann 46:18
Oh yes.

Winter 46:21
That was some great advice for both parties. Lori Ann, thank you so much. This has been an honor to talk to you and hopefully honor Owen as well and his memory. I thank you for your advice. It was great talking to you. It’s just been so fun.

Lori Ann 46:36
Yeah. Thank you so much.

Transcribed by https://otter.ai

Filed Under: infant death

A Father’s Birth Story and Death of Son via Emergency C-Section at 26 Weeks

February 7, 2022 by Winter

Dad Matt shares the birth story of his son Owen David at 26 weeks and his subsequent death a few hours after he was born. His wife Lori Ann had a cerclage put in earlier, but her water broke at 21 weeks. Lori Ann stayed on bed rest till 24 weeks and was admitted to the hospital so they could do everything medically possible to keep Owen alive.

She developed an infection and Owen was delivered by emergency C-section at 26 weeks. Owen was unable to breath on his own, and Matt and Lori Ann were able to be with him and hold him before he died.

Watch here (YouTube):

Listen here (podcast):

Time Stamps:

00:00 Baby’s name

You might appreciate these other episodes:

  • Watch/listen Lori Ann’s (Matt’s wife) birth episode of son Owen: Click here
  • Watch/listen to Lori Ann’s advice episode after Owen’s death: Click here

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Matt and LoriAnn with their son Owen

Full Transcription:

Matt’s Story of Son Owen 

Matt Liddle  0:01  

My child’s name is Owen David. 

Matt Liddle  0:10  

I remember the moment he opened his eyes. There’s a lot of tubes and a lot of people but the moment he opened his eyes, they were just so precious. No surprise, he had a full head of hair. I thought he was perfect. He was something else.

Winter  0:30  

Welcome to Still A Part of Us a place where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter.

Lee  0:37  

And I’m Lee, we are grateful you joined us today. Please know that this is a story of loss and has triggers

Winter  0:43  

Thanks to our loss parents who are willing to be vulnerable and share their children with us.

Lee  0:47  

If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

Winter  0:54  

Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they’re still a part of us.

Lee  1:07  

Now Matt, please tell me about yourself. 

Matt Liddle  1:10  

Okay. So right now every day is a little different for me. I wake up feeling great and other days, and I wake up feeling extremely sad and depressed. On days I’m feeling down, it’s very hard to get out of bed, nevermind accomplishing anything. 

Matt Liddle  1:31  

Currently, I’m unemployed due to COVID. And to be honest, I’m not ready to go back to work yet, even if COVID wasn’t a thing. It’s hard to really truly accept what happened. I think I’m at that point now where I’m kind of dealing with it. I’m really finally allowing it to go through. 

Matt Liddle  1:55  

Before Owen passed I was actually living my dream job. I’ve had a pretty complicated childhood. And it’s because of things outside of my control and I have zero consistency in my life. So what better job to do than to find something to fix problems. You have a star consistency and training program. 

Matt Liddle  2:23  

So I started working in a pot room and a fragrance company is a very big company, but I just needed to get my foot in the door. I’m the kind of guy who thinks it’s not where you are in life, but it’s where you want to be. I just wanted to get my foot in and prove myself faster, multiple promotions, and I ended up working in the office as opposed to working in a union at the plant. I was figuring out ways to cut production time and at the same time saving the company money. So I felt great. 

Matt Liddle  3:01  

Yeah, so I was the first person in my family to graduate high school. So, me going anywhere for a job was huge. The main goal for my life was, oh, you’re going to be on welfare, just like your parents, and stuff like that. But I met Laurie Ann. She really changed my life. I felt like I could do anything and I wanted to give this girl what she deserves because I didn’t really feel like I deserved anything at all. 

Matt Liddle  3:36  

Push came to shove, I started doing very well and got a great job. I was actually in the middle of the interview when I found out that she wasn’t doing well. So I went home that night and her water broke. 

Matt Liddle  3:57  

We were actually sitting in the living room and do you ever see a look on the person you love’s face and you can just tell something’s completely wrong, but they’re kind of stuck in like shock? 

Lee  4:12  

Yeah.

Matt Liddle  4:12  

So I started trying to talk to her and she’s like, my water broke. At that point, we’re only 21 weeks. This is impossible, but for some reason my mind just went. I said go to the bathroom by yourself. In the meantime, I went and I packed the bag and I did all these things. Because we weren’t even to that point where you should have a bag and stuff. 

Lee  4:43  

Yeah. 

Matt Liddle  4:43  

So I kinda wasn’t thinking and the car ride down. I was just trying to make her feel better. I don’t know if it’s a man thing, or a husband thing you kind of just always want to make your wife feel better. Kind of put your emotions to the side. We finally got to the hospital. I felt like it took an eternity. But finally we saw a nurse. She did a swab and it came out the color blue. 

Matt Liddle  5:14  

I remember the color and everything she said,” I’m really sorry to tell you that your water broke.” The only thing I remember, which still haunts me, is just my wife’s face. She just put her hands on her head and said the F bomb. Like, that’s it. That’s all she could say. And she couldn’t move. At that point, I was in complete shock. I had no idea. What do you say? What do you do?  

Lee  5:43  

Yeah, there’s yeah.

Matt Liddle  5:46  

I mean, it was horrible. Then they told us that we actually had to wait until the next day to speak to a doctor. So we’re like–

Lee  5:56  

 Was this later at night? Where was it?

Matt Liddle  5:58  

Yes, it was later at night. It was I believe it was around one o’clock in the morning. Her gynecologist just wasn’t at the hospital. None of her team wasn’t at the hospital or anything. So that night, we’ll go back to talking about things that I don’t remember, because it was so stressful. I don’t remember what we did that night. I don’t know how it made it through that night.

Lee  6:24  

Were you at the hospital? Or did you have to go home?

Matt Liddle  6:26  

Yes. Okay. Yes, we were at the hospital at this point, because they said we want you to stay here until you could speak to your doctor and kind of come up with a plan. 

Matt Liddle  6:39  

So that night passed and the doctor came in and told us we had two choices, you have one you terminate right this second. Two, you go home and let your body naturally do what it does. So there’s no infection at the moment, and you’re not doing contractions, so you need to make a choice. 

Matt Liddle  7:09  

I mean, our world was upside down at that point, because we had done tons of fertility treatments. It took us our third try of IOI just to get pregnant. So we’re like, we’re not going to give up now we’re fighters. We’ve got to do this. Let’s find out the information on how it would go either which way. 

Matt Liddle  7:30  

So they said you can go home, let nature run its course, unfortunately, we couldn’t do anything for you here at the hospital, you’d have to go back home. We wouldn’t take you until 25 weeks. 24- 25 weeks, something like that. They couldn’t give us a real recommendation, because we were at that point where it’s possible that Owen will be okay. But it’s also possible that he won’t be whatsoever and he’s in a gray area at the age that he was in that they can’t say. 

Matt Liddle  8:11  

So it’s after talking that night, we decided there’s no way we fought too hard. We were going to fight for this. So we spoke to the doctors and then we decided to go home. The hospital doesn’t consider pregnancy viable until I believe 24 weeks. So we had to go home. 

Matt Liddle  8:38  

We live about an hour from the hospital and my in-laws live about 30 minutes. So we said we should probably stay at the in-laws, in case something happens. We want to get there as soon as possible. 

Matt Liddle  8:52  

Just to rewind a little bit, our main concern was that Owen wouldn’t be in any pain whatsoever. If we went forward with this, we do not want any pain. Clearly there is a chance he won’t be okay if he did survive. He wouldn’t be screwed completely. 

Matt Liddle  9:16  

So we went to the in-laws, we started staying there and trying to I mean, Lori Ann wasn’t possible at the time because she was to the point where she wouldn’t give you a hug because she feels like she would jinx it. For some reason. Her mom would say, oh, let me pet your belly, rub your belly and she’d say, No, I don’t want you to jinx me just like that. Like. So, clearly she was petrified. 

Lee  9:49  

Yeah.

Matt Liddle  9:49  

During all this I was working at my dream job. I started at the pot room and I worked my way up from an office worker to a trainer so it just kept going. At that point, I had to make a decision, be there for my wife, or work. Right? My wife, completely petrified. Neither of us had any idea what could happen if she went into labor at any moment or an infection. 

Matt Liddle  10:23  

So I decided, let me try to go the family leave route, spend as much time as possible with my wife. We actually ended up making it to the point of the baby being viable in the hospital’s eyes. So we ended up going back to the hospital. That was around. My wife’s gonna kill me if I say this wrong. So if I think we got back to the hospital at 23 weeks, they let us come back. Yes, twenty three weeks, and then we’re able to start the whole process of maybe saving Owen. We started antibiotics, so she wouldn’t get an infection and things like that. 

Matt Liddle  11:10  

At that point. My job was extremely busy, and they’re giving me ultimatums. Well, for myself, I had to be there. There was nothing, I don’t care if I lost everything outside those hospital walls. Nothing else mattered to me more in the world than my wife and my child.

Lee  11:32  

Yeah, yeah. 

Matt Liddle  11:33  

So, I ended up parting ways with my job. I wouldn’t take that back, I would have made that choice a million times. Because my wife’s my superhero. I don’t know how it is for you, but my wife is one of the strongest people I know. Anyone in fertility treatments, anyone who deals with this kind of stuff. They’re very strong people.

Matt Liddle  11:59  

I was literally watching her demolish into nothing. Because of the constant fear of being on bed rest, not being able to do anything. Like, I couldn’t do it. Like I had to be there. I had to sleep there. I wouldn’t even go home. I would sleep there. 

Matt Liddle  12:21  

The doctors would come in twice a day to do ultrasounds. It was the scariest point of my life. Anytime the ultrasound would happen, my heart would stop. He even thought my wife was completely fine, I was fine. No worries. But every single time my heart would just drop, like no feeling. I can’t even describe the feeling. I feel like the fear is worse than any fear in the entire world. It’s unbelievable. 

Matt Liddle  12:57  

So push came to shove after all this, I lost my job. I had nothing. I had nothing outside of work besides my wife and my child. We had to figure out a way to get through it. Everyday stuff.

Matt Liddle  13:16  

It was horrible because we were on bedrest for three weeks at the hospital before they were able to do anything at all or until Owen came. After this whole situation. I can’t get out of bed. Nevermind work or live daily. I don’t know if that answered that question fully.

Lee  13:46  

I just feel for you. That’s all I can say is I feel for you. 

Matt Liddle  13:51  

Yeah. 

Lee  13:53  

So you were able to make it to the hospital. After you were about 34 weeks. Did you say? 

Matt Liddle  14:01  

No. Only 24 weeks. 

Lee  14:03  

Oh, yeah. 24 sorry, 24 weeks.

Matt Liddle  14:10  

Then what happened was 24 weeks. 24 weeks was when we were allowed to go back to the hospital. That’s when they were able to put her on antibiotics and monitor her twice a day. 

Lee  14:25  

How long were you in the hospital with that?

Matt Liddle  14:27  

So we ended up going till she was 26 weeks pregnant. So we were there for four weeks. I slept on a cot next to the bed every day. I wouldn’t leave like I couldn’t leave–

Lee  14:47  

Yeah, your life is in that room.

Matt Liddle  14:53  

Exactly. Yeah, it actually got to the point where the nurses would leave and I literally taught myself how to read all of the equipment. I mean the heart rate. I knew where it should have been. I studied that thing. It was and it’s unbelievable how clueless you are, when you’re in these situations. I feel like it would help a lot. If you knew. I mean, you if you knew any of this stuff. If your baby’s heart rate is too high. If there’s an infection or, when you hear the nurses say these things, in medical terms, you can get confused. 

Matt Liddle  15:39  

They’re so quick in and out. You sit there clueless, and your mind just keeps going. So I had to learn how to read the computer. I just wait till they leave and read. That’s the only thing that maybe kind of helped me feel better. To see a normal heart rate.

Matt Liddle  15:59  

So I literally slept on a chair next to her for 26 weeks. 26 weeks came and she woke up in the morning, and she wasn’t feeling well whatsoever. I knew something was completely wrong. So we called the doctor in and within a half hour, they said that we’re going to have to go in for an emergency surgery. For a C section, the baby has to come out right now. 

Matt Liddle  16:34  

I was supposed to be in the room for the C section, but maybe an hour before they gave her medicine for blood clots in her legs. So she was going to bleed a lot. So they decided that, oh, let’s put her out. So they made me suit up. I’m sitting in the room waiting. Then the doctors come back out. They say I need you to come into the room where Lori Ann was ready, she had the gown on and the hat. She was already on the metal table. I spoke to her for two seconds. I said I love you and went into the hallway and waited for the C section. 

Matt Liddle  17:15  

When I was out there. I was just not a sensitive guy in the past. I’m not a very sociable person. But I just broke down in the middle of the hallway. Nurses came and hugged me and they’re asking me questions. I was just so scared because it’s still so early. 26 weeks is really, really early. It felt like an eternity. But I just sat in the hallway and I cried and I cried. 

Matt Liddle  17:53  

Then they came and got me. They said your son’s been born and he’s doing fine. He’s doing great. He wants to come back and see him. So I saw him. Going back to one of the first things I noticed about him was his eyes because he opened his eyes and he looked right at me. It was really nice. There’s about four or five NICU doctors there. There’s so much going on. The machines are going. Then you kind of step back and you’re kind of speechless.

Matt Liddle  18:28  

You still have no idea if your babies are okay. 

Lee  18:34  

Yeah. 

Matt Liddle  18:34  

We got the escort up the elevator and into the NICU. He seemed fine. Everything was looking good. So I decided it’s time to go downstairs and talk to my in-laws because I had called them to tell them to come. To tell them what was happening. I said everything seems to be fine, but I want to go see my wife. 

Matt Liddle  19:01  

Then the doctor comes downstairs and gets me and he says, “I need you to come upstairs to see Owen and I just need to talk to you about some things.” When I got up there, there was a heart doctor there and their stuff was all over him. His feet are everywhere. 

Matt Liddle  19:23  

I was so scared. This is one of the biggest things I regret. I was so scared because everything was going on. There’s so many machines and noises that I was just too afraid to touch him. I put my hand in there once and he grabbed my finger. But then after that, I was just terrified to touch him. That’s one of the main things where I feel so guilty because I could have spent more time with him than I did. Because I went to my in-laws and my wife.

Matt Liddle  20:02  

I was just too scared. The heart doctor was there and all these machines were going off. People don’t explain to you that stuff because they’re way too busy trying to save your child. What was happening was that his blood pressure kept dropping, and they couldn’t tell why. 

Matt Liddle  20:23  

So they told me that they were going to try some meds and I should go down and spend some time with my wife. If anything’s really bad, I’m going to have to come and get you in, we’re going to have to go talk to your wife and have your wife come up and see the baby. See, she had the C section. So we knew something was wrong, if they were gonna come and get her to look at the baby.

Matt Liddle  20:45  

About two hours go by, and we get a knock on the door. It was the doctor, and he pulled me outside and said I’d like to speak to you about what’s going on. He said, listen, the blood pressure medications not working. it’s really not looking good. You might want to think about getting your wife upstairs. 

Matt Liddle  21:07  

So we went back to the room together. And when my wife saw the doctor, he said “I really want you to come upstairs to see your child.” I’ll never forget that look on her face. She just looked terrified, like completely terrified. 

Matt Liddle  21:31  

We went upstairs. They told us that there was really nothing they could do for the baby. The baby’s heart was checked so the only thing we can do at this point is take them off the ventilator and hold them until he goes. So my wife grabbed him. I’ve really regretted not holding him more and stuff. But I was just so scared.

Lee  22:06  

You probably felt lost too, scared and lost. 

Matt Liddle  22:10  

Very lost. Yeah, it was. It’s an experience that you wouldn’t wish on your worst enemies. My wife and I have been through a lot together with a lot of things. She has always been my superhero. Just to see her so broken. On top of watching my child pass away. 

Matt Liddle  22:41  

I mean, I don’t know how people are always worried about the women, but I don’t know how the men survive it to see the person. I mean, at least in my relationship, the person that means more than anything to me just collapses. It was very hard to take that in.

Lee  23:04  

Yeah. 

Matt Liddle  23:04  

I mean, it was really bad. It’s like, I’m speechless about this whole situation. Like I just shut down. I really don’t know. Because it’s like one of the hardest things that anyone can go through in their entire life. 

Matt Liddle  23:21  

I know on the paper it says what’s your hobbies and stuff? I used to love going fishing, playing with my dogs. I used to love life and now my hobbies. I mean, my hobby is nothing. I mean, not doing anything whatsoever. 

Lee  23:44  

You lose yourself. 

Matt Liddle  23:45  

Exactly. Yeah, yeah. You really do. You really find it. There’s like no words. 

Lee  23:56  

Yeah.

Matt Liddle  23:57  

I’m really not now, did your wife have a C section?

Lee  24:02  

No, no she had a vaginal birth with our son, Brannan. He was ready to go. When he passed away he was– with our first daughter with our firstborn we had a C section. But with our son Branna, he was born vaginally.

Matt Liddle  24:21  

No doubt that as a husband part there. I don’t know. So for me, when she comes home, she can wash herself in the shower and stuff. I handled all of that. The lactation and stuff. I mean, that destroyed me watching her go through that.

Lee  24:45  

It is such a cruel– the body after it’s such a cruel trick that that the body plays on the woman because–

Matt Liddle  24:53  

–Horrible

Lee  24:54  

Yeah. It really was painful to watch my wife and I’m sure it was painful for you to watch your wife have to go through all that. And nobody tells you, nobody tells you about it. Nobody tells you that the body still thinks that there is a child, even though the brain knows that your son has passed away. 

Matt Liddle  25:16  

Yeah, it’s cruel. I can’t believe it. I’m helping her shower, and she’s lactating. Up to a week, two weeks later. I mean, it went like eight, nine weeks. It’s cruell. It is horrible. It’s just a reminder that your son’s not there. You’re alone. You went through all of this to be alone right now. 

Matt Liddle  25:44  

I mean, I know he’s there he’s in–. I’m not a very spiritual guy at all, but I’m trying to learn to say that he’s here with us, or he’s in the sky or in heaven. Just because it’s cruel. Like, it’s, I don’t know, how do you? How do you put that into words? Like, how do you watch your wife go through that alone? I mean, not alone, but how do you? We’re men. We hurt. It really hurt her. It affected us. 

Matt Liddle  26:20  

I mean, for me, at least it killed me. But I’m not the one to carry that baby. I’m not the one who had to deal with lactation. And all the complications that come from the C .

Lee  26:34  

Post recovery and post op recovery.

Matt Liddle  26:37  

It’s terrible. Like, did that kill you as well? was that like?

Lee  26:43  

Yeah, yeah, it really, it really was one of those. I felt absolutely helpless and worthless as a man, as a husband, and as a friend to my wife, because there was nothing. I can make her as comfortable as possible. I can bring her anything, but there was nothing that I could do to alleviate her pain. And her and yeah, it really was just, it shattered me as a man. It killed me. It killed me as a man.

Matt Liddle  27:19  

And do you ever feel like you’ll pull yourself back up from that if I don’t know if I do?

Lee  27:26  

No. It’s both a no and a yes answer. Am I able to recover? No. Am I able to learn and change? Yes. Because what happened after the birth of our son? What happened after the death of our son that destroyed everything up to that point. And after that point, I had to rebuild. And I lost my son. My family is different. My relationship with my wife is different from what it was. My relationship with friends is different than what it was, was I able to recover? No, was I able to build new? Yes, I didn’t want to be the same person I was before. 

Lee  28:21  

I wanted to be a different person. And I’m able to start laying the foundation for the type of person I want to be and the type of person I need to be for my family. And like you said, the most important thing was my wife, and my daughter. For you, it was your wife, your wife was the most important person for you. And I had to change for the future. I couldn’t just be the same person with a different experience. I had to be a whole different person. I had to change, I had to be destroyed, I had to hit bottom and then forget who I was before, and go forward as an end build new. 

Lee  29:11  

Was able to recover? Yes and no. And I hope you are able to find what helps you. Because you’re a different person now than you were a year ago. 

Matt Liddle  29:26  

Oh, yeah. For sure. 

Lee  29:28  

You can’t be the same guy you were ten years ago, five years ago, three years ago. 

Matt Liddle  29:36  

There’s one who asked me what’s wrong. And I say have you ever felt a pain that you can never imagine in your life that you would actually survive? No, not really. But then don’t ask me that question. Because you wouldn’t really understand my answer.

Lee  29:55  

Because I’m feeling it every single moment of my life. 

Matt Liddle  29:58  

Yeah.

Lee  29:59  

Like you are feeling that pain that you never could have imagined every single moment of your life.

Matt Liddle  30:08  

Now we’re starting fertility treatments again very soon. Because it took us a very long time to even get pregnant. We got Owen when we had two failed IUI’s, and the third one actually worked.

Matt Liddle  30:29  

So, now we’re starting this whole thing all over again. But it’s gonna be in vitro. It’s kinda like, for me and I’m sure it’s like this for a lot of people, you feel like you would never ever survive something like this again, right? 

Matt Liddle  30:49  

But there’s where I’m wrong,  because I don’t know if I’ll have to survive this again. I’m assuming that I am. Because it happened in the past. I can’t I can’t think like that whatsoever. But it’s very hard not to. Because of everything, and to be honest, the scariest time of my life. 

Lee  31:14  

Yeah. 

Matt Liddle  31:15  

I mean, I lost my brother, my father, and my son, all within a year span. A year well over two years span. I don’t think I know how to explain it. It’s just like, it’s just being there bringings back everything, really rehashing everything. Even if you had someone to talk to, you’re not really talking to somebody unless they’ve exactly lived through it because they truly don’t understand whatsoever.

Lee  31:59  

Even though our situations are similar. They are light years apart. I can never fully understand what you’ve gone through. Nobody can truly understand us. 

Matt Liddle  32:10  

No. 

Lee  32:10  

Nobody. 

Matt Liddle  32:11  

Unless I mean, unless you can understand them. Because you can understand that pain. You, yeah. 

Lee  32:20  

It’s one of the– there’s the word empathy and sympathy, and I’m not good with which one means which. One means I can imagine what you’re going through. And one means I know what you’ve gone through. And because I’ve gone through what I’ve gone through, I think I can better understand what you’re going through. It’s not that I’ve had this same situation as you. We’ve had similar situations. I cannot try to help you. And you because you’ve gone through your situation. You can understand my situation a little bit better. 

Matt Liddle  33:04  

Yeah.

Lee  33:05  

Is it a perfect understanding? No. But they’re a lot similar. 

Matt Liddle  33:12  

There’s respect there. 

Lee  33:13  

Yeah. Respect. Yeah. Respect would be a good way. But yeah, it 

Matt Liddle  33:20  

I’m not good at talking. 

Lee  33:25  

Yeah. And it’s such a loaded reminiscence. When you talk about your son Owen. When you talk about his situation like his life and his birth and his death. I’m sure you want to shy away from stuff I’m sure you want to not talk about because I’m in that same situation, especially a year out from the birth of my son, Brannan. And his death. I didn’t want to talk about it. I sort of had to force myself to, it’s no fun no matter what. 

Matt Liddle  34:01  

No, not at all. 

Lee  34:04  

Going back to when the doctor came and got you and your wife. And he said that. Owen– and it’s not looking good for Owen. And they took him off of life support. And you got to be with him. How long did he live after being taken off of life support?

Matt Liddle  34:25  

Actually I mean, he wasn’t breathing on his own whatsoever. So they gave him phenytoin. So basically, we wouldn’t see him struggling for breath and all that. But now this is hard for me to tell you i

Lee  34:45  

If you don’t want to talk about it, don’t. 

Matt Liddle  34:47  

No, no, no, no, no, I do. So, now again, everybody’s different. Now he’s not living anymore. And the woman and my wife are talking about, Well, why don’t you bathe him and change him. I remember at that moment, like, he’s gone. 

Lee  35:18  

Yeah.

Matt Liddle  35:21  

The worst part that kills me is I look at my wife, and she’s gonna be the most amazing mother in the world. She’s so caring and loving. I remember the first words, the moment she saw him, she looked at me and said, he is perfect. Yes, he was perfect. But she was able to hold him, change him, bathe him and do all these things. I’m looking at her like, wow, I would never, in my wildest dreams, be able to do that. 

Matt Liddle  36:11  

I’m just watching you do it. I mean, we don’t give women enough strength. I mean, and same thing with men, like, none of my friends really know how I feel. They don’t really care. They have their own problems, they may care, but they don’t really know how much it does affect you or your wife. 

Matt Liddle  36:41  

I’ve heard things where people said, well, other women? Well, I’ve had a C section, I’ll see what the big deal is. I don’t know why it’s so hard for them. Yeah, but you have a reason to make it through all of that you had your C section, you have your baby there. You’re not waiting for your breast to get rock hard. So your milk will go away, you have no one to give the milk to. It’s unbelievable.

Lee  37:12  

Yeah.

Matt Liddle  37:12  

If you’re not a part of this club, which I really don’t want anyone in this club ever, you would never truly understand the pain that people really endure and what people have to go through just to have a child. Then you see all these people pushing out all these kids and having all these kids and it’s just like, It’s unbelievable. How is that fair? That’s another big thing I always go back to. It’s not fair.

Lee  37:46  

Yeah, it’s not fair. It is, and people will always say, well, life isn’t fair. But it just seems like such an injustice to me. But yeah, and there’s nothing I can do to change that injustice. 

Matt Liddle  38:02  

No.

Lee  38:02  

 It is, it is what it is. But it just doesn’t. It doesn’t seem fair.

Matt Liddle  38:08  

One thing that I do really need help with is, how did you swallow your fear and everything and try again? Was your mind in a place where you weren’t scared at all that nothing would happen bad, or like I don’t? It’s hard to get going again. To try to have a kid.

Lee  38:35  

Yeah. Now, because we were about two years out before we started trying again. 

Matt Liddle  38:45  

Okay.

Lee  38:46  

I was scared. I was anxious. I was everything. I was apprehensive. I was scared. I was fearful. But we had a real, honest discussion, my wife and I, about what we want our family to be? Because we have an older daughter. We have our son Brannan. Are we okay, as a family like that? And yes, we were okay. As a family like that. 

Lee  39:24  

Then we discussed well, do we feel that we should? Because we are religious. Do we feel that we should add another member to our family? We’re not talking about whether we should add 15 more members to our family. But should we add one more? And there really was some serious internal dialogue. 

Lee  39:52  

There was serious communication between my wife and I. There were a lot of sleepless nights. Just pondering and praying and hoping that there some sort of enlightenment or some sort of prayer was answered. I felt that as a family we should have another. No, it wasn’t like, Oh, we should not have a child. I think we should try.

Lee  40:19  

We gave ourselves– because we had infertility issues as well. We said well let us try and we gave ourselves X amount of months, let’s try this amount of months.We were seeing as fertility specialists and so it was like if it doesn’t happen within this time, we’re okay. We’re okay if we don’t have a child. But if it happens, we’re okay if we do have a child, and there’s all sorts of fear. 

Lee  40:57  

You know Matt you’re going to feel it, you’re going to feel all sorts of fear and happiness, you’re going to feel hope. You’re going to fear you’re going to feel like I said, you’re going to feel everything. You’re going to feel good, you’re going to feel bad, you’re going to feel happy, you’re going to feel sad, joy and hate and rage and anger. But you’re going to also feel that good side as well. You’re going to see a child growing, you will feel everything good and bad.

Matt Liddle  41:33  

Now that old pregnancy where you completely freaked out, it was gonna happen again. Or was there ever a point where you kind of calmed down and were like okay, I think we’re okay. 

Lee  41:46  

Nope, I was a mess the whole pregnancy. So, yeah, it really was just a belief that my wife, my wife’s body can do what it needs to do. My wife tried her best to be healthy. We tried our best to eat healthy and exercise. We’re not Olympic athletes by any means. We’re not even amateur athletes by any means. 

Matt Liddle  42:17  

But you’re trying. 

Lee  42:19  

Yeah well. Sometimes some days, some days we’re trying. But we were like we will do the best we can to give my wife’s body the best nutrition. I made sure she went to bed. I made sure that she–

Lee  42:41  

You know what I have a problem with when she says it’s because of my body. This happened. I get angry. 

Lee  42:50  

Yeah. It’s nothing that can really be blamed. It’s not her fault. It’s not your fault. It’s not. It just happened. It sucks. It sucks. It’s unfair. It’s just the worst. But it’s hard to stop thinking like that. Because we naturally want to say we naturally want to have something that we can point to as being the problem. When there’s not a problem, it’s easy to internalize it and say it was my fault. 

Matt Liddle  43:28  

Yeah. 

Lee  43:29  

But in all reality, it was nobody’s fault. It just, it just happened. It just happened. And it sucks. It’s the worst thing to ever happen. But it just happens. That’s all we could really say it sucks. It’s just the worst.

Matt Liddle  43:51  

You kind of feel robbed he was in our arms, he was there.We were right there. 

Lee  44:00  

You were approaching the finish line.

Matt Liddle  44:04  

So, you don’t know what to be. Or you are all of the things your emotions are angry, sad, like, unreal. Yeah.

Lee  44:18  

I love how you put it. You don’t know what to be, but you feel all the emotions. Like you don’t know if you should be angry or mad or sad. I felt guilty for a long time laughing and enjoying myself. Because I shouldn’t feel that my child is dead. I shouldn’t be. I shouldn’t be laughing. I shouldn’t enjoy anything but you do feel all the emotions and there’s a time and place there’s a time to feel joy. There is a time to feel happiness. And there is a time also to feel anger and there’s a time to also feel sadness. So–

Matt Liddle  44:59  

–It’s kind of you’re a prisoner of your own mind. Because you can go out saying what, I’m gonna be a good, it’s gonna be a good day. But then you go down to the store and you walk past the baby section and you’re not having a good day anymore. 

Lee  45:15  

It turns it upside down. 

Matt Liddle  45:18  

Then there’s nothing you can do. I mean, you can’t avoid it. How do you deal with it? What is he dealing with? You can’t really deal with it. I don’t know. It’s just like, I feel like that will never go away. Never always feel like a prisoner of my own mind. Because I could be in the happiest mood. I could be thinking this, but if I see something, it’s over. 

Lee  45:46  

Yeah.

Matt Liddle  45:47  

It goes right to it. Are you able to, like get back and function to like your normal life duties right away?

Lee  45:55  

No, no, not not right away. It does take time. There’s that adage that time heals all wounds. But it leaves scars. Time does heal wounds, but they leave scars. 

Matt Liddle  46:08  

That’s very true. And they’ll always be there. 

Lee  46:10  

Yeah, like I’ve, I’ve broken many bones in my body. And I still have issues with those broken bones. Did they heal fully? Did they? No, some of them didn’t heal fully, but I’m functioning. Am I whole? No, I am not whole, I am not whole after this, this tragedy. But I am able to continue on. 

Lee  46:38  

It took a long time for me to be able to continue on. Because there were times that I just wanted to stay there and just stay in that pain and in that sadness, and in that grief. But there is just like a bone mending after being broken. After a time it will be able to support what you need to do with it. 

Lee  47:03  

So it was with me and my emotions and me with my ability to exist. I was able to finally say I can. I can exist. It takes time. That’s all I can say. And it hurts. It hurts. It’s lonesome–

Matt Liddle  47:25  

The man never gets the support. 

Lee  47:28  

No.

Matt Liddle  47:29  

Like a woman does.

Lee  47:30  

No. Yep. Yep. Everybody will ask you how it is? How’s your wife doing? Yeah. How’s Lori Ann? How’s Lori Ann doing? In all reality it’s how both of you are doing. When somebody asks how your wife’s doing, how is she holding up?

Matt Liddle  47:47  

No one, no one cares about the husband. The father.

Lee  47:51  

Yeah, society doesn’t realize that we lost as well. 

Matt Liddle  47:56  

That’s right. I lost my son. I lost my son, but it was completely different with our first miscarriage. I didn’t hear the heartbeat. My wife did. But I didn’t. You know that. And I don’t have any problems with that. But I had that boy in my arms. I’ve never had a father in my life. Bad, bad dude. 

Matt Liddle  48:24  

I was just so excited to just do everything I missed as a child. Getting older, I just want to be able to have a relationship with a child. I watched a movie the other night, and they’re talking about living and dying and faith. The man says, I only want to live at least another 30 years ago. ” The guy asked him, “What the heck are you going to do in those 30 years?” and he says, I just want to see my children grow up. That’s all I want in my entire life. I just want to see them grow up. 

Matt Liddle  49:09  

We’ll never get that chance. It’s really sad. I mean, I hope I do get the chance to have my own children. I’m very blessed that I have someone who’s extremely strong and brave, just even doing the show. 

Matt Liddle  49:28  

In a way. I don’t know if this is part of the advice, but I’ve been avoiding these feelings. I haven’t dealt with anything. I mean, I haven’t slept in four days because of this podcast. Because the reality of it is I’ve been pushing it all to the side. So I can help everybody else. But now when I get home, I’m writing 15 pages on what happened. It changes everything. Even having these pages, I couldn’t read them, right? And it’s unbelievable.

Lee  50:10  

I hope you were able to find something that can help you. I was in that situation, too, I did not want to address many things that were going on with me. Like you said, I push them, I push them back, I push them to the side. They kept piling up. When I was able to actually address them, everything just crashed down. Then I was able to work through them. I hope you were able to find something that you can do to help you. 

Matt Liddle  50:44  

It helps you remember a lot that you really don’t remember. You kind of feel when you’re in the hospital for a couple weeks. Thinking back at the situation, I felt really alone. But then kind of being forced into the situation to look back and think about everything. I realized that I really wasn’t alone. Your mind kind of plays tricks on you too, as well.

Lee  51:15  

It’s very selective. Your mind is very selective. Yeah.

Matt Liddle  51:19  

Exactly. I feel like my wife said, this podcast helps a lot and helps people and I’m like sitting here writing. How and possible, can this help somebody? I’m the kind of person that tells you your story. I’m gonna take that home tonight, like tonight, I’m gonna feel your story because I’m that type of person. 

Matt Liddle  51:46  

Besides your story, me carrying anything and everything out of my head kind of made me feel a little better. It made me feel like, okay, somebody is actually listening. That’s the same shoes as I am. They kind of understand my situation. There is a big difference between females and males, when it comes to situations like this, especially emotions. 

Matt Liddle  52:18  

You can’t really go to your best friend crying as a man, right? I mean.

Lee  52:23  

Yeah. 

Matt Liddle  52:24  

This is one of those situations where you can’t do it alone. But you can’t do that with your wife, at least in my situation, because my wife is so far more advanced than I am in here. She got mad at me one day, because her home screen is Owen. And I’m like, she wanted to show me pictures. I said, I can’t look at that right now. Like, I’m sorry. To her, it was like, You can’t look at your own child? What the heck is your problem?

Matt Liddle  52:54  

But it’s not that I can’t look at my own child, it’s just that I haven’t dealt with the whole situation in general. It’s like avoiding it. I can’t, because I’m too afraid to deal with it. Because I don’t want to feel that pain even more right now. It’s like, you just don’t want to feel pain whatsoever. 

Matt Liddle  53:18  

Then you do learn by talking and stuff like that. The only reason she’s doing better is because she is talking and she is remembering every day. But it’s hard to realize that. Even just to find someone to talk to. I’ve tried to find people to talk to, but everyone’s busy, everyone’s got their own stuff and COVID. 

Matt Liddle  53:43  

When we got discharged from the hospital, COVID the day we left, the hospital stopped taking visitors. So, we’re grieving our child, but then we came out and now we’re grieving our life. Because now we’re like, what happened in the last month, like, where are we? Everything changed. 

Matt Liddle  54:08  

Then we tried to start looking for support groups and they weren’t around because you can’t meet in person. Then time goes by and you don’t even want to do that anymore. I feel like this is where people make a lot of mistakes if they don’t swallow their pride, put everything to the side and really let it out. Talk let’s figure out how to feel better and how to remember your son but not feel so terrible.

Lee  54:47  

Making yourself vulnerable is such a hard thing to do. That’s what this is. What we are doing as when we are reflecting on our sons when we are reflecting upon the situation. We are completely vulnerable. Because we are on the cusp of breaking down we are on the cusp of crying, and just breaking down and becoming vulnerable to our friends to our family to, to random strangers is, it’s hard to do.

Lee  55:23  

It wasn’t until I started seeing a professional therapist, and I felt I could break down in front of them. They weren’t going to be there to judge me. They weren’t there either. Yeah, I was paying. I was paying the therapist to listen to me. But I honestly felt that, that my therapist, that she was there, and she genuinely felt concern for me. 

Matt Liddle  55:51  

Were you that kind of guy that would never do something like that before?

Lee  55:54  

Yeah, yeah, it took a long time for me to go actually, to a therapist. There’s, I don’t know, I’m sure New York has grief support. Like, in Utah, there are two grief support groups, shared by parents. Then like, Oh, I can’t remember exactly what their names are. But they’re now starting to meet online, because we still can’t meet in person. But they have just a monthly meeting where parents who have suffered loss can come together.

Lee  55:57  

Winter and I started going to that. There were a lot of mothers there. But there were a couple fathers there too. It was good to see. I’m a dad, he’s a dad, we’ve both lost. We don’t necessarily have to talk to each other. But it’s good to be in the same room. It’s good to be in the same video chat. Yeah, it’s hard. It’s hard because yeah, you do feel alone, you do feel abandoned. You do feel forgotten. Nobody does ask you. Nobody. Nobody does ask the Father. They always inquire about the mother. 

Matt Liddle  57:13  

Exactly. Right. 

Lee  57:14  

But what’s,–

Matt Liddle  57:16  

You’ll never get a random text message. Maybe we saw your own mom in general, your own mother. Oh, hey, how are you? Okay, today with Owen ? In the meantime, the wife’s got about 45 contacts that are like, Hey, are you okay? 

Lee  57:35  

Yeah. And it really is. My wife is part of a loss moms group that gets together once a month for dinner. Before COVID they were really religious about getting together for dinner. They would text each other. During COVID, all of a sudden, instead of texting each other three times a day, they’re texting each other 50 times a day. I haven’t received probably one more than 10 texts ever. Yeah, it’s hard for us because we’ve lost too. We’ve lost too.

Matt Liddle  58:16  

That is so true. When I met my wife, I was in a time where I felt so alone to begin with I had nothing and nobody. You meet this woman who literally just transforms your life and makes you see life in a completely different way. It’s absolutely amazing how one person can completely, completely change your life. One person, and I’m kind of hoping that this podcast is that one person. That helps me like, my ego stuff’s got to go away. I got to go and get help. I need to talk to somebody because it’s just, you can’t do it alone. 

Lee  59:13  

No, you can’t. 

Matt Liddle  59:14  

And you can talk to your wife. But

Lee  59:17  

But your wife, you’re together. 

Matt Liddle  59:20  

Yeah. 

Lee  59:22  

It’s sort of one of those you, you and your wife are one entity. So it’s not really you’re talking to other people you’re talking to–You’re talking to each other, 

Matt Liddle  59:34  

Yourself. 

Lee  59:35  

Yeah, basically yourself. 

Matt Liddle  59:36  

Yeah, definitely. 

Lee  59:40  

Of course, and I’m not trying to downplay the help your wife gives to you or the help my wife gives to me. But getting an outsider to help you is different too. So.

Matt Liddle  59:54  

Yeah, because even different grieving processes. She may be headed towards me and I say something else. It really bothered me, I’m not ready for it. And she’s like, what the heck, and then you kind of feel like shoot. She’s so ahead of me and I’m like, dang. It started to get you going so like, you’re you do need that outside person that isn’t dealing with the same exact situation with you, with your baby. And they’re further along with the grief and grieving process, because she may not.

Matt Liddle  1:00:34  

You may get into a fight, because she may not understand the way you’re feeling. She may say, You’re not crying right now, you don’t care. But no, that’s not right. It’s just you’re grieving, here me, I saw this. But now I’m thinking about the Dallas Cowboys. I’m thinking about my football game, because I’m too afraid to think about what you’re thinking about. It’s not that I don’t care, but we’re just two completely different stages. 

Matt Liddle  1:01:03  

I feel like it’s so important to talk with your partner to talk about different grieving stages, because I may be really pissed. I may be really angry when someone says something about Owen or something. And she may not be and she may not understand because I’m in a different grieving spot. Yeah. And if you have that outside person, they’re not grieving for you. So you’re gonna get what you need to hear. Then my wife has emotions, and she feels hurt when I say things because she thinks maybe I’ll think you don’t care about your child, because you’re not crying. Well, no, I care so much that I can’t even dream about thinking about it, because I’m going to cry.

Lee  1:01:54  

The grieving process and how different people grieve it’s so different. Going back to, right after the birth, and when we were discharged from the hospital, I was a man on a mission on how to, I had to find a burial plot. I was up in the morning, I was doing everything I could to plan the funeral. Once that funeral was done, I was lost again. Then it, yeah, there was no purpose. But when I have a purpose, I’m a man on a mission. My wife when she has a purpose, she’s and we’re just in two completely different spots, because she was able to do this. I was able to do this. And it really is like, people mourn differently. People mourn at different rates. People feel things differently. People process those feelings differently. It’s hard to say, well, I’m here, you should be here with me. Because we’re not the same. 

Matt Liddle  1:03:05  

No, no, and we could have been to the same thing at the same exact time. And we still can be in different places. Everybody’s body is different. I mean, my wife actually gets physically sick, physically, when she gets overwhelmed with stuff with Owen. I mean, everybody is so different. 

Matt Liddle  1:03:31  

I feel like that’s why it’s so hard to talk to people about this situation. Because everyone’s all over the place only like you, you can talk about these things, right? You’re on the podcast, you’re moving forward. Me? I’m starting to read a piece of paper and I like passed out. I gotta call the cops. Cause it’s like the fear stills you is unbelievable. I’ve seen a lot of bad things in my life. I’ve been in a lot of bad places growing up. I’ve had a lot of bad things happen. And nothing compares. 

Lee  1:04:16  

No.

Matt Liddle  1:04:17  

Nothing. Nothing. I had a gun shot at me and my friend at the same exact time we kind of did the same thing. I mean, it was a little different. Something like this was the pain that is so embedded in your heart. It’s like, I don’t know. The sad part is if you’re not a part about this club. You really have no idea about it. You don’t really know what these people go through. Yeah, they lost their son. 

Matt Liddle  1:04:50  

I had someone say9 to me, just recently it’s been a year since you lost your child and you’re going on this podcast Why? Are you ever going to start moving on? And I was taken back, like, moving on? What do you mean? When are you going to start preparing for your future? Well, listen, I’m trying to prepare for my future. This step is a step forward for me. 

Matt Liddle  1:05:23  

I’m sitting here with you right now talking to you about something that, honestly, I couldn’t say two sentences without breaking down. To me that’s positive. That’s gaining. I’m gaining. I’m getting better. Yeah and people somehow still want to judge you where you’re at. That has never been in the situation itself, and they can’t truly understand. It makes it even harder. 

Matt Liddle  1:05:51  

Because as a man, you feel even more alone. You’re like, wow, stop being a punk. It was a year ago. I understand that, but I can’t help it. I can’t help that I had the worst childhood of my life. I had a really bad childhood.All I’ve ever dreamed of was doing homework with my child throwing a ball with my child. So, when I found out I was having a boy, I was just like, Whoa! This is the best. I get to do everything that I missed out, like GI Joes. I didn’t do any of that stuff. The only time I’m gonna be a kid again. I’m all Yeah! There’s so many different emotions.

Lee  1:06:39  

Yeah. Losing a child is not like having a bike stolen. Yeah, you could easily get over a bike being stolen, you could easily get over having your car break down. You can move on from those things. Losing a child is losing dreams. It’s losing. Like you were saying that you thought of being able to play with your child to help your child. You’re losing all that you’re losing a future.

Matt Liddle  1:07:08  

That is right. Yeah, you plan for your future. That’s part of your plan. You’re gonna have a child. So you’re looking at your future like it’s ruined.

Lee  1:07:17  

Yeah, you’re not, you’re not losing your whole future. You’re not losing the future. You’re losing a future. 

Matt Liddle  1:07:25  

Yeah, it is. I wish more people would understand that we have feelings too. We’ve had people ask us like, Oh, I’m gonna put it in a– and it was on Owen’s birthday. We got a message. Oh, I’m gonna put a pregnancy announcement out. Is that okay? Why are you asking me? That’s your life’s dreams and your dreams. My dreams are completely different. 

Matt Liddle  1:08:01  

People treat you differently. They don’t know how to act around you. Even family get quieter. They don’t know what to say to you. Some people think they can relate to you by saying Oh, one of my friends just lost their child or all these things. Well to me what bothers me is why can’t we go back to the way things were before. 

Matt Liddle  1:08:32  

The thing will never go back to before, but with all input the relationships with I had my say. Let’s say my mother and father in law are some of my old best friends. It seems like it never went back to normal. They look at you like you’re a damaged goods and they kind of are afraid to talk to I guess, I don’t know.

Lee  1:08:56  

It really is one of those people don’t know how to react and interact with you. Not with you, you but with us, people who have lost. Because they don’t know, is this a topic we could talk about? Is it a topic that’s going to cause you stress? Like you said, sometimes you just want to have a normal conversation. But sometimes people don’t know how to do that. I often just say these friends were friends that I had good friendships with. Now that has changed. I have to realize I am a different person and they are a different person. It’s sometimes hard to see those things disappear. Those friendships disappear. 

Matt Liddle  1:09:47  

I’m sorry. Still the same person just a little damaged.

Lee  1:09:52  

I wouldn’t say damaged. You’re changing. Sure you are training, you’re not damaged.

Matt Liddle  1:09:59  

True.

Lee  1:10:00  

You have gone through something so traumatic, you have gone through something that has shaken you and destroyed you. You are trying to rebuild who you are, and understand who you are.

Matt Liddle  1:10:14  

But how can you do that when your whole past? Everyone around you doesn’t treat you like who you are? 

Lee  1:10:22  

Yeah, yeah. And sometimes you just have to just say, this is what I want to be. And this is how I need to be. And this is how I will be. Sometimes it’s hard to make your body do what your mind tells you to do. And sometimes it’s hard to tell your mind what your body needs you to do. So sort of one of those circular logics, we could talk for, who knows how many more hours? It’s probably getting late back on the east coast. I don’t want to hold you hostage for the rest of your life.

Matt Liddle  1:11:02  

No, I mean, I just want to appreciate you guys for being so strong and brave, because that’s another thing with my wife. That shows me each time she talks about Owen or anything that has to do with child loss and stuff. To me that is teaching me something. I’m looking at her and saying, Wow, she’s strong. She is so brave, but she’s got no clue that she’s strong and brave. You could tell her all the time. 

Matt Liddle  1:11:34  

I just want to thank you, because it takes a lot of courage, acceptance. It’s a lot. I don’t know how long exactly how you’ve been doing this before. But I’m sure it’s a lot coming on all the time and speaking about your story and talking about it. I commend you guys. And if it wasn’t for people, like you, people like me wouldn’t get any better. You’re setting the examples of where I can learn where I could be okay. I’m not alone. I just need to meet the right people and talk to the right people. Maybe I’m not this screwed up for the rest of my life. It gives me a kind of hope that I’ll be okay. So, thank you for real man. I mean it.

Lee  1:12:31  

Matt, this is the reason why we set this podcast up so that we can reach out and together talk about our children. And through that talking, we can heal a little bit, we will be able to help those around us who are also struggling. Right now, you might not feel that you can help anybody who has also suffered, but in the future, you will be able to. You will be able to say hey, this has happened to me. This is what I have done. I hope my experiences helped a little bit.

Matt Liddle  1:13:05  

Yeah, like I said, you guys are amazing.

Lee  1:13:11  

Well, Matt, thank you so much for talking with me. Thank you. 

Matt Liddle  1:13:16  

Thank you.

Transcribed by https://otter.ai

Filed Under: birth story, early neonatal infant death (<7 days), infant death, podcast episode Tagged With: infant loss

Owen David | A Mom’s Early Term Birth Story and Baby Death at 26 Weeks

February 7, 2022 by Winter

Lori Ann tells of her journey through infertility, miscarriage, and complications with her next pregnancy, which included putting in a cerclage due to an incompetent cervix and later her water breaking at 21 weeks. Instead of terminating the pregnancy, Lori Ann and her husband Matt decided to wait to see what would happen, monitoring her temperature to make sure she didn’t develop an infection. At 24 weeks, she was admitted until Owen was born at 26 weeks via emergency C-section. Owen was 2 lb and they were able to see Owen open his eyes, but he was struggling to breath on his own. They decided to remove the breathing tube, and she was able to hold him till he passed away.

Watch here (YouTube):

Listen here (podcast):

Time Stamps:

00:00 Baby’s name
01:47 Who the parents are
06:45 First Loss
12:29 Owen’s Pregnancy
34:14 Gender
42:54 Short Cervix
48:02 Water Breaking
1:08:47 Final Hospital Stay
1:14:53 C- Section
1:21:12 Meeting Owen
1:38:58 Time to go
1:42:20 Cremated

You might appreciate these other episodes:

  • Watch/listen Matt’s (Lori Ann’s husband) birth episode of son Owen: Click here
  • Watch/listen to Bianca’s and Michael’s advice episode after Jalen’s death: Click here

Wanna help?

  • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Click here for more information.
  • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts (Apple Podcasts, Google Podcasts).
  • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.
Lori Ann with Owen

Full Transcription:


Lori Ann 0:00
Owen David.

Lori Ann 0:08
When I first saw him, the first thing I noticed was his cute little nose. And I was actually kind of shocked with how much hair he had. And just his tiny little fingers. You know, every little feature when a baby’s that small, like two pounds, it’s just amazing how they are just a little human. They’re just so tiny, but I can just remember all of his features on his face, his lips, nose and eyes. They were just perfect.

Winter 0:47
Welcome to Still A Part of Us a place where moms and dads share the story of their child who was stillborn or who died in infancy.

Winter 0:53
I’m winter.

Lee 0:54
And I’m Lee, we are grateful you joined us today. Please know that this is a story of loss and has triggers.

Winter 1:00
Thanks to our lost parents who are willing to be vulnerable and share their children with us.

Lee 1:04
If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

Winter 1:11
Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they’re still a part of us.

Winter 1:26
Lori Ann, thank you so much for coming on to the podcast today. I am just so glad that you reached out and are willing to come in and tell your story today. So welcome to the podcast. Yes, thank you. Can you tell us a little bit about who you are and what you do on a daily basis? Who’s in your family right now?

Lori Ann 1:47
Um, okay. So my husband and I met online actually on a dating website. Things progressed pretty quickly, which we were a little nervous at first, but you know, it ended up working out. After a couple of months, we moved in together, and we’ve been together ever since. That’s been eight years now.

Lori Ann 2:15
It’s just my husband. We have two dogs, which are pretty much basically our kids. They’re our lives. I don’t know what I would do without them actually, like they keep us going really. We live in the country kind of so it’s very secluded. We definitely really like that lifestyle, we enjoy being outdoors, hiking and doing all those fun things. For work, I am an ABA therapist. So I work with kids between the ages of two and five. We work on preparing them to go to school, and the kids have autism. So it’s a very challenging, but fun and rewarding job.

Winter 3:15
Oh, I’m sure it is.

Lori Ann 3:17
Yeah.

Winter 3:17
That’s awesome. Of course, you’re doing a lot of this right online at this current time or are you meeting people in person?

Lori Ann 3:26
We are actually. I go to an in center, some ABA therapists go in home. When COVID first happened. Well, Owen was actually born on March 10, of 2020. And two days after he was born was when they shut down.

Winter 3:50
Everything.

Lori Ann 3:50
Pretty much like the world.

Winter 3:52
Yeah.

Lori Ann 3:53
So my job had shut down for a couple of months, but I was on maternity leave, like already at that point. So I wasn’t really affected by that because I was already out. But then my job is considered medically necessary because Autism is a medical diagnosis. So they went back to work pretty quickly. I mean, I didn’t go back to work pretty quickly.

Winter 4:34
We’ll get into that a little bit more. So-

Lori Ann 4:36
-Yeah, we can get but um, we are in person and I work in a center. There’s just the three of us. So like three adults and three kids and then our boss.

Winter 4:49
Yeah.

Lori Ann 4:50
So yeah, we are in person. And yeah, I mean, I could go home, but I definitely prefer the center.

Winter 5:02
Okay. Okay, that’s good to know. What part of the country are you located? You can just give me generalities.

Lori Ann 5:09
Yeah we’re in New Jersey.

Winter 5:12
Okay. So back east there. Sounds like you and your husband like to do outdoor things, you have dogs and everything, any other hobbies that you guys like to do by yourself? Or together?

Lori Ann 5:26
We love watching different movies. It used to be Netflix a lot but Netflix, I don’t know, they’re kind of being a little weird. You know, wherever we can get some good movies.

Winter 5:43
Yeah.

Lori Ann 5:43
Definitely hiking with the dogs. Family means a lot to me. So we actually spend a lot of time with our families.

Winter 5:57
Are both sides of the family nearby?

Lori Ann 6:01
Matt’s mom is about a half hour away from us. Then my parents are an hour away from us.

Winter 6:08
Okay.

Lori Ann 6:09
But I mean I drive an hour to work every day.

Winter 6:12
I was like, that’s probably nothing for you.

Lori Ann 6:14
Yeah, that’s normal.

Winter 6:16
Yeah. Well, great. You did mention that Owen was born in March of 2020. So it’s at the time of this recording. It’s been about a year since he was born. Tell me, were you guys planning on getting pregnant? How did the birth? How did the pregnancy go? Was that something that you guys were hoping to have happen?

Lori Ann 6:45
Yes, I’m in 2015. We actually got pregnant on our own, and we were never not not trying. So we found out we were pregnant. Our wedding was actually in nine months. So our baby would have been due almost a couple of days before our wedding day.

Winter 7:14
Really?

Lori Ann 7:15
Yes. So that was a little bit of a shock. We moved things around and we moved the wedding up, and we did all these things, but then we ended up miscarrying at eight weeks.

Winter 7:32
Oh, I’m sorry to hear that.

Lori Ann 7:34
I mean, we never found out why, or what happened or anything like that. I really feel like at that stage of our life, I had no idea. Anything about pregnancy. Like how difficult it would be to get pregnant. Or, honestly, how being able to get pregnant and carry a child is a miracle to me really. I know it happens all the time. I don’t know, it’s just not as easy as I feel like some people make it seem, at least for us.

Winter 8:23
Yeah, I completely agree with you on that. It is a miracle when babies get here safely.

Lori Ann 8:28
Yeah, it really is. I feel like when we had our loss, that was very hard for us. We kept our wedding moved up, because we needed something positive. So we decided instead of doing the April wedding, like we moved our wedding to November, and we kept it there. I’m glad we did because, you know, we just got married faster. Then it was fun. We saw all our family and everything like that. So that happened.

Winter 9:10
Actually, Lori Ann, I can ask you a question?

Lori Ann 9:12
Yeah.

Winter 9:12
Did people know that you guys were pregnant? Or did you kind of hold on to that for just a little bit and just started rearranging your wedding date?

Lori Ann 9:20
Because of the timing that had happened? I found out pretty early. When I went to my OB I was four weeks when I found out I was pregnant the first time. That’s when I was like, oh my gosh, like we’re gonna have to tell people because we’re gonna have to move the wedding like we can’t-

Winter 9:45
Yeah.

Lori Ann 9:46
We already booked the place and had our date and everything. So it never really crossed my mind that something would go wrong. Again, where that’s where I feel like we just really had no idea.

Winter 10:05
Yeah.

Lori Ann 10:06
You think you get pregnant and it’s like, oh, we’re gonna have a baby-

Winter 10:11
-everything’s gonna be fine.

Lori Ann 10:12
Yeah. So we did tell our family because we had to move our wedding up. So everybody already knew why we had to move the date.

Winter 10:26
Okay.

Lori Ann 10:26
So yes, everybody knew. Then everybody knew obviously that we had lost the baby. So, yeah, everybody. I mean, I’m pretty open with my family. So they pretty much know everything.

Winter 10:45
Did you feel like they were supportive? At that time when you guys had your first loss?

Lori Ann 10:50
Well, it’s kind of funny when we were on vacation with my family when we told them, and I can remember my dad kind of got a little mad. I don’t think that he was mad, but I think he was like, Why couldn’t you guys just wait till you’re married type of thing. He got over that within 20 minutes. Then he was like, I’m gonna be a grandpa. Then he was happy.

Winter 11:21
Yeah.

Lori Ann 11:21
My mom was ecstatic. My brother and my sister were ecstatic. Everybody was very happy for us. I feel like that loss I heard a lot. Oh, it happens to a lot of women, or it happens in the early stages. Things that people normally say that think that they’re trying to help.

Winter 11:53
Yeah,

Lori Ann 11:55
I mean, everybody was very supportive and understanding. My mom actually bought us little angel wings on our wedding day. I had my angel wings tucked in my wedding dress. Then Matt had his angel wings tucked in his suit pocket.

Winter 12:21
Nice.

Lori Ann 12:21
So, you know, that was like, our little remembrance for our baby that we lost.

Winter 12:27
Yeah.

Lori Ann 12:29
After that, though we were like, let’s just try again.

Winter 12:35
Okay, so you guys were just like, let’s do it. Let’s-

Lori Ann 12:37
-Yeah, we’re like, we know we want to have a kid, let’s try again. We tried for a year, but nothing happened. I always had issues and it just wasn’t happening. After a year or two, we were like, okay, maybe we should, you know, talk to the doctor and see if something’s wrong. I don’t think it should take two years for us to get pregnant again.

Winter 13:13
Yeah.

Lori Ann 13:15
So, I went to my OB and then we ran the regular tests and everything. Then Matt had to have a test and we found out that we both have issues. So with both the issues that we had, we were batting like 1% chance of us getting pregnant on our own.

Winter 13:39
Okay.

Lori Ann 13:41
They said that it was shocking that we did get pregnant on our own the first time.

Winter 13:47
Oh, okay.

Lori Ann 13:48
Yeah. So we were then referred to a fertility doctor. So we started seeing a fertility doctor. They decided, well, no, my insurance decided. Because you know how that goes?

Winter 14:07
Yeah.

Lori Ann 14:08
Insurance decided that we would have to do like three rounds of insemination. Then if that didn’t work, then we could go to IVF.

Winter 14:18
Okay.

Lori Ann 14:19
My doctors were thinking that IVF was going to be our best shot, and that insemination wouldn’t be your best shot. But we had to do the three rounds before insurance would cover the IVF

Winter 14:36
I see.

Lori Ann 14:39
I have always been very open about our journey starting at that point. By then we’d been married for a couple years. People are always like, “Where’s the baby?” Like, “When are you gonna have a baby?” Like, “What are you waiting for?” Then I would get so angry, almost like, I wouldn’t know what to say sometimes I would just be like it’s not always easy. Like, we’re struggling, okay. Like, it’s not like we’re trying.

Winter 15:16
Yeah. Yeah. Yes, it is, oh, you always feel a little like, gosh, you are probing into our very into our reproductive life really a lot by asking that question.

Lori Ann 15:29
Yeah. It’s not even that it’s just, I don’t know, again, I feel like I’ve learned going through this journey that it’s not necessarily the best question to ask couples sometimes.

Winter 15:44
Yes.

Lori Ann 15:45
Especially to just blurt out, like, “What are you doing? Like, “Why aren’t you having kids?” I get it, people want to know when it’s fine. But I was like, I’m done. I’m not gonna pretend like everything’s okay. I don’t want to have to be ashamed of myself because of not being able to be pregnant yet. I want people to understand that it’s not always going to be, let’s do it. Then we’re gonna get pregnant.

Lori Ann 16:24
So that’s when I started to be pretty open on social media, about our journey. I started sharing our journey with all of our friends and family online. I pretty much shared every step of the way with each insemination that we went through.

Lori Ann 16:48
The first one, it didn’t work. Then we just went right into our second one. That one didn’t work. The doctors were not optimistic about the third one working. So when we did our third one, I was like, okay, then after this, we can move to IVF. I was like, so let’s get started now. So then, because you always have that two week wait. You have the insemination. Then you have to wait two weeks to find out if it’s negative or positive.

Winter 17:29
Then you can start all the medications and everything.

Lori Ann 17:33
Yeah, but I wanted to be prepared right after that. That whole two week time I was sad to say I wasn’t really optimistic about it. I was more focused on IVF. They gave us all the paperwork, I had already picked up some of the meds. I had my schedule with the doctors.

Lori Ann 18:04
Then I can remember three days before or something like that. Before I had my beta day where they check your hormone levels. I didn’t feel right. I kept having this weird twinge in my stomach. I don’t know, signs that could be your period, or it could be you’re pregnant because they’re all the same sign.

Lori Ann 18:33
Right?

Lori Ann 18:36
Then I did, I ended up taking a test and it had two lines. And I was like, this can’t be real. Like, wait a second. I went up to Matt and I smacked him. I was like, Do you see this? It has two lines! Then he’s like, okay, so this is good? I’m like do you see this? It was a complete shock moment.

Winter 19:11
Right?

Lori Ann 19:13
It’s faulty. Give me another one. I literally took like, three.

Winter 19:22
Like I gotta make sure.

Lori Ann 19:26
Exactly. So I actually called the doctor. I’m like, I know you tell us not to take it early, but I took the test. She’s like, “Okay, well, let’s just wait two days. You have your blood work tests.” So, two days. Alright, so I took like, you know, 20 more pregnancy tests in between. How do you not?

Winter 19:55
Yeah, exactly.

Lori Ann 20:00
The line did get darker every day after that. So we did go in for my blood work. Then when you have your bloodwork done, the fertility clinic has until 7pm to call you back, right? You get your blood work drawn at 6am. And they literally have up to 7pm to call you back with the result. So we’re sitting at home. It’s like, one o’clock comes, three o’clock comes. Like, don’t you think this is something that they would want to call us and tell us now? Why are they-

Winter 20:45
Making us wait?

Lori Ann 20:46
Yeah, so finally we got the call. The nurse that we spoke to is like, congratulations, you’re pregnant. I was like, What? And she’s like, you’re pregnant. And I was like-

Winter 21:03
You’re still in shock about it?

Lori Ann 21:05
Yeah. I was like, Okay, thanks. She’s like, Well, congratulations. And I’m like, Okay, thanks. Then we hung up and Matt of course, standing there, looked at me. I can just remember, like, I was frozen. I was like, we’re pregnant. He’s like, well, why do you look like that? I’m like, I mean, this is what we’ve wanted all along. Now what do we do? Like, you know, it had taken so long to get that. That pregnant positive, and I was like, I didn’t prepare for when it actually did happen.

Winter 21:51
Isn’t that funny?

Lori Ann 21:57
So now what? It did take me a few minutes to soak it in.

Winter 22:04
Yeah.

Lori Ann 22:05
Then like, he’s like, Okay, well, are you gonna call your mom and dad? And I was like, yeah. So i called my mom and dad and they were waiting for me to call them. They knew we are getting the results.

Winter 22:19
Okay.

Lori Ann 22:20
So when my mom picked up, I actually started crying. To the point where I couldn’t talk crying. Later, my mom told me, she’s like, I literally was thinking in my head, like, how am I going to comfort her? She thought I was crying because I had bad news.

Winter 22:46
Oh, yeah.

Lori Ann 22:48
So I was like, we’re pregnant. She’s like, oh, my God and my dad’s in the background, like, yay! They were screaming they were so excited. Both of my parents are so amazing. They’re going to be the best grandparents in the entire world. They are just so excited to be grandparents.

Winter 23:18
Yeah.

Lori Ann 23:21
I was super excited. Then I was like, okay, chill out, everybody. It’s early. Because then I have in my head we had an early miscarriage the last time.

Winter 23:36
Right.

Lori Ann 23:37
So of course, that fear took over. But obviously, we are excited at the same time. Like, this is what we’ve been waiting for. Doesn’t matter that we have IVF meds in the fridge that we spent money on. Yes, we were going to need it, but now we don’t. But that’s okay, because we’re pregnant.

Lori Ann 24:02
When you see a fertility doctor, they see you until like, eight or nine weeks. They see you very regularly. So when you first find out that you’re pregnant, it’s like super early. They make you wait like a week or two I forget before your first ultrasound. Then that first ultrasound is really they just want to start to see like the sack growing

Winter 24:35
Right.

Lori Ann 24:36
Then the next one after that would be the heartbeat. The one after that it’s like you graduate. The first time we went, my doctor wasn’t too pleased. She said that they should be able to see the fetal pole or whatever starting to grow. She wasn’t sure if it was going to make it. That was very, very hard to like, hear. It’s just, you know, you think the two week wait is hard. But I felt like it was even harder to wait for a time like that when you’d like to hear the heartbeat for the first time.

Winter 25:29
Right.

Lori Ann 25:30
Sometimes I think it’s like, they check you too often with fertility doctors, because a normal person wouldn’t really go see the OB until, I don’t even know, like eight, nine week.

Winter 25:46
Yeah, it’s a bit later.

Lori Ann 25:48
Yeah. Don’t they tell you to like, wait a little bit?

Winter 25:52
Yeah. They do.

Lori Ann 25:48
So I can remember, we did finally get to hear the heartbeat. We both cried during that ultrasound, including Matt. That was a good positive step. Then I can remember the day we were supposed to go to graduate. Like graduating to go to your OB. I had woken up and I had some bleeding. It was at eight weeks. I woke up and was supposed to be going to the fertility doctor to graduate. I woke up and that was happening. I literally was just like it’s done. It’s over. That our drive to that fertility doctor, I just bawled my eyes out, like, so scared.

Lori Ann 26:10
So was it quite a bit of bleeding? Or was it spotting?

Lori Ann 27:03
No, it was a decent amount and that’s why I was like, this is it. You know what I mean? That was just like my first thought, like, eight weeks. This is when we lost our first baby. This is just like how it is. I can remember going to the fertility clinic. The vibe is very somber, and very heavy. When you go to a place like that. I was just sitting in the waiting room crying, there was no holding it back anymore. It was very hard to wait the 20 minutes or whatever they made me wait before I could go in to see the doctor.

Lori Ann 27:55
But we got in there. The doctor asked me what’s going on? I told her and through tears by the way, I’m still crying. So they’re like, all right, like, let’s take a look and see what’s going on. So they do the ultrasound, and then all of the sudden I can just remember the first thing they do is check for the heartbeat. She turned it up really loud. He had a strong heartbeat like it was just beautiful. To be able to finally be like he’s still there. We didn’t know what it was here. But I was like, the baby is still there. They’re so tiny at that stage that I think even in one of the pictures they look like little gummy bears kind of like getting that to the stage.

Winter 29:04
Yeah.

Winter 29:04
That’s one of my favorite pictures, like ultrasound pictures. Because he literally looks like a gummy bear. Even at that little stage he was wiggling around and it was just so special. I was so glad that I had that. Like got to see. Especially so early on and I’m like, Is that that is the baby moving? She’s like, yeah, like he’s like dancing around right now. Like, so awesome. I’m like that’s inside me. She’s like, yeah. How is that possible? I guess I had like, I don’t know what it’s called. I got like a clot or-

Winter 30:09
Hemorrhage or something? Okay.

Lori Ann 30:11
Yeah and they saw it in the ultrasound.

Winter 30:15
Okay.

Lori Ann 30:16
They said it was small and that it should resolve on its own.

Winter 30:21
Okay.

Lori Ann 30:23
Which it did. I only like bled for another day. Then I was okay after that I didn’t bleed anymore. So I felt much better.

Winter 30:33
Yeah. Was Matt at that appointment with you?

Lori Ann 30:38
Yes.

Winter 30:39
Okay.

Lori Ann 30:39
He was.

Winter 30:41
I’m sure he was relieved too.

Lori Ann 30:44
Yes, he was crying.

Winter 30:46
Okay.

Lori Ann 30:48
Um, I feel like Matt has, every ultrasound has been very hard. Because when we found out that we had the miscarriage, we went to the hospital to get bloodwork or the ultrasound done. And the techs can’t tell you anything, right?

Winter 31:08
Yep, they’re not supposed to

Lori Ann 31:10
No they’re not supposed to. So this tech turned with, like, we had the screen facing us. I had heard the heartbeat the week before, but Matt didn’t. This is for the first baby. All of a sudden, the tech kind of turned the screen, right. We can’t really see anything anymore now on the screen. Matt just remembers her writing, like NFR. He googled it and it’s no fetal, or whatever this thing was. It’s no fetal heart rate, or whatever the term was. He saw her type that in, but she didn’t, she couldn’t tell us that.-

Winter 32:02
Yeah.

Lori Ann 32:02
That happened. So ultrasounds now just petrify him. Because that’s what he remembers. So he, every ultrasound, he literally would hold his breath. Then every time as soon as we could hear the sound, he’d be like, visibly and very loudly let out-

Winter 32:32
A huge sigh of relief, right?

Lori Ann 32:34
Yes. So, yeah, so we graduated that day, they let us go to our obgyn. So then our 12 week appointment, everything was fine. They were telling us we had to wait until 20 weeks to find out the gender. I, of course, was too impatient to do that. So I did like a private scan or whatever for the gender reveal. That was really special because you know you’re with them for like an hour. They do like 3-D photos. They have just all the video I mean, we even got his heartbeat but- I am obsessed with turtles and we got his heartbeat put into a stuffed animal turtle. It was amazing. Because again you see this little body moving around and I couldn’t really feel him yet at that point. But that is when we found out that he was a boy. And-

Winter 33:59
How early was that?

Lori Ann 34:01
16 weeks.

Winter 34:02
16 Okay.

Lori Ann 34:03
Yeah, cause they won’t. At least this place wouldn’t see us until we were 16 weeks to do the gender reveal part of it.

Winter 34:13
Yeah.

Lori Ann 34:14
Um, so we found out the gen- like my husband and I found out he was a boy. Then I was like, Alright, we have to surprise my parents. So I didn’t tell my parents when we were going to find out the gender. My brother’s girlfriend at the time I told her and she got the pinata and filled it all with blue stuff and confetti and everything.

Lori Ann 34:51
Then it was actually on New Year’s Eve that we got to like, we’ve had My parents hit the pinata. My brother and my sister were there to find out the gender. My dad broke it. And all the blue fell out. He just was like, oh boy, I’m gonna have a grandson. So my dad was so thrilled, and so is my mom.

Lori Ann 35:38
For the rest of the night, I’m not even kidding you. Like, all I heard all night. My dad just kept rewatching the video. It was so sweet though. I’m like, really dad, again. He’s like, this is my grandson. This is my grandson. Don’t you touch that food or don’t you eat!

Winter 36:03
That is so sweet.

Lori Ann 36:05
Yeah, he was super excited. I had always known if I had a boy, I just always knew Owen was going to be his name. Matt didn’t really have a choice. In that sense.

Winter 36:24
Sorry, Matt.

Lori Ann 36:25
Yeah, sorry. But Owen has just- I don’t know why I just always loved that name. Obviously, his name is gonna be Owen. Matt and I had talked before that, that we were going to ask my dad if it would be okay, if we used his name as his middle name. I asked him and his eyes filled with tears because he was so honored that we would want our son’s middle name to be David. He just kept saying “Are you sure?” Like, yeah. Why? We wouldn’t be asking you if we weren’t sure.

Winter 37:28
Oh, that’s so sweet.

Lori Ann 37:29
Oh, of course he was beyond thrilled about that. I really had it. I don’t think I really had a difficult pregnancy. I mean, I was sick for maybe about a week. But that was pretty much it. I feel like I had the weirdest craving for ice water. Oh, yeah, it just sounded good. It just had to be extremely cold ice water. I’ve never heard that one before, honestly. I kept making a big deal about it. I bought all these ice cube trays. Matt became a pro at filling these ice cube trays and having them all set and ready because I would drink so much of it. He figured out a system to always make sure I had enough ice in the freezer, so I would never run out.

Winter 38:43
That’s a good husband right there.

Lori Ann 38:44
Oh, yes, he definitely was.

Lori Ann 38:48
But because I said to my husband, I’m not craving food. I don’t have a food craving. He goes “You’re craving ice water. You don’t know how many times a day you ask for ice water. That seems to be your craving.”

Winter 39:09
Oh, that’s funny. You didn’t even notice it?

Lori Ann 39:11
I did. Well, because I thought it would be food.

Winter 39:15
Yeah, exactly.

Lori Ann 39:23
I started to feel some movement around 17-18 weeks. It’s so little at that point. I never made it that far in a pregnancy.

Winter 39:38
Yeah, so you’re unsure what it’s supposed to be like?

Lori Ann 39:41
Yeah. Like is that gas or is that I don’t know. Maybe? I’m just gonna go with yeah, it was him.

Winter 39:52
Yeah, exactly.

Lori Ann 39:54
Then we had our anatomy scan which was at 20 weeks, and we have the same tech as we had for our 12 week scan. She was great because she walked us through everything as she was doing it. I liked that.

Winter 40:19
Yeah, I love that too.

Lori Ann 40:20
Yeah. Everything was perfect. He was measuring perfect. We got pictures of his little feet. His hand, at one point, looked like he was, kind of waving. He always did this thing where he had his hand over his head. Because she’d be like, well, I can’t get a profile picture right now. Because again, he’s got his hand over his head.

Winter 40:56
He’s thinking about stuff.

Lori Ann 40:57
Yeah. But that was cool to see 3D photos then, because we had seen 3D photos at the 16 weeks, and now it was 20 weeks. It’s amazing how quick they grow. I think he weighed about a pound or so at my 20 week. Gee, you know, they check the heart. They like everything. It was just so fascinating. To watch all of it. I was definitely feeling him a lot more at that time. So that was fun too. He would kick the wand thing or whatever.

Winter 41:53
Yeah.

Lori Ann 41:55
But when they check your cervix at that point. So she said she was having trouble seeing my cervix or something. So she said I’m just gonna go get the doctor. As soon as she walked out of the room I looked at Matt and I was like something’s wrong. I was like they’ve never gotten the doctor before. You know what I mean?

Winter 42:31
Yeah, they usually just go sign off the scans or whatever, right?

Lori Ann 42:35
Yeah. So I’m already crying at that point, of course, and the doctor came in, and they had to do another scan. Then they had to do an internal scan. This doctor was pushing on my stomach, so hard it was so painful. To try and get a better view of my cervix. He wasn’t answering any questions, he just kept telling us I’ll answer your questions. We know something’s wrong at this point.

Winter 42:35
Yeah.

Lori Ann 42:54
We get through that. Then he brings up the pictures, because yeah, it’s usually the screen was in front of us, for us to see. He’s well, this is your cervix and it’s measuring short. Then he’s like, “Can you see this line? It should be completely closed, but you have just slightly opening.” I literally at that point was just “Well, what does that mean?” What has happened? What’s happening?

Lori Ann 44:03
He said, “Well get dressed, we’re gonna go into our office.” So, of course I’m bawling my eyes out at that point, petrified of what he was going to say. When we spoke with him, he said that it can happen to women where their cervix might start opening too soon.

Lori Ann 44:34
There’s studies that progesterone could help it. So he said that he would want me to start taking the progesterone. He said that he has seen people have this then they go full term and they’re completely fine. Then there’s the people who they might have to put a stitch in to keep your cervix shut. All these scary other options that he shared, and he’s just do the progesterone for a week and then come back.

Lori Ann 45:15
That’s what we did, I did the progesterone for a week. Then when I went back after that my cervix had started to open more. So, at this point, they again said, you don’t have to do anything, you could just see how it goes. But it’s not good that it had started to open more in just a week, even, with the progesterone to try and help it. Or they could put a stitch in, it’s called a cerclage where they can sew it shut.

Lori Ann 46:00
They said that 80% of women or whatever the percentage was, get the stitch, and then they make it full term, and everything is fine. So I said let’s just do it. I didn’t want to take the chance that you know, something could go wrong, and my water could break, or he could come too soon, and whatnot.

Lori Ann 46:34
So I did that at 21 weeks. I was going out of work because my job is very physical. So my doctors wanted me not on bed rest, but I couldn’t be bending down and picking up kids. That kind of stuff. So they told me they wanted me to be out of work until I turned 28 weeks or something like that. As long as everything looked okay, I could return back to work. So that’s what I did right after the stitch was put in. It was literally February 1 when I had the stitch put in.

Lori Ann 47:26
Then I think it might have been February 5 or so. I was at home. My brother had just visited me. I was going to bed, I laid down and I was like, oh, I don’t know, I just had the weird feeling. Like I just peed myself. I hear sometimes when you’re pregnant you might pee yourself.

Winter 47:56
Sometimes it happens.

Lori Ann 48:02
Yeah, I don’t know what’s normal or not. So I got up and I went to the bathroom. Something wasn’t right. I felt you know what I mean? When something is not right. Honestly, I just decided okay maybe I just peed myself and I cleaned up. Then I went back to bed and I went to lay down. As soon as I went to go lay down again. More came out.

Lori Ann 48:43
I went to the bathroom again. I sat there for probably five minutes. I was just sitting there and I’m just like, this can’t be my water. This can’t be my water. This can’t be my water. No, this can’t be it. I was almost in denial for a little bit. Then I just kind of felt a little more. Slowly coming out.

Lori Ann 49:21
I went into panic mode, and I feel like it’s a blur after that. I’m pretty sure I probably screamed at Matt. I was like something’s really wrong. My water just broke. My waters had just broke. He’s like, “What are you talking about?” Explaining it to him. “We need to go to the hospital. We need to go to the hospital right now. This second.” Matt’s running around like a mad man. Trying to get things together. I just remember standing there, I couldn’t move. I felt paralyzed. It was so scary.

Lori Ann 50:16
I can just remember saying, “This can’t be happening. This isn’t what it is, it was just horrible.” Of course, the hospitals an hour away. So I don’t even know what Matt grabbed, I don’t even think I grabbed anything. I think I barely even got myself in the car. I don’t even know how I did that. But I got to the car. Again, I cried the entire way to the hospital. We were silent. I don’t even think we had the radio on. Matt kept looking at me. But I don’t think we knew what to say to each other. In that moment, because we were so scared of what was happening. I just, it was the longest hour to get there.

Lori Ann 51:20
I had called my OB and the hospital knew we were coming so they were ready for when we got there. They got us into the room. They put the monitor on and they found his heartbeat pretty quickly. So of course that is a relief right there. Okay, he’s alive.

Lori Ann 51:48
It took forever because it was so late at night for one of the doctors to come in and they did a swab. If it turns blue, then that means it’s your fluid, your amniotic fluid. I can just remember her looking at me, and she was just , I’m so sorry, but your water has broken, this is your water.

Lori Ann 52:23
I said a couple of curse words actually. Matt said that all I did was put my hands over my head. I just kept saying the F word over and over and over. I didn’t know what to say. Why? How? Why? Why is this happening? I just had the stitch put on it. Why is this happening?

Lori Ann 53:01
It was too late for- There was no doctor, I guess they’re to talk to us. So they moved us to the labor and delivery section. They explained that two things could happen. They needed to monitor me for an infection. They needed to keep a contraction monitor on. They said to me let us know, if you start to feel contractions. I was like, I don’t know what contractions feel like.

Lori Ann 53:50
I’ve never done this, I don’t know. All anybody ever kept saying was you’ll know. It was just very, I don’t even think we slept that night. It was just because at that point, they didn’t even do an ultrasound. They monitored his heartbeat. They kept the contraction monitor on my stomach. Which one of the nurses came in and they were like, why is your contraction monitor there? I’m like, I don’t know, they’re like, you’re so it needs to be lower because of how far along we were. She made a comment that all the other nurses probably just doesn’t know because this doesn’t usually happen. I’m like,Yeah, I know Okay, this doesn’t normally happen.

Lori Ann 55:00
My parents actually showed up in the middle of the night to the hospital with us. They spent some time with us. We have two dogs, so Matt had to go home to take care of the dogs. Then we realized that the dogs would probably stay with my parents, because we knew we were going to be in the hospital for a little while.

Lori Ann 55:32
We had many tough conversations with so many doctors. Maternal Fetal Medicine, NICU doctors, the OB. It was so overwhelming the amount of information that they gave us. When they did eventually do an ultrasound he had no fluid. There’s just nothing left, really.

Lori Ann 56:07
Oh course, they have to tell you all the scary parts. 21 weeks is not viable for a pregnancy. So they gave us the option to terminate the pregnancy, they told us, we could let mother nature take its course. Those were really two only options, either terminate or wait and see.

Lori Ann 56:43
When the NICU doctor came, I felt like that was the hardest part. Because I just wanted to know if he was in pain. He doesn’t have fluid. What does this mean? They just explained that they need the fluid in order to breathe. They need to be able to drink it, to then be able to let it out. It rotates. When a baby doesn’t have fluid to do that, then issues with the lungs develop or if it’s so tight, they could have clubfoot or, there could be deformities. Because if he’s in one position and can’t move around. All these things, but his heartbeat was strong.

Lori Ann 57:56
When we were there that had been the most I had ever felt him move. Matt and I were like, We can’t end this. I feel him. I’m feeling him inside of me. I can’t let go. I can’t just be sure, let’s just end right now.

Lori Ann 58:28
The doctors even said to us, they were like, if you were one week ahead, we would be like, hang in there. If you were one week before this, we would be like, there’s no hope like you need to end it. But because we were 21 weeks in that weird spot. They were like it could go either way. So there’s no right or wrong answer.

Lori Ann 58:59
As long as he’s not in pain and he’s not in distress we want to let nature take its course. To us, we had to do everything we possibly could in order to try and save him and keep him with us.

Lori Ann 59:25
So we were in the hospital for four days at that point. They were looking for infection and then they were looking for if I would be good to go into labor. I wasn’t going to start dilating because I had the stitch. So we stayed and we made it those four days because they say after those four days, if you made it that far you’re more likely to go at least another week before. They wouldn’t keep us there or see us again until 24 weeks.

Lori Ann 1:00:17
So they were like, go home and wait. They want me to take my temperature twice a day to make sure I didn’t have a fever. If I started to have contractions, if I started bleeding, or you know what I mean? I just had to watch out for all those things. So my parents only live 20 minutes from the hospital, as opposed to an hour for us. So to us, it made sense. To stay with my parents for that time being just in case. Then we would be closer to the hospital. That’s what we did.

Lori Ann 1:01:08
My sister gave up her room. So I had a bed, and I didn’t have to sleep on the couch. My sister and I slept in the same bed the first night. Then she’s like, I can’t sleep with you. I was like, What do you mean, you can’t sleep? I didn’t take up too much room.

Lori Ann 1:01:30
What are you talking about, we always share the bed. She’s like, it kind of made me sad, because she said I was scared that I’m going to hurt you. In the middle of the night. She moved her arm or she kicked me. She was scared that she was going to hurt, oh, or something. So she slept on the couch for the amount of time I was at my parents house.

Lori Ann 1:02:12
In between this time Matt struggled with going to work because he just wanted– he didn’t want to miss a second. He always takes care of me in any situation. He literally is the best husband in the entire world. It doesn’t matter what it is. But he was so on top of everything because they didn’t want me walking around too much.

Lori Ann 1:02:45
He was working nights at that time. So he tried working for a little while working nights and then coming home and taking care of me. But I was like, you can’t do that, you have to go to bed. Go to sleep. You have to. He was really struggling. So we looked into it and he applied for the Family Leave Act or whatever it is if you have to take care of somebody. So he applied for that.

Lori Ann 1:03:25
He kind of stopped going to work. He was just starting to make a name for himself at this company that he was with. He loved it. That was his dream job. He was finally moving up and meeting all these people that were the higher ups. At first I was mad. I was like go to work you have to do this, but then I was beyond thankful that he stayed with me because I needed him to ground me almost. I was petrified of every move, you know it was just a blessing.

Lori Ann 1:04:21
I got to have more time with Owen. At those stages I was feeling him a lot more. I learned that he loved avocados because every time I would eat an avocado and he would dance around or whatever. So I mean, I guess he could have hated that too but–

Winter 1:04:49
-He liked avocados.

Lori Ann 1:04:50
I’m gonna go if he likes it. But there was one night too that Matt and I were laying in bed. Then I was like, Oh, he’s moving around a lot. That was one of the first times that Matt was able to feel him give a little kick. We both cried because we’ve waited for that moment for years. It was just so hard to comprehend. l just kept thinking we’ve gone through so much to get to this point. Why is it becoming so difficult to go through it?

Lori Ann 1:05:49
As soon as we got to 23 weeks, and four days, I think it was the high risk doctor was like, “Hey, kid, you made it this far. This is a miracle alone as you’ve done this.” So they put me at the hospital. We knew walking in that that was going to be our home until Owen was born. So in our heads, we were, this is going to be home, we need to pretend we want to be here for a while. Obviously, nobody wants to be in a hospital for a while. But we wanted to be there for a while.

Lori Ann 1:06:43
My friends and family were so amazing. They all sent cards, and I can’t even tell you how many coloring books I got. We pretty much decorated the whole room the nurses would walk in and be like, is this your house? Yeah, you know we wanted to make it feel homey. I had my own pillow. We made it as homey as possible.

Lori Ann 1:07:17
Just because we wanted to keep it positive. We were trying to be as positive as possible at that point. A lot of the doctors were shocked that we even made it from 21 weeks of my water breaking to 24 weeks. So every day after that was a blessing because it doesn’t usually happen that way.

Winter 1:07:46
You knew that? Did you guys know that you were going to be admitted into the hospital? If you made it to 24 weeks and just monitor you and maybe even if needed they would induce? What was the plan from there?

Lori Ann 1:08:03
Us signing ourselves into the hospital at 24 weeks was us saying to the doctors that we want to take every life saving measure possible to save Owen. That meant I was not going to be able to do a natural delivery. I would have to have a C-section no matter what. Because if I started having contractions I wouldn’t have time to go through labor. He would have to come out quick if we wanted to save him.

Lori Ann 1:08:47
If I got an infection, then it would be an emergency C-section and they would take him out as quick as possible. They would perform life saving measures to try and save him at that point. So that’s what we were signing up for when we went back in at 24 weeks.

Lori Ann 1:09:10
There were more options, they still said that we could terminate at any point. Some people just waited at home until something happened. But at the hospital, they gave me steroid shots. They had me on really high doses of antibiotics. They monitored Owen twice a day for at least an hour. To make sure his heart rate was okay and that he wasn’t in any distress. The only time that I wouldn’t have a say about anything would be if I had an infection and if he was showing any signs of distress. That would be the time when they would have to take him out.

Lori Ann 1:10:08
So for the first couple days, I couldn’t even leave my room. I couldn’t leave the bed. Couldn’t, they didn’t want me to move at all. The first week has been spent being in the same room in the same bed for so long you go crazy. There’s only so much you can do. Then you just overthink. I did a lot of coloring. That is definitely for sure.

Lori Ann 1:10:48
My friends were amazing, because a lot of people came to visit me. All my co-workers came, my boss came and she visited me. My family came and they kept me busy. The people knew that I had two dogs, and I miss them terribly. So the liaison person made it a point that if there was ever a service dog in the hospital they made a special trip to come and see me.

Winter 1:11:28
That is awesome.

Lori Ann 1:11:29
Yeah it was very sweet. So gradually I graduated to being able to be wheeled around the maternity ward. I couldn’t leave the maternity ward, but I could be wheeled around that area. But that didn’t last very long. Because that’s a very hard place to be in, when you’re going through something like that. Because everybody has their babies and they’re all happy. It was really rough.

Lori Ann 1:12:13
So I spent a lot of time in one room for a while. But the doctors every day, we’re this is great, you’re doing great. He is a feisty one. Despite not having a lot of room. He’s doing those flips. He was running away from them every time they had to put the monitor on him. I can remember the one time the nurse, it took her 20 minutes to finally get them to stay in one spot. Then she walked out and I have it on video actually. He kicked it. It literally fell down my stomach.

Lori Ann 1:13:06
He hit it so hard.

Winter 1:13:08
That is awesome.

Lori Ann 1:13:10
The monitor just slid down my stomach. Yeah, so I mean, there were some good times. Matt got to see him. Sometimes if they’re in one spot your stomach will get hard in that one area. I can’t remember for the first couple of times, I was like, something’s wrong. Why is my stomach bigger on this side? It’s hard. The nurse was like, ah, nope, he’s just chilling up there right now. I mean, that was amusing and I’m just very glad that I got to feel those movements, you know,

Winter 1:14:04
Yeah.

Lori Ann 1:14:05
March 10th, I woke up and I knew something was wrong. I didn’t feel good. I knew I had a fever. You know, when you just have the aches and then I just really didn’t feel well. They came in and I was like, I don’t feel good, something is wrong. They had said that I had a fever. So they automatically hooked me up to the monitor for Owen.

Lori Ann 1:14:53
His heart rate was in the 180s and consistently in the 180, so that’s really high. It shouldn’t be like that. Normally, I would have felt him moving around a lot. I kept saying to them why I don’t feel him. They’re like, okay well, his heart rate. He’s alive. He’s in there. It happened so quickly I didn’t feel well, they noticed that his heart rate was too high. My ob came in and all I can remember is her saying, okay, Lori Ann it looks like today’s the day. It’s a good day to have a baby boy. Let’s get going. It seems like you have an infection. So, you know, he has to come out now.

Lori Ann 1:16:04
I was petrified. I couldn’t hold myself together anymore after that. In the C-section, they were going to allow Matt to come in, because I was going to be awake. As soon as I got into the OR, they had found out that they had just given me my heparin shot, I think it is for blood clots. They were like, you could bleed out, if we keep you awake. We decided that it would be a better option for me to be put out for the C-section.

Lori Ann 1:17:01
Honestly, I wouldn’t doubt it if they just said that because I was freaking out. I couldn’t calm down. I suffer from anxiety, normally. I was on a whole new level of freaking out. I just kept saying, but he’s only 26 weeks. He’s only 26 weeks and it just happened so quick.

Lori Ann 1:17:36
There’s a whole team of people rushing around you, and it was so overwhelming. The amount of people prepping you for a C-section. The doctors are telling me about knocking me out. Then they’re telling me Matt can’t come in. They actually let that in for a second. Just to wish me luck. Then he had to leave.

Lori Ann 1:18:21
It’s all a blur, but I was just petrified. I just remember, all of a sudden, I felt someone grab my hand. I was like, what? I looked over it. I guess it was a doula or something like that. I’m not 100% sure if that’s what she was. She just leaned in next to me, and was just like, Lori Ann you’re going to be okay, we’re going to take care of your baby. She was just so calm, and soothing. I wish I knew who she was, so I could thank her, you know what I mean? She totally helped me in that moment. Just holding my hand at that moment was something I needed.

Lori Ann 1:19:24
Then I was put out and then I woke up and in recovery. I felt so empty. I didn’t feel right. Just the day before I was feeling him and then he’s not there anymore. You know you think you have so much more time. My oxygen levels kept getting messed up. So I had to be in recovery for a little bit longer.

Lori Ann 1:20:20
Matt came down and he showed me a picture of Owen. But, you know, he told me, he came out and he wasn’t breathing. So they did have to intubate. So they did that. They intubated him, and that– I’m sorry, this is where I’m gonna get a little emotional. But Matt said, he opened his eyes. It was looking at him. You don’t realize how tiny a two pound baby is.

Lori Ann 1:21:12
Matt’s like, I’ve never felt so much love. In that moment, I was like when am I gonna see? You know I just wanted to see him. Obviously, I was very glad that Matt was able to, you know, show me some pictures. He had said that, the doctor said that he was doing the best he could it that moment, that, you know, he needed full support to breathe, but everything else was stable, that he was doing well. So that was a breath of fresh air.

Lori Ann 1:22:03
We already knew that it was going to be a long road, after he was born. The doctors weren’t going to be able to tell us how developed his lungs were until after he was born. So after Matt showed me the pictures he’s like, “Do you care if I go back?” I was like, I want you to go back and go be with him. I’m fine. My mom was there.

Lori Ann 1:22:40
My mom sat with me. So, Matt got to go back upstairs and spend some time with him. I finally got back to my room, which they still do in the labor and delivery section. Of course, even though they put that leaf or whatever on the door with the tear drop.

Winter 1:23:06
Yeah.

Lori Ann 1:23:09
I saw I was there. Then they had told me that it wasn’t gonna be until later that night because he was born at 12:06pm. So they said that I wasn’t going to be able to see him until at least later that night, because I had to relax and recoup from the C-section. My oxygen was still a little off.

Lori Ann 1:23:43
They had brought in a breast pump because I did say that I wanted to breastfeed. So they wanted me to start doing that right away. The nurses literally handed it to me. I’ve never used a breast pump before. She’s like, okay, here it is. I’m like no I need instructions. I have no idea what to do with that thing. So, she was explaining it to me. As she’s explaining it to me, I got a text from Matt.

Lori Ann 1:24:26
He said something, isn’t right? There’s a lot of doctors in here right now. There’s a lot of beeping. They’re hooked up to so many different things when they’re in the NICU. Okay. What’s wrong? He said something about his blood pressure kept dropping and his heart rate kept dropping, but they were giving him medicine for it.

Lori Ann 1:25:06
I’m not even gonna lie. When he sent that my thought was, okay, we knew this was gonna be a long road

Winter 1:25:17
Right.

Lori Ann 1:25:18
That was expected because we knew things could happen. Those things could go wrong. But it never crossed my mind that he would pass away. You know that feeling right? We made it, we made it to 26 weeks, he came out. He was doing so well. We’re gonna get through this, like, we did it. I just felt so sure. For some reason. I don’t know if it was just because I was like, this has to be okay. This just has to be okay.

Lori Ann 1:26:03
Matt eventually came back down to see me. We talked for a little while. Then Matt asked my dad to step outside. I found this out later, but apparently in the parking lot they were talking Matt’s like it’s not good. He said there are so many doctors in there, and they are trying everything that they can. But it’s not good. My dad was just like, okay let’s hope to wait and see.

Lori Ann 1:26:49
Matt didn’t tell me that yet. Because he didn’t– I mean, who knows, I probably would have ripped out everything possible and tried to get to him. I don’t know what I would have done, but Matt came back. He hung out with me because he said they were busy upstairs.

Lori Ann 1:27:09
Then all of a sudden the NICU doctor came in. He had five nurses with him or something. He said that we need to talk and asked if we wanted my parents in there or not. We asked my parents to step outside for the talk and they did. I knew when he came back down, why would he be there? You know what I mean. What would be the reason for him to be there at that point?

Lori Ann 1:27:58
The NICU doctor was amazing. He took my hand. He was so genuine and caring. He took my hands and explained what was happening about his heart rate, his breathing, low blood pressure and explained it all. I’m like, “So he’s dying?” The doctor was like, “Yes.” That is what he’s telling us because they tried every medicine possible to stabilize him I guess, but it just wasn’t working. They just came to the conclusion that his lungs just couldn’t develop enough at that stage.

Lori Ann 1:29:07
So he basically said, we want to get you upstairs now. So you could meet your son, and you can hold him and meet him before he passes away.

Lori Ann 1:29:26
So I’m like, “Let’s go.” It took all those nurses and doctors to try and get me up because I was probably deadweight to be completely honest. I was just like I didn’t know what to do. I was in so much pain from just having a C-section I shouldn’t have even been sitting up like that yet. I had to get from the bed to a wheelchair. They did it pretty quickly.

Lori Ann 1:30:12
I can remember going out of the room and because we had asked my parents to leave, and I looked to the left, where we came out of the room, and my parents were at the end of the hall. I could see the nurse holding them back a little bit because I was crying. They were rushing us upstairs. So that was very traumatizing for me to see my parents like that. But it’s definitely still something that I still struggle with daily, but we got up to the NICU.

Lori Ann 1:31:20
I heard them say give him a dose of fentanyl or whatever it was. I guess he wouldn’t be in any pain or anything. I guess that’s what helps them pass? You know what I mean? I don’t know, I guess that’s just that.

Lori Ann 1:31:44
Before they did that, we got to hold him. He opened his eyes, and was looking at us. Literally, the first thing I said to Matt was as I was holding him is he is perfect. That’s all I can say. He’s beautiful. He’s so perfect. It was just very hard.

Lori Ann 1:32:30
We are not religious at all, really. We had gotten into a couple of arguments, not arguments- discussions about if we should baptize him or not. We never came to a final conclusion. But when the NICU doctor asked us do you guys want to baptize him before he passes away? We were like, yes. We’re just like there’s no right or wrong answer at this point. If it’s gonna help him it’s gonna help him. If it’s not then it’s not. Just do it. At that point that’s kind of how we felt. So we’re like, Yes.

Lori Ann 1:33:31
I don’t know how, but the NICU doctor, I guess, is qualified to do that. He did it for us. So it’s not even that we had to wait for the priest or whatnot to come. So he did that. Then again, they eventually just took out his, he was intubated. So they just pulled out his tube. We just held him and told him how much we loved him.

Lori Ann 1:34:27
It’s so weird to think about it. At first I was so afraid to touch him. Because the NICU doctor at one point had told us that their skin can be so sensitive at such a young age. So I was afraid. He was wrapped in a blanket, so I was kind of rubbing the blanket a little bit. The doctor was like you could touch him, you’re not gonna hurt him. He’s your baby you can touch him. I was like, great. After that it was like, okay, like, I’m not gonna hurt so, you know, I got to basically just hold him until he passed away.

Lori Ann 1:35:24
I’m just so glad that he was able to– I’m sure babies at that age can’t see much. But you know what I mean? He had his eyes open. He was looking at us. I’m sure he knew our voices. All he felt right when he was passing was love, and so much love. I am definitely very grateful for that.

Lori Ann 1:35:59
The doctor did confirm, eventually that his heart had stopped. So it took Matt actually a little bit of time to hold him. He kept saying no he didn’t want to at first I was like, you need to hold your son. I know, it’s upsetting. I know it’s hard, but you need to do this. He’s so glad that I pushed him to hold him.

Lori Ann 1:36:40
It was just me and Matt for a little while. Then they asked if I wanted my parents to come up, because they were there. I said, Yes , let them come up and meet Owen. At that point he had passed, but they came upstairs and the look on my dad’s face. When he came in. My dad is not a crier at all. He was crying. It was just so hard to see them upset because obviously I knew how much they wanted to be grandparents. How much they loved him already and how much excitement they had for him and it was gone now. But they got to hold him and meet him. I am grateful for that and so are they. They are very glad that they got to spend some time with him and to see him.

Lori Ann 1:38:16
They let me wash him off. I got to change his diaper. I got to help– they were because you know, they do some photos and everything like that. So I was going to stay for the photos which I do feel we were in that room for a long time. But the timing is so blurry in the instance. I thought we weren’t there very long, but apparently we were there for hours.

Lori Ann 1:38:58
Then my I.V.’s we’re in the wrong place. So when my arms were bent I wasn’t getting my meds. You could tell I was starting to go pale and I was dizzy. They were like okay, I think it’s time for you to heal, you have to go rest now.

Lori Ann 1:39:30
That was really hard to have to leave him and I see the stories of how people got to spend a night or whatever it is with their children. I wish I could do something like that. I didn’t even know that was an option. Maybe the hospital I was at didn’t do that, or maybe they didn’t have a cuddle cot or something like that. Once we left then that was it. That was the last time that I got to see him. Obviously, no time is ever in a situation like that.

Lori Ann 1:40:26
I am grateful for the time that I did get with him. I just wish it was more, but I guess again, it’s probably never would have been enough. Whether it was 3 hours or 24 hours. I don’t think it would have ever been enough.

Lori Ann 1:40:54
I had to go back downstairs. That was pretty much it. That was the last time I saw him. I was at the hospital for two more days. Then they sent me home. The world was updated because of COVID all at the same exact time. That’s the whole thing.

Lori Ann 1:41:30
At first we were almost happy, not happy about COVID obviously, but happy in the sense that Matt and I were kind of left alone. We had that time to lean on each other, grieve together and heal together. Then at the same time I wish I could have had family there more often, but because of COVID and it was hard. Nobody knew anything really by that point about COVID so it was quarantined.

Winter 1:42:19
Yeah.

Lori Ann 1:42:20
Yeah. I mean, that’s pretty much what– we did have him cremated. I am very glad we did that. Now we have him with us every day. I have a necklace and his ashes are in it which is with me every day. I got a tattoo with his name and his footprints. I actually had a jeweler take his handprint and footprint. They literally took these are his actual size and outline of his hand and footprint.

Winter 1:43:18
Those are so sweet.

Lori Ann 1:43:19
Yeah. So I have those every day with me too.

Winter 1:43:26
Did you guys have a memorial service or anything? I know it was right in the height of the closed down because of COVID-19. So-

Lori Ann 1:43:35
I mean we did a little thing with our immediate family. Otherwise we couldn’t because of COVID there really wasn’t an option to do that. I mean, his first birthday was just on March 10. We did have a little get together with my family and my husband’s family. We had a little cake and everything like that. That was nice. That’s always nice. Yeah.

Lori Ann 1:44:19
Lori Ann thank you so much for telling Owen’s story. Is there anything else that you want to remember? Or that you’d like to share about that entire experience?

Lori Ann 1:44:31
I am just very grateful for the time that I did get with him, including when he was growing inside of me. That was a great experience. I am so grateful that I got to see him and hold him. So he felt the love and knew the love. I say he got to see us. He opened his eyes so like, I’m so glad that he got to see us. As he was passing that meant so much to me that I was able to do that.

Winter 1:45:12
Thank you so much Lori Ann, that was such a beautiful story and I’m glad you were able to share Owen with us today.

Lori Ann 1:45:19
Yes. Thank you.

Transcribed by https://otter.ai

Filed Under: birth story, early neonatal infant death (<7 days), infant death, podcast episode Tagged With: infant loss

Our Experience Losing Our Stillborn Son During COVID-19 Pandemic | ADVICE

February 3, 2022 by Winter

Parents Bianca and Michael share their experience of delivering their stillborn son Jalen during the restrictions of the COVID-19 pandemic. They also share things that have helped them grieve and mourn and celebrate their son, who was stillborn at 20 weeks and 6 days. They also share some helpful things that people did for them, who were supporting them, and they also share what NOT to say to a parent who has just experienced a stillbirth.

Watch here (YouTube):

Listen here (podcast):

Time Stamps:

0:00 Jalen
1:30 They knew
2:23 Only three weeks
5:40 Memory Table
6:23 Necklace
8:18 the weirdest places
11:20 Virtual Counseling Group
14:28 Journal
15:15 Jalen’s brother
17:01 Due date
18:02 Things not to say
19:40 You have two others
21:01 “Vacation”
25:33 Are you okay?
27:25 Prayers
28:12 Triggers
30:33 Last piece of advice

Wanna help?

  • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
  • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
  • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.

You might appreciate these other episodes:

  • Watch/listen Michael’s (Bianca’s husband) birth episode of son Jalen: Click here
  • Watch/listen Bianca’s (Michael’s wife) birth episode of son Jalen: Click here
Baby Jalen

Full Transcription:

Full Transcription:

Winter  0:00  

We are back today with both Bianca and Michael on our advice episode for Still A Part of Us. I just want to say thank you again, Bianca and Michael, for telling your son Jalen’s story to us today. That was super special. We really- I, it was very emotional. I’m grateful that you are willing to come on so soon after his passing. So thank you. Thank you again, for coming on.

Michael  0:27  

Thank you.

Winter  0:27  

As to give some context to our listeners, when was Jalen born?

Bianca  0:32  

So Jalen was born on February 1st of 2021.

Winter  0:36  

That, at the time of this recording everybody, that was just a little over a month ago. So this is very new for them. This is very, very raw for them. So thank you so much for coming on. It’s been just a little over a month. Tell me how that has been. As you guys have moved throughout your regular normal routines. How has that been to try and get back into life?

Bianca  0:59  

For me? Um, it’s been very challenging. I do have my days of feeling down and defeated and feeling hopeless. Then I have my days where they’re good days, and I’m able to smile. 

Winter  1:16  

Yeah. How about you, Michael? 

Michael  1:18  

For me, every day is different. One day, I can be perfect. The next day seems like I don’t want to do anything. 

Winter  1:25  

Yeah.

Michael  1:25  

It seems like me and Bianca are just staring at the wall constantly asking why.

Winter  1:30  

Yeah. 

Michael  1:30  

Every time we turn around it seems like we have to tell someone new our story because they knew we were expecting another one. Or just they’re asking, which I understand they are asking a lot of questions. But sometimes it’s just like, I can’t, I could just tell you the A through Z, but I can’t tell you the rest of the alphabet, right now. 

Winter  1:50  

The why yeah. 

Michael  1:50  

It’s just too hard. 

Winter  1:51  

Yeah, that’s probably the worst part. I think when people are like, so happy. They’re so happy for you. And they are expecting to hear good news. And you have the complete opposite. It’s because they feel terrible about asking the question, I’m sure you’ve seen that before. And I’m wondering, did you guys take some time off from work? It sounds like Bianca, you’ve been working from home. So were you able to take any time off any sort of maternity leave or FMLA or anything like that?

Bianca  2:23  

So I was able to take three weeks off. One week for the surgery. 

Winter  2:31  

Oh, okay. 

Bianca  2:32  

Which was before, 

Winter  2:33  

Right. 

Bianca  2:34  

I had Jalen, and then two weeks after I gave birth I had off. So I have three weeks total. In the state of Massachusetts. I didn’t qualify for maternity leave, because my baby was under 24 weeks, and he was not born alive. Had he been born alive. I would have qualified, but because he had passed before he was born, we didn’t qualify. 

Winter  2:34  

Oh.

Bianca  2:46  

I did not get- I only got the three grievance days. Then everything else was basically like PTO. 

Winter  3:11  

Oh, that is a– that’s a punch in the gut, isn’t it?

Bianca  3:18  

It was. It really was because it’s like you’re already going through enough. It’s like, I gave birth but yeah, my baby is not here. Right. You would think they would have something in place for situations like that. Yeah, so you’re still going through the same process as a mother that had given birth to a baby that was born alive.

It’s just that, you know, our babies were born sleeping and we’re still going through the same, the same feeling of lactating and you’re going, you’re going to be still bleeding and you’re still going to the physical pain. Your body just went through a traumatic experience. You just gave birth and I’m going to have the same feelings of like, you know, body wise. 

Winter  4:13  

Yeah.

Bianca  4:14  

I still need time to heal. So, I just didn’t understand that whole concept of like, what they thought it was like, just because he wasn’t born alive. You know? That was hard for me. 

Winter  4:28  

Oh, it is. It feels like such an injustice. You’re just like, I don’t have a baby to have this justified. Yep, the bleeding and the lactating. It’s just It feels like a second- It’s just a second hurt to it all. I’m assuming Michael, you probably weren’t able to take any time off either or, you know, didn’t qualify for any additional bereavement time?

Michael  4:58  

I didn’t- I did not. So, when I told my boss what happened on that Sunday, she immediately said take the week, don’t even show up. Don’t worry about anything. We’ll take it from there. I wanted to take longer, but since Mass. didn’t see it as worthy for paternal. She’s going to take her maternity leave. I felt like I had to go. I wasn’t fully mentally there. 

Winter  5:24  

Yeah. 

Michael  5:24  

But I had to be the one to go back to work.

Winter  5:28  

Since you guys have been. It’s just been so recent. And I realized that you will develop other things that you do to kind of celebrate Jalen’s life. But what have you guys done so far to honor him?

Michael  5:40  

The memory table that we have in his memory is huge. It feels like my stuff just got pushed off to the side now. He’s just, he’s everywhere. I’ve got clothes. I’ve got Build a Bear bears around here. Those candle lights that you just hit with the light and it will come on, pictures hanging everywhere. 

Winter  6:01  

Yeah. 

Michael  6:02  

He really seems like he’s here with us. 

Winter  6:05  

That’s great. I think that’s awesome. That’s in your room is that right? 

Michael  6:10  

Yeah. 

Winter  6:10  

So and then, if you didn’t get to hear what they have on their memory table, and like in their memory box, you should listen to the birth episode that Bianca and Michael have talked about. It sounds like you guys have kind of a little a lot of tokens. You also have necklaces that you guys wear. Can you describe the necklace a little bit more?

Bianca  6:32  

Yep. So it is a mom holding a baby or cradling a baby in her arms. Then it has some diamonds. It’s a heart shape. 

Winter  6:42  

That’s awesome. 

Bianca  6:43  

And it’s actually like you can put ashes in it. Oh, so it’s like an urn. 

Winter  6:48  

Yeah. 

Bianca  6:49  

I don’t want to touch the- I don’t put the ashes in it. Because he was so little. 

Winter  6:54  

Yeah.

Bianca  6:55  

I don’t want to tamper with his urn that we already have. 

Winter  6:59  

Right.

Bianca  7:00  

So I just wear this in remembrance of him. And I leave his ashes alone. 

Winter  7:00  

Yes. 

Bianca  7:06  

Yeah. I don’t want anyone touching that.

Winter  7:10  

Yeah, I wouldn’t either. I would be like, no, no, don’t nope. Don’t mess with my son. You guys work? You have two children. I’m sure you’re quite busy. But how do you take time to set aside some time to mourn because it is so new and so raw? And so it’s just so terrible. I’m just curious to know how you guys are handling the grieving process.

Michael  7:36  

Really, whenever I guess we find time, or that sucks, but that’s more or less like we’ll do it when we’re cooking. When we’re just laying in bed not really doing anything. It sucks. Because when you’re when you don’t want to mourn is when you’re more like she’ll wake up at 3am crying and I’m like, I guess I’m up with you. 

Winter  7:57  

Yeah.

Michael  7:58  

Consoling you. It just happens very randomly. We I want to mourn and it’s like, okay, I guess I’m not right now. 

Winter  8:07  

Yeah.

Winter  8:07  

I’m gonna be doing something like, oh, here we go.

Winter  8:09  

Yeah. Isn’t that so funny? I did not expect that to be starting to cry right in the middle of the grocery store or whatever. Right?

Michael  8:16  

Right, right.

Bianca  8:18  

Yeah. So for me, it comes in like, the weirdest times like, it just comes out of nowhere. Like, it just hits me. I can be working and I’m fine. I was just laughing and then I get so emotional. I think seeing baby boys is very triggering for me. I will see a baby boy and then I’m just like, gosh, like, get it together, get it together. Then we have because of this whole COVID thing, we have to wear masks going out. So it’s like I’ll have my mask on, but you can see tears coming down like trying to wipe my face.

But it’s so hard. Seeing like, baby boys or going into a Walmart or Target and I’m only supposed to go grocery shopping. Then you know, the baby aisle is right there. So like you’re, you see the stuff and you’re like, man, this is just I didn’t think it was gonna be this hard. But even this is probably why I don’t go out anymore.

Like I try not to leave the house and go to stores. I’ll just order online because seeing baby things is very emotional for me, especially after a long day of dealing with the kids. Once I have time to like, wind down, my mind starts wandering. Then I start to feel myself thinking and asking myself why, or that it should be different. 

Michael  9:44  

It’s really hard going places. She has her appointments that she has a follow up for postpartum. Unfortunately, I can’t go but when the doctor calls I say listen, she can’t sit in the waiting room with pregnant women. You’re going to have to –When she’s outside, she can call but she has to bring her in back door front, straight into the room. I don’t care how it happens, but you can’t, she can’t sit in there. 

Winter  10:08  

Oh, that is actually a great piece of advice too, because it really is a trigger like it is. It is so hard to see all of those things that just remind you that you’re not pregnant and that you lost a baby. And it is, that is a really smart idea, Michael, good job. You look. Good job standing up for your wife. Like that’s awesome.

Um, you did mention that you have Bianca go to or, quote unquote, go to I’m assuming zoom meetings for like a counseling group. Do you attend Michael too or is it? I’m not sure. Is it just for mom or dad also? 

Michael  10:48  

I attend. I’m not on the camera. I’m sitting there next to her. 

Winter  10:51  

That’s great. 

Michael  10:53  

I wasn’t not fully there yet ready to sit, or tell my side of the story because not most men don’t. 

Winter  11:01  

Yeah.

Michael  11:01  

But I am there with her.

Winter  11:04  

That’s great. Well, just some of the stuff I at least for the counseling groups that we’ve gone to has been, they just bring up things to think about and how you can process it. So I think it works. Regardless if you’re on camera or not. 

Michael  11:18  

Definitely 

Winter  11:20  

Bianca what are so of the things– both of you actually, what are some of the things that has helped by attending or listening in on those counseling groups or those grief groups?

Bianca  11:28  

It is, the biggest one for me is that it’s okay to feel what you’re feeling. I have a very strong support system, I will say that, but for me, it’s like my support, like some of the people in my support system, have never gone through what I went through. So it’s very hard to put yourself in a place where you really don’t know what to say, or how to say it. So I think there’s a theory like, okay, well, the baby’s not here, or everything happens for a reason, right? But my baby, you know, mattered to me.

So I feel like going to those support groups allowed me to feel that it’s okay to feel what I’m feeling. I’m entitled to feel how I feel, regardless of what anyone says, because there was some someone that mattered to me, my son mattered. I’m entitled to, you know, express my emotions for him, because it only expresses the love that I had for him. 

Winter  12:36  

Yeah.

Bianca  12:36  

Me crying, and, you know, the pain that I felt was all love. It’s all out of love. And so, you know, if I make you uncomfortable, then I’m sorry, but I’m not sorry, actually. You know, this is how I feel. And you are entitled to feel that way. And I feel like it really helped me also, with, you know, going throughout everyday life and knowing that I’m not alone. Like there’s many other women in this world, that have gone through the same similar, you know, situations and we can all stand together.

Know that, you know, day by day, not gonna say it’s easy, but you know, step by step, it definitely gets easier and bearable, I would say. And manageable. Like I now know, before, like the first couple of weeks, it was just like, I was crying every day. And then I felt like crying. I went longer periods without crying. And you know, I have my days where I completely break down. But it’s manageable. And it’s okay. 

Winter  13:45  

It’s definitely a process. And it’s not linear. It feels like some days you’re like, I’m making some good progress. Then you’re like, oh, just kidding. Next day back to where you started. It feels like so. Right? 

Bianca  13:56  

Yeah. 

Winter  13:57  

Is there anything that you guys do, or have been able to do to kind of physically escape things that you like to do to distract yourself? I’m just curious, because some people like to have an out sometimes because I think grieving, sometimes it feels like you should grieve or cry all the time to feel close to your son. That’s the way I felt actually, when my son passed away. I realized I couldn’t sustain that. I just couldn’t sustain that. So is there anything that you guys do to try and have an out? Give yourself a break? I guess.

Bianca  14:28  

Yeah, I journal.

Winter  14:30  

Oh, good.

Bianca  14:31  

Pen and paper, get my thoughts out whatever I’m feeling in that moment, writing it down on pen and paper and seeing it has helped me. I’m not one to really talk about how I’m feeling because I feel like no one really gets me and they don’t understand what I’m going through in this moment.

So writing it out, I feel like is equivalent to me talking to somebody that gets me. I’m able to say exactly how I feel even if what I’m feeling right now is I’m angry, I will write angry across the paper and put all the reasons why I feel that I’m angry because this is just how I feel in this moment. Then seeing it on paper and letting it out makes me feel so much better because I’m just like, I let it out. And I no longer have that feeling inside of me, you know what I mean?

Winter  15:22  

Yes, for sure. Writing is so therapeutic. And you’re right, I think that there’s– we have a great support system as well. But having somebody that you feel like can understand you is really super important. There’s not very many people that have had the same experiences you have, or I have, and so yes, having a journal, writing it out is super great. 

Bianca  15:45  

Definitely. 

Winter  15:46  

It’s so helpful. How about you, Michael, anything that you do to release, or maybe even just check out for a second? To give yourself a rest?

Michael  15:55  

Yeah, definitely. My son definitely. Does it for me. 

Winter  15:58  

Oh, really? 

Michael  15:59  

Yeah, he’ll say dad,let’s go watch something.? Dad, can we go here? Dad let’s go play together. Just anything. I’m just like, okay, I appreciate you. Even though he doesn’t understand what I’m going through. 

Winter  16:10  

Yeah.

Michael  16:10  

He definitely-

Winter  16:11  

-Is helping

Michael  16:13  

 He draws my mind somewhere else. So that definitely, definitely helps.

Winter  16:16  

That’s great. You guys, you got a buddy right there. Taking care of you, for sure. You guys have talked about when you had his funeral, you actually went to a park afterward and did a balloon release. You’ve talked about Valentine’s Day, because that was the first holiday right after he passed away. And you guys wrote a letter to him or wrote cards to him for somebody that was far away. Like, I really loved that sentiment.

What other things are you guys going to try to do to celebrate? I know that that’s, I mean, there’s still a lot of things that are coming up. But you know, you do talk about his due date, and there will be a first birthday and there will be, you know, all of these things that are coming up. Have you guys thought through any more things that you’d like to try and do?

Bianca  17:01  

So for him, for my due date, which is coming up on June 14, I want to get away, like, we’re gonna plan a little family vacation that weekend. 

Winter  17:16  

Good. 

Bianca  17:17  

My due date is on a Monday. We’re gonna try to go away for the weekend. Like, even if it’s like Saturday through Monday, or something just to be away and be with each other. Because it’s definitely going to be hard. We may do like a balloon release for him. And like, you know, I know, we were gonna do family photos together.

I was planning on bringing his little urn to include him in there. Probably like a balloon for him. Like, just to, like, keep him in our memory. I don’t know, it’s gonna be tough, but I feel like it definitely, it’ll be worth it. It’ll be something that we can remember him by.

Winter  18:02  

Yeah, those holidays, you will, you will find are tricky. They can be just going to warn you Mother’s Day and Father’s Day. Those are tricky. So just kind of keep that in mind if you approach them. Bianca and Mike, these are questions I like to ask every single episode of the advice, because I think a lot of people that are supporting lost moms and lost dads want to know what to say and what not to say.

So is there anything that you would recommend people maybe not say in that has or something that somebody said to you that maybe hurt you that you were like, oh, that was probably not the best thing to say. So something that they shouldn’t say? And then if there’s anything that you really liked, that somebody said to you that you’re like that that was helpful, that helps me get through this?

Bianca  18:53  

Yeah, so for me, I would say the one thing that I hated the most was telling me everything happens for a reason, because you’re telling me this, but I can’t grasp the concept, or the reason behind why it happened. I get it, and I understand a lot of people don’t know what to say.

I’ve told many people if you don’t know what to say, just don’t say anything. Just give me a hug. You know, like, um, that would be the best thing you can do for me, but I’ve had everything happens for a reason, or at least you weren’t far along. 

Winter  19:35  

Oh.

Bianca  19:36  

Don’t say that. You don’t say stuff like that. 

Winter  19:39  

Yeah.

Michael  19:40  

For me the one that kicked me was at least you have two others. 

Winter  19:44  

Oh, yeah. 

Michael  19:46  

That was a real like, don’t taunt me to choose who– which kid is more important to me. 

Winter  19:54  

That’s a great way of putting it. 

Michael  19:56  

Yeah, I don’t need that. I also think people should just listen. So when I told everybody she was pregnant, every time someone asked me how she was or like what happened? Like she gave birth and they immediately said, congratulations. Then I’d be like, it was- hold on it was it was a stillbirth.

That one hurt me the most because I got it all the time because people are like, oh, we went to the hospital and everybody knew I was in the delivery ward. Everyone was oh, congratulations. I’m like, it wasn’t like that. 

Winter  20:29  

Yeah. 

Michael  20:30  

I think people should just really listen, let the person get out what they want before you start giving out, congratulations.

Winter  20:37  

Yeah. 

Bianca  20:38  

It’s just like, even with the asking of the questions. It’s like, it’s okay to talk when you’re ready to talk. You don’t have to just because someone asked the question, you don’t necessarily have to answer, you can just say like, you know, I’m not ready to talk about it right now. I got that a lot. I went back to work after three weeks. And it was like, oh, congratulations. And it’s like–

Michael  21:01  

Or someone saw that she was out for a while. She was really out two weeks. When she went back that Monday, someone said “How was your vacation.” It completely took her. She was done. It was another week after that. So that’s why she was out for three weeks.

But yeah, so I think people should definitely just listen, because when they said that to her, and she called me, I can tell it broke her the little bit of traction she gained or tried to recover, or recovery she was kicked back 10 steps.

Winter  21:34  

Yeah, that is devastating. A vacation? Yeah, no, no. This is one thing I’ve noticed in talking to both of you today. I have noticed you guys have been so supportive of each other, you really kind of stick up for each other and are very sweet to each other. It’s been kind of, it’s been kind of cute to watch you guys.

So how would you say you guys are doing? How would you say the other person is doing for this grooming process? Is there anything that you’re concerned about? I know, it’s only been a month. But is there anything that you’re worried about for your spouse?

Bianca  22:06  

I’m worried that Michael didn’t have a chance to grieve just yet. I know he goes through his moments of sadness, of course. But again, guys grieve differently. And he’s so worried about me and trying to make sure that I’m okay that I want him to make sure that, you know, he takes the time he needs for himself to grieve properly.

Winter  22:31  

You guys are just the best, but you’re like you need to take care of yourself. That’s what I tell my husband all the time. So how about you Michael, what do you think of how your wife’s doing?

Michael  22:41  

It’s different all the time. She could be fine for four or five days. Anything as small as a commercial would send her over the edge. I definitely would agree with what was said. I didn’t fully mourn, but when I see her completely breaking down, crying, can’t eat. She didn’t eat after giving birth, she didn’t eat for probably about two weeks.

So I think I go into the, I want to be the defense for I want her to I want her to eat, I want her to rest and I need her to sleep. All doctors are calling , they’re saying, oh, well, let’s just take this depression medication. I’m just like she doesn’t need that just stop trying to force feed something.

Like just give her some time to grieve. It’s only been a month. It’s not like this happened X amount of years ago. So I think I definitely didn’t mourn, but I definitely put her above and beyond my needs to make sure she’s okay.

Winter  23:46  

I’m sure Bianca will appreciate that, or does appreciate that. How much you’re kind of protecting her in a way. So that is very sweet. You should take care of yourself too, though, Michael, I’m just saying. Have you guys had any thoughts about or any a-ha moments about life and death and/or, just your relationship as a couple or your family since this has happened?

Bianca  24:15  

Definitely. Yes, definitely. I now cherish my family even more, because you really never know. You can really be here today and gone tomorrow. Everything will be fine one minute, and then the next minute, everything can change in a heartbeat. So it’s like, now I’m very overprotective, especially with my children.

I find myself saying I love you to those around me a lot more and expressing how I feel because you never know when you’re going to talk to someone again, or when you’ll ever have that chance to say something again. So I try to take in every moment of the day and live in the moment. Rather than trying to Plan ahead now. 

Winter  25:02  

That’s great.

Michael  25:03  

Definitely I agree that we, I was the type of person that if she was like, let’s go to so and so’s house. I’m like, it’s Sunday, I got to work tomorrow. I’m not trying to do anything. I don’t want to do anything. Really. Now, it’s like let’s just go. We need to go see this person we haven’t, or even like, asking someone. Are you okay? I think is big for me. You never know what anybody’s going through. You never know. They might just need that one person to talk to. 

Winter  25:32  

Yeah.

Michael  25:32  

That one person to really just listen. Um, so I find myself asking friends all the time. Like, are you okay? Like, I just need to make sure you are okay. That is what’s big for me.

Winter  25:43  

That is really insightful, Michael. You never know what people are going through? And to just ask, are you doing okay, that is huge. Very good words of advice from both of you. Can I ask just a couple last questions? Was there anything that somebody did for you that really stood out to you? That was very helpful, very special, very touching to you.

I know that Michael, you mentioned that Bianca was like, get rid of the crib, get rid of the stuff. I cannot face it when I come home. And you had somebody do that for you. I thought that right there was huge.

Michael  26:21  

I think someone coming in to pick up the crib, or even someone in general. Just like, hey, I need to do something and they just come fly right in. Picking up the crib was the biggest one because the hardest thing for me to do was to break down that crib. 

Winter  26:35  

Yeah. 

Michael  26:35  

So when they came in, like I called them, he was like, I’ll be there in an hour. They dropped everything that they were doing and came to help us. That was the biggest thing anyone’s really done for us since this whole process started.

Winter  26:48  

Yeah, that’s so kind. They did it before you guys got home right from the hospital?

Michael  26:54  

Yeah, I had to meet him there, but yeah. I wanted to get it out before she even saw it.

Winter  26:58  

Yeah, yeah. And like the fact that he said they’re gonna be there in an hour. I mean, they did drop everything just to help you guys, that was awesome. Having somebody that is willing to help you at a moment’s notice is a lifesaver I think. Any other things that you guys thought stood out to you, that somebody did for you to help you through this? That is helping you through this?

Bianca  27:25  

I would say prayers from those closest to us. Like the random phone calls just to check in to see how we’re doing. I’m just thinking of you and like you’re giving us the, you know, shoulder to lean on, especially in this time, was very helpful. You know, basically just being supportive and just listening. I can call you and you would not even have to say anything, just listen to what I’m saying. 

Winter  27:58  

Yeah. 

Bianca  27:58  

It was very helpful to have those friends that would call and just check in. We can absolutely be our most vulnerable self to them.

Winter  28:11  

Yeah. 

Bianca  28:12  

That was definitely helpful. Receiving flowers for me, was something that just didn’t give me flowers. That was a trigger. 

Winter  28:24  

Really? 

Bianca  28:25  

Yes, every time the doorbell rang, and it would be like a flower delivery, it would break me into pieces. It was a constant reminder of what I just lost. Then flowers die. 

Winter  28:39  

Yeah.

Bianca  28:40  

So, you’re trying to nurture them as I was doing. And then eventually you know, they die. 

Winter  28:48  

Yeah. 

Bianca  28:49  

So it was very hard for me to try to see the flowers and all that stuff. It was very terrible for me. I didn’t like flowers. We got gift baskets with fruit like edible arrangements and stuff like that. Fruit like those were good. Because, you know, like I can, it’s something nutritious to me. 

Winter  29:12  

Yeah.

Bianca  29:12  

And, you know, in that moment of grieving and stuff like that it was very hard for me to eat. So giving someone fruit was more ideal for me. But the flowers were something that broke me down. It was a reminder of when we had to go buy flowers for the funeral. 

Winter  29:31  

Yeah.

Bianca  29:32  

It was a bad reminder. But everything else from like the phone calls to like the sympathy cards and just checking in and you know, being very supportive was very good for us. I definitely encourage people to do that. Especially when they go through a situation like this.

Winter  29:51  

Yeah. It is so nice when it feels like somebody remembers you, especially when you’re like this tragic thing kind of rocked my world. Then after the funeral, everything goes back to normal, right? Everything’s supposed to go back to normal and it’s nice to have people remember you, even to this day. It’s been two and a half years, almost three years since our son passed away, and it feels like I have people still checking in on me, which is a godsend, I think.

Bianca  30:21  

Yeah, definitely.

Winter  30:23  

Yeah. I’m curious to know, if you have any last piece of advice that you feel like, that has really helped you?

Bianca  30:33  

Um, I would say reading. Reading has helped me a lot. I read books on bereavement and books on the loss of a child. That helped me and gave me a lot of insight on the perspective of losing a child. It allowed me to put myself in a different space.

Winter  30:56  

Yeah.

Bianca  30:56  

I really realize that, you know, we’re not the only one that goes through situations like this. And somehow, some way you will get through it. That helped me a lot. Also, taking time out to focus on yourself. I have a lot of self care, even if it’s to just get away, and like, go pamper yourself, like I went and got my feet done, or went and got a body massage. So just like really pampering yourself, and you know, cherishing yourself. It was very hard for me at first because, like I had said, in the birth episode, I blamed myself and my body for failing me throughout this whole process and allowing myself to know that it’s not your fault.

You know, unfortunately, this is something that happened, it’s something that became a part of me, and now it’s my story and who I am today. I’m trying to find the true meaning of Bianca, you know what I mean? And really pick up those pieces and move forward and accept that this is my story. It ends how, you know, I allow it to end. So I have to keep pushing and learn to love myself in a new way, which I’m still learning obviously.

Winter  32:18  

Yeah, that’s, that’s very insightful. You know, you do feel like your body failed you, or something happened, but to take care of yourself. And also just remember your body is also a gift to bring these children into the world. I think that’s good to practice self care. Thank you so much for that. Bianca. Michael, do you have any last piece of advice, or anything that has helped you that you wanted to share before we close up today?

Michael  32:46  

I would say don’t hold in your feelings. While they’re as good or bad. Just tell somebody don’t just keep letting it pile up because it will. You’re doing yourself harm a disservice. Just talk to someone you really trust.

Winter  33:01  

Yeah, people need to remember that. I want to thank both of you for coming on today. I’m so sorry about your sweet Jalen, and I hope that this is a way that he can be remembered.

Bianca  33:15  

Thank you so much. 

Michael  33:16  

Thanks for having us.

Transcribed by https://otter.ai

Filed Under: advice, early term stillbirth, podcast episode, stillbirth Tagged With: advice, stillbirth

Jalen Jeremiah | A Father’s Pandemic Stillbirth Story | Born Still at 20 Weeks

February 2, 2022 by Winter

Dad Michael tells the story of the birth of his son Jalen Jeremiah during the COVID-19 pandemic. His wife Bianca had an incompetent cervix and they put in a cerclage, but it failed. When the medical team was trying to remove the cerclage, they broke the water, and they had to deliver their son at 20 weeks and 6 days. Because he was so young in gestational age, there was nothing that they medical team would have done. Jalen was born still after Bianca labored for a short time. He was tiny, but he was perfect.

Watch here (YouTube):

Listen here (podcast):

Time Stamps:

Timestamps:
0:00- Jalen Jeremiah
0:08- Introduction
5:28- Birth story
8:03- Hospital trip
9:41- Water breaks
15:24- Funeral
19:29- Recovery
22:17- Support Group
26:55- End

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  • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
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  • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.

You might appreciate these other episodes:

  • Watch/listen Bianca’s (Michael’s wife) birth episode of son Jalen: Click here
  • Watch/listen to Bianca’s and Michael’s advice episode after Jalen’s death: Click here

Full Transcription:

Michael 0:00
My son’s name was Jalen Jeremiah.

Michael 0:08
One significant thing about him was, he was a spitting image of me from the eyes, the nose, and to the mouth. One thing I laughed about to myself was that he was really very active at five months, nothing but jumping around in there kicking. So when he came out, I laughed that his inch and a half foot was the one that was kicking her so hard. It was funny to me. That was funny to me.

Winter 0:43
Welcome to Still A Part of Us a place where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter.

Lee 0:51
And I’m Lee, we are grateful you joined us today. Please know that this is a story of loss. It has triggers. Thanks to our loss parents who are willing to be vulnerable and share their children with us. If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

Winter 1:07
Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us. They’re Still A Part of Us.

Lee 1:19
During the times you’re getting kicked in the ribs and in the stomach wasn’t the funnest thing. But

Bianca 1:26
Yeah, definitely.

Lee 1:28
It is quite amazing how small those feet are. New born babies are. Welcome. Welcome to welcome. Welcome and thank you for coming. Thank you for coming on to the podcast. It’s always good to connect and to speak with fathers. Sometimes I feel that I’m sort of forgotten in this whole process. I’m glad that you have come to talk about your son. Tell me a little bit about yourself. How long have you and Bianca been…I don’t I don’t know. Are you married? Are you guys together? Or-

Michael 2:04
We’re married. We’ve been together since we’re 14.

Lee 2:06
Whoa.

Michael 2:08
Now we’re 28.

Lee 2:10
Oh man! More than half your life. So are you both– Were you both 14 and you’re both 28 now, or were you both 14? I’m just gonna say you’re now married.

Michael 2:20
We got married at 20 now feels like what this feels like with this situation that happened. We’ve been through everything now.

Lee 2:28
Sort of true you have.

Michael 2:29
Little bit on me? On a day to day morning. I’m in the retail business. I’m the only one that leaves the house. She works from home. Some hobbies that I do that we all like to do is to be outside. I like to play video games with my son and basketball with him. We all love to watch movies together.

Lee 2:48
What kind of movies? What genres of movies?

Michael 2:51
We’re going on comedies really.

Michael 2:55
Rom coms?

Michael 2:55
Something to keep us all up. One person wants to watch something and the next thing you know you look over another person’s sleeping. We try to stick to the Comedies so everyones awake.

Lee 3:07
That’s nice. Yeah. Because comedies are always fun. When you said you guys like to be outdoors. Being outside is awesome! Do you guys do anything in particular outdoors? Are you guys like you go hiking or camping?

Michael 3:22
We like everything pretty much. Bring the kids to the park. Walk around the park.

Bianca 3:28
Gardening.

Michael 3:29
Gardening.

Lee 3:30
It’s starting to become garden season here in Utah. Are you guys planning your own garden?

Michael 3:36
Yes, finally.

Bianca 3:38
It’s not quite it’s still like kind of really cold and–

Michael 3:42
Waiting for that season to switch over so you can finally let go of the cold weather.

Lee 3:48
So I like the cold, but it’s wonderful. Basketball. You play pretty competitively?

Michael 3:58
I’m not anymore. I did. I’m waiting for one of the big kids to play. So I can-

Lee 4:04
So you could shut stuff down?

Michael 4:06
Yeah. Like how I was rundown. Yeah.

Lee 4:11
Well, good. Now, what position would you say that you’re more of a guard? Are you, you know, shooting?

Michael 4:17
I played guard. Well, I played 1-3. Really the guard played a guard a lot in high school. Um best times best three times three times.

Lee 4:31
I was gonna say whenever I played basketball, I was always the position I played was go in and foul. I was the bruiser. I could rebound and I could bruise I couldn’t shoot. I couldn’t shoot. You know, I could be alone underneath the basket and miss every single shot, but I could out rebound and I can make them pay. I would get ejected a lot, you know, just from time church ball and stuff like that I’d get ejected from games.

Michael 5:02
But we all need a bruiser. Always need somebody on the team that’s a bruiser.

Lee 5:10
I was the punisher. So yeah, I don’t play basketball much anymore. Nobody wants to play with a bruiser when you’re an adult, so.

Michael 5:20
Right, right.

Lee 5:21
Well, wonderful. Thanks for telling us a little bit about yourself. Should we start on your guys’ birth story?

Michael 5:28
Yeah, so that day, previous to that day, he came on a Sunday. But Previous to that day on that Thursday, Bianca was having a lot of complications. Probably two weeks up until his death. Um, she was five months pregnant, but she was two centimeters dilated.

Also, the doctor was like, you guys have to put in a cerclage which is pretty much like a staple. A stitch to stitch up her cervix. That way we can try to keep him in as much as possible. As well as she had to take progesterone shots. To keep him confined.

Lee 6:08
I don’t really know what progesterone is. So would it sort of stop the advancement of birth?

Michael 6:16
Correct. So the progesterone shots would slow down the inducing.

Lee 6:22
Oh okay, that makes sense.

Michael 6:26
She had to get that put in on a Thursday. They had to put her to sleep. Of course, I couldn’t go with her because of COVID. So she had to go to it by herself. When she woke up from the surgery, she was in nothing but pain. They wanted to keep her overnight, but luckily they sent her home. She was going through immense pain.

That Thursday night, pretty much half of Friday. The doctor kept saying just take Tylenol, it’s because you felt a lot of contractions. So the doctor is like, just keep taking the Tylenol. You’ll be better. You just got to give it some time. So we said okay.

Michael 7:04
Saturday came, she was in immense pain. She couldn’t walk. She couldn’t talk. She felt like she was having real contractions. She felt like he was coming. She asked me She’s like, “Should I go down to the ER?” I said “No, call the doctor.” I’m gonna be honest. I’m the type of guy I hate going out to the ER because all they’re going to do is keep us for six hours just to give you Motrin and Tylenol and send us home.

She called and he was like, “Oh, I think you’re gonna- I think you’re okay. But come on in. If you want to come on down, we can evaluate you.” So she went down. I think it’s probably about a half hour to an hour. Well, she had called me she goes “You need to get down here right away.” And I’m like what’s wrong?

Lee 7:45
Were you at work, or home with the kids?

Michael 7:47
I’m home with the kids.

Lee 7:48
Oh, you’re home.

Michael 7:47
I’m home with the kids on that Saturday. It’s probably like two something. I’m starting dinner. Actually, I’m just getting done with it. She was like, “Come down to the hospital, we need you here ASAP.” I’m like, “Why is everything okay?” She’s like, “I don’t know. Just come down.”

Michael 8:03
Now I gotta race to put some clothes on. Get two kids dressed. I’m doing 80 down the highway. I drop them off to the in-laws. I get down there. She’s crying. I’m like, “What’s wrong? What happened?” She’s like, “The doctors are gonna have to tell you.” I said, “Okay.” I waited about 10 minutes. The doctor came in, and she’s like, “The stitch broke. He forced his way through the stitch. Then we hurt her sack that went into her vagina.” So they’re pretty much like she’s having a stillbirth. I’m still trying to process.

I’m gonna be honest, I didn’t even know what a stillbirth was. I’m like, “Slow down. This is all confusing.” So she’s like, “The stitch broke. We thought it was gonna hold in. But it didn’t. It didn’t work out.” I said, “Is there anything we can do?” I mean, I’m like, we just had this done Thursday. I mean, I’m not gonna say that. Of course, you can’t guarantee that something is gonna work. I’m like you said this would work. Their like, “Unfortunately, he just broke through.”

Michael 9:09
After I asked, “Is there anything they can do?” They said “No.” But they followed up with “Also we’re gonna have to make a decision on what’s going to happen.” She said, “If the liquid in the sack broke in her vigina it’s toxic. Now, at this point, I’m thinking like, they’re telling me I have to choose between our son and her. I can’t make that decision right now. They’re like, don’t worry about it. We’re gonna, we have to admit her. We’re trying to get a room set up for you upstairs.

Michael 9:41
20 minutes later, we went up there. The doctor goes, okay, we’re gonna have to take out the stitch. So I’m like, Okay. It took them 20 minutes to half an hour to take out the stitch. Which in my opinion was way too long because the surgery only took an hour. So I’m like what’s going on you using a bunch of Using all these spec alone appointments, she’s screaming in pain after them finally getting it out. When he first went in he goes, um, I’m going to try not to break her water. It shouldn’t. But I’m going to try very carefully not too. So we said, okay.

Once he got it out, he broke the water, but he didn’t say anything to us. I see a bunch of liquid rushing from her. I can see her face that she knew her water broke. So we asked, “Did her water break?”. Dead silence for probably about 20 seconds. And they said “It did.” At that point, it was set in. All the emotions set in. The doctor’s left. They said, “We’re gonna go get the medicine to induce labor. We’ll be back.” It’s like sitting in a labor room with no EKGs hooked up to her. That was hard for me. They finally came back. Gave the medicine-

Lee 11:02
May ask, about how long did you guys have to wait until they came back? Because sitting with your thoughts, sitting with your thoughts is always just?

Michael 11:11
Yes, in our thoughts. Well, it was bad. We got-

Bianca 11:15
There like at four. Then they told us at four that we were going to be admitted. And then it took them to about seven that night.

Michael 11:25
We’re sitting pretty much in a labor room. Dead silence. The nurse is constantly asking if we need anything trying to process. Once that time came. The labor felt like the labor took an hour. We wanted to keep him in as long as possible, but he was ready to come. After he came out. That’s when our little bean was. He came into the world. He wasn’t alive. He passed away in labor before he came. And I think that was the hardest time. I’m sitting with a newborn who was 11.. What was he?

Bianca 12:08
Oh, he was 10 and a half inches long and he weighed 11.5 ounces.

Michael 12:14
So I’m sitting with him in my hand and I don’t even.. My hands are wide open. I don’t even know how to hold a baby that small. So it was very hard. We pretty much stayed in the hospital for a day and a half. Had him the whole time. Was it two days?

Bianca 12:33
Not only stated.. We left that day that morning. So he came at 1:13 in the morning, and we left by 10 o’clock that morning, the same day.

Michael 12:45
He was everything that we wanted. Unfortunately, it didn’t work out that way.

Lee 12:51
You think he looked just like you? Tell me a little bit about his features. Did he have lots of hair or did have a little bit of hair?

Michael 12:58
He didn’t have any hair.

Bianca 13:01
Like a little fuzz.

Michael 13:02
Yeah, little fuzz. Little fuzz up there.

Lee 13:05
He did have sort of nice, perfect little fingers?

Michael 13:11
Perfect fingers, perfect fingernails. Came out with his hands crossed. He he.. Everything on him was perfect.

Lee 13:22
Everything. Everything. Yeah. Just perfect. And it hurts that you couldn’t keep him.

Michael 13:29
He was perfect. He stayed with us the whole time. Luckily the nurse that we had was amazing. It seemed like she was there with us through her whole shift. She was bringing us everything. She was laughing with us, crying with us, rubbing our backs. She even set up a photo shoot for him. She put him in a nice Winnie the Pooh blanket, a nice blue knitted hat. She gave us the certificate of life because since he wasn’t born, we couldn’t get a birth certificate. So they gave us a certificate of life, which was nice. She signed it. The hardest part of it was leaving him at the hospital.

Lee 14:17
Yeah.

Michael 14:18
The hospital was going to set up a funeral service by– we would give them his remains. They would set up a plaque at a local cemetery with all the other babies and the other still babies. But we didn’t want it. We wanted to be in charge of how the funeral service went. So we actually set up our own funeral service.

Michael 14:41
I have two other kids. Now we couldn’t even tell them up until he was here that of what happened. We have an 11 year old daughter and a six year old son and even just explaining it to them was hard. It wasn’t fair. My son was ecstatic to have another brother to run around with and cause trouble. He took it the worst. To this day he just walks around just wishing his brother was here. So they finally got to meet Jalen at the funeral. We had immediate family there with a couple of close friends.

Lee 15:24
Now, I remember when we had to figure out our funeral services I had no clue what to do, like I hadn’t the foggiest idea how to go about planning for a funeral. And it really, if it wasn’t for my family, knowing a family who runs a mortuary. I wouldn’t know what to do. But I was like, well, I guess we could use these people. Because I grew up with these people.

How did you guys go about finding a service to use? How was that process for you? For me, it gave me a purpose. And I was so determined to do that. And I did it. Like, I need to do this, I need to do that I need to go down to the cemetery and need to find plots. And once I had done everything I was lost again. But that little rest gave me a purpose to do for my son. How was planning that for you guys? Was it just completely? I’m sure it was completely new to you. But was it confusing? Was it? Did it give you a purpose for a little time, or–

Michael 16:39
Planning that funeral was hard. We used a local funeral home. Both our families have used the same funeral home in the past, so we knew who to call. She was– the woman at the funeral home was very helpful, very supportive, throughout the way. Very patient with us. We didn’t know anything about planning a funeral. I still don’t even know how we got through. I don’t even remember anything.

She was just pretty much like, how do you what do you want him to wear? And I’ll take care of everything else from there. Which was very helpful. We decided to cremate him. We don’t plan so we live in Massachusetts now. But we were planning on relocating in one or two years. So we didn’t feel comfortable burying him and just leaving.

Lee 17:31
Yeah.

Michael 17:31
So now he’s in an urn in our room. We look at him every day. We talk to him every day like he’s here. We feel like he’s with us. One way we celebrate him after the funeral was we did a balloon release. Everyone that went to the funeral with us. We bought 24 balloons and everyone that went with us wrote a little message. Sharpied a message on a balloon and released it at a park. I think that helped me out a lot.

He came on February 1, of course Valentine’s day was right around the corner. So what we did was we wrote a note to him as if he was a long distance relative. It was also hard for us because actually our anniversary was on the 23rd of February. So it seemed like we didn’t even want to do anything for that. He was the perfect little man.

Lee 18:26
You’re about a month out-a month and a half out at the time of recording. How has your recovery been? How have you guys been? It’s still so raw, it’s still so fresh for you guys. And at the time of recording, we are still in the Covid 19 pandemic. So there’s still all those, you know, social distancing. Here in Utah, they’re sort of easing up on the, you know, limiting the social gatherings to small groups.

You guys mentioned you’re in Massachusetts. How have you guys been able to recover? I don’t know. You know, of course, family will always be there for you. But, you know, how has your personal recovery been? Michael, how has your wife Bianca’s recovery been? How has your other children’s recovery been? You mentioned that your younger son is just distraught and really missing his brother. But how are they doing?

Michael 19:29
My personal recovery? Every day is different. When you feel like okay, I’m starting to make ground. I’m starting to recover, I’m starting to heal. You get something as small as seeing– like going out to the store you see a baby in a stroller, or a baby crying and you feel like it just you feel like you’re just ready to go drop it and leave the cart right where it is and go on home.

Lee 19:57
Yeah, yeah,

Lee 19:58
Bianca’s recovery has been worse. After he came, she wouldn’t eat for two weeks, there she wouldn’t eat, she was barely drinking. Luckily, she started to ease up a little bit, we have a strong support system behind us. They are there for us whenever we needed whatever time, whatever the request was, someone would come right over.

Lee 20:30
That’s a big, that’s a blessing. That’s a huge blessing.

Michael 20:33
Huge blessing. The kids recovery, we all kind of got to mourn together, which is good. Like, sometimes a person would want to or unfortunately, a lot of the mourning came in the middle of the night. While everybody’s sleeping trying to get the kids remote learning up or something crazy, we only got to really relax at night. The more so the mourning, a lot of mourning came during the morning, our early early morning hours.

It was nice for everyone to wait, everyone would hear Bianca cry, and we all would wake up and go consult her cry with her. So I think this definitely brought us together, closer, closer together. Um, the kids are slowly gradually getting better. Um, of course, they have their days where they’re crying, or they say, you know, we miss Jalen. But you know you just try to say, he’s still with us and we’ll see him again.

Lee 21:38
I was just thinking when you were talking about the mourning and at nighttime, you know, because the day you’re so occupied with so many other things, once you’re finally able to sit and be at ease and calm, and then the emotions overtake you. I just remember the three o’clock in the morning just sitting and weeping. It’s so beautiful to be alone and in mourning and having somebody come and then comfort you. I remember those–

Michael 22:14
Probably the best, the best feeling.

Lee 22:17
I do remember that. Now, Michael, there’s a support group that we go to. And they talked about how do you parent a child who has passed away? And Winter. My, you know, Winter? And we talked about it? And how do we parent our son who’s passed away? And we’ve set up you know, we have found some ways to parent through service through stuff like that.

And I know this is sort of an on the spot question, but have you guys thought about how you are going to parent Jalen? Or is there anything that you were like, you know, we would like to like the balloon, the balloon release? Or when you wrote the note to him? Are there other things that you guys do to quote unquote, to parent him?

Michael 23:09
Yes, I think we try to include him like we plan on taking family photos. We’ll bring his urn with us. We’ll meet, we’ll have like a boy balloon. Anytime we will, we’re planning on taking the trip. We take trips every summer. So we plan on bringing him with us. Not just leaving them in the house.

Lee 23:37
Yeah.

Michael 23:38
I think it’s just pretty much including him and stuff like that. This is the biggest thing for us. Will we talk as if he’s sitting right next to us all the time.

Lee 23:50
Well, thank you. Thank you. Thank you. Is there anything else that you would like to tell us about your son Jalen, or how you and Bianca are doing or anything in particular?

Michael 24:06
Me and Bianca are just trying to get through this. We appreciate life differently now. Um, we always seem like we’re telling each other and other family members that we love them all the time. Because you never know when’s the last time you’re speaking to someone you just never know. So, I think this is definitely an eye opener to just appreciate being in the moment and appreciate everything.

Lee 24:36
Like you said, you never know. And harkening back to the very beginning of the interview you had said you never even heard of stillbirth.

Michael 24:47
Right.

Lee 24:47
But now you are so much more willing to show love to those that you love and telling them that you love them.

Michael 24:56
Definitely. We are actually in a support group too, called empty arms, they have zoom meetings all the time. Bianca’s in it a lot. I’ll sit next to her. I’m not really comfortable yet being in the zoom call in front of everybody, but I think finding that group of support outside of family to help just means I know they’re there.

After the two weeks, when you said it’s not like it’s dried up, but when that’s not there anymore, there’s definitely the support group that’s there for us that can relate all the time. Any little triggers we have, we can tell them and they say it’s okay. It’s normal, thinking over this idea or ways to maneuver a conversation. When talking about it. Facing tough questions facing the people who asked why, or how has been huge for us.

Lee 25:58
It really is amazing how a support group who have gone through what we have gone through and what you have gone through is able to sort of help you navigate, like you said. Because people are going to say things in pure innocence, that you’re just like that was not something that you should have said. Having that well of knowledge thing. Yeah, you know, this is a way that you can address that.

Michael 26:32
Right.

Lee 26:33
So I’m glad I’m glad at least you’re sitting next to Bianca during that so well Michael, thank you so much for coming and telling us about your wonderful son. Jalen. Thank you and I hope your healing path is one that you were able to embrace and come to follow you.

Michael 26:55
Thank you.

Transcribed by https://otter.ai

Filed Under: early term stillbirth, stillbirth Tagged With: stillbirth

Mom Bianca’s Stillbirth Story of Jalen During The COVID Pandemic at 20 Weeks

February 1, 2022 by Winter

Mom Bianca tells of her pregnancy with her 3rd child, Jalen Jeremiah, and complications with her cervix, which led her medical provider putting in a cerclage around 20 weeks. Some of the stitches had come out, causing Bianca a lot of pain and the beginning of labor. Jalen did not survive the birth and was stillborn on February 2021, likely due to the umbilical cord around his neck. Her pregnancy, Jalen’s birth, and funeral were all during the time of the COVID pandemic.

Watch here (YouTube):

Listen here (podcast):

Time Stamps:

  • 0:00 Jalen Jeremiah
  • 1:54 Introduction
  • 4:30 Pregnancy
  • 7:29 Cervix Funneling
  • 8:45 Cerclage
  • 11:16 Emergency
  • 15:27 ER
  • 21:28 Birth
  • 32:10 Funeral
  • 35:06 His name
  • 41:55 Going home
  • 44:27 Support group
  • 48:02 Momentums

You might appreciate these other episodes:

  • Watch/listen Michael’s (Bianca’s husband) birth episode of son Jalen: Click here
  • Watch/listen to Bianca’s and Michael’s advice episode after Jalen’s death: Click here

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  • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
  • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
  • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.

Full Transcription:

Bianca  0:00  

Jalen Jeremiah. 

Bianca  0:02  

I remember, he was so perfect. He had a little tiny button nose, 10 toes, 10 fingers. I remember holding him in my arms and just smelling him. He was just so tiny and little. I felt his cheeks and it was so soft and velvety. That Sunday that I had him. I remember, it was a very cold day, and it looked like it was going to rain. I remember getting to the hospital, anxious, very anxious, not knowing the outcome of the situation and how bad everything had turned. But I just remember holding him and he was just so perfect. He was just like my son, just a tinier version of my son. He resembled Michael a lot. He had his exact feet, the same toes. He was just so little and just amazing.

Winter  1:13  

Welcome to Still  A Part of Us a place where moms and dads share the story of their child who was stillborn, or who died in infancy. I’m winter.

Lee  1:20  

And I’m Lee, we are grateful you joined us today. Please note that this is a story of loss and has triggers

Winter  1:25  

Thanks to our loss parents who are willing to be vulnerable

Lee  1:28  

and share their children with us. If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

Winter  1:37  

Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us. They’re still a part of us. 

Winter  1:54  

Bianca, thank you so much for coming on the podcast today. I am just so impressed with you right now. Your strength and your willingness to share Jalen with us today. So thank you for coming on. Can you tell us a little bit about yourself, who you are, where you’re kind of located at least in the country and what you do on a day to day basis?

Bianca  2:16  

Yeah, so I am a medical claims analyst. I live in Massachusetts. I have two children. I have an 11 year old daughter Cynthia, and a six year old son named Josiah and they are wonderful children. They were looking very forward to being you know, big brother, big sister. We were just wanting to expand our family and grow and you know, become closer to one another.

Winter  2:47  

And anything you guys like to do in your spare time as a family, or as yourself, what kind of hobbies do you have?

Bianca  2:52  

I like gardening as a family, or we tend to go on road trips. We do a lot of road trips every year to go somewhere new. So we do that together. We enjoy watching movies together and just going out and enjoying each other’s company.

Winter  3:10  

That sounds so fun. That’s wonderful. And your husband is Michael is that right? 

Bianca  3:15  

Yes.

Winter  3:16  

How long have you guys been together? 

Bianca  3:18  

We’ve been together for 14 years. 

Winter  3:20  

That is awesome. 

Bianca  3:21  

We’ve been together since we were 14. 

Winter  3:25  

Yeah, that is awesome. So you guys were junior high school sweethearts.

Bianca  3:30  

Yeah pretty much. 

Winter  3:33  

That’s awesome. That’s wonderful. Well, and what area are you guys living in? Oh, did you guys already answer that? You guys probably answered that didn’t you?

Bianca  3:45  

Yeah, so we live in Massachusetts. Not too far from Boston.

Winter  3:49  

Awesome. Okay. And you guys have lived there in that area most of the time you’ve been together? 

Bianca  3:56  

Yes. We both grew up here. 

Winter  3:58  

Okay, wonderful. And so as to give a little bit of context for our listeners. Can you tell us how long ago Jalen was born?

Bianca  4:09  

So Jalen was born Monday, February 1 of 2021. So a little over a month ago.

Winter  4:15  

Yeah, it is so new for you guys. So I thank you so much for coming on today. Tell me… so you’ve told us you have two other kids and how did this particular pregnancy go compared to your other pregnancies that you’ve had?

Bianca  4:30  

This pregnancy was by far the best pregnancy I’ve ever had. 

Winter  4:36  

Really? 

Bianca  4:37  

Yes, I’ve had no complications at all. No morning sickness. It was just, like, amazing. With my other two children. It was very complicated. I was sick all the time. I want to say like all three trimesters. I was very sick. I couldn’t really keep anything down. But this pregnancy was just different. I was able to eat. I was so happy. It was amazing. Like, I really didn’t think this would be my outcome based on how amazing this pregnancy was to me. Yeah, he was a very good baby. I didn’t have any type of aversions, food aversions, anything like that.

Winter  5:24  

So really good pregnancy, oh man. Were you guys planning on having Jalen then? Was that like a planned pregnancy? 

Bianca  5:33  

Yes, he was. 

Winter  5:34  

Okay. So and No. Did you guys have any issues getting pregnant? Or was it pretty? standard?

Bianca  5:40  

Um, yeah. So we actually became pregnant after two months of trying. I was on birth control. Then we decided to come off. Two months after I came off, I got pregnant with him. We had a positive on September the 28th.

Winter  5:58  

Oh, wow. That’s awesome. So you, so no issues and it was kind of one of those things where it just kind of worked out right?

Bianca  6:06  

It did. Yes. 

Winter  6:07  

Yeah. That is, that’s so frustrating when you’re like, this is not what I was expecting it to be though. So, tell me a little bit about how things progressed then. You guys found out in September of 2020 that you were pregnant and everything was going really well with the pregnancy sounds like you were quite comfortable and excited. Your kids were excited. You guys were excited. So that’s wonderful. All of the medical checkups and everything, how did those go with it? Was there any sort of indication that anything was an issue?

Bianca  6:44  

No, so everything was fine. All my appointments were perfect. I have my appointments, my checkups, the baby was growing, and very healthy. Everything with me was fine. I was feeling good. It was up until my 20 week anatomy scan. Actually it was before my 20 week anatomy scan. So I ended up going to the hospital for a checkup the day after Christmas. They want to see me every two weeks because of my history with both my two previous pregnancies. My son was a preemie and he was born at 32 weeks. 

Winter  7:29  

Okay. 

Bianca  7:29  

And so they were concerned as to whether or not I would go into labor early this pregnancy. So they wanted to monitor that very closely ahead of time, so that they would be able to detect once my cervix started to dilate. So I was going in for my checkups every two weeks. I went on January 12th. For that was the beginning of that two week period, they wanted me to start going.

When I went to that appointment, they did a cervical scan, basically to see if my cervix started to dilate at all. And they checked the baby and he was fine growing healthy. At that appointment, everything was fine. When I was there. Two days later, I got a phone call from my midwife and she said that she’d noticed my cervix had started to funnel. So I really wasn’t sure what that had meant. But she basically said that if you look at a funnel, the way that a funnel is shaped is how it has a narrow end. Then the top of my cervix basically the baby was starting to push down. 

Winter  8:45  

Okay.

Bianca  8:45  

So eventually my cervix would start to open. She noticed that it began to funnel and they wanted to go over my options on whether or not I wanted to take progesterone shots, or if I wanted to get a cerclage put in place. Basically what this cerclage does is it’s like a stitch that stretches your cervix shut. Then it’s supposed to prevent preterm labor. I had told her that I wanted to talk to my husband and I had an appointment coming up two weeks later for January the 26th. I wanted to, you know, think about it and then let her know at that appointment whether or not I wanted to do either the cerclage or the progesterone shots. 

Bianca  9:34  

At that appointment on the 26th I had my anatomy scan. So they did the anatomy scan. They checked the baby and everything first, and he was fine. I actually got some ultrasound pictures where he was actually smiling. 

Winter  9:50  

Oh, oh, that is wonderful. 

Bianca  9:52  

Yeah. So that made me happy. Then she checked my cervix and I remember her pushing on my stomach. I can see because I have the screen in front of me and she was pushing on my stomach. As she was pushing, I saw something like an opening, every time she would push, I would see an opening. So I was like, “Is that my cervix?” And she said, “Yeah, you see that?” And I’m like, “yeah, that’s really weird.”  It was opening really big. So I got scared. She had stepped out and said she was gonna go get one of the high risk doctors to come in.

She had left. And at that point, I didn’t think anything of it because I’m like, the baby was fine. His heart rate was good and he was moving around. He was doing everything he was supposed to be doing for his gestational age. 

Winter  10:42  

Right.

Bianca  10:44  

The doctor had come in and they told me at that point, I needed to go over to the hospital to get an emergency cerclage put in because I was beginning to dilate and eventually he would come. I was nervous about that. I remember calling Michael. Michael was at work that day. I was like, I don’t want to do surgery. I went over to the hospital. They didn’t actually do it that day. They ended up scheduling it for two days later. I had the surgery done on the 28th of January, which was a Thursday

Winter  11:14  

Okay.

Bianca  11:16  

That Thursday, I went to the hospital, they put me to sleep, I was under general anesthesia. I remember the doctor that I had, it was just not a good experience. I felt like the communication was very off. So I had a ton of questions. I felt like my questions weren’t really being answered as they should have. 

Winter  11:39  

Yeah. 

Bianca  11:40  

At the time, Michael wasn’t able to come in because of COVID, I had to go for myself. So I got dropped off to the hospital. I remember just being frightened and I had questions. I felt like my questions weren’t really being answered. So they gave me the IV and I was getting wheeled into the operating room. I remember, they were telling me that I would fall asleep soon, because the drugs that they were giving me were supposed to make me go to sleep for the procedure.

I remember the doctor saying, “Oh my gosh, Bianca, this is going to be very risky.” And I was trying to get my words out to ask what’s going on, but I felt myself going to sleep because they had given me the medication already. I remember waking up in the recovery room, and I was like, is my baby, okay? They were like, yeah, the baby’s okay. It was very risky, because the membranes were beginning to come down and to my vagina. They had to basically push it back up and stitch it. It was risky, because during the process, there was a potential risk that he would break my water by accident. So luckily, everything was fine. Surgery and everything was a success. 

Bianca  13:01  

I waited at the hospital for a couple hours until I was able to recover. Then my mom came to the hospital to pick me up and brought me home. That was on a Thursday, so the Friday I remember being in so much pain, because of the surgery. So I thought, Oh, okay. I thought it was because of the surgery, I was bleeding, which they said would be normal because they tampered with my cervix. They said that the pain was normal because you know, they were messing with my cervix as well.

I remember saying to my girl, “I’m in so much pain, I’m cramping.” I had my previous son naturally, so I knew what the contractions felt like and it very much felt like contractions to me. I remember calling the doctor and I was explaining what I was feeling. They were telling me “Oh, no, that’s normal. Just take a Tylenol, you’ll be fine.” I had a checkup that Tuesday. So I was just like, okay, and I ignored taking the Tylenol. 

Bianca  14:12  

Saturday came and I’m just like, I don’t feel right. I had called the Doctor again and they have prescribed some type of medication that’s supposed to stop the contractions that I was having. I remember reading the back of the medication and I was like this says not safe to take in pregnancy. I was iffy about taking that. I was very iffy and my doctor reassured me that it was completely safe. He said he gave me a low dose and that it would help with the contractions that I was experiencing. I took the medication even though I had doubts from the beginning about taking it. 

Bianca  14:54  

I took that and then Sunday, everything just went downhill. My contractions were more intense, I started to feel a lot of pressure. I remember saying to Michael, “Should I go back to the ER and get evaluated.” And he was like, “Make sure you call your doctor first and see what the doctor says. I remember calling the doctor, this was the same doctor that did the surgery. He was just like, “Oh, I don’t think anything is wrong. But you can come in and we can evaluate you and see what’s going on.”

Bianca  15:27  

So I remember going and I had to go by myself again, because of COVID and I had got there and I could barely walk. It was so intense that I could barely even stand up straight and walk because the pain kept coming very intense, very strong and quickly. So they checked me in and I remember going to the back you know, where they called you in to assess you and all that. Then the nurse was talking to me, and she was asking what type of pain I was feeling. She wanted me to change into a Johnny and sit down on the stretcher that they had there. I remember telling her, “I can’t even take my clothes off. I’m in so much pain, I can’t even take anything off.”

She helped me and I remember another nurse came in and they were going to do a speculum exam, just to see what was happening. They did that. I remember usually speculum exams her a lot for me. I remember they put the speculum, but it was barely in. They both looked at each other. Then they said that they had to call a doctor. I was very scared. I had turned to the nurse. I was like, “Is everything okay? “And she was like, “Well, the stitches came out and your water stack is right here. Like it’s right there.” I’m like, “No, like, it can’t be there.” I was only 20 weeks and six days that Sunday, I was gonna be 21 weeks, the following day. I was just like, “No, this can’t be.” So I was like, “Can you please call my husband?” So she was like, “Yep, you’re going to be admitted.”

Bianca  17:15  

The doctor came down and the doctor was very blunt. He came to the room and he said, “You’re 20 weeks and six days, we’re gonna have to admit you and get this baby delivered, there’s going to be zero to little chance of survival for him because of his gestational age.” I remember saying to him, “Please hold, please just wait.” And I’m like, “Even if he comes this early, is there any way that the NICU you can, like, you know, help him out? Or like even get involved?” He said “No, because babies that little don’t have a chance of survival and the NICU you will not step in until a baby is at least 22 weeks.”

Even though he told me all that I remember just being there and I was in a state of shock. This can’t be my life right now. Like, there’s no way I didn’t want to believe it. For some reason, I had some hope that what he was saying was wrong. 

Bianca  18:19  

I remember the nurse had come back and she’s like ,”We called your husband, he’ll be on his way.” I remember Michael sent me a text and he was like, what’s going on, and I just couldn’t even respond to him because I didn’t know myself. I, for some reason, was just completely numb. I was completely numb to the situation. I just didn’t want to believe it. So, after that they brought me upstairs Michael came and the doctor was explaining to Michael everything that was going on. I felt very alone at that moment. I felt very defeated.

Bianca  19:04  

I went upstairs, and I got admitted. Everything just happened so quickly. This was like on a Sunday afternoon as well. Everything just happened so quickly. They first had to take the stitches out before I could deliver because they didn’t want it to interfere with the labor process. I remember, I didn’t want an epidural. I didn’t want to take any drugs either. I wanted to feel everything. You know what I mean? Like because I wanted to remember him and I didn’t want to be completely numb.

I knew at that moment I was emotionally numb, but I didn’t want to be completely numb to the situation. They took the stitches out and that was a very painful process for me. Took about 20 minutes. For some reason my water was still intact. I was so hopeful that maybe they can take the stitches out and I can be on bedrest, you know, like, maybe they can keep me in the hospital and I can stay here. Everything can work out, maybe I can get to 22 weeks or they can possibly save him. 

Winter  20:19  

Yeah. Did the doctors give you any sort of.. it was.. there was no hope. They basically said there was nothing to do.

Bianca  20:29  

I felt like they pretty much just wrote him off. At that moment. From the time I was in the ER, I felt like they pretty much just wrote him off like, she’s going to deliver and that’s going to be it. I don’t feel like they’ve done everything they could have. I felt like the doctor that I had was very harsh. When he was taking the stitches out, I wanted him to be careful, because I knew that my water was right there. Like the bag was right there. He was just so rough.

I remember, he put like an awesome object that looked like a hook to pull a stitch out. I just remember this warm sensation falling down my leg and I’m like, “Did you break my water? Did it break?” Everybody in the room just got quiet and I just started bawling. 

Bianca  21:28  

After that, they gave me some medication to get my labor to start to progress. I delivered Jalen on that Monday morning at 1:13 in the morning. Labor was very intense, very much real and painful. I had no desire to push because I just wanted to be pregnant for as long as I could be pregnant. I wanted to stay pregnant for as long as I could. I remember having this nurse by my side. She was very amazing. She was like an angel sent from above like she stood by my side the whole time. She rubbed my back, she laughed with me and cried with me. She was just so amazing and made the process and my experience so much more special. Not once did she leave me at all and I just felt like she was like a mom to me at that moment.

I remember pushing him out and I was on all fours. It was so difficult for me. I had no desire to push because I wanted him to stay in. I felt like he was safe there. He was safe with me and then once he came out it would just be over with and that’s the part that I struggle with the most. I remember him coming out and I took that last and final push. He came out and the room was quiet. I couldn’t see him because again I was on all fours and I remember turning to the nurse, “I was like is my baby okay?” She looked at me and she said “He has no clothes.”

Bianca  23:47  

I turned around and sat down. She wrapped him in a blanket and handed him to me. He was so perfect. I remember giving him a kiss on his cheek and telling him how much I loved him and how I was sorry because I felt like my body failed him. I had so many plans for him. I was prepared. It hurts me so bad because I will never get to see his eyes, I will never get to hear his cry, or feel his little fingers wrapped around my finger at all. The worst experience was of course the labor, but saying my goodbyes to him at a hospital and leaving him there knowing that I was going home and not being able to take him with me. Being on a labor and delivery Ward with other pregnant women, you know, they get to see their babies and I leave mine behind.

Bianca  25:20  

He did have a little bruising on the left side of his cheek. They did say that it was because the umbilical cord was wrapped around his neck. 

Winter  25:31  

Oh, really? 

Bianca  25:33  

Yeah. And so once my water had broken, with every contraction that I was having, and one stroke to get tighter around his neck. I feel like I just let him down like my body failed. This is like a meeting that we both wanted. We both agreed that we both were so happy about it. The kids are so happy to have him and then having to explain that he’s not going to be here anymore really broke me down. Especially with my six year old having to explain to a six year old that was so excited that he was going to help a brother that he’s not going to physically be here with us was hard to explain.

Bianca  26:32  

Shortly after I delivered him. We decided to go home that day. It was a very bad snowstorm. I didn’t want to stay in the hospital. They did say I can stay for two days. I remember saying “No, I don’t want to stay here anymore. I just have to leave.” I kept seeing pregnant women, I kept hearing babies crying in the hall and I just wanted to leave. 

Bianca  27:06  

They did ask me how I wanted everything to go in terms of Jalen and I told them that I would reach out to a funeral home because I did want to have a service for him. Um, the hospital said that they do a program basically where they would dispose of his body. They would dedicate a plaque in our cemetery nearby. At that moment, I was just like, you know what I don’t want to… I didn’t want to do that. I wanted to be in charge of what I did with him with his body. You know, I don’t feel like we were going to stay in Massachusetts much longer. We plan on relocating soon. I would feel so guilty of not being able to, you know, have his remains with us and having him here in a cemetery where I wouldn’t be able to visit and I just felt very terrible about it. 

Bianca  28:14  

We both agreed to get a funeral home that we both were familiar with. They picked him up from the hospital. We ended up getting him cremated and we have his ashes and an urn in our room that we keep close to us. We created a memory table for him. It was like his pictures around and his Teddy bear that he was holding at the hospital. We have his blanket. We created a Memory Box for him with a pregnancy test and first ultrasound pictures of his blankets, his teddy bears that you know the blanket he was wrapped in and the teddy bear he was holding and the first outfit that we both bought for him. We have a lot of pictures that we took in the hospital that we’re able to look back on. I ended up getting those printed out and put that in his memory box. I’m so grateful that the nurse offered to do a little photoshoot for him. 

Winter  29:29  

Oh wonderful.

Bianca  29:30  

Yeah, she was able to get professional pictures done for us that we have to look back on. She got him dressed up. She put on this really cute outfit on him. It was like a little baby blue shirt and she wrapped him up in a little Winnie the Pooh blanket where he had a baby blue knitted hat on to fit him because he was so tiny. He was 10 and a half inches long and he was 11.5 ounces. Very tiny, I was able to hold him in my hand. He was so tiny.

I was just grateful to have those pictures to look back on. You know, I really encourage pictures. Taking pictures, because at that moment, I didn’t want to take pictures, but I’m glad that we did. Because now, we have pictures of the three of us. It’s something that I cherish and look at every day. We had a funeral service, and the kids were able to see him for the first time there. They weren’t able to finally process it. Seeing him physically. 

Winter  30:52  

Did you end up calling or letting your kids know what was happening when you guys were at the hospital? Is that what happened?

Bianca  31:00  

Yeah, so Michael ended up calling my daughter. She kind of knew when I had left to go to the ER, the night before. She knew something was wrong. When she noticed that Michael had to leave out. He had to end up bringing the kids to my mom’s house and said that he had to go to the hospital with me, told her that and she knew she was texting me with “Everything, okay? I wasn’t responding, because I didn’t want to worry her. He let her know that this is what’s happening and the baby is not going to make it. She at that moment had broken down which broke me down even more. My son just didn’t understand. 

Winter  31:55  

Yeah at the funeral, so they got to meet him? Was it just your family? Did any of your other immediate– like your mom, was she able to come and see him and meet him?

Bianca  32:10  

Yep. So we had a more intimate service. It was just like, immediate family and some friends. Yeah, really close friends. Michael had two friends and I had my two close friends. They did it where they had us come like an hour earlier. So me, Mike and the kids. We had our time, our one on one time where we, you know, can have the kids process everything and see him and ask any questions they needed to ask.

Winter  32:52  

How did they take it?

Bianca  32:54  

My daughter was very hurt. My son was upset. I remember he had said, “You guys promised I would have a brother.” That was hard to explain to him like you still have a brother. He’s just not here. He has to be with God now and Heaven and he’s watching over us. He didn’t understand that concept. He didn’t understand why he had to go. And it was hard for me to explain to him why he had to go as well. I still struggle with that till this day. You know, he goes up to his urn, and he’ll talk to the urn, and help pick it up. And I’m like, “Hey, put that down.” So what I did was I went out to build a bear, and I ended up getting them a teddy bear for both of them. One has his heartbeat from the ultrasound in the arm and so we had a ton of clothes that we had purchased.

We were preparing, buying things little by little. I remember putting Jalen onesie on the teddy bear. And so he’ll go and he’ll push the teddy bear and hear the heartbeat and it plays a song, which is a song that we played at the funeral. He’ll go, he’ll hug it, he’ll play it and every now and again he’ll shed a tear and he’ll say, “I miss Jalen”, and I’m like, Yeah, I miss him too. It’s very hard. He has his days where one day he’s fine. And then the next day he’s breaking down my daughter as well. She has her days or some days it’s easy for her and some days. She’s hugging her teddy bear and looking at his pictures. 

Winter  34:50  

It’s so hard for the siblings. It’s yeah, yeah. Can you tell me why you guys named him? Jalen is that a family name is that I? Is that just a name you guys have really liked?

Michael  35:06  

We were throwing, what seemed like 1000 names out. We probably said about 1000 names 999 were getting swatted by each other? 

Winter  35:18  

That’s what always happens. 

Michael  35:19  

Yeah, so I guess Jalen came up and we both we’ve finally agreed and we stopped that that because if not, we were just-

Bianca  35:30  

So just read I really like the name Jeremiah. 

Winter  35:35  

Hmmmh

Bianca  35:35  

Which is his middle name because my daughter’s name is Sanya. My son is Josiah and then Jeremiah, you get the ring. 

Winter  35:42  

Oh, there’s definitely that either, and I like it.

Bianca  35:47  

So I love the name Jeremiah. Josiah is also a biblical name and so is Jeremiah. So I really wanted to keep back on as well as Michael. So I’m like, look at we’ll have all the boys in the house have a biblical name. Michael’s like, “I just don’t like that for a first name.” So first he mentioned Jaden, and I’m like, I don’t like Jaden too much because we have family members named Jaden. So I was like, what about Jalen, and so my mom’s name is Juliene and so she was like, yeah, Jalen, that’s perfect. She’s like, yes. So we ended up naming him Jalen Jeremiah and we both agreed to that. 

Winter  36:35  

It’s got a nice rhythm.It’s got a nice rhythm to it. I really like it a lot. 

Bianca  36:43  

Thank you. 

Winter  36:45  

So you guys have a nice little kind of a memory wall. A Memory Box for Jalen. Is there anything that you guys, what other things that you did during the delivery and even at the internment? Is there anything that you wanted to do? That was really special that you wanted to kind of remember him by? It sounded like you guys had a special song that you played for him too. During the funeral? 

Bianca  37:12  

Yeah, so we played Surrender by I think her name is Natalie. Um, so we played that song and it’s a really heartfelt song. My sister created a slideshow for us that we played at the funeral as well. So it was like, the moment we found out we were pregnant with the pregnancy test. We got those on camera. We were able to throw in his first ultrasound where they confirmed that, you know, there was a little Bean that was his nickname. We all called him Bean. Our announcement photo, we announced our pregnancy on Christmas Day. 

Winter  38:01  

Oh, fun. 

Bianca  38:03  

Yeah, so that was exciting. For us, everyone found out on Christmas Day, and I couldn’t hide it anymore at that point. It was like either I told them on Christmas Day, or they’re gonna just wonder what’s going on because my stomach was starting to poke out too much. Usually, like Valentine’s Day, He was born in February, the first and Valentine’s Day came. So what we did was go out and we bought a card. It was like a card for a loved one that’s far away. I bought him a card and wrote everything I was feeling at that moment in the card for him. I think I want to keep that going on holidays, like, include him and stuff like that, and continue to talk about him and, you know, plan for different milestones that he would have reached with our due date coming up.

I know it’s gonna be very challenging for us, but I want to do something in remembrance of him on that day. Whether it’s to go out and do something in memory of him or do a balloon release. I know at the end of the funeral, we went up to the park close by our house and we all let go–We wrote on a balloon, wrote him a message and we said a balloon release and let it go for him. 

Winter  39:31  

That’s awesome. That’s, that’s so that’s a fun thing to do. Yeah, send a message. Right.

Bianca  39:40  

I think he sends us a lot of messages too, because I, I don’t really I can almost feel his presence with me. After I gave birth, I still feel like I’m pregnant. Like even sometimes I’ll sit here and I feel like I can still feel him kicking. It’s so weird to me because it’s like I’ll look at Michael I’m like, I feel pregnant. Like, I feel like he’s here. My stomach, I can feel him moving like, it’s, it’s the weirdest thing. I remember one day I was crying. And I just wanted him, you know, just couldn’t understand why I wanted him here so bad. My TV just shut off, or I’ll come across like a name. I’ll be working because I work from home and I’ll come across a name of a patient and it’s Jalen, and it’s just like, my baby is trying to like, talk to me. Let me know that he’s okay. 

Winter  40:42  

Yeah. Like, you know, he shows up every so often.

Bianca  40:48  

Yeah, I feel like he’s trying to let me know. It’s so weird. I do. I do try to like, talk about him. I feel like it helps me a lot to like, continue to talk about him and share his story. I just wish that some days, I wish I could have had the chance to tell them how much I loved him and how much he was wanted and how much we all needed him. Especially me. I felt like I really needed him at this moment in my life. I wanted him more than anything. If I could have done anything to save him, I would have without a doubt. The moment I hit my second trimester, it was on game like I started going shopping. We had Michael put his crib up. We got the stroller, the car seat, the clothes, everything, we got everything but diapers and formula. So that was hard. That was very hard. 

Winter  41:54  

Yeah. 

Bianca  41:55  

I remember the day that I ended up leaving the hospital. I said to Michael, can you get somebody over the house and take that crib down and take the car seat and take the stroller and just get it out cause we had his nursery set up. I didn’t think I could come back home to that all being there. So I ended up getting dropped off at my grandparents house. Michael had called somebody and they took the crib out. We ended up donating it to a women’s shelter. I just kept his clothes. The only thing I did keep was his clothes. I haven’t gotten the courage just yet to get rid of any of his clothes. They’re all still packed away in his drawer.

As far as everything else, we got rid of all the big stuff that I just wanted it to go because I didn’t think I had the courage to walk into his room and see all that stuff there knowing that he wouldn’t be here with us and he wouldn’t be using any of this. It was his stuff. It just broke me down to even think about going home and all his stuff was set up and ready for him it tore me apart. So I did tell Michael to take that down. But the dresser with his clothes in it. Leave the dresser, everything else you can take, the stroller and the car seat. We didn’t throw away the box. So we were able to take that back. I just wanted it gone.

Yeah, I still have his clothes that I plan on keeping until it’s the right time. I don’t think it’ll ever be the right time, but it gives me comfort, being able to look at them. And you know, it gives me something that we bought for him. So I don’t really feel comfortable just giving it away just yet.

Winter  43:54  

Yeah. And you, you should hold on to it as long as you need to. Because you know what you might need your kids might need to dress up their Build a Bears in a onesie or two. So yeah. Now is there anything else you would like to tell me about his birth or anything that you want to remember about him?

Bianca  44:18  

Oh, yeah, so the hospital has a program, or like a support group called empty arms. 

Winter  44:26  

Mm hmm. 

Bianca  44:27  

They reached out to the organizer of the program. And I remember while I was in the hospital, she reached out to me and I remember just looking at my phone and I’m like, I don’t want to talk to anybody right now. I can’t explain anything about what just happened. I don’t even want to talk about any of this right now. So I ignored her for a couple of days. And she kept reaching out and eventually I opened up and I let her in. And she has some volunteers that go to the hospital. They’ll do things for the baby, which I’m so grateful for.

They were able to make us castings of Jalen’s hands and his feet. I do have that with his footprints and his hands to look at and have like a visual. That helped me a lot in this grieving process, every now and again, I’ll go in that box, and I’ll pull out the casting, then I’ll like, rub his feet and just look at them and look at his little toes and his hand, they were balled in a little fist. I just look at those. I’m just grateful that I had that and that support group. They do have meetings where I’m able to, like, have virtual meetings with other moms that went through the same thing. We’re able to share our experiences. I feel like it helps a lot to know that you’re not alone in the situation.

Before this happened to me, I never really thought about this like until it happened. Like, I knew this kind of stuff happened. But I didn’t know it happened like this, or, you know, like, I hear other stories and stuff. It’s just like, wow, it’s so yeah, the emotions are so raw and so real. I’ve had other losses in my life, but nothing compared to this type of loss. This type of loss was something that I felt like, it hit me deep down. Like, I know, every loss is painful. But this type of loss was something that was just I felt like I lost a part of myself, the day that I lost Jalen. And I don’t feel like I will ever be that Bianca, that I was in September 2020.

When I found out I was pregnant, I will never be that person again. The day that I lost him, I lost myself. Like he took a part of me with him. I feel like that’s the saddest part because I really, I had so much hope for him. I just, I plan for everything when you lose a baby, not only plan for the baby, but you plan for their future you plan for, you know, their first solid food and the first walks and all that. I won’t get to experience any of that with him.

Winter  47:58  

Yeah, it is. It’s devastating.

Bianca  48:02  

But yeah, it was definitely grateful to have the momentums that I did get for him and the pictures that I do have, that I cherish every day and you know, trying to carry on his memory and by creating that memory table, and we both have necklaces, in remembrance of him. And so we wear this every day. I haven’t taken this off at all.

Winter  48:33  

Yep, I know what you’re talking about, that’s what you do. 

Bianca  48:39  

Yeah, so I think that’s my little bean. 

Winter  48:43  

I love that. I love that. Thank you so much for sharing his birth story with me today. I know it’s not an easy task to do that, but I hope that it has helped your heart and I hope it has. Well you’ll have this memory of it with you so, so thank you again, thank you again, Bianca, for coming on today. We will talk to you soon. 

Bianca  49:10  

Thank you, thanks for having us.

Transcribed by https://otter.ai

Filed Under: birth story, early term stillbirth, podcast episode, stillbirth Tagged With: stillbirth

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We're Winter and Lee Redd. Because of our sweet son Brannan who was stillborn at 38 weeks, we created this place where other moms and dads can share the birth story of their baby that was stillborn or who died in infancy.

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