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podcast episode

Owen David | A Mom’s Early Term Birth Story and Baby Death at 26 Weeks

February 7, 2022 by Winter

Lori Ann tells of her journey through infertility, miscarriage, and complications with her next pregnancy, which included putting in a cerclage due to an incompetent cervix and later her water breaking at 21 weeks. Instead of terminating the pregnancy, Lori Ann and her husband Matt decided to wait to see what would happen, monitoring her temperature to make sure she didn’t develop an infection. At 24 weeks, she was admitted until Owen was born at 26 weeks via emergency C-section. Owen was 2 lb and they were able to see Owen open his eyes, but he was struggling to breath on his own. They decided to remove the breathing tube, and she was able to hold him till he passed away.

Watch here (YouTube):

Listen here (podcast):

Time Stamps:

00:00 Baby’s name
01:47 Who the parents are
06:45 First Loss
12:29 Owen’s Pregnancy
34:14 Gender
42:54 Short Cervix
48:02 Water Breaking
1:08:47 Final Hospital Stay
1:14:53 C- Section
1:21:12 Meeting Owen
1:38:58 Time to go
1:42:20 Cremated

You might appreciate these other episodes:

  • Watch/listen Matt’s (Lori Ann’s husband) birth episode of son Owen: Click here
  • Watch/listen to Bianca’s and Michael’s advice episode after Jalen’s death: Click here

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Lori Ann with Owen

Full Transcription:


Lori Ann 0:00
Owen David.

Lori Ann 0:08
When I first saw him, the first thing I noticed was his cute little nose. And I was actually kind of shocked with how much hair he had. And just his tiny little fingers. You know, every little feature when a baby’s that small, like two pounds, it’s just amazing how they are just a little human. They’re just so tiny, but I can just remember all of his features on his face, his lips, nose and eyes. They were just perfect.

Winter 0:47
Welcome to Still A Part of Us a place where moms and dads share the story of their child who was stillborn or who died in infancy.

Winter 0:53
I’m winter.

Lee 0:54
And I’m Lee, we are grateful you joined us today. Please know that this is a story of loss and has triggers.

Winter 1:00
Thanks to our lost parents who are willing to be vulnerable and share their children with us.

Lee 1:04
If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

Winter 1:11
Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they’re still a part of us.

Winter 1:26
Lori Ann, thank you so much for coming on to the podcast today. I am just so glad that you reached out and are willing to come in and tell your story today. So welcome to the podcast. Yes, thank you. Can you tell us a little bit about who you are and what you do on a daily basis? Who’s in your family right now?

Lori Ann 1:47
Um, okay. So my husband and I met online actually on a dating website. Things progressed pretty quickly, which we were a little nervous at first, but you know, it ended up working out. After a couple of months, we moved in together, and we’ve been together ever since. That’s been eight years now.

Lori Ann 2:15
It’s just my husband. We have two dogs, which are pretty much basically our kids. They’re our lives. I don’t know what I would do without them actually, like they keep us going really. We live in the country kind of so it’s very secluded. We definitely really like that lifestyle, we enjoy being outdoors, hiking and doing all those fun things. For work, I am an ABA therapist. So I work with kids between the ages of two and five. We work on preparing them to go to school, and the kids have autism. So it’s a very challenging, but fun and rewarding job.

Winter 3:15
Oh, I’m sure it is.

Lori Ann 3:17
Yeah.

Winter 3:17
That’s awesome. Of course, you’re doing a lot of this right online at this current time or are you meeting people in person?

Lori Ann 3:26
We are actually. I go to an in center, some ABA therapists go in home. When COVID first happened. Well, Owen was actually born on March 10, of 2020. And two days after he was born was when they shut down.

Winter 3:50
Everything.

Lori Ann 3:50
Pretty much like the world.

Winter 3:52
Yeah.

Lori Ann 3:53
So my job had shut down for a couple of months, but I was on maternity leave, like already at that point. So I wasn’t really affected by that because I was already out. But then my job is considered medically necessary because Autism is a medical diagnosis. So they went back to work pretty quickly. I mean, I didn’t go back to work pretty quickly.

Winter 4:34
We’ll get into that a little bit more. So-

Lori Ann 4:36
-Yeah, we can get but um, we are in person and I work in a center. There’s just the three of us. So like three adults and three kids and then our boss.

Winter 4:49
Yeah.

Lori Ann 4:50
So yeah, we are in person. And yeah, I mean, I could go home, but I definitely prefer the center.

Winter 5:02
Okay. Okay, that’s good to know. What part of the country are you located? You can just give me generalities.

Lori Ann 5:09
Yeah we’re in New Jersey.

Winter 5:12
Okay. So back east there. Sounds like you and your husband like to do outdoor things, you have dogs and everything, any other hobbies that you guys like to do by yourself? Or together?

Lori Ann 5:26
We love watching different movies. It used to be Netflix a lot but Netflix, I don’t know, they’re kind of being a little weird. You know, wherever we can get some good movies.

Winter 5:43
Yeah.

Lori Ann 5:43
Definitely hiking with the dogs. Family means a lot to me. So we actually spend a lot of time with our families.

Winter 5:57
Are both sides of the family nearby?

Lori Ann 6:01
Matt’s mom is about a half hour away from us. Then my parents are an hour away from us.

Winter 6:08
Okay.

Lori Ann 6:09
But I mean I drive an hour to work every day.

Winter 6:12
I was like, that’s probably nothing for you.

Lori Ann 6:14
Yeah, that’s normal.

Winter 6:16
Yeah. Well, great. You did mention that Owen was born in March of 2020. So it’s at the time of this recording. It’s been about a year since he was born. Tell me, were you guys planning on getting pregnant? How did the birth? How did the pregnancy go? Was that something that you guys were hoping to have happen?

Lori Ann 6:45
Yes, I’m in 2015. We actually got pregnant on our own, and we were never not not trying. So we found out we were pregnant. Our wedding was actually in nine months. So our baby would have been due almost a couple of days before our wedding day.

Winter 7:14
Really?

Lori Ann 7:15
Yes. So that was a little bit of a shock. We moved things around and we moved the wedding up, and we did all these things, but then we ended up miscarrying at eight weeks.

Winter 7:32
Oh, I’m sorry to hear that.

Lori Ann 7:34
I mean, we never found out why, or what happened or anything like that. I really feel like at that stage of our life, I had no idea. Anything about pregnancy. Like how difficult it would be to get pregnant. Or, honestly, how being able to get pregnant and carry a child is a miracle to me really. I know it happens all the time. I don’t know, it’s just not as easy as I feel like some people make it seem, at least for us.

Winter 8:23
Yeah, I completely agree with you on that. It is a miracle when babies get here safely.

Lori Ann 8:28
Yeah, it really is. I feel like when we had our loss, that was very hard for us. We kept our wedding moved up, because we needed something positive. So we decided instead of doing the April wedding, like we moved our wedding to November, and we kept it there. I’m glad we did because, you know, we just got married faster. Then it was fun. We saw all our family and everything like that. So that happened.

Winter 9:10
Actually, Lori Ann, I can ask you a question?

Lori Ann 9:12
Yeah.

Winter 9:12
Did people know that you guys were pregnant? Or did you kind of hold on to that for just a little bit and just started rearranging your wedding date?

Lori Ann 9:20
Because of the timing that had happened? I found out pretty early. When I went to my OB I was four weeks when I found out I was pregnant the first time. That’s when I was like, oh my gosh, like we’re gonna have to tell people because we’re gonna have to move the wedding like we can’t-

Winter 9:45
Yeah.

Lori Ann 9:46
We already booked the place and had our date and everything. So it never really crossed my mind that something would go wrong. Again, where that’s where I feel like we just really had no idea.

Winter 10:05
Yeah.

Lori Ann 10:06
You think you get pregnant and it’s like, oh, we’re gonna have a baby-

Winter 10:11
-everything’s gonna be fine.

Lori Ann 10:12
Yeah. So we did tell our family because we had to move our wedding up. So everybody already knew why we had to move the date.

Winter 10:26
Okay.

Lori Ann 10:26
So yes, everybody knew. Then everybody knew obviously that we had lost the baby. So, yeah, everybody. I mean, I’m pretty open with my family. So they pretty much know everything.

Winter 10:45
Did you feel like they were supportive? At that time when you guys had your first loss?

Lori Ann 10:50
Well, it’s kind of funny when we were on vacation with my family when we told them, and I can remember my dad kind of got a little mad. I don’t think that he was mad, but I think he was like, Why couldn’t you guys just wait till you’re married type of thing. He got over that within 20 minutes. Then he was like, I’m gonna be a grandpa. Then he was happy.

Winter 11:21
Yeah.

Lori Ann 11:21
My mom was ecstatic. My brother and my sister were ecstatic. Everybody was very happy for us. I feel like that loss I heard a lot. Oh, it happens to a lot of women, or it happens in the early stages. Things that people normally say that think that they’re trying to help.

Winter 11:53
Yeah,

Lori Ann 11:55
I mean, everybody was very supportive and understanding. My mom actually bought us little angel wings on our wedding day. I had my angel wings tucked in my wedding dress. Then Matt had his angel wings tucked in his suit pocket.

Winter 12:21
Nice.

Lori Ann 12:21
So, you know, that was like, our little remembrance for our baby that we lost.

Winter 12:27
Yeah.

Lori Ann 12:29
After that, though we were like, let’s just try again.

Winter 12:35
Okay, so you guys were just like, let’s do it. Let’s-

Lori Ann 12:37
-Yeah, we’re like, we know we want to have a kid, let’s try again. We tried for a year, but nothing happened. I always had issues and it just wasn’t happening. After a year or two, we were like, okay, maybe we should, you know, talk to the doctor and see if something’s wrong. I don’t think it should take two years for us to get pregnant again.

Winter 13:13
Yeah.

Lori Ann 13:15
So, I went to my OB and then we ran the regular tests and everything. Then Matt had to have a test and we found out that we both have issues. So with both the issues that we had, we were batting like 1% chance of us getting pregnant on our own.

Winter 13:39
Okay.

Lori Ann 13:41
They said that it was shocking that we did get pregnant on our own the first time.

Winter 13:47
Oh, okay.

Lori Ann 13:48
Yeah. So we were then referred to a fertility doctor. So we started seeing a fertility doctor. They decided, well, no, my insurance decided. Because you know how that goes?

Winter 14:07
Yeah.

Lori Ann 14:08
Insurance decided that we would have to do like three rounds of insemination. Then if that didn’t work, then we could go to IVF.

Winter 14:18
Okay.

Lori Ann 14:19
My doctors were thinking that IVF was going to be our best shot, and that insemination wouldn’t be your best shot. But we had to do the three rounds before insurance would cover the IVF

Winter 14:36
I see.

Lori Ann 14:39
I have always been very open about our journey starting at that point. By then we’d been married for a couple years. People are always like, “Where’s the baby?” Like, “When are you gonna have a baby?” Like, “What are you waiting for?” Then I would get so angry, almost like, I wouldn’t know what to say sometimes I would just be like it’s not always easy. Like, we’re struggling, okay. Like, it’s not like we’re trying.

Winter 15:16
Yeah. Yeah. Yes, it is, oh, you always feel a little like, gosh, you are probing into our very into our reproductive life really a lot by asking that question.

Lori Ann 15:29
Yeah. It’s not even that it’s just, I don’t know, again, I feel like I’ve learned going through this journey that it’s not necessarily the best question to ask couples sometimes.

Winter 15:44
Yes.

Lori Ann 15:45
Especially to just blurt out, like, “What are you doing? Like, “Why aren’t you having kids?” I get it, people want to know when it’s fine. But I was like, I’m done. I’m not gonna pretend like everything’s okay. I don’t want to have to be ashamed of myself because of not being able to be pregnant yet. I want people to understand that it’s not always going to be, let’s do it. Then we’re gonna get pregnant.

Lori Ann 16:24
So that’s when I started to be pretty open on social media, about our journey. I started sharing our journey with all of our friends and family online. I pretty much shared every step of the way with each insemination that we went through.

Lori Ann 16:48
The first one, it didn’t work. Then we just went right into our second one. That one didn’t work. The doctors were not optimistic about the third one working. So when we did our third one, I was like, okay, then after this, we can move to IVF. I was like, so let’s get started now. So then, because you always have that two week wait. You have the insemination. Then you have to wait two weeks to find out if it’s negative or positive.

Winter 17:29
Then you can start all the medications and everything.

Lori Ann 17:33
Yeah, but I wanted to be prepared right after that. That whole two week time I was sad to say I wasn’t really optimistic about it. I was more focused on IVF. They gave us all the paperwork, I had already picked up some of the meds. I had my schedule with the doctors.

Lori Ann 18:04
Then I can remember three days before or something like that. Before I had my beta day where they check your hormone levels. I didn’t feel right. I kept having this weird twinge in my stomach. I don’t know, signs that could be your period, or it could be you’re pregnant because they’re all the same sign.

Lori Ann 18:33
Right?

Lori Ann 18:36
Then I did, I ended up taking a test and it had two lines. And I was like, this can’t be real. Like, wait a second. I went up to Matt and I smacked him. I was like, Do you see this? It has two lines! Then he’s like, okay, so this is good? I’m like do you see this? It was a complete shock moment.

Winter 19:11
Right?

Lori Ann 19:13
It’s faulty. Give me another one. I literally took like, three.

Winter 19:22
Like I gotta make sure.

Lori Ann 19:26
Exactly. So I actually called the doctor. I’m like, I know you tell us not to take it early, but I took the test. She’s like, “Okay, well, let’s just wait two days. You have your blood work tests.” So, two days. Alright, so I took like, you know, 20 more pregnancy tests in between. How do you not?

Winter 19:55
Yeah, exactly.

Lori Ann 20:00
The line did get darker every day after that. So we did go in for my blood work. Then when you have your bloodwork done, the fertility clinic has until 7pm to call you back, right? You get your blood work drawn at 6am. And they literally have up to 7pm to call you back with the result. So we’re sitting at home. It’s like, one o’clock comes, three o’clock comes. Like, don’t you think this is something that they would want to call us and tell us now? Why are they-

Winter 20:45
Making us wait?

Lori Ann 20:46
Yeah, so finally we got the call. The nurse that we spoke to is like, congratulations, you’re pregnant. I was like, What? And she’s like, you’re pregnant. And I was like-

Winter 21:03
You’re still in shock about it?

Lori Ann 21:05
Yeah. I was like, Okay, thanks. She’s like, Well, congratulations. And I’m like, Okay, thanks. Then we hung up and Matt of course, standing there, looked at me. I can just remember, like, I was frozen. I was like, we’re pregnant. He’s like, well, why do you look like that? I’m like, I mean, this is what we’ve wanted all along. Now what do we do? Like, you know, it had taken so long to get that. That pregnant positive, and I was like, I didn’t prepare for when it actually did happen.

Winter 21:51
Isn’t that funny?

Lori Ann 21:57
So now what? It did take me a few minutes to soak it in.

Winter 22:04
Yeah.

Lori Ann 22:05
Then like, he’s like, Okay, well, are you gonna call your mom and dad? And I was like, yeah. So i called my mom and dad and they were waiting for me to call them. They knew we are getting the results.

Winter 22:19
Okay.

Lori Ann 22:20
So when my mom picked up, I actually started crying. To the point where I couldn’t talk crying. Later, my mom told me, she’s like, I literally was thinking in my head, like, how am I going to comfort her? She thought I was crying because I had bad news.

Winter 22:46
Oh, yeah.

Lori Ann 22:48
So I was like, we’re pregnant. She’s like, oh, my God and my dad’s in the background, like, yay! They were screaming they were so excited. Both of my parents are so amazing. They’re going to be the best grandparents in the entire world. They are just so excited to be grandparents.

Winter 23:18
Yeah.

Lori Ann 23:21
I was super excited. Then I was like, okay, chill out, everybody. It’s early. Because then I have in my head we had an early miscarriage the last time.

Winter 23:36
Right.

Lori Ann 23:37
So of course, that fear took over. But obviously, we are excited at the same time. Like, this is what we’ve been waiting for. Doesn’t matter that we have IVF meds in the fridge that we spent money on. Yes, we were going to need it, but now we don’t. But that’s okay, because we’re pregnant.

Lori Ann 24:02
When you see a fertility doctor, they see you until like, eight or nine weeks. They see you very regularly. So when you first find out that you’re pregnant, it’s like super early. They make you wait like a week or two I forget before your first ultrasound. Then that first ultrasound is really they just want to start to see like the sack growing

Winter 24:35
Right.

Lori Ann 24:36
Then the next one after that would be the heartbeat. The one after that it’s like you graduate. The first time we went, my doctor wasn’t too pleased. She said that they should be able to see the fetal pole or whatever starting to grow. She wasn’t sure if it was going to make it. That was very, very hard to like, hear. It’s just, you know, you think the two week wait is hard. But I felt like it was even harder to wait for a time like that when you’d like to hear the heartbeat for the first time.

Winter 25:29
Right.

Lori Ann 25:30
Sometimes I think it’s like, they check you too often with fertility doctors, because a normal person wouldn’t really go see the OB until, I don’t even know, like eight, nine week.

Winter 25:46
Yeah, it’s a bit later.

Lori Ann 25:48
Yeah. Don’t they tell you to like, wait a little bit?

Winter 25:52
Yeah. They do.

Lori Ann 25:48
So I can remember, we did finally get to hear the heartbeat. We both cried during that ultrasound, including Matt. That was a good positive step. Then I can remember the day we were supposed to go to graduate. Like graduating to go to your OB. I had woken up and I had some bleeding. It was at eight weeks. I woke up and was supposed to be going to the fertility doctor to graduate. I woke up and that was happening. I literally was just like it’s done. It’s over. That our drive to that fertility doctor, I just bawled my eyes out, like, so scared.

Lori Ann 26:10
So was it quite a bit of bleeding? Or was it spotting?

Lori Ann 27:03
No, it was a decent amount and that’s why I was like, this is it. You know what I mean? That was just like my first thought, like, eight weeks. This is when we lost our first baby. This is just like how it is. I can remember going to the fertility clinic. The vibe is very somber, and very heavy. When you go to a place like that. I was just sitting in the waiting room crying, there was no holding it back anymore. It was very hard to wait the 20 minutes or whatever they made me wait before I could go in to see the doctor.

Lori Ann 27:55
But we got in there. The doctor asked me what’s going on? I told her and through tears by the way, I’m still crying. So they’re like, all right, like, let’s take a look and see what’s going on. So they do the ultrasound, and then all of the sudden I can just remember the first thing they do is check for the heartbeat. She turned it up really loud. He had a strong heartbeat like it was just beautiful. To be able to finally be like he’s still there. We didn’t know what it was here. But I was like, the baby is still there. They’re so tiny at that stage that I think even in one of the pictures they look like little gummy bears kind of like getting that to the stage.

Winter 29:04
Yeah.

Winter 29:04
That’s one of my favorite pictures, like ultrasound pictures. Because he literally looks like a gummy bear. Even at that little stage he was wiggling around and it was just so special. I was so glad that I had that. Like got to see. Especially so early on and I’m like, Is that that is the baby moving? She’s like, yeah, like he’s like dancing around right now. Like, so awesome. I’m like that’s inside me. She’s like, yeah. How is that possible? I guess I had like, I don’t know what it’s called. I got like a clot or-

Winter 30:09
Hemorrhage or something? Okay.

Lori Ann 30:11
Yeah and they saw it in the ultrasound.

Winter 30:15
Okay.

Lori Ann 30:16
They said it was small and that it should resolve on its own.

Winter 30:21
Okay.

Lori Ann 30:23
Which it did. I only like bled for another day. Then I was okay after that I didn’t bleed anymore. So I felt much better.

Winter 30:33
Yeah. Was Matt at that appointment with you?

Lori Ann 30:38
Yes.

Winter 30:39
Okay.

Lori Ann 30:39
He was.

Winter 30:41
I’m sure he was relieved too.

Lori Ann 30:44
Yes, he was crying.

Winter 30:46
Okay.

Lori Ann 30:48
Um, I feel like Matt has, every ultrasound has been very hard. Because when we found out that we had the miscarriage, we went to the hospital to get bloodwork or the ultrasound done. And the techs can’t tell you anything, right?

Winter 31:08
Yep, they’re not supposed to

Lori Ann 31:10
No they’re not supposed to. So this tech turned with, like, we had the screen facing us. I had heard the heartbeat the week before, but Matt didn’t. This is for the first baby. All of a sudden, the tech kind of turned the screen, right. We can’t really see anything anymore now on the screen. Matt just remembers her writing, like NFR. He googled it and it’s no fetal, or whatever this thing was. It’s no fetal heart rate, or whatever the term was. He saw her type that in, but she didn’t, she couldn’t tell us that.-

Winter 32:02
Yeah.

Lori Ann 32:02
That happened. So ultrasounds now just petrify him. Because that’s what he remembers. So he, every ultrasound, he literally would hold his breath. Then every time as soon as we could hear the sound, he’d be like, visibly and very loudly let out-

Winter 32:32
A huge sigh of relief, right?

Lori Ann 32:34
Yes. So, yeah, so we graduated that day, they let us go to our obgyn. So then our 12 week appointment, everything was fine. They were telling us we had to wait until 20 weeks to find out the gender. I, of course, was too impatient to do that. So I did like a private scan or whatever for the gender reveal. That was really special because you know you’re with them for like an hour. They do like 3-D photos. They have just all the video I mean, we even got his heartbeat but- I am obsessed with turtles and we got his heartbeat put into a stuffed animal turtle. It was amazing. Because again you see this little body moving around and I couldn’t really feel him yet at that point. But that is when we found out that he was a boy. And-

Winter 33:59
How early was that?

Lori Ann 34:01
16 weeks.

Winter 34:02
16 Okay.

Lori Ann 34:03
Yeah, cause they won’t. At least this place wouldn’t see us until we were 16 weeks to do the gender reveal part of it.

Winter 34:13
Yeah.

Lori Ann 34:14
Um, so we found out the gen- like my husband and I found out he was a boy. Then I was like, Alright, we have to surprise my parents. So I didn’t tell my parents when we were going to find out the gender. My brother’s girlfriend at the time I told her and she got the pinata and filled it all with blue stuff and confetti and everything.

Lori Ann 34:51
Then it was actually on New Year’s Eve that we got to like, we’ve had My parents hit the pinata. My brother and my sister were there to find out the gender. My dad broke it. And all the blue fell out. He just was like, oh boy, I’m gonna have a grandson. So my dad was so thrilled, and so is my mom.

Lori Ann 35:38
For the rest of the night, I’m not even kidding you. Like, all I heard all night. My dad just kept rewatching the video. It was so sweet though. I’m like, really dad, again. He’s like, this is my grandson. This is my grandson. Don’t you touch that food or don’t you eat!

Winter 36:03
That is so sweet.

Lori Ann 36:05
Yeah, he was super excited. I had always known if I had a boy, I just always knew Owen was going to be his name. Matt didn’t really have a choice. In that sense.

Winter 36:24
Sorry, Matt.

Lori Ann 36:25
Yeah, sorry. But Owen has just- I don’t know why I just always loved that name. Obviously, his name is gonna be Owen. Matt and I had talked before that, that we were going to ask my dad if it would be okay, if we used his name as his middle name. I asked him and his eyes filled with tears because he was so honored that we would want our son’s middle name to be David. He just kept saying “Are you sure?” Like, yeah. Why? We wouldn’t be asking you if we weren’t sure.

Winter 37:28
Oh, that’s so sweet.

Lori Ann 37:29
Oh, of course he was beyond thrilled about that. I really had it. I don’t think I really had a difficult pregnancy. I mean, I was sick for maybe about a week. But that was pretty much it. I feel like I had the weirdest craving for ice water. Oh, yeah, it just sounded good. It just had to be extremely cold ice water. I’ve never heard that one before, honestly. I kept making a big deal about it. I bought all these ice cube trays. Matt became a pro at filling these ice cube trays and having them all set and ready because I would drink so much of it. He figured out a system to always make sure I had enough ice in the freezer, so I would never run out.

Winter 38:43
That’s a good husband right there.

Lori Ann 38:44
Oh, yes, he definitely was.

Lori Ann 38:48
But because I said to my husband, I’m not craving food. I don’t have a food craving. He goes “You’re craving ice water. You don’t know how many times a day you ask for ice water. That seems to be your craving.”

Winter 39:09
Oh, that’s funny. You didn’t even notice it?

Lori Ann 39:11
I did. Well, because I thought it would be food.

Winter 39:15
Yeah, exactly.

Lori Ann 39:23
I started to feel some movement around 17-18 weeks. It’s so little at that point. I never made it that far in a pregnancy.

Winter 39:38
Yeah, so you’re unsure what it’s supposed to be like?

Lori Ann 39:41
Yeah. Like is that gas or is that I don’t know. Maybe? I’m just gonna go with yeah, it was him.

Winter 39:52
Yeah, exactly.

Lori Ann 39:54
Then we had our anatomy scan which was at 20 weeks, and we have the same tech as we had for our 12 week scan. She was great because she walked us through everything as she was doing it. I liked that.

Winter 40:19
Yeah, I love that too.

Lori Ann 40:20
Yeah. Everything was perfect. He was measuring perfect. We got pictures of his little feet. His hand, at one point, looked like he was, kind of waving. He always did this thing where he had his hand over his head. Because she’d be like, well, I can’t get a profile picture right now. Because again, he’s got his hand over his head.

Winter 40:56
He’s thinking about stuff.

Lori Ann 40:57
Yeah. But that was cool to see 3D photos then, because we had seen 3D photos at the 16 weeks, and now it was 20 weeks. It’s amazing how quick they grow. I think he weighed about a pound or so at my 20 week. Gee, you know, they check the heart. They like everything. It was just so fascinating. To watch all of it. I was definitely feeling him a lot more at that time. So that was fun too. He would kick the wand thing or whatever.

Winter 41:53
Yeah.

Lori Ann 41:55
But when they check your cervix at that point. So she said she was having trouble seeing my cervix or something. So she said I’m just gonna go get the doctor. As soon as she walked out of the room I looked at Matt and I was like something’s wrong. I was like they’ve never gotten the doctor before. You know what I mean?

Winter 42:31
Yeah, they usually just go sign off the scans or whatever, right?

Lori Ann 42:35
Yeah. So I’m already crying at that point, of course, and the doctor came in, and they had to do another scan. Then they had to do an internal scan. This doctor was pushing on my stomach, so hard it was so painful. To try and get a better view of my cervix. He wasn’t answering any questions, he just kept telling us I’ll answer your questions. We know something’s wrong at this point.

Winter 42:35
Yeah.

Lori Ann 42:54
We get through that. Then he brings up the pictures, because yeah, it’s usually the screen was in front of us, for us to see. He’s well, this is your cervix and it’s measuring short. Then he’s like, “Can you see this line? It should be completely closed, but you have just slightly opening.” I literally at that point was just “Well, what does that mean?” What has happened? What’s happening?

Lori Ann 44:03
He said, “Well get dressed, we’re gonna go into our office.” So, of course I’m bawling my eyes out at that point, petrified of what he was going to say. When we spoke with him, he said that it can happen to women where their cervix might start opening too soon.

Lori Ann 44:34
There’s studies that progesterone could help it. So he said that he would want me to start taking the progesterone. He said that he has seen people have this then they go full term and they’re completely fine. Then there’s the people who they might have to put a stitch in to keep your cervix shut. All these scary other options that he shared, and he’s just do the progesterone for a week and then come back.

Lori Ann 45:15
That’s what we did, I did the progesterone for a week. Then when I went back after that my cervix had started to open more. So, at this point, they again said, you don’t have to do anything, you could just see how it goes. But it’s not good that it had started to open more in just a week, even, with the progesterone to try and help it. Or they could put a stitch in, it’s called a cerclage where they can sew it shut.

Lori Ann 46:00
They said that 80% of women or whatever the percentage was, get the stitch, and then they make it full term, and everything is fine. So I said let’s just do it. I didn’t want to take the chance that you know, something could go wrong, and my water could break, or he could come too soon, and whatnot.

Lori Ann 46:34
So I did that at 21 weeks. I was going out of work because my job is very physical. So my doctors wanted me not on bed rest, but I couldn’t be bending down and picking up kids. That kind of stuff. So they told me they wanted me to be out of work until I turned 28 weeks or something like that. As long as everything looked okay, I could return back to work. So that’s what I did right after the stitch was put in. It was literally February 1 when I had the stitch put in.

Lori Ann 47:26
Then I think it might have been February 5 or so. I was at home. My brother had just visited me. I was going to bed, I laid down and I was like, oh, I don’t know, I just had the weird feeling. Like I just peed myself. I hear sometimes when you’re pregnant you might pee yourself.

Winter 47:56
Sometimes it happens.

Lori Ann 48:02
Yeah, I don’t know what’s normal or not. So I got up and I went to the bathroom. Something wasn’t right. I felt you know what I mean? When something is not right. Honestly, I just decided okay maybe I just peed myself and I cleaned up. Then I went back to bed and I went to lay down. As soon as I went to go lay down again. More came out.

Lori Ann 48:43
I went to the bathroom again. I sat there for probably five minutes. I was just sitting there and I’m just like, this can’t be my water. This can’t be my water. This can’t be my water. No, this can’t be it. I was almost in denial for a little bit. Then I just kind of felt a little more. Slowly coming out.

Lori Ann 49:21
I went into panic mode, and I feel like it’s a blur after that. I’m pretty sure I probably screamed at Matt. I was like something’s really wrong. My water just broke. My waters had just broke. He’s like, “What are you talking about?” Explaining it to him. “We need to go to the hospital. We need to go to the hospital right now. This second.” Matt’s running around like a mad man. Trying to get things together. I just remember standing there, I couldn’t move. I felt paralyzed. It was so scary.

Lori Ann 50:16
I can just remember saying, “This can’t be happening. This isn’t what it is, it was just horrible.” Of course, the hospitals an hour away. So I don’t even know what Matt grabbed, I don’t even think I grabbed anything. I think I barely even got myself in the car. I don’t even know how I did that. But I got to the car. Again, I cried the entire way to the hospital. We were silent. I don’t even think we had the radio on. Matt kept looking at me. But I don’t think we knew what to say to each other. In that moment, because we were so scared of what was happening. I just, it was the longest hour to get there.

Lori Ann 51:20
I had called my OB and the hospital knew we were coming so they were ready for when we got there. They got us into the room. They put the monitor on and they found his heartbeat pretty quickly. So of course that is a relief right there. Okay, he’s alive.

Lori Ann 51:48
It took forever because it was so late at night for one of the doctors to come in and they did a swab. If it turns blue, then that means it’s your fluid, your amniotic fluid. I can just remember her looking at me, and she was just , I’m so sorry, but your water has broken, this is your water.

Lori Ann 52:23
I said a couple of curse words actually. Matt said that all I did was put my hands over my head. I just kept saying the F word over and over and over. I didn’t know what to say. Why? How? Why? Why is this happening? I just had the stitch put on it. Why is this happening?

Lori Ann 53:01
It was too late for- There was no doctor, I guess they’re to talk to us. So they moved us to the labor and delivery section. They explained that two things could happen. They needed to monitor me for an infection. They needed to keep a contraction monitor on. They said to me let us know, if you start to feel contractions. I was like, I don’t know what contractions feel like.

Lori Ann 53:50
I’ve never done this, I don’t know. All anybody ever kept saying was you’ll know. It was just very, I don’t even think we slept that night. It was just because at that point, they didn’t even do an ultrasound. They monitored his heartbeat. They kept the contraction monitor on my stomach. Which one of the nurses came in and they were like, why is your contraction monitor there? I’m like, I don’t know, they’re like, you’re so it needs to be lower because of how far along we were. She made a comment that all the other nurses probably just doesn’t know because this doesn’t usually happen. I’m like,Yeah, I know Okay, this doesn’t normally happen.

Lori Ann 55:00
My parents actually showed up in the middle of the night to the hospital with us. They spent some time with us. We have two dogs, so Matt had to go home to take care of the dogs. Then we realized that the dogs would probably stay with my parents, because we knew we were going to be in the hospital for a little while.

Lori Ann 55:32
We had many tough conversations with so many doctors. Maternal Fetal Medicine, NICU doctors, the OB. It was so overwhelming the amount of information that they gave us. When they did eventually do an ultrasound he had no fluid. There’s just nothing left, really.

Lori Ann 56:07
Oh course, they have to tell you all the scary parts. 21 weeks is not viable for a pregnancy. So they gave us the option to terminate the pregnancy, they told us, we could let mother nature take its course. Those were really two only options, either terminate or wait and see.

Lori Ann 56:43
When the NICU doctor came, I felt like that was the hardest part. Because I just wanted to know if he was in pain. He doesn’t have fluid. What does this mean? They just explained that they need the fluid in order to breathe. They need to be able to drink it, to then be able to let it out. It rotates. When a baby doesn’t have fluid to do that, then issues with the lungs develop or if it’s so tight, they could have clubfoot or, there could be deformities. Because if he’s in one position and can’t move around. All these things, but his heartbeat was strong.

Lori Ann 57:56
When we were there that had been the most I had ever felt him move. Matt and I were like, We can’t end this. I feel him. I’m feeling him inside of me. I can’t let go. I can’t just be sure, let’s just end right now.

Lori Ann 58:28
The doctors even said to us, they were like, if you were one week ahead, we would be like, hang in there. If you were one week before this, we would be like, there’s no hope like you need to end it. But because we were 21 weeks in that weird spot. They were like it could go either way. So there’s no right or wrong answer.

Lori Ann 58:59
As long as he’s not in pain and he’s not in distress we want to let nature take its course. To us, we had to do everything we possibly could in order to try and save him and keep him with us.

Lori Ann 59:25
So we were in the hospital for four days at that point. They were looking for infection and then they were looking for if I would be good to go into labor. I wasn’t going to start dilating because I had the stitch. So we stayed and we made it those four days because they say after those four days, if you made it that far you’re more likely to go at least another week before. They wouldn’t keep us there or see us again until 24 weeks.

Lori Ann 1:00:17
So they were like, go home and wait. They want me to take my temperature twice a day to make sure I didn’t have a fever. If I started to have contractions, if I started bleeding, or you know what I mean? I just had to watch out for all those things. So my parents only live 20 minutes from the hospital, as opposed to an hour for us. So to us, it made sense. To stay with my parents for that time being just in case. Then we would be closer to the hospital. That’s what we did.

Lori Ann 1:01:08
My sister gave up her room. So I had a bed, and I didn’t have to sleep on the couch. My sister and I slept in the same bed the first night. Then she’s like, I can’t sleep with you. I was like, What do you mean, you can’t sleep? I didn’t take up too much room.

Lori Ann 1:01:30
What are you talking about, we always share the bed. She’s like, it kind of made me sad, because she said I was scared that I’m going to hurt you. In the middle of the night. She moved her arm or she kicked me. She was scared that she was going to hurt, oh, or something. So she slept on the couch for the amount of time I was at my parents house.

Lori Ann 1:02:12
In between this time Matt struggled with going to work because he just wanted– he didn’t want to miss a second. He always takes care of me in any situation. He literally is the best husband in the entire world. It doesn’t matter what it is. But he was so on top of everything because they didn’t want me walking around too much.

Lori Ann 1:02:45
He was working nights at that time. So he tried working for a little while working nights and then coming home and taking care of me. But I was like, you can’t do that, you have to go to bed. Go to sleep. You have to. He was really struggling. So we looked into it and he applied for the Family Leave Act or whatever it is if you have to take care of somebody. So he applied for that.

Lori Ann 1:03:25
He kind of stopped going to work. He was just starting to make a name for himself at this company that he was with. He loved it. That was his dream job. He was finally moving up and meeting all these people that were the higher ups. At first I was mad. I was like go to work you have to do this, but then I was beyond thankful that he stayed with me because I needed him to ground me almost. I was petrified of every move, you know it was just a blessing.

Lori Ann 1:04:21
I got to have more time with Owen. At those stages I was feeling him a lot more. I learned that he loved avocados because every time I would eat an avocado and he would dance around or whatever. So I mean, I guess he could have hated that too but–

Winter 1:04:49
-He liked avocados.

Lori Ann 1:04:50
I’m gonna go if he likes it. But there was one night too that Matt and I were laying in bed. Then I was like, Oh, he’s moving around a lot. That was one of the first times that Matt was able to feel him give a little kick. We both cried because we’ve waited for that moment for years. It was just so hard to comprehend. l just kept thinking we’ve gone through so much to get to this point. Why is it becoming so difficult to go through it?

Lori Ann 1:05:49
As soon as we got to 23 weeks, and four days, I think it was the high risk doctor was like, “Hey, kid, you made it this far. This is a miracle alone as you’ve done this.” So they put me at the hospital. We knew walking in that that was going to be our home until Owen was born. So in our heads, we were, this is going to be home, we need to pretend we want to be here for a while. Obviously, nobody wants to be in a hospital for a while. But we wanted to be there for a while.

Lori Ann 1:06:43
My friends and family were so amazing. They all sent cards, and I can’t even tell you how many coloring books I got. We pretty much decorated the whole room the nurses would walk in and be like, is this your house? Yeah, you know we wanted to make it feel homey. I had my own pillow. We made it as homey as possible.

Lori Ann 1:07:17
Just because we wanted to keep it positive. We were trying to be as positive as possible at that point. A lot of the doctors were shocked that we even made it from 21 weeks of my water breaking to 24 weeks. So every day after that was a blessing because it doesn’t usually happen that way.

Winter 1:07:46
You knew that? Did you guys know that you were going to be admitted into the hospital? If you made it to 24 weeks and just monitor you and maybe even if needed they would induce? What was the plan from there?

Lori Ann 1:08:03
Us signing ourselves into the hospital at 24 weeks was us saying to the doctors that we want to take every life saving measure possible to save Owen. That meant I was not going to be able to do a natural delivery. I would have to have a C-section no matter what. Because if I started having contractions I wouldn’t have time to go through labor. He would have to come out quick if we wanted to save him.

Lori Ann 1:08:47
If I got an infection, then it would be an emergency C-section and they would take him out as quick as possible. They would perform life saving measures to try and save him at that point. So that’s what we were signing up for when we went back in at 24 weeks.

Lori Ann 1:09:10
There were more options, they still said that we could terminate at any point. Some people just waited at home until something happened. But at the hospital, they gave me steroid shots. They had me on really high doses of antibiotics. They monitored Owen twice a day for at least an hour. To make sure his heart rate was okay and that he wasn’t in any distress. The only time that I wouldn’t have a say about anything would be if I had an infection and if he was showing any signs of distress. That would be the time when they would have to take him out.

Lori Ann 1:10:08
So for the first couple days, I couldn’t even leave my room. I couldn’t leave the bed. Couldn’t, they didn’t want me to move at all. The first week has been spent being in the same room in the same bed for so long you go crazy. There’s only so much you can do. Then you just overthink. I did a lot of coloring. That is definitely for sure.

Lori Ann 1:10:48
My friends were amazing, because a lot of people came to visit me. All my co-workers came, my boss came and she visited me. My family came and they kept me busy. The people knew that I had two dogs, and I miss them terribly. So the liaison person made it a point that if there was ever a service dog in the hospital they made a special trip to come and see me.

Winter 1:11:28
That is awesome.

Lori Ann 1:11:29
Yeah it was very sweet. So gradually I graduated to being able to be wheeled around the maternity ward. I couldn’t leave the maternity ward, but I could be wheeled around that area. But that didn’t last very long. Because that’s a very hard place to be in, when you’re going through something like that. Because everybody has their babies and they’re all happy. It was really rough.

Lori Ann 1:12:13
So I spent a lot of time in one room for a while. But the doctors every day, we’re this is great, you’re doing great. He is a feisty one. Despite not having a lot of room. He’s doing those flips. He was running away from them every time they had to put the monitor on him. I can remember the one time the nurse, it took her 20 minutes to finally get them to stay in one spot. Then she walked out and I have it on video actually. He kicked it. It literally fell down my stomach.

Lori Ann 1:13:06
He hit it so hard.

Winter 1:13:08
That is awesome.

Lori Ann 1:13:10
The monitor just slid down my stomach. Yeah, so I mean, there were some good times. Matt got to see him. Sometimes if they’re in one spot your stomach will get hard in that one area. I can’t remember for the first couple of times, I was like, something’s wrong. Why is my stomach bigger on this side? It’s hard. The nurse was like, ah, nope, he’s just chilling up there right now. I mean, that was amusing and I’m just very glad that I got to feel those movements, you know,

Winter 1:14:04
Yeah.

Lori Ann 1:14:05
March 10th, I woke up and I knew something was wrong. I didn’t feel good. I knew I had a fever. You know, when you just have the aches and then I just really didn’t feel well. They came in and I was like, I don’t feel good, something is wrong. They had said that I had a fever. So they automatically hooked me up to the monitor for Owen.

Lori Ann 1:14:53
His heart rate was in the 180s and consistently in the 180, so that’s really high. It shouldn’t be like that. Normally, I would have felt him moving around a lot. I kept saying to them why I don’t feel him. They’re like, okay well, his heart rate. He’s alive. He’s in there. It happened so quickly I didn’t feel well, they noticed that his heart rate was too high. My ob came in and all I can remember is her saying, okay, Lori Ann it looks like today’s the day. It’s a good day to have a baby boy. Let’s get going. It seems like you have an infection. So, you know, he has to come out now.

Lori Ann 1:16:04
I was petrified. I couldn’t hold myself together anymore after that. In the C-section, they were going to allow Matt to come in, because I was going to be awake. As soon as I got into the OR, they had found out that they had just given me my heparin shot, I think it is for blood clots. They were like, you could bleed out, if we keep you awake. We decided that it would be a better option for me to be put out for the C-section.

Lori Ann 1:17:01
Honestly, I wouldn’t doubt it if they just said that because I was freaking out. I couldn’t calm down. I suffer from anxiety, normally. I was on a whole new level of freaking out. I just kept saying, but he’s only 26 weeks. He’s only 26 weeks and it just happened so quick.

Lori Ann 1:17:36
There’s a whole team of people rushing around you, and it was so overwhelming. The amount of people prepping you for a C-section. The doctors are telling me about knocking me out. Then they’re telling me Matt can’t come in. They actually let that in for a second. Just to wish me luck. Then he had to leave.

Lori Ann 1:18:21
It’s all a blur, but I was just petrified. I just remember, all of a sudden, I felt someone grab my hand. I was like, what? I looked over it. I guess it was a doula or something like that. I’m not 100% sure if that’s what she was. She just leaned in next to me, and was just like, Lori Ann you’re going to be okay, we’re going to take care of your baby. She was just so calm, and soothing. I wish I knew who she was, so I could thank her, you know what I mean? She totally helped me in that moment. Just holding my hand at that moment was something I needed.

Lori Ann 1:19:24
Then I was put out and then I woke up and in recovery. I felt so empty. I didn’t feel right. Just the day before I was feeling him and then he’s not there anymore. You know you think you have so much more time. My oxygen levels kept getting messed up. So I had to be in recovery for a little bit longer.

Lori Ann 1:20:20
Matt came down and he showed me a picture of Owen. But, you know, he told me, he came out and he wasn’t breathing. So they did have to intubate. So they did that. They intubated him, and that– I’m sorry, this is where I’m gonna get a little emotional. But Matt said, he opened his eyes. It was looking at him. You don’t realize how tiny a two pound baby is.

Lori Ann 1:21:12
Matt’s like, I’ve never felt so much love. In that moment, I was like when am I gonna see? You know I just wanted to see him. Obviously, I was very glad that Matt was able to, you know, show me some pictures. He had said that, the doctor said that he was doing the best he could it that moment, that, you know, he needed full support to breathe, but everything else was stable, that he was doing well. So that was a breath of fresh air.

Lori Ann 1:22:03
We already knew that it was going to be a long road, after he was born. The doctors weren’t going to be able to tell us how developed his lungs were until after he was born. So after Matt showed me the pictures he’s like, “Do you care if I go back?” I was like, I want you to go back and go be with him. I’m fine. My mom was there.

Lori Ann 1:22:40
My mom sat with me. So, Matt got to go back upstairs and spend some time with him. I finally got back to my room, which they still do in the labor and delivery section. Of course, even though they put that leaf or whatever on the door with the tear drop.

Winter 1:23:06
Yeah.

Lori Ann 1:23:09
I saw I was there. Then they had told me that it wasn’t gonna be until later that night because he was born at 12:06pm. So they said that I wasn’t going to be able to see him until at least later that night, because I had to relax and recoup from the C-section. My oxygen was still a little off.

Lori Ann 1:23:43
They had brought in a breast pump because I did say that I wanted to breastfeed. So they wanted me to start doing that right away. The nurses literally handed it to me. I’ve never used a breast pump before. She’s like, okay, here it is. I’m like no I need instructions. I have no idea what to do with that thing. So, she was explaining it to me. As she’s explaining it to me, I got a text from Matt.

Lori Ann 1:24:26
He said something, isn’t right? There’s a lot of doctors in here right now. There’s a lot of beeping. They’re hooked up to so many different things when they’re in the NICU. Okay. What’s wrong? He said something about his blood pressure kept dropping and his heart rate kept dropping, but they were giving him medicine for it.

Lori Ann 1:25:06
I’m not even gonna lie. When he sent that my thought was, okay, we knew this was gonna be a long road

Winter 1:25:17
Right.

Lori Ann 1:25:18
That was expected because we knew things could happen. Those things could go wrong. But it never crossed my mind that he would pass away. You know that feeling right? We made it, we made it to 26 weeks, he came out. He was doing so well. We’re gonna get through this, like, we did it. I just felt so sure. For some reason. I don’t know if it was just because I was like, this has to be okay. This just has to be okay.

Lori Ann 1:26:03
Matt eventually came back down to see me. We talked for a little while. Then Matt asked my dad to step outside. I found this out later, but apparently in the parking lot they were talking Matt’s like it’s not good. He said there are so many doctors in there, and they are trying everything that they can. But it’s not good. My dad was just like, okay let’s hope to wait and see.

Lori Ann 1:26:49
Matt didn’t tell me that yet. Because he didn’t– I mean, who knows, I probably would have ripped out everything possible and tried to get to him. I don’t know what I would have done, but Matt came back. He hung out with me because he said they were busy upstairs.

Lori Ann 1:27:09
Then all of a sudden the NICU doctor came in. He had five nurses with him or something. He said that we need to talk and asked if we wanted my parents in there or not. We asked my parents to step outside for the talk and they did. I knew when he came back down, why would he be there? You know what I mean. What would be the reason for him to be there at that point?

Lori Ann 1:27:58
The NICU doctor was amazing. He took my hand. He was so genuine and caring. He took my hands and explained what was happening about his heart rate, his breathing, low blood pressure and explained it all. I’m like, “So he’s dying?” The doctor was like, “Yes.” That is what he’s telling us because they tried every medicine possible to stabilize him I guess, but it just wasn’t working. They just came to the conclusion that his lungs just couldn’t develop enough at that stage.

Lori Ann 1:29:07
So he basically said, we want to get you upstairs now. So you could meet your son, and you can hold him and meet him before he passes away.

Lori Ann 1:29:26
So I’m like, “Let’s go.” It took all those nurses and doctors to try and get me up because I was probably deadweight to be completely honest. I was just like I didn’t know what to do. I was in so much pain from just having a C-section I shouldn’t have even been sitting up like that yet. I had to get from the bed to a wheelchair. They did it pretty quickly.

Lori Ann 1:30:12
I can remember going out of the room and because we had asked my parents to leave, and I looked to the left, where we came out of the room, and my parents were at the end of the hall. I could see the nurse holding them back a little bit because I was crying. They were rushing us upstairs. So that was very traumatizing for me to see my parents like that. But it’s definitely still something that I still struggle with daily, but we got up to the NICU.

Lori Ann 1:31:20
I heard them say give him a dose of fentanyl or whatever it was. I guess he wouldn’t be in any pain or anything. I guess that’s what helps them pass? You know what I mean? I don’t know, I guess that’s just that.

Lori Ann 1:31:44
Before they did that, we got to hold him. He opened his eyes, and was looking at us. Literally, the first thing I said to Matt was as I was holding him is he is perfect. That’s all I can say. He’s beautiful. He’s so perfect. It was just very hard.

Lori Ann 1:32:30
We are not religious at all, really. We had gotten into a couple of arguments, not arguments- discussions about if we should baptize him or not. We never came to a final conclusion. But when the NICU doctor asked us do you guys want to baptize him before he passes away? We were like, yes. We’re just like there’s no right or wrong answer at this point. If it’s gonna help him it’s gonna help him. If it’s not then it’s not. Just do it. At that point that’s kind of how we felt. So we’re like, Yes.

Lori Ann 1:33:31
I don’t know how, but the NICU doctor, I guess, is qualified to do that. He did it for us. So it’s not even that we had to wait for the priest or whatnot to come. So he did that. Then again, they eventually just took out his, he was intubated. So they just pulled out his tube. We just held him and told him how much we loved him.

Lori Ann 1:34:27
It’s so weird to think about it. At first I was so afraid to touch him. Because the NICU doctor at one point had told us that their skin can be so sensitive at such a young age. So I was afraid. He was wrapped in a blanket, so I was kind of rubbing the blanket a little bit. The doctor was like you could touch him, you’re not gonna hurt him. He’s your baby you can touch him. I was like, great. After that it was like, okay, like, I’m not gonna hurt so, you know, I got to basically just hold him until he passed away.

Lori Ann 1:35:24
I’m just so glad that he was able to– I’m sure babies at that age can’t see much. But you know what I mean? He had his eyes open. He was looking at us. I’m sure he knew our voices. All he felt right when he was passing was love, and so much love. I am definitely very grateful for that.

Lori Ann 1:35:59
The doctor did confirm, eventually that his heart had stopped. So it took Matt actually a little bit of time to hold him. He kept saying no he didn’t want to at first I was like, you need to hold your son. I know, it’s upsetting. I know it’s hard, but you need to do this. He’s so glad that I pushed him to hold him.

Lori Ann 1:36:40
It was just me and Matt for a little while. Then they asked if I wanted my parents to come up, because they were there. I said, Yes , let them come up and meet Owen. At that point he had passed, but they came upstairs and the look on my dad’s face. When he came in. My dad is not a crier at all. He was crying. It was just so hard to see them upset because obviously I knew how much they wanted to be grandparents. How much they loved him already and how much excitement they had for him and it was gone now. But they got to hold him and meet him. I am grateful for that and so are they. They are very glad that they got to spend some time with him and to see him.

Lori Ann 1:38:16
They let me wash him off. I got to change his diaper. I got to help– they were because you know, they do some photos and everything like that. So I was going to stay for the photos which I do feel we were in that room for a long time. But the timing is so blurry in the instance. I thought we weren’t there very long, but apparently we were there for hours.

Lori Ann 1:38:58
Then my I.V.’s we’re in the wrong place. So when my arms were bent I wasn’t getting my meds. You could tell I was starting to go pale and I was dizzy. They were like okay, I think it’s time for you to heal, you have to go rest now.

Lori Ann 1:39:30
That was really hard to have to leave him and I see the stories of how people got to spend a night or whatever it is with their children. I wish I could do something like that. I didn’t even know that was an option. Maybe the hospital I was at didn’t do that, or maybe they didn’t have a cuddle cot or something like that. Once we left then that was it. That was the last time that I got to see him. Obviously, no time is ever in a situation like that.

Lori Ann 1:40:26
I am grateful for the time that I did get with him. I just wish it was more, but I guess again, it’s probably never would have been enough. Whether it was 3 hours or 24 hours. I don’t think it would have ever been enough.

Lori Ann 1:40:54
I had to go back downstairs. That was pretty much it. That was the last time I saw him. I was at the hospital for two more days. Then they sent me home. The world was updated because of COVID all at the same exact time. That’s the whole thing.

Lori Ann 1:41:30
At first we were almost happy, not happy about COVID obviously, but happy in the sense that Matt and I were kind of left alone. We had that time to lean on each other, grieve together and heal together. Then at the same time I wish I could have had family there more often, but because of COVID and it was hard. Nobody knew anything really by that point about COVID so it was quarantined.

Winter 1:42:19
Yeah.

Lori Ann 1:42:20
Yeah. I mean, that’s pretty much what– we did have him cremated. I am very glad we did that. Now we have him with us every day. I have a necklace and his ashes are in it which is with me every day. I got a tattoo with his name and his footprints. I actually had a jeweler take his handprint and footprint. They literally took these are his actual size and outline of his hand and footprint.

Winter 1:43:18
Those are so sweet.

Lori Ann 1:43:19
Yeah. So I have those every day with me too.

Winter 1:43:26
Did you guys have a memorial service or anything? I know it was right in the height of the closed down because of COVID-19. So-

Lori Ann 1:43:35
I mean we did a little thing with our immediate family. Otherwise we couldn’t because of COVID there really wasn’t an option to do that. I mean, his first birthday was just on March 10. We did have a little get together with my family and my husband’s family. We had a little cake and everything like that. That was nice. That’s always nice. Yeah.

Lori Ann 1:44:19
Lori Ann thank you so much for telling Owen’s story. Is there anything else that you want to remember? Or that you’d like to share about that entire experience?

Lori Ann 1:44:31
I am just very grateful for the time that I did get with him, including when he was growing inside of me. That was a great experience. I am so grateful that I got to see him and hold him. So he felt the love and knew the love. I say he got to see us. He opened his eyes so like, I’m so glad that he got to see us. As he was passing that meant so much to me that I was able to do that.

Winter 1:45:12
Thank you so much Lori Ann, that was such a beautiful story and I’m glad you were able to share Owen with us today.

Lori Ann 1:45:19
Yes. Thank you.

Transcribed by https://otter.ai

Filed Under: birth story, early neonatal infant death (<7 days), infant death, podcast episode Tagged With: infant loss

Our Experience Losing Our Stillborn Son During COVID-19 Pandemic | ADVICE

February 3, 2022 by Winter

Parents Bianca and Michael share their experience of delivering their stillborn son Jalen during the restrictions of the COVID-19 pandemic. They also share things that have helped them grieve and mourn and celebrate their son, who was stillborn at 20 weeks and 6 days. They also share some helpful things that people did for them, who were supporting them, and they also share what NOT to say to a parent who has just experienced a stillbirth.

Watch here (YouTube):

Listen here (podcast):

Time Stamps:

0:00 Jalen
1:30 They knew
2:23 Only three weeks
5:40 Memory Table
6:23 Necklace
8:18 the weirdest places
11:20 Virtual Counseling Group
14:28 Journal
15:15 Jalen’s brother
17:01 Due date
18:02 Things not to say
19:40 You have two others
21:01 “Vacation”
25:33 Are you okay?
27:25 Prayers
28:12 Triggers
30:33 Last piece of advice

Wanna help?

  • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
  • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
  • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.

You might appreciate these other episodes:

  • Watch/listen Michael’s (Bianca’s husband) birth episode of son Jalen: Click here
  • Watch/listen Bianca’s (Michael’s wife) birth episode of son Jalen: Click here
Baby Jalen

Full Transcription:

Full Transcription:

Winter  0:00  

We are back today with both Bianca and Michael on our advice episode for Still A Part of Us. I just want to say thank you again, Bianca and Michael, for telling your son Jalen’s story to us today. That was super special. We really- I, it was very emotional. I’m grateful that you are willing to come on so soon after his passing. So thank you. Thank you again, for coming on.

Michael  0:27  

Thank you.

Winter  0:27  

As to give some context to our listeners, when was Jalen born?

Bianca  0:32  

So Jalen was born on February 1st of 2021.

Winter  0:36  

That, at the time of this recording everybody, that was just a little over a month ago. So this is very new for them. This is very, very raw for them. So thank you so much for coming on. It’s been just a little over a month. Tell me how that has been. As you guys have moved throughout your regular normal routines. How has that been to try and get back into life?

Bianca  0:59  

For me? Um, it’s been very challenging. I do have my days of feeling down and defeated and feeling hopeless. Then I have my days where they’re good days, and I’m able to smile. 

Winter  1:16  

Yeah. How about you, Michael? 

Michael  1:18  

For me, every day is different. One day, I can be perfect. The next day seems like I don’t want to do anything. 

Winter  1:25  

Yeah.

Michael  1:25  

It seems like me and Bianca are just staring at the wall constantly asking why.

Winter  1:30  

Yeah. 

Michael  1:30  

Every time we turn around it seems like we have to tell someone new our story because they knew we were expecting another one. Or just they’re asking, which I understand they are asking a lot of questions. But sometimes it’s just like, I can’t, I could just tell you the A through Z, but I can’t tell you the rest of the alphabet, right now. 

Winter  1:50  

The why yeah. 

Michael  1:50  

It’s just too hard. 

Winter  1:51  

Yeah, that’s probably the worst part. I think when people are like, so happy. They’re so happy for you. And they are expecting to hear good news. And you have the complete opposite. It’s because they feel terrible about asking the question, I’m sure you’ve seen that before. And I’m wondering, did you guys take some time off from work? It sounds like Bianca, you’ve been working from home. So were you able to take any time off any sort of maternity leave or FMLA or anything like that?

Bianca  2:23  

So I was able to take three weeks off. One week for the surgery. 

Winter  2:31  

Oh, okay. 

Bianca  2:32  

Which was before, 

Winter  2:33  

Right. 

Bianca  2:34  

I had Jalen, and then two weeks after I gave birth I had off. So I have three weeks total. In the state of Massachusetts. I didn’t qualify for maternity leave, because my baby was under 24 weeks, and he was not born alive. Had he been born alive. I would have qualified, but because he had passed before he was born, we didn’t qualify. 

Winter  2:34  

Oh.

Bianca  2:46  

I did not get- I only got the three grievance days. Then everything else was basically like PTO. 

Winter  3:11  

Oh, that is a– that’s a punch in the gut, isn’t it?

Bianca  3:18  

It was. It really was because it’s like you’re already going through enough. It’s like, I gave birth but yeah, my baby is not here. Right. You would think they would have something in place for situations like that. Yeah, so you’re still going through the same process as a mother that had given birth to a baby that was born alive.

It’s just that, you know, our babies were born sleeping and we’re still going through the same, the same feeling of lactating and you’re going, you’re going to be still bleeding and you’re still going to the physical pain. Your body just went through a traumatic experience. You just gave birth and I’m going to have the same feelings of like, you know, body wise. 

Winter  4:13  

Yeah.

Bianca  4:14  

I still need time to heal. So, I just didn’t understand that whole concept of like, what they thought it was like, just because he wasn’t born alive. You know? That was hard for me. 

Winter  4:28  

Oh, it is. It feels like such an injustice. You’re just like, I don’t have a baby to have this justified. Yep, the bleeding and the lactating. It’s just It feels like a second- It’s just a second hurt to it all. I’m assuming Michael, you probably weren’t able to take any time off either or, you know, didn’t qualify for any additional bereavement time?

Michael  4:58  

I didn’t- I did not. So, when I told my boss what happened on that Sunday, she immediately said take the week, don’t even show up. Don’t worry about anything. We’ll take it from there. I wanted to take longer, but since Mass. didn’t see it as worthy for paternal. She’s going to take her maternity leave. I felt like I had to go. I wasn’t fully mentally there. 

Winter  5:24  

Yeah. 

Michael  5:24  

But I had to be the one to go back to work.

Winter  5:28  

Since you guys have been. It’s just been so recent. And I realized that you will develop other things that you do to kind of celebrate Jalen’s life. But what have you guys done so far to honor him?

Michael  5:40  

The memory table that we have in his memory is huge. It feels like my stuff just got pushed off to the side now. He’s just, he’s everywhere. I’ve got clothes. I’ve got Build a Bear bears around here. Those candle lights that you just hit with the light and it will come on, pictures hanging everywhere. 

Winter  6:01  

Yeah. 

Michael  6:02  

He really seems like he’s here with us. 

Winter  6:05  

That’s great. I think that’s awesome. That’s in your room is that right? 

Michael  6:10  

Yeah. 

Winter  6:10  

So and then, if you didn’t get to hear what they have on their memory table, and like in their memory box, you should listen to the birth episode that Bianca and Michael have talked about. It sounds like you guys have kind of a little a lot of tokens. You also have necklaces that you guys wear. Can you describe the necklace a little bit more?

Bianca  6:32  

Yep. So it is a mom holding a baby or cradling a baby in her arms. Then it has some diamonds. It’s a heart shape. 

Winter  6:42  

That’s awesome. 

Bianca  6:43  

And it’s actually like you can put ashes in it. Oh, so it’s like an urn. 

Winter  6:48  

Yeah. 

Bianca  6:49  

I don’t want to touch the- I don’t put the ashes in it. Because he was so little. 

Winter  6:54  

Yeah.

Bianca  6:55  

I don’t want to tamper with his urn that we already have. 

Winter  6:59  

Right.

Bianca  7:00  

So I just wear this in remembrance of him. And I leave his ashes alone. 

Winter  7:00  

Yes. 

Bianca  7:06  

Yeah. I don’t want anyone touching that.

Winter  7:10  

Yeah, I wouldn’t either. I would be like, no, no, don’t nope. Don’t mess with my son. You guys work? You have two children. I’m sure you’re quite busy. But how do you take time to set aside some time to mourn because it is so new and so raw? And so it’s just so terrible. I’m just curious to know how you guys are handling the grieving process.

Michael  7:36  

Really, whenever I guess we find time, or that sucks, but that’s more or less like we’ll do it when we’re cooking. When we’re just laying in bed not really doing anything. It sucks. Because when you’re when you don’t want to mourn is when you’re more like she’ll wake up at 3am crying and I’m like, I guess I’m up with you. 

Winter  7:57  

Yeah.

Michael  7:58  

Consoling you. It just happens very randomly. We I want to mourn and it’s like, okay, I guess I’m not right now. 

Winter  8:07  

Yeah.

Winter  8:07  

I’m gonna be doing something like, oh, here we go.

Winter  8:09  

Yeah. Isn’t that so funny? I did not expect that to be starting to cry right in the middle of the grocery store or whatever. Right?

Michael  8:16  

Right, right.

Bianca  8:18  

Yeah. So for me, it comes in like, the weirdest times like, it just comes out of nowhere. Like, it just hits me. I can be working and I’m fine. I was just laughing and then I get so emotional. I think seeing baby boys is very triggering for me. I will see a baby boy and then I’m just like, gosh, like, get it together, get it together. Then we have because of this whole COVID thing, we have to wear masks going out. So it’s like I’ll have my mask on, but you can see tears coming down like trying to wipe my face.

But it’s so hard. Seeing like, baby boys or going into a Walmart or Target and I’m only supposed to go grocery shopping. Then you know, the baby aisle is right there. So like you’re, you see the stuff and you’re like, man, this is just I didn’t think it was gonna be this hard. But even this is probably why I don’t go out anymore.

Like I try not to leave the house and go to stores. I’ll just order online because seeing baby things is very emotional for me, especially after a long day of dealing with the kids. Once I have time to like, wind down, my mind starts wandering. Then I start to feel myself thinking and asking myself why, or that it should be different. 

Michael  9:44  

It’s really hard going places. She has her appointments that she has a follow up for postpartum. Unfortunately, I can’t go but when the doctor calls I say listen, she can’t sit in the waiting room with pregnant women. You’re going to have to –When she’s outside, she can call but she has to bring her in back door front, straight into the room. I don’t care how it happens, but you can’t, she can’t sit in there. 

Winter  10:08  

Oh, that is actually a great piece of advice too, because it really is a trigger like it is. It is so hard to see all of those things that just remind you that you’re not pregnant and that you lost a baby. And it is, that is a really smart idea, Michael, good job. You look. Good job standing up for your wife. Like that’s awesome.

Um, you did mention that you have Bianca go to or, quote unquote, go to I’m assuming zoom meetings for like a counseling group. Do you attend Michael too or is it? I’m not sure. Is it just for mom or dad also? 

Michael  10:48  

I attend. I’m not on the camera. I’m sitting there next to her. 

Winter  10:51  

That’s great. 

Michael  10:53  

I wasn’t not fully there yet ready to sit, or tell my side of the story because not most men don’t. 

Winter  11:01  

Yeah.

Michael  11:01  

But I am there with her.

Winter  11:04  

That’s great. Well, just some of the stuff I at least for the counseling groups that we’ve gone to has been, they just bring up things to think about and how you can process it. So I think it works. Regardless if you’re on camera or not. 

Michael  11:18  

Definitely 

Winter  11:20  

Bianca what are so of the things– both of you actually, what are some of the things that has helped by attending or listening in on those counseling groups or those grief groups?

Bianca  11:28  

It is, the biggest one for me is that it’s okay to feel what you’re feeling. I have a very strong support system, I will say that, but for me, it’s like my support, like some of the people in my support system, have never gone through what I went through. So it’s very hard to put yourself in a place where you really don’t know what to say, or how to say it. So I think there’s a theory like, okay, well, the baby’s not here, or everything happens for a reason, right? But my baby, you know, mattered to me.

So I feel like going to those support groups allowed me to feel that it’s okay to feel what I’m feeling. I’m entitled to feel how I feel, regardless of what anyone says, because there was some someone that mattered to me, my son mattered. I’m entitled to, you know, express my emotions for him, because it only expresses the love that I had for him. 

Winter  12:36  

Yeah.

Bianca  12:36  

Me crying, and, you know, the pain that I felt was all love. It’s all out of love. And so, you know, if I make you uncomfortable, then I’m sorry, but I’m not sorry, actually. You know, this is how I feel. And you are entitled to feel that way. And I feel like it really helped me also, with, you know, going throughout everyday life and knowing that I’m not alone. Like there’s many other women in this world, that have gone through the same similar, you know, situations and we can all stand together.

Know that, you know, day by day, not gonna say it’s easy, but you know, step by step, it definitely gets easier and bearable, I would say. And manageable. Like I now know, before, like the first couple of weeks, it was just like, I was crying every day. And then I felt like crying. I went longer periods without crying. And you know, I have my days where I completely break down. But it’s manageable. And it’s okay. 

Winter  13:45  

It’s definitely a process. And it’s not linear. It feels like some days you’re like, I’m making some good progress. Then you’re like, oh, just kidding. Next day back to where you started. It feels like so. Right? 

Bianca  13:56  

Yeah. 

Winter  13:57  

Is there anything that you guys do, or have been able to do to kind of physically escape things that you like to do to distract yourself? I’m just curious, because some people like to have an out sometimes because I think grieving, sometimes it feels like you should grieve or cry all the time to feel close to your son. That’s the way I felt actually, when my son passed away. I realized I couldn’t sustain that. I just couldn’t sustain that. So is there anything that you guys do to try and have an out? Give yourself a break? I guess.

Bianca  14:28  

Yeah, I journal.

Winter  14:30  

Oh, good.

Bianca  14:31  

Pen and paper, get my thoughts out whatever I’m feeling in that moment, writing it down on pen and paper and seeing it has helped me. I’m not one to really talk about how I’m feeling because I feel like no one really gets me and they don’t understand what I’m going through in this moment.

So writing it out, I feel like is equivalent to me talking to somebody that gets me. I’m able to say exactly how I feel even if what I’m feeling right now is I’m angry, I will write angry across the paper and put all the reasons why I feel that I’m angry because this is just how I feel in this moment. Then seeing it on paper and letting it out makes me feel so much better because I’m just like, I let it out. And I no longer have that feeling inside of me, you know what I mean?

Winter  15:22  

Yes, for sure. Writing is so therapeutic. And you’re right, I think that there’s– we have a great support system as well. But having somebody that you feel like can understand you is really super important. There’s not very many people that have had the same experiences you have, or I have, and so yes, having a journal, writing it out is super great. 

Bianca  15:45  

Definitely. 

Winter  15:46  

It’s so helpful. How about you, Michael, anything that you do to release, or maybe even just check out for a second? To give yourself a rest?

Michael  15:55  

Yeah, definitely. My son definitely. Does it for me. 

Winter  15:58  

Oh, really? 

Michael  15:59  

Yeah, he’ll say dad,let’s go watch something.? Dad, can we go here? Dad let’s go play together. Just anything. I’m just like, okay, I appreciate you. Even though he doesn’t understand what I’m going through. 

Winter  16:10  

Yeah.

Michael  16:10  

He definitely-

Winter  16:11  

-Is helping

Michael  16:13  

 He draws my mind somewhere else. So that definitely, definitely helps.

Winter  16:16  

That’s great. You guys, you got a buddy right there. Taking care of you, for sure. You guys have talked about when you had his funeral, you actually went to a park afterward and did a balloon release. You’ve talked about Valentine’s Day, because that was the first holiday right after he passed away. And you guys wrote a letter to him or wrote cards to him for somebody that was far away. Like, I really loved that sentiment.

What other things are you guys going to try to do to celebrate? I know that that’s, I mean, there’s still a lot of things that are coming up. But you know, you do talk about his due date, and there will be a first birthday and there will be, you know, all of these things that are coming up. Have you guys thought through any more things that you’d like to try and do?

Bianca  17:01  

So for him, for my due date, which is coming up on June 14, I want to get away, like, we’re gonna plan a little family vacation that weekend. 

Winter  17:16  

Good. 

Bianca  17:17  

My due date is on a Monday. We’re gonna try to go away for the weekend. Like, even if it’s like Saturday through Monday, or something just to be away and be with each other. Because it’s definitely going to be hard. We may do like a balloon release for him. And like, you know, I know, we were gonna do family photos together.

I was planning on bringing his little urn to include him in there. Probably like a balloon for him. Like, just to, like, keep him in our memory. I don’t know, it’s gonna be tough, but I feel like it definitely, it’ll be worth it. It’ll be something that we can remember him by.

Winter  18:02  

Yeah, those holidays, you will, you will find are tricky. They can be just going to warn you Mother’s Day and Father’s Day. Those are tricky. So just kind of keep that in mind if you approach them. Bianca and Mike, these are questions I like to ask every single episode of the advice, because I think a lot of people that are supporting lost moms and lost dads want to know what to say and what not to say.

So is there anything that you would recommend people maybe not say in that has or something that somebody said to you that maybe hurt you that you were like, oh, that was probably not the best thing to say. So something that they shouldn’t say? And then if there’s anything that you really liked, that somebody said to you that you’re like that that was helpful, that helps me get through this?

Bianca  18:53  

Yeah, so for me, I would say the one thing that I hated the most was telling me everything happens for a reason, because you’re telling me this, but I can’t grasp the concept, or the reason behind why it happened. I get it, and I understand a lot of people don’t know what to say.

I’ve told many people if you don’t know what to say, just don’t say anything. Just give me a hug. You know, like, um, that would be the best thing you can do for me, but I’ve had everything happens for a reason, or at least you weren’t far along. 

Winter  19:35  

Oh.

Bianca  19:36  

Don’t say that. You don’t say stuff like that. 

Winter  19:39  

Yeah.

Michael  19:40  

For me the one that kicked me was at least you have two others. 

Winter  19:44  

Oh, yeah. 

Michael  19:46  

That was a real like, don’t taunt me to choose who– which kid is more important to me. 

Winter  19:54  

That’s a great way of putting it. 

Michael  19:56  

Yeah, I don’t need that. I also think people should just listen. So when I told everybody she was pregnant, every time someone asked me how she was or like what happened? Like she gave birth and they immediately said, congratulations. Then I’d be like, it was- hold on it was it was a stillbirth.

That one hurt me the most because I got it all the time because people are like, oh, we went to the hospital and everybody knew I was in the delivery ward. Everyone was oh, congratulations. I’m like, it wasn’t like that. 

Winter  20:29  

Yeah. 

Michael  20:30  

I think people should just really listen, let the person get out what they want before you start giving out, congratulations.

Winter  20:37  

Yeah. 

Bianca  20:38  

It’s just like, even with the asking of the questions. It’s like, it’s okay to talk when you’re ready to talk. You don’t have to just because someone asked the question, you don’t necessarily have to answer, you can just say like, you know, I’m not ready to talk about it right now. I got that a lot. I went back to work after three weeks. And it was like, oh, congratulations. And it’s like–

Michael  21:01  

Or someone saw that she was out for a while. She was really out two weeks. When she went back that Monday, someone said “How was your vacation.” It completely took her. She was done. It was another week after that. So that’s why she was out for three weeks.

But yeah, so I think people should definitely just listen, because when they said that to her, and she called me, I can tell it broke her the little bit of traction she gained or tried to recover, or recovery she was kicked back 10 steps.

Winter  21:34  

Yeah, that is devastating. A vacation? Yeah, no, no. This is one thing I’ve noticed in talking to both of you today. I have noticed you guys have been so supportive of each other, you really kind of stick up for each other and are very sweet to each other. It’s been kind of, it’s been kind of cute to watch you guys.

So how would you say you guys are doing? How would you say the other person is doing for this grooming process? Is there anything that you’re concerned about? I know, it’s only been a month. But is there anything that you’re worried about for your spouse?

Bianca  22:06  

I’m worried that Michael didn’t have a chance to grieve just yet. I know he goes through his moments of sadness, of course. But again, guys grieve differently. And he’s so worried about me and trying to make sure that I’m okay that I want him to make sure that, you know, he takes the time he needs for himself to grieve properly.

Winter  22:31  

You guys are just the best, but you’re like you need to take care of yourself. That’s what I tell my husband all the time. So how about you Michael, what do you think of how your wife’s doing?

Michael  22:41  

It’s different all the time. She could be fine for four or five days. Anything as small as a commercial would send her over the edge. I definitely would agree with what was said. I didn’t fully mourn, but when I see her completely breaking down, crying, can’t eat. She didn’t eat after giving birth, she didn’t eat for probably about two weeks.

So I think I go into the, I want to be the defense for I want her to I want her to eat, I want her to rest and I need her to sleep. All doctors are calling , they’re saying, oh, well, let’s just take this depression medication. I’m just like she doesn’t need that just stop trying to force feed something.

Like just give her some time to grieve. It’s only been a month. It’s not like this happened X amount of years ago. So I think I definitely didn’t mourn, but I definitely put her above and beyond my needs to make sure she’s okay.

Winter  23:46  

I’m sure Bianca will appreciate that, or does appreciate that. How much you’re kind of protecting her in a way. So that is very sweet. You should take care of yourself too, though, Michael, I’m just saying. Have you guys had any thoughts about or any a-ha moments about life and death and/or, just your relationship as a couple or your family since this has happened?

Bianca  24:15  

Definitely. Yes, definitely. I now cherish my family even more, because you really never know. You can really be here today and gone tomorrow. Everything will be fine one minute, and then the next minute, everything can change in a heartbeat. So it’s like, now I’m very overprotective, especially with my children.

I find myself saying I love you to those around me a lot more and expressing how I feel because you never know when you’re going to talk to someone again, or when you’ll ever have that chance to say something again. So I try to take in every moment of the day and live in the moment. Rather than trying to Plan ahead now. 

Winter  25:02  

That’s great.

Michael  25:03  

Definitely I agree that we, I was the type of person that if she was like, let’s go to so and so’s house. I’m like, it’s Sunday, I got to work tomorrow. I’m not trying to do anything. I don’t want to do anything. Really. Now, it’s like let’s just go. We need to go see this person we haven’t, or even like, asking someone. Are you okay? I think is big for me. You never know what anybody’s going through. You never know. They might just need that one person to talk to. 

Winter  25:32  

Yeah.

Michael  25:32  

That one person to really just listen. Um, so I find myself asking friends all the time. Like, are you okay? Like, I just need to make sure you are okay. That is what’s big for me.

Winter  25:43  

That is really insightful, Michael. You never know what people are going through? And to just ask, are you doing okay, that is huge. Very good words of advice from both of you. Can I ask just a couple last questions? Was there anything that somebody did for you that really stood out to you? That was very helpful, very special, very touching to you.

I know that Michael, you mentioned that Bianca was like, get rid of the crib, get rid of the stuff. I cannot face it when I come home. And you had somebody do that for you. I thought that right there was huge.

Michael  26:21  

I think someone coming in to pick up the crib, or even someone in general. Just like, hey, I need to do something and they just come fly right in. Picking up the crib was the biggest one because the hardest thing for me to do was to break down that crib. 

Winter  26:35  

Yeah. 

Michael  26:35  

So when they came in, like I called them, he was like, I’ll be there in an hour. They dropped everything that they were doing and came to help us. That was the biggest thing anyone’s really done for us since this whole process started.

Winter  26:48  

Yeah, that’s so kind. They did it before you guys got home right from the hospital?

Michael  26:54  

Yeah, I had to meet him there, but yeah. I wanted to get it out before she even saw it.

Winter  26:58  

Yeah, yeah. And like the fact that he said they’re gonna be there in an hour. I mean, they did drop everything just to help you guys, that was awesome. Having somebody that is willing to help you at a moment’s notice is a lifesaver I think. Any other things that you guys thought stood out to you, that somebody did for you to help you through this? That is helping you through this?

Bianca  27:25  

I would say prayers from those closest to us. Like the random phone calls just to check in to see how we’re doing. I’m just thinking of you and like you’re giving us the, you know, shoulder to lean on, especially in this time, was very helpful. You know, basically just being supportive and just listening. I can call you and you would not even have to say anything, just listen to what I’m saying. 

Winter  27:58  

Yeah. 

Bianca  27:58  

It was very helpful to have those friends that would call and just check in. We can absolutely be our most vulnerable self to them.

Winter  28:11  

Yeah. 

Bianca  28:12  

That was definitely helpful. Receiving flowers for me, was something that just didn’t give me flowers. That was a trigger. 

Winter  28:24  

Really? 

Bianca  28:25  

Yes, every time the doorbell rang, and it would be like a flower delivery, it would break me into pieces. It was a constant reminder of what I just lost. Then flowers die. 

Winter  28:39  

Yeah.

Bianca  28:40  

So, you’re trying to nurture them as I was doing. And then eventually you know, they die. 

Winter  28:48  

Yeah. 

Bianca  28:49  

So it was very hard for me to try to see the flowers and all that stuff. It was very terrible for me. I didn’t like flowers. We got gift baskets with fruit like edible arrangements and stuff like that. Fruit like those were good. Because, you know, like I can, it’s something nutritious to me. 

Winter  29:12  

Yeah.

Bianca  29:12  

And, you know, in that moment of grieving and stuff like that it was very hard for me to eat. So giving someone fruit was more ideal for me. But the flowers were something that broke me down. It was a reminder of when we had to go buy flowers for the funeral. 

Winter  29:31  

Yeah.

Bianca  29:32  

It was a bad reminder. But everything else from like the phone calls to like the sympathy cards and just checking in and you know, being very supportive was very good for us. I definitely encourage people to do that. Especially when they go through a situation like this.

Winter  29:51  

Yeah. It is so nice when it feels like somebody remembers you, especially when you’re like this tragic thing kind of rocked my world. Then after the funeral, everything goes back to normal, right? Everything’s supposed to go back to normal and it’s nice to have people remember you, even to this day. It’s been two and a half years, almost three years since our son passed away, and it feels like I have people still checking in on me, which is a godsend, I think.

Bianca  30:21  

Yeah, definitely.

Winter  30:23  

Yeah. I’m curious to know, if you have any last piece of advice that you feel like, that has really helped you?

Bianca  30:33  

Um, I would say reading. Reading has helped me a lot. I read books on bereavement and books on the loss of a child. That helped me and gave me a lot of insight on the perspective of losing a child. It allowed me to put myself in a different space.

Winter  30:56  

Yeah.

Bianca  30:56  

I really realize that, you know, we’re not the only one that goes through situations like this. And somehow, some way you will get through it. That helped me a lot. Also, taking time out to focus on yourself. I have a lot of self care, even if it’s to just get away, and like, go pamper yourself, like I went and got my feet done, or went and got a body massage. So just like really pampering yourself, and you know, cherishing yourself. It was very hard for me at first because, like I had said, in the birth episode, I blamed myself and my body for failing me throughout this whole process and allowing myself to know that it’s not your fault.

You know, unfortunately, this is something that happened, it’s something that became a part of me, and now it’s my story and who I am today. I’m trying to find the true meaning of Bianca, you know what I mean? And really pick up those pieces and move forward and accept that this is my story. It ends how, you know, I allow it to end. So I have to keep pushing and learn to love myself in a new way, which I’m still learning obviously.

Winter  32:18  

Yeah, that’s, that’s very insightful. You know, you do feel like your body failed you, or something happened, but to take care of yourself. And also just remember your body is also a gift to bring these children into the world. I think that’s good to practice self care. Thank you so much for that. Bianca. Michael, do you have any last piece of advice, or anything that has helped you that you wanted to share before we close up today?

Michael  32:46  

I would say don’t hold in your feelings. While they’re as good or bad. Just tell somebody don’t just keep letting it pile up because it will. You’re doing yourself harm a disservice. Just talk to someone you really trust.

Winter  33:01  

Yeah, people need to remember that. I want to thank both of you for coming on today. I’m so sorry about your sweet Jalen, and I hope that this is a way that he can be remembered.

Bianca  33:15  

Thank you so much. 

Michael  33:16  

Thanks for having us.

Transcribed by https://otter.ai

Filed Under: advice, early term stillbirth, podcast episode, stillbirth Tagged With: advice, stillbirth

Mom Bianca’s Stillbirth Story of Jalen During The COVID Pandemic at 20 Weeks

February 1, 2022 by Winter

Mom Bianca tells of her pregnancy with her 3rd child, Jalen Jeremiah, and complications with her cervix, which led her medical provider putting in a cerclage around 20 weeks. Some of the stitches had come out, causing Bianca a lot of pain and the beginning of labor. Jalen did not survive the birth and was stillborn on February 2021, likely due to the umbilical cord around his neck. Her pregnancy, Jalen’s birth, and funeral were all during the time of the COVID pandemic.

Watch here (YouTube):

Listen here (podcast):

Time Stamps:

  • 0:00 Jalen Jeremiah
  • 1:54 Introduction
  • 4:30 Pregnancy
  • 7:29 Cervix Funneling
  • 8:45 Cerclage
  • 11:16 Emergency
  • 15:27 ER
  • 21:28 Birth
  • 32:10 Funeral
  • 35:06 His name
  • 41:55 Going home
  • 44:27 Support group
  • 48:02 Momentums

You might appreciate these other episodes:

  • Watch/listen Michael’s (Bianca’s husband) birth episode of son Jalen: Click here
  • Watch/listen to Bianca’s and Michael’s advice episode after Jalen’s death: Click here

Wanna help?

  • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
  • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
  • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.

Full Transcription:

Bianca  0:00  

Jalen Jeremiah. 

Bianca  0:02  

I remember, he was so perfect. He had a little tiny button nose, 10 toes, 10 fingers. I remember holding him in my arms and just smelling him. He was just so tiny and little. I felt his cheeks and it was so soft and velvety. That Sunday that I had him. I remember, it was a very cold day, and it looked like it was going to rain. I remember getting to the hospital, anxious, very anxious, not knowing the outcome of the situation and how bad everything had turned. But I just remember holding him and he was just so perfect. He was just like my son, just a tinier version of my son. He resembled Michael a lot. He had his exact feet, the same toes. He was just so little and just amazing.

Winter  1:13  

Welcome to Still  A Part of Us a place where moms and dads share the story of their child who was stillborn, or who died in infancy. I’m winter.

Lee  1:20  

And I’m Lee, we are grateful you joined us today. Please note that this is a story of loss and has triggers

Winter  1:25  

Thanks to our loss parents who are willing to be vulnerable

Lee  1:28  

and share their children with us. If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

Winter  1:37  

Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us. They’re still a part of us. 

Winter  1:54  

Bianca, thank you so much for coming on the podcast today. I am just so impressed with you right now. Your strength and your willingness to share Jalen with us today. So thank you for coming on. Can you tell us a little bit about yourself, who you are, where you’re kind of located at least in the country and what you do on a day to day basis?

Bianca  2:16  

Yeah, so I am a medical claims analyst. I live in Massachusetts. I have two children. I have an 11 year old daughter Cynthia, and a six year old son named Josiah and they are wonderful children. They were looking very forward to being you know, big brother, big sister. We were just wanting to expand our family and grow and you know, become closer to one another.

Winter  2:47  

And anything you guys like to do in your spare time as a family, or as yourself, what kind of hobbies do you have?

Bianca  2:52  

I like gardening as a family, or we tend to go on road trips. We do a lot of road trips every year to go somewhere new. So we do that together. We enjoy watching movies together and just going out and enjoying each other’s company.

Winter  3:10  

That sounds so fun. That’s wonderful. And your husband is Michael is that right? 

Bianca  3:15  

Yes.

Winter  3:16  

How long have you guys been together? 

Bianca  3:18  

We’ve been together for 14 years. 

Winter  3:20  

That is awesome. 

Bianca  3:21  

We’ve been together since we were 14. 

Winter  3:25  

Yeah, that is awesome. So you guys were junior high school sweethearts.

Bianca  3:30  

Yeah pretty much. 

Winter  3:33  

That’s awesome. That’s wonderful. Well, and what area are you guys living in? Oh, did you guys already answer that? You guys probably answered that didn’t you?

Bianca  3:45  

Yeah, so we live in Massachusetts. Not too far from Boston.

Winter  3:49  

Awesome. Okay. And you guys have lived there in that area most of the time you’ve been together? 

Bianca  3:56  

Yes. We both grew up here. 

Winter  3:58  

Okay, wonderful. And so as to give a little bit of context for our listeners. Can you tell us how long ago Jalen was born?

Bianca  4:09  

So Jalen was born Monday, February 1 of 2021. So a little over a month ago.

Winter  4:15  

Yeah, it is so new for you guys. So I thank you so much for coming on today. Tell me… so you’ve told us you have two other kids and how did this particular pregnancy go compared to your other pregnancies that you’ve had?

Bianca  4:30  

This pregnancy was by far the best pregnancy I’ve ever had. 

Winter  4:36  

Really? 

Bianca  4:37  

Yes, I’ve had no complications at all. No morning sickness. It was just, like, amazing. With my other two children. It was very complicated. I was sick all the time. I want to say like all three trimesters. I was very sick. I couldn’t really keep anything down. But this pregnancy was just different. I was able to eat. I was so happy. It was amazing. Like, I really didn’t think this would be my outcome based on how amazing this pregnancy was to me. Yeah, he was a very good baby. I didn’t have any type of aversions, food aversions, anything like that.

Winter  5:24  

So really good pregnancy, oh man. Were you guys planning on having Jalen then? Was that like a planned pregnancy? 

Bianca  5:33  

Yes, he was. 

Winter  5:34  

Okay. So and No. Did you guys have any issues getting pregnant? Or was it pretty? standard?

Bianca  5:40  

Um, yeah. So we actually became pregnant after two months of trying. I was on birth control. Then we decided to come off. Two months after I came off, I got pregnant with him. We had a positive on September the 28th.

Winter  5:58  

Oh, wow. That’s awesome. So you, so no issues and it was kind of one of those things where it just kind of worked out right?

Bianca  6:06  

It did. Yes. 

Winter  6:07  

Yeah. That is, that’s so frustrating when you’re like, this is not what I was expecting it to be though. So, tell me a little bit about how things progressed then. You guys found out in September of 2020 that you were pregnant and everything was going really well with the pregnancy sounds like you were quite comfortable and excited. Your kids were excited. You guys were excited. So that’s wonderful. All of the medical checkups and everything, how did those go with it? Was there any sort of indication that anything was an issue?

Bianca  6:44  

No, so everything was fine. All my appointments were perfect. I have my appointments, my checkups, the baby was growing, and very healthy. Everything with me was fine. I was feeling good. It was up until my 20 week anatomy scan. Actually it was before my 20 week anatomy scan. So I ended up going to the hospital for a checkup the day after Christmas. They want to see me every two weeks because of my history with both my two previous pregnancies. My son was a preemie and he was born at 32 weeks. 

Winter  7:29  

Okay. 

Bianca  7:29  

And so they were concerned as to whether or not I would go into labor early this pregnancy. So they wanted to monitor that very closely ahead of time, so that they would be able to detect once my cervix started to dilate. So I was going in for my checkups every two weeks. I went on January 12th. For that was the beginning of that two week period, they wanted me to start going.

When I went to that appointment, they did a cervical scan, basically to see if my cervix started to dilate at all. And they checked the baby and he was fine growing healthy. At that appointment, everything was fine. When I was there. Two days later, I got a phone call from my midwife and she said that she’d noticed my cervix had started to funnel. So I really wasn’t sure what that had meant. But she basically said that if you look at a funnel, the way that a funnel is shaped is how it has a narrow end. Then the top of my cervix basically the baby was starting to push down. 

Winter  8:45  

Okay.

Bianca  8:45  

So eventually my cervix would start to open. She noticed that it began to funnel and they wanted to go over my options on whether or not I wanted to take progesterone shots, or if I wanted to get a cerclage put in place. Basically what this cerclage does is it’s like a stitch that stretches your cervix shut. Then it’s supposed to prevent preterm labor. I had told her that I wanted to talk to my husband and I had an appointment coming up two weeks later for January the 26th. I wanted to, you know, think about it and then let her know at that appointment whether or not I wanted to do either the cerclage or the progesterone shots. 

Bianca  9:34  

At that appointment on the 26th I had my anatomy scan. So they did the anatomy scan. They checked the baby and everything first, and he was fine. I actually got some ultrasound pictures where he was actually smiling. 

Winter  9:50  

Oh, oh, that is wonderful. 

Bianca  9:52  

Yeah. So that made me happy. Then she checked my cervix and I remember her pushing on my stomach. I can see because I have the screen in front of me and she was pushing on my stomach. As she was pushing, I saw something like an opening, every time she would push, I would see an opening. So I was like, “Is that my cervix?” And she said, “Yeah, you see that?” And I’m like, “yeah, that’s really weird.”  It was opening really big. So I got scared. She had stepped out and said she was gonna go get one of the high risk doctors to come in.

She had left. And at that point, I didn’t think anything of it because I’m like, the baby was fine. His heart rate was good and he was moving around. He was doing everything he was supposed to be doing for his gestational age. 

Winter  10:42  

Right.

Bianca  10:44  

The doctor had come in and they told me at that point, I needed to go over to the hospital to get an emergency cerclage put in because I was beginning to dilate and eventually he would come. I was nervous about that. I remember calling Michael. Michael was at work that day. I was like, I don’t want to do surgery. I went over to the hospital. They didn’t actually do it that day. They ended up scheduling it for two days later. I had the surgery done on the 28th of January, which was a Thursday

Winter  11:14  

Okay.

Bianca  11:16  

That Thursday, I went to the hospital, they put me to sleep, I was under general anesthesia. I remember the doctor that I had, it was just not a good experience. I felt like the communication was very off. So I had a ton of questions. I felt like my questions weren’t really being answered as they should have. 

Winter  11:39  

Yeah. 

Bianca  11:40  

At the time, Michael wasn’t able to come in because of COVID, I had to go for myself. So I got dropped off to the hospital. I remember just being frightened and I had questions. I felt like my questions weren’t really being answered. So they gave me the IV and I was getting wheeled into the operating room. I remember, they were telling me that I would fall asleep soon, because the drugs that they were giving me were supposed to make me go to sleep for the procedure.

I remember the doctor saying, “Oh my gosh, Bianca, this is going to be very risky.” And I was trying to get my words out to ask what’s going on, but I felt myself going to sleep because they had given me the medication already. I remember waking up in the recovery room, and I was like, is my baby, okay? They were like, yeah, the baby’s okay. It was very risky, because the membranes were beginning to come down and to my vagina. They had to basically push it back up and stitch it. It was risky, because during the process, there was a potential risk that he would break my water by accident. So luckily, everything was fine. Surgery and everything was a success. 

Bianca  13:01  

I waited at the hospital for a couple hours until I was able to recover. Then my mom came to the hospital to pick me up and brought me home. That was on a Thursday, so the Friday I remember being in so much pain, because of the surgery. So I thought, Oh, okay. I thought it was because of the surgery, I was bleeding, which they said would be normal because they tampered with my cervix. They said that the pain was normal because you know, they were messing with my cervix as well.

I remember saying to my girl, “I’m in so much pain, I’m cramping.” I had my previous son naturally, so I knew what the contractions felt like and it very much felt like contractions to me. I remember calling the doctor and I was explaining what I was feeling. They were telling me “Oh, no, that’s normal. Just take a Tylenol, you’ll be fine.” I had a checkup that Tuesday. So I was just like, okay, and I ignored taking the Tylenol. 

Bianca  14:12  

Saturday came and I’m just like, I don’t feel right. I had called the Doctor again and they have prescribed some type of medication that’s supposed to stop the contractions that I was having. I remember reading the back of the medication and I was like this says not safe to take in pregnancy. I was iffy about taking that. I was very iffy and my doctor reassured me that it was completely safe. He said he gave me a low dose and that it would help with the contractions that I was experiencing. I took the medication even though I had doubts from the beginning about taking it. 

Bianca  14:54  

I took that and then Sunday, everything just went downhill. My contractions were more intense, I started to feel a lot of pressure. I remember saying to Michael, “Should I go back to the ER and get evaluated.” And he was like, “Make sure you call your doctor first and see what the doctor says. I remember calling the doctor, this was the same doctor that did the surgery. He was just like, “Oh, I don’t think anything is wrong. But you can come in and we can evaluate you and see what’s going on.”

Bianca  15:27  

So I remember going and I had to go by myself again, because of COVID and I had got there and I could barely walk. It was so intense that I could barely even stand up straight and walk because the pain kept coming very intense, very strong and quickly. So they checked me in and I remember going to the back you know, where they called you in to assess you and all that. Then the nurse was talking to me, and she was asking what type of pain I was feeling. She wanted me to change into a Johnny and sit down on the stretcher that they had there. I remember telling her, “I can’t even take my clothes off. I’m in so much pain, I can’t even take anything off.”

She helped me and I remember another nurse came in and they were going to do a speculum exam, just to see what was happening. They did that. I remember usually speculum exams her a lot for me. I remember they put the speculum, but it was barely in. They both looked at each other. Then they said that they had to call a doctor. I was very scared. I had turned to the nurse. I was like, “Is everything okay? “And she was like, “Well, the stitches came out and your water stack is right here. Like it’s right there.” I’m like, “No, like, it can’t be there.” I was only 20 weeks and six days that Sunday, I was gonna be 21 weeks, the following day. I was just like, “No, this can’t be.” So I was like, “Can you please call my husband?” So she was like, “Yep, you’re going to be admitted.”

Bianca  17:15  

The doctor came down and the doctor was very blunt. He came to the room and he said, “You’re 20 weeks and six days, we’re gonna have to admit you and get this baby delivered, there’s going to be zero to little chance of survival for him because of his gestational age.” I remember saying to him, “Please hold, please just wait.” And I’m like, “Even if he comes this early, is there any way that the NICU you can, like, you know, help him out? Or like even get involved?” He said “No, because babies that little don’t have a chance of survival and the NICU you will not step in until a baby is at least 22 weeks.”

Even though he told me all that I remember just being there and I was in a state of shock. This can’t be my life right now. Like, there’s no way I didn’t want to believe it. For some reason, I had some hope that what he was saying was wrong. 

Bianca  18:19  

I remember the nurse had come back and she’s like ,”We called your husband, he’ll be on his way.” I remember Michael sent me a text and he was like, what’s going on, and I just couldn’t even respond to him because I didn’t know myself. I, for some reason, was just completely numb. I was completely numb to the situation. I just didn’t want to believe it. So, after that they brought me upstairs Michael came and the doctor was explaining to Michael everything that was going on. I felt very alone at that moment. I felt very defeated.

Bianca  19:04  

I went upstairs, and I got admitted. Everything just happened so quickly. This was like on a Sunday afternoon as well. Everything just happened so quickly. They first had to take the stitches out before I could deliver because they didn’t want it to interfere with the labor process. I remember, I didn’t want an epidural. I didn’t want to take any drugs either. I wanted to feel everything. You know what I mean? Like because I wanted to remember him and I didn’t want to be completely numb.

I knew at that moment I was emotionally numb, but I didn’t want to be completely numb to the situation. They took the stitches out and that was a very painful process for me. Took about 20 minutes. For some reason my water was still intact. I was so hopeful that maybe they can take the stitches out and I can be on bedrest, you know, like, maybe they can keep me in the hospital and I can stay here. Everything can work out, maybe I can get to 22 weeks or they can possibly save him. 

Winter  20:19  

Yeah. Did the doctors give you any sort of.. it was.. there was no hope. They basically said there was nothing to do.

Bianca  20:29  

I felt like they pretty much just wrote him off. At that moment. From the time I was in the ER, I felt like they pretty much just wrote him off like, she’s going to deliver and that’s going to be it. I don’t feel like they’ve done everything they could have. I felt like the doctor that I had was very harsh. When he was taking the stitches out, I wanted him to be careful, because I knew that my water was right there. Like the bag was right there. He was just so rough.

I remember, he put like an awesome object that looked like a hook to pull a stitch out. I just remember this warm sensation falling down my leg and I’m like, “Did you break my water? Did it break?” Everybody in the room just got quiet and I just started bawling. 

Bianca  21:28  

After that, they gave me some medication to get my labor to start to progress. I delivered Jalen on that Monday morning at 1:13 in the morning. Labor was very intense, very much real and painful. I had no desire to push because I just wanted to be pregnant for as long as I could be pregnant. I wanted to stay pregnant for as long as I could. I remember having this nurse by my side. She was very amazing. She was like an angel sent from above like she stood by my side the whole time. She rubbed my back, she laughed with me and cried with me. She was just so amazing and made the process and my experience so much more special. Not once did she leave me at all and I just felt like she was like a mom to me at that moment.

I remember pushing him out and I was on all fours. It was so difficult for me. I had no desire to push because I wanted him to stay in. I felt like he was safe there. He was safe with me and then once he came out it would just be over with and that’s the part that I struggle with the most. I remember him coming out and I took that last and final push. He came out and the room was quiet. I couldn’t see him because again I was on all fours and I remember turning to the nurse, “I was like is my baby okay?” She looked at me and she said “He has no clothes.”

Bianca  23:47  

I turned around and sat down. She wrapped him in a blanket and handed him to me. He was so perfect. I remember giving him a kiss on his cheek and telling him how much I loved him and how I was sorry because I felt like my body failed him. I had so many plans for him. I was prepared. It hurts me so bad because I will never get to see his eyes, I will never get to hear his cry, or feel his little fingers wrapped around my finger at all. The worst experience was of course the labor, but saying my goodbyes to him at a hospital and leaving him there knowing that I was going home and not being able to take him with me. Being on a labor and delivery Ward with other pregnant women, you know, they get to see their babies and I leave mine behind.

Bianca  25:20  

He did have a little bruising on the left side of his cheek. They did say that it was because the umbilical cord was wrapped around his neck. 

Winter  25:31  

Oh, really? 

Bianca  25:33  

Yeah. And so once my water had broken, with every contraction that I was having, and one stroke to get tighter around his neck. I feel like I just let him down like my body failed. This is like a meeting that we both wanted. We both agreed that we both were so happy about it. The kids are so happy to have him and then having to explain that he’s not going to be here anymore really broke me down. Especially with my six year old having to explain to a six year old that was so excited that he was going to help a brother that he’s not going to physically be here with us was hard to explain.

Bianca  26:32  

Shortly after I delivered him. We decided to go home that day. It was a very bad snowstorm. I didn’t want to stay in the hospital. They did say I can stay for two days. I remember saying “No, I don’t want to stay here anymore. I just have to leave.” I kept seeing pregnant women, I kept hearing babies crying in the hall and I just wanted to leave. 

Bianca  27:06  

They did ask me how I wanted everything to go in terms of Jalen and I told them that I would reach out to a funeral home because I did want to have a service for him. Um, the hospital said that they do a program basically where they would dispose of his body. They would dedicate a plaque in our cemetery nearby. At that moment, I was just like, you know what I don’t want to… I didn’t want to do that. I wanted to be in charge of what I did with him with his body. You know, I don’t feel like we were going to stay in Massachusetts much longer. We plan on relocating soon. I would feel so guilty of not being able to, you know, have his remains with us and having him here in a cemetery where I wouldn’t be able to visit and I just felt very terrible about it. 

Bianca  28:14  

We both agreed to get a funeral home that we both were familiar with. They picked him up from the hospital. We ended up getting him cremated and we have his ashes and an urn in our room that we keep close to us. We created a memory table for him. It was like his pictures around and his Teddy bear that he was holding at the hospital. We have his blanket. We created a Memory Box for him with a pregnancy test and first ultrasound pictures of his blankets, his teddy bears that you know the blanket he was wrapped in and the teddy bear he was holding and the first outfit that we both bought for him. We have a lot of pictures that we took in the hospital that we’re able to look back on. I ended up getting those printed out and put that in his memory box. I’m so grateful that the nurse offered to do a little photoshoot for him. 

Winter  29:29  

Oh wonderful.

Bianca  29:30  

Yeah, she was able to get professional pictures done for us that we have to look back on. She got him dressed up. She put on this really cute outfit on him. It was like a little baby blue shirt and she wrapped him up in a little Winnie the Pooh blanket where he had a baby blue knitted hat on to fit him because he was so tiny. He was 10 and a half inches long and he was 11.5 ounces. Very tiny, I was able to hold him in my hand. He was so tiny.

I was just grateful to have those pictures to look back on. You know, I really encourage pictures. Taking pictures, because at that moment, I didn’t want to take pictures, but I’m glad that we did. Because now, we have pictures of the three of us. It’s something that I cherish and look at every day. We had a funeral service, and the kids were able to see him for the first time there. They weren’t able to finally process it. Seeing him physically. 

Winter  30:52  

Did you end up calling or letting your kids know what was happening when you guys were at the hospital? Is that what happened?

Bianca  31:00  

Yeah, so Michael ended up calling my daughter. She kind of knew when I had left to go to the ER, the night before. She knew something was wrong. When she noticed that Michael had to leave out. He had to end up bringing the kids to my mom’s house and said that he had to go to the hospital with me, told her that and she knew she was texting me with “Everything, okay? I wasn’t responding, because I didn’t want to worry her. He let her know that this is what’s happening and the baby is not going to make it. She at that moment had broken down which broke me down even more. My son just didn’t understand. 

Winter  31:55  

Yeah at the funeral, so they got to meet him? Was it just your family? Did any of your other immediate– like your mom, was she able to come and see him and meet him?

Bianca  32:10  

Yep. So we had a more intimate service. It was just like, immediate family and some friends. Yeah, really close friends. Michael had two friends and I had my two close friends. They did it where they had us come like an hour earlier. So me, Mike and the kids. We had our time, our one on one time where we, you know, can have the kids process everything and see him and ask any questions they needed to ask.

Winter  32:52  

How did they take it?

Bianca  32:54  

My daughter was very hurt. My son was upset. I remember he had said, “You guys promised I would have a brother.” That was hard to explain to him like you still have a brother. He’s just not here. He has to be with God now and Heaven and he’s watching over us. He didn’t understand that concept. He didn’t understand why he had to go. And it was hard for me to explain to him why he had to go as well. I still struggle with that till this day. You know, he goes up to his urn, and he’ll talk to the urn, and help pick it up. And I’m like, “Hey, put that down.” So what I did was I went out to build a bear, and I ended up getting them a teddy bear for both of them. One has his heartbeat from the ultrasound in the arm and so we had a ton of clothes that we had purchased.

We were preparing, buying things little by little. I remember putting Jalen onesie on the teddy bear. And so he’ll go and he’ll push the teddy bear and hear the heartbeat and it plays a song, which is a song that we played at the funeral. He’ll go, he’ll hug it, he’ll play it and every now and again he’ll shed a tear and he’ll say, “I miss Jalen”, and I’m like, Yeah, I miss him too. It’s very hard. He has his days where one day he’s fine. And then the next day he’s breaking down my daughter as well. She has her days or some days it’s easy for her and some days. She’s hugging her teddy bear and looking at his pictures. 

Winter  34:50  

It’s so hard for the siblings. It’s yeah, yeah. Can you tell me why you guys named him? Jalen is that a family name is that I? Is that just a name you guys have really liked?

Michael  35:06  

We were throwing, what seemed like 1000 names out. We probably said about 1000 names 999 were getting swatted by each other? 

Winter  35:18  

That’s what always happens. 

Michael  35:19  

Yeah, so I guess Jalen came up and we both we’ve finally agreed and we stopped that that because if not, we were just-

Bianca  35:30  

So just read I really like the name Jeremiah. 

Winter  35:35  

Hmmmh

Bianca  35:35  

Which is his middle name because my daughter’s name is Sanya. My son is Josiah and then Jeremiah, you get the ring. 

Winter  35:42  

Oh, there’s definitely that either, and I like it.

Bianca  35:47  

So I love the name Jeremiah. Josiah is also a biblical name and so is Jeremiah. So I really wanted to keep back on as well as Michael. So I’m like, look at we’ll have all the boys in the house have a biblical name. Michael’s like, “I just don’t like that for a first name.” So first he mentioned Jaden, and I’m like, I don’t like Jaden too much because we have family members named Jaden. So I was like, what about Jalen, and so my mom’s name is Juliene and so she was like, yeah, Jalen, that’s perfect. She’s like, yes. So we ended up naming him Jalen Jeremiah and we both agreed to that. 

Winter  36:35  

It’s got a nice rhythm.It’s got a nice rhythm to it. I really like it a lot. 

Bianca  36:43  

Thank you. 

Winter  36:45  

So you guys have a nice little kind of a memory wall. A Memory Box for Jalen. Is there anything that you guys, what other things that you did during the delivery and even at the internment? Is there anything that you wanted to do? That was really special that you wanted to kind of remember him by? It sounded like you guys had a special song that you played for him too. During the funeral? 

Bianca  37:12  

Yeah, so we played Surrender by I think her name is Natalie. Um, so we played that song and it’s a really heartfelt song. My sister created a slideshow for us that we played at the funeral as well. So it was like, the moment we found out we were pregnant with the pregnancy test. We got those on camera. We were able to throw in his first ultrasound where they confirmed that, you know, there was a little Bean that was his nickname. We all called him Bean. Our announcement photo, we announced our pregnancy on Christmas Day. 

Winter  38:01  

Oh, fun. 

Bianca  38:03  

Yeah, so that was exciting. For us, everyone found out on Christmas Day, and I couldn’t hide it anymore at that point. It was like either I told them on Christmas Day, or they’re gonna just wonder what’s going on because my stomach was starting to poke out too much. Usually, like Valentine’s Day, He was born in February, the first and Valentine’s Day came. So what we did was go out and we bought a card. It was like a card for a loved one that’s far away. I bought him a card and wrote everything I was feeling at that moment in the card for him. I think I want to keep that going on holidays, like, include him and stuff like that, and continue to talk about him and, you know, plan for different milestones that he would have reached with our due date coming up.

I know it’s gonna be very challenging for us, but I want to do something in remembrance of him on that day. Whether it’s to go out and do something in memory of him or do a balloon release. I know at the end of the funeral, we went up to the park close by our house and we all let go–We wrote on a balloon, wrote him a message and we said a balloon release and let it go for him. 

Winter  39:31  

That’s awesome. That’s, that’s so that’s a fun thing to do. Yeah, send a message. Right.

Bianca  39:40  

I think he sends us a lot of messages too, because I, I don’t really I can almost feel his presence with me. After I gave birth, I still feel like I’m pregnant. Like even sometimes I’ll sit here and I feel like I can still feel him kicking. It’s so weird to me because it’s like I’ll look at Michael I’m like, I feel pregnant. Like, I feel like he’s here. My stomach, I can feel him moving like, it’s, it’s the weirdest thing. I remember one day I was crying. And I just wanted him, you know, just couldn’t understand why I wanted him here so bad. My TV just shut off, or I’ll come across like a name. I’ll be working because I work from home and I’ll come across a name of a patient and it’s Jalen, and it’s just like, my baby is trying to like, talk to me. Let me know that he’s okay. 

Winter  40:42  

Yeah. Like, you know, he shows up every so often.

Bianca  40:48  

Yeah, I feel like he’s trying to let me know. It’s so weird. I do. I do try to like, talk about him. I feel like it helps me a lot to like, continue to talk about him and share his story. I just wish that some days, I wish I could have had the chance to tell them how much I loved him and how much he was wanted and how much we all needed him. Especially me. I felt like I really needed him at this moment in my life. I wanted him more than anything. If I could have done anything to save him, I would have without a doubt. The moment I hit my second trimester, it was on game like I started going shopping. We had Michael put his crib up. We got the stroller, the car seat, the clothes, everything, we got everything but diapers and formula. So that was hard. That was very hard. 

Winter  41:54  

Yeah. 

Bianca  41:55  

I remember the day that I ended up leaving the hospital. I said to Michael, can you get somebody over the house and take that crib down and take the car seat and take the stroller and just get it out cause we had his nursery set up. I didn’t think I could come back home to that all being there. So I ended up getting dropped off at my grandparents house. Michael had called somebody and they took the crib out. We ended up donating it to a women’s shelter. I just kept his clothes. The only thing I did keep was his clothes. I haven’t gotten the courage just yet to get rid of any of his clothes. They’re all still packed away in his drawer.

As far as everything else, we got rid of all the big stuff that I just wanted it to go because I didn’t think I had the courage to walk into his room and see all that stuff there knowing that he wouldn’t be here with us and he wouldn’t be using any of this. It was his stuff. It just broke me down to even think about going home and all his stuff was set up and ready for him it tore me apart. So I did tell Michael to take that down. But the dresser with his clothes in it. Leave the dresser, everything else you can take, the stroller and the car seat. We didn’t throw away the box. So we were able to take that back. I just wanted it gone.

Yeah, I still have his clothes that I plan on keeping until it’s the right time. I don’t think it’ll ever be the right time, but it gives me comfort, being able to look at them. And you know, it gives me something that we bought for him. So I don’t really feel comfortable just giving it away just yet.

Winter  43:54  

Yeah. And you, you should hold on to it as long as you need to. Because you know what you might need your kids might need to dress up their Build a Bears in a onesie or two. So yeah. Now is there anything else you would like to tell me about his birth or anything that you want to remember about him?

Bianca  44:18  

Oh, yeah, so the hospital has a program, or like a support group called empty arms. 

Winter  44:26  

Mm hmm. 

Bianca  44:27  

They reached out to the organizer of the program. And I remember while I was in the hospital, she reached out to me and I remember just looking at my phone and I’m like, I don’t want to talk to anybody right now. I can’t explain anything about what just happened. I don’t even want to talk about any of this right now. So I ignored her for a couple of days. And she kept reaching out and eventually I opened up and I let her in. And she has some volunteers that go to the hospital. They’ll do things for the baby, which I’m so grateful for.

They were able to make us castings of Jalen’s hands and his feet. I do have that with his footprints and his hands to look at and have like a visual. That helped me a lot in this grieving process, every now and again, I’ll go in that box, and I’ll pull out the casting, then I’ll like, rub his feet and just look at them and look at his little toes and his hand, they were balled in a little fist. I just look at those. I’m just grateful that I had that and that support group. They do have meetings where I’m able to, like, have virtual meetings with other moms that went through the same thing. We’re able to share our experiences. I feel like it helps a lot to know that you’re not alone in the situation.

Before this happened to me, I never really thought about this like until it happened. Like, I knew this kind of stuff happened. But I didn’t know it happened like this, or, you know, like, I hear other stories and stuff. It’s just like, wow, it’s so yeah, the emotions are so raw and so real. I’ve had other losses in my life, but nothing compared to this type of loss. This type of loss was something that I felt like, it hit me deep down. Like, I know, every loss is painful. But this type of loss was something that was just I felt like I lost a part of myself, the day that I lost Jalen. And I don’t feel like I will ever be that Bianca, that I was in September 2020.

When I found out I was pregnant, I will never be that person again. The day that I lost him, I lost myself. Like he took a part of me with him. I feel like that’s the saddest part because I really, I had so much hope for him. I just, I plan for everything when you lose a baby, not only plan for the baby, but you plan for their future you plan for, you know, their first solid food and the first walks and all that. I won’t get to experience any of that with him.

Winter  47:58  

Yeah, it is. It’s devastating.

Bianca  48:02  

But yeah, it was definitely grateful to have the momentums that I did get for him and the pictures that I do have, that I cherish every day and you know, trying to carry on his memory and by creating that memory table, and we both have necklaces, in remembrance of him. And so we wear this every day. I haven’t taken this off at all.

Winter  48:33  

Yep, I know what you’re talking about, that’s what you do. 

Bianca  48:39  

Yeah, so I think that’s my little bean. 

Winter  48:43  

I love that. I love that. Thank you so much for sharing his birth story with me today. I know it’s not an easy task to do that, but I hope that it has helped your heart and I hope it has. Well you’ll have this memory of it with you so, so thank you again, thank you again, Bianca, for coming on today. We will talk to you soon. 

Bianca  49:10  

Thank you, thanks for having us.

Transcribed by https://otter.ai

Filed Under: birth story, early term stillbirth, podcast episode, stillbirth Tagged With: stillbirth

32: Dad Scott advises how to talk to parents who have lost a child

March 15, 2020 by Winter

After his daughter Henley is stillborn, dad Scott tells us of things that he doesn’t like people to say to him about his daughter and tells of how much he appreciates it when people say her name and acknowledge that she was a person.

Scott and Meghan: Fans of Disneyland

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission. This commission comes at no additional cost to you, our wonderful listener!

In the Advice podcast episode, dad Scott talks his life after losing his daughter Henley to stillbirth:

  • Time Stamp 1:58: Finding a support group was especially helpful and it doesn’t need to be a grief support group even
  • Time Stamp 8:57: What you shouldn’t say to a loss parent
  • Time Stamp 9:57: What you can say instead
  • Listen to Scott’s birth story of Henley who was stillborn here in Episode 31.
  • Listen to Scott’s wife, Meghan’s birth story of Henley here in Episode 29.
  • Listen to Scott’s wife, Meghan’s advice of dealing with grief after Henley’s stillbirth here in Episode 30.
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  • Spotify

Full Transcript

Lee 0:10
This is Still A Part of Us, a podcast where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Lee Redd, and on this episode of Advice and Encouragement from a Loss Dad, I chat with Scott, whose daughter Henley was stillborn at 36 weeks.

By the way, you can hear Scott and his wife’s episodes about the birth of their child on episode 29 and 31. Today, Scott and I talked about how he has a special doll that he bought for Henley, when they first found out that they were pregnant and how that holds a special place in his heart for his daughter. We talk about strategies that we can implement in our own personal lives, on how we can talk with people who have experienced loss.

As a word of caution to our listeners, this discussion contains emotional triggers of stillbirth and infant loss. Please keep yourself emotionally and mentally healthy and seek help if needed. Hope this helps somebody out there.

And we’re back with Scott, and he’s going to be talking about his daughter. Scott, give us a little recap.

Scott 1:25
Alright. Hi, I’m Scott. My daughter’s name is Henley. With what happened everything: she was 36 weeks. My wife was 36 weeks pregnant, and she was stillborn.

Lee 1:36
And now we’re going to be talking about advice. And I personally don’t like to call it advice. It is advice. It’s, it’s stuff that has helped you, that you would like to pass on to other fathers and other parents. What has been something that you have greatly appreciated that somebody has done for you or that you would like to pass on to somebody else?

Scott 1:58
Okay, one thing that really, really helped me out was the support group I have here with friends. And they, they really, some of them have had the same situation happen, or they’ve had some type of loss with a child, but they were able to help me out with talking with them. But also just kind of staying busy for me, and helping support my wife. I really threw myself into work, which sometimes is not always the healthiest, but I do that, and then I come home, I talk with my wife, with my friends. And I found hobbies have also been very helpful. We started a Disneyland social club and go to Disney. And we had a great time doing that, and meet a lot of really fun, interesting people, same exact things that they’re into. Yeah.

Lee 2:55
And with the social club, is it open to anybody or you sort of more select or…?

Scott 3:01
It is open to everybody. Anybody that would be interested in joining, it is a lot easier to join a social club than it is to make one, we’ve learned. It’s also very expensive to make one. But yeah, it’s open to anybody. It is preferable for somebody with an annual pass, just that way they can come more than once a year to do meetups and hang out with everybody. But really there’s…anybody can join. The president or the vice president I had that was with me, I still consider her my vice president, but she moved to Florida, and now she is the president of the Disney World chapter of our social club.

But yeah, it’s it’s really easy to join. If you wanted to look into joining our group, we have a…kind of like a scavenger hunt, a Disney scavenger hunt kind of thing to do. And it’s super simple. It’s usually like take pictures in front of, of all the mountains of the park, like Space Mountain, Magic–or Space Mountain, Splash Mountain, Matterhorn, Thunder Mountain. And then there’s a take pictures with certain characters, get pictures of certain scenery. And then we also do, I got this from another club, but four acts of kindness. So it could be as simple as just yousee a piece of trash and pick it up. Or you see a child who’s crying, and so you give them these little Disney pins that people buy and trade and stuff like that. Just give them a little pin just to make them happy, make their day a little better, or a way to make those parents of the child, their day a little easier. Because Disney with a little kid is usually not as fun as most people think. It’s pretty stressful, trying to make sure that they’re happy and entertained, and all that stuff. So little things.

Lee 4:44
Now, have you found with your social club with such a–I’m assuming it’s sort of a diverse group of people–are you able to share your personal like, do some of the people in your club know about Henley or is it–?

Scott 5:00
Everybody in my, everybody in my club knows, but several other social clubs–there’s hundreds of them–they know too. We all follow each other on Instagram and stuff. And we posted up. First we posted up that we were pregnant, and everybody was super happy and all that stuff like that. And then later on, we had to post what happened and to show what happened, we, my wife and I, we each had tattoos done on our arm. And we posted the pictures of our tattoos to show what happened and everything. And it’s been nothing but love. People coming up to us, hugging us, sending us messages. Some people have come up to us and they started telling us their stories, which has been fantastic. And it’s basically like there’s a larger club within all of these other clubs now, that people are more talking about now than they used to. They used to just be like, Oh, let’s all hang out. Let’s meet up. Let’s go ride this ride together. And now it’s–now people are getting to some different discussions going on.

Lee 6:02
It’s wonderful that there is that support group that you established and that has come around you.

Scott 6:08
And it’s also, it’s also fun because of Disney I mean.

Lee 6:11
Yeah. The happiest place on earth. Is that their…?

Scott 6:17
Supposed to be the the happiest place on earth, yes.

Lee 6:19
Supposed to be. That’s a good point.

Scott 6:21
Yeah, like I said, there’s some kids that not-so-happy, going around there.

Lee 6:25
Our five-year old, it’s not, at naptime, it’s not happiest time or the happiest place…

Scott 6:30
That or you didn’t buy them a lollipop they wanted or the churro…

Lee 6:34
Just never tell your kid that it’s an option. “Hey, where did those kids get those?” “I don’t know. I don’t know. Let’s go.”

Scott 6:42
“Maybe Mickey Mouse saw them and it was just a prize. They picked up a bunch of trash. Maybe you should try that.”

Lee 6:46
Oh hey, that’s a good way to get it. Was there any other advice that you’d like to…?

Scott 6:52
My main advice that I know my wife also touched on too, is doctors don’t tell everybody to look out for increased and erratic movement. I mean, if that’s something that we would have known, we could have had a completely different outlook. If we would have known that Henley’s kicking and tossing the night before could have been a sign of distress, and we could have gone to the hospital. Itt could have a different outcome. And doctors just don’t say that. They always tell people, Hey, do your kick counts. Make sure that…it’s not decrease movement. They just don’t tell you. So and if anybody listening, and that helps just one person, one family, I mean that’s, that’s really what matters, at least in my eyes.

Lee 7:39
Yeah, it was it’s–I’m not a medical person. And Scott, I’m pretty sure–we’ve been talking about what you do and–but it is one of those like, we didn’t know a lot of what was going on, as well. And I don’t blame any of our medical personnel, but it’s one of those situations where sometimes knowledge is power. And you know, like you said, if it helps one person, that’s a good thing, so…

Scott 8:06
And I don’t blame any of…our doctor, any of that. I don’t blame her. She’s been fantastic. We actually trying again, and we’re gonna stick with her and she was great. And the fact that she had so much emotion when everything happened, showed how much she actually cared. We weren’t just a number on a chart, that she was trying to push through. She actually took extra time with us every visit. And so, so I don’t blame her for any of that. It’s just, it’s not common practice for doctors to say, Hey, keep an eye out for this. And I truly believe it needs to become more commonplace for them to say, Yeah, look out for decrease, but you need to also look out for unusual and erratic movement that is outside of the norm that you have noticed over the last so many months.

Lee 8:57
Is there anything that people should not do? Not to point anybody out, but is there, there–? We talked about some good. If you want to bring up anything that you’re like, yeah, don’t, you know, come on people, let’s get over to this practice? If there’s not, you know, don’t feel bad, but…

Scott 9:15
No, I…yeah, there is some. The only two terms that I don’t usually use this word often, but I hate, I hate these two terms is, “it was God’s plan” or “it was all in the name of God” or something like that. Like those ones drive me nuts. And I’m, I’m okay with like, “Oh, we’re praying for you” and “You have us in your thoughts.” I appreciate all of that. It’s just those two, because I’m like, What is his plan that needed to take my child for me? That that makes no sense. And that’s pretty much it. Those are the only things that I think nobody should ever say.

Lee 9:55
It’s not a comforting thing to hear.

Scott 9:57
No, not at all. Like, Oh, you’re nn our prayers. Oh, we’re thinking about you. I think of Henley all the time. And use her name. That’s the other thing too that Meghan and I have noticed: people are like, Oh, the baby. Oh your baby. Like she had a name. She was a person. Like yeah, I mean in some states, they might look at it as, oh yeah you didn’t have a child. But we did. And her name is Henley. So I much prefer it when people actually use her name, especially with friends and everything. And they’re starting to catch on to that too. Because they bring it up. We start talking and we’ll use her name, and so then they start using it. And it actually makes me happy hearing other people say her name.

Lee 10:42
And as a parent as, you know, my son is my son and he will always be part of me. And I love, I love it when people do use, you know, in your situation when they do talk about Henley. And in my situation, I love it when people are like, you know. You know, we have, we live pretty close to the cemetery where we buried Brannan, and we’ll get texts and like, Hey, we were walking through the cemetery, and we stopped by Brannan’s. It was great to see him. And it’s just like, just little things where it’s like, yeah, they’re bringing up MY child. And I’m glad, I’m glad it’s not just our thing. You know I’m glad other people. And like you said, you like that your friends and people are using Henley’s name. We as parents of loss, we love our children. And we just want people to also talk about them.

Scott 11:35
Yeah, of course always love her. And I wish I would have been able to meet Brannan and everything. That would have been great.

Lee 11:45
If you’re ever up in Utah, we’d love to take you out, I guess.

Scott 11:51
Yeah, I mean, Utah could be fun. Only place in Utah I’ve ever been is a–actually no, didn’t go to Utah. My wife wants to take me to Utah to go to the Cracker Barrel up there.

Lee 12:04
We’d take you to the Cracker Barrel! There’s a lot of stuff here in Utah. It’s pretty cool. But yeah. Was there, is there anything else you want to say or we wrap this up?

Scott 12:15
I think we’re good. I think we touched on everything.

Lee 12:19
Well, wonderful. Scott, thank you so much. It was wonderful to talk to you about your daughter Henley.

Scott 12:24
Thank you so much.

Lee 12:25
Thanks for opening up and sharing this tender part of your life with us all.

Scott 12:30
Thank you. It’s been great.

Lee 12:32
And you have a wonderful day.

Scott 12:34
You too, sir.

Lee 12:44
Again, I would like to thank Scott for coming on the podcast. It was wonderful to talk with him and see how he’s doing in his process of grief. It’s good to hear his story of his daughter Henley.

Head over to our website, StillAPartofUs.com. There you could find the show notes including a full transcript of this interview and any resources that were mentioned. You could sign up for a short and helpful newsletter. And there you can learn how you can become a patron and support the work it takes to produce the show for a few dollars a month. And lastly, there you can find out how to get in touch with us if you want to share your child’s story on the show.

The show was produced and edited by Winter and Lee Redd.l Thanks to Josh Woodward for letting us use his song “Vanishing Note”. You could find him at JoshWoodward.com. Subscribe to this podcast and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they are still a part of us.

If you think you are too small to make a difference, try sleeping with a mosquito. The Dalai Lama

Filed Under: advice, late term stillbirth, podcast episode, stillbirth Tagged With: c-section, stillbirth, stillborn

31: Dad Scott’s account of Henley’s C-section birth, stillborn at 36 weeks

March 15, 2020 by Winter

Dad Scott tells about finding out that his daughter Henley would be born still at his wife Meghan’s, 36-week appointment, and describes her being born by C-section, and the time after with his daughter. After they decide to have her cremated, Scott finds a castle urn, because she’s “his princess”.

Scott’s and Meghan’s tattoos

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission. This commission comes at no additional cost to you, our wonderful listener!

In the birth story podcast episode, dad Scott recounts Henley’s stillbirth:

  • Time Stamp 1:54: Who Scott is and how he met his wife, Meghan
  • Time Stamp 4:25: When they found out that their daughter Henley did have a heartbeat
  • Time Stamp 11:24: C-section delivery of Henley by Meghan’s doctor
  • Time Stamp 15:04: Meeting Henley for the first time and seeing her hair
  • Time Stamp 20:15: Henley is cremated and Scott chooses her urn, a castle
  • Time Stamp 23:44: Scott’s last bit of advice to watch for erratic movements
  • Listen to Scott’s advice of what not to say to a loss parent in his advice Episode 32.
  • Listen to Scott’s wife, Meghan’s birth story of Henley here in Episode 29.
  • Listen to Scott’s wife, Meghan’s advice of dealing with grief after Henley’s stillbirth here in Episode 30.
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Full Transcript

Scott 0:00
My daughter’s name is Henley Ryan.

She was small. She was about four pounds. Born October 3 at 12:49 am.

Lee 0:31
Welcome to Still A Part of Us, a podcast where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Lee Redd, and on this episode, Scott is telling the story of his daughter Henley, who was stillborn at 36 weeks.

As a word of caution to our listeners. This story contains emotional triggers of stillbirth and infant loss. Please keep yourself emotionally and mentally healthy and seek help if needed. Also, be aware that these stories may differ from his or her partner’s, as these accounts are told, from their own perspective through the lens of trauma, heartache, and the passage of time. Please respect our moms and dads, who are brave and gracious to share their children with us.

Scott 1:22
Yeah, it was a very long day actually. We went to the doctor’s October 2nd at 8am. Just a normal checkup. And Meghan was getting the checkup. I was supposed to go get the Tdap shot. And so, and then I had to go to work. So they were, Alright, here’s your shot. And then I was about to head out and doctor’s like, Hey, let’s listen to the heartbeat. And used a little–I forget what it’s called–couldn’t find a heartbeat. But then she got the ultrasound and still couldn’t find anything. And so that’s when we found out.

Lee 1:54
Let’s talk about you. What do you do, Scott? What do you–

Scott 1:58
Um, I work for a nonprofit. We help teach and train people with learning mental disabilities like autism, Down syndrome, traumatic brain injuries, how to join the modern workforce, either with custodial work, filing, stuff like that. The ones that we can’t find jobs out in the real world, we actually hire them inside of our company, and we pay them to do that same thing, custodial, stuff like that. Some of them do piecework, and they just put stuff together. And we package it up, and we ship it out to the different places that we have contracts with.

Lee 2:38
Wonderful. And then your wife Meghan, she recorded her podcasts earlier, but how did you meet Meghan?

Scott 2:46
I met Meghan through a friend of ours. I was working at a hookah lounge. And…yeah. And…she, our friend came in, my friend came in and then she came in. We just–that’s how we met. We hung out. Became friends. Had a great time. And that’s pretty much how it was. And that was about 2007, 2008.

Lee 3:12
Well, good. And your daughter, Meghan–sorry–your daughter, Henley. I hope you didn’t marry your daughter! Your daughter, Henley, is she your first?

Scott 3:24
She was our first. Yeah.

Lee 3:27
IS she your first, I guess…yeah.

Scott 3:29
Yeah.

Lee 3:30
And tell us–start at the very, very, very beginning. Were you guys planning on a child or…?

Scott 3:36
Yeah, for a long time, I was, you know, just wasn’t sure if I wanted kids. I had a rough childhood and I didn’t want to have my baggage put onto my kids, kind of thing. But after a while, I was like, Yeah, let’s, let’s let’s start. And that’s pretty much what happened. We just kept going and going and then finally everything was great. And she’s pregnant and I was super excited. Decorated everything, just went all out.

It’s a double edged sword right there. It hurts.

The room’s still set up too. Name’s still on the wall and everything.

Lee 4:15
Man. So you were going to go get your Tdap boosters.

Scott 4:18
Yeah. What’s that?

Lee 4:22
Is it a booster or just Tdap shot or–?

Scott 4:25
It’s a Tdap shot. I forget everything it does. I want to say it was like tuberculosis and some other stuff like that. It’s basically just a cocktail of different things. And so when in for that, and this is probably only the third appointment I’ve ever gone to with Meghan. And so it was like, Alright, well, I gotta get to work too. So her appointment was 8am, and about 8:15 or so I got my shot and I was about to head out and the doctor stopped me. And she was like, Wait, let’s listen to the heartbeat before you go. And I’m like, alright, yeah, okay. And so she grabs the little thing and can’t find it. And at first, I wasn’t thinking too much about it, because this was only my third visit with the doctor and everything. But then I’m looking at her face and–the doctor’s face and I can see that she’s looking a little concerned, actually a little pale. And she’s like, You know what? I’m just gonna go grab the ultrasound and she brought it over. And she’s doing it and I can see, Henley’s heart, and it was not beating.

And I instantly was just crushed. But Meghan was holding it together. She’s, she’s gotten really good with dealing with loss. She’s lost, she lost her father and her grandmother, both in 2016. So she’s like, Okay, let’s go to the next step. Meghan starts getting cleaned up, we grab her stuff, and the doctor’s in tears, and she’s hugging us. And I can see Meghan’s trying to hold it together, so I’m trying to hold it together for her. And we just get in the car and we start driving to the hospital, which is about 15 minutes away from my, our doctor’s office.

And we check in and there was like no rush. Nobody was like, Oh my god, let’s check this and everything. So we’re like, alright, obviously, they’re pretty confident in this doctor’s findings. And it was literally like, about an hour or so after we checked in the hospital before the ultrasound technician came with her machine to confirm. And they confirm everything. They didn’t even turn their screen away as they were typing their findings into the computer. So we were able to see and read everything.

Lee 6:39
That’s–I don’t know it, it’s one of those situations where, you know, who, what do you want to know? What do you want to do? And when we are in that situation, we’re just completely clueless and oblivious to what really is normal and that doesn’t sound normal to me like, Ah!, you know?

Scott 7:01
Yeah, it definitely didn’t feel or feel normal. I was just like, Why isn’t anybody coming in here? Like all we had was our nurse, who was adorable. She was, she, she’s a new nurse. And she, she’s in tears. As soon as we got she walked us into her room, she was in tears. And she’s like, I’ll be honest, I’ve delivered multiple babies. But this is the first situation like this I’ve dealt with. And she’s in tears. And Meghan and I were still focused on Okay, next steps. Let’s figure this out. And so it was a little rough seeing her cry.

And, but then later on, I guess we scared her, because none of us, neither of us are crying, and the nurse literally pulled me out of the room and is like, Is Meghan okay? Like, she’s not showing anything. Is everything okay? And I’m like, This is just–she’s just, she’s very…I don’t want to say goal oriented, but she’s very focused on the task. So that’s what was going on.

Lee 8:00
The time and place, time and place.

Scott 8:02
Yeah, pretty much.

Lee 8:03
So what happened after there was the confirmation that Henley did not have a heartbeat?

Scott 8:08
After the confirmation and everything, we waited a bit longer. And a different doctor than ours–because ours was still at her practice. She was actually not supposed to be scheduled to go to that hospital until the next day. So a different doctor came in, who does work alongside with our doctor, and a really, really nice guy. He honestly kind of sounded Jamaican, which was really interesting. That accent was definitely interesting to listen to while he’s trying to give us all the information of what’s gonna be going on.

But he gave us all these selections that we could do and what could happen, kind of thing. Like if we tried to induce, what could happen. Because Henley was really breech up in Meghan. Like her–Hendley’s head was actually up under her ribs. Yeah, she was way up there and he’s like, Well, you can try to induce. But the problem with this, is since she’s not moving around or anything, her head can get stuck. And then we’d have to do a more in depth kind of surgery, kind of thing, which could actually ruin Meghan’s possibility of getting pregnant again in the future. And so he’s like the safest, in my opinion, would be the C-section. And so, Meghan and I talked about it for a bit, and we decided to go with the C-section. But Meghan wanted to wait till the next day to have her doctor, the one that she’s been with this whole time. And so we kind of just hung out. Meghan and I–

Lee 9:45
Did you go back home, or…did you go back home or were you hanging out at the hospital?

Scott 9:50
We stayed at the hospital the whole time. Meghan, actually, her body started to realize something was up and started having mild contractions and stuff. So we didn’t want to go back home. And plus anything we’d be able to face going home, because we had nursery all set up and everything. Didn’t want to really see all that right now.

But we had a great family friend. She went and she came to the hospital. She was talking to us. Everything. I started making phone calls to people like Meghan’s mom, who was in California at the time. They were on vacation, her and her stepdad, her and Meghan’s stepdad, they’re on vacation. And so they’re like, We’re grabbing our stuff; we’re driving back now. And our friend, she went to our house. She picked up a whole bunch of stuff for us–laptop, pretty much anything to keep us distracted. And then I left my car at the doctor’s office. So her husband had to drive my car, because of the stick shift, back to my house.

Lee 10:51
It’s safety security right there.

Scott 10:53
Exactly. Nobody can steal my car.

But I didn’t want to leave it at the doctor’s office, because it has all my work tools in there. And so he grabbed that and he drove it back home. They came–she, uh her, his wife came to the hospital, gave us all our stuff and food. And we just kind of just, try to stay focused on what needed to happen. And also distract yourself. Watch Netflix and movies and stuff like that.

Lee 11:24
And so the next morning happened. Well, I guess–

Scott 11:26
It was later that night. Her doctor didn’t want us sitting in the hospital that long. And so she, after she left her practice, she went home, fed her kids, had dinner really quick. And then she came in around 10:30 at night. And she’s like, I’m coming in. If you guys want we’ll do this now. And that way, you guys can recover. You’re not sitting here suffering and thinking about all this. And that’s when it got me even more. I actually had to step out and just the fact that she was willing to come in, when she was already going to be on call the next day. She was already at work all day. And it just was really touching.

And so we said, Okay, we’ll do it. Meghan’s mom and stepdad finally got there at that point. And we told them what was going on, what the plan was. And her stepdad was awesome. He actually smuggled in a water bottle filled with vodka and cranberry juice for me. Because he saw I was on edge. He snuck that in for me, and then we got ready. And we did the C-section. And it was about an hour or so going. I was just there, focused on Meghan. The blind was up, so we couldn’t see anything. And both of us are in tears the whole time, just– And then finally like the nurses, the doctors, everything just went quiet. And that’s when we knew that Henley was, was finally out. And yeah, there’s–the silence is just, it was deafening.

And then after everything was sewn up, all that stuff with that, the doctor talked to us for a little bit after everything was cleaned up. And she believed that it was caused because Meghan’s placenta was on the front of her stomach area, not in the back, but her umbilical cord was abnormally short. It was…she said that she barely had enough to take Henley out and put her on Meghan’s stomach. It was so tight. So we think that…the doctor thinks that, every time Henley would try to roll to get into position, she was actually kinking her cord and cutting off all the supplies she needed, until it finally just collapsed. Yeah.

Lee 14:06
It is one of those situations where, after our son Brannan, the doctor, the doctor said it really is how anybody is ever born, is amazing. Because anything and everything can go wrong. So Henley is delivered via C-section, you guys wheeled back to the room, what happens after?

Scott 14:30
So, we get back to the room. We transfer Meghan into her bed and we did that. And we’re–the doc– nobody comes in for a bit. They’re cleaning Henley up and everything in the other, in another room. And we’re just sitting there waiting. Meghan’s kind of joking a little bit, trying to keep things light, because she’s like, The weirdest part is I have no idea where my legs are in space. She’s like, I can’t feel anything. I’m looking at my toes, telling them to wiggle, but they just won’t move. So she starts to get a little bit of movement back.

And that’s when the nurses come in and says, Are you guys ready to see Henley? And we bought an outfit and everything that Meghan’s mom purchased–this cute little Ralph Lauren, pink onesie. And I brought a hat from home and everything. And like, Yeah. And so she came in and handed Henley to Meghan. And she’s holding her, and we’re just, we’re just looking at her and admiring her. And the nurses, we asked her to take some photos with us. And so she’s taking some photos of us and everything. And the one thing I was super curious about, and I needed to see, was her hair. I needed to know she took after me or if she took after Meghan and she took after me.

Lee 15:55
In what way? She took after you because you have dark hair and, or–?

It was dark, thick, curly hair. So she didn’t take after my color when I–my hair color when I was born. I was, when I was born, I was a toehead. Just straight white blond hair. But with the curls and how thick it was, we knew she took after me, because Meghan’s hair is like, stick-straight and very fine. So that was the one thing I was super intrigued by. And I was sad, but so happy to see that she took after me in that point. But everything else was Meghan. She had Meghan’s nose and her cheeks. And it was…it was great. And I mean, not great, but great seeing it. And yeah…it was heartbreaking.

It’s a cruel situation. So you guys, how long were you in the hospital?

Scott 16:54
We got to the hospital around 9:15am. And we were there…

Lee 17:01
You delivered at midnight-ish…

Scott 17:02
We delivered at 12:39am. Yeah. Henley was born. And we stayed there for…we were cleared to go actually, the next day. The doctor was like, you’re doing great. Meghan was already walking around, struggling a little bit, but she was still walking in her own power. And the doctor’s like, If you guys want, you can go home the next day. And Meghan’s like, No, I’m gonna stay another night. And so we stayed another night. But when we had Henley with us, her mom, Meghan’s mom was in another room. And we were going to set up in another room for her to see Henley and the hold and stuff like that. We didn’t think that we’d emotionally be able to see her with her granddaughter at that point. And so, but we asked her and she, she’s like, No. She was more worried about her daughter, wanted to check on Meghan and everything like that. So we’re like, Okay.

We had her for a bit. And we both wish we would have had her longer, because we had the option to, for up to 24 hours. And but at the time we couldn’t do it. We started breaking down and we just…yeah. So we decided not to go home the next day. We decided to stay the night again. And so we just–hanging out watching movies, friends visiting, relaxing, and just taking care of her as best–taking care of Meghan as best I could. I keep saying her and I keep forgetting we’re recording.

Lee 18:39
Did you guys decide to have a funeral for Henley or–?

Scott 18:45
We didn’t do a…we didn’t do a funeral. We had her cremated. We got in contact–there’s an nonprofit here in Vegas Meghan found, and I–honestly I have, I’m really bad with memory, so I don’t remember the name of it. But they got us in contact with a funeral home. And they, I guess the owners had a loss as well. His child, I believe, was two, when it passed. And he decided that any child under under five, he will take care of all cremation for free just to help out a family and all that stuff.

Lee 19:26
It’s, it’s, it’s amazing because we’ve had so many people, so many people come to our aid and it’s a wonderful little mercy for us. It’s, you know, it’s hard to make decisions in that situation. And it’s, it’s just terrible.

Scott 19:46
For sure.

Lee 19:47
So do you have Henley–some parents have like…we have a friend who had their daughter cremated, and there’s this nice little heart that they have on their shelf. And then we have another friend who, they split up the ashes into vials and the husband has some and he wears it. Almost dog collar-ish, dog tag-ish…um not dog collar, but dog tag…

Scott 20:15
So it came, she came in a little box, and it looked plastic. I wasn’t a fan of this box. I actually hated this box. It just had a little teddy bear on it. I found online another urn and it’s a castle, and it reminded me instantly of the Disneyland castle. And I’m like, She’s my princess. We’re going to get this for her and ordered it and we transferred her in. And right now she’s sitting on her dresser inside of her room with a teddy bear that our friend got us, which was a huge help. She found out that there’s a group that you can purchase a teddy bear for them and they will weight the teddy bear to the exact weight of your child they lost. And so this teddy bear, it’s there. It weighs four pounds, 10 ounces, and it has Henley’s name on it. It has her weight and her birth date on it. And it’s just sitting there, along with some custom onesies that that we had with her name on anything. And it’s just sitting on the shelf on her dresser. And also on the castle is a set of Mickey ears that you get in the park with her name embroidered into it.

Lee 21:30
Now just to let everybody know, Scott and Meghan go to Disneyland a lot.

Scott 21:37
Every every four to six weeks.

Lee 21:39
Every four to six weeks, so…

Scott 21:42
Huge fans of Disney. I was really looking forward to taking Henley to Disney, because the first time we would have taken her would have been, not this last trip we did this weekend, but the one right before. She would have been old enough and had her vaccinations and we could have taken her.

Lee 22:02
Do you take that little stuffed teddy bear with you?

Scott 22:04
We have not taken the stuffed teddy bear, but I do have a little stuffed Groot. Not, not the one that I showed you before, but another one. And it was the first stuffy I purchased for Henley while Meghan was still pregnant with her. And it was the very first stuffy that she was going to have. That one I do take with me and I–sitting on my nightstand with me. I have a bracelet that’s custom-made with Henley’s footprint and her name on it, and at night when I go to bed that bracelet is sitting on top of that Groot’s head, just right there for me to just to always know to grab it. I was looking for an embroidery house here that will actually embroider her name on to that Groot.

Winter and Lee Redd 22:54
Oh?

Scott 22:55
Yeah, I have not been able to find one that I’m willing to leave the Groot with overnight, cuz it’s, it’s just so precious to me, that I don’t want to risk anything.

Lee 23:06
You might get a patch. And then you sew the patch on yourself.

Scott 23:10
Yeah, I was thinking the patch. I was gonna, I was trying to take it to Disneyland and see if they can do it with their machines there, that way we can actually get the same thread and font that we have her Mickey Mouse ears. And but they said that they won’t do it. They’ll only do the stuff that they personally sell in the parks and this one was never purchased at the parks.

Lee 23:33
Well, good luck finding a workaround, so…. Is there anything else you would like to tell us about the birth of your daughter Henley?

Scott 23:44
The night before we had the doctor’s appointment, is what really sticks with me and Meghan both. It uh…we were laying on the couch, and Henley was kicking up a storm. Like just crazy, more than she’s ever done before in the past. And we’re like, Maybe she’s rolling to get into position, stuff like that. Didn’t think anything of it. And then the next day is when we found out what happened. And that’s what really sticks with me, because I’m like, Was this actually her kicking in distress, and we just didn’t think about it? Because we were never–we were always told to look out for lower amounts of movement, not higher. That’s the one thing that really sticks with me that, that I think about daily.

Lee 24:31
It’s heavy. It’s…I have no words. But it’s–I’m sorry. That’s all I can say.

Scott 24:41
Thank you.

Lee 24:42
Thank you.

I personally would like to thank Scott for being on the podcast and opening himself up. It’s hard to be vulnerable, and to share this special story with us. Thank you, Scott.

Head over to our website StillAPartofUs.com. There, you’ll be able to find the show notes including a full transcript of this interview and any resources that were mentioned. There you could also sign up for a short and helpful email newsletter. You can also find out how you can become a patron and support the work it takes to produce this show for just a few dollars a month. And lastly, you can find out how to get in touch with us if you want to share your child’s story with us.

The show was produced and edited by Winter and Lee Redd. Thanks to Josh Woodward for letting us use his song “She Dreams in Blue”. You could find him at JoshWoodward.com. And lastly, subscribe to the podcast and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they are still a part of us.

“A balanced diet is a cookie in each hand.” Barbara Johnson

Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: c-section, stillbirth, stillborn

A Brief Note on Grief: Prepositions of Place and Grief

March 8, 2020 by Winter

We’re Going on a Bear Hunt by Helen Oxenbury and Michael Rosen

Full Transcript

Welcome to Still A Part of Us. This is Winter Redd and this is A Brief Note on Grief:

I’ve always been a language nerd and I’ve delighted in breaking down sentences and how they’re created. I even won my 5th grade Language Bee where I successfully named all the parts of a complex sentence: subject, verb, direct object, indirect object. One of my favorites of the English language are prepositions of place: in, around, past, on, for, under, along–you get the picture. It generally describes where a person or object is located.

You can imagine my delight when my husband introduced me to one of his favorite children’s books called “We’re Going on a Bear Hunt” when our first daughter was born. It tells the story of a family of 5 who set off to catch a bear, a big one, of course, on a beautiful day. We know that they’re not scared–they tell us on each page.

As the journey progresses, you see them encounter some sort of physical barrier–tall grasses, a patch of mud, a whirling snowstorm–and they exclaim each time:

“Oh no!

We can’t go over it.

We can’t go under it.

We’ve got to go through it.”

And they go through each thing standing in their way (with fun sound effects). They trudge through the thick, oozy mud. They wade through the deep, cold river. They stumble through the big, dark forest. 

And this is how it is with grief. The journey is messy. The journey is uncomfortable and even painful. And ultimately, you can’t go over it. You can’t go under it. You’ve got to go through it.

I hope this helps you today.

Please see the shownotes for a link to the picture book “We’re Going on a Bear Hunt”.

Filed Under: grief, podcast episode Tagged With: grief

30: Mom Meghan’s advice to watch for large, erratic movements during pregnancy

March 1, 2020 by Winter

Because of her experience with her stillborn daughter Henley, mom Meghan tells of how she always warns and advises other pregnant mothers to watch for large, erratic, unusual movements from their baby, which may be a sign of distress. She also encourages other loss parents to do what is best for them when it comes to the time they spend with their baby after birth.

Newlyweds Meghan and Scott

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission. This commission comes at no additional cost to you, our wonderful listener!

In the Advice podcast episode, mom Meghan discusses some things that helped her after Henley’s stillbirth:

  • Time Stamp 3:51: What Meghan advises and warns pregnant women
  • Time Stamp 6:24: Leaving behind the land of “what if”
  • Time Stamp 8:12: Meghan and Scott attend grief support groups and therapy
  • Time Stamp 11:42: Getting tattoos so they can talk about Henley
  • Time Stamp 13:42: Best advice she has to other loss parents
  • Time Stamp 15:03: What not to say–it doesn’t make anyone feel better
  • Time Stamp 22:04: Meghan’s father and grandmother passed away in 2016
  • Time Stamp 23:32: How Meghan works as a nanny
  • Listen to Meghan’s birth story of Henley here in Episode 29.
  • Listen to Meghan’s husband, Scott’s birth story of Henley who was stillborn here in Episode 31.
  • Listen to Meghan’s husband, Scott’s advice after Henley was stillborn here in Episode 32.
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Full Transcript

Winter 0:11
This is Still A Part of Us, a podcast where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter Redd and in this episode of Advice and Encouragement from a Loss Mom, I chat with Meghan, whose daughter Henley was stillborn at 36 weeks.

By the way, you can hear Meghan’s and her husband Scott’s episodes about the birth of their child on episode 29 and 31. Today, we discuss with Meghan how she makes it a point to tell Henley’s story and the warning she has for other pregnant women, how she encourages other loss parents to do what is right for them and to not let anyone else try and change anything,and how she and her husband have drawn closer to one another after losing Henley.

As a word of caution to our listeners, this discussion contains emotional triggers of stillbirth and infant loss. Please keep yourself emotionally and mentally healthy and seek help if needed. Hope this helps someone out there.

Meghan, thank you so much for being on this episode with me. I really appreciate you coming on telling Henley’s story. And it was beautiful. And I–it was so similar to ours, so it’s just like, Oh! Just heartbreaking. So I’m so sorry that has happened to you and your family. But thank you for sharing, because I feel like you–actually, I know you have something to share that I think is extremely important. You mentioned it already in the birth episode. So if you haven’t had a chance to listen to that, go back and listen to Meghan’s story. So welcome. Welcome, welcome.

Meghan 1:51
Thanks. Thanks for having me.

Winter 1:52
And for context, can you tell us about how long ago your child was born at the time of this recording?

Meghan 1:58
So she was born just under four months ago.

Winter 2:01
Just under four months ago, so and…so you’re, you’re kind of still in the very new stages, Meghan. How is the grieving process looks like for you,?

Meghan 2:12
Every day is different. I mean, the beginning was really hard. There was lots of crying. There was, you know, just lots of days but not wanting to do much. As time’s gone on, it’s, it’s getting–I wouldn’t call it easier, but I’m more able to do the normal things you got to do. You know, I went back to work and, you know, you kind of just have to move on with the day-to-day, but, you know, not necessarily do I cry every day, but there’s definitel,y at least a couple of times a week something out of the blue will strike that brings it all right back.

Winter 2:47
Yeah. Anything it feels like–

Meghan 2:49
It can be just the most random of things.

Winter 2:52
Yeah, anything.

Meghan 2:52
It doesn’t. There’s no rhyme or reason to it. And sometimes like this last trip, we went on to Disneyland, I started crying in the line for the Incredicoaster and I have no idea why. I couldn’t tell you, like you know… Scott looked at me and he’s, What making you upset? And I’m like, I don’t know!

Winter 3:09
Yeah, you’re like, I can’t tell you. It just happens. So what have you done–you mentioned before that you like to go and sit in her room sometimes and rock on her rocking chair, and maybe even sit with that little weighted Teddy bear. Other things, what are some other things that you like to do to think about her, to remember her, to celebrate Henley on a day-to-day basis?

Meghan 3:31
I mean, it’s my goal to, anyone that’s willing to listen gets told about her. And anyone that I know that is pregnant or intends to be, gets told her story. Not to scare them, but to tell them the things I wish I would have known that might have made a difference.

Winter 3:51
Yeah, because you…can you, can you tell us exactly what you tell people? I actually want you to say it again on this episode too, because I think it’s super important.

Meghan 4:00
I tell the whole story to pretty much everyone. I mean, I even have a friend currently that lives out of state, but she’s pregnant. And I didn’t know, but she knew she was pregnant when I told her I lost Henley. So she’s 22 or 23 weeks pregnant right now. So immediately, she tells me, she didn’t tell me until like two weeks ago, but when she told me my first thing was, Okay, I don’t want this to scare you. And I’m not telling you to scare you. But the doctors don’t tell you and you need to know: if your baby has–you know, you get to know their movement pattern, you get to know what their kicks feel like. If they start moving a radically a lot, crazy intensely, please go get checked out. Even if you get there, they check everything and they tell you you’re crazy, I would rather have you find out that everything was fine, than be me who didn’t know, and had I known and could have made me saved her.

Winter 4:53
Yeah. That is so, so important. That was the thing that struck me when you email to me, was your kind of emphatic plea like, I want people to know this, I need people to know this. I need women to know this, so that they can take care of their babies.

Meghan 5:08
Because I even took the time and asked my doctor–well, I didn’t ask my doctor, but I asked another doctor–why they don’t tell women this. So even though I’m not the only one that I know, that has had this and then had something happen. And basically I got told by this doctor, that if they told all women, that any kind of erratic movement could be a sign of distress, they’d have people in, getting checked every two minutes, and it’s just highly unlikely that that’s what it is. Now mind you, this wasn’t actually my doctor. This was just another doctor that I was talking to, because I don’t think my doctor would be that callous or cold. But it just makes no sense to me. I mean, so what we’re wasting the hospital’s time, a certain percentage of the time, but how many babies is it going to make a difference in?

Winter 5:54
Exactly!

Meghan 5:55
Like it’s worth it.

Winter 5:56
It totally is worth it. Ah–that, that’s frustrating.

Meghan 6:02
It really is.

Winter 6:03
It’s–that’s frustrating. So I–

Meghan 6:05
Obviously I didn’t have a reason to think anything of it. Also just had no knowledge. First pregnancy–I didn’t know. And everything had been so healthy and so fine.

Winter 6:15
Yeah, exactly. They’d been checking you out. You’d looked great. And I–yeah, it’s frustrating when you’re like, kind of takes your innocence away, right?

Meghan 6:24
Yeah, I mean, I’ve gotten to a place now where I know I can’t live in the land of “what if”. I can’t keep thinking, Well, if I had done this, maybe this would happen. Or if this had happened. I can’t, I can’t live there, because I can’t change it. So the best I can do is try and tell everyone else to hopefully prevent something bad from happening to someone else.

Winter 6:41
Yeah. I like that–not living in the land of “what if”, because that will eat you up.

Meghan 6:46
It will.

Winter 6:46
It was totally eat you up. Is there anything you guys do–and I think I know the answer to this–that you guys try and do to like physically escape and trying to basically take your mind off of it?

Meghan 6:58
We go to Disneyland!

Winter 6:59
You go to Disneyland! I was like, I know you were going to say that!

Meghan 7:01
That’s our thing–

Winter 7:02
Which I think is great.

Meghan 7:04
The first trip back after losing Henley was rough. I wasn’t even sure I wanted to go. I wasn’t sure how it would be. I didn’t know if my happy place would be ruined. It was hard. You know, seeing people with their children, thinking about all the things we thought we’d have her there for, was hard. But in the end, we did have a good time. And it was still enjoyable to us. And we’ve been back additionally, another time since then now and, you know, I made it through this last trip. I only cried one time, and I had a good time the rest of the time. So it’s still the place that we go to be happy.

Winter 7:41
Yeah, that’s– Yes, watching and seeing all the other little families with their little babies. And then kind of the, once again, the “what ifs”, like, Oh, Henley would be able to, you know, do this and do that. And yes, there’s a lot of–

Meghan 7:55
We really hope that one day that will be fulfilled with another child. Obviously, it never will be with Henley, but one day we’ll get there with a baby.

Winter 8:03
Yeah, yeah. Yeah. Meghan, do you guys go to counseling or any grief support groups or anything like that?

Meghan 8:12
We’ve been to the support group that our hospital runs, the hospital delivered at. We went once. And it’s bi-monthly. So they actually have it every month, but one month, it’s on one side of town, and then one month, it’s, you know, 40 miles in the other direction. We didn’t go to the very first one because it was like, the week after I had her and I was like, I just–can’t go there yet. So we went the next month, and then they didn’t have one. They had a Memory Tree event in December, where they have people bring in ornaments for their babies and they get hung on a tree that stays in the hospital lobby all through Christmas. So we did go to that. We actually, when we were at Disneyland, picked up an ornament, had her name put on it and everything. And that hung in the hospital through the Christmas season, and they’ll put it up every subsequent year.

Winter 8:57
Oh, that’s great.

Meghan 8:57
They’ll put all the ornaments back up. And then there’s another group, the grief support group, there’s another one in the next month, so we’ll go to that one. That was pretty helpful. And then I started counseling for the first time last week, so I’ve only gone once. But I felt like I found the right counselor. I found someone who, not only specializes in this situation, but also has personally been through it.

Winter 9:22
So experienced a stillbirth herself?

Meghan 9:24
Yes. She said about two years ago.

Winter 9:26
Oh, that’s, that’s pretty recent for her too, if you think about it.

Meghan 9:30
It’s impressive to me that she’s willing to counsel others about the same thing.

Winter 9:34
Yeah. Exactly. Well, that is, that’s great. And I, we’ve–I’m a huge fan of therapy. I mean, so and especially shopping around for somebody that is a good fit. And it sounds like it’s a good fit.

Meghan 9:45
I had, I actually had tried another place first, and I just didn’t–like it was one of those like, you walk in and you’re just like not feeling it.

Winter 9:52
You’re like, Nope.

Meghan 9:52
I was going, This is not gonna work.

Winter 9:54
I already know. I don’t know what it is. Exactly.

Meghan 9:57
And so the way I came about this therapist was actually very unique. I was at storytime at the library with my friend’s daughter. I was babysitting my friend’s daughter and had brought her to storytime. And I somehow ended up in a conversation with these other moms, talking about their C-sections. And I’m just not shy. So I just interject with mine. And I mean, obviously through the course of the story, they find out that, you know, Henley was stillborn. And not–didn’t really think much of the conversation just kind of said some things. They were just kind of impressed that I was there, you know. And then we went into storytime and that was the end of that. Don’t even know these people’s names, talked to them for maybe 10 or 15 minutes. The next time I came back to the library, now mind you this library, the librarians know me, because I’m a nanny, and I’ve brought lots of kids to storytime.

Winter 10:43
You’re there, you’re there.

Meghan 10:44
They’ve seen me with a rotating group of children and so they know who I am. The librarian comes up to me and says, Oh I’ve been waiting for you to come back in, you know. This woman that you talked to the last time you were here, she left this for you. She left me a whole letter, like four pages long about her story, about things that had happened to her. She had had loss, not stillbirth, but earlier loss. And then said, You know, I don’t know if you’ve thought of this, but I’ve been going to this counseling place and they’ve helped me immensely. And they specialize this, in this and left the brochure for the Counseling Center.

Winter 11:18
That is amazing.

Meghan 11:19
So it’s just another case of were like, talking about it is worth it. You know, as much as you’ll make some people uncomfortable, there are so many people that have a story that aren’t willing to say it, until you start the conversation.

Winter 11:35
Exactly. Exactly. Yeah. Right. That’s, this is why we have the podcast, so we can talk about it.

Meghan 11:42
I personally, so my husband and I both got tattoos after we lost Henley, and put them in a very visible place and it’s intentional. It’s on my left forearm on the inside, so, you know, if I’m handing anybody anything, they’re going to see it. And it’s it’s intentional for people to read it and ask a question. So my tattoo says “Henley Ryan. I carried you every second of your life and I will love you for every second of mine” and it has my birth flower and hers.

Winter 12:06
Oh, that is awesome. Ah look at that!

Meghan 12:10
There you go.

Winter 12:11
Oh, that’s so cool.

Meghan 12:13
So I intentionally put it there, so that, you know–there are people that read it and just you can tell they get the like, ahhhh look on their face and and don’t say anything. But there’s a lot of people that read it and go, Oh my goodness, that’s so sweet. What happened? And I totally want you to ask what happened. That’s why I put it there. I put it there, so you’ll ask me.

Winter 12:30
Yeah. Does your husband have it in kind of a similar location?

Meghan 12:33
He’s got a tattoo on the same spot.

Winter 12:34
Oh, really? Okay.

Meghan 12:35
His tattoo says something else. Got a different quote. And his statue instead of flowers has her actual footprint.

Winter 12:40
Oh, really?

Yay. That’s awesome. That–yeah, I…those physical reminders actually are, I think, very helpful. My husband has a tattoo as well. And that’s, he has it on his forearm so people can ask him about it. And it’s been very good for him.

Meghan 12:42
Yeah.

We got him done about four weeks after we lost her. As soon as I thought my doctor–well I didn’t even ask my doctor. I was just like, What’s the worst that’s gonna happen? She’s gonna yell at me? I’m doing it! As soon as I felt up to it, I was like I’m doing.

Winter 12:57
Yeah, yeah. Well, there you go. I’m curious what you would say to somebody that is experiencing a loss like this, that anything that you found comforting to you that you heard, that you would maybe want to pass on to somebody else?

Meghan 13:24
I mean, the best advice I can give is take all the pictures. Take, you know, take all the moments you can. Make sure you dress them, make sure you bring–you know if you had a specific like swaddle blanket picked out that you were like, I’m going to use this for my baby, put it on them and take a picture. Because these are the things that like you’ll regret not having them down the line. Call the professionals. Let them come take great quality photos for you. And no matter what you think anyone else is going to think about it, spend as much time as you want to with that baby. It’s totally up to you. I don’t regret my choice. I mean, I wish I would have spent a little longer with her, but I don’t regret what we did. It felt right at the time. And then there, you know, there’s other people that want to spend the full 48 hours they’ll give if they have a Cuddle Cot, and that’s fine. You do what feels right to you. Don’t let anybody else aside from you and your partner influence that decision.

Winter 14:18
Yeah. That is great advice. I have found that different people want to spend, yeah, exactly 48 hours or however long that they will let you have them. And then others were like, that was good. I need to…I need, for myself, closure. And they–

Meghan 14:33
We gave her back when we did, because she could started leaking fluid out of her nose and she just wasn’t going to look the same. And I wanted the last memories to be of her looking as good as she could. So you know, it’s a personal choice, and don’t let anybody else try and change how you feel about it.

Winter 14:54
Yeah, yes. Now Meghan, what would you NOT to somebody that’s experiencing such a loss?

Meghan 15:03
Well, we’ve had some things that people say that, I think, that no one should ever say to people.

Winter 15:09
Don’t call anybody out by name. But go ahead. I would love to hear them.

Meghan 15:12
Well, these aren’t like specific people we’re close to. This is just like, you know, in the course of people on the street. Right. No matter your religious beliefs, whether you’re religious or not–we’re not. Some people are. That doesn’t matter. Don’t ever tell someone it was God’s plan. Don’t do it. No matter how much you believe that, it’s not comforting in any way, shape, or form.

Winter 15:35
No, no, not at all. I mean…

Meghan 15:37
You can tell me that, you know, you’re praying for me. And that’s fantastic, because that means you’re thinking good things for me. Awesome. Don’t ever say that it was God’s plan. Don’t tell me everything happens for a reason.

Winter 15:48
Oh, yeah. Hate that one too.

Meghan 15:50
These are not good things to say. They’re not comforting. And if you don’t know what to say, at all, just say you’re sorry.

Winter 15:56
Yeah. That’s huge. I love when people say I’m just sorry about what happened. And I’m like, thanks.

Meghan 16:01
I’m so sorry. That’s horrible. Yep. That’s enough. If can’t think of anything else, that’s enough. You’ve said something.

Winter 16:08
Yeah. And you thought about me, so that’s good. Yeah.

Meghan 16:11
And don’t–you know, the other thing that was that I think now is hard, is don’t don’t not say anything because you don’t know what to say. Don’t just disappear, because you don’t know what to say. I know it makes you uncomfortable. It makes everyone uncomfortable. I’m going to be uncomfortable for the rest of my life.

Winter 16:29
Yeah, I’ve got this with me.

Meghan 16:30
But you’ve got to say something. Don’t just ignore the existence. Like say something! And I finally, I posted on social media a couple of days ago, I posted something telling people that I want them to ask me about her. I want them to say things. I got tired of everybody just kind of like skirting around the subject. This is what we’re doing.

Winter 16:54
So it was, it was–there was a lot of people kind of tiptoeing around?

Meghan 16:58
Oh, lots of people dancing around, not wanting to ask anything. And I’m like, just, just ask. The most comforting thing you can do, is ask me about her. She existed.

Winter 17:08
Yeah. I carried her. I gave birth to her.

Meghan 17:12
Oh, yeah. And then we’ve had, you know, in conversations with other people, you know, kind of like I said, when I jumped into that conversation at storytime, I’ve had other conversations where I’ve jumped into somebody’s conversation about pregnancy or birth. And you can tell it just makes them totally uncomfortable. I jumped into this conversation, and I want to be like, Look, just because I didn’t bring a baby home, doesn’t mean I didn’t have a baby. I went through the same thing.

Winter 17:35
Yep. Yep.

Meghan 17:37
The only difference is your C-section ended with a baby crying and mine ended with silence.

Winter 17:42
Yeah. Yep. You still gave birth.

Meghan 17:45
Yep.

Winter 17:46
You carried her.

Meghan 17:48
Yeah. And you’d be surprised how many people are totally uncomfortable with that. Or the people that are just like, I don’t want you to, you know–your story. It makes me uncomfortable, and I just I can’t talk about it. Well, then I guess you can’t talk to me like, I guess we’re done then.

Winter 18:05
Yeah, cuz you’re like, this is part of who I am now.

Meghan 18:08
This is my life. And if you’d like to be a part of my life, then this, this is part of what we have to talk about.

Winter 18:13
You know, it’s interesting. I listened to a TED talk and, and it was a woman who had experienced stillbirth. And she’s like, the one thing about stillbirth is kind of like, it’s like a fire, a slow burning fire, that it burns away all the stuff that doesn’t really matter. So sometimes those relationships and those things that really just don’t matter, kind of go away.

Meghan 18:32
You also kind of lose a lot of your filter for things. I’m real blunt with people now. You know, and, and sometimes the hardest conversations that people have, they haven’t, not meaning it for it to be an in depth, very personal conversation. You know, Oh, do you have kids? You know, just the general we’re just trying to have a chitchat. And I don’t lie. So I answer and I respond. Yes, I have a daughter, but I lost her at 36 weeks, and then they’re uncomfortable and they don’t know what to do now. Well, you asked the personal question, so you get the answer. If you didn’t want the answer, don’t ask the question. You could have just been like, you know, It’s been hot outside today.

Winter 19:14
Yeah, the weather!

Meghan 19:16
You chose to ask the question. Don’t be astounded by the answer.

Winter 19:19
It is a very personal question. People don’t realize it, but it’s a very personal question. So…

Meghan 19:24
It is, and I mean, it’s, it’s a personal choice on how you decide to answer. I refuse to say, I don’t have any kids. But honestly, there are some times where I think about it. And sometimes I will. If I’m never going to see this person again, and I passed them in the grocery store for five seconds, sometimes I’ll just be like, No, and then keep walking. Because it’s just, sometimes it’s exhausting to have to go through the whole conversation or just deal with the people that like, look at you, Ahhhh! I don’t know what to do.

Winter 19:48
Yeah. Don’t be like those people. Come on, people. So how has Scott, your spouse, handled the loss? How has that looked like for him and as a couple even?

Meghan 20:01
I mean, he’s been great for me, but he definitely is a lot more quiet about it. Like any conversation about Henley is initiated by me, not initiated by him. You know, everybody grieves differently and it’s been difficult for me to sit there and realize that just because he’s not grieving the same way I am, doesn’t mean he’s not grieving. But I think we’re closer than ever now. I mean, we have been through this and it’s probably the hardest thing we’ll ever deal with together and we’ve been together for a long time now. I mean, we started dating when we were 19. We’re 30, well I’m 32 and he’s almost 32 now. So been quite a while. Almost 13 years. So you know, it’s–every day is different and some days he does cry. Some days, he doesn’t say anything about her at all. And it’s it’s different for him than for me, because I talk about her every day, but you know, he’s never offended when I talk about her. He never doesn’t want to respond when I talk about it. I think he just doesn’t choose to initiate those conversation.

Winter 21:06
Right. And that’s fine. That’s just how he communicates. That’s what feels comfortable to him, it sounds like?

Meghan 21:12
Yeah, I’m sure his episode will be much less in depth on talking than mine. He just doesn’t talk quite as much as I do.

Winter 21:18
Most of the men’s episodes are a little bit shorter. And that’s perfectly fine. I think, kudos to you guys, though, for staying close to each other, and maybe even getting stronger in your relationship. Because these these can shatter a relationship pretty easily. These kinds of tragedies can be very difficult.

Meghan 21:23
I can see how it does.

Winter 21:36
Yeah. Because there’s so much stress and then you just like, Why aren’t you grieving like me? And it’s and it’s frustrating.

Meghan 21:41
Yeah. I mean, I think it somewhat helps that we had been through some loss together prior to this. And granted, it was my family, and not his, but we’ve been together so long that my family is basically his. You know, he was he was pretty close to my grandmother when she passed away and when my dad passed away, he was actually the one that found my father. So we’ve been through quite a bit together.

Winter 22:04
You have. So you, so mentioning these previous kind of deaths that you guys have experienced, did you think that was kind of a little preparatory? Or did you–? I’m just curious, like how you feel about having those experiences before Henley?

Meghan 22:20
Well, so we thought that 2016, the year that both those people passed away, was going to be the worst year ever, right? You get out of that and you go, Okay, this is as bad as it can get. Can’t get any worse than this. Well, I don’t think that way anymore. Because 2019 was worse than that. But I think that I was able to handle the loss of Henley a little more gracefully after having been through what I already have. I kind of already knew how my body was going to deal with grief, how my brain handled it, and you know, was able to deal with things a little better. I mean, I wouldn’t say you know, what really prepares you, but at least I had some background and experience on losing someone. Well, this is so much more intense than that. Even though that was my father and my grandmother. It’s still, this is more intense. This is somebody that didn’t ever really get to live at all.

Winter 23:10
Yeah. didn’t get a chance to–yeah. The death of dreams, is what they call it is. And I’m like, yep, that’s exactly what it feels like. I know it’s been short, a short four months, right?

Meghan 23:23
Yeah.

Winter 23:24
Have you had any realizations or “aha” moments about how you grieve or just about the entire process that you’re going through right now?

Meghan 23:32
Well, I’ve had people tell me that I’m kind of crazy, because like I said, I am a nanny. I wasn’t working when I…while I was working at the beginning of my pregnancy and ended up losing my job, because the family I was working for the mother got laid off from her job, and they couldn’t afford to keep me.

Winter 23:48
Oh, gotcha. Okay.

Meghan 23:49
So then I tried to find a job for a while, and finding a job as a nanny while you’re pregnant is just kind of next to impossible.

Winter 23:57
That’s rough, I’m sure.

Meghan 23:58
So I watched my little cousin for the summer while they were out of school. They’re, they’re twins. They’re nine-years old. So I watched them the whole summer while they were out of school, and it kind of gave me something to do in the meantime. And by the end of summer, I was really pregnant. So I was like, I give up. I’m not gonna try and find a job until after I have her. It’s fine, right? Like, so from the end of August until what was supposed to be the end of October, I was like, I’m just not gonna work. I ended up finding a job–well, I found the job the end of December, but I actually started this job about two-and-a-half weeks ago now.

Winter 24:29
Okaaay…

Meghan 24:30
And everybody thinks I’m crazy, because the child I’m watching now is two-and-a-half months old. And she’s a little girl. So, essentially, for all intents and purposes, I was due October 29 with Henley. This little girl was born on November 9th, so it’s exactly the same is what it should have been. Which some days is tougher than others. To look at her know, well, this is what she should have been doing. This is about how big she should have been. But for me, it would have been weird to find a job doing anything else, because I had a moment where I thought about not going back to nannying. And I’ve spent the last like, almost eight years of my life helping raise other people’s children. So I couldn’t fathom going and doing something else. And as hard as it as some days to be with her, it’s also healing in other ways to be with a baby, you know, for three days a week. Though, it’s not my baby, I get to be helping care for someone’s baby. So that that desire and that, you know, need to fill your arms is at least getting catered to in some way.

Winter 25:41
Yeah.

Meghan 25:43
I’m getting to do something with it. Yeah.

Winter 25:46
Oh, so hard, though. But that sounds like a little bit of a calling for you. It feels right, I guess.

Meghan 25:53
It feels right. And I think, you know, after what has happened to me, I’m probably the most attentive nanny to a baby that’s ever existed now. The intense anxiety and fear about something happening to a child is real. And I’m probably 10 times more attentive than anybody else would be. It took me a while to find a job, because when I was looking for work, I refuse to hide anything. So I refused to hide what had happened with Henley, and I was open about it. And I also refused to hide the fact that we do intend to try and have another child. I didn’t want to get into a position where I got hired for a job, and then got pregnant and somebody go, Oh, we can’t deal with that. So I was honest. And it took me a while to find a family to work for, but the family that hired me is very understanding. This is their first child. And they’re totally okay with the whole situation. They’re totally okay if I do end up pregnant. Like they’re fine with it.

Winter 26:55
That’s great.

Meghan 26:55
And the job schedule, I mean, it’s 10-hour days, but it’s three days a week, so it’s almost perfect if I do get pregnant, to be able to squeeze in appointments and things, it just seemed like the absolute right fit.

Winter 27:04
Yeah. Well, that is, that’s a blessing that that came along. And obviously you were patient to wait for the right, right opportunity, I guess. Oh man.

Meghan 27:15
Yeah, cuz I’ve been looking for a job actively, since I was cleared by my doctor six weeks after having Henley. So it took me, you know, a few months.

Winter 27:24
Yeah, it takes a while sometimes. Well good. I think that’s great that you’re doing that. I don’t know if I could do that. That would, I’ll be honest…

Meghan 27:33
I know, I have a lot of people that are like, I don’t know how you manage.

Winter 27:35
Yeah, I was like, I’m not sure how I would be able to do that. That would make me a wreck, I think. I’m pretty sure so.

Meghan 27:41
I know I’ve talked to some people that are like, I couldn’t be around a baby. And I’m like, everyone’s different.

Winter 27:47
It is! I and I was like, I think I still have not held a baby since our son passed away. Just I’m not really a baby holder either, so I guess it’s not too much out of the ordinary for me. I know that you’re going to be coming up here on, you know, Mother’s Day and Father’s Day in the next couple of months. Are you–do guys have anything planned? Are you kind of preparing for that or–?

Meghan 28:10
Not really. I mean, we start the “land of one year laters” February 19. Because February 19 was when I found out I was pregnant with Henley. So we’re kind of rolling into that. It’s been a year later about everything. Um, but we really kind of haven’t thought about it. I kind of just ignored it. To be honest,

Winter 28:28
Sometimes it’s, sometimes it’s easier, right?

Meghan 28:33
And also trying not to think about the, you know, like, one year later, whatever. My husband’s birthday is coming up, and we had found out right before his birthday. And so I’m kind of, just kind of–just gonna push that off to the side. We’re just gonna celebrate your birthday. Like we’re just gonna not acknowledge that totally right now.

Winter 28:48
Yeah. Sometimes you have to do that when you just can’t deal.

Meghan 28:52
I also you know, I’m the other hard thing, the day Henley was born, is actually–there’s a set of twins that I nannied for a full year from when they were like three months old until they were about 15 months, and I still see them regularly. Friends with their parents now. Henley was born on their second birthday.

Winter 29:10
Oh, really?

Meghan 29:13
So, I don’t know if that’s hard–if that’s going to be hard or if it’s going to be good that I’m distracted in their birthday.

Winter 29:19
Right. Well, it’ll always be a special day. Just a word of warning, like I would maybe just be aware of yourself on the day that you found out that she was [still]born, because that that day was rough for me, when my son was [still]born, because I gave birth to him the next day so.

This conversation has been awesome. And you’ve had some amazing things to say and I’m so grateful like how blunt you are and open you are about it, because it’s sometimes…people skirt around, like you said, skirt around, tiptoe around the issue and so it’s nice to…

Meghan 29:52
I just don’t think it helps anyone if you’re not just honest.

Winter 29:55
Yeah. This is the way it is. Kind of sucks. Or doesn’t. Whatever. They’re going to be good days and there’s going to be bad days. Any, any last pieces of advice?

Meghan 30:04
Take the time you need and don’t let anybody tell you how you should or shouldn’t feel. It’s, I mean, clearly, I’ve been told that I’m very different than most in this situation. And you know, I’ve had people tell me that was weird, and I don’t think it’s weird. Everyone’s different and everyone’s going to deal with it differently.

Winter 30:21
Yeah, totally. We’re all different.

Meghan 30:23
Well, there’s no wrong way to greive.

Nope. I think people, yeah, make judgments of like, you should be this way. No. It’s, we’re all different. And it’s surprising sometimes. It’s surprising sometimes. Meghan, thank you so much. This was so great. Like you are just–I appreciate your honesty and sharing your heart. And thank you so much. I really appreciate your time today.

Thank you.

Winter 30:51
Many, many, many thanks to Meghan for a candid, honest story and discussion about Henley. I also super appreciative, that she is helping educate other women who are currently pregnant and trying to get the word out, so that they can keep an eye on their babies and get them here safely. So thank you so much, Meghan, for coming on the podcast today.

Head over to our website StillAPartofUs.com, where you can find the show notes, including a full transcript of this interview, and any resources that were mentioned, where you can sign up for a short and helpful email newsletter, or you can learn how you can become a patron and support the work it takes to produce a show for just a few dollars a month, and lastly, where you can find out how to get in touch with us if you want to share your child’s story on the show. One thing that we wanted to point out on this show, is that you can go over to the show notes in your podcast player and find a link on how to donate a few bucks to help us keep the lights on, so we can continue bringing these beautiful stories to you.

The show is produced and edited by Winter and Lee Redd. Thanks to Josh Woodward for letting us use his song “Vanishing Note”. You can find him at JoshWoodward.com. Lastly, subscribe to this podcast and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they’re still a part of us.

Lee 32:13
Facebook just sounds like a drag. In my day, seeing pictures of people’s vacation was considered a punishment. Betty White

Transcribed by https://otter.ai

Filed Under: advice, late term stillbirth, podcast episode, stillbirth Tagged With: c-section, stillbirth, stillborn

29: Mom Meghan tells C-section birth story of Henley, stillborn at 36 weeks

March 1, 2020 by Winter

Mom Meghan tells about her textbook pregnancy and the C-section birth story and with her first child, daughter Henley, who was stillborn. At her 36-week checkup, she and her husband Scott heard the words every parent hopes to never hear: I’m sorry. She has no heartbeat. 

Scott and Meghan with their stillborn daughter, Henley

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission. This commission comes at no additional cost to you, our wonderful listener!

In this stillbirth story podcast episode told from mom Meghan’s point of view:

  • Time Stamp 3:03: Meghan has a textbook pregnancy and she was feeling great–they even went to Disneyland at 33 weeks.
  • Time Stamp 5:44: Meghan and Scott get the news that Henley doesn’t have a heart beat.
  • Time Stamp 10:17: She makes the decision to have a C-section.
  • Time Stamp 17:52: Henley is delivered via C-section by Meghan’s doctor.
  • Time Stamp 21:39: Meghan tells how Henley was moving and kicking erratically the night before.
  • Time Stamp 28:46: How they chose Henley Ryan’s name.
  • Time Stamp 35:00: They choose to have Henley cremated.
  • Listen to Meghan’s advice of dealing with grief after Henley’s stillbirth here in Episode 30.
  • Listen to Meghan’s husband, Scott’s birth story of Henley who was stillborn here in Episode 31.
  • Listen to Meghan’s husband, Scott’s advice after Henley’s birth here in Episode 32.
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  • Spotify

Full Transcript

Meghan 0:00
Henley Ryan

We realized that her nose is exactly my nose, so the genetics carry strong.

Winter 0:19
Welcome to Still A Part of Us, a podcast where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter Redd, and on this episode, Meghan is telling the story of her daughter Henley, who was stillborn at 36 weeks.

As a word of caution to our listeners, this story contains emotional triggers of stillbirth and infant loss. Please keep yourself emotionally and mentally healthy and seek help if needed. Also be aware that these birth stories may differ from his or her partner’s, as these accounts are told from their own perspective through the lens of trauma, heartache, and the passage of time. Please respect our moms and dads who are brave and gracious to share their children with us.

Meghan 1:17
My name is Meghan. I’m 32. I had to think about for a second. My husband and I have been together since we were 19 years old, but we’ve been married for about six and a half years now. Henley was our first pregnancy, first child. I am a nanny by trade. I’ve been a nanny for seven years. We have two dogs: a chiuaua and a Border Collie-Pitbull mix.

Winter 1:17
Meghan, thank you so much for being on today. I’m excited to chat with you about your little Henley. And to give us a little bit of context, tell us a little bit about yourself. Who are you? Where you guys at? Kind of just give us a little background of who you are.

Awesome. And what do you, what do you like to do in your free time?

Meghan 1:59
We are Disneyland people you That is our thing. We have annual passes to Disneyland, we go about once every four to six weeks. It’s about a four-hour drive for us.

Winter 2:08
No way! That’s amazing!

Meghan 2:09
Yeah, we love it. We were actually just there last Sunday and Monday.

Winter 2:13
Oh my goodness that it was crazy. Last Sunday and Monday, if I’m not mistaken.

Meghan 2:17
It was a holiday weekend. And the opening weekend of a brand new ride. It was insane.

Winter 2:23
Did you end up on that brand new ride?

Meghan 2:25
We did. We managed to get on.

Winter 2:27
That’s amazing. That’s, that’s very cool. You guys are based in Nevada…?

Meghan 2:33
Yeah, we live in Las Vegas.

Winter 2:34
Okay, so that’s why you’re four hours away from Disneyland. Okay, well, that’s awesome. And then can you give us a little bit of context about when Henley was born?

Meghan 2:45
She was born on October 3, 2019. So just under four months ago.

Winter 2:51
Yup. At the time of this recording, and this is very new for you, Meghan, so thank you for coming on. And how did your pregnancy go? Like, did you guys get pregnanat pretty quickly and everything?

Meghan 3:03
It was a pretty much textbook pregnancy. We weren’t necessarily actively trying when we got pregnant, but we also weren’t preventing anything. So it kind of just happened on the time frame it happened. But the whole pregnancy was pretty textbook, pretty perfect. You know, I didn’t have gestational diabetes. I didn’t have any high blood pressure. I had only–by the time I had her–I’d only gained 25 pounds total and I had her at 36 weeks. Everything looked great. Everything was perfect. I was healthy, to the fact that at 35 weeks pregnant, my doctor cleared me and let me go to Disneyland for the last time. I did a Disney trip at 35 weeks.

Winter 3:38
At 35 weeks! Oh man, so everything was really good. Did anything cross your mind about anything being wrong?

Meghan 3:46
At our 34-week ultrasound, we found out that she was still breech, which was okay. I mean, we were eventually getting to the point where we were going to have to have the talk about having a C-section, just because she wasn’t turning. But we also found out she was measuring in the 10th percentile, so she was measuring small. So the intent was, at my 36-week checkup two weeks later, she was going to schedule for another growth ultrasound to just kind of see if that was a fluke, because they were kind of having a hard time getting measurements on her just via position. And I have a very short torso, so they’re just between my bones, there wasn’t a lot of space to get the measurement on her bones.

Winter 4:22
Gotcha.

Meghan 4:22
So they were going to send me for another ultrasound ,just to check and see if if it was a fluke, or if she really was measuring small, but we didn’t make it that far.

Winter 4:31
Yeah. Did that worry you at all that he was maybe possibly measuring in the 10th percentile?

Meghan 4:38
A little, but the ultrasound tech that did it, had such a hard time getting a measurement on her thigh bone, and that’s the one that they use the most for measurement. So I was just kind of like, you know, it’s probably just the fact that she couldn’t get a true accurate measurement. Like, my belly is measuring normal. Everything else has been fine. I don’t think there’s an issue.

Winter 4:57
Okay. So kind of brushed it off as a possible, like, It’ll be, it’ll be fine…?

Meghan 5:03
We’ll find out. And if she’s still measuring small in two weeks, well, then we’ll talk about maybe delivering early and, you know, she’ll be small, it’ll be fine.

Winter 5:10
Yeah. Okay. Well, then, can you tell us a little bit more about what happened? So you, you went to that the 34-week ultrasound, and then you were planning on coming in for a 36-week ultrasound…and I’m assuming you got checked at 35-weeks. She was fine….?

Meghan 5:25
I didn’t.

Winter 5:26
Oh you didn’t!

Meghan 5:26
I didn’t have an appointment between 34 and 36 weeks. I came back in at 36 weeks for just my regular checkup with my OB, and my husband had come with me, because he was going to get the Tdap shot and at my doctor, if he came with me, they would do it for free. The insurance would cover the whole cost.

Winter 5:43
Yes, perfect.

Meghan 5:44
So he had only come to very few appointments just due to work. It wasn’t easy for him to take off to come. But this was one that he made it to, because he needed to get that vaccine, and so it just made sense. So we went in for the appointment. You know, they took my weight and I had lost almost a whole pound over the course of two weeks, which seemed a little off to me, but I was like, I just spent like three days at Disneyland walking like crazy. So it’s probably fine. It was probably just that I was more active than I had been. Blood pressure was fine. They give him the shot. And then my doctor as he’s about to rush out to leave to go to work, because he couldn’t stay for the whole appointment, my doctor goes, Hold on! Wait wait! Let’s just, let’s have, let’s do the heartbeat and let daddy listen to the heartbeat real quick.

And we don’t know why she decided to do this, but she did. So she gets out the Doppler. She puts it on my stomach. And I can tell that it’s taking longer than it should to find a heartbeat. Obviously, he wasn’t aware, because he hadn’t really been there for all the appointments to know how long it should take her to find it. And so she’s searching and searching and she keeps moving it around. And 30 seconds go by and nothing. And then almost a full minute goes by, and she can’t find anything. And she goes I’m having a hard time finding her heartbeat. I’m going to go grab the ultrasound machine. Comes back in with the ultrasound, puts it on my stomach. Starts at her head, you see her skull, you see her head. Goes down, and as soon as she gets on the chest, I could see that her heart wasn’t beating. I mean, by that point, you’ve seen enough ultrasounds, you know what you’re looking for. You know what it’s going to look like.

And I think it took a minute for my husband to catch up and realize that nothing was moving. And from that point, you know, my doctor said the words nobody wants to hear: I’m so sorry. She has no heartbeat. And I kind of just went into the mode that I’ve gone into with every other tragic event in my life, because my life has been a little intense from 2016 to now. I, in 2016, I lost my grandmother in April and my dad in December. So there’s been a lot of loss in the past couple of years.

Winter 7:48
Yeah, there really has been.

Meghan 7:50
So I went into this mode of just–the same thing I did when they passed away–just needing to get through the logistics. What, what do we do next? What do we do now? What’s the next thing that has to happen? So I didn’t, there was no initial tears, there was just like, Okay, now what?

So she sent us to the hospital. She had already called Labor and Delivery at the hospital and told them to expect us. So when we got there, we go up to Labor and Delivery. They put us in a room and we think, Okay, you know, somebody’s going to come in fairly quickly and do another ultrasound. They’ve got to want to be absolutely sure, because the ultrasound she used in the office was like, you know, it’s a terrible office-quality ultrasound. So, then it’s an hour, almost an hour and a half later, before an ultrasound tech finally comes in.

Winter 8:35
Are you kidding me?

Meghan 8:35
At that point, we’ve both gone, Well, they obviously think there’s no hope of anything. So, I guess we give up. The ultrasound tech comes in, does the ultrasound and obviously they can’t tell you anything.

Winter 8:49
Yeah, it’s not in their purview.

Meghan 8:52
But this ultrasound tech–and I think she did it as a kind of merciful gesture almost–she did not turn the screen away, when she was typing out her findings to send in the report. So she left it where I could see it when she typed, you know, Breech presentation. No fetal heart tones. Consistent with intrauterine fetal demise. She left it where I could see that this is what it is. And everybody that I’ve talked to seems to think that was terrible, but personally for me, I think she was doing it so that we wouldn’t be sitting, left waiting in limbo longer and longer and longer.

Winter 9:27
Yeah, you’d already been there for an hour.

Meghan 9:29
Yeah. So, at that point, they came back. The on-call OB came in, who this is obviously someone I’ve never met. And, you know, he tells us what we already knew. I’m so sorry. She has no heartbeat. Here’s your next options. And so she was, Henley was breech and she had her head pretty far up under my left ribs to the point that even still to this day, my rib cage is bowed out on the left side. Like visibly people can tell that my ribs look different on one side than the other.

Winter 10:02
Really?

Meghan 10:03
Yeah, I have a really, really short torso, so there just wasn’t a whole lot of space. And so my rib cage I, most doctors, I’ve asked and they’re like, Honestly, we don’t ever think it’s going to go back. So that’s like one of the permanent reminders of her.

So he comes in and he tells me, Okay, well, you could be induced, but here’s all of these possible risks confounded, you know, not just the normal risks of being induced with a stillborn baby, but to add to the fact that she’s completely breach. You know, so they went through all the things that could have happened, that I could have tried to be induced, and they could have delivered everything but her head and she could have gotten stuck. All these scary risks, and a lot of them were risks to my ability to have future children. Then they read me the list of risks for going through with a C-section. Those were far less intense. So without really any discussion with anybody, I just kind of sat there and went, Yep, I will have a C-section. No question about it. That’s what we’re going to do.

But then the waiting kind of began for the day. So that was at about nine, like 10:30, 10:30, 11 in the morning–

That you…?

That I finally decided, Okay, I’m gonna have a C-secion. This is what I’m going to do. And I had talked to the on call ob, and he said, okay, but I’m going to call your ob first and just kind of have a discussion with her, tell her what’s going on. A little while later, I get a phone call on the hospital phone in my room, my OB has called me. And she’s talking to me about the situation telling me, you know…I mean, my doctor was fantastic. She, she when she had to tell us that she had no heartbeat, she was crying even though we weren’t. She’s been wonderful throughout the whole thing. So she calls in between patients in clinic she calls and says, You know, I can’t be there right now, but I can be there late tonight. I can come at like 11 o’clock tonight to do your C-section. I have something going on when I leave the office today, because she has a family and children, so it’s understandable, but she says I can come in at 11 o’clock tonight and do it for you if you would rather wait for me.

So that’s what I ended up doing, because I wanted to be with someone I was comfortable with. It’s the person I saw the whole pregnancy. And I felt like having her deliver was more comforting, because she was the one there when we found out. So we kind of just spent the whole day sitting in the waiting–in the hospital room, waiting around.

Winter 12:33
Oh you did?

Meghan 12:34
I did find out, so since I decided to wait until she came in late at night, I hadn’t eaten anything at this point that day because I didn’t have breakfast before my doctor’s appointment. My doctor’s appointment at eight o’clock in the morning. I’m like, we’re going to go in this is gonna be a 30-minute appointment, and then I’ll just go get something to eat afterward.

Winter 12:48
Right.

Meghan 12:49
And so by that point, it was almost noon and I hadn’t had anything to eat or drink. So when I decided that I was going to wait for my doctor, she told me, you know, If you want to eat, you’re allowed to eat until, you know, 12 hours before when she’s going to do the C-section. So I had an hour and a half or so where I can, like, get some food and, and… You know, I had a friend there with me and my husband, and they both thought it was strange that I wanted to eat, and I’m like, But I’m going to feel so terrible if I continue to go the whole rest of this time and don’t eat anything. Like I have to try and eat.

So we kind of just spent the whole day sitting in a hospital room, watching TV, talking. Basically kind of ignoring, I mean, personally for me, I was kind of ignoring the situation. It was like, I have all this weird limbo time that I have to sit in now. And I just can’t think about it. Now, meanwhile, my body knew what was going on. I had started having, you know, mild contractions, like my body had figured it out. I opted not to say anything to the nurses about the fact that I was contracting at all, because I didn’t want to accelerate the process in any way. I wanted to wait for my doctor, so I just didn’t say anything. And it wasn’t like bad enough that like, there was any concern of like imminently going into actual labor.

Winter 14:08
Right. It was just very starting, starting contraction.

Meghan 14:12
My body was definitely starting to figure it out, but it wasn’t very intense or anything. So we kind of spent the whole day just talking and sitting in the room and waiting. And–

Winter 14:22
So Meghan really quickly: so Scott is there. He’s not really been there in for your doctor’s appointments. Not a ton of them it sounds like. So he’s probably shocked, I suspect.

Meghan 14:34
Yeah, we actually had driven two separate cars to my doctor’s appointment, cuz like I said he was supposed to leave and go directly to work. Yeah. We ended up taking just one car from the doctor’s office to the hospital because I was like, I can’t drive, like, it’s not something I can handle right now. And, you know, he just kind of was sitting there, and he just kind of let me decide what was going to happen. He’s like, you know, he’s obviously devastated, but he, I think he felt like whatever I decided to do from that point, was my choice of how it was going to happen. So I didn’t even really discuss my choice to have a C-section with him. I just kind of looked at him and went, This is what I’m doing. And he went, Okay.

Winter 15:15
Well, it’s yes, it does put you in a little bit better position medically.

Meghan 15:19
I feel like, you know, from all the women that I’ve talked to, you know, I’ve met several other parents who have lost their children, even one in town that I’m friends with now, and everybody says the same thing that it’s it’s very unusual that I got the situation I did, where I got to choose that I wanted to have a C-section and I got to choose whether I wanted my doctor to do it or not. Most people don’t have this time where they can just kind of make these decisions.

Winter 15:20
Yeah. That is pretty unique. And so you were sitting in your room just hanging out You say that you were ignoring, kind of ignoring the situation, in a sense. Did you–?

Meghan 15:58
We tried to talk about anything that wasn’t what was happening.

Winter 16:01
So did you contact any family members or anything?

Meghan 16:04
We did. After I made the decision that I was going to wait for my doctor and I was, you know, gonna have a C-section, we kind of called and told some people. I didn’t really call anyone. I kind of left it up to Scott. He called my mom and stepdad, who actually were in California at the time. They had gone on, you know, they were going to, they were going for a weekend away, and they figured it would be the last weekend away before I went into labor. So they were like, We’re going to go now. And you know, they were just going to stay at some hotel. Well, he called them and immediately they drop everything, pack up, and start driving back. So they’ve got a five-hour drive back, which is part of the reason probably that it was good that I decided to wait until later that night, because they got me there.

And then you know, we’ve let some other family members know, some friends. I have one friend that actually, we let her know right away what was going on. She found out just after we had gotten to the hospital, before we even had the ultrasound. At the hospital, we had told her, and she dropped everything, had her husband come pick up her daughter and showed up at the hospital and sat there with us all day. She and her husband went and got Scott’s car from the doctor’s office and drove it back to our house. And then she eventually went home, because we told her, Look, we’re going to be here a long time. We want you to go home. You know, put your daughter to bed. You know, you have things you have to do. And she ended up coming back, which I didn’t know until later. She came back while I was, right before I went into surgery, and was there until like three o’clock in the morning when I finally was like you have to go home. Your baby’s gonna be up in like three hours.

Winter 17:45
Wow, what a friend. That is–that’s awesome. So you waited. Your surgery was planned at 11 o’clock at night.

Meghan 17:52
Well, my doctor got to the hospital about 11 o’clock that night. And they started the prep for surgery and everything. The anesthesia, anesthesiologist came in and talk to me. Kind of did the whole thing. I think we ended up in the actual OR closer to midnight. And then you know, it’s the whole process of them actually numbing you and getting prepped and all of that. And Henley was born at 12:49am on October 3. So we found out the morning of October 2 that she was gone. I had her very early on October 3rd.

Winter 18:24
How was the surgery? Was it okay?

Meghan 18:27
It was fine. I had every reaction to the anesthesia that they say is normal. So the immediate things they warn you about is, you could have a really, really itchy nose. Yup, felt like I wanted to rip my nose off my face. And then because your blood pressure is going to dip, you also probably will get nauseous. Literally, they put the medicine in, laid me down, and like 10 seconds later, I’m like, I feel like I’m gonna throw up. So they had to pump anti-nausea medicine in. And I mean, I obviously had never been through anything like that, so the sensation of just like not being able to feel anything from your rib cage down was very strange.

Winter 19:02
It is very strange. I agree.

Meghan 19:05
But overall, I mean, it wasn’t bad. Just the same terrible situation of any C-section where the baby’s not alive. It’s everybody’s talking, the doctors are talking. There’s all kinds of noise. And then you can tell they get to a point where they’re pulling her out and the room goes silent. No one says anything. It’s just deafeningly silent.

They…I mean…the silence was followed up with, you know, She’s beautiful. I’m so sorry. But it was hard. Sorry.

So neither one of us looked at her initially. They kind of took her. Cleaned her up. They sewed me up and took me back to the room. And then got me all situated. And then they brought her in to us. They kind of they gave us the choice on what we wanted to do. I mean, before we even went into surgery, they had like a long list of things of: Do you want this? Do you want that? You know, do you want us to take pictures? Do you have an outfit you want to her put in? Is there any one specific you want to be here? All the different things that we could have done.

We ended up–Scott had gone home and gotten stuff for us earlier in the day, because obviously, we didn’t even have a hospital bag packed at this point. I still thought I had four weeks to go and it was my first baby. So I’m like, if I even go into labor by then… Like, I wasn’t–everything else was ready–but we hadn’t packed a bag. So he went home with all the stuff and I had him bring an outfit for Henley. And we had a stuffed animal that he brought that he specifically wanted with her. It’s a little Groot from Guardians of the Galaxy.

Winter 20:59
That’s amazing.

Meghan 21:01
It was the first thing that he had bought specifically for her. So they bring us back to the room and they had already taken her and cleaned her up and taken pictures of her for us.

Winter 21:11
Oh, they did! Okay…

Meghan 21:12
And changed her clothes, which we were given all the options, if we wanted to do these things ourselves, but I just, I was mostly afraid of what she was going to look like, that I didn’t know that I wanted to. So I knew I wanted to see her. I knew I wanted to hold her ,but I didn’t know if I wanted to dress her, because I just wasn’t sure, you know, exactly what was going to be. And I mean, we had a pretty good idea of how long she’d been gone at that point.

Winter 21:38
What did they say?

Meghan 21:39
Because the night before I went to the doctor, I was laying on the couch and about 9pm and my placenta was in the front, so we couldn’t usually like see her kicks like from across the room or anything. But there were these intense crazy kicks that Scott could see from across the couch. And it was crazy. That’s the last time I for sure know she moved. Well come to find out the thing that doctors don’t tell everyone, is that erratic and extra intense movements, can be a sign of distress. And had I known this and gone to the hospital immediately, we may have had a different outcome in the end. So this is something that I pass on to every woman I know that’s pregnant now. Like, your doctor is not going to tell you this and I don’t mean to sound scary, but you need to know this.

Winter 22:27
Yeah. Yeah. So you think it was the night before basically on the 1st?

Meghan 22:31
Sometime between 10, 10:30pm on October 1. And when we went to the doctor at 8am on October 2. So she had only been gone at most like a day and a half by the time I had her. And because, you know, I know after the fact now that because I had a C section she came out looking a lot more perfect than had I delivered her naturally. I mean, there’s just ,there’s less trauma, if they go through that way.

Winter 23:03
Exactly.

Meghan 23:04
So they brought her in and had her all dressed up and I held her. And you know, the first thing we noticed is that, like I said, we had noticed in an ultrasound, because we’d had a 3D 4D ultrasound at like 30 weeks, but immediately everybody, you know, my, my husband and me both are like, It’s my nose. My nose…my nose is very turned up. And it’s from my dad’s side. Apparently, it’s a very, very strong genetic trait, because my dad had it. I have it. My half-brother has it. And it passed right on to Henley.

And, you know, we took, we took a little bit of time. I held her. Scott just…I asked him if he wanted to hold her and he just couldn’t. He just didn’t feel like he could. I did be slightly pushy and I made him come in next to me and have a picture taken, so that we at least had one or two pictures of the three of us. Even Now I regret that I didn’t call Now I Lay Me Down to Sleep to come take really great quality photos, it just wasn’t something that was like, my mind was able to process that I should have done at that point in time. They had given me the paper with their phone number. But in that whole thing happening, you don’t really think about that. I honestly never would have even thought to bring her clothes, except for my friend that was there with us–it’s actually her neighbor, that has also lost a child–and she had actually, when she found out, she had immediately called her neighbor and gone, What do I need to tell her to do?

Winter 24:33
That’s awesome. That was so smart.

Meghan 24:35
Her neighbor lost a baby at 34 weeks, and it was about a year and a half ago. So she, still fresh, but like was able to tell her, Okay, you’re gonna want to tell her to take all the pictures, to bring an outfit for her to…you know, all these things that you don’t think about in the moment, and she didn’t think about in the moment, but she’s basing them off things she regrets or things that somebody else told her, that I’m so grateful that somebody told me, you know. It’s so helpful to have somebody that can actually be like, No, I’ve been there. And this is what you need to know.

Winter 25:09
Let’s try…yeah, you will, you’ll want this. Yeah.

Meghan 25:12
So we only had Henley in our room for probably 20 or 30 minutes. We actually gave the opportunity for my mom and stepdad, who were the only other–I had the one friend at the hospital and my mom and stepdad were there–we gave the opportunity for them to meet her, but I didn’t want them to meet her in the room with me. I just didn’t know how I would do seeing that. So they had another room right next to me that they could have brought Henley into, and my mom and stepdad could’ve met her in there. My mom and stepdad actually chose not to. I haven’t really asked the reasoning behind that. It was their choice I left to them.

Winter 25:48
It was their choice. Yeah.

Meghan 25:49
So, the nurses eventually, you know, we decided, Okay, you know, we’re ready to let her go. You know, gave her a final kiss and they took her. After that point, they actually took her in the other room. And we know now, that they took hand and footprints. They did them, you know, in ink. They did them into clay that was then given back to us later. And we have these really special things that, I guess we’re one of the first from the hospital that they’re actually started doing it, they’re three-dimensional molds of her hand and her foot.

Winter 26:24
That’s awesome.

Meghan 26:25
So, you know, you can see every detail, and her little hand is curved, so like you could put your finger in. And they took a bunch of pictures. And so we have all that stuff now. And then I was actually given the option to leave the hospital that night, the night of the third.

Winter 26:44
Really?

Meghan 26:45
So very quickly. I chose to stay overnight. Just because I didn’t want to go home at night. I was like, I’d rather go home–we have a roommate–and I decided I’d rather go home while he’s at work. I’d rather transition back into being at home while he’s not there. So waited and stayed one more night. And then the process of getting discharged was a little iffy, because they have to get your vitals in a certain area to be able to discharge you. Well, obviously, my blood pressure was high, because hi, traumatic experience. And then they kept having problems getting my oxygen level to be good. Well, they keep coming in, they’re trying to take my oxygen level, after somebody had said something that sent me crying. Well, clearly, I’m not breathing properly, because I’m crying.

Winter 27:34
Yeah.

Meghan 27:36
So eventually, we got everything. Okay. And I went home that Friday at about 11am. So I was only in the hospital from Wednesday at like 930 in the morning till Friday at 11am.

Winter 27:49
But it’s a C-section. Holy cow. I can’t believe they. They’re like, You can go home.

Meghan 27:54
Yeah, I was impressed that they would let me go home that soon.

Winter 27:57
Yeah, I–usually it’s a little bit longer than that.

Meghan 28:00
I was up walking, probably four hours after the C-section. They had me up and walking and so they were, you know, I had ticked off all the boxes of the things they need you to be able to do before you can go home.

Winter 28:14
Were you feeling okay?

Meghan 28:16
I was sore, but overall, yeah, I was okay. We found out through this process that I can’t have toradol, because that makes my nose itch terribly. So two doses of that, I went, No more! So, you know, I mean, I left the hospital on just ibuprofen, you know, 800 milligram ibuprofen, but ibuprofen nonetheless. And I mean, the recovery wasn’t horrible. I think part of that is, you know, it’s much easier to recover from a C-section when you’re not taking care of somebody else.

Winter 28:46
Yeah, yes. Yeah, that’s so true. Now, Meghan, can you tell me a little bit about Henley’s name? How did you choose her name?

Meghan 28:55
So her first name was picked out before she ever even was a thought. Scott I had watched a movie called “Now You See Me” and the main character that’s female, her name is Henley. And we both had just looked at each other, and we’re like, That’s what we’re naming a baby!

We hadn’t even talked about having children at this point. But that’s what it was. And so we chose her name then. And as soon as we found out, we were pregnant, I was like, I know it’s a girl. I know it’s a girl. And everybody’s like, Okay. We had an ultrasound at just before 15 weeks. We paid for one, because I was too eager to know.l I could not wait. And we found out she was a girl. And so immediately, she had a first name, she did not have a middle name until she was born. I had wanted her middle name to be Ryan. But I spent a lot of time bothered by the fact that like her first name is kind of gender-neutral. And so if I give her a boy’s name as a middle name, is she going to be that kid in school where they’re reading the attendance list, and nobody’s going to know if that’s a boy or a girl. So then I thought about spelling Ryan differently. I thought about spelling it with R-Y-A-N-N, so that screamed female, but I didn’t really love that. So after everything happened, we knew that all of my fears weren’t going to be a factor about her name. I said forget it. I made me here what I want and just went with it. So her middle name is just spelled just like any other Ryan.

Winter 29:08
Really? Okay!

Okay, that’s awesome. I was wondering, I was like that’s just kind of a unique name so… Yeah, it’s always tricky, right, names? So you…

Meghan 30:27
You kind of immediately go to: Okay, what are they going to get teased about with this name?

Winter 30:32
Yep, that’s exactly right.

Meghan 30:35
Or you don’t want to be me, who my name is Meghan. But it’s not spelled exactly the way everyone else spells it and you have to spell your name for everyone forever.

Winter 30:43
Yes, forever. It is what it is, right? I have a name “Winter” and everybody’s like, What? Yes, like the season. So you guys headed home, and did you end up having an autopsy? Was there any sort of conclusion about what happened?

Meghan 31:04
They gave us the option for an autopsy, which initially we wanted to, but then we found out that insurance doesn’t cover it. It would have cost us $3,000. So we decided, you know, I talked to my doctor, and she said, Realistically with everything I’ve seen after looking at her, after looking at the placenta, I don’t think there’s a high likelihood that an autopsy is going to give you an answer. And at that point, we were just like, Well, then it’s not–we’re not going to spend the money on it.

Winter 31:32
So even just the visual, the first, I mean, just basically looking at her once over, looking at the placenta, they didn’t have any conclusions either there?

Meghan 31:39
The only thing she came up with initially, is that she had a very, very short umbilical cord. So when they did the C-section, they pulled Henley out, she barely had enough cord to put her onto my stomach before she delivered the placenta. Her record was really, really short, and it wasn’t coiled as much as it should have been, because it was so short. So realistically the best guess on what we think happened, is that as she was trying to turn from breach, she was compressing her umbilical cord, because it was so short and that’s why she was measuring small. And I guess I should mention that in the end when she was born at 36 weeks, she was 18 and a half inches long, which is pretty normal for that gestation, but she was only four pounds 10 ounces. So she was almost two pounds too small.

Winter 32:26
Yeah. For being thirty…36 weeks. Yeah.

Meghan 32:31
So they think that as she was trying to turn, she was compressing the cord, and that’s why she had started measuring small, because she had compressed it somewhat, but was still getting some blood flow. And they think that just that night when after I felt her move last they think she just compressed it completely…

Winter 32:45
So much. Yeah. Oh. Okay. So that’s what they think happened.

Meghan 32:50
After the fact now, I’ve actually gone to see a genetic counselor and a high-risk specialist, just to prepare for the next time, to know, you know, what, what, what can we do if there’s anything different. Is there anything I should be doing, shouldn’t be doing. And they’ve labeled it as intrauterine growth restriction, cuz she was so small and they’ve labeled it as partially, a placental insufficiency. They think that my placenta was just starting to kind of crap out too early. But they didn’t really test anything. So they’re not positive.

We’re also running…we, they ran some blood tests on me in the hospital for clotting disorders, and I came back negative for all of those. But currently, I actually went for bloodwork yesterday. They’re running just like the huge panel of all the things just to see. And we’re also running genetic carrier screening, just to make sure. The genetic counselor, the high-risk doctor, and my doctor don’t think we’re going to find anything. And they do not think there was a genetic component to anything. You know, basically my doctor just said, as horrible as this is, it’s just a random, terrible occurrence. Nothing to be done to prevent it, nothing to be done to change it. It’s just like, you know, crappy luck, actually. So they’re running all these things, but they don’t, they don’t think they’re gonna find anything. It’s more just for peace of mind to know that, like, we’ve checked off all the boxes. Everything comes back normal.

Winter 34:14
Yeah. Did you have any genetic testing but done beforehand?

Meghan 34:18
I did not.

Winter 34:18
Okay. Okay. So this will be kind of the–

Meghan 34:20
I had opted not to during pregnancy. At the beginning, you know they offer you to do the early genetic testing, and I kind of had the mindset, you know, to me, it’s not going to matter what they find, so I’m just not going to do it. It’s not going to change what’s going on for me. Now, the next time I get pregnant, all the tests, all the time!

Winter 34:39
All of it, we’re doing it all.

Meghan 34:41
Anything you wanna do, do it!

Winter 34:42
Well, I was going to say, yeah, I was gonna say now that you’ve had the stillbirth and it’s…yeah, it puts you in a different category now and so you’re gonna check all the things!

Meghan 34:49
The wonders of I am immediately a high-risk patient the next time I’m pregnant.

Winter 34:54
Yeah, exactly.

Meghan 34:55
First pregnancy and now every subsequent will be considered high risk.

Winter 35:00
When you get home then, how was being home? Did you guys start planning any funeral services or memorial services?

Meghan 35:07
We decided not to have any kind of a funeral, just not something that either of us really wanted. We had her cremated, which that process was more dramatic than it needed to be with the funeral home. It took an excessively long amount of time, and there were issues where, you know, I called and called and called, trying to get information.. Nobody gave me information. It was just a whole mess. It took like three and a half weeks before we got her back. And actually, I found out from the certificate of cremation, that she had been cremated five days prior to the day they finally told me that we could go pick her up. It was a mess.

Winter 35:47
Oh. Did you, do…so you… no funeral services. You had her cremated. You did get her back though.

Meghan 35:53
We did.

Winter 35:55
And she just at home and with you guys?

Meghan 35:57
We actually just–yeah, I mean, we got…when we got her back, they just kind of had given the urn that they give for free, because the funeral home we went through is one locally that does things, that any baby under the age of two, they’ll cremate for just the state fee. So the $10 or whatever you have to pay for the state. They don’t charge for it, which is why we went through them because after this whole experience, it’s, I mean, it’s a lot of money that you didn’t expect to be spending

Winter 36:25
Yes, it’s so, it’s so..it’s like a rude wake up. It’s like what?! I have to–what?!

Meghan 36:30
We went from expecting $1,000 copay for a delivery to $4,000 in copays for a C-section and it happening four weeks earlier than we anticipated.

So, it was kind of crazy. So she came home in the urn they gave us, which we didn’t really love so we eventually purchased another one and it’s shaped like a castle. My husband picked it, because it makes him think of Disneyland.

Winter 36:56
Yeah. I love that.

Meghan 36:58
So her earn And you know, all of her hand and footprints and molds and everything are just kind of on the dresser in her nursery. Because I was 36-weeks pregnant. We had an entire room ready. You know, clothes washed and put in the dresser, diapers out, everything totally ready. So that just seemed like the right place for her to be. Eventually I’m sure we will do something else, because we’re very hopeful that there will be another baby to actually use that nursery. But for now, that’s just what feels right.

Winter 37:39
Do you go hang out in her nursery?

Meghan 37:42
I do. I actually sit in her rocking chair in there ,and I have a little journal that I write letters to her and it’s just…you know, about nothingness. Just about what’s happening that day or whatever, but makes me feel close to her. Cuz you know, the chair that I bought with the intention of–well it was purchased for me–but with the intention of getting to rock her, and we don’t get to. So that’s what is comforting. We also have a weighted teddy bear that’s weighted to her birth weight and sometimes I’ll just sit in there with that. But otherwise, we keep the door shut. You know, it’s the one room in the house. we keep the dogs out of.

Winter 38:24
It’s kind of a special area.

Meghan 38:28
Preserved.

Winter 38:28
Yeah, this is her room. This is her room.

Meghan 38:33
It’s actually connected to the room I’m sitting in currently by a bathroom. So it’s just the other side of the bathroom next to me.

Winter 38:40
Well, thank you for sharing that story. I can’t imagine.

Meghan 38:45
Thanks for letting me talk about her.

Winter 38:46
Well, we always want to talk about are our kids, right? I mean, I always want to talk about my son, so… Is there anything else you want to say to remember about her?

Meghan 38:59
I mean, just that, we just like everybody else, we wish things could have been different. But we’re so thankful for the time that we did have. You know, I got 36 weeks of having her with me, which is something that I would never trade. Even though the end was horrible, I would never trade getting that time with her.

Winter 39:21
Yeah. Thank you so much, Meghan.

So many thanks to Meghan for being vulnerable and sharing your beautiful story of Henley with us. Head over to our website StillAPartofUs.com, where you can find the show notes including a full transcript of this interview and any resources that were mentioned, where you can sign up for our short and helpful email newsletter, where you can learn how you can become a patron and support the work it takes to produce this show for just a few dollars a month, and lastly, where you can find out how to get in touch with us if you want to share your child’s story on the show.

The show is produced and edited by Winter and Lee Redd. Thanks to Josh Woodward for letting us use his song “Flickering Flame”. You can find them at JoshWoodward.com. Lastly, subscribe to this podcast and share it with their friends that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they’re still a part of us.

Lee 40:38
My opinions may have changed, but not the fact that I am right. Ashleigh Brilliant

Transcribed by https://otter.ai

Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: c-section, stillbirth, stillborn

36 Ways to Survive the Holidays After Your Baby Has Died

December 23, 2019 by Winter

I’ll be honest, both my husband Lee and I don’t remember the holidays that first year after our son Brannan was born still. It had only been 6 months and we were still in survival mode, but we had a 4-year old daughter to care for and to make the holidays special for. I hope she isn’t scarred for life as she watched her parents walk around in a half-daze and/or crying. Now we’re going into our second holiday season and here is list of things that we are arming ourselves with for our second holiday season without our son.

First of all, it’s all about the expectations. Lower them. Lower what you expect from yourself, what you expect from others, what the holidays are “supposed” to be, and even for what you’re going to do to survive the holidays from this list below. Remember, we’ve just gone through something traumatic—please give yourself some grace and some wiggle room.

Take care of yourself physically

  1. Eat healthy, nutritious food every day: You don’t have to be a health nut (I enjoy all the treats that pop up this time of the year like everyone else), but try to get more healthy food options in. Grief is hard work and you need the fuel to deal with it all.
  2. Move your body everyday: Even going for a walk for 10 minutes will do wonders for your emotional state. I personally lift weights, and I am NOT the type of person you’d see and think, “Oh, she must lift weights”. I do it because I have something I like to call “anger-gy” (aka angry energy), and I’ve found that lifting heaving weights helps me channel that “angergy’, so it doesn’t spill over to my personal and professional life.
  3. Get some sleep: You might be having a difficult time sleeping–I did with so many things racing through my mind, but do the best you can, because your body needs rest. Practice good sleep hygiene. Try to make a bedtime routine. Sneak in a nap if possible. And talk to your doctor if you need additional help.
  4. Take a shower everyday: And brush your teeth. Just practice good hygiene, because you will be surprised how much better a hot shower and non-fuzzy teeth will make you feel after you’ve been crying all day.
  5. Relax: What do you like to do to relax, before you lost your baby? Getting a massage? Meditating? Taking a bath? Going on a walk? Listening to music? Reading a book? Whatever it is, get some of that in your life, because your tense shoulders and your aching head probably need it.
  6. Have a routine: Not a routine of “cry, sleep, cry, sleep”. I’m talking “Set an alarm to get up every single day, take a shower, eat something nutritious, and go for a walk” type of a routine. I wanted everything to be normal and familiar after our son died, but it wasn’t ever going to be “normal” again. A routine gives you some semblance of familiarity in your now “new normal.”  
  7. Avoid drugs and alcohol: Those can be emotion-numbing and you don’t want to not feel. You’re going to get through this if you feel all the feelings—the good and the bad. Brene Brown talks about it a little bit in her TED talk [source] about how when you numb the bad feelings, you also numb the good feelings and aren’t able to truly feel joy.

Take care of yourself mentally

  1. Go to counseling: Seeing a therapist or counselor can feel vulnerable, like you’re not strong enough and you need help or something. Guess what? You need the help. These trained professionals are equipped with tools and methods to help you navigate and process your grief. One tip: Shop around for a counselor. Not every therapist or counselor will be a good match for you.
  2. Shopping for the holidays: Navigating the crowds while doing my holiday shopping always stresses me out, so we opted to shop online last year. Know what you can handle and figure out solutions to minimize the frenzy of shopping, whether that be online shopping or grocery pickup.
  3. Get rid of the guilt: You think that you will disappoint someone this holiday season. You may or you may not if you don’t buy a gift for this person or didn’t have the energy to make neighbor gifts. But that’s okay. When our son passed away, so many things didn’t matter anymore. Let the guilt go and just be okay with where you’re at today.
  4. Let’s find the silver lining: I’m not telling you to ignore how crummy you may be feeling. I’m asking you to look around and notice things that you do have—the people in your life, the blessings you have been given. Practice an attitude of gratitude. Having a thankful heart helps pull you out of your sadness, even for a few moments.
  5. Recharge: Are you an introvert? Extrovert? What helps you rest and recharge? Then do it. For me, literal quiet time with no distractions (I’m looking at you, smartphone) does the trick. Others may benefit from time with family or a close friend, reading, or listening to music. Find what fills your energy back up and do that.
  6. Have a goal: Yup, goals aren’t for January anymore. Having a goal, even a small one, can nurture your mind and soul. Whether it has something to do with your baby (write daily about your child) or not (make a gingerbread Eiffel Tower), that accomplishment is rewarding.

Take care of yourself professionally

  1. Hire a cleaning service: Some of you reading this may be stay-at-home parents, and may think that you could clean the house yourself. If it’s de-stresser for you, then clean away. If it’s tough to clean most days and you can financially manage it, hire someone to clean your home, even just once during the holiday season. It’s one less thing to do and your home will be clean, and having a clean home creates calmness.
  2. Talk to your boss: If you are struggling to focus at work or find yourself breaking down crying, talk to your boss as soon as possible. Your employer is generally concerned with your well-being, because when your personal life is going well, it’s usually reflected in your work. Let them know where you’re at and see if you can figure out some tactics to help you deal with your emotions and your work responsibilities. And for you stay-at-home parents, talk to your spouse so you can figure out what you need to do together to care for your other children and home responsibilities. There will be some things that can go by the wayside until you’re all in a better place.
  3. Connect with co-workers: Sometimes you spend a considerably more amount of time with your co-workers, so try and socialize with them. If it’s appropriate, let them know how you’re doing, because there’s a good chance they want to see how you’re doing, but don’t know how to broach the topic. For you stay-at-home parents, get together with other stay-at-home parents at the park or children’s museum, so your kids can play while you talk and connect. My co-workers were helpful when I needed a break and kind when I wanted to talk about my son.
  4. Take a break: Take a walk, stretch, breath. Work can be a welcome distraction, but when the stress starts to build up because of deadlines and demands from your employer, remember to take a little time each day to rest. A little stretching or desk yoga will do wonders at keeping the stress at bay. For you stay-at-home parents, it’s going to be hard work to carve in breaks some days, but work to get even 5 minutes for yourself to stretch and breath.

Take care of yourself spiritually

  1. Connect with a higher power: Find ways to connect to a higher power. That could mean attending church services regularly if you are religious. It could look like daily meditation. It could be personal prayer or private worship.
  2. Journal: Writing is therapeutic and can serve as wonderful way to process how you are feeling and also to remember your child. You can write about your day, what you’re feeling, or about your child and your experiences through pregnancy and birth. As hard as it may be to write about those experiences, it’s a way of being close to your child.
  3. Do some service: Helping others, in small or big ways, will get you out of your own head and your own sorrow for even a short time. My husband found out another family almost lost their young mom two days after we lost our son, and his first reaction was to show up on their doorstep with food for them as they watched their mom struggle for her life in the days afterward. The outreach to others helped us realize that we weren’t the only ones with tough days ahead.
  4. Count (and express) your blessings daily: It might seem like there’s very little to be grateful for after your baby just died, but when you stop and take a look around and acknowledge what you do have—big and small—it can lower depression and increase your resiliency to stress. Take the time every day to notice one thing that you’re grateful for and express it openly or in a gratitude journal.

Take care of yourself socially

  1. Know it’s okay to change your mind: There are so many family parties and work get-togethers, holiday shows and end of the year recitals, and making gingerbread house making and looking at Christmas lights. So many wonderful things to do, to see, to eat! It’s okay to be wishy-washy while you’re grieving. Let others know what they can expect from you and be honest with where you’re at. If going to that live nativity show is going to leave you in a depression for days, then don’t go. Gauge how you’re feeling and give yourself permission to change your mind if you are not feeling it.
  2. Get together with extended family and also limit that time together if needed: Okay, so this suggestion can be tricky, because some family situations can be difficult or wonderful or both. They know you and you have history with your family members and that in itself can be comforting. Know yourself and your family and spend the amount of time with them that will be good for your soul.
  3. Get together with a friend, but choose wisely: There are some friends that will be there for you to listen, to cry, to mourn with you. There are others who are not in a good position to be there for you as you grieve and that’s okay. Be wise when you choose which friend to spend time with, because they could be more draining, than helpful. I have two former college roommates with whom I go to brunch every month or two and I know that we are all ready to listen to and know what’s going on with each other and it fills my cup to be with them.
  4. Create new traditions: We realized that things were different than we expected that first Christmas after our son died. The “new normal” was becoming more familiar, so we decided to create new Christmas traditions, especially ones that included our son. We have a tradition of hanging a stocking for him and decorating his grave with his own Christmas tree. We ditched other traditions for a time, because they didn’t feel right anymore and we didn’t have energy for them.
  5. Don’t be just “busy”: It’s okay not to be busy and slow down. You may feel like it’s best to be busy, but if you ignore your feelings or don’t give yourself time to mourn, rest, and recharge, those pent-up feelings will spill over and could result in shortened tempers and hurt feelings.
  6. Make a list of holiday don’ts: Everyone has their list of things they want to do during the holidays, but have you ever created a list of holiday don’ts before? On my list this year, is not taking our daughter to see Santa and not making our traditional family chocolates. When you intentionally write down those things you aren’t going to do this holiday, you’re giving yourself permission to not have those things weigh on you. All the things you “should” do to make the holidays merry and bright, can be stressful. Yay for less stress!

Take care of yourself emotionally

  1. Make an intentional list of your holiday dos: This goes hand-in-hand with the previous two tips, but there will be plenty of things that will want your attention. You don’t have to do “all the things”. Be intentional in which activities you do choose. Choose one or two that are meaningful to you, and be okay with catching the other ones next time. Your sanity will thank you!
  2. Turn off the Christmas music: I love love LOVE Christmas music, but I highly encourage you to turn it off. All the songs of the miraculous birth of Jesus are painful reminders that my baby isn’t here and that is hard. It’s okay to turn it off and have some quiet.
  3. Log out of social media: Go on a digital vacation in December, because all the beautiful pictures that you might think are “inspiring” you, may be putting more pressure and guilt on you to do more than you can and should. Plus, if your feed is anything like my feed is, you’ll be thankfully missing out on all the baby announcements and “Baby’s 1st Christmas” posts.
  4. Be honest about your feelings when someone asks: You need to acknowledge to yourself and others when you’re not doing well. Obviously, it depends on the person who is asking, but realize that everything may not (or may) be great. If telling someone that you’re terrible is scary to you, try some softer versions that we use that are also truthful: “I’m okay“, “I’ve had better days”, “It’s been a hard day, but I’m working through it”, and my husband’s favorite “It is what it is.”
  5. Go to a grief support group: We go to our local chapter of Share Parents every month or two. I am always surprised at the mix of people that attend—we come from all different walks of life, but we have one thing that we have in common and that common loss is comforting and connecting. We are all part of the worst club, and we can talk and cry about our children freely together.
  6. Do something other than sitting on your phone or binging Netflix: I am guilty of doing both these activities when I feel like I need to “escape”—they feel like good “numbing” activities, right? But your feelings won’t go away and you will likely feel crummier for having spent two hours scrolling through other people’s cheery and festive newsfeeds or spending 6 hours in front of the TV not doing much. I’ll give you a couple of suggestions of what to do instead below.
  7. Do 1 thing you enjoy and/or are good at every day: What are your hobbies? It may seem like a while since you’ve done any of those things you enjoy. Do one thing you really love to do or you’re good at doing. That could be knitting, baking, playing a video game (not hours’ worth though), working out, playing a board game, spending time with friends, fly tying, taking photos, going to the symphony, writing, catching up on your favorite sports team, drawing, yoga, traveling, and the list goes on. Introduce a little bit of joy by revisiting something you love to do every day.
  8. Make something with your hands: I was antsy and couldn’t sit still that first holiday season after our son died. I decided to sew this bag for my husband as a Christmas gift. This was quite the feat for me considering I had little sewing experience. Using my hands to make this bag helped me concentrate (and distracted me) for a short time as I worked on it. It was a much-needed break and I felt accomplished that I had created something.
  9. Make and take the time to grieve and let the tears come if they do: My husband Lee and I were at an appointment with our therapist six months after our son was stillborn, and I realized that I was doing okay, but my husband was not, having had a traumatic experience after our son was born. Her suggestion was for my husband to go out walking or driving alone for an hour, without any distractions, to think about our son and as she put it, “Let the tears come. Allow yourself to cry if you feel like you need to.” Her suggestion to me was to allow him to have the time regularly so he could process what he had gone through. Do the same for yourself. Let the tears come.

These are just a few things that we do to make the Christmas season more peaceful, calming, and sane for our family. What are some of your suggestions for surviving and even enjoying the holidays? Please comment below.

Filed Under: advice Tagged With: advice, baby death, self-care, stillbirth

13: Lindsay’s advice to become better, not bitter

October 1, 2019 by Winter

Lindsay shares with us on this advice episode what NOT to say to a parent who has experienced a loss, doing the little things like including her daughter Sadie means the world to her, and how you can become bitter or you can can become better after such tragedy.

Lindsay and Matt’s family picture

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission, which helps support our show. This commission comes at no additional cost to you, our wonderful listener!

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Filed Under: advice, late term stillbirth, podcast episode, stillbirth Tagged With: cord accident, stillbirth, stillborn

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We're Winter and Lee Redd. Because of our sweet son Brannan who was stillborn at 38 weeks, we created this place where other moms and dads can share the birth story of their baby that was stillborn or who died in infancy.

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