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stillbirth

REMEMBERING GEORGE | Stillborn at 39 Weeks During COVID-19 Pandemic in England

February 17, 2022 by Winter

This is the stillbirth story of George Robert, told by his mom Miranda. Originally from Canada, Miranda and her husband Graham have been living in London for work, and they made the decision to start trying to have a baby. She talks about her pregnancy and “going to” appointments (telemedicine) and how George was progressing during the COVID-19 pandemic.

After feeling no movement from George one morning around 39 weeks, Miranda headed to the hospital to be checked. They couldn’t find a heartbeat, and Miranda gave birth to George the following day. She and Graham did not want to see George after he was born, and with some encouragement from their bereavement midwife, they both did see him and spent time with him. This is George’s story.

Watch here (YouTube):

Listen here (podcast):


Time Stamps:

00:00 George Robert
02:21 Introduction of Miranda and Graham
09:01 Pregnancy
19:10 Something is wrong and going to the hospital
30:09 Birth
36:26 After birth
41:17 Leaving the hospital
45:50 Funeral
55:04 Autopsy

You might appreciate these other episodes:

  • Watch/listen to Miranda‘s advice episode of son George: Click here
  • Watch/listen to Tiffany‘s birth episode of daughter Khyana’s: Click here

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George’s 17 Week Ultrasound

Full Transcription:

Miranda Markham  0:00  

My baby’s name was George Robert.

Miranda Markham  0:08  

Things I remember about him most of all. The first was that throughout the entire pregnancy, I was absolutely convinced he would be blonde like me. I don’t know why it’s the recessive gene. My husband and I have dark brown hair, but I just assumed 100% he’d be blonde. He was born with a full head of dark brown hair, which surprised me. The other thing was that leading up to his birth, the weather was unseasonably warm, beautiful sunny days, pure blue skies every day for what seemed like weeks on end. Then he died five days before his due date. On his due day, the sixth of June, the weather absolutely turned, it got really cold. There was a thunderstorm. I do remember sitting and staring out the window and watching the rain pour down and just think this is so perfect. I couldn’t stand a happy, sunny day on what was the saddest day for me. I just felt like the world was grieving with me somehow. I don’t know, it felt like a very fitting weather turn to mark what should have been a very joyful day.

Winter  1:21  

Welcome to Still A Part of Us. A place where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter.

Lee  1:28  

And I’m Lee, we are grateful you joined us today. Please note that this is a story of loss and has triggers.

Winter  1:34  

Thanks to our lost parents who are willing to be vulnerable and share their children with us. 

Lee  1:38  

If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

Winter  1:45  

Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us. They’re Still A Part of Us.

Winter  1:58  

We are so grateful to have Miranda on with us today to talk about her son, George. This is actually kind of a fun experience to get to know Miranda. So I’m excited to have you on today. Miranda, welcome. 

Miranda Markham  2:10  

Thank you. Thank you so much for having me. 

Winter  2:12  

So tell us a little bit about yourself, Miranda. Who you’re married to, where you guys are living right now, and what do you do on a day to day basis?

Miranda Markham  2:21  

Yeah, sure. So my husband’s name is Graham. We just celebrated our 8th wedding anniversary on the 13th of April. 

Winter  2:29  

Congratulations.

Miranda Markham  2:31  

16th of April. It was in 2013. We are originally from Canada. We moved to London, England six years ago, both of us had job opportunities that came up around the same time. It was not in our life plan. We had just got married, we just bought a house and lived in that house for approximately a year. It was very much the plan to stay in Toronto, where we lived. We just kind of packed it all up and fled with the intention of staying in London for two years. That was six years ago. 

Miranda Markham  3:15  

We both changed jobs a couple times since moving to London. But broadly, my role has been in the world of public relations. I’ve worked in all sorts. Started in consumer PR, so for large consumer businesses and then transitioned into health and fitness PR specifically, which is very much my area of expertise and my passion. My husband’s done a fairly significant career pivot after a career in mining. He went into an MBA program at the London Business School, and decided he wanted to get into the world of food tech, which is where he’s working now. So plant proteins and alternative meat. Yeah,

Winter  3:55  

Very interesting. So you guys have just found yourself in London. Do you enjoy living there? Has it been good for you?

Miranda Markham  4:04  

It’s been amazing. I think we wouldn’t have stayed, we wouldn’t have stayed for three times the length of time if it wasn’t. I think we were really naive when we first moved to London thinking that after two years, we would have done it all and seen it all. Done everything made all these friends and could have just packed up and moved to Toronto. I mean, I think it really took us two years to feel like we lived in London, and to make some solid friendships. By the time that had happened, it seemed like a shame to reverse it all. So we just stayed, but the city is amazing. I mean, there’s everything you have at food entertainment events. I think a big thing for us was proximity to the rest of Europe and an opportunity to travel extensively which we’ve done over the last six years.

Winter  4:51  

Which is so wonderful. You kind of alluded to this that you are very much into the– you do PR for a fitness company. I know that you are a big runner if I’m not mistaken. Tell me a little bit how long you’ve been running? Is that like a pretty big hobby for you?

Miranda Markham  5:12  

Running was a huge part of my life. I started running in my late 20s. A friend of mine was the leader of a local running club and basically invited me to come and join at a time where I never really put two feet in front of her. I really enjoyed it. So I kept going back. As part of the group she was in, they wanted two new runners to train for and run their first half marathon and blog about it in exchange for free clothes and shoes. So I thought, Yeah, why not? Why not? I had every intention of running one half marathon and saying that was what got my free shoes. I’m out of here. 

Miranda Markham  5:54  

Obviously, you know where the story goes. But I fell in love with it. I suddenly just awakened to this desire to see how far I could go. If I can do this, how much more can I run? How much faster can I get? How much further can I go? It was just this massive source of pride and accomplishment for me. So I continued, and over the last decade or so, less than a decade, I’ve run over 55 different races. All my two full marathons and five triathlons. I would say I’m still very much a recreational runner, but posted some times in the past a couple years that I would have thought inconceivable in my early days. So, I think there was something really rewarding about getting older and still being able to improve. 

Winter  6:45  

Yeah. 

Miranda Markham  6:46  

So I say it was a big part of my life. I think it’s sort of dropped down the priorities these days. But it’ll be there for when I want it back again.

Winter  6:55  

Yeah, exactly. That’s a nice thing about it. So it sounds like as a couple you guys like to travel. Any other things that you like to do in London or around?

Miranda Markham  7:08  

Definitely travel, but eat. Think of there’s no shortage of amazing cuisineI in London. I think it gets painted with a bad brush. People think that English food is just a bunch of fish and chips and fried stuff. I mean, if you want that you can have it. But it’s also a very worldly city where if you want any type of cuisine from anywhere around the world, you can get it. 

Winter  7:31  

Right. 

Miranda Markham  7:32  

So I think nights out with friends and enjoying great food. Either in their homes or at a restaurant has been a huge part of our social calendar. I think just the entertainment side of things. I mean, there’s aside from the obvious theaters, and kind of Western shows, there are just so many interesting events that you can go to. Whether it’s festivals or secret cinemas, or interactive art exhibits, I mean, it’s endless. You can find something to fill your weekend, every week, if you want.

Winter  8:02  

That is so fun. I think that is great. Thank you for letting us know. I think you’re technically our first international. Yeah, international guests. So welcome.

Miranda Markham  8:14  

Hey! All Right. 

Winter  8:15  

Yeah. For a little bit of context, can you also tell us how long ago George was born at the time of this recording? 

Miranda Markham  8:24  

It was coming up on 11 months ago.

Winter  8:29  

Yeah, it’s right. June.

Miranda Markham  8:31  

 So it was June, June of 2020. 

Winter  8:33  

Right. Okay. So it’s you and your husband, Graham, and any other members of the family? Just, it’s just the two of you. Right?

Miranda Markham  8:43  

It’s just us and the puppy who joined us in December of last year. 

Winter  8:48  

Okay.

Miranda Markham  8:48  

His name is Eddie.

Winter  8:50  

Wonderful. So were you guys planning on getting pregnant then? Was that part of the big picture? Or was that something that was a little bit of a surprise?

Miranda Markham  9:00  

It was not a surprise. I think we really, as a couple, I don’t want to say struggled, but certainly postponed the idea of starting a family for quite a long time. We like our lives. The freedom of being able to pack up and travel and do whatever we wanted when we wanted. It was really difficult for us to envision a life where that suddenly came to a standstill. 

Miranda Markham  9:29  

I think at the same time, both being very career focused. We were busy. It was hard to imagine how a baby would fit into our lives. So we really delayed our thinking around starting a family for quite a while. But I think we sort of have complete predictability. The second I turned 35 I suddenly felt like okay I’m ready now and we need to start. We need to start because obviously there’s no reason to believe that we would have any issues, and I wasn’t concerned about any fertility challenges. But I think age being a factor certainly weighed on my mind. It sort of felt like it was now or never. 

Miranda Markham  10:15  

I think the other thing was that I’m an only child. I always said my whole life that I would want to have two kids. So it was trying to plot that timeline. I’m a bit of a control freak. So trying to plan how that would look. Really sort of thought, okay, at 35, we’ve got to start the process. I think we took a very sort of laid back approach to it. It’s not like I was tracking anything, we just sort of, I don’t know if they say this and other countries that pulled the goalie, as they say. We just said, and just thought, if it happens, it happens. And that’s how it will be. 

Miranda Markham  10:53  

So it wasn’t a quick process, because, as it turns out, it’s really actually hard to make a baby. You spend your whole life worried that you’re gonna get pregnant by accident. And when it comes down to it, it’s like some Einstein level science experiment where the moon has to align with something or another. Anyway, it eventually happened. A month before my 36th birthday, I found out that I was pregnant. 

Winter  11:18  

Awesome. Were you guys excited? Was that just like, okay, we have been planning for this. How did you feel about that?

Miranda Markham  11:24  

I remember the day that I told Graham, I was pregnant. I did the test in the morning before work, and it was positive. I came and told him. We both kind of went, hmm, all right. Well, I gotta go. We’ll talk later. It was like the most anticlimactic thing there was no celebration, jumping up and down. It was kind of like, Okay, this is the thing we’ll deal with later. 

Winter  11:44  

Yeah. 

Miranda Markham  11:46  

So I wouldn’t say the initial emotion was one of overwhelming excitement. I think there was certainly happiness, but also an element of being terrified as well. This is suddenly everything is going to change. 

Winter  12:01  

Yeah. 

Miranda Markham  12:02  

So we could eventually talk about it. I think as time went on, I became more and more excited. But yeah, certainly it was scary. I think we were mostly focused on how our lives would change. 

Winter  12:15  

Yeah because it is a big change when a child comes into your life. How was the pregnancy? Were you? I would say that you are relatively fit. I’m just wondering how the pregnancy went. Morning sickness. How did the baby look?

Miranda Markham  12:32  

Yeah. I mean, overall, I would say my pregnancy was really smooth and really easy. I had really intense food aversions in the first trimester, which caught me a bit by surprise. I thought I knew about morning sickness, obviously I didn’t know that I would literally feel like rushing at the smell of my own refrigerator. I subsisted on a diet of bagels and crackers for probably 12 weeks. I also made hiding the pregnancy from people at that time extremely difficult knowing both my love of food and my high level of activity, when suddenly I started acting like a slob and eating nothing but carbs. It was a rather difficult thing so I’m sure most people had a suspicion before I ever mentioned this. 

Miranda Markham  13:24  

Otherwise, I think as soon as I passed the first trimester, I felt great. I had a high level of energy. I continued running until I was 25 weeks pregnant, I think. Carried on with a fairly high intensity fitness schedule. Group after five classes modified Of course. I also worked with a personal trainer who specialized in prenatal fitness, just to make sure that I was– I have a tendency to push myself too hard all the time. So I needed someone to kind of pull me back and make sure that I was still exercising safely. 

Winter  13:53  

Yeah.

Miranda Markham  13:54  

But yeah, and we still traveled. We went to Mauritius, when I was probably about 26 weeks, maybe 24 weeks pregnant, and had a luxurious holiday at this beautiful resort. Then in March of 2020, we went to France and my friends went skiing. I snowshoed and booked a massage therapist to come to the chalet and massage me. I mean it’s all very luxurious. 

Winter  14:20  

Yes, that sounds nice.

Miranda Markham  14:22  

Yeah, I didn’t have any issues. I was very mobile, very new. I felt good. I felt great. There were certainly no warning signs that anything would go badly. 

Winter  14:35  

Yeah. I am not totally sure how healthcare is in London or in the UK. But do they generally also do a kind of anatomy ultrasound around 20 weeks? Is that a fairly common practice still?

Miranda Markham  14:51  

Yes. So I think similar to most places, they do a 12 and 20 weeks again. My particular hospital also offered a third a six week scan, but due to COVID, it was canceled. So I never actually had that one. But I think potentially unlike other countries, I don’t know this for sure. But there’s lots of private care options where there’s several clinics that will do private scans for a fairly reasonable price. So if you are concerned, you can book what’s called a reassurance scan and go in and have another scan. Your cost, of course. 

Winter  15:24  

Right, right. 

Miranda Markham  15:26  

It’s certainly affordable, I think, for most people, and I think what’s the price of reassurance?

Winter  15:31  

Yeah, yeah. So you guys got your scans at 12 weeks and at 20 weeks. And how was George looking at that time at those times, looking good?

Miranda Markham  15:41  

He looks great. He was, I mean, it was, I think we totally took for granted at the time, but I went into all of those appointments, assuming that it would all be everything is fine. All graphs trending upward. Everything is perfect. So I always left feeling quite smug that everything was great. And therefore everything would be great. 

Winter  16:01  

Yeah. I know. So tell us a little bit. So you, just to kind of back up a little bit. I just want to point out that you had George, basically in the middle of the pandemic. It was probably full, like you guys had shut down? I mean, I think the UK had shut down quite a bit of stuff by June, May, June. 

Miranda Markham  16:20  

Yeah, so just to set the sort of timeline. I think I was entering my third trimester in March of 2020. 

Winter  16:29  

Okay. 

Miranda Markham  16:30  

So right when the world was basically pulling the panic alarm on COVID. I left work one afternoon of I think, March 17, or so. thinking it would be thinking it would be a couple of weeks, and I’d be back. It was the last time I was ever in the office.

Winter  16:49  

Right.

Miranda Markham  16:49  

I haven’t been back. Everything shut down. Like fully locked down after that. It was at first kind of a funny thing, a novelty. But it was this sort of bizarro world that everyone assumed would be temporary. And it was made bearable by the fact that the weather was beautiful. 

Miranda Markham  17:12  

Oh good. 

Miranda Markham  17:13  

I just thought, well, great. I’m working from home, I’m pregnant, I don’t have to get on public transit. I’m just going to lounge in the garden and drink 100 iced tea while in between meetings. 

Miranda Markham  17:25  

I don’t think initially, I was terribly concerned. I think when things started to become more concerning was when obviously hospitals became overrun. The NHS was at a breaking point in terms of being able to accommodate all the critical patients. Of course it wouldn’t have necessarily impacted maternity care. But what they did do in order to prevent more people from entering the hospital was to cancel what they called all non essential appointments. So for anyone like me, that was deemed low risk and healthy. 

Miranda Markham  18:03  

Pretty much all of my appointments, with the exception of one of 38 weeks was canceled, or done over the phone. Which I was deeply concerned about, at the time, because I thought, How on earth could they possibly know, if something’s going wrong with a phone call? I panicked. I remember calling multiple other hospitals to see if I could switch. But they all basically had the same rules in place. So there was no point. I kept trying to tell myself that they have to make changes in an unprecedented situation. So if they tell me that this is the right thing to do, and that the risk of going into the hospital is greater than staying home, then I have to just believe that that is in fact, true.

Winter  18:51  

So you have had basically telephone phone call, I mean, telephone appointments, and or none at all, basically, for your last trimester?

Miranda Markham  19:00  

Correct. 

Winter  19:01  

Were they having you do any sort of checks of, say blood pressure or? So nothing extra?

Miranda Markham  19:10  

No. So I think this is the other thing I thought normally they take blood or they check your urine, or they do your blood pressure, none of that was happening. They basically just asked how I was feeling. I think the question that stays with me is the midwife who called me and asked, Are you happy with the baby’s movements? And I thought, like, what an absolutely absurd thing to ask a first time mom, and I said, I don’t know what you mean. Like, yeah, like, give me more to go on. What should I be looking for? I remember her sounding quite exasperated with me, as if I was just wasting her time. And she just basically asked if the movements were regular. If I’d noticed any difference in the patterns and at the time, I just thought, I mean, I’m not paying attention. I was working 15-16 hour days because working in the fitness industry, when all of our clients that basically had to shut our business was in a tailspin. We were trying to save clients who were leaving us in droves. It was really stressful. The last thing I was paying attention to was counting my baby’s movements. So I just sort of said, Yeah, I guess so. And she said, Great, okay, call us if anything changes. The conversation lasted 45 seconds.

Winter  20:24  

So you’re in your third trimester, you are told to note down. I mean, it sounds like there was not very good direction given regarding what you’re supposed to be looking for in regards to movement. 

Miranda Markham  20:36  

Not particularly.

Winter  20:37  

Not particularly and they are and you are just kind of starting to get worried. Right. I mean, I would be, like you said,I would be panicking. 

Miranda Markham  20:47  

I panicked, I was properly panicked. And not just about the baby, but about all aspects of my life. What was going to happen with my company? What was happening? It sounds trivial now. But fitness was such a huge part of my life, and all the places I would go to fit and do classes were shut down there for the foreseeable. I mean even our families for travel, they live in Canada, they wanted to come visit us when the baby was born, would that be possible? 

Miranda Markham  21:15  

I remember, I was awake in the night, I couldn’t sleep because I was so worried about things. I woke up and I wrote, feverishly, six pages of worries. Months and months later, I went back and looked at those and it is shocking. How many of those things actually happened. Most people say when you write down your worries that most of them end up not coming to fruition. In his particular case, I would say 50% plus actually, indeed did happen. Which is a terrifying thing. 

Winter  21:45  

Yeah, it is. So tell me what happened. Yeah, tell me kind of what happened when you found out about George.

Miranda Markham  21:55  

I mean, things carried on through the third trimester. I did actually go to an appointment at 38 weeks, where everything appeared to be fine. So then I carried on working right up until the end. I worked until the 30th of May. I think that was the right day, 30 or something around there. 

Miranda Markham  22:15  

I remember being quite smug having done the best job I could, I was on great terms with my boss. We’ve done a lot of great work together in order to kind of salvage a lot of things that were going wrong. So we had a friend over that evening, and you’re having some food in the garden. I remember feeling quite smug. I could feel George moving around, and was feeling quite good about everything. 

Miranda Markham  22:40  

I woke up the next morning, I guess this was now June. June, the first, which was Monday, my very first day of maternity leave. I sat up in bed, and I just remember I normally every morning when I would sit up in bed, and I would have my morning drink, the baby would start moving. He’d start moving straight away. I start noticing his movements, especially if he could hear me or Graham talking. But this morning, there was nothing. I didn’t panic, not straight away, because I knew not to. I’d read enough by this stage on my own and based on my own research that you shouldn’t panic. 

Miranda Markham  23:17  

So I did everything that I was told to do. I had something cold to drink, I ate something sweet. I lay down on the couch, and I tried to feel if I could feel any movements. I still didn’t believe that there was anything too wrong. So I had a shower, dried my hair. By this point, more than an hour had gone by, and I still hadn’t felt anything. I thought I should just go in just to be sure. I’m sure it’s fine. But I’ll go in. I told Graham not to come even though I think he could have despite the COVID restrictions, but I told him not to go because in that moment, I was sure that everything would be okay. 

Miranda Markham  23:58  

I remember getting in. I just took an Uber to the hospital. I remember on the way there. I didn’t know just suddenly getting this increasing sense of dread. I even googled, I know I did this because like the web page was still open on my phone weeks and weeks later I googled rate of stillbirth. I just I don’t know, I just had a horrible dreadful feeling that something was wrong. I got to the maternity ward and they still had me wait, even though I said I was concerned about the baby’s movements. I still waited in the waiting room for 25 minutes before someone saw me.

Miranda Markham  24:36  

Then finally a midwife came and put the doppler on me and couldn’t find anything. That’s when I really started to panic. I kept shouting at her, is something wrong? Something is wrong and she just kept telling me that it was fine and not to worry. They brought in a different midwife and she checked and still nothing. 

Miranda Markham  24:53  

Then they told me to move and I had to go to a different area where they did a proper ultrasound with a more senior I don’t know if she was a midwife or an obstetrician, I’m not sure. That’s when she told me, well, she didn’t actually need to tell me. I just remember looking at her actually all three of them. There are three midwives there. They were all wearing masks because of COVID. I just looked at her eyes. They were filled up with tears. I knew before she even said anything. She just said the words I’m so sorry. I don’t know. I kept screaming at her. Are you sure? I demanded that she check again, over and over. She kept telling me that she was so sorry that he had no heartbeat. 

Miranda Markham  25:42  

After a few moments of trying to absorb this news, she told me that we had to go to a different room. I mean, understandably, I was hysterical. We’re separated by curtains in a room full of other pregnant women. Obviously, it’s not a good scene. I couldn’t function, I couldn’t move. Then I obviously had to call Graham, I had to call him, how do you call your husband and tell him that your baby’s dead? I’ve somehow managed to get through to him. I just shrieked something down the phone and then threw my phone at whoever was sitting or standing next to me and told them they had to sort it out. 

Miranda Markham  26:25  

So they took me to this other room. I remember sitting there just crying and asking, are they sure ? They kept telling me they could check again. But the woman who checked me is the most senior. I don’t know what her title is, a senior kind of ultrasound technician in the hospital and that if she had not seen a heartbeat, it was very unlikely that it would be any different. I remember I just kept asking what do we do now? What do I do? What do I do?

Miranda Markham  26:56  

They wouldn’t answer me forever, they just wouldn’t tell me anything, they wouldn’t speak to me other than just to sort of try to calm me like they wanted Graham to be there first. In hindsight, that was the right thing to do, because I don’t think I would have heard, or I would have heard, but I wouldn’t have listened to anything they said.

Miranda Markham  27:16  

Anyway, eventually he arrived. We talked about the different options, it is exceedingly difficult, in that moment of extreme shock to try and make rational decisions about what to do next. They give you the sort of doctor’s perspective of you can have a C-section or you can be induced, and they give you a bunch of various sort of sexual risks and benefits of each. But ultimately, it’s up to you to decide. And that’s horrible, because all I wanted in that moment was for somebody to tell me what to do. So to force me to make decisions like that, I think was cruel and horrible. And equally, I think the worst thing was that even once we decided, it’s not like it could happen immediately, we had to just go home. 

Miranda Markham  28:05  

At this stage, maybe 10 o’clock in the morning. We just had to go home to a house that had a baby’s room completely set up and ready for a baby that was never going to use it. And just sit with that fact for an entire day and night, that was the worst. I think people often say to me how awful they think certain things would have been like the funeral or packing up his room, or all these different things. But I think for me, that was the worst, having to turn around and leave the hospital and go home, and just be there with that. With that feeling completely helpless and out of control, and not able to do anything to help myself or the baby that had died. It was the worst 30 hours of my entire life.

Winter  29:01  

Did you guys decide to be induced or to have the C-section then?

Miranda Markham  29:07  

I think that if they had told me that I could have had the C-section immediately, I would have done it. Because I couldn’t imagine the idea of what I’ve just described as having to go home and just sit with that fact that they said regardless of what option I chose, it would have to be the following day. They had explained that the induction would be safer for me. An easier recovery and the safest option should we want to try and have children in the future. That seems like a good enough reason to me. So that was what we decided despite the fact that the thought of it was utterly inconceivable. But based on those facts alone, that’s what we decided.

Winter  29:53  

When Graham finally came, got there and everything, was he also in shock? I just imagine him getting the news on the other side of the phone. Do you know how he reacted?

Miranda Markham  30:09  

It’s really hard for me to remember because I was so in my own head, but I remember him running in. He had my hospital bag, I remember the one that I had packed for going to the hospital if I was in labor. I don’t know if he brought that out of his own accord, or if they told him to. He just ran in and hugged me. I don’t know if he cried, I can’t remember. He’s a very sort of practical and rational person. I think that in that moment, in those, especially that momentum, the many moments to follow, he really sort of assumed the role of sort of managing all practical things. Being the clear headed one that is going to deal with the sort of administrative and necessary parts of this. Because I couldn’t, I was incapable. So he asked all the questions and he listened to the answers. He knew where we had to go and when, because I just didn’t have the capacity to listen.

Winter  31:13  

So you guys stayed at your home for the day and for the night, and then went back to the hospital the next morning?

Miranda Markham  31:23  

Yes.

Winter  31:24  

It was obviously going to only be you and Graham that were able to come in. 

Miranda Markham  31:30  

Yeah, I think that was the only time certainly in the early days where I saw Graham panic. When we woke up the next morning we’re just sort of forcing ourselves to eat breakfast together. I think he just, I don’t know. I just remember him panicking, and he called our friend and told him what had happened. I don’t actually know what he asked him for. Now, I’m saying this, but I think he just needed it. I don’t know, he just needed to tell someone and to let them know that if he fell apart and needed help that somebody could help us. 

Miranda Markham  32:07  

But somehow we managed to choke down breakfast and call ourselves an Uber. I remember the Uber driver asked if I was in labor, absolutely the worst journey to the hospital ever. The worst part is that Uber driver actually lives in our area. So I see that van multiple times a week parking near our flat, even today. Every time I just shudder to think that was the vehicle that drove us to the hospital that day. 

Miranda Markham  32:39  

Anyway, yeah, so we got there sometime in the morning. I remember they brought us to, I guess, like a delivery suite or delivery room. Then we waited forever. We needed some additional, some kind of tablet to start the labor. We waited for it for four hours. I remember thinking like, how can this not be the hospital’s number one priority? Like, we’re just supposed to sit in this room and just do nothing, for four hours? They kept apologizing and they kept coming back being like we’re looking for the pharmacist, we’ll get it soon. I just thought like why would you have me come in at 9am or 8am. 

Miranda Markham  33:25  

Anyway, so eventually, we got the tablet that was required. Very thankfully, things progressed really quickly from there. It sounds weird to say, but I was so thankful to just start the process. Because I felt so helpless before, at least now there was something I could actively be doing. It meant that we were moving forward from this extremely painful state of limbo. 

Miranda Markham  33:29  

Once things started, they were quick, the entire labor was only three and a half hours. There were no complications at all. There was, I mean, I don’t even remember it being particularly painful. Other than emotionally painful. I didn’t have an epidural. I remember they sort of thrust this pamphlet of pain relief options at me and sort of had me decide which one I wanted to go with. All I can remember reading on the pamphlet was all these sort of vanishingly small risks associated with the different options for pain relief. I remember thinking to myself, well, I can’t have an epidural because I’ll probably be paralyzed. Like anything that was on there. I was just convinced that the risk would happen. So I just said, I don’t want any of it. 

Miranda Markham  34:09  

I ended up I don’t even remember what it’s called, but taking some kind of pain relief. It’s administered through the cannula like the intravenously I guess. With gas and air, I don’t think it was tremendously effective because it was one of these like self administered ones that you have to use. I had to press a button preemptively to every contraction and it’s like you’re not even, I don’t know who can do this effectively. So I would say it virtually didn’t work. Whether it worked or not, who knows. 

Miranda Markham  35:12  

Anyway, thankfully, everything was fast. George was born. I mean, that’s another horrible moment is the silence that followed that. I mean, they just whisked him away so fast. I remember I didn’t even see him. I was facing away sort of on my knees on the bed. George came out, and they just– by the time I’d turned around, he was gone. It was like he didn’t exist. Now, in hindsight, Graham tells me that they asked if I wanted to see him. He says that I’d said, No. I have zero recollection of that conversation ever happening. I trusted that it did happen. I probably just don’t remember due to some cocktail of emotions and drugs. 

Miranda Markham  35:58  

So I suppose they were doing what they thought I wanted. But it’s very weird to give birth to a baby and turn around and there’s just nothing. Nothing there. So yeah, and that was kind of it. It was kind of anticlimactic after that. I didn’t have any significant tearing. I think they put too little stitches. Then I took a shower and went to another room to recover.

Winter  36:23  

So you really did not see George at all?

Miranda Markham  36:26  

No.

Winter  36:26  

Not that day?

Miranda Markham  36:27  

Not that day.

Winter  36:28  

Okay.

Miranda Markham  36:32  

After that they eventually introduced me. I think the same day to a woman named Sarah, who was our bereavement midwife. She was amazing. She continued to encourage me to see George even though I was convinced I never wanted to. Eventually, not on the day he was born, he was born on June 2, on the third. 

Miranda Markham  36:59  

We were still in the hospital, they basically said, we can stay as long as I wanted, even though there was no real medical reason for me to be there. I didn’t know where to go. We didn’t know where to, we felt like we couldn’t go back to the flat. So we just sort of stayed until we could formulate a plan.

Miranda Markham  37:17  

Anyway, Sarah continued to give us the option to see George and encouraged us to do it. Graham eventually went to see him first. That was extremely hard for him, really emotional. I think he felt like at that time that he was doing that for both of us. And that I would never see him and that he felt like he needed to go and say something to our son on behalf of both of us. Eventually, Sarah suggested that I might like to look at some photos that they had taken of George first and see how that felt. 

Miranda Markham  37:50  

Again, at first I said no, that I couldn’t do it. So then on the morning of the fourth of June, we were still at the hospital. I remember I started feeling a bit jealous that Graham had seen George and I hadn’t, which I thought was an odd emotion even at the time, because I kept asking what did he look like? Did he look like this? Did he have this shape of nose? What color was his hair? What does his hand look like? And he’s just, I don’t know Miranda. It wasn’t on the top of his mind to strip the baby down and look at his, every crevice of his body. 

Miranda Markham  38:22  

I remember feeling jealous that he got that opportunity and I didn’t. So when Sarah came back, I said, I did want to see the photos. So she brought them in for me. I looked at them. I remember immediately I thought my reaction might be that I’d be scared or horrified. That he would look like a baby that he’d look like some horrible version of a baby. I was completely just like, took my breath away, just to see him that he just looked like the perfect sleeping Angel. I wasn’t scared of him at all. I was actually the emotion that I remember having overwhelmingly was that I felt proud. I felt proud of him. So right away I said I wanted to see him. That I needed to see him. 

Miranda Markham  39:25  

Two days later, after he was born, I finally saw him. They brought him into my room. Graham left because he couldn’t he couldn’t see him again. They brought him in this little thing they called a cold cot. A horrible little refrigerator instead of a nice warm bed. He still looked perfect. Like he literally looks like he could just start moving at any point.

Miranda Markham  39:54  

I remember asking what he was wearing because it didn’t occur to us to bring clothes to the hospital for a baby who had died. But he was wearing a little baby outfit and a hat. She said that there’s a woman who knits things for babies that have died. So he was wearing one of those hats and this little outfit that was too big for him. So I just spent some time with him. I held his little hand and I talked to him.

Miranda Markham  40:36  

I don’t know, even now I look back and think that it just wasn’t enough. I’m so grateful that I saw him at all because there was a long period of time where I wasn’t going to. I know deeply now that would have been such a huge source of regret for him. One of my biggest regrets now is that I didn’t hold him. I couldn’t at the time, I just like it just seemed inconceivable to me. But I just keep reminding myself that I did. I did the best I could at the time. 

Winter  41:08  

Yeah. So you left three days later, after he was born? Is that right?

Miranda Markham  41:17  

Yeah. So I think we left on the morning of the fifth of June. Again, we didn’t feel like we could go back to the flat. But while we were in the hospital, they were really kind to us. They fed us really well. And they were really attentive. I had really low blood pressure, actually. I actually fainted and fell in the hospital, which was not right. If you were to have this conversation with Graham, he would recount that story as being one of the worst and serious moments for him. For me, I barely remember it. I do, however, remember the massive bruise I had on my head for the six following weeks. In fact, I would even maintain that that fall in the hospital hurt more than the birth is an absurd thing to say. 

Miranda Markham  42:11  

Anyway, we stayed there and they were very kind to us. While we were there, we basically formulated a plan that initially we would go to a hotel. This doesn’t sound like a tremendously large undertaking, except that you have to remember that this was in the peak of Coronavirus, lockdown, and only key workers were allowed to stay in hotels, otherwise, they were completely shut down. So a very kind friend of ours called a local hotel and explained our situation, basically begging them to give us a room. Very thankfully, they agreed. 

Miranda Markham  42:49  

I think that was a good thing for us to do, at least initially, because it afforded us a bit more time to just be in a neutral space. Away from all the reminders and everything in our flat and work out what we were going to do next. Just the way to shut away from the world for a little bit. So we stayed in that hotel for I think three days. I barely left the room. It’s funny now, it’s hard to remember what we did all day. I mean, we never turn the TV on. We barely left. I don’t know how we filled the days. But somehow we did. 

Miranda Markham  43:31  

We got through it and eventually made the plan to go to Edinburgh. My parents own a flat there. It’s normally a rental property, especially in the summertime, but again, because of COVID it was vacant. Nobody had been there for many, many months. Actually my parents were thrilled to be able to offer it to us and be just that somebody would finally be going there and checking on their place. 

Miranda Markham  43:57  

It did mean that we had to go back to the slot. We had to pack up some stuff. So we did so in the most sort of formulaic and sort of mission critical kind of way. I made a list. It was very rigid. I went in with the sole purpose of putting stuff in a bag and then to leave immediately. That’s what we did. Then we stayed in Edinburgh for two months. 

Winter  44:19  

Wow, that’s– Yeah. Did you and– I’m assuming you guys just took some time off. You were on maternity leave. 

Miranda Markham  44:28  

Yeah.

Winter  44:29  

Graham was able to take some time off I’m assuming too?

Miranda Markham  44:31  

Yeah, so I was already on maternity leave. So obviously there was no work obligation to do anything. By that point, we had communicated with sort of the main people what had happened. My team was included in that. Graham took a month off work. I don’t think it was really ever like an agreement. I think it was his boss at the time who basically just said, do whatever you need to do. 

Miranda Markham  44:59  

His full time job essentially became taking care of me. I was– I could– I didn’t– I couldn’t have taken care of myself. I would not have gotten out of bed, there is a 0% chance I would have done anything. I wouldn’t have eaten. It took me months to get my appetite back and enjoy food again. Eating was such a challenge. I made a goal for myself in the early days to eat breakfast before noon. That was my only day objective was to get out of bed. I didn’t even have to put clothes on or shower, just go and put food in my mouth. Even that would take me hours, hours and hours. Those were really hard days. 

Winter  45:41  

Yeah. When you guys were in the hospital, did they approach you about what you guys wanted to do with George’s body?

Miranda Markham  45:50  

Yes, they did. They very kindly talked us through the different options. I remember we continued to ask well, what do people normally do? Because there’s no rulebook for this. I think when you’re so blindsided as we were, you have no guideline. 

Miranda Markham  46:15  

I think for lots of families, religion often becomes something to lean on when the unexpected happens. There are very specific customs and traditions around what happens when someone dies. I think for us we’re not tremendously religious, or spiritual people, or we weren’t prior to George’s death. We had nobody in our lives, other than you know grandparents had died. That wasn’t really our responsibility to arrange any funerals or anything right? We had no idea what to do. Our families couldn’t really help us because they’re so far away, and with no option to get to us. 

Miranda Markham  46:59  

So we were told many, many times, we didn’t have to decide right away at any point. Again George, because stay at the hospital, and he would be well taken care of, and that we could decide when we decided. 

Winter  47:16  

Oh, okay. 

Miranda Markham  47:17  

I remember waking up in an absolute panic on so many occasions, just needing to know where George was. Where is he ? Who is taking care of him? Is someone looking after him? Calling the hospital and asking our bereavement midwife, if she could just tell me where he was at. Every time she would very kindly go and check and tell me that he was in the, whatever they call it mortuary or morgue, and that a really nice man named Simon was looking after him. It did provide me with a bit of comfort, whether or not Simon was actually looking after him or not, I don’t know. I just thought his little body is just locked away in some cold, dark place, and we’ve just left him there. It defies every instinct in your body to do. 

Miranda Markham  48:14  

Your body still reacts as if you’ve had a baby, it still thinks you have one. Mine thought I’d abandoned ours. It was really, really difficult. So for that reason, the easiest thing to do was not make a decision about what to do, because that felt very final. We didn’t want to do anything impulsive, because we didn’t want to regret it. So we took our time, and ultimately decided that we would have him cremated for the probably most practical reason. Which is we’re not sure that we will stay in London forever. If we bury our son there, and we leave the country, it’s like abandoning him all over again. I couldn’t do that. 

Miranda Markham  49:02  

So we decided to have cremated. Once we decided that we were given a date, that we could do the funeral. I didn’t actually know this, but you legally must hold a funeral. For anyone that dies, including–

Winter  49:18  

Oh!

Miranda Markham  49:19  

–a baby. It was some sort of legal requirement. I mean, I think we would have liked to anyway, but I’m probably paraphrasing that too, simply. I remember it being that we had to conduct some kind of funeral for George, which was fine. 

Miranda Markham  49:34  

So I think the sad thing was that nobody could attend. It’s not like we would have had a big congregation of friends and acquaintances, but I think it would have been nice for our families to be there. Unfortunately, given the fact that they’d be flying from all over Canada and the US. None of them can come because this was now July of 2020. 

Miranda Markham  50:01  

So we were given the option to do a live streaming thing of the funeral, which we both just felt was really sort of weird and trivialized the whole thing. So instead, what we did was, we arranged the funeral we picked songs and readings that were meaningful. We both wrote quite lengthy comments to say to George. The only other attendee at the funeral was Sarah, our bereavement midwife.

Winter  50:32  

Oh really?

Miranda Markham  50:33  

She is the only other person on planet Earth who met George. So we felt like that was appropriate. She offered to come, which I don’t know is her usual offer. I like to think that we were special, but maybe she makes that offer to everyone. I don’t know. But it was nice to have her there. So we did our little funeral, we had a 30 minute slot. That was that.

Winter  51:03  

Just at the hospital then?

Miranda Markham  51:05  

So it’s arranged through the hospital with the City of London cemetery and crematorium. So we didn’t have to pay for it. Which I’m sorry I don’t know it sounds awful to be talking about the practicalities of such a thing. But I know lots of people are concerned about how do you pay for a funeral? It was just part of what was offered, which, I mean, maybe I need to go and reflect on that and be more grateful for it. I think if financially that became a concern, that would have been another layer of challenge on an already very challenging situation. It was all sort of coordinated and paid for through I’m not really sure through who. Through the NHS, the National Health Service, and in collaboration with the City of London.

Miranda Markham  51:52  

The cemetery that we went to was beautiful. It was a beautiful, sunny, gorgeous summer day. This I mean, if it sounds awful to say, but the funeral was really nice. It was I think the absolute best thing we could have done for a send off for George. 

Miranda Markham  52:12  

My aunt had sent me and members of the family this storybook called wherever you are my love will find you. It’s a children’s book, but I think that it seemed very appropriate. As the final thing on the agenda for the funeral, I read the story to George. Because I always thought about reading stories to him as a child or boy. So it was just a nice way to end it. 

Miranda Markham  52:41  

Then afterwards, because it’s I mean, obviously it’s a city run thing. So there’s funerals right before one and after another. It just was sort of a conveyor belt of funerals. Which just sounds awful again, but it wasn’t. There were loads of people outside after who were all gathering for other people who have died, mostly much older people.

Miranda Markham  53:03  

When people are cremated, they put these little stands with their name on it in this area where you can come and lay flowers, but nobody told us that. So we didn’t have any flowers. So George’s little stand was just there. It said baby George Robert and nothing. Somebody had put this dried old flower on it from I think somebody else’s area. I just felt so guilty that we hadn’t brought flowers. Then this really lovely family that was next to us, who were sending off their grandmother Jean came and gave us this huge bouquet of white flowers. They told us that we could leave them for George.

Miranda Markham  53:56  

I just thought it was so nice, because I just couldn’t leave without his little area being there. So they also told us about Jean and said they were releasing balloons for her and they would release one for George too. So they tied it together with one and said it was for both of them. There was such a nice gesture from complete strangers. So that really stayed with us and felt like a really important way to end that day. 

Miranda Markham  54:29  

I think we both felt sort of a sense of closure after that. Because I mean George was born on June the 2nd and his funeral was the 31st of July. So I mean, this is a long time after. It took us a long time to just figure out what we wanted to do and then get it sorted. I did feel guilty about that. But I’m happy that we took time to do it right because I don’t think we have any regrets about his send off. I think it was the best we could do. 

Winter  55:03  

Yeah. Did they find anything conclusive about what had happened? Did you guys do an autopsy? Was that something? I’m not? Like I said, I’m not totally sure about the UK health system. So was that something that was offered? Or is it pretty typical? Tell me a little bit about that?

Miranda Markham  55:22  

Yeah. So along with everything I think they were very persistent in a kind way about all of our different options. Including having a postmortem or sort of autopsy for George. We didn’t need a lot of convincing. I think both Graham and I were very convinced from the very beginning that if there was a way to get answers and information we wanted it. I don’t know if I ever said this out loud. But I was fairly sure in my head before we even left the hospital that we would try for another baby. I needed to know that if there was anything wrong, that caused George to die, we needed to know about it. 

Miranda Markham  56:07  

So many, many weeks later, this is now sometime in mid August, they finally got the results of the postmortem. It was actually the same day that we were allowed to go pick up George’s ashes at the crematorium, which seems like an odd thing to do on the same day. But I remember we drove back to the crematorium, picked up George, and then drove to the hospital to do his post mortem review. I remember Graham and I parking the car. And I said to him, what should we do with George? And he looked at me, he’s like, we can’t leave him in the car. That’s just bad parenting. I was like how can you make jokes? How? So that’s how George ended up in my handbag, at his own postmortem. Honestly, it’s so terrible. But it’s also amusing, in a way. 

Miranda Markham  57:07  

So I carried him in my case, it was in a little box. And he sat in my handbag, so we brought him back to the hospital where he was born. He sat in the room with us with the obstetrician and Sarah, the bereavement midwife. We went through his whole post mortem and in great detail, they were very generous with their time. Ultimately, they told us that his cause of death was growth restriction as a result of my placenta, which was very small. So under fifth percentile. 

Winter  57:40  

Oh!

Miranda Markham  57:40  

So basically, it just failed to support him. I think that it’s odd to say that we feel grateful for that result. But I think it’s because we now know that loss families never get an answer, and it’s inconclusive. So for us to now know that this is the thing that happened, there is no reason to assume that it would ever happen again. But if it did, there are things that we can do to prevent it. 

Miranda Markham  58:12  

So what they would do for a subsequent pregnancy is more regular growth scans starting from 20 weeks. What baffles me is that we can literally see a baby growing inside of someone, but we can’t measure the size of the placenta. Apparently you can’t. I don’t know why. But what they can do is make sure that the baby is growing properly, and the right sort of rate of growth. Also I can be induced early. So basically what we know is that if history were to repeat itself, we know that the placenta was good enough until 39 weeks. So basically, I would get to full term, so 37 weeks, and they would induce me early. 

Miranda Markham  58:54  

I think for us that was a real comfort, because it sounds like this is not likely to happen again. But even if it did, history will repeat itself. So we and then of course alongside that, I mean, we absolutely grilled them on everything we wanted to know in terms of what if this had happened, would this have made a difference? I was particularly adamant about the missed appointments and had the 36 weeks appointment had happened would this have indicated that there was a problem. The response that I continue to get was that it may or may not have made a difference. It’s impossible to know, that’s a really hard thing to live with. Because I think in my mind, it definitely would have made a difference. 

Miranda Markham  59:42  

Even having spoken to third party Obstetricians in the aftermath of George’s death, a lot of them have said that based on what they see and all of my information, everything was done exactly as it should have been. Regardless of what hospital I was at in London. It likely would have been the same outcome. That’s also hard to hear. But it’s also a bit of a reassurance. I think there was a time where I held a lot of anger towards the NHS and to the hospital for letting me down and that they had failed. I think just to set the record straight, there was no negligence. I’m not claiming that they did anything negligent or wrong. I think they had to make changes given an unprecedented situation. It’s impossible to know if those changes contributed to George’s death. Personally, I believe that they did, but we will never know.

Winter  1:00:36  

How big was George when he was born?

Miranda Markham  1:00:39  

He was small, he was 5.9 pounds, so just under six pounds. It is interesting because I had a private scan at 36 weeks. 

Winter  1:00:50  

Oh, okay. 

Miranda Markham  1:00:50  

No, sorry, maybe slightly earlier, 34 weeks, because I was worried. With everything happening. I just thought it’d be good to go get a bit of reassurance and make sure he’s growing okay. At that stage everything was fine. He looked really good. They projected his birth weight would be seven and a half pounds. 

Winter  1:01:07  

Oh.

Miranda Markham  1:01:09  

So, you can clearly see that’s quite a shortfall. Obviously, at some point between 34 weeks and 39 weeks, his growth just plateaued, basically. Because it wasn’t being checked regularly, no one would have noticed. And because at 38 weeks, as far as they were concerned, he still fit within the range of what was normal. I’ll be it perhaps a bit small. It was nothing. It would have not raised any alarm bells for anyone. So, that’s frustrating. Because I think in my mind, had they been measuring me more regularly, they would have seen that graph had suddenly leveled off instead of increasing upwards. But as it was, I was only measured twice the entire pregnancy. 

Winter  1:01:54  

Right. Yeah, that would be frustrating. Miranda, thank you so much for sharing George’s birth story. I had one last question that I want to ask you. How did you guys choose the name George?

Miranda Markham  1:02:06  

Right. I came up with it I think when we were on our trip in Mauritius. I’d love to have the story that it was this family name and it has all this meaning. But ultimately, we wanted a boy’s name that was easy to pronounce, easy to spell. Could also translate reasonably well to other languages. My sister in law, husband is Spanish, my husband loves speaking French. So George is a name that kind of can work in all those languages. We also like that George is the patron saint of England; he’d be born in England, which is nice. It just sort of felt right. 

Miranda Markham  1:02:49  

His middle name Robert does have family significance. Robert is the name of my husband’s grandfather, who was a much beloved patriarch of the family. He lived to be 97 years old, and was an excellent member of the family. ‘m so grateful that I got to spend some time with him before he passed and got to get to know him. So we wanted to honor him and his legacy with the firstborn grandson of the family.

Winter  1:03:23  

That is wonderful. Thank you so much. That was very good to get to know George A little bit better.

Miranda Markham  1:03:30  

I’m very happy to talk about him. So thank you for asking me all those questions and giving me an opportunity to talk about George.

Winter  1:03:38  

Of course.

Transcribed by https://otter.ai

Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: stillbirth

After Stillbirth: Angelica, Grieving Mom Shares How She’s Dealt With The Loss of Her Son

February 9, 2022 by Winter

Mom Angelica sits down with Winter in this interview to talk about the trauma of finding out her son would be stillborn and giving birth to him via Caesarean section, how she transitioned back to work as a NICU nurse, and what’s she’s done to cope after Ezra’s death. She also shares things that you should and shouldn’t say to a loss mom or dad.

Watch here (YouTube):

Listen here (podcast):


Time Stamps:

00:00 Welcome
02:09 After Ezra’s birth (stillborn) and what helped
07:57 Work
15:02 Physical reminders of Ezra
24:54 How has Nick (husband) handled everything
36:27 What not to say and what to say

You might appreciate these other episodes:

  • Watch/listen to Angelica’s birth episode of son Ezra: Click here
  • Watch/listen to Tiffany‘s birth episode of daughter Khyana’s: Click here

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  • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
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Ezra, born still

Full Transcription:

Winter 0:00
Welcome, everybody to Still A Part of Us.

Winter 0:02
I am Winter. I’m one of the hosts of this show. We’re going to be talking with Angelica a little bit about her experience with the stillbirth of her son Ezra. A couple of things before we get started, just housekeeping things, this conversation is full of triggers. So if you are not in a good place, please do not listen, do not watch, we want to be as helpful as possible. And if you’re not in a good place, please just be aware that we will be talking about a lot of different things that could be hard to listen to. So please just be aware of that. If you are part of our community, if you are a lost mom, lost dad, hit the subscribe button. We are here to help build community. So please join us and help each other out.

Winter 0:43
Once again, Angelica, thank you so much for coming on and chatting with us about Ezra. If you did not get a chance to hear her birth story, you will cry. Because I did. Please check that birth story out. Angelica, thank you once again for coming on today. And discussing some things that have helped you and have not helped you. So welcome. Once again.

Angelica 1:06
Thank you so much and thank you for again wanting to hear my sons story.

Winter 1:10
Oh, yeah.

Angelica 1:11
It is so wonderful to be able to tell it.

Winter 1:12
Yeah. Yeah, it is. It is. Tell us again, just so that everybody is kind of brought up to speed. How long ago was Ezra born?

Angelica 1:21
He was born on June 1st of 2020.

Winter 1:25
So at the time of this recording, it’s been just about 10 months or so. So still very new still very raw. I’m going to just be like– that first birthday coming up is that can be that’s going to be a milestone that can be a little tricky. We’ll talk a little bit about that as well.

Winter 1:45
Also, just a little bit of context, Ezra was stillborn at 33 weeks, so that everybody knows where we’re coming from. So, Angelica, tell me how it’s been these last 10 months for you. How’s your grief been? How have you approached it, I guess? And how have you dealt with it?

Angelica 2:09
To start with it was really, really rough and dark. It just was. Everything just got so dark. This first couple of weeks, I think I was actually so despondent that my husband was concerned that I would do something drastic. That’s what he told me. I’ve done talk therapy before, but he looked at me, he said, “If you’re willing to do it, just for a week, you know, I really think you should.” So I did start to go to counseling in the first two to three weeks, following Ezra’s death. That did help quite a bit. I went about twice a week for several months, and then eventually went down to once and for several months. Now it’s kind of been titrated to about once a month for the past two months or so.

Winter 3:10
It sounds like it has been somewhat helpful.

Angelica 3:14
Yes, yeah. I found that it was really helpful for me to talk about him. To talk about what happened. I just didn’t realize how much it would be helpful to talk about him. Because there are so many other instances where I’ve met parents who just don’t want to talk about what happens at all. If you want to sweep it under the rug for the moment, and just kind of move forward. I thought to myself, am I doing this wrong? Because I feel like I want to talk about him more? Or am I productivities support groups, that kind of thing.

Angelica 3:58
I didn’t actually start going to support groups until about two months after and it started with local support groups.

Winter 4:04
Yeah.

Angelica 4:06
That I found another organization. It’s called the Star Legacy Foundation.

Winter 4:10
Oh, yes.

Angelica 4:12
Which I imagine somebody has to have mentioned.

Winter 4:14
Yeah.

Angelica 4:15
Once before here, but they had a physician who was doing a seminar on umbilical cords. Because we don’t really know what happened to Ezra I thought, well, maybe he’s got information that will give me an a-ha moment.

Winter 4:33
I see.

Angelica 4:33
So I can talk to my doctor about it and see if that could have been part of what happened. Then from there, found the support groups on there.

Winter 4:43
Great. It makes a huge difference when you are sitting with somebody that has had a very similar experience to you. Not having to kind of explain all those feelings that you have and if they’ve never experienced before, because you mentioned that before in your birth episode. Your background is as a NICU nurse, a neonatal intensive care unit nurse. So you’ve always had that idea that there’s a possibility, right? You’ve seen people have lost before. But you said something that struck a chord with me where you said, “I had no idea, even though I understood it, until you actually have felt the loss yourself.” It’s totally different. Right?

Angelica 5:25
It really is. Because in a report, when we’re talking about our patients, we talk about their moms, we talk about the birth history, and that includes mom’s birth history as well. So if parents have had a previous loss, then we generally know about those. Anytime that you hear about somebody who has had previous losses, it just– before losing Ezra, would just make my heart sink. But now it makes me weak at the knees, just thinking about what that person is going through. So yeah. What other people will have the ability to imagine doesn’t even touch with the actual experience, regardless of how much they worked on it, how much they tried to understand it. I’m grateful for that. I am so grateful. But there are people out there who try– who work with those who have lost, but who have never experienced that loss themselves.

Winter 6:31
Yeah.

Angelica 6:32
I think that’s– I’m grateful that they haven’t been through that themselves.

Angelica 6:37
Yeah, but are willing. Oh, yeah, I was gonna say shout out to my therapist, same thing with her. She’s never experienced that kind of loss, but she has helped us so much. So yes, I completely agree with you. Then there are some people that are still doing wonderful things, despite not having had that loss. Thankfully not having that loss. So you have gone to see a therapist. Also some of these grief groups that are– you can also you can find them kind of online, you can meet electronically, I guess, which is so so nice. Especially at this time when meetings, like in person meetings, are not happening. I believe my hospital– I don’t think has any of those in person meetings. It’s all zoom right now. Anyway, so. So yeah.

Angelica 7:26
That’s us too. I think that the pandemic has made this technology more accessible.

Winter 7:34
Yeah.

Angelica 7:34
And, and so I think, as awful as things have been over the last year for so many different reasons. You know, I think that aspect of things has been helpful.

Winter 7:48
Yes.

Angelica 7:49
It’s been really helpful to have the access to those people. electronically, virtually.

Winter 7:55
Yeah, virtually. Yes, it is. Yeah, it is a blessing. That’s a little silver lining of the pandemic, right. And when you obviously you had Ezra, and he was, this was a big surprise. Obviously, not expected you were 33 weeks. Were you allowed to take some time off to after his birth?

Angelica 8:18
Yes, yes. I originally asked them just to allow me to take whatever I was allowed for maternity leave. Originally, I was approved for nine weeks off. As I was getting to like the seven, eight week mark, I started to panic about thinking about going back to work.

Winter 8:38
Yeah.

Angelica 8:38
Because I just didn’t know if like, I didn’t even know if I could physically enter the hospital, let alone walk those same halls.

Angelica 8:47
Yes.

Angelica 8:48
You know, go back into the unit where I was just hours before I was admitted. And found out that he was gone. So I just didn’t know. So I petitioned for three more, which I had. It was within the policy to allow me to have that extra time.

Winter 9:11
Right.

Angelica 9:11
But they were very gracious. So I was able to take 12 weeks off. And I needed every last day.

Winter 9:18
Yeah. Great. That’s great. And transitioning back to work. So you did you go back to the NICU?

Angelica 9:26
Yeah I did.

Winter 9:28
How did that happen?

Angelica 9:29
It has been a whirlwind. I started off the first week or so. The first week or so I was with a fellow employee, one of my peers. Almost like I was being oriented back onto the floor. Because I knew that if something happened, I needed somebody who’s going to be able to watch my assignment. Right then and there. I wasn’t going to be able to wait for somebody who could come and take over for me in 20 minutes when they were done with their assignment elsewhere. I just needed someone who could take over the reins. I knew that the kids were safe, because my biggest concern was that I wasn’t going to be a safe nurse that I was going to be distracted. It started out in small increments. So I think I started out with four hour increments, went to eight and then eventually worked my way back up to full 12.

Winter 10:39
Right, right. I think that’s and was that something that kind of worked out with your nurse manager too? To create something that kind of schedule so that you could feel like you were easing back into things?

Angelica 10:54
Yeah, I did talk with my nurse manager. They kind of worked out what types of assignments I should be taking as well as to make sure that they weren’t giving me little boys named Ezra, or 33 weekers. You know, just to kind of be sensitive about the details surrounding Ezra’s birth. And helping me to come back just because– don’t ask me why they want me back. Because I feel pretty worthless as a NICU nurse somedays. But they’ve been very kind too. They’ve been trying to help me to adjust back.

Winter 11:44
Yeah, praises to you– seriously, they have just to pay attention to like you said the details. The fact that they’re like if this patient is a like a 33 weeker– that this baby is a 33 weeker. That’s those little things that can be triggering. The fact that they are paying attention is cool, like that is very sensitive and cool of them to do that. Or to be aware of that.

Angelica 12:08
Yeah they are amazing.

Winter 12:09
Yeah.

Angelica 12:10
My co-workers have been amazing. And actually, so because he was born early, because we delivered early, I didn’t have those extra weeks PTO. So I think I was able to cover seven weeks of PTO on my own. All the rest of it was PTO donation.

Winter 12:32
Oh.

Angelica 12:32
From my co-workers.

Winter 12:34
That is awesome. That is so kind.

Angelica 12:38
They fed and clothed my family and kept the lights on for five weeks. It’s hard to know how to say thank you to them.

Winter 12:50
Yeah. Yeah. That’s really great. I think that’s– good job coworkers!

Angelica 12:59
They are just amazing.

Angelica 13:01
Yeah, yeah. Now your backup to like, full time shifts. And how is it? How’s that been? Are you doing? Are you? How’s that? Are you? Are you doing? Okay? Like, I just I can’t imagine honestly, working on the NICU so. I just like oh, oh, yeah.

Angelica 13:16
I’m actually not working full time I’m point six.

Winter 13:19
Oh, okay.

Angelica 13:20
I’m working two days a week.

Winter 13:21
Okay.

Angelica 13:22
That was always the plan.

Winter 13:23
Oh.

Angelica 13:24
That was always the plan for us, for me to go to point six after Ezra was born because our intent was for me to be able to spend more time with the kids. Then to kind of minimize the amount of childcare.

Winter 13:35
Yes, Yes, for sure.

Angelica 13:36
But after Ezra passed I just thought to myself, I don’t know that I can force myself to be on the floor any longer than that. You know what I mean?

Winter 13:43
Yeah.

Angelica 13:44
Just because, as you probably know it, you spend all of your days off, just accruing as much energy as you can so that you can be functional and have your head on straight. I feel like those two days at work every week, they take every ounce of energy that I have collected over, you know, a couple of days at a time.

Winter 14:14
Yeah. That is a great way of putting it. You do need to store it up. To yeah, to be on task, I guess. Yeah.

Angelica 14:25
Yes and for me, I just, I don’t want to be a liability.

Winter 14:34
Right. Yes.

Angelica 14:36
After losing my own child, I couldn’t live with myself knowing that I had contributed to the loss of somebody else’s child. So when I’m at work I try to be–

Winter 14:48
You’re on, Yeah.

Angelica 14:50
Focused as I possibly can be.

Winter 14:52
Yes.

Angelica 14:53
And as attentive to detail as my brain will allow.

Winter 14:57
Yeah.

Angelica 14:57
So far, they haven’t asked me to leave. I think that’s a good sign.

Winter 15:02
Yeah I think that it’s a good sign. Well, yeah. Angelica tell me what you have done in order to kind of remember Ezra. I know you mentioned in your birth story that they gave you a weighted teddy bear. I think some people don’t know about these kind of weighted teddy bears or weighted stuffed animals where it’s the same weight as your child. Oh, you’re going to go grab it yay!

Angelica 15:36
So I have two.

Winter 15:39
Oh look at that!

Angelica 15:40
So this is the teddy bear that they gave us in the hospital.

Winter 15:44
Uh huh. Oh, he’s really cute.

Angelica 15:46
He actually weighs less than Ezra, but it’s strange when you’re cradling them in your arms. They just feel so small.

Winter 15:56
Yeah.

Angelica 15:57
And so weightless. So when I was holding him, I thought to myself that you know that they had to be around the same weight, but they aren’t. At least not with the Molly Bear that we got later on. I think this is a brand that’s called the comfort cub.

Winter 16:17
Cute.

Angelica 16:21
This is the Molly Bear that we made.

Winter 16:25
It’s got his name and everything. That’s so cute.

Angelica 16:29
It sas his metrics on the foot.

Winter 16:30
Oh, that’s great. Is that something that you can have like custom with the Molly Bears?

Angelica 16:36
Yeah.

Winter 16:36
Okay because we don’t have one. That was not on our radar because I did not know that there was something you could do like that. Then I started talking to more people. I was like, oh, maybe I should get a Molly Bear. That would be fun to have something that is his weight kind of represents our son.

Angelica 16:54
You can get one at any point.

Winter 16:56
Yeah.

Angelica 16:57
My mom actually had a pregnancy loss between my brother and me. So that’s, you know 30 plus years.

Winter 17:09
Yeah.

Angelica 17:10
And she got a Molly Bear.

Angelica 17:11
Oh, that’s great. So, how far along was her loss? I’m curious.

Angelica 17:20
She was about 17 weeks along.

Winter 17:22
Yeah.

Angelica 17:23
But it was the 80s, so I mean, in circumstances where maybe a nurse would have offered to let her hold the baby, or see the baby they didn’t give her that opportunity. They didn’t let her labor. They just did a DNC patched her up and sent her out the door.

Winter 17:41
Yeah.

Angelica 17:42
They don’t even really know what happens to the baby.

Winter 17:44
Yeah, isn’t that just I’m so grateful when I hear stories from different times that I’m like, we are a little bit– it seems like we get a little bit more time to be with our child to figure out things. To be able to mourn and grieve. That it just yeah, so grateful that it’s a little different than back in the 70s, or a different time. That’s cool that she was able to get a Molly Berry. I think that’s great. Um, any other things that you guys have to remember Ezra by?

Angelica 18:20
A lot of people have given me jewelry. So I have a ring with his name on it? I don’t know if you can see it.

Winter 18:27
Oh, yeah, it’s a little small but that’s okay!

Angelica 18:29
Bracelets and then I actually had this necklace made.

Winter 18:30
Oh look at that.

Angelica 18:35
It has his picture on one side then–

Winter 18:42
Oh, I love that!

Angelica 18:45
Then his date of birth on the other.

Winter 18:46
Look at his cute little footprint. Those are so cute. Did you just have that made?

Angelica 18:53
You send the photo files to them. Then they just adjust them to size.

Winter 18:59
That is great.

Angelica 19:00
Then they put it on there. Other people have sent us lots of things like that to just really thoughtful things, but then we have the things from the hospital as well. So we have his little footprint.

Winter 19:14
Oh, I totally can’t see that. It’s a little too. Oh, I see it there it is! That’s perfect. That’s perfect. Okay.

Angelica 19:24
Then the hospital gave us– so this is a blanket that they said for Philippa.

Winter 19:29
Oh for her.

Angelica 19:32
Then they also sent her a teddy bear.

Winter 19:34
Oh, that’s so sweet.

Angelica 19:35
Then we have photo books like I made this one for Pippa because the one that Now I Lay Me Down to Sleep got made for us is really big.

Winter 19:47
Oh!

Angelica 19:48
Every time she tried to pull it down, I was worried that she was going to give herself a concussion. So I made her a little one that has so you can write on the inside out.

Winter 20:00
That is so cool.

Angelica 20:03
It’s small for small hands.

Winter 20:05
Yeah, so she can reference that. Oh, that. So um, so the big album is from, so I lay me down to sleep that is cool. I didn’t realize that they made albums.

Angelica 20:17
It’s actually from I can’t remember the name of the company, but they’re contracted through the hospital.

Winter 20:28
Okay.

Angelica 20:29
So the hospital kind of links them together.

Winter 20:32
Yeah.

Angelica 20:32
Now I lay me down to Sleep. Then they just make a photo book for you.

Winter 20:36
That is really cool.

Angelica 20:38
Using the files that they took when they got the photographs.

Winter 20:42
Yeah.

Angelica 20:42
In the hospital and having it.

Winter 20:46
Yeah. Yeah. Oh, yeah, that looks awesome. And what a beautiful, like, kind of just a remembrance, being able to flip through those photos regularly and easily. So I think that’s awesome.

Angelica 21:01
Then they made– When I thought about what I was going to do for a baby book, because I was thinking about that after the fact, I just broke down. I was looking online, and there is a memorial baby book that they make called I love you still.

Winter 21:17
Yes, I have seen that. But I have not gotten it. So you can just put–

Angelica 21:23
That’s Pippa’s contribution. But it has information about you and you can put pictures in what your family looks like before that. So then it goes month by month. So for seven months, and eventually, you get to the point where you were when you lost. So there are just blank pages. But it’s a way to kind of include that information. I feel like it’s almost like a self help book too. Because at the back it’s got prompts like, how have you changed? What things have helped you? I am grateful for.

Winter 22:10
I think that’s so–

Angelica 22:11
You can use it like a journal.

Winter 22:14
I am, I will share a link to that because I have like I said, I that just barely showed up on my radar. And I was like, Oh, I might need to check that out. That is really cool. There’s kind of this option to create a baby book in a sense. Yeah, cuz you would record you would record all those things.

Angelica 22:34
I remember writing them down after we came home from the hospital. It was pretty quick after that, I started to write things down just because I could feel the fog starting to set in. It’s still there. You know, I still feel so foggy. But having some of those things in writing.

Winter 22:54
Yeah.

Angelica 22:56
Is helpful. It can help me to jog my memory a little bit. Every time that I feel like his memories are slipping away, I just feel like I’m losing a part of him. It’s just hard.

Winter 23:09
Yes. Yeah, those memories are– Writing it down writing things down has been key for us, too. So even if it’s just a quick note on my phone. If I remember something I try– we tried to do that, like I do that on my phone, my husband, I know that he usually keeps a little notes file as well. And so yeah, I think writing it down as quickly as possible is always super helpful. Then I have actually really enjoyed going back and looking at some of the things that I wrote. I do notice some changes, right? Like you.

Angelica 23:47
Yeah.

Winter 23:48
Yeah, you kind of notice changes in yourself. Then also, like, Oh, I don’t remember that. But then now it jogs my memory to something else that I had felt at the time. So yeah, so–

Angelica 23:59
I’ve always been horrible about writing, started journal, and then put in a couple that five years later stumble upon it again. But I was amazed by the number of people who gifted us journals.

Winter 24:14
Yeah.

Angelica 24:14
I thought, okay. So I did start writing in a journal.

Winter 24:19
Great!

Angelica 24:19
I figured that, you know, I can’t, I often can’t write in a diary, like dear diary, you know, because for some reason, it just doesn’t. It doesn’t establish a habit for me.

Winter 24:34
Yeah.

Angelica 24:34
So I’ve started writing letters to him.

Winter 24:38
Oh, okay.

Angelica 24:39
Letters to Ezra like I’m talking to him about the day. Things that I was thinking about that day, ways that I was thinking about him. The things that reminded me of him, just like having a conversation with him.

Winter 24:51
Yeah.

Angelica 24:52
That’s been helpful.

Winter 24:54
That’s awesome. A little bit of inclusion in your day. I like that a lot. So, Nick was, you mentioned your husband, Nick, he was very, how has he handled all of this in this? The last 10 months?

Angelica 25:14
He like me, he has just been kind of all over the map because it’s just a roller coaster of emotions. It really is. But to start with, he just seemed so strangely serene. You know, I mentioned that when they first wheeled me into the recovery room, and I saw him there holding Ezra. He was telling me that another baby had been born. And I said, I started to cry. And he said, No, it’s okay, we’re grateful that their baby is okay, and grateful that everything is okay for them. He just kept repeating that word for the subsequent three or four weeks. I’m just so grateful and grateful, I had a chance to meet him and hold.

Angelica 26:02
As time passed, I could tell that he was definitely just trying, he was trying to kind of keep it together for me. To a certain extent, because he has definitely had his moments where he needs to be the strong one, or he just needs somebody else’s support. I kept telling him not to do that at the very beginning, because I knew that he was bound to. I just didn’t want him to feel like he had to bear the weight of everything, and do all the hard stuff, especially when you’re making plans for a funeral. One of the photos that I shared with you is the final draft of Ezra’s headstone. Nick actually designed that. So, you know, just having to do all of these hard things, and to not have help and support yourself. I just wanted him to know that he didn’t have to do that to himself, you know, that he is worthy of having help.

Winter 27:07
Yeah, I am actually a little curious about if Nick, how the process of designing Ezra’s headstone was for him. My husband, and I designed our we, we actually got a little bench for our son. I found it strangely therapeutic to do that, because it was like, I would be, you know, setting up a crib for him, or, you know, doing something, it felt like a thing I could do for him. Like I was gonna create something. So I’m just curious to know if Nick felt some sort of, like, Hey, I’m doing something for my son, like, I’m making him something, you know, like just interesting.

Angelica 27:53
You know, I had never asked him that specifically, but I know that after he would after he passed a couple of hours of work on the design. He would seem like he was pretty emotionally depleted.

Winter 28:09
Really?

Angelica 28:12
You know, but they came out so lovely. It just I can’t help but think of it as a labor of love.

Winter 28:21
Yeah.

Angelica 28:22
On his part.

Winter 28:23
Yeah, for sure. I that’s really cool that he did that. Because that is, I’ll be honest, I was totally checked out that fog had set in when we were planning funeral stuff. I was so grateful for Lee because he really just like I said, he, I felt like he stepped up. He was like, I gotta take care of this. I gotta take care of my family. This is the way I’m going to take care of my family as best as possible. So sounds like Nick was that way as well?

Angelica 28:53
Yeah. It is amazing. Oh, my gosh, it was amazing. Just how the shock affects you. There are so many beautiful things that I’ve heard other parents have done for their kids. I think to myself, that’s an obvious one. Why didn’t I do that too? Like, for example, at Ezra’s funeral there were no flowers. It was June. You know?

Winter 29:19
Yeah.

Angelica 29:21
I didn’t even think about the fact that there should have been flowers. Some people said that they played music. My head just was not there.

Winter 29:29
Yeah.

Angelica 29:31
And I don’t know why.

Winter 29:32
Well, I mean when was the last time you planned a funeral? Angelica, like really? It’s, it just is that you just don’t ever think you’re going to be planning a funeral, you know, at our age, right? So why would you know, to get flowers. The only reason why we had flowers for our son was because my mother in law said, usually, you get some flowers and I’m like, Oh, okay. We’ll order some flowers. Like Somebody had to tell me what to do. And I was grateful for that. Because like you said, I just didn’t have a head on my shoulders at that time I was completely out of it.

Angelica 30:08
It’s not like we didn’t have flowers. We had flowers.

Winter 30:14
Yeah.

Angelica 30:14
I think before all of us, we had one vase that would disappear every single time that we needed it. Now I have a closet full of vases. I almost kind of can’t stand having flowers in a vase in my house, just because of how many flowers that were, it’s almost a triggering thing.

Winter 30:35
Yeah.

Angelica 30:37
But I could have gathered together any one of those and had like, you know, a big bouquet for his funeral. My brain just was not there.

Winter 30:48
Yeah. That, I think, is completely understandable. It’s completely understandable. So I am curious, if you have had, if somebody did something for you, or said anything to you, that was like, you want to remember that. And it was so you, you really appreciated what they said or what they did for you, in the last 10 months.

Angelica 31:13
That varies. So that morning, the morning that Ezra was born, we were sitting in a hospital room, and flowers arrived. I don’t have the butterfly, the butterfly is somewhere else. But it was this arrangement from downstairs. It had a butterfly on it and had a card. It was from the neonatologists and nurse practitioners on my floor. Because they knew what had happened. It’s not like I had told anybody.

Winter 31:46
Yeah.

Angelica 31:46
But they knew what had happened. They cared enough to send me something to say we understand. This sucks. Since then, so many people have done the same that they’ve brought forward and I feel like I am eternally indebted to so many people. The list is just too long for me to really pinpoint any one particular person because

Angelica 32:15
I just felt so much love and support in a time when that kind of thing feels impossible. With a pandemic and with the concerns that you have of potentially making somebody else sick. You know, people who would come up and look at me and say, I’ve got a mask on you’ve got a mask on can I give you a hug? I think one thing I remember is that I hadn’t been hugged by anybody other than my husband and daughter for months, right. I got more hugs in the couple of days following my son’s death than I had from January, February on.

Winter 33:12
Yeah.

Angelica 33:13
I mean, it was just that human touch that I had forgotten was so necessary. They were there when I needed them. There were so many people who showed up, who I haven’t talked to in ages. But they offered to make food and take my daughter to the park and sit with me and cry with me. Like I was saying with my co-workers who sacrificed their own time off, so that I have a couple of extra weeks to pull myself together. To determine whether or not I was going to be able to go back to work. Now I feel like I have no choice. You know, how can I? How can I leave someplace full of some wonderful, amazing human beings?

Winter 34:07
Yeah.

Angelica 34:09
I just feel so grateful. Despite the awful nature of the experience, though. I feel so grateful to have so many people in my life who love me, it just gives you this, this renewed faith in humanity.

Winter 34:29
Yes, that is a perfect way of putting it actually. Because Yeah, we felt, yeah, just the love, like we just felt so cared for and loved. Sounds like you had a similar experience, which is very, it’s wonderful. It’s wonderful.

Angelica 34:47
And just hearing people wanting to talk about him. Even though it’s really awkward sometimes triggering things that people say regardless of how many of those I have countered, I just find that anybody who is willing to talk about him with me, I just appreciate them so much.

Winter 35:12
Yeah.

Angelica 35:13
Because I know that when you’re talking about a stillborn baby it’s kind of a conversation stopper. But anybody who looks at you and says tell me more, or I getcha, you know, you can talk, talk about him any time or call me anytime that you’re having a really rough go of it. Those people who have reached out to help when you have no clue what to do, when the only thing that you can say is, what do I do next? Because I think that was the question just cycling in my brain for, you know, in the hours and weeks following Ezra’s death. I was just thinking to myself, what do I do now? You know, I just need somebody to tell me what I need to do. Because I can’t make those decisions. Or I can’t make this. I can’t determine what needs to be done on my own anymore. My brain just is not there anymore.

Winter 36:24
Yeah, that’s. You say that and I was like, Oh, yeah, that’s exactly how I was. I could not wrap my brain around things that I needed to do. Like, yeah, thank goodness for people that kind of kept our lives together for those months after. Yeah. It’s just so traumatizing. It’s just so traumatizing. Is there? You have mentioned that people have said some awkward things, obviously. Is there anything that maybe is not the best thing to say to a lost mom that maybe has rubbed you a little wrong? I don’t want you to call anybody out. I don’t want you to. Yeah, I don’t want you to call anybody out. But if there’s anything that is because I know that people just want to know what to say, right? They just want to know what to say. And they kind of want to know what not to say I think so that it just makes it like not so awkward, I guess.

Angelica 37:22
To start with, like if at the very beginning, I really struggled with religious platitudes. You know, God has a plan for everything. You know, there’s a reason for everything. Just because I, my husband and I, we’re, we were raised Catholic, but we haven’t been practicing. So there was just a part of me that just couldn’t wrap my head around this idea that there was a, you know, at the moment that there was a reason for his death. I just thought that stung a little bit.

Angelica 38:01
But I think as time has passed that it’s become less triggering. But initially, it was extremely triggering. Then just anybody talking about, you know, somebody else’s pregnancy for somebody else’s baby, really close on. Really close to the loss itself.

Angelica 38:24
I remember there was a friend of mine who came in and she’s very sweet and asked her how she was doing because she’d asked me how I was doing. I was just trying to normalize things. In the days after we got home from the hospital. Oh, things are good. She was talking to me about a mutual friend of ours, she said, yeah you’re not going to see them for a couple of weeks. Because they’re going into quarantine for about two or three weeks before their baby’s born. But the babies do like early June or something like that. Early July, early July or something like that. Ezra was due on July 15. His c-section was scheduled for July 9. I just fell apart.

Angelica 39:10
So I think that just talking about babies and pregnancy in general can be good for green, but I think it’s so hard. It’s just so so hard. And I feel like anybody who is even willing to try should be given grace.

Winter 39:29
Yeah.

Angelica 39:30
Because they’re willing to enter that awkward zone with you. Knowing that, you know that not everything they say is going to feel just right. For every person. It’s so different. But I think the thing that helps the most is just all of those comments that are validating, you know, like giving those people the space to talk about what they’re feeling. Thinking and then saying, Yeah, it does suck. Yes, this is hard. Yes, I hear you. Just confirming that they’re not alone.

Winter 40:13
Yeah.The validating and the confirming of your feelings. I think sometimes we’re so apt to you know, like you mentioned before you kind of push away those feelings or you sweep them under the rug or you just kind of push them away like I’m not sad. I’m not angry, I’m not all of these things, I’m not depressed, I’m not anxious, whatever. We have these feelings and to have somebody say, yeah, this really is hard. And this is horrible. This is devastating. That helps us emotionally when somebody validates what I’m feeling.

Angelica 40:53
Yeah, that’s a great way of putting it. There is this book that one of our friends gave us. Actually, it was a whole family, they pulled together and they got a book, and then they got a little bunny rabbit. For Pippa, it looks like the bunny rabbit.

Angelica 41:11
It’s called the Rabbit listened. It’s the story about this little boy who had built up this tower with blocks. Then this, you know, this flock of black birds came down and knocked it down. He’s just sitting in the midst of this beautiful thing. Various animals are cutting through. You know, the bear says I want to be angry about it, you know, let’s be angry. But even the little boy doesn’t say anything because he doesn’t want to be angry at that point. So it just goes through these animals. At the end, it has a little bunny rabbit who just sits there. And then just comes and sits next to me a little bit quietly until the little boy is ready to say something. Then eventually the little boy doesn’t want to be angry, a little boy does not want to talk about what he remembers, and he doesn’t want to be sad if he tells him what to hide. The little rabbit is just sitting there just listening. So it’s a good reminder to me to do that for the other people in my life. Because I’m not the only one who lost someone.

Angelica 42:17
You know, my parents and Nick’s parents lost a grandchild. Our siblings lost a nephew.

Winter 42:25
Yeah.

Angelica 42:27
You know, our close friends. We always refer to them as aunts and uncles. I mean, they may well have lost a nephew as well. And, they all have really complex feelings around them. So, you know, no one can be together. And even though you’re not experiencing things the same way. You can be together and it helps so much.

Winter 42:50
Yeah. That grace that you give others as well. Is really important.

Angelica 42:57
Yeah.

Winter 42:58
So important because it’s really easy to forget that there are other people that lost someone important to them, too. Yeah. Yeah. Oh, that just reminded me of my in-laws, who they love. They love our son so much. And they have expressed that. So that’s a good, that’s a good reminder. This has been a really wonderful conversation. I really appreciate all that you’ve said and shared with us. Is there any last bit of advice that you would like to share with either somebody that is going through this right now, or maybe somebody that’s supporting a lost mom or lost dad?

Angelica 43:44
Lost parents I would say, just be gentle with yourself. There is no wrong you’d agree. And anything for anybody, anybody whose parent has lost a baby or somebody who’s trying to support them to reach out, just continuing to continue to reach out for those resources. For those people who can help you there are so many wonderful ways that you could help each other through it. You know, when you’re ready, those resources will be there.

Angelica 44:23
You don’t have to go to a support group right away. You don’t have to start searching for other lost parents trying to grant yourself right away. But when the day comes that you feel like you’re ready they’ll be there. Those organizations will be there. There are actually support groups for families for family members. One of them is through the Star Legacy Foundation. They have a monthly meeting for grandparents, aunts, uncles, friends, people who just want to be there. Just keep reaching out because for as lonely as this feels, you’re not alone.

Winter 45:16
Thank you so much Angelica, that’s some very good advice.

Transcribed by https://otter.ai

Filed Under: advice, late term stillbirth, podcast episode, stillbirth Tagged With: advice, stillbirth

C-Section Birth Story of Ezra, Stillborn at 33 Weeks | Rest In Peace, Sweet Baby Boy

February 9, 2022 by Winter

Mom Angelica, a NICU nurse based in Idaho, USA, tells of how she and her husband Nick expecting her 2nd baby Ezra. Her pregnancy was going fine till around 33 weeks, when she noticed that he wasn’t moving around as much during a work break. She went home, worried and tried to calm her fears, but got even more worried when she couldn’t find his heartbeat using her own stethoscope. She and her husband wen to the hospital (during the COVID pandemic), and were told that there was no heartbeat.

Angelica delivered her son Ezra in June 2020 via C-section. Despite all the restrictions due to the pandemic, their parents and some family were able to meet Ezra after he was born. At the time of the recording, the cause of Ezra’s death was unknown.

Watch here (YouTube):

Listen here (podcast):


Time Stamps:

00:00 Ezra
01:22 Angelica’s intro
05:32 How was pregnancy
12:06 When they found out
31:27 C-section and meeting Ezra
36:57 Time with Ezra
48:07 Funeral arrangements
53:50 Did they find anything?

You might appreciate these other episodes:

  • Watch/listen to Angelica’s advice episode of son Ezra: Click here
  • Watch/listen to Tiffany‘s birth episode of daughter Khyana’s: Click here

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  • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
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Angelica with her sweet Ezra

Full Transcription:

Angelica 0:00
Ezra Wilde

Angelica 0:08
He had dark blonde hair, and his second toe is longer than his big toe. Just like his papas. And when he was born he looked like his sister.

Winter 0:22
Welcome to Still A Part of Us a place where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter.

Lee 0:29
And I’m Lee, we are grateful you joined us today. Please note that this is a story of loss and has triggers.

Winter 0:35
Thanks to our lost parents who are willing to be vulnerable and share their children with us.

Lee 0:39
If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

Winter 0:46
Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they’re still a part of us.

Winter 1:02
We are so excited to have Angelica here today to talk about her sweet son, Ezra. Angelica, thank you so much for coming on to talk to us about Ezra. Tell us a little bit about yourself. Where are you? Who are you? Where are you from? What do you do? Yeah, where? And guess where you were at the time of Ezra’s birth.

Angelica 1:22
Thank you for having me. I really, really appreciate you wanting to hear his story. My name is Angelica. I am 32 years old. I live in Idaho. I’m a registered nurse. I have worked for eight years, but the last four years have been in the neonatal ICU, which has been kind of an especially interesting challenge as of late.

Winter 1:49
Yes, I am sure.

Angelica 1:53
But I was working full time when I was pregnant with him. Kind of through COVID, too, but nothing really ever changed for me because I was still working in a hospital setting. So–

Winter 2:06
Yeah.

Angelica 2:07
Still going in a few days a week.

Winter 2:11
Great. And what does your family look like who you mentioned Ezra’s papa? So–

Angelica 2:20
I have been married for almost 10 years to my husband, Nick. We have a three and a half year old little girl named Philippa.

Winter 2:30
Awesome. That’s wonderful. And anything you guys like to do in your spare time, any hobbies as a family? Or personally?

Angelica 2:39
My husband and I met in college in the marching band.

Winter 2:43
You did?

Angelica 2:44
Yes.

Winter 2:45
So what Okay, I got to ask what did you play in the marching band? Because I was in the marching band too.

Winter 2:51
Oh, really?

Winter 2:52
Uh huh.

Angelica 2:52
Oh, I played alto saxophone.

Winter 2:55
Nice.

Angelica 2:56
Nick played the trombone.

Winter 2:59
Wonderful. That is, I have fond memories of the marching band. So I love that you guys met in the marching band.

Angelica 3:08
I mean, after college, we would play in wind ensembles together. But it kind of dwindled after Philippa was born. Now with COVID it’s not really all that safe to be playing the wind instruments.

Winter 3:22
Exactly.

Angelica 3:25
But that was what we used to do for fun. Then just spending time with our family. We have extended family fairly close. Nick’s parents live about two minutes away. Mine are about five minutes away.

Winter 3:37
Oh, that’s great.

Angelica 3:39
My brother and sister in law live about two minutes away as well.

Winter 3:42
Now, that’s a blessing I have found to have family nearby. So that’s wonderful. I know we’re going to touch on this a little bit later. But I just wanted to point out that you are a NICU nurse. That is quite heavy I’m sure. So I appreciate you coming on because this can probably lend a little bit more of a different perspective for our listeners. So thank you so much for coming on again.

Angelica 4:13
Thank you so much.

Winter 4:15
So yeah, and when was Ezra born? Can you give us kind of some context, you don’t have to give his exact birth date, but can you give us like, how long ago was it that he was born?

Angelica 4:27
He was born on June 1st of 2020.

Winter 4:30
Okay.

Angelica 4:31
It has been a little over 10 months?

Winter 4:33
Yeah, it’s still very new for you. I’m so sorry that it is so raw still I’m sure for you. So tell me, were you planning on getting pregnant with Ezra, any fertility issues, or was that something that was part of your general family plan?

Angelica 4:54
We were really fortunate to not have any fertility issues. But it did take us about seven months before we found out that he was on the way. It took a while and sometimes it can feel like forever. When you’re trying.

Winter 5:09
Yeah.

Angelica 5:10
When you’re talking when you’re trying to build your family, and you have this timeline in the back of your head, and you just realize exactly how little control you have over it.

Winter 5:20
Yeah, it’s so frustrating. But that’s great that you guys found out you’re pregnant. So he was planned and how was your pregnancy?

Angelica 5:32
It was actually, it was really good. Until, it wasn’t.

Angelica 5:36
Yeah.

Angelica 5:37
We found out we were expecting him in November of 2019. I just remember being really excited, but also really nervous, kind of anticipating something bad to happen before anything ever did happen. You know, I’ve just always been a very anxious person, and especially working in the NICU. I know, I’ve seen a lot of things that can go wrong. So I guess, in my head I’m trying to anticipate those things all the time. Which is not especially good for my mental health, but I was kind of cautiously optimistic.

Winter 6:18
Okay.

Angelica 6:18
When we found out that we were expecting.

Winter 6:21
Now as I’m actually a little curious, how did Philippas’ pregnancy go? Were you still cautious? Because of that?

Angelica 6:28
Yeah, probably for different reasoning. Well, somewhat. So I had just started working in the NICU when we found out about Philipa.

Winter 6:39
Okay.

Angelica 6:41
Before that I was working in the adult world. So they put me into all of these kinds of orientation types of courses with the new grads, because working with the neonatal population is very different. So I was learning about all of the things that could happen as they were happening. As I was meeting each of these milestones in my own pregnancy with my daughter. I was so worried, just so anxious that something could happen. Kind of bracing myself for something to happen and nothing did. I just was building up all of this anxiety. And oh, gosh, I don’t know. It’s just the way that my brain works I guess. If there were an Olympic event for worrying, I would have so many gold medals. I wouldn’t know what to do with it.

Winter 7:43
Yeah, I usually am very, I guess, cautiously optimistic as well. Because you know, you just have a few things. You’ve seen enough things you’re like, something’s going to go bad. Yeah. So your pregnancy was good. Did you guys find out that he was going to be a boy at the 20 week scan? Is that something you guys wanted to do and make sure that you knew?

Angelica 8:10
Yeah, mostly because when it comes to naming our children, we wanted to cut the name cooldown by half if we could.

Winter 8:21
Smart.

Angelica 8:22
So, it was actually about 17 weeks that we found out that we were having a boy. We were actually able to bring Philippa with us to that appointment, not because we planned it that way. But we just couldn’t find anybody to take care of her that particular day. So it was the three of us there. They didn’t plan to do an ultrasound, but did one so that Philippa could see him and hear his heartbeat. And the doctor said, “Well, you know, we’re still a few weeks early, but would you like to know if it’s a boy or girl?” And he said, “Tentatively, I can tell you you’re having a boy.” And then three weeks later, it was confirmed.

Winter 9:03
That’s great. Oh, that’s special that Philippa was able to be there too. That’s so fun. That was probably before. I mean, that was probably in the middle of COVID, too, wasn’t it? When you had that appointment?

Angelica 9:16
It was before lockdown.

Winter 9:18
Okay.

Angelica 9:19
Before lockdown at that point they were still allowing family to come with you–

Winter 9:26
Okay.

Angelica 9:26
–To your appointments. They hadn’t told us anything about not allowing children and we just figured that we would keep her the distance in case she happened to be one of those asymptomatic carriers, or something like that. Keep her away from the other parents.

Winter 9:40
Yeah.

Angelica 9:41
Then bring her into the office and keep her on the opposite side of the room from the doctor, but just you’re considering what happened. I’m just so grateful that she was there. I know that she probably won’t remember it. But–

Winter 9:54
Yeah, what a blessing really that is so special. For her to have been there. How are your other appointments? Were there? Was there anything at all that was of concern? I guess?

Angelica 10:06
Not really, actually. That was one of the things that made me feel so perplexed about this, just this feeling of impending doom that I constantly had through the pregnancy. About the only thing that was a little bit abnormal, was during the 20 week ultrasound when we were taking a look at his heart. There were three areas of echogenicity. I think it was his left atrium. Philipaa had one in her left atrium as well. I talked with the doctor about a little bit, but he said, “Unless there were more, more spots or more areas of echogenicity, that you can see that, he wouldn’t recommend a fetal echo.”

Winter 10:53
Okay.

Angelica 10:54
Just that they were small areas of calcification, and that he wasn’t concerned about it. So I tried to not be concerned about it, too. But he was healthy and strong and so active. I remember Philippa, she moved around a lot, but he was a little ninja in there.

Winter 11:21
Oh, that’s so great. So super active?

Angelica 11:26
Yes, extremely active and his movement was extremely predictable too. Which was something that I was really grateful for. Because that gave me a little bit of solace, when I would start to worry about something, you know. I think to myself, “Oh, I haven’t felt him move for a little bit.” Then he would give me a little jab and I know, he was okay.

Winter 11:47
Like, I’m hearing you mom. So that is going along just fine. Tell me what happened. What were those series of events that led to you finding out that Ezra was going to be still born.

Angelica 12:05
So it was a string of three days that I was working, starting from May, oh goodness, I think it was May 29. It had been really busy on the unit, just a lot of acuity. High census. Just a lot of work for all of us to do. I got to day number three.

Angelica 12:35
So at that point it was May 31st. I had a really busy assignment, and was finally able to slow down and get some lunch. It was about three o’clock at that point, three, or three thirty. I remember feeling him move around the time when I was eating lunch. But then I went back to my assignment. With everything that I was doing, I guess I just wasn’t paying attention to see if he was moving anymore, or at any point after that.

Angelica 13:05
So I finished up my shift and gave a report. I still had so much charting to do. So I sat down and was drinking cold water, expecting him to move, but he wasn’t moving. That set off alarm bells in my head. But I know that I’m an anxious person already. So I thought that I was just overreacting a little bit, that something just didn’t feel quite right.

Angelica 13:38
I finished charting and left the unit. I was walking to my car, and just checking my phone for any messages that I had missed. My mom had sent me a photograph of my grandmother. I realized that it had been 12 years since her passing. So she passed on the 31st. I don’t know why I felt like that was strangely significant. I just felt so sad.

Angelica 14:11
But you know, I was still talking to Ezra, still kind of rubbing my belly and walking to my car. Telling him that we were going to go home and see what his sister and Papa were doing. I got home and I remember just thinking to myself, like he hadn’t moved while I was in the car. I told my husband and at that point Philippa was already in bed asleep. So I actually think I’d given her a kiss on the forehead that morning when I went to work, but I hadn’t seen her beyond that. I was so preoccupied with the fact he wasn’t moving that I didn’t go in to kiss her goodnight.

Angelica 14:55
So, we had dinner and I tried to kind of elicit a little bit of movement. I think I ate an orange, trying to get him to move. Even brought out ice packs and kind of held them on either side of my abdomen to see if I could get him to do anything. My husband said, “Oh there, I thought I felt something.” And so I took a little bit of a deep breath. I thought, okay, well, maybe I’m just overreacting at this point.

Angelica 15:27
I took a shower, but I still wasn’t feeling that really significant movement I was accustomed to, and then we started to get ready for bed. It was a Sunday. My last day of work, I wasn’t going into work the following morning, but Nick was. So he started to get settled for work, or settle the bed prior to the new work week.

Angelica 15:53
I see that for a little bit and started a kick count. I actually pulled out my stethoscope and tried to find him. I could usually find him if I couldn’t hear him terribly well, at the very least I could hear his heartbeat. Even if it sounded distant there, you know, but I couldn’t find him. I started to panic a little bit. So about 23 minutes into the kick count, I stopped. I knew that I was supposed to go for about two hours or so, but I just haven’t felt anything for at least that one. So I called L&D and asked them what they thought, because I wanted to get their opinion. And make sure I wasn’t going in unnecessarily. They told me to go.

Angelica 16:50
It was also very late at that point. It was after midnight. So at that point, Nick had fallen asleep. So I went and I got dressed. I even remember looking up and down at things in my closet thinking to myself, okay, so if something is wrong, there’s something really awful has happened. What clothing do I not mind hating for the rest of my life?

Angelica 17:18
I woke my husband up and I told him that I was gonna go to the hospital. He asked me if I wanted him to have him go with me. I told him not to because if I was overreacting, I didn’t want to wake up our family and make them worry for nothing. Especially since everybody else had to work too. So I told him to stay with Philipa.

Angelica 17:47
I left and I remember leaving with a phone charger that I could have in my hospital room, my ID, my insurance card, my clothes and that was it. I didn’t even have a hospital bag packed and honestly, the unpacked hospital bag is still hanging where it was 10 months ago. I haven’t been able to touch it.

Winter 18:16
Angelica, can I ask you a quick question?

Angelica 18:19
Yeah.

Winter 18:19
What week are you at this time?

Angelica 18:23
Oh, sorry about that. At this point I am 33 weeks and five days.

Winter 18:28
Okay.

Angelica 18:28
Gestation.

Winter 18:29
Okay.

Angelica 18:30
I remember that really distinctly because I remember having read so many stories, just with COVID-19 being so unpredictable. I had read a story about a mother who had lost her life at about 33 weeks or so. And because we were about at the same place in our pregnancies, I thought to myself, okay, if I can just to get through this week, I’ll be okay. If I can get to 34 everything will be okay.

Angelica 19:06
I was seriously doubting that things are gonna be okay, at that point. So I was driving, and I went to the same hospital that I work at. Triage for labor and delivery is right down the hall from the NICU. So I had been there earlier in the day. I could have gone at any point in the day. And that’s been a really hard thing, actually, knowing that I was there all day long. I could have gone over and that maybe things would have been different.

Angelica 19:39
So I’m driving and I’m talking to him. I’m driving in silence. Just thinking to myself, what might be happening. Considering what could cause decreased fetal movement in him at that point. Trying to determine what was going on, if anything. How he was going to do if he was going to be delivered that night, or I guess at that point that morning, because it was really early on June 1st. I kept telling him, it’s okay, we’re gonna be okay, you’re gonna be okay.

Angelica 20:18
I arrived to the hospital and I parked the car. I had forgotten the mask. So I entered through the emergency room, which is where they were having everyone enter, and they handed me a mask. The nurse who was at the front desk asked me if I knew where L&D was, and I told them that I did. Then, you know, seeing me with my giant protruding belly, he looked at me, he said, good luck and sent me upstairs.

Angelica 20:50
I just remember feeling so much dread, at that point, so much dread walking those halls and waiting for the elevator to come up, or to come back down. The elevator to come down to get checked in to triage. They got me into my room and started to set up the doppler, but my nurse couldn’t find him and couldn’t find Ezra anywhere. She asked me where we normally were able to find him. So I pointed on my abdomen to where she could go and still nothing. She told me, she said, “You know what, I’m going to call the doctor and see if the doctor can bring down a machine. An ultrasound machine so that we can see what’s going on.”

Angelica 21:44
There’s a part of me that knew what was going on when she said that, but I didn’t want to believe that anything was severely wrong. So I just kind of took a breath and talked to him until the doctor came. I ended up falling asleep a little bit. Because I hadn’t slept at all since about 6:45am the morning before. So I was nodding off. I thought to myself, there’s no way that I could be falling asleep if something is seriously wrong.

Angelica 22:26
I was awoken by the doctor on call coming through. He said, “I am so sorry that it took me so long.” He said, “I got here as soon as I could and they even said some prayers on the way down.” There was a part of me that thought that is so sweet, but then there’s another part of me that thought, oh, gosh, you know, if you’re praying that things are okay, then my guess is that things really aren’t. So he even told me to take my mask off at that point. I told him “No, it’s okay. You know, I feel fine. I’m comfortable. It’s okay.”

Angelica 23:02
So he started the ultrasound. Taking a look at Ezra and the screens at a little bit of an angle and there was no movement. As he was passing up along his rib cage, I was trying to see if I could find his heartbeat, but I couldn’t see anything. I wasn’t hearing anything either. I thought to myself, this is not okay, something is really, really not okay. But then I thought to myself, you were not trained to do an ultrasound. So just take a minute. Maybe everything’s fine. He traced back and forth along my abdomen for a long time. At least it felt like a long time.

Angelica 23:52
Then he looked up at me, and his eyes had started to get a little bit glassy and said, I just need to be absolutely sure. In the back of my brain I’m screaming, absolutely sure of what? Absolutely sure of what? Then he put the wand down and he looked at me and he said, “I am so so sorry.”

Angelica 24:20
At that point, nobody, not one of us had said the words gone, dead or no heartbeat. He didn’t need to say anything more for me to know what happened, or to understand what he saw or didn’t see. I started to fall apart. The nurse asked me if there was anyone that I needed for them to call. I said yes please to my husband.

Angelica 24:55
At that point I felt my phone buzz and I guess Nick had woken up and realized how long I’d been gone. Asked me if everything was okay. So I told him and I was just in tears struggling to get words out. I didn’t even tell him what had happened. All I asked him was if he could come to the hospital. I don’t know if it was because I genuinely was just forgetful. Like I had forgot to mention something. Or didn’t want to say it out loud, because that would make it real. And he said, “Yes, yes. You know, I’ll be there. I’ll be there soon.”

Angelica 25:43
He started to call around and try to find someone to be there with Philippa. To stay with her overnight. So I hung up the phone, and my doctor was really kind. He sat with me for a little bit, but then he had to go. It took Nick about 20 minutes to get to the hospital. We live about 15 minutes away. But he struggled to find anybody awake at that point. It was two am I think, two, two 15. But he ended up getting ahold of his dad. His dad came to stay with our daughter.

Angelica 26:36
That time period, it felt like forever. But for that time period, I just remember rocking back and forth and crying. Holding, clutching my abdomen and then saying I’m so sorry. I’m so sorry. Over and over again, I didn’t know what to say, or what else to do. When Nick arrived I gave him a big hug.

Angelica 27:06
It wasn’t too much longer after that, that the doctor came back in with the ultrasound machine. He said, “Guys, I’m sorry, I’m not trying to torture you here. But this is the doctor in me wanting to be 100% sure of what I saw. Because if I’m wrong, then there’s no way that I can forgive myself.” So he did another ultrasound. At that point, Nick knew. Nick knew it. Later when I talked to him, he said “That I almost didn’t need to mention what had happened. To say out loud what had happened. Because he knew something was very wrong. Like beyond, we’re going to deliver him tonight and he’s very sick, wrong.”

Angelica 27:59
So after that second ultrasound, the doctor dealt with one, he said, I’m so sorry again. Then he told us that he and his wife had experienced a loss like that about a decade before. He said not to blame ourselves for anything. And not to turn pain and the anger inward. You know, he said that he would come back in a little bit for us to determine what the next steps were going to be.

Angelica 28:36
At that point Nick he held my hand. He said what are we gonna call him? ”Philippa, what are we going to call him? And we had actually narrowed our names down to Felix and Ezra. For some reason, blessed you know, the days leading up to that I had been calling him Ezra just kind of trying, you know, it felt great. That was what we named him. Ezra Wilde like Oscar Wilde because Philippa, his middle name, is danger.

Winter 29:26
I love that so much.

Angelica 29:30
It was Nick’s idea. So we figured we needed to follow the theme. Then Nick looked at me, he said, “Well, at least the hardest part is over.” And I looked at him and I said, “No, the hardest part is not over.” You know, for as awful as it is to be told that your child is dead. Now we have to deliver him.

Angelica 30:04
The doctor came in and talked a little bit about it. We have a scheduled c-section that we had actually made at eight weeks, which I thought was way too early for them to be putting me on the OR schedule. Just nursing superstition, I guess, very much akin to that feeling that you get when somebody says the word quiet on the floor?

Winter 30:30
Yes.

Angelica 30:31
You know that he was scheduled c-section repeat c-section because I’d had a C-section with my daughter and been diagnosed with a supple pelvic disproportion. I just was not built to have a vaginal delivery. So instead of attempting a V back, I said, “No, just go ahead and put us on the schedule whenever.” I was fine with not waiting until my doctor, my attending actually came on to came on duty. The anesthetist came and chatted with us too. He was surprisingly cheery, which I thought would be bothersome, but it really wasn’t. It was almost kind of helpful.

Angelica 31:27
Then I fell asleep. And I woke up a few hours later, when they came in for surgery. They put me on the schedule for about 630 or so. Yeah, I remember waking up and then all of a sudden I felt cramps. You know, just kind of the beginning of contractions, I thought anyway. I started to feel really sick to my stomach, just really, really nauseated. They had, they’d already talked to me. So they wheeled me out and said, “Don’t worry, we’ll get something in your system.” They started an IV, they did a lot of blood, a lot of blood for testing on me to determine what had happened.

Angelica 32:29
They wheeled me into the OR, and put me onto the table and told me that we’re going to do a spinal block. So they kind of sat me up and Nick was getting ready into hospital scrubs. So they told me to sit up and I did. When I did, I looked off into the corner where my heart chart was sitting and there was a giant butterfly pasted on the front of it. Then I fell apart I just fell apart. Because that made it that much more real.

Angelica 33:08
Then at the same time, I was thinking about the fact that before my husband even knew the true nature of what had happened my co-workers probably knew because they probably saw 33 weeker coming to triage. We’re anticipating potentially getting said 33 weeker. Then the status went from you know, absent fetal movement to fetal demise, and just all of it just was too much. It’s just way too much.

Angelica 33:39
They pulled up the drape and started the surgery. Shortly before that my husband had come in and he was sitting at my side. I mean, neither of us really were in a great headspace. We just didn’t know we were both in such a shock. For Philippa’s birth Nick brought in his phone, and he was taking pictures as they were doing surgery. This time around, he forgot his phone. So the only photo that we have in the OR is the one that the anesthetist took for us with his phone. I’m just laying there and just crying. The OR is silent, just painfully silent.

Angelica 34:34
Later someone asked me “Oh, which NICU team came to attend your C-section?” Because that’s just standard protocol in the NICU. You attend every c-section. I had to look at them and say nobody was there. Nobody attended my C section because why would a NICU team be there for a babys who dead?

Angelica 34:54
I felt a lot of pressure and then I felt no pressure at all, just emptiness. That was when I knew that he had been born because I could just tell he was gone. I just thought, you know, hr is not physically there anymore. No one had told me that he had been born, but I could hear a nurse begin to cry. And she said, “Oh, he’s so beautiful.”

Angelica 35:26
She brought him over to a little warmer, and laid him down on a swaddle blanket. The swaddle had trucks overtop of it. And she began to swaddle him up. My husband went over a little warmer and took a look at him and said, “He looks just like Phillippa, he looks just like her.” Just if I had started to get any degree through the calm. It was shattered at that point, and I just started to sob again. Then the nurse handed him to my husband, and he brought him over put his cheek against mine. If I didn’t know any better for as warm as his cheek was I would have thought that he was still alive. He was born at 6:42am on June 1st.

Angelica 36:27
Not too long after that my attending physician came in. He said, “I’m so, so sorry.” You know, he just kind of ducked into the OR. He said, “I’m so, so sorry. We’ll figure out what happened. We’re gonna figure out what happened.” And he gave my shoulder a squeeze and he left. They took Nick into the recovery room before they had finished closing on me.

Angelica 37:00
It wasn’t very long before they dropped the drape. I could tell that the obstetrician who was working on me he was the same doctor who told us that Ezra was gone. I could see that he’d been crying the entire time. His eyes were beat red. And I asked him “What happened?” He said, “I’m not sure.” He said, “The assessment looks perfect. It’s perfect. There’s nothing wrong with the umbilical cord. Nothing that I could see. I’m not even sure that y’all want to have the placenta tested, because I just don’t see anything. Well, I don’t see anything wrong. I’m not sure what happened.”

Angelica 37:48
So once they were done, they wheeled me out. They took me into labor and delivery. I thought that maybe they were going to take me on to a different floor, or something away from other laboring moms and living babies. But I was wheeled into room 10 I can remember. I remember going in there thinking to myself, the last time I was in the room, we were here for a code for another baby. Just, you know, the awful things that you remember, having worked in the same hospital.

Angelica 38:24
When I got in there, Nick was cradling Ezra. They got my bed situated. They helped me to sit up a little bit. Nick looked at me and said, “I heard another baby being born a few minutes ago.” While they were kind of showing him into the room. I started to cry again. And he said, “No, no, it’s okay. I’m just so grateful that their baby is okay.”

Angelica 38:56
We got to rock him, talk to him, and sing to him. We weren’t sure because of the pandemic if our family was going to be able to come and see him. But we talked with our nurse and she talked to her charge. The charge talked to the house supervisor and they’re like, “No, we’re going to get people in here for you. Just give us a list of names.”

Angelica 39:19
So they allowed my parents, Nick’s parents, my brother and sister in law to come up. Nick has a sister and a half brother, but both of them live Upstate. Then he looked at me and said, “Well, wait a minute, what about Philipa?” And I said ,”No.” I would have loved her to be there. For her to have been there. I would love that. But at the same time, I didn’t imagine that they would be too keen on the idea of having a two year old in my hospital room.

Angelica 39:59
So slowly, our family members started to trickle in all of them just as just as red eyed and perplexed, as we were. Our nurse got a bunch of footprints, she got sets of footprints for all four couples. So my husband and I, his parents, my parents, my brother and sister in law.

Angelica 40:32
They told us that we could have two visitors at a time. So they came in couples. It started with my parents. They went to leave and my nurse came and she said, “Oh, you know, wait a second, you know, weren’t your parents going to stay for longer?” And I said, “No, we’re only supposed to have two sets of parents, to two visitors at any one given point in time.” She’s like, “No, forget about that. You can have all of them in here if you want, we don’t care.”

Angelica 41:07
So we called them back. Then all the grandparents were there with him at the same time. Eventually, when everybody had a chance to say hello, and goodbye. They all left. There was just the three of us. I asked Nick if he wanted to call one of our family members and show Phillipaa her baby brother. He said that he wasn’t sure that he could handle that. He wasn’t sure that she would really understand what was going on anyway.

Angelica 41:50
I kind of regret it at this point. Not at least asking if we could have had her come up. Even for a couple minutes. Not being more insistent on having somebody call us and show her Ezra through the phone.

Angelica 42:11
I remember holding him. At that point he was swaddled, but he was swaddled with his arms straight down. I wanted to see his hands. So I unswaddled him a little bit and brought his arms up. I remember saying out loud, he should have been swaddled with his hands close to face, because that’s what was developmentally appropriate. Then I realized how ridiculous that sounded. I just held them.

Angelica 42:47
I remember holding his hands and staring into space. We kind of looked at his hair. Nick said his hair was so dark. And I said, “No, it’s not. He just hasn’t been washed yet.” And so he kind of dusted up and held his hair a little bit. And I said, “No, look at his hair. It’s blonde, it’s dark blonde.” For anyone who maybe isn’t looking at a picture of me at this point, I am not blonde haired or blue eyed. I have relatively dark skin, hair, and eyes. So, you know, the fact that either of my children had blonde hair is it, I have no idea where they came from.

Angelica 43:35
I just looked him up and down which was just so amazing. Someone loved him. He weighed 4 pounds, 15 ounces, which is a pretty decent size for a 33 weeker. I was worried that maybe he wasn’t getting enough or something. No, he was getting enough.

Angelica 43:54
We were able to hold him for almost nine hours. They would have let us keep him for longer I think. At that point we noticed that his skin started to shear a little bit in different places. It was just getting progressively worse as time passed. So at that point, I mean, I didn’t even think to ask someone to bring clothing for him. I didn’t have a going home outfit for him, or anything like that I had nothing prepared for him. So he wasn’t clothed, and we didn’t bathe him because I had just been through surgery and I couldn’t breath very well.

Angelica 44:39
I was just so worried about damaging his skin that much more. So I didn’t want them to bathe him because even though I knew it wouldn’t hurt him. It would break my heart to continue to injure his skin. We sang to him, we gave him a bunch of kisses and I handed him over to Nick. I said, “Here you hold him last.” He said, “No, no. You should be able to hold him until he goes. I said, “I had 33 weeks with him. I got to feel him move. I think that you deserve to hold as long as we have him.” When the time came, we handed him over to our nurse and that was that.

Angelica 45:46
They gave me a weighted bear afterwards, which I proceeded to sleep with for about six months straight. We ended up staying in the hospital another two nights and going home on Wednesday morning. I remember my doctor, my own personal obstetrician coming in and he said, “Hey, you look like you’re feeling okay? Do you want to go home today?” I just thought to myself no. There is no way I can go home just yet. Not yet not to silence. I ended up staying for two nights and going home on Wednesday morning. They ended up putting me in a different department, so that I didn’t have to be up on newborn where you could hear babies cry. And that’s Ezra’s birth story.

Winter 47:06
Thanks for sharing that. I’m so glad that you got some time with him. That your hospital was willing to get your parents in there and your brother and sister-in-law. That just made me happy to hear that. I’ve heard so many stories that people have not had that chance and it’s so sad.

Angelica 47:35
It’s absolutely heart wrenching. This pandemic has made that process so much harder than it already is to begin with.

Winter 47:49
Yeah. You guys gave them Ezra and you stayed in the hospital for a couple more days. Did you guys end up deciding to have a funeral, or was he cremated? What did you guys decide to do with him?

Angelica 48:07
I actually grew up alongside an undeveloped portion of land built into a cemetery. It’s the house that my parents still live in. So we decided to have him buried there. I’ve had a couple of coworkers, three of them who have lost babies.

Winter 48:31
Oh really?

Angelica 48:33
Yes and their babies are buried in the same cemetery. Most recently, a friend of mine, she lost her little girl. She was about a month old or so. She had been in the NICU. She was very tiny, very premature. But she passed away. I remembered where she had buried her little girl. So that was actually when I was still in the hospital that my husband and my father-in-law, because my father-in-law and my mother-in-law, offered to pay for everything. For everything that the funeral home didn’t cover. For everything that the cemetery didn’t cover. They offered to pay for everything. Then they went over and we’re looking for a plot. So I told my husband to look for my friend’s little girl. It turns out that the plot right next to her was vacant, so they’re buried side by side.

Winter 49:43
That’s so nice.

Angelica 49:45
We didn’t get to have a funeral per say. We were raised Catholic, but at that point, you know, having a mass for him was completely out of the question which I completely understood. That was okay. So we had a graveside committal. The priest came in, he did a blessing over Ezra’s grave.

Angelica 50:11
We only had a small group of people there, including my friend. Because her little girls are right next to my son. We had a very small group of people and all of us were spread out because of the pandemic. Trying to keep this the cemetery’s staff safe in the process.

Angelica 50:40
Then, after that, I feel bad because I feel like there are so many things that I could have done, but did not. Because in the moment, I just wasn’t thinking about it. I was just shocked that this was happening. You know, I always knew that it could happen. I always knew that there was a possibility that something like this could happen. But regardless of how much I thought and I understood about child loss prior to this, as a nurse, I knew nothing. I knew nothing. What I understood, barely scratches the surface.

Angelica 51:22
So you know, in that moment, we didn’t play any music or anything like that. One of my other friends is super sweet. She brought a couple of pinwheels for him. We knew that eventually the pinwheels would be taken away because the cemetery cleans everything up periodically. So we buried one of them actually in there with him.

Winter 51:45
Oh you did?

Angelica 51:46
He was a pinwheel on top of his casket. Then my husband he quoted I don’t know if you’ve ever seen a Muppet Christmas Carol.

Winter 52:01
Yes, we love that movie.

Angelica 52:05
It’s the scene after they find out that Tiny Tim has died. He said in this life, there are meetings and partings. That is the way that we will never forget Ezra and the love that he brought into our lives. It was something along the lines of that I very distinctly remember the reference to Muppet Christmas Carol.

Angelica 52:37
Then that was it. There was a small gathering that my mother and father in law had at their house. My brother and sister in law came from Washington. They cooked everything you know, made sure that we didn’t have to do anything. He just had a small gathering with everybody who was able to go to the service. Yeah. And it was wonderful. In a very melancholy kind of way.

Winter 53:14
Yeah. I’m so glad that you were able to be with family and friends it sounds like.

Angelica 53:25
We were very fortunate.

Winter 53:28
Angelica did you? I know that your ob said that he was going to try and find out as much as possible of what happened. Did you guys end up having an autopsy done? Sounds like you got blood also taken? Were they able to find anything, or is there anything conclusive about what happened to Ezra?

Angelica 53:50
No, unfortunately. We ended up drawing blood on me to determine if there was some kind of a clotting issue. Everything came back normal for me. They also wanted to do a cytogenetic microarray to determine if there was anything you know, anything genetically that would have caused his stillbirth. That was all completely normal as well.

Angelica 54:27
Originally, we thought that they were going to have to do the cytogenetic microarray on his own tissue. So you know, kind of maybe a tendon or something in the back of his ankle. But they were able to do it on the placenta. That came back normal with the offer to do an autopsy.

Angelica 54:50
I wanted to know what happened. So I was leaning toward yes, but my husband Nick didn’t even pause. He just said, “No. No, we’re not doing that.” You know, and the same thing with cremation. He said, “No, no, I just can’t, I can’t envision us doing that to him.” He said, “I know that he’s gone. And I know that he doesn’t hurt me more, but I can’t do that to him.” So at this point, we don’t know why. I don’t think we ever really will.

Angelica 55:28
I later asked the OB who delivered him. If under the same circumstances, he would have had an autopsy done. And he said, “As the doctor who has done autopsies on infants I don’t think I would have. I don’t think that there would have been anything of note to find, just based on his physical assessment.” He said, “He was perfect. There was nothing to indicate that there was an infectious process and the blood work showed that as well.” He said, “I just don’t know that we will have any answers. I don’t think we’ll have any answers. But under the same circumstances, no. I would not have done an autopsy on my child.” So it’s still just kind of up in the air.

Winter 56:22
It is kind of nice to hear and hear somebody say he looked perfect. And like he said, all intents and purposes he’s perfect. Angelica, thank you so much for sharing your story. It never ceases to surprise me how much I cry on this podcast even though I’m very familiar with some of these stories already. I appreciate you coming on and sharing Ezra with us.

Angelica 56:48
Thank you for allowing me to share him.

Transcribed by https://otter.ai

Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: stillbirth

Our Experience Losing Our Stillborn Son During COVID-19 Pandemic | ADVICE

February 3, 2022 by Winter

Parents Bianca and Michael share their experience of delivering their stillborn son Jalen during the restrictions of the COVID-19 pandemic. They also share things that have helped them grieve and mourn and celebrate their son, who was stillborn at 20 weeks and 6 days. They also share some helpful things that people did for them, who were supporting them, and they also share what NOT to say to a parent who has just experienced a stillbirth.

Watch here (YouTube):

Listen here (podcast):

Time Stamps:

0:00 Jalen
1:30 They knew
2:23 Only three weeks
5:40 Memory Table
6:23 Necklace
8:18 the weirdest places
11:20 Virtual Counseling Group
14:28 Journal
15:15 Jalen’s brother
17:01 Due date
18:02 Things not to say
19:40 You have two others
21:01 “Vacation”
25:33 Are you okay?
27:25 Prayers
28:12 Triggers
30:33 Last piece of advice

Wanna help?

  • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
  • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
  • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.

You might appreciate these other episodes:

  • Watch/listen Michael’s (Bianca’s husband) birth episode of son Jalen: Click here
  • Watch/listen Bianca’s (Michael’s wife) birth episode of son Jalen: Click here
Baby Jalen

Full Transcription:

Full Transcription:

Winter  0:00  

We are back today with both Bianca and Michael on our advice episode for Still A Part of Us. I just want to say thank you again, Bianca and Michael, for telling your son Jalen’s story to us today. That was super special. We really- I, it was very emotional. I’m grateful that you are willing to come on so soon after his passing. So thank you. Thank you again, for coming on.

Michael  0:27  

Thank you.

Winter  0:27  

As to give some context to our listeners, when was Jalen born?

Bianca  0:32  

So Jalen was born on February 1st of 2021.

Winter  0:36  

That, at the time of this recording everybody, that was just a little over a month ago. So this is very new for them. This is very, very raw for them. So thank you so much for coming on. It’s been just a little over a month. Tell me how that has been. As you guys have moved throughout your regular normal routines. How has that been to try and get back into life?

Bianca  0:59  

For me? Um, it’s been very challenging. I do have my days of feeling down and defeated and feeling hopeless. Then I have my days where they’re good days, and I’m able to smile. 

Winter  1:16  

Yeah. How about you, Michael? 

Michael  1:18  

For me, every day is different. One day, I can be perfect. The next day seems like I don’t want to do anything. 

Winter  1:25  

Yeah.

Michael  1:25  

It seems like me and Bianca are just staring at the wall constantly asking why.

Winter  1:30  

Yeah. 

Michael  1:30  

Every time we turn around it seems like we have to tell someone new our story because they knew we were expecting another one. Or just they’re asking, which I understand they are asking a lot of questions. But sometimes it’s just like, I can’t, I could just tell you the A through Z, but I can’t tell you the rest of the alphabet, right now. 

Winter  1:50  

The why yeah. 

Michael  1:50  

It’s just too hard. 

Winter  1:51  

Yeah, that’s probably the worst part. I think when people are like, so happy. They’re so happy for you. And they are expecting to hear good news. And you have the complete opposite. It’s because they feel terrible about asking the question, I’m sure you’ve seen that before. And I’m wondering, did you guys take some time off from work? It sounds like Bianca, you’ve been working from home. So were you able to take any time off any sort of maternity leave or FMLA or anything like that?

Bianca  2:23  

So I was able to take three weeks off. One week for the surgery. 

Winter  2:31  

Oh, okay. 

Bianca  2:32  

Which was before, 

Winter  2:33  

Right. 

Bianca  2:34  

I had Jalen, and then two weeks after I gave birth I had off. So I have three weeks total. In the state of Massachusetts. I didn’t qualify for maternity leave, because my baby was under 24 weeks, and he was not born alive. Had he been born alive. I would have qualified, but because he had passed before he was born, we didn’t qualify. 

Winter  2:34  

Oh.

Bianca  2:46  

I did not get- I only got the three grievance days. Then everything else was basically like PTO. 

Winter  3:11  

Oh, that is a– that’s a punch in the gut, isn’t it?

Bianca  3:18  

It was. It really was because it’s like you’re already going through enough. It’s like, I gave birth but yeah, my baby is not here. Right. You would think they would have something in place for situations like that. Yeah, so you’re still going through the same process as a mother that had given birth to a baby that was born alive.

It’s just that, you know, our babies were born sleeping and we’re still going through the same, the same feeling of lactating and you’re going, you’re going to be still bleeding and you’re still going to the physical pain. Your body just went through a traumatic experience. You just gave birth and I’m going to have the same feelings of like, you know, body wise. 

Winter  4:13  

Yeah.

Bianca  4:14  

I still need time to heal. So, I just didn’t understand that whole concept of like, what they thought it was like, just because he wasn’t born alive. You know? That was hard for me. 

Winter  4:28  

Oh, it is. It feels like such an injustice. You’re just like, I don’t have a baby to have this justified. Yep, the bleeding and the lactating. It’s just It feels like a second- It’s just a second hurt to it all. I’m assuming Michael, you probably weren’t able to take any time off either or, you know, didn’t qualify for any additional bereavement time?

Michael  4:58  

I didn’t- I did not. So, when I told my boss what happened on that Sunday, she immediately said take the week, don’t even show up. Don’t worry about anything. We’ll take it from there. I wanted to take longer, but since Mass. didn’t see it as worthy for paternal. She’s going to take her maternity leave. I felt like I had to go. I wasn’t fully mentally there. 

Winter  5:24  

Yeah. 

Michael  5:24  

But I had to be the one to go back to work.

Winter  5:28  

Since you guys have been. It’s just been so recent. And I realized that you will develop other things that you do to kind of celebrate Jalen’s life. But what have you guys done so far to honor him?

Michael  5:40  

The memory table that we have in his memory is huge. It feels like my stuff just got pushed off to the side now. He’s just, he’s everywhere. I’ve got clothes. I’ve got Build a Bear bears around here. Those candle lights that you just hit with the light and it will come on, pictures hanging everywhere. 

Winter  6:01  

Yeah. 

Michael  6:02  

He really seems like he’s here with us. 

Winter  6:05  

That’s great. I think that’s awesome. That’s in your room is that right? 

Michael  6:10  

Yeah. 

Winter  6:10  

So and then, if you didn’t get to hear what they have on their memory table, and like in their memory box, you should listen to the birth episode that Bianca and Michael have talked about. It sounds like you guys have kind of a little a lot of tokens. You also have necklaces that you guys wear. Can you describe the necklace a little bit more?

Bianca  6:32  

Yep. So it is a mom holding a baby or cradling a baby in her arms. Then it has some diamonds. It’s a heart shape. 

Winter  6:42  

That’s awesome. 

Bianca  6:43  

And it’s actually like you can put ashes in it. Oh, so it’s like an urn. 

Winter  6:48  

Yeah. 

Bianca  6:49  

I don’t want to touch the- I don’t put the ashes in it. Because he was so little. 

Winter  6:54  

Yeah.

Bianca  6:55  

I don’t want to tamper with his urn that we already have. 

Winter  6:59  

Right.

Bianca  7:00  

So I just wear this in remembrance of him. And I leave his ashes alone. 

Winter  7:00  

Yes. 

Bianca  7:06  

Yeah. I don’t want anyone touching that.

Winter  7:10  

Yeah, I wouldn’t either. I would be like, no, no, don’t nope. Don’t mess with my son. You guys work? You have two children. I’m sure you’re quite busy. But how do you take time to set aside some time to mourn because it is so new and so raw? And so it’s just so terrible. I’m just curious to know how you guys are handling the grieving process.

Michael  7:36  

Really, whenever I guess we find time, or that sucks, but that’s more or less like we’ll do it when we’re cooking. When we’re just laying in bed not really doing anything. It sucks. Because when you’re when you don’t want to mourn is when you’re more like she’ll wake up at 3am crying and I’m like, I guess I’m up with you. 

Winter  7:57  

Yeah.

Michael  7:58  

Consoling you. It just happens very randomly. We I want to mourn and it’s like, okay, I guess I’m not right now. 

Winter  8:07  

Yeah.

Winter  8:07  

I’m gonna be doing something like, oh, here we go.

Winter  8:09  

Yeah. Isn’t that so funny? I did not expect that to be starting to cry right in the middle of the grocery store or whatever. Right?

Michael  8:16  

Right, right.

Bianca  8:18  

Yeah. So for me, it comes in like, the weirdest times like, it just comes out of nowhere. Like, it just hits me. I can be working and I’m fine. I was just laughing and then I get so emotional. I think seeing baby boys is very triggering for me. I will see a baby boy and then I’m just like, gosh, like, get it together, get it together. Then we have because of this whole COVID thing, we have to wear masks going out. So it’s like I’ll have my mask on, but you can see tears coming down like trying to wipe my face.

But it’s so hard. Seeing like, baby boys or going into a Walmart or Target and I’m only supposed to go grocery shopping. Then you know, the baby aisle is right there. So like you’re, you see the stuff and you’re like, man, this is just I didn’t think it was gonna be this hard. But even this is probably why I don’t go out anymore.

Like I try not to leave the house and go to stores. I’ll just order online because seeing baby things is very emotional for me, especially after a long day of dealing with the kids. Once I have time to like, wind down, my mind starts wandering. Then I start to feel myself thinking and asking myself why, or that it should be different. 

Michael  9:44  

It’s really hard going places. She has her appointments that she has a follow up for postpartum. Unfortunately, I can’t go but when the doctor calls I say listen, she can’t sit in the waiting room with pregnant women. You’re going to have to –When she’s outside, she can call but she has to bring her in back door front, straight into the room. I don’t care how it happens, but you can’t, she can’t sit in there. 

Winter  10:08  

Oh, that is actually a great piece of advice too, because it really is a trigger like it is. It is so hard to see all of those things that just remind you that you’re not pregnant and that you lost a baby. And it is, that is a really smart idea, Michael, good job. You look. Good job standing up for your wife. Like that’s awesome.

Um, you did mention that you have Bianca go to or, quote unquote, go to I’m assuming zoom meetings for like a counseling group. Do you attend Michael too or is it? I’m not sure. Is it just for mom or dad also? 

Michael  10:48  

I attend. I’m not on the camera. I’m sitting there next to her. 

Winter  10:51  

That’s great. 

Michael  10:53  

I wasn’t not fully there yet ready to sit, or tell my side of the story because not most men don’t. 

Winter  11:01  

Yeah.

Michael  11:01  

But I am there with her.

Winter  11:04  

That’s great. Well, just some of the stuff I at least for the counseling groups that we’ve gone to has been, they just bring up things to think about and how you can process it. So I think it works. Regardless if you’re on camera or not. 

Michael  11:18  

Definitely 

Winter  11:20  

Bianca what are so of the things– both of you actually, what are some of the things that has helped by attending or listening in on those counseling groups or those grief groups?

Bianca  11:28  

It is, the biggest one for me is that it’s okay to feel what you’re feeling. I have a very strong support system, I will say that, but for me, it’s like my support, like some of the people in my support system, have never gone through what I went through. So it’s very hard to put yourself in a place where you really don’t know what to say, or how to say it. So I think there’s a theory like, okay, well, the baby’s not here, or everything happens for a reason, right? But my baby, you know, mattered to me.

So I feel like going to those support groups allowed me to feel that it’s okay to feel what I’m feeling. I’m entitled to feel how I feel, regardless of what anyone says, because there was some someone that mattered to me, my son mattered. I’m entitled to, you know, express my emotions for him, because it only expresses the love that I had for him. 

Winter  12:36  

Yeah.

Bianca  12:36  

Me crying, and, you know, the pain that I felt was all love. It’s all out of love. And so, you know, if I make you uncomfortable, then I’m sorry, but I’m not sorry, actually. You know, this is how I feel. And you are entitled to feel that way. And I feel like it really helped me also, with, you know, going throughout everyday life and knowing that I’m not alone. Like there’s many other women in this world, that have gone through the same similar, you know, situations and we can all stand together.

Know that, you know, day by day, not gonna say it’s easy, but you know, step by step, it definitely gets easier and bearable, I would say. And manageable. Like I now know, before, like the first couple of weeks, it was just like, I was crying every day. And then I felt like crying. I went longer periods without crying. And you know, I have my days where I completely break down. But it’s manageable. And it’s okay. 

Winter  13:45  

It’s definitely a process. And it’s not linear. It feels like some days you’re like, I’m making some good progress. Then you’re like, oh, just kidding. Next day back to where you started. It feels like so. Right? 

Bianca  13:56  

Yeah. 

Winter  13:57  

Is there anything that you guys do, or have been able to do to kind of physically escape things that you like to do to distract yourself? I’m just curious, because some people like to have an out sometimes because I think grieving, sometimes it feels like you should grieve or cry all the time to feel close to your son. That’s the way I felt actually, when my son passed away. I realized I couldn’t sustain that. I just couldn’t sustain that. So is there anything that you guys do to try and have an out? Give yourself a break? I guess.

Bianca  14:28  

Yeah, I journal.

Winter  14:30  

Oh, good.

Bianca  14:31  

Pen and paper, get my thoughts out whatever I’m feeling in that moment, writing it down on pen and paper and seeing it has helped me. I’m not one to really talk about how I’m feeling because I feel like no one really gets me and they don’t understand what I’m going through in this moment.

So writing it out, I feel like is equivalent to me talking to somebody that gets me. I’m able to say exactly how I feel even if what I’m feeling right now is I’m angry, I will write angry across the paper and put all the reasons why I feel that I’m angry because this is just how I feel in this moment. Then seeing it on paper and letting it out makes me feel so much better because I’m just like, I let it out. And I no longer have that feeling inside of me, you know what I mean?

Winter  15:22  

Yes, for sure. Writing is so therapeutic. And you’re right, I think that there’s– we have a great support system as well. But having somebody that you feel like can understand you is really super important. There’s not very many people that have had the same experiences you have, or I have, and so yes, having a journal, writing it out is super great. 

Bianca  15:45  

Definitely. 

Winter  15:46  

It’s so helpful. How about you, Michael, anything that you do to release, or maybe even just check out for a second? To give yourself a rest?

Michael  15:55  

Yeah, definitely. My son definitely. Does it for me. 

Winter  15:58  

Oh, really? 

Michael  15:59  

Yeah, he’ll say dad,let’s go watch something.? Dad, can we go here? Dad let’s go play together. Just anything. I’m just like, okay, I appreciate you. Even though he doesn’t understand what I’m going through. 

Winter  16:10  

Yeah.

Michael  16:10  

He definitely-

Winter  16:11  

-Is helping

Michael  16:13  

 He draws my mind somewhere else. So that definitely, definitely helps.

Winter  16:16  

That’s great. You guys, you got a buddy right there. Taking care of you, for sure. You guys have talked about when you had his funeral, you actually went to a park afterward and did a balloon release. You’ve talked about Valentine’s Day, because that was the first holiday right after he passed away. And you guys wrote a letter to him or wrote cards to him for somebody that was far away. Like, I really loved that sentiment.

What other things are you guys going to try to do to celebrate? I know that that’s, I mean, there’s still a lot of things that are coming up. But you know, you do talk about his due date, and there will be a first birthday and there will be, you know, all of these things that are coming up. Have you guys thought through any more things that you’d like to try and do?

Bianca  17:01  

So for him, for my due date, which is coming up on June 14, I want to get away, like, we’re gonna plan a little family vacation that weekend. 

Winter  17:16  

Good. 

Bianca  17:17  

My due date is on a Monday. We’re gonna try to go away for the weekend. Like, even if it’s like Saturday through Monday, or something just to be away and be with each other. Because it’s definitely going to be hard. We may do like a balloon release for him. And like, you know, I know, we were gonna do family photos together.

I was planning on bringing his little urn to include him in there. Probably like a balloon for him. Like, just to, like, keep him in our memory. I don’t know, it’s gonna be tough, but I feel like it definitely, it’ll be worth it. It’ll be something that we can remember him by.

Winter  18:02  

Yeah, those holidays, you will, you will find are tricky. They can be just going to warn you Mother’s Day and Father’s Day. Those are tricky. So just kind of keep that in mind if you approach them. Bianca and Mike, these are questions I like to ask every single episode of the advice, because I think a lot of people that are supporting lost moms and lost dads want to know what to say and what not to say.

So is there anything that you would recommend people maybe not say in that has or something that somebody said to you that maybe hurt you that you were like, oh, that was probably not the best thing to say. So something that they shouldn’t say? And then if there’s anything that you really liked, that somebody said to you that you’re like that that was helpful, that helps me get through this?

Bianca  18:53  

Yeah, so for me, I would say the one thing that I hated the most was telling me everything happens for a reason, because you’re telling me this, but I can’t grasp the concept, or the reason behind why it happened. I get it, and I understand a lot of people don’t know what to say.

I’ve told many people if you don’t know what to say, just don’t say anything. Just give me a hug. You know, like, um, that would be the best thing you can do for me, but I’ve had everything happens for a reason, or at least you weren’t far along. 

Winter  19:35  

Oh.

Bianca  19:36  

Don’t say that. You don’t say stuff like that. 

Winter  19:39  

Yeah.

Michael  19:40  

For me the one that kicked me was at least you have two others. 

Winter  19:44  

Oh, yeah. 

Michael  19:46  

That was a real like, don’t taunt me to choose who– which kid is more important to me. 

Winter  19:54  

That’s a great way of putting it. 

Michael  19:56  

Yeah, I don’t need that. I also think people should just listen. So when I told everybody she was pregnant, every time someone asked me how she was or like what happened? Like she gave birth and they immediately said, congratulations. Then I’d be like, it was- hold on it was it was a stillbirth.

That one hurt me the most because I got it all the time because people are like, oh, we went to the hospital and everybody knew I was in the delivery ward. Everyone was oh, congratulations. I’m like, it wasn’t like that. 

Winter  20:29  

Yeah. 

Michael  20:30  

I think people should just really listen, let the person get out what they want before you start giving out, congratulations.

Winter  20:37  

Yeah. 

Bianca  20:38  

It’s just like, even with the asking of the questions. It’s like, it’s okay to talk when you’re ready to talk. You don’t have to just because someone asked the question, you don’t necessarily have to answer, you can just say like, you know, I’m not ready to talk about it right now. I got that a lot. I went back to work after three weeks. And it was like, oh, congratulations. And it’s like–

Michael  21:01  

Or someone saw that she was out for a while. She was really out two weeks. When she went back that Monday, someone said “How was your vacation.” It completely took her. She was done. It was another week after that. So that’s why she was out for three weeks.

But yeah, so I think people should definitely just listen, because when they said that to her, and she called me, I can tell it broke her the little bit of traction she gained or tried to recover, or recovery she was kicked back 10 steps.

Winter  21:34  

Yeah, that is devastating. A vacation? Yeah, no, no. This is one thing I’ve noticed in talking to both of you today. I have noticed you guys have been so supportive of each other, you really kind of stick up for each other and are very sweet to each other. It’s been kind of, it’s been kind of cute to watch you guys.

So how would you say you guys are doing? How would you say the other person is doing for this grooming process? Is there anything that you’re concerned about? I know, it’s only been a month. But is there anything that you’re worried about for your spouse?

Bianca  22:06  

I’m worried that Michael didn’t have a chance to grieve just yet. I know he goes through his moments of sadness, of course. But again, guys grieve differently. And he’s so worried about me and trying to make sure that I’m okay that I want him to make sure that, you know, he takes the time he needs for himself to grieve properly.

Winter  22:31  

You guys are just the best, but you’re like you need to take care of yourself. That’s what I tell my husband all the time. So how about you Michael, what do you think of how your wife’s doing?

Michael  22:41  

It’s different all the time. She could be fine for four or five days. Anything as small as a commercial would send her over the edge. I definitely would agree with what was said. I didn’t fully mourn, but when I see her completely breaking down, crying, can’t eat. She didn’t eat after giving birth, she didn’t eat for probably about two weeks.

So I think I go into the, I want to be the defense for I want her to I want her to eat, I want her to rest and I need her to sleep. All doctors are calling , they’re saying, oh, well, let’s just take this depression medication. I’m just like she doesn’t need that just stop trying to force feed something.

Like just give her some time to grieve. It’s only been a month. It’s not like this happened X amount of years ago. So I think I definitely didn’t mourn, but I definitely put her above and beyond my needs to make sure she’s okay.

Winter  23:46  

I’m sure Bianca will appreciate that, or does appreciate that. How much you’re kind of protecting her in a way. So that is very sweet. You should take care of yourself too, though, Michael, I’m just saying. Have you guys had any thoughts about or any a-ha moments about life and death and/or, just your relationship as a couple or your family since this has happened?

Bianca  24:15  

Definitely. Yes, definitely. I now cherish my family even more, because you really never know. You can really be here today and gone tomorrow. Everything will be fine one minute, and then the next minute, everything can change in a heartbeat. So it’s like, now I’m very overprotective, especially with my children.

I find myself saying I love you to those around me a lot more and expressing how I feel because you never know when you’re going to talk to someone again, or when you’ll ever have that chance to say something again. So I try to take in every moment of the day and live in the moment. Rather than trying to Plan ahead now. 

Winter  25:02  

That’s great.

Michael  25:03  

Definitely I agree that we, I was the type of person that if she was like, let’s go to so and so’s house. I’m like, it’s Sunday, I got to work tomorrow. I’m not trying to do anything. I don’t want to do anything. Really. Now, it’s like let’s just go. We need to go see this person we haven’t, or even like, asking someone. Are you okay? I think is big for me. You never know what anybody’s going through. You never know. They might just need that one person to talk to. 

Winter  25:32  

Yeah.

Michael  25:32  

That one person to really just listen. Um, so I find myself asking friends all the time. Like, are you okay? Like, I just need to make sure you are okay. That is what’s big for me.

Winter  25:43  

That is really insightful, Michael. You never know what people are going through? And to just ask, are you doing okay, that is huge. Very good words of advice from both of you. Can I ask just a couple last questions? Was there anything that somebody did for you that really stood out to you? That was very helpful, very special, very touching to you.

I know that Michael, you mentioned that Bianca was like, get rid of the crib, get rid of the stuff. I cannot face it when I come home. And you had somebody do that for you. I thought that right there was huge.

Michael  26:21  

I think someone coming in to pick up the crib, or even someone in general. Just like, hey, I need to do something and they just come fly right in. Picking up the crib was the biggest one because the hardest thing for me to do was to break down that crib. 

Winter  26:35  

Yeah. 

Michael  26:35  

So when they came in, like I called them, he was like, I’ll be there in an hour. They dropped everything that they were doing and came to help us. That was the biggest thing anyone’s really done for us since this whole process started.

Winter  26:48  

Yeah, that’s so kind. They did it before you guys got home right from the hospital?

Michael  26:54  

Yeah, I had to meet him there, but yeah. I wanted to get it out before she even saw it.

Winter  26:58  

Yeah, yeah. And like the fact that he said they’re gonna be there in an hour. I mean, they did drop everything just to help you guys, that was awesome. Having somebody that is willing to help you at a moment’s notice is a lifesaver I think. Any other things that you guys thought stood out to you, that somebody did for you to help you through this? That is helping you through this?

Bianca  27:25  

I would say prayers from those closest to us. Like the random phone calls just to check in to see how we’re doing. I’m just thinking of you and like you’re giving us the, you know, shoulder to lean on, especially in this time, was very helpful. You know, basically just being supportive and just listening. I can call you and you would not even have to say anything, just listen to what I’m saying. 

Winter  27:58  

Yeah. 

Bianca  27:58  

It was very helpful to have those friends that would call and just check in. We can absolutely be our most vulnerable self to them.

Winter  28:11  

Yeah. 

Bianca  28:12  

That was definitely helpful. Receiving flowers for me, was something that just didn’t give me flowers. That was a trigger. 

Winter  28:24  

Really? 

Bianca  28:25  

Yes, every time the doorbell rang, and it would be like a flower delivery, it would break me into pieces. It was a constant reminder of what I just lost. Then flowers die. 

Winter  28:39  

Yeah.

Bianca  28:40  

So, you’re trying to nurture them as I was doing. And then eventually you know, they die. 

Winter  28:48  

Yeah. 

Bianca  28:49  

So it was very hard for me to try to see the flowers and all that stuff. It was very terrible for me. I didn’t like flowers. We got gift baskets with fruit like edible arrangements and stuff like that. Fruit like those were good. Because, you know, like I can, it’s something nutritious to me. 

Winter  29:12  

Yeah.

Bianca  29:12  

And, you know, in that moment of grieving and stuff like that it was very hard for me to eat. So giving someone fruit was more ideal for me. But the flowers were something that broke me down. It was a reminder of when we had to go buy flowers for the funeral. 

Winter  29:31  

Yeah.

Bianca  29:32  

It was a bad reminder. But everything else from like the phone calls to like the sympathy cards and just checking in and you know, being very supportive was very good for us. I definitely encourage people to do that. Especially when they go through a situation like this.

Winter  29:51  

Yeah. It is so nice when it feels like somebody remembers you, especially when you’re like this tragic thing kind of rocked my world. Then after the funeral, everything goes back to normal, right? Everything’s supposed to go back to normal and it’s nice to have people remember you, even to this day. It’s been two and a half years, almost three years since our son passed away, and it feels like I have people still checking in on me, which is a godsend, I think.

Bianca  30:21  

Yeah, definitely.

Winter  30:23  

Yeah. I’m curious to know, if you have any last piece of advice that you feel like, that has really helped you?

Bianca  30:33  

Um, I would say reading. Reading has helped me a lot. I read books on bereavement and books on the loss of a child. That helped me and gave me a lot of insight on the perspective of losing a child. It allowed me to put myself in a different space.

Winter  30:56  

Yeah.

Bianca  30:56  

I really realize that, you know, we’re not the only one that goes through situations like this. And somehow, some way you will get through it. That helped me a lot. Also, taking time out to focus on yourself. I have a lot of self care, even if it’s to just get away, and like, go pamper yourself, like I went and got my feet done, or went and got a body massage. So just like really pampering yourself, and you know, cherishing yourself. It was very hard for me at first because, like I had said, in the birth episode, I blamed myself and my body for failing me throughout this whole process and allowing myself to know that it’s not your fault.

You know, unfortunately, this is something that happened, it’s something that became a part of me, and now it’s my story and who I am today. I’m trying to find the true meaning of Bianca, you know what I mean? And really pick up those pieces and move forward and accept that this is my story. It ends how, you know, I allow it to end. So I have to keep pushing and learn to love myself in a new way, which I’m still learning obviously.

Winter  32:18  

Yeah, that’s, that’s very insightful. You know, you do feel like your body failed you, or something happened, but to take care of yourself. And also just remember your body is also a gift to bring these children into the world. I think that’s good to practice self care. Thank you so much for that. Bianca. Michael, do you have any last piece of advice, or anything that has helped you that you wanted to share before we close up today?

Michael  32:46  

I would say don’t hold in your feelings. While they’re as good or bad. Just tell somebody don’t just keep letting it pile up because it will. You’re doing yourself harm a disservice. Just talk to someone you really trust.

Winter  33:01  

Yeah, people need to remember that. I want to thank both of you for coming on today. I’m so sorry about your sweet Jalen, and I hope that this is a way that he can be remembered.

Bianca  33:15  

Thank you so much. 

Michael  33:16  

Thanks for having us.

Transcribed by https://otter.ai

Filed Under: advice, early term stillbirth, podcast episode, stillbirth Tagged With: advice, stillbirth

Jalen Jeremiah | A Father’s Pandemic Stillbirth Story | Born Still at 20 Weeks

February 2, 2022 by Winter

Dad Michael tells the story of the birth of his son Jalen Jeremiah during the COVID-19 pandemic. His wife Bianca had an incompetent cervix and they put in a cerclage, but it failed. When the medical team was trying to remove the cerclage, they broke the water, and they had to deliver their son at 20 weeks and 6 days. Because he was so young in gestational age, there was nothing that they medical team would have done. Jalen was born still after Bianca labored for a short time. He was tiny, but he was perfect.

Watch here (YouTube):

Listen here (podcast):

Time Stamps:

Timestamps:
0:00- Jalen Jeremiah
0:08- Introduction
5:28- Birth story
8:03- Hospital trip
9:41- Water breaks
15:24- Funeral
19:29- Recovery
22:17- Support Group
26:55- End

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  • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
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You might appreciate these other episodes:

  • Watch/listen Bianca’s (Michael’s wife) birth episode of son Jalen: Click here
  • Watch/listen to Bianca’s and Michael’s advice episode after Jalen’s death: Click here

Full Transcription:

Michael 0:00
My son’s name was Jalen Jeremiah.

Michael 0:08
One significant thing about him was, he was a spitting image of me from the eyes, the nose, and to the mouth. One thing I laughed about to myself was that he was really very active at five months, nothing but jumping around in there kicking. So when he came out, I laughed that his inch and a half foot was the one that was kicking her so hard. It was funny to me. That was funny to me.

Winter 0:43
Welcome to Still A Part of Us a place where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter.

Lee 0:51
And I’m Lee, we are grateful you joined us today. Please know that this is a story of loss. It has triggers. Thanks to our loss parents who are willing to be vulnerable and share their children with us. If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

Winter 1:07
Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us. They’re Still A Part of Us.

Lee 1:19
During the times you’re getting kicked in the ribs and in the stomach wasn’t the funnest thing. But

Bianca 1:26
Yeah, definitely.

Lee 1:28
It is quite amazing how small those feet are. New born babies are. Welcome. Welcome to welcome. Welcome and thank you for coming. Thank you for coming on to the podcast. It’s always good to connect and to speak with fathers. Sometimes I feel that I’m sort of forgotten in this whole process. I’m glad that you have come to talk about your son. Tell me a little bit about yourself. How long have you and Bianca been…I don’t I don’t know. Are you married? Are you guys together? Or-

Michael 2:04
We’re married. We’ve been together since we’re 14.

Lee 2:06
Whoa.

Michael 2:08
Now we’re 28.

Lee 2:10
Oh man! More than half your life. So are you both– Were you both 14 and you’re both 28 now, or were you both 14? I’m just gonna say you’re now married.

Michael 2:20
We got married at 20 now feels like what this feels like with this situation that happened. We’ve been through everything now.

Lee 2:28
Sort of true you have.

Michael 2:29
Little bit on me? On a day to day morning. I’m in the retail business. I’m the only one that leaves the house. She works from home. Some hobbies that I do that we all like to do is to be outside. I like to play video games with my son and basketball with him. We all love to watch movies together.

Lee 2:48
What kind of movies? What genres of movies?

Michael 2:51
We’re going on comedies really.

Michael 2:55
Rom coms?

Michael 2:55
Something to keep us all up. One person wants to watch something and the next thing you know you look over another person’s sleeping. We try to stick to the Comedies so everyones awake.

Lee 3:07
That’s nice. Yeah. Because comedies are always fun. When you said you guys like to be outdoors. Being outside is awesome! Do you guys do anything in particular outdoors? Are you guys like you go hiking or camping?

Michael 3:22
We like everything pretty much. Bring the kids to the park. Walk around the park.

Bianca 3:28
Gardening.

Michael 3:29
Gardening.

Lee 3:30
It’s starting to become garden season here in Utah. Are you guys planning your own garden?

Michael 3:36
Yes, finally.

Bianca 3:38
It’s not quite it’s still like kind of really cold and–

Michael 3:42
Waiting for that season to switch over so you can finally let go of the cold weather.

Lee 3:48
So I like the cold, but it’s wonderful. Basketball. You play pretty competitively?

Michael 3:58
I’m not anymore. I did. I’m waiting for one of the big kids to play. So I can-

Lee 4:04
So you could shut stuff down?

Michael 4:06
Yeah. Like how I was rundown. Yeah.

Lee 4:11
Well, good. Now, what position would you say that you’re more of a guard? Are you, you know, shooting?

Michael 4:17
I played guard. Well, I played 1-3. Really the guard played a guard a lot in high school. Um best times best three times three times.

Lee 4:31
I was gonna say whenever I played basketball, I was always the position I played was go in and foul. I was the bruiser. I could rebound and I could bruise I couldn’t shoot. I couldn’t shoot. You know, I could be alone underneath the basket and miss every single shot, but I could out rebound and I can make them pay. I would get ejected a lot, you know, just from time church ball and stuff like that I’d get ejected from games.

Michael 5:02
But we all need a bruiser. Always need somebody on the team that’s a bruiser.

Lee 5:10
I was the punisher. So yeah, I don’t play basketball much anymore. Nobody wants to play with a bruiser when you’re an adult, so.

Michael 5:20
Right, right.

Lee 5:21
Well, wonderful. Thanks for telling us a little bit about yourself. Should we start on your guys’ birth story?

Michael 5:28
Yeah, so that day, previous to that day, he came on a Sunday. But Previous to that day on that Thursday, Bianca was having a lot of complications. Probably two weeks up until his death. Um, she was five months pregnant, but she was two centimeters dilated.

Also, the doctor was like, you guys have to put in a cerclage which is pretty much like a staple. A stitch to stitch up her cervix. That way we can try to keep him in as much as possible. As well as she had to take progesterone shots. To keep him confined.

Lee 6:08
I don’t really know what progesterone is. So would it sort of stop the advancement of birth?

Michael 6:16
Correct. So the progesterone shots would slow down the inducing.

Lee 6:22
Oh okay, that makes sense.

Michael 6:26
She had to get that put in on a Thursday. They had to put her to sleep. Of course, I couldn’t go with her because of COVID. So she had to go to it by herself. When she woke up from the surgery, she was in nothing but pain. They wanted to keep her overnight, but luckily they sent her home. She was going through immense pain.

That Thursday night, pretty much half of Friday. The doctor kept saying just take Tylenol, it’s because you felt a lot of contractions. So the doctor is like, just keep taking the Tylenol. You’ll be better. You just got to give it some time. So we said okay.

Michael 7:04
Saturday came, she was in immense pain. She couldn’t walk. She couldn’t talk. She felt like she was having real contractions. She felt like he was coming. She asked me She’s like, “Should I go down to the ER?” I said “No, call the doctor.” I’m gonna be honest. I’m the type of guy I hate going out to the ER because all they’re going to do is keep us for six hours just to give you Motrin and Tylenol and send us home.

She called and he was like, “Oh, I think you’re gonna- I think you’re okay. But come on in. If you want to come on down, we can evaluate you.” So she went down. I think it’s probably about a half hour to an hour. Well, she had called me she goes “You need to get down here right away.” And I’m like what’s wrong?

Lee 7:45
Were you at work, or home with the kids?

Michael 7:47
I’m home with the kids.

Lee 7:48
Oh, you’re home.

Michael 7:47
I’m home with the kids on that Saturday. It’s probably like two something. I’m starting dinner. Actually, I’m just getting done with it. She was like, “Come down to the hospital, we need you here ASAP.” I’m like, “Why is everything okay?” She’s like, “I don’t know. Just come down.”

Michael 8:03
Now I gotta race to put some clothes on. Get two kids dressed. I’m doing 80 down the highway. I drop them off to the in-laws. I get down there. She’s crying. I’m like, “What’s wrong? What happened?” She’s like, “The doctors are gonna have to tell you.” I said, “Okay.” I waited about 10 minutes. The doctor came in, and she’s like, “The stitch broke. He forced his way through the stitch. Then we hurt her sack that went into her vagina.” So they’re pretty much like she’s having a stillbirth. I’m still trying to process.

I’m gonna be honest, I didn’t even know what a stillbirth was. I’m like, “Slow down. This is all confusing.” So she’s like, “The stitch broke. We thought it was gonna hold in. But it didn’t. It didn’t work out.” I said, “Is there anything we can do?” I mean, I’m like, we just had this done Thursday. I mean, I’m not gonna say that. Of course, you can’t guarantee that something is gonna work. I’m like you said this would work. Their like, “Unfortunately, he just broke through.”

Michael 9:09
After I asked, “Is there anything they can do?” They said “No.” But they followed up with “Also we’re gonna have to make a decision on what’s going to happen.” She said, “If the liquid in the sack broke in her vigina it’s toxic. Now, at this point, I’m thinking like, they’re telling me I have to choose between our son and her. I can’t make that decision right now. They’re like, don’t worry about it. We’re gonna, we have to admit her. We’re trying to get a room set up for you upstairs.

Michael 9:41
20 minutes later, we went up there. The doctor goes, okay, we’re gonna have to take out the stitch. So I’m like, Okay. It took them 20 minutes to half an hour to take out the stitch. Which in my opinion was way too long because the surgery only took an hour. So I’m like what’s going on you using a bunch of Using all these spec alone appointments, she’s screaming in pain after them finally getting it out. When he first went in he goes, um, I’m going to try not to break her water. It shouldn’t. But I’m going to try very carefully not too. So we said, okay.

Once he got it out, he broke the water, but he didn’t say anything to us. I see a bunch of liquid rushing from her. I can see her face that she knew her water broke. So we asked, “Did her water break?”. Dead silence for probably about 20 seconds. And they said “It did.” At that point, it was set in. All the emotions set in. The doctor’s left. They said, “We’re gonna go get the medicine to induce labor. We’ll be back.” It’s like sitting in a labor room with no EKGs hooked up to her. That was hard for me. They finally came back. Gave the medicine-

Lee 11:02
May ask, about how long did you guys have to wait until they came back? Because sitting with your thoughts, sitting with your thoughts is always just?

Michael 11:11
Yes, in our thoughts. Well, it was bad. We got-

Bianca 11:15
There like at four. Then they told us at four that we were going to be admitted. And then it took them to about seven that night.

Michael 11:25
We’re sitting pretty much in a labor room. Dead silence. The nurse is constantly asking if we need anything trying to process. Once that time came. The labor felt like the labor took an hour. We wanted to keep him in as long as possible, but he was ready to come. After he came out. That’s when our little bean was. He came into the world. He wasn’t alive. He passed away in labor before he came. And I think that was the hardest time. I’m sitting with a newborn who was 11.. What was he?

Bianca 12:08
Oh, he was 10 and a half inches long and he weighed 11.5 ounces.

Michael 12:14
So I’m sitting with him in my hand and I don’t even.. My hands are wide open. I don’t even know how to hold a baby that small. So it was very hard. We pretty much stayed in the hospital for a day and a half. Had him the whole time. Was it two days?

Bianca 12:33
Not only stated.. We left that day that morning. So he came at 1:13 in the morning, and we left by 10 o’clock that morning, the same day.

Michael 12:45
He was everything that we wanted. Unfortunately, it didn’t work out that way.

Lee 12:51
You think he looked just like you? Tell me a little bit about his features. Did he have lots of hair or did have a little bit of hair?

Michael 12:58
He didn’t have any hair.

Bianca 13:01
Like a little fuzz.

Michael 13:02
Yeah, little fuzz. Little fuzz up there.

Lee 13:05
He did have sort of nice, perfect little fingers?

Michael 13:11
Perfect fingers, perfect fingernails. Came out with his hands crossed. He he.. Everything on him was perfect.

Lee 13:22
Everything. Everything. Yeah. Just perfect. And it hurts that you couldn’t keep him.

Michael 13:29
He was perfect. He stayed with us the whole time. Luckily the nurse that we had was amazing. It seemed like she was there with us through her whole shift. She was bringing us everything. She was laughing with us, crying with us, rubbing our backs. She even set up a photo shoot for him. She put him in a nice Winnie the Pooh blanket, a nice blue knitted hat. She gave us the certificate of life because since he wasn’t born, we couldn’t get a birth certificate. So they gave us a certificate of life, which was nice. She signed it. The hardest part of it was leaving him at the hospital.

Lee 14:17
Yeah.

Michael 14:18
The hospital was going to set up a funeral service by– we would give them his remains. They would set up a plaque at a local cemetery with all the other babies and the other still babies. But we didn’t want it. We wanted to be in charge of how the funeral service went. So we actually set up our own funeral service.

Michael 14:41
I have two other kids. Now we couldn’t even tell them up until he was here that of what happened. We have an 11 year old daughter and a six year old son and even just explaining it to them was hard. It wasn’t fair. My son was ecstatic to have another brother to run around with and cause trouble. He took it the worst. To this day he just walks around just wishing his brother was here. So they finally got to meet Jalen at the funeral. We had immediate family there with a couple of close friends.

Lee 15:24
Now, I remember when we had to figure out our funeral services I had no clue what to do, like I hadn’t the foggiest idea how to go about planning for a funeral. And it really, if it wasn’t for my family, knowing a family who runs a mortuary. I wouldn’t know what to do. But I was like, well, I guess we could use these people. Because I grew up with these people.

How did you guys go about finding a service to use? How was that process for you? For me, it gave me a purpose. And I was so determined to do that. And I did it. Like, I need to do this, I need to do that I need to go down to the cemetery and need to find plots. And once I had done everything I was lost again. But that little rest gave me a purpose to do for my son. How was planning that for you guys? Was it just completely? I’m sure it was completely new to you. But was it confusing? Was it? Did it give you a purpose for a little time, or–

Michael 16:39
Planning that funeral was hard. We used a local funeral home. Both our families have used the same funeral home in the past, so we knew who to call. She was– the woman at the funeral home was very helpful, very supportive, throughout the way. Very patient with us. We didn’t know anything about planning a funeral. I still don’t even know how we got through. I don’t even remember anything.

She was just pretty much like, how do you what do you want him to wear? And I’ll take care of everything else from there. Which was very helpful. We decided to cremate him. We don’t plan so we live in Massachusetts now. But we were planning on relocating in one or two years. So we didn’t feel comfortable burying him and just leaving.

Lee 17:31
Yeah.

Michael 17:31
So now he’s in an urn in our room. We look at him every day. We talk to him every day like he’s here. We feel like he’s with us. One way we celebrate him after the funeral was we did a balloon release. Everyone that went to the funeral with us. We bought 24 balloons and everyone that went with us wrote a little message. Sharpied a message on a balloon and released it at a park. I think that helped me out a lot.

He came on February 1, of course Valentine’s day was right around the corner. So what we did was we wrote a note to him as if he was a long distance relative. It was also hard for us because actually our anniversary was on the 23rd of February. So it seemed like we didn’t even want to do anything for that. He was the perfect little man.

Lee 18:26
You’re about a month out-a month and a half out at the time of recording. How has your recovery been? How have you guys been? It’s still so raw, it’s still so fresh for you guys. And at the time of recording, we are still in the Covid 19 pandemic. So there’s still all those, you know, social distancing. Here in Utah, they’re sort of easing up on the, you know, limiting the social gatherings to small groups.

You guys mentioned you’re in Massachusetts. How have you guys been able to recover? I don’t know. You know, of course, family will always be there for you. But, you know, how has your personal recovery been? Michael, how has your wife Bianca’s recovery been? How has your other children’s recovery been? You mentioned that your younger son is just distraught and really missing his brother. But how are they doing?

Michael 19:29
My personal recovery? Every day is different. When you feel like okay, I’m starting to make ground. I’m starting to recover, I’m starting to heal. You get something as small as seeing– like going out to the store you see a baby in a stroller, or a baby crying and you feel like it just you feel like you’re just ready to go drop it and leave the cart right where it is and go on home.

Lee 19:57
Yeah, yeah,

Lee 19:58
Bianca’s recovery has been worse. After he came, she wouldn’t eat for two weeks, there she wouldn’t eat, she was barely drinking. Luckily, she started to ease up a little bit, we have a strong support system behind us. They are there for us whenever we needed whatever time, whatever the request was, someone would come right over.

Lee 20:30
That’s a big, that’s a blessing. That’s a huge blessing.

Michael 20:33
Huge blessing. The kids recovery, we all kind of got to mourn together, which is good. Like, sometimes a person would want to or unfortunately, a lot of the mourning came in the middle of the night. While everybody’s sleeping trying to get the kids remote learning up or something crazy, we only got to really relax at night. The more so the mourning, a lot of mourning came during the morning, our early early morning hours.

It was nice for everyone to wait, everyone would hear Bianca cry, and we all would wake up and go consult her cry with her. So I think this definitely brought us together, closer, closer together. Um, the kids are slowly gradually getting better. Um, of course, they have their days where they’re crying, or they say, you know, we miss Jalen. But you know you just try to say, he’s still with us and we’ll see him again.

Lee 21:38
I was just thinking when you were talking about the mourning and at nighttime, you know, because the day you’re so occupied with so many other things, once you’re finally able to sit and be at ease and calm, and then the emotions overtake you. I just remember the three o’clock in the morning just sitting and weeping. It’s so beautiful to be alone and in mourning and having somebody come and then comfort you. I remember those–

Michael 22:14
Probably the best, the best feeling.

Lee 22:17
I do remember that. Now, Michael, there’s a support group that we go to. And they talked about how do you parent a child who has passed away? And Winter. My, you know, Winter? And we talked about it? And how do we parent our son who’s passed away? And we’ve set up you know, we have found some ways to parent through service through stuff like that.

And I know this is sort of an on the spot question, but have you guys thought about how you are going to parent Jalen? Or is there anything that you were like, you know, we would like to like the balloon, the balloon release? Or when you wrote the note to him? Are there other things that you guys do to quote unquote, to parent him?

Michael 23:09
Yes, I think we try to include him like we plan on taking family photos. We’ll bring his urn with us. We’ll meet, we’ll have like a boy balloon. Anytime we will, we’re planning on taking the trip. We take trips every summer. So we plan on bringing him with us. Not just leaving them in the house.

Lee 23:37
Yeah.

Michael 23:38
I think it’s just pretty much including him and stuff like that. This is the biggest thing for us. Will we talk as if he’s sitting right next to us all the time.

Lee 23:50
Well, thank you. Thank you. Thank you. Is there anything else that you would like to tell us about your son Jalen, or how you and Bianca are doing or anything in particular?

Michael 24:06
Me and Bianca are just trying to get through this. We appreciate life differently now. Um, we always seem like we’re telling each other and other family members that we love them all the time. Because you never know when’s the last time you’re speaking to someone you just never know. So, I think this is definitely an eye opener to just appreciate being in the moment and appreciate everything.

Lee 24:36
Like you said, you never know. And harkening back to the very beginning of the interview you had said you never even heard of stillbirth.

Michael 24:47
Right.

Lee 24:47
But now you are so much more willing to show love to those that you love and telling them that you love them.

Michael 24:56
Definitely. We are actually in a support group too, called empty arms, they have zoom meetings all the time. Bianca’s in it a lot. I’ll sit next to her. I’m not really comfortable yet being in the zoom call in front of everybody, but I think finding that group of support outside of family to help just means I know they’re there.

After the two weeks, when you said it’s not like it’s dried up, but when that’s not there anymore, there’s definitely the support group that’s there for us that can relate all the time. Any little triggers we have, we can tell them and they say it’s okay. It’s normal, thinking over this idea or ways to maneuver a conversation. When talking about it. Facing tough questions facing the people who asked why, or how has been huge for us.

Lee 25:58
It really is amazing how a support group who have gone through what we have gone through and what you have gone through is able to sort of help you navigate, like you said. Because people are going to say things in pure innocence, that you’re just like that was not something that you should have said. Having that well of knowledge thing. Yeah, you know, this is a way that you can address that.

Michael 26:32
Right.

Lee 26:33
So I’m glad I’m glad at least you’re sitting next to Bianca during that so well Michael, thank you so much for coming and telling us about your wonderful son. Jalen. Thank you and I hope your healing path is one that you were able to embrace and come to follow you.

Michael 26:55
Thank you.

Transcribed by https://otter.ai

Filed Under: early term stillbirth, stillbirth Tagged With: stillbirth

Mom Bianca’s Stillbirth Story of Jalen During The COVID Pandemic at 20 Weeks

February 1, 2022 by Winter

Mom Bianca tells of her pregnancy with her 3rd child, Jalen Jeremiah, and complications with her cervix, which led her medical provider putting in a cerclage around 20 weeks. Some of the stitches had come out, causing Bianca a lot of pain and the beginning of labor. Jalen did not survive the birth and was stillborn on February 2021, likely due to the umbilical cord around his neck. Her pregnancy, Jalen’s birth, and funeral were all during the time of the COVID pandemic.

Watch here (YouTube):

Listen here (podcast):

Time Stamps:

  • 0:00 Jalen Jeremiah
  • 1:54 Introduction
  • 4:30 Pregnancy
  • 7:29 Cervix Funneling
  • 8:45 Cerclage
  • 11:16 Emergency
  • 15:27 ER
  • 21:28 Birth
  • 32:10 Funeral
  • 35:06 His name
  • 41:55 Going home
  • 44:27 Support group
  • 48:02 Momentums

You might appreciate these other episodes:

  • Watch/listen Michael’s (Bianca’s husband) birth episode of son Jalen: Click here
  • Watch/listen to Bianca’s and Michael’s advice episode after Jalen’s death: Click here

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  • DONATE! Consider giving a one-time or recurring donation to help with production and hosting costs: Go here for more information.
  • SUBSCRIBE! Head over here to subscribe to our YouTube channel and our podcasts.
  • SHARE! Spread the word to a loss mom or dad, or those who may be supporting a bereaved parent. Send them a link to this post. Pin one of our graphics on Pinterest.

Full Transcription:

Bianca  0:00  

Jalen Jeremiah. 

Bianca  0:02  

I remember, he was so perfect. He had a little tiny button nose, 10 toes, 10 fingers. I remember holding him in my arms and just smelling him. He was just so tiny and little. I felt his cheeks and it was so soft and velvety. That Sunday that I had him. I remember, it was a very cold day, and it looked like it was going to rain. I remember getting to the hospital, anxious, very anxious, not knowing the outcome of the situation and how bad everything had turned. But I just remember holding him and he was just so perfect. He was just like my son, just a tinier version of my son. He resembled Michael a lot. He had his exact feet, the same toes. He was just so little and just amazing.

Winter  1:13  

Welcome to Still  A Part of Us a place where moms and dads share the story of their child who was stillborn, or who died in infancy. I’m winter.

Lee  1:20  

And I’m Lee, we are grateful you joined us today. Please note that this is a story of loss and has triggers

Winter  1:25  

Thanks to our loss parents who are willing to be vulnerable

Lee  1:28  

and share their children with us. If you’re listening to this podcast, just know that on our YouTube channel, there are pictures and videos that are related to the stories that are being shared.

Winter  1:37  

Subscribe and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us. They’re still a part of us. 

Winter  1:54  

Bianca, thank you so much for coming on the podcast today. I am just so impressed with you right now. Your strength and your willingness to share Jalen with us today. So thank you for coming on. Can you tell us a little bit about yourself, who you are, where you’re kind of located at least in the country and what you do on a day to day basis?

Bianca  2:16  

Yeah, so I am a medical claims analyst. I live in Massachusetts. I have two children. I have an 11 year old daughter Cynthia, and a six year old son named Josiah and they are wonderful children. They were looking very forward to being you know, big brother, big sister. We were just wanting to expand our family and grow and you know, become closer to one another.

Winter  2:47  

And anything you guys like to do in your spare time as a family, or as yourself, what kind of hobbies do you have?

Bianca  2:52  

I like gardening as a family, or we tend to go on road trips. We do a lot of road trips every year to go somewhere new. So we do that together. We enjoy watching movies together and just going out and enjoying each other’s company.

Winter  3:10  

That sounds so fun. That’s wonderful. And your husband is Michael is that right? 

Bianca  3:15  

Yes.

Winter  3:16  

How long have you guys been together? 

Bianca  3:18  

We’ve been together for 14 years. 

Winter  3:20  

That is awesome. 

Bianca  3:21  

We’ve been together since we were 14. 

Winter  3:25  

Yeah, that is awesome. So you guys were junior high school sweethearts.

Bianca  3:30  

Yeah pretty much. 

Winter  3:33  

That’s awesome. That’s wonderful. Well, and what area are you guys living in? Oh, did you guys already answer that? You guys probably answered that didn’t you?

Bianca  3:45  

Yeah, so we live in Massachusetts. Not too far from Boston.

Winter  3:49  

Awesome. Okay. And you guys have lived there in that area most of the time you’ve been together? 

Bianca  3:56  

Yes. We both grew up here. 

Winter  3:58  

Okay, wonderful. And so as to give a little bit of context for our listeners. Can you tell us how long ago Jalen was born?

Bianca  4:09  

So Jalen was born Monday, February 1 of 2021. So a little over a month ago.

Winter  4:15  

Yeah, it is so new for you guys. So I thank you so much for coming on today. Tell me… so you’ve told us you have two other kids and how did this particular pregnancy go compared to your other pregnancies that you’ve had?

Bianca  4:30  

This pregnancy was by far the best pregnancy I’ve ever had. 

Winter  4:36  

Really? 

Bianca  4:37  

Yes, I’ve had no complications at all. No morning sickness. It was just, like, amazing. With my other two children. It was very complicated. I was sick all the time. I want to say like all three trimesters. I was very sick. I couldn’t really keep anything down. But this pregnancy was just different. I was able to eat. I was so happy. It was amazing. Like, I really didn’t think this would be my outcome based on how amazing this pregnancy was to me. Yeah, he was a very good baby. I didn’t have any type of aversions, food aversions, anything like that.

Winter  5:24  

So really good pregnancy, oh man. Were you guys planning on having Jalen then? Was that like a planned pregnancy? 

Bianca  5:33  

Yes, he was. 

Winter  5:34  

Okay. So and No. Did you guys have any issues getting pregnant? Or was it pretty? standard?

Bianca  5:40  

Um, yeah. So we actually became pregnant after two months of trying. I was on birth control. Then we decided to come off. Two months after I came off, I got pregnant with him. We had a positive on September the 28th.

Winter  5:58  

Oh, wow. That’s awesome. So you, so no issues and it was kind of one of those things where it just kind of worked out right?

Bianca  6:06  

It did. Yes. 

Winter  6:07  

Yeah. That is, that’s so frustrating when you’re like, this is not what I was expecting it to be though. So, tell me a little bit about how things progressed then. You guys found out in September of 2020 that you were pregnant and everything was going really well with the pregnancy sounds like you were quite comfortable and excited. Your kids were excited. You guys were excited. So that’s wonderful. All of the medical checkups and everything, how did those go with it? Was there any sort of indication that anything was an issue?

Bianca  6:44  

No, so everything was fine. All my appointments were perfect. I have my appointments, my checkups, the baby was growing, and very healthy. Everything with me was fine. I was feeling good. It was up until my 20 week anatomy scan. Actually it was before my 20 week anatomy scan. So I ended up going to the hospital for a checkup the day after Christmas. They want to see me every two weeks because of my history with both my two previous pregnancies. My son was a preemie and he was born at 32 weeks. 

Winter  7:29  

Okay. 

Bianca  7:29  

And so they were concerned as to whether or not I would go into labor early this pregnancy. So they wanted to monitor that very closely ahead of time, so that they would be able to detect once my cervix started to dilate. So I was going in for my checkups every two weeks. I went on January 12th. For that was the beginning of that two week period, they wanted me to start going.

When I went to that appointment, they did a cervical scan, basically to see if my cervix started to dilate at all. And they checked the baby and he was fine growing healthy. At that appointment, everything was fine. When I was there. Two days later, I got a phone call from my midwife and she said that she’d noticed my cervix had started to funnel. So I really wasn’t sure what that had meant. But she basically said that if you look at a funnel, the way that a funnel is shaped is how it has a narrow end. Then the top of my cervix basically the baby was starting to push down. 

Winter  8:45  

Okay.

Bianca  8:45  

So eventually my cervix would start to open. She noticed that it began to funnel and they wanted to go over my options on whether or not I wanted to take progesterone shots, or if I wanted to get a cerclage put in place. Basically what this cerclage does is it’s like a stitch that stretches your cervix shut. Then it’s supposed to prevent preterm labor. I had told her that I wanted to talk to my husband and I had an appointment coming up two weeks later for January the 26th. I wanted to, you know, think about it and then let her know at that appointment whether or not I wanted to do either the cerclage or the progesterone shots. 

Bianca  9:34  

At that appointment on the 26th I had my anatomy scan. So they did the anatomy scan. They checked the baby and everything first, and he was fine. I actually got some ultrasound pictures where he was actually smiling. 

Winter  9:50  

Oh, oh, that is wonderful. 

Bianca  9:52  

Yeah. So that made me happy. Then she checked my cervix and I remember her pushing on my stomach. I can see because I have the screen in front of me and she was pushing on my stomach. As she was pushing, I saw something like an opening, every time she would push, I would see an opening. So I was like, “Is that my cervix?” And she said, “Yeah, you see that?” And I’m like, “yeah, that’s really weird.”  It was opening really big. So I got scared. She had stepped out and said she was gonna go get one of the high risk doctors to come in.

She had left. And at that point, I didn’t think anything of it because I’m like, the baby was fine. His heart rate was good and he was moving around. He was doing everything he was supposed to be doing for his gestational age. 

Winter  10:42  

Right.

Bianca  10:44  

The doctor had come in and they told me at that point, I needed to go over to the hospital to get an emergency cerclage put in because I was beginning to dilate and eventually he would come. I was nervous about that. I remember calling Michael. Michael was at work that day. I was like, I don’t want to do surgery. I went over to the hospital. They didn’t actually do it that day. They ended up scheduling it for two days later. I had the surgery done on the 28th of January, which was a Thursday

Winter  11:14  

Okay.

Bianca  11:16  

That Thursday, I went to the hospital, they put me to sleep, I was under general anesthesia. I remember the doctor that I had, it was just not a good experience. I felt like the communication was very off. So I had a ton of questions. I felt like my questions weren’t really being answered as they should have. 

Winter  11:39  

Yeah. 

Bianca  11:40  

At the time, Michael wasn’t able to come in because of COVID, I had to go for myself. So I got dropped off to the hospital. I remember just being frightened and I had questions. I felt like my questions weren’t really being answered. So they gave me the IV and I was getting wheeled into the operating room. I remember, they were telling me that I would fall asleep soon, because the drugs that they were giving me were supposed to make me go to sleep for the procedure.

I remember the doctor saying, “Oh my gosh, Bianca, this is going to be very risky.” And I was trying to get my words out to ask what’s going on, but I felt myself going to sleep because they had given me the medication already. I remember waking up in the recovery room, and I was like, is my baby, okay? They were like, yeah, the baby’s okay. It was very risky, because the membranes were beginning to come down and to my vagina. They had to basically push it back up and stitch it. It was risky, because during the process, there was a potential risk that he would break my water by accident. So luckily, everything was fine. Surgery and everything was a success. 

Bianca  13:01  

I waited at the hospital for a couple hours until I was able to recover. Then my mom came to the hospital to pick me up and brought me home. That was on a Thursday, so the Friday I remember being in so much pain, because of the surgery. So I thought, Oh, okay. I thought it was because of the surgery, I was bleeding, which they said would be normal because they tampered with my cervix. They said that the pain was normal because you know, they were messing with my cervix as well.

I remember saying to my girl, “I’m in so much pain, I’m cramping.” I had my previous son naturally, so I knew what the contractions felt like and it very much felt like contractions to me. I remember calling the doctor and I was explaining what I was feeling. They were telling me “Oh, no, that’s normal. Just take a Tylenol, you’ll be fine.” I had a checkup that Tuesday. So I was just like, okay, and I ignored taking the Tylenol. 

Bianca  14:12  

Saturday came and I’m just like, I don’t feel right. I had called the Doctor again and they have prescribed some type of medication that’s supposed to stop the contractions that I was having. I remember reading the back of the medication and I was like this says not safe to take in pregnancy. I was iffy about taking that. I was very iffy and my doctor reassured me that it was completely safe. He said he gave me a low dose and that it would help with the contractions that I was experiencing. I took the medication even though I had doubts from the beginning about taking it. 

Bianca  14:54  

I took that and then Sunday, everything just went downhill. My contractions were more intense, I started to feel a lot of pressure. I remember saying to Michael, “Should I go back to the ER and get evaluated.” And he was like, “Make sure you call your doctor first and see what the doctor says. I remember calling the doctor, this was the same doctor that did the surgery. He was just like, “Oh, I don’t think anything is wrong. But you can come in and we can evaluate you and see what’s going on.”

Bianca  15:27  

So I remember going and I had to go by myself again, because of COVID and I had got there and I could barely walk. It was so intense that I could barely even stand up straight and walk because the pain kept coming very intense, very strong and quickly. So they checked me in and I remember going to the back you know, where they called you in to assess you and all that. Then the nurse was talking to me, and she was asking what type of pain I was feeling. She wanted me to change into a Johnny and sit down on the stretcher that they had there. I remember telling her, “I can’t even take my clothes off. I’m in so much pain, I can’t even take anything off.”

She helped me and I remember another nurse came in and they were going to do a speculum exam, just to see what was happening. They did that. I remember usually speculum exams her a lot for me. I remember they put the speculum, but it was barely in. They both looked at each other. Then they said that they had to call a doctor. I was very scared. I had turned to the nurse. I was like, “Is everything okay? “And she was like, “Well, the stitches came out and your water stack is right here. Like it’s right there.” I’m like, “No, like, it can’t be there.” I was only 20 weeks and six days that Sunday, I was gonna be 21 weeks, the following day. I was just like, “No, this can’t be.” So I was like, “Can you please call my husband?” So she was like, “Yep, you’re going to be admitted.”

Bianca  17:15  

The doctor came down and the doctor was very blunt. He came to the room and he said, “You’re 20 weeks and six days, we’re gonna have to admit you and get this baby delivered, there’s going to be zero to little chance of survival for him because of his gestational age.” I remember saying to him, “Please hold, please just wait.” And I’m like, “Even if he comes this early, is there any way that the NICU you can, like, you know, help him out? Or like even get involved?” He said “No, because babies that little don’t have a chance of survival and the NICU you will not step in until a baby is at least 22 weeks.”

Even though he told me all that I remember just being there and I was in a state of shock. This can’t be my life right now. Like, there’s no way I didn’t want to believe it. For some reason, I had some hope that what he was saying was wrong. 

Bianca  18:19  

I remember the nurse had come back and she’s like ,”We called your husband, he’ll be on his way.” I remember Michael sent me a text and he was like, what’s going on, and I just couldn’t even respond to him because I didn’t know myself. I, for some reason, was just completely numb. I was completely numb to the situation. I just didn’t want to believe it. So, after that they brought me upstairs Michael came and the doctor was explaining to Michael everything that was going on. I felt very alone at that moment. I felt very defeated.

Bianca  19:04  

I went upstairs, and I got admitted. Everything just happened so quickly. This was like on a Sunday afternoon as well. Everything just happened so quickly. They first had to take the stitches out before I could deliver because they didn’t want it to interfere with the labor process. I remember, I didn’t want an epidural. I didn’t want to take any drugs either. I wanted to feel everything. You know what I mean? Like because I wanted to remember him and I didn’t want to be completely numb.

I knew at that moment I was emotionally numb, but I didn’t want to be completely numb to the situation. They took the stitches out and that was a very painful process for me. Took about 20 minutes. For some reason my water was still intact. I was so hopeful that maybe they can take the stitches out and I can be on bedrest, you know, like, maybe they can keep me in the hospital and I can stay here. Everything can work out, maybe I can get to 22 weeks or they can possibly save him. 

Winter  20:19  

Yeah. Did the doctors give you any sort of.. it was.. there was no hope. They basically said there was nothing to do.

Bianca  20:29  

I felt like they pretty much just wrote him off. At that moment. From the time I was in the ER, I felt like they pretty much just wrote him off like, she’s going to deliver and that’s going to be it. I don’t feel like they’ve done everything they could have. I felt like the doctor that I had was very harsh. When he was taking the stitches out, I wanted him to be careful, because I knew that my water was right there. Like the bag was right there. He was just so rough.

I remember, he put like an awesome object that looked like a hook to pull a stitch out. I just remember this warm sensation falling down my leg and I’m like, “Did you break my water? Did it break?” Everybody in the room just got quiet and I just started bawling. 

Bianca  21:28  

After that, they gave me some medication to get my labor to start to progress. I delivered Jalen on that Monday morning at 1:13 in the morning. Labor was very intense, very much real and painful. I had no desire to push because I just wanted to be pregnant for as long as I could be pregnant. I wanted to stay pregnant for as long as I could. I remember having this nurse by my side. She was very amazing. She was like an angel sent from above like she stood by my side the whole time. She rubbed my back, she laughed with me and cried with me. She was just so amazing and made the process and my experience so much more special. Not once did she leave me at all and I just felt like she was like a mom to me at that moment.

I remember pushing him out and I was on all fours. It was so difficult for me. I had no desire to push because I wanted him to stay in. I felt like he was safe there. He was safe with me and then once he came out it would just be over with and that’s the part that I struggle with the most. I remember him coming out and I took that last and final push. He came out and the room was quiet. I couldn’t see him because again I was on all fours and I remember turning to the nurse, “I was like is my baby okay?” She looked at me and she said “He has no clothes.”

Bianca  23:47  

I turned around and sat down. She wrapped him in a blanket and handed him to me. He was so perfect. I remember giving him a kiss on his cheek and telling him how much I loved him and how I was sorry because I felt like my body failed him. I had so many plans for him. I was prepared. It hurts me so bad because I will never get to see his eyes, I will never get to hear his cry, or feel his little fingers wrapped around my finger at all. The worst experience was of course the labor, but saying my goodbyes to him at a hospital and leaving him there knowing that I was going home and not being able to take him with me. Being on a labor and delivery Ward with other pregnant women, you know, they get to see their babies and I leave mine behind.

Bianca  25:20  

He did have a little bruising on the left side of his cheek. They did say that it was because the umbilical cord was wrapped around his neck. 

Winter  25:31  

Oh, really? 

Bianca  25:33  

Yeah. And so once my water had broken, with every contraction that I was having, and one stroke to get tighter around his neck. I feel like I just let him down like my body failed. This is like a meeting that we both wanted. We both agreed that we both were so happy about it. The kids are so happy to have him and then having to explain that he’s not going to be here anymore really broke me down. Especially with my six year old having to explain to a six year old that was so excited that he was going to help a brother that he’s not going to physically be here with us was hard to explain.

Bianca  26:32  

Shortly after I delivered him. We decided to go home that day. It was a very bad snowstorm. I didn’t want to stay in the hospital. They did say I can stay for two days. I remember saying “No, I don’t want to stay here anymore. I just have to leave.” I kept seeing pregnant women, I kept hearing babies crying in the hall and I just wanted to leave. 

Bianca  27:06  

They did ask me how I wanted everything to go in terms of Jalen and I told them that I would reach out to a funeral home because I did want to have a service for him. Um, the hospital said that they do a program basically where they would dispose of his body. They would dedicate a plaque in our cemetery nearby. At that moment, I was just like, you know what I don’t want to… I didn’t want to do that. I wanted to be in charge of what I did with him with his body. You know, I don’t feel like we were going to stay in Massachusetts much longer. We plan on relocating soon. I would feel so guilty of not being able to, you know, have his remains with us and having him here in a cemetery where I wouldn’t be able to visit and I just felt very terrible about it. 

Bianca  28:14  

We both agreed to get a funeral home that we both were familiar with. They picked him up from the hospital. We ended up getting him cremated and we have his ashes and an urn in our room that we keep close to us. We created a memory table for him. It was like his pictures around and his Teddy bear that he was holding at the hospital. We have his blanket. We created a Memory Box for him with a pregnancy test and first ultrasound pictures of his blankets, his teddy bears that you know the blanket he was wrapped in and the teddy bear he was holding and the first outfit that we both bought for him. We have a lot of pictures that we took in the hospital that we’re able to look back on. I ended up getting those printed out and put that in his memory box. I’m so grateful that the nurse offered to do a little photoshoot for him. 

Winter  29:29  

Oh wonderful.

Bianca  29:30  

Yeah, she was able to get professional pictures done for us that we have to look back on. She got him dressed up. She put on this really cute outfit on him. It was like a little baby blue shirt and she wrapped him up in a little Winnie the Pooh blanket where he had a baby blue knitted hat on to fit him because he was so tiny. He was 10 and a half inches long and he was 11.5 ounces. Very tiny, I was able to hold him in my hand. He was so tiny.

I was just grateful to have those pictures to look back on. You know, I really encourage pictures. Taking pictures, because at that moment, I didn’t want to take pictures, but I’m glad that we did. Because now, we have pictures of the three of us. It’s something that I cherish and look at every day. We had a funeral service, and the kids were able to see him for the first time there. They weren’t able to finally process it. Seeing him physically. 

Winter  30:52  

Did you end up calling or letting your kids know what was happening when you guys were at the hospital? Is that what happened?

Bianca  31:00  

Yeah, so Michael ended up calling my daughter. She kind of knew when I had left to go to the ER, the night before. She knew something was wrong. When she noticed that Michael had to leave out. He had to end up bringing the kids to my mom’s house and said that he had to go to the hospital with me, told her that and she knew she was texting me with “Everything, okay? I wasn’t responding, because I didn’t want to worry her. He let her know that this is what’s happening and the baby is not going to make it. She at that moment had broken down which broke me down even more. My son just didn’t understand. 

Winter  31:55  

Yeah at the funeral, so they got to meet him? Was it just your family? Did any of your other immediate– like your mom, was she able to come and see him and meet him?

Bianca  32:10  

Yep. So we had a more intimate service. It was just like, immediate family and some friends. Yeah, really close friends. Michael had two friends and I had my two close friends. They did it where they had us come like an hour earlier. So me, Mike and the kids. We had our time, our one on one time where we, you know, can have the kids process everything and see him and ask any questions they needed to ask.

Winter  32:52  

How did they take it?

Bianca  32:54  

My daughter was very hurt. My son was upset. I remember he had said, “You guys promised I would have a brother.” That was hard to explain to him like you still have a brother. He’s just not here. He has to be with God now and Heaven and he’s watching over us. He didn’t understand that concept. He didn’t understand why he had to go. And it was hard for me to explain to him why he had to go as well. I still struggle with that till this day. You know, he goes up to his urn, and he’ll talk to the urn, and help pick it up. And I’m like, “Hey, put that down.” So what I did was I went out to build a bear, and I ended up getting them a teddy bear for both of them. One has his heartbeat from the ultrasound in the arm and so we had a ton of clothes that we had purchased.

We were preparing, buying things little by little. I remember putting Jalen onesie on the teddy bear. And so he’ll go and he’ll push the teddy bear and hear the heartbeat and it plays a song, which is a song that we played at the funeral. He’ll go, he’ll hug it, he’ll play it and every now and again he’ll shed a tear and he’ll say, “I miss Jalen”, and I’m like, Yeah, I miss him too. It’s very hard. He has his days where one day he’s fine. And then the next day he’s breaking down my daughter as well. She has her days or some days it’s easy for her and some days. She’s hugging her teddy bear and looking at his pictures. 

Winter  34:50  

It’s so hard for the siblings. It’s yeah, yeah. Can you tell me why you guys named him? Jalen is that a family name is that I? Is that just a name you guys have really liked?

Michael  35:06  

We were throwing, what seemed like 1000 names out. We probably said about 1000 names 999 were getting swatted by each other? 

Winter  35:18  

That’s what always happens. 

Michael  35:19  

Yeah, so I guess Jalen came up and we both we’ve finally agreed and we stopped that that because if not, we were just-

Bianca  35:30  

So just read I really like the name Jeremiah. 

Winter  35:35  

Hmmmh

Bianca  35:35  

Which is his middle name because my daughter’s name is Sanya. My son is Josiah and then Jeremiah, you get the ring. 

Winter  35:42  

Oh, there’s definitely that either, and I like it.

Bianca  35:47  

So I love the name Jeremiah. Josiah is also a biblical name and so is Jeremiah. So I really wanted to keep back on as well as Michael. So I’m like, look at we’ll have all the boys in the house have a biblical name. Michael’s like, “I just don’t like that for a first name.” So first he mentioned Jaden, and I’m like, I don’t like Jaden too much because we have family members named Jaden. So I was like, what about Jalen, and so my mom’s name is Juliene and so she was like, yeah, Jalen, that’s perfect. She’s like, yes. So we ended up naming him Jalen Jeremiah and we both agreed to that. 

Winter  36:35  

It’s got a nice rhythm.It’s got a nice rhythm to it. I really like it a lot. 

Bianca  36:43  

Thank you. 

Winter  36:45  

So you guys have a nice little kind of a memory wall. A Memory Box for Jalen. Is there anything that you guys, what other things that you did during the delivery and even at the internment? Is there anything that you wanted to do? That was really special that you wanted to kind of remember him by? It sounded like you guys had a special song that you played for him too. During the funeral? 

Bianca  37:12  

Yeah, so we played Surrender by I think her name is Natalie. Um, so we played that song and it’s a really heartfelt song. My sister created a slideshow for us that we played at the funeral as well. So it was like, the moment we found out we were pregnant with the pregnancy test. We got those on camera. We were able to throw in his first ultrasound where they confirmed that, you know, there was a little Bean that was his nickname. We all called him Bean. Our announcement photo, we announced our pregnancy on Christmas Day. 

Winter  38:01  

Oh, fun. 

Bianca  38:03  

Yeah, so that was exciting. For us, everyone found out on Christmas Day, and I couldn’t hide it anymore at that point. It was like either I told them on Christmas Day, or they’re gonna just wonder what’s going on because my stomach was starting to poke out too much. Usually, like Valentine’s Day, He was born in February, the first and Valentine’s Day came. So what we did was go out and we bought a card. It was like a card for a loved one that’s far away. I bought him a card and wrote everything I was feeling at that moment in the card for him. I think I want to keep that going on holidays, like, include him and stuff like that, and continue to talk about him and, you know, plan for different milestones that he would have reached with our due date coming up.

I know it’s gonna be very challenging for us, but I want to do something in remembrance of him on that day. Whether it’s to go out and do something in memory of him or do a balloon release. I know at the end of the funeral, we went up to the park close by our house and we all let go–We wrote on a balloon, wrote him a message and we said a balloon release and let it go for him. 

Winter  39:31  

That’s awesome. That’s, that’s so that’s a fun thing to do. Yeah, send a message. Right.

Bianca  39:40  

I think he sends us a lot of messages too, because I, I don’t really I can almost feel his presence with me. After I gave birth, I still feel like I’m pregnant. Like even sometimes I’ll sit here and I feel like I can still feel him kicking. It’s so weird to me because it’s like I’ll look at Michael I’m like, I feel pregnant. Like, I feel like he’s here. My stomach, I can feel him moving like, it’s, it’s the weirdest thing. I remember one day I was crying. And I just wanted him, you know, just couldn’t understand why I wanted him here so bad. My TV just shut off, or I’ll come across like a name. I’ll be working because I work from home and I’ll come across a name of a patient and it’s Jalen, and it’s just like, my baby is trying to like, talk to me. Let me know that he’s okay. 

Winter  40:42  

Yeah. Like, you know, he shows up every so often.

Bianca  40:48  

Yeah, I feel like he’s trying to let me know. It’s so weird. I do. I do try to like, talk about him. I feel like it helps me a lot to like, continue to talk about him and share his story. I just wish that some days, I wish I could have had the chance to tell them how much I loved him and how much he was wanted and how much we all needed him. Especially me. I felt like I really needed him at this moment in my life. I wanted him more than anything. If I could have done anything to save him, I would have without a doubt. The moment I hit my second trimester, it was on game like I started going shopping. We had Michael put his crib up. We got the stroller, the car seat, the clothes, everything, we got everything but diapers and formula. So that was hard. That was very hard. 

Winter  41:54  

Yeah. 

Bianca  41:55  

I remember the day that I ended up leaving the hospital. I said to Michael, can you get somebody over the house and take that crib down and take the car seat and take the stroller and just get it out cause we had his nursery set up. I didn’t think I could come back home to that all being there. So I ended up getting dropped off at my grandparents house. Michael had called somebody and they took the crib out. We ended up donating it to a women’s shelter. I just kept his clothes. The only thing I did keep was his clothes. I haven’t gotten the courage just yet to get rid of any of his clothes. They’re all still packed away in his drawer.

As far as everything else, we got rid of all the big stuff that I just wanted it to go because I didn’t think I had the courage to walk into his room and see all that stuff there knowing that he wouldn’t be here with us and he wouldn’t be using any of this. It was his stuff. It just broke me down to even think about going home and all his stuff was set up and ready for him it tore me apart. So I did tell Michael to take that down. But the dresser with his clothes in it. Leave the dresser, everything else you can take, the stroller and the car seat. We didn’t throw away the box. So we were able to take that back. I just wanted it gone.

Yeah, I still have his clothes that I plan on keeping until it’s the right time. I don’t think it’ll ever be the right time, but it gives me comfort, being able to look at them. And you know, it gives me something that we bought for him. So I don’t really feel comfortable just giving it away just yet.

Winter  43:54  

Yeah. And you, you should hold on to it as long as you need to. Because you know what you might need your kids might need to dress up their Build a Bears in a onesie or two. So yeah. Now is there anything else you would like to tell me about his birth or anything that you want to remember about him?

Bianca  44:18  

Oh, yeah, so the hospital has a program, or like a support group called empty arms. 

Winter  44:26  

Mm hmm. 

Bianca  44:27  

They reached out to the organizer of the program. And I remember while I was in the hospital, she reached out to me and I remember just looking at my phone and I’m like, I don’t want to talk to anybody right now. I can’t explain anything about what just happened. I don’t even want to talk about any of this right now. So I ignored her for a couple of days. And she kept reaching out and eventually I opened up and I let her in. And she has some volunteers that go to the hospital. They’ll do things for the baby, which I’m so grateful for.

They were able to make us castings of Jalen’s hands and his feet. I do have that with his footprints and his hands to look at and have like a visual. That helped me a lot in this grieving process, every now and again, I’ll go in that box, and I’ll pull out the casting, then I’ll like, rub his feet and just look at them and look at his little toes and his hand, they were balled in a little fist. I just look at those. I’m just grateful that I had that and that support group. They do have meetings where I’m able to, like, have virtual meetings with other moms that went through the same thing. We’re able to share our experiences. I feel like it helps a lot to know that you’re not alone in the situation.

Before this happened to me, I never really thought about this like until it happened. Like, I knew this kind of stuff happened. But I didn’t know it happened like this, or, you know, like, I hear other stories and stuff. It’s just like, wow, it’s so yeah, the emotions are so raw and so real. I’ve had other losses in my life, but nothing compared to this type of loss. This type of loss was something that I felt like, it hit me deep down. Like, I know, every loss is painful. But this type of loss was something that was just I felt like I lost a part of myself, the day that I lost Jalen. And I don’t feel like I will ever be that Bianca, that I was in September 2020.

When I found out I was pregnant, I will never be that person again. The day that I lost him, I lost myself. Like he took a part of me with him. I feel like that’s the saddest part because I really, I had so much hope for him. I just, I plan for everything when you lose a baby, not only plan for the baby, but you plan for their future you plan for, you know, their first solid food and the first walks and all that. I won’t get to experience any of that with him.

Winter  47:58  

Yeah, it is. It’s devastating.

Bianca  48:02  

But yeah, it was definitely grateful to have the momentums that I did get for him and the pictures that I do have, that I cherish every day and you know, trying to carry on his memory and by creating that memory table, and we both have necklaces, in remembrance of him. And so we wear this every day. I haven’t taken this off at all.

Winter  48:33  

Yep, I know what you’re talking about, that’s what you do. 

Bianca  48:39  

Yeah, so I think that’s my little bean. 

Winter  48:43  

I love that. I love that. Thank you so much for sharing his birth story with me today. I know it’s not an easy task to do that, but I hope that it has helped your heart and I hope it has. Well you’ll have this memory of it with you so, so thank you again, thank you again, Bianca, for coming on today. We will talk to you soon. 

Bianca  49:10  

Thank you, thanks for having us.

Transcribed by https://otter.ai

Filed Under: birth story, early term stillbirth, podcast episode, stillbirth Tagged With: stillbirth

32: Dad Scott advises how to talk to parents who have lost a child

March 15, 2020 by Winter

After his daughter Henley is stillborn, dad Scott tells us of things that he doesn’t like people to say to him about his daughter and tells of how much he appreciates it when people say her name and acknowledge that she was a person.

Scott and Meghan: Fans of Disneyland

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission. This commission comes at no additional cost to you, our wonderful listener!

In the Advice podcast episode, dad Scott talks his life after losing his daughter Henley to stillbirth:

  • Time Stamp 1:58: Finding a support group was especially helpful and it doesn’t need to be a grief support group even
  • Time Stamp 8:57: What you shouldn’t say to a loss parent
  • Time Stamp 9:57: What you can say instead
  • Listen to Scott’s birth story of Henley who was stillborn here in Episode 31.
  • Listen to Scott’s wife, Meghan’s birth story of Henley here in Episode 29.
  • Listen to Scott’s wife, Meghan’s advice of dealing with grief after Henley’s stillbirth here in Episode 30.
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  • Spotify

Full Transcript

Lee 0:10
This is Still A Part of Us, a podcast where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Lee Redd, and on this episode of Advice and Encouragement from a Loss Dad, I chat with Scott, whose daughter Henley was stillborn at 36 weeks.

By the way, you can hear Scott and his wife’s episodes about the birth of their child on episode 29 and 31. Today, Scott and I talked about how he has a special doll that he bought for Henley, when they first found out that they were pregnant and how that holds a special place in his heart for his daughter. We talk about strategies that we can implement in our own personal lives, on how we can talk with people who have experienced loss.

As a word of caution to our listeners, this discussion contains emotional triggers of stillbirth and infant loss. Please keep yourself emotionally and mentally healthy and seek help if needed. Hope this helps somebody out there.

And we’re back with Scott, and he’s going to be talking about his daughter. Scott, give us a little recap.

Scott 1:25
Alright. Hi, I’m Scott. My daughter’s name is Henley. With what happened everything: she was 36 weeks. My wife was 36 weeks pregnant, and she was stillborn.

Lee 1:36
And now we’re going to be talking about advice. And I personally don’t like to call it advice. It is advice. It’s, it’s stuff that has helped you, that you would like to pass on to other fathers and other parents. What has been something that you have greatly appreciated that somebody has done for you or that you would like to pass on to somebody else?

Scott 1:58
Okay, one thing that really, really helped me out was the support group I have here with friends. And they, they really, some of them have had the same situation happen, or they’ve had some type of loss with a child, but they were able to help me out with talking with them. But also just kind of staying busy for me, and helping support my wife. I really threw myself into work, which sometimes is not always the healthiest, but I do that, and then I come home, I talk with my wife, with my friends. And I found hobbies have also been very helpful. We started a Disneyland social club and go to Disney. And we had a great time doing that, and meet a lot of really fun, interesting people, same exact things that they’re into. Yeah.

Lee 2:55
And with the social club, is it open to anybody or you sort of more select or…?

Scott 3:01
It is open to everybody. Anybody that would be interested in joining, it is a lot easier to join a social club than it is to make one, we’ve learned. It’s also very expensive to make one. But yeah, it’s open to anybody. It is preferable for somebody with an annual pass, just that way they can come more than once a year to do meetups and hang out with everybody. But really there’s…anybody can join. The president or the vice president I had that was with me, I still consider her my vice president, but she moved to Florida, and now she is the president of the Disney World chapter of our social club.

But yeah, it’s it’s really easy to join. If you wanted to look into joining our group, we have a…kind of like a scavenger hunt, a Disney scavenger hunt kind of thing to do. And it’s super simple. It’s usually like take pictures in front of, of all the mountains of the park, like Space Mountain, Magic–or Space Mountain, Splash Mountain, Matterhorn, Thunder Mountain. And then there’s a take pictures with certain characters, get pictures of certain scenery. And then we also do, I got this from another club, but four acts of kindness. So it could be as simple as just yousee a piece of trash and pick it up. Or you see a child who’s crying, and so you give them these little Disney pins that people buy and trade and stuff like that. Just give them a little pin just to make them happy, make their day a little better, or a way to make those parents of the child, their day a little easier. Because Disney with a little kid is usually not as fun as most people think. It’s pretty stressful, trying to make sure that they’re happy and entertained, and all that stuff. So little things.

Lee 4:44
Now, have you found with your social club with such a–I’m assuming it’s sort of a diverse group of people–are you able to share your personal like, do some of the people in your club know about Henley or is it–?

Scott 5:00
Everybody in my, everybody in my club knows, but several other social clubs–there’s hundreds of them–they know too. We all follow each other on Instagram and stuff. And we posted up. First we posted up that we were pregnant, and everybody was super happy and all that stuff like that. And then later on, we had to post what happened and to show what happened, we, my wife and I, we each had tattoos done on our arm. And we posted the pictures of our tattoos to show what happened and everything. And it’s been nothing but love. People coming up to us, hugging us, sending us messages. Some people have come up to us and they started telling us their stories, which has been fantastic. And it’s basically like there’s a larger club within all of these other clubs now, that people are more talking about now than they used to. They used to just be like, Oh, let’s all hang out. Let’s meet up. Let’s go ride this ride together. And now it’s–now people are getting to some different discussions going on.

Lee 6:02
It’s wonderful that there is that support group that you established and that has come around you.

Scott 6:08
And it’s also, it’s also fun because of Disney I mean.

Lee 6:11
Yeah. The happiest place on earth. Is that their…?

Scott 6:17
Supposed to be the the happiest place on earth, yes.

Lee 6:19
Supposed to be. That’s a good point.

Scott 6:21
Yeah, like I said, there’s some kids that not-so-happy, going around there.

Lee 6:25
Our five-year old, it’s not, at naptime, it’s not happiest time or the happiest place…

Scott 6:30
That or you didn’t buy them a lollipop they wanted or the churro…

Lee 6:34
Just never tell your kid that it’s an option. “Hey, where did those kids get those?” “I don’t know. I don’t know. Let’s go.”

Scott 6:42
“Maybe Mickey Mouse saw them and it was just a prize. They picked up a bunch of trash. Maybe you should try that.”

Lee 6:46
Oh hey, that’s a good way to get it. Was there any other advice that you’d like to…?

Scott 6:52
My main advice that I know my wife also touched on too, is doctors don’t tell everybody to look out for increased and erratic movement. I mean, if that’s something that we would have known, we could have had a completely different outlook. If we would have known that Henley’s kicking and tossing the night before could have been a sign of distress, and we could have gone to the hospital. Itt could have a different outcome. And doctors just don’t say that. They always tell people, Hey, do your kick counts. Make sure that…it’s not decrease movement. They just don’t tell you. So and if anybody listening, and that helps just one person, one family, I mean that’s, that’s really what matters, at least in my eyes.

Lee 7:39
Yeah, it was it’s–I’m not a medical person. And Scott, I’m pretty sure–we’ve been talking about what you do and–but it is one of those like, we didn’t know a lot of what was going on, as well. And I don’t blame any of our medical personnel, but it’s one of those situations where sometimes knowledge is power. And you know, like you said, if it helps one person, that’s a good thing, so…

Scott 8:06
And I don’t blame any of…our doctor, any of that. I don’t blame her. She’s been fantastic. We actually trying again, and we’re gonna stick with her and she was great. And the fact that she had so much emotion when everything happened, showed how much she actually cared. We weren’t just a number on a chart, that she was trying to push through. She actually took extra time with us every visit. And so, so I don’t blame her for any of that. It’s just, it’s not common practice for doctors to say, Hey, keep an eye out for this. And I truly believe it needs to become more commonplace for them to say, Yeah, look out for decrease, but you need to also look out for unusual and erratic movement that is outside of the norm that you have noticed over the last so many months.

Lee 8:57
Is there anything that people should not do? Not to point anybody out, but is there, there–? We talked about some good. If you want to bring up anything that you’re like, yeah, don’t, you know, come on people, let’s get over to this practice? If there’s not, you know, don’t feel bad, but…

Scott 9:15
No, I…yeah, there is some. The only two terms that I don’t usually use this word often, but I hate, I hate these two terms is, “it was God’s plan” or “it was all in the name of God” or something like that. Like those ones drive me nuts. And I’m, I’m okay with like, “Oh, we’re praying for you” and “You have us in your thoughts.” I appreciate all of that. It’s just those two, because I’m like, What is his plan that needed to take my child for me? That that makes no sense. And that’s pretty much it. Those are the only things that I think nobody should ever say.

Lee 9:55
It’s not a comforting thing to hear.

Scott 9:57
No, not at all. Like, Oh, you’re nn our prayers. Oh, we’re thinking about you. I think of Henley all the time. And use her name. That’s the other thing too that Meghan and I have noticed: people are like, Oh, the baby. Oh your baby. Like she had a name. She was a person. Like yeah, I mean in some states, they might look at it as, oh yeah you didn’t have a child. But we did. And her name is Henley. So I much prefer it when people actually use her name, especially with friends and everything. And they’re starting to catch on to that too. Because they bring it up. We start talking and we’ll use her name, and so then they start using it. And it actually makes me happy hearing other people say her name.

Lee 10:42
And as a parent as, you know, my son is my son and he will always be part of me. And I love, I love it when people do use, you know, in your situation when they do talk about Henley. And in my situation, I love it when people are like, you know. You know, we have, we live pretty close to the cemetery where we buried Brannan, and we’ll get texts and like, Hey, we were walking through the cemetery, and we stopped by Brannan’s. It was great to see him. And it’s just like, just little things where it’s like, yeah, they’re bringing up MY child. And I’m glad, I’m glad it’s not just our thing. You know I’m glad other people. And like you said, you like that your friends and people are using Henley’s name. We as parents of loss, we love our children. And we just want people to also talk about them.

Scott 11:35
Yeah, of course always love her. And I wish I would have been able to meet Brannan and everything. That would have been great.

Lee 11:45
If you’re ever up in Utah, we’d love to take you out, I guess.

Scott 11:51
Yeah, I mean, Utah could be fun. Only place in Utah I’ve ever been is a–actually no, didn’t go to Utah. My wife wants to take me to Utah to go to the Cracker Barrel up there.

Lee 12:04
We’d take you to the Cracker Barrel! There’s a lot of stuff here in Utah. It’s pretty cool. But yeah. Was there, is there anything else you want to say or we wrap this up?

Scott 12:15
I think we’re good. I think we touched on everything.

Lee 12:19
Well, wonderful. Scott, thank you so much. It was wonderful to talk to you about your daughter Henley.

Scott 12:24
Thank you so much.

Lee 12:25
Thanks for opening up and sharing this tender part of your life with us all.

Scott 12:30
Thank you. It’s been great.

Lee 12:32
And you have a wonderful day.

Scott 12:34
You too, sir.

Lee 12:44
Again, I would like to thank Scott for coming on the podcast. It was wonderful to talk with him and see how he’s doing in his process of grief. It’s good to hear his story of his daughter Henley.

Head over to our website, StillAPartofUs.com. There you could find the show notes including a full transcript of this interview and any resources that were mentioned. You could sign up for a short and helpful newsletter. And there you can learn how you can become a patron and support the work it takes to produce the show for a few dollars a month. And lastly, there you can find out how to get in touch with us if you want to share your child’s story on the show.

The show was produced and edited by Winter and Lee Redd.l Thanks to Josh Woodward for letting us use his song “Vanishing Note”. You could find him at JoshWoodward.com. Subscribe to this podcast and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they are still a part of us.

If you think you are too small to make a difference, try sleeping with a mosquito. The Dalai Lama

Filed Under: advice, late term stillbirth, podcast episode, stillbirth Tagged With: c-section, stillbirth, stillborn

31: Dad Scott’s account of Henley’s C-section birth, stillborn at 36 weeks

March 15, 2020 by Winter

Dad Scott tells about finding out that his daughter Henley would be born still at his wife Meghan’s, 36-week appointment, and describes her being born by C-section, and the time after with his daughter. After they decide to have her cremated, Scott finds a castle urn, because she’s “his princess”.

Scott’s and Meghan’s tattoos

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission. This commission comes at no additional cost to you, our wonderful listener!

In the birth story podcast episode, dad Scott recounts Henley’s stillbirth:

  • Time Stamp 1:54: Who Scott is and how he met his wife, Meghan
  • Time Stamp 4:25: When they found out that their daughter Henley did have a heartbeat
  • Time Stamp 11:24: C-section delivery of Henley by Meghan’s doctor
  • Time Stamp 15:04: Meeting Henley for the first time and seeing her hair
  • Time Stamp 20:15: Henley is cremated and Scott chooses her urn, a castle
  • Time Stamp 23:44: Scott’s last bit of advice to watch for erratic movements
  • Listen to Scott’s advice of what not to say to a loss parent in his advice Episode 32.
  • Listen to Scott’s wife, Meghan’s birth story of Henley here in Episode 29.
  • Listen to Scott’s wife, Meghan’s advice of dealing with grief after Henley’s stillbirth here in Episode 30.
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Full Transcript

Scott 0:00
My daughter’s name is Henley Ryan.

She was small. She was about four pounds. Born October 3 at 12:49 am.

Lee 0:31
Welcome to Still A Part of Us, a podcast where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Lee Redd, and on this episode, Scott is telling the story of his daughter Henley, who was stillborn at 36 weeks.

As a word of caution to our listeners. This story contains emotional triggers of stillbirth and infant loss. Please keep yourself emotionally and mentally healthy and seek help if needed. Also, be aware that these stories may differ from his or her partner’s, as these accounts are told, from their own perspective through the lens of trauma, heartache, and the passage of time. Please respect our moms and dads, who are brave and gracious to share their children with us.

Scott 1:22
Yeah, it was a very long day actually. We went to the doctor’s October 2nd at 8am. Just a normal checkup. And Meghan was getting the checkup. I was supposed to go get the Tdap shot. And so, and then I had to go to work. So they were, Alright, here’s your shot. And then I was about to head out and doctor’s like, Hey, let’s listen to the heartbeat. And used a little–I forget what it’s called–couldn’t find a heartbeat. But then she got the ultrasound and still couldn’t find anything. And so that’s when we found out.

Lee 1:54
Let’s talk about you. What do you do, Scott? What do you–

Scott 1:58
Um, I work for a nonprofit. We help teach and train people with learning mental disabilities like autism, Down syndrome, traumatic brain injuries, how to join the modern workforce, either with custodial work, filing, stuff like that. The ones that we can’t find jobs out in the real world, we actually hire them inside of our company, and we pay them to do that same thing, custodial, stuff like that. Some of them do piecework, and they just put stuff together. And we package it up, and we ship it out to the different places that we have contracts with.

Lee 2:38
Wonderful. And then your wife Meghan, she recorded her podcasts earlier, but how did you meet Meghan?

Scott 2:46
I met Meghan through a friend of ours. I was working at a hookah lounge. And…yeah. And…she, our friend came in, my friend came in and then she came in. We just–that’s how we met. We hung out. Became friends. Had a great time. And that’s pretty much how it was. And that was about 2007, 2008.

Lee 3:12
Well, good. And your daughter, Meghan–sorry–your daughter, Henley. I hope you didn’t marry your daughter! Your daughter, Henley, is she your first?

Scott 3:24
She was our first. Yeah.

Lee 3:27
IS she your first, I guess…yeah.

Scott 3:29
Yeah.

Lee 3:30
And tell us–start at the very, very, very beginning. Were you guys planning on a child or…?

Scott 3:36
Yeah, for a long time, I was, you know, just wasn’t sure if I wanted kids. I had a rough childhood and I didn’t want to have my baggage put onto my kids, kind of thing. But after a while, I was like, Yeah, let’s, let’s let’s start. And that’s pretty much what happened. We just kept going and going and then finally everything was great. And she’s pregnant and I was super excited. Decorated everything, just went all out.

It’s a double edged sword right there. It hurts.

The room’s still set up too. Name’s still on the wall and everything.

Lee 4:15
Man. So you were going to go get your Tdap boosters.

Scott 4:18
Yeah. What’s that?

Lee 4:22
Is it a booster or just Tdap shot or–?

Scott 4:25
It’s a Tdap shot. I forget everything it does. I want to say it was like tuberculosis and some other stuff like that. It’s basically just a cocktail of different things. And so when in for that, and this is probably only the third appointment I’ve ever gone to with Meghan. And so it was like, Alright, well, I gotta get to work too. So her appointment was 8am, and about 8:15 or so I got my shot and I was about to head out and the doctor stopped me. And she was like, Wait, let’s listen to the heartbeat before you go. And I’m like, alright, yeah, okay. And so she grabs the little thing and can’t find it. And at first, I wasn’t thinking too much about it, because this was only my third visit with the doctor and everything. But then I’m looking at her face and–the doctor’s face and I can see that she’s looking a little concerned, actually a little pale. And she’s like, You know what? I’m just gonna go grab the ultrasound and she brought it over. And she’s doing it and I can see, Henley’s heart, and it was not beating.

And I instantly was just crushed. But Meghan was holding it together. She’s, she’s gotten really good with dealing with loss. She’s lost, she lost her father and her grandmother, both in 2016. So she’s like, Okay, let’s go to the next step. Meghan starts getting cleaned up, we grab her stuff, and the doctor’s in tears, and she’s hugging us. And I can see Meghan’s trying to hold it together, so I’m trying to hold it together for her. And we just get in the car and we start driving to the hospital, which is about 15 minutes away from my, our doctor’s office.

And we check in and there was like no rush. Nobody was like, Oh my god, let’s check this and everything. So we’re like, alright, obviously, they’re pretty confident in this doctor’s findings. And it was literally like, about an hour or so after we checked in the hospital before the ultrasound technician came with her machine to confirm. And they confirm everything. They didn’t even turn their screen away as they were typing their findings into the computer. So we were able to see and read everything.

Lee 6:39
That’s–I don’t know it, it’s one of those situations where, you know, who, what do you want to know? What do you want to do? And when we are in that situation, we’re just completely clueless and oblivious to what really is normal and that doesn’t sound normal to me like, Ah!, you know?

Scott 7:01
Yeah, it definitely didn’t feel or feel normal. I was just like, Why isn’t anybody coming in here? Like all we had was our nurse, who was adorable. She was, she, she’s a new nurse. And she, she’s in tears. As soon as we got she walked us into her room, she was in tears. And she’s like, I’ll be honest, I’ve delivered multiple babies. But this is the first situation like this I’ve dealt with. And she’s in tears. And Meghan and I were still focused on Okay, next steps. Let’s figure this out. And so it was a little rough seeing her cry.

And, but then later on, I guess we scared her, because none of us, neither of us are crying, and the nurse literally pulled me out of the room and is like, Is Meghan okay? Like, she’s not showing anything. Is everything okay? And I’m like, This is just–she’s just, she’s very…I don’t want to say goal oriented, but she’s very focused on the task. So that’s what was going on.

Lee 8:00
The time and place, time and place.

Scott 8:02
Yeah, pretty much.

Lee 8:03
So what happened after there was the confirmation that Henley did not have a heartbeat?

Scott 8:08
After the confirmation and everything, we waited a bit longer. And a different doctor than ours–because ours was still at her practice. She was actually not supposed to be scheduled to go to that hospital until the next day. So a different doctor came in, who does work alongside with our doctor, and a really, really nice guy. He honestly kind of sounded Jamaican, which was really interesting. That accent was definitely interesting to listen to while he’s trying to give us all the information of what’s gonna be going on.

But he gave us all these selections that we could do and what could happen, kind of thing. Like if we tried to induce, what could happen. Because Henley was really breech up in Meghan. Like her–Hendley’s head was actually up under her ribs. Yeah, she was way up there and he’s like, Well, you can try to induce. But the problem with this, is since she’s not moving around or anything, her head can get stuck. And then we’d have to do a more in depth kind of surgery, kind of thing, which could actually ruin Meghan’s possibility of getting pregnant again in the future. And so he’s like the safest, in my opinion, would be the C-section. And so, Meghan and I talked about it for a bit, and we decided to go with the C-section. But Meghan wanted to wait till the next day to have her doctor, the one that she’s been with this whole time. And so we kind of just hung out. Meghan and I–

Lee 9:45
Did you go back home, or…did you go back home or were you hanging out at the hospital?

Scott 9:50
We stayed at the hospital the whole time. Meghan, actually, her body started to realize something was up and started having mild contractions and stuff. So we didn’t want to go back home. And plus anything we’d be able to face going home, because we had nursery all set up and everything. Didn’t want to really see all that right now.

But we had a great family friend. She went and she came to the hospital. She was talking to us. Everything. I started making phone calls to people like Meghan’s mom, who was in California at the time. They were on vacation, her and her stepdad, her and Meghan’s stepdad, they’re on vacation. And so they’re like, We’re grabbing our stuff; we’re driving back now. And our friend, she went to our house. She picked up a whole bunch of stuff for us–laptop, pretty much anything to keep us distracted. And then I left my car at the doctor’s office. So her husband had to drive my car, because of the stick shift, back to my house.

Lee 10:51
It’s safety security right there.

Scott 10:53
Exactly. Nobody can steal my car.

But I didn’t want to leave it at the doctor’s office, because it has all my work tools in there. And so he grabbed that and he drove it back home. They came–she, uh her, his wife came to the hospital, gave us all our stuff and food. And we just kind of just, try to stay focused on what needed to happen. And also distract yourself. Watch Netflix and movies and stuff like that.

Lee 11:24
And so the next morning happened. Well, I guess–

Scott 11:26
It was later that night. Her doctor didn’t want us sitting in the hospital that long. And so she, after she left her practice, she went home, fed her kids, had dinner really quick. And then she came in around 10:30 at night. And she’s like, I’m coming in. If you guys want we’ll do this now. And that way, you guys can recover. You’re not sitting here suffering and thinking about all this. And that’s when it got me even more. I actually had to step out and just the fact that she was willing to come in, when she was already going to be on call the next day. She was already at work all day. And it just was really touching.

And so we said, Okay, we’ll do it. Meghan’s mom and stepdad finally got there at that point. And we told them what was going on, what the plan was. And her stepdad was awesome. He actually smuggled in a water bottle filled with vodka and cranberry juice for me. Because he saw I was on edge. He snuck that in for me, and then we got ready. And we did the C-section. And it was about an hour or so going. I was just there, focused on Meghan. The blind was up, so we couldn’t see anything. And both of us are in tears the whole time, just– And then finally like the nurses, the doctors, everything just went quiet. And that’s when we knew that Henley was, was finally out. And yeah, there’s–the silence is just, it was deafening.

And then after everything was sewn up, all that stuff with that, the doctor talked to us for a little bit after everything was cleaned up. And she believed that it was caused because Meghan’s placenta was on the front of her stomach area, not in the back, but her umbilical cord was abnormally short. It was…she said that she barely had enough to take Henley out and put her on Meghan’s stomach. It was so tight. So we think that…the doctor thinks that, every time Henley would try to roll to get into position, she was actually kinking her cord and cutting off all the supplies she needed, until it finally just collapsed. Yeah.

Lee 14:06
It is one of those situations where, after our son Brannan, the doctor, the doctor said it really is how anybody is ever born, is amazing. Because anything and everything can go wrong. So Henley is delivered via C-section, you guys wheeled back to the room, what happens after?

Scott 14:30
So, we get back to the room. We transfer Meghan into her bed and we did that. And we’re–the doc– nobody comes in for a bit. They’re cleaning Henley up and everything in the other, in another room. And we’re just sitting there waiting. Meghan’s kind of joking a little bit, trying to keep things light, because she’s like, The weirdest part is I have no idea where my legs are in space. She’s like, I can’t feel anything. I’m looking at my toes, telling them to wiggle, but they just won’t move. So she starts to get a little bit of movement back.

And that’s when the nurses come in and says, Are you guys ready to see Henley? And we bought an outfit and everything that Meghan’s mom purchased–this cute little Ralph Lauren, pink onesie. And I brought a hat from home and everything. And like, Yeah. And so she came in and handed Henley to Meghan. And she’s holding her, and we’re just, we’re just looking at her and admiring her. And the nurses, we asked her to take some photos with us. And so she’s taking some photos of us and everything. And the one thing I was super curious about, and I needed to see, was her hair. I needed to know she took after me or if she took after Meghan and she took after me.

Lee 15:55
In what way? She took after you because you have dark hair and, or–?

It was dark, thick, curly hair. So she didn’t take after my color when I–my hair color when I was born. I was, when I was born, I was a toehead. Just straight white blond hair. But with the curls and how thick it was, we knew she took after me, because Meghan’s hair is like, stick-straight and very fine. So that was the one thing I was super intrigued by. And I was sad, but so happy to see that she took after me in that point. But everything else was Meghan. She had Meghan’s nose and her cheeks. And it was…it was great. And I mean, not great, but great seeing it. And yeah…it was heartbreaking.

It’s a cruel situation. So you guys, how long were you in the hospital?

Scott 16:54
We got to the hospital around 9:15am. And we were there…

Lee 17:01
You delivered at midnight-ish…

Scott 17:02
We delivered at 12:39am. Yeah. Henley was born. And we stayed there for…we were cleared to go actually, the next day. The doctor was like, you’re doing great. Meghan was already walking around, struggling a little bit, but she was still walking in her own power. And the doctor’s like, If you guys want, you can go home the next day. And Meghan’s like, No, I’m gonna stay another night. And so we stayed another night. But when we had Henley with us, her mom, Meghan’s mom was in another room. And we were going to set up in another room for her to see Henley and the hold and stuff like that. We didn’t think that we’d emotionally be able to see her with her granddaughter at that point. And so, but we asked her and she, she’s like, No. She was more worried about her daughter, wanted to check on Meghan and everything like that. So we’re like, Okay.

We had her for a bit. And we both wish we would have had her longer, because we had the option to, for up to 24 hours. And but at the time we couldn’t do it. We started breaking down and we just…yeah. So we decided not to go home the next day. We decided to stay the night again. And so we just–hanging out watching movies, friends visiting, relaxing, and just taking care of her as best–taking care of Meghan as best I could. I keep saying her and I keep forgetting we’re recording.

Lee 18:39
Did you guys decide to have a funeral for Henley or–?

Scott 18:45
We didn’t do a…we didn’t do a funeral. We had her cremated. We got in contact–there’s an nonprofit here in Vegas Meghan found, and I–honestly I have, I’m really bad with memory, so I don’t remember the name of it. But they got us in contact with a funeral home. And they, I guess the owners had a loss as well. His child, I believe, was two, when it passed. And he decided that any child under under five, he will take care of all cremation for free just to help out a family and all that stuff.

Lee 19:26
It’s, it’s, it’s amazing because we’ve had so many people, so many people come to our aid and it’s a wonderful little mercy for us. It’s, you know, it’s hard to make decisions in that situation. And it’s, it’s just terrible.

Scott 19:46
For sure.

Lee 19:47
So do you have Henley–some parents have like…we have a friend who had their daughter cremated, and there’s this nice little heart that they have on their shelf. And then we have another friend who, they split up the ashes into vials and the husband has some and he wears it. Almost dog collar-ish, dog tag-ish…um not dog collar, but dog tag…

Scott 20:15
So it came, she came in a little box, and it looked plastic. I wasn’t a fan of this box. I actually hated this box. It just had a little teddy bear on it. I found online another urn and it’s a castle, and it reminded me instantly of the Disneyland castle. And I’m like, She’s my princess. We’re going to get this for her and ordered it and we transferred her in. And right now she’s sitting on her dresser inside of her room with a teddy bear that our friend got us, which was a huge help. She found out that there’s a group that you can purchase a teddy bear for them and they will weight the teddy bear to the exact weight of your child they lost. And so this teddy bear, it’s there. It weighs four pounds, 10 ounces, and it has Henley’s name on it. It has her weight and her birth date on it. And it’s just sitting there, along with some custom onesies that that we had with her name on anything. And it’s just sitting on the shelf on her dresser. And also on the castle is a set of Mickey ears that you get in the park with her name embroidered into it.

Lee 21:30
Now just to let everybody know, Scott and Meghan go to Disneyland a lot.

Scott 21:37
Every every four to six weeks.

Lee 21:39
Every four to six weeks, so…

Scott 21:42
Huge fans of Disney. I was really looking forward to taking Henley to Disney, because the first time we would have taken her would have been, not this last trip we did this weekend, but the one right before. She would have been old enough and had her vaccinations and we could have taken her.

Lee 22:02
Do you take that little stuffed teddy bear with you?

Scott 22:04
We have not taken the stuffed teddy bear, but I do have a little stuffed Groot. Not, not the one that I showed you before, but another one. And it was the first stuffy I purchased for Henley while Meghan was still pregnant with her. And it was the very first stuffy that she was going to have. That one I do take with me and I–sitting on my nightstand with me. I have a bracelet that’s custom-made with Henley’s footprint and her name on it, and at night when I go to bed that bracelet is sitting on top of that Groot’s head, just right there for me to just to always know to grab it. I was looking for an embroidery house here that will actually embroider her name on to that Groot.

Winter and Lee Redd 22:54
Oh?

Scott 22:55
Yeah, I have not been able to find one that I’m willing to leave the Groot with overnight, cuz it’s, it’s just so precious to me, that I don’t want to risk anything.

Lee 23:06
You might get a patch. And then you sew the patch on yourself.

Scott 23:10
Yeah, I was thinking the patch. I was gonna, I was trying to take it to Disneyland and see if they can do it with their machines there, that way we can actually get the same thread and font that we have her Mickey Mouse ears. And but they said that they won’t do it. They’ll only do the stuff that they personally sell in the parks and this one was never purchased at the parks.

Lee 23:33
Well, good luck finding a workaround, so…. Is there anything else you would like to tell us about the birth of your daughter Henley?

Scott 23:44
The night before we had the doctor’s appointment, is what really sticks with me and Meghan both. It uh…we were laying on the couch, and Henley was kicking up a storm. Like just crazy, more than she’s ever done before in the past. And we’re like, Maybe she’s rolling to get into position, stuff like that. Didn’t think anything of it. And then the next day is when we found out what happened. And that’s what really sticks with me, because I’m like, Was this actually her kicking in distress, and we just didn’t think about it? Because we were never–we were always told to look out for lower amounts of movement, not higher. That’s the one thing that really sticks with me that, that I think about daily.

Lee 24:31
It’s heavy. It’s…I have no words. But it’s–I’m sorry. That’s all I can say.

Scott 24:41
Thank you.

Lee 24:42
Thank you.

I personally would like to thank Scott for being on the podcast and opening himself up. It’s hard to be vulnerable, and to share this special story with us. Thank you, Scott.

Head over to our website StillAPartofUs.com. There, you’ll be able to find the show notes including a full transcript of this interview and any resources that were mentioned. There you could also sign up for a short and helpful email newsletter. You can also find out how you can become a patron and support the work it takes to produce this show for just a few dollars a month. And lastly, you can find out how to get in touch with us if you want to share your child’s story with us.

The show was produced and edited by Winter and Lee Redd. Thanks to Josh Woodward for letting us use his song “She Dreams in Blue”. You could find him at JoshWoodward.com. And lastly, subscribe to the podcast and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they are still a part of us.

“A balanced diet is a cookie in each hand.” Barbara Johnson

Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: c-section, stillbirth, stillborn

30: Mom Meghan’s advice to watch for large, erratic movements during pregnancy

March 1, 2020 by Winter

Because of her experience with her stillborn daughter Henley, mom Meghan tells of how she always warns and advises other pregnant mothers to watch for large, erratic, unusual movements from their baby, which may be a sign of distress. She also encourages other loss parents to do what is best for them when it comes to the time they spend with their baby after birth.

Newlyweds Meghan and Scott

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission. This commission comes at no additional cost to you, our wonderful listener!

In the Advice podcast episode, mom Meghan discusses some things that helped her after Henley’s stillbirth:

  • Time Stamp 3:51: What Meghan advises and warns pregnant women
  • Time Stamp 6:24: Leaving behind the land of “what if”
  • Time Stamp 8:12: Meghan and Scott attend grief support groups and therapy
  • Time Stamp 11:42: Getting tattoos so they can talk about Henley
  • Time Stamp 13:42: Best advice she has to other loss parents
  • Time Stamp 15:03: What not to say–it doesn’t make anyone feel better
  • Time Stamp 22:04: Meghan’s father and grandmother passed away in 2016
  • Time Stamp 23:32: How Meghan works as a nanny
  • Listen to Meghan’s birth story of Henley here in Episode 29.
  • Listen to Meghan’s husband, Scott’s birth story of Henley who was stillborn here in Episode 31.
  • Listen to Meghan’s husband, Scott’s advice after Henley was stillborn here in Episode 32.
  • Apple Podcasts
  • Stitcher
  • Google Podcasts
  • Spotify

Full Transcript

Winter 0:11
This is Still A Part of Us, a podcast where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter Redd and in this episode of Advice and Encouragement from a Loss Mom, I chat with Meghan, whose daughter Henley was stillborn at 36 weeks.

By the way, you can hear Meghan’s and her husband Scott’s episodes about the birth of their child on episode 29 and 31. Today, we discuss with Meghan how she makes it a point to tell Henley’s story and the warning she has for other pregnant women, how she encourages other loss parents to do what is right for them and to not let anyone else try and change anything,and how she and her husband have drawn closer to one another after losing Henley.

As a word of caution to our listeners, this discussion contains emotional triggers of stillbirth and infant loss. Please keep yourself emotionally and mentally healthy and seek help if needed. Hope this helps someone out there.

Meghan, thank you so much for being on this episode with me. I really appreciate you coming on telling Henley’s story. And it was beautiful. And I–it was so similar to ours, so it’s just like, Oh! Just heartbreaking. So I’m so sorry that has happened to you and your family. But thank you for sharing, because I feel like you–actually, I know you have something to share that I think is extremely important. You mentioned it already in the birth episode. So if you haven’t had a chance to listen to that, go back and listen to Meghan’s story. So welcome. Welcome, welcome.

Meghan 1:51
Thanks. Thanks for having me.

Winter 1:52
And for context, can you tell us about how long ago your child was born at the time of this recording?

Meghan 1:58
So she was born just under four months ago.

Winter 2:01
Just under four months ago, so and…so you’re, you’re kind of still in the very new stages, Meghan. How is the grieving process looks like for you,?

Meghan 2:12
Every day is different. I mean, the beginning was really hard. There was lots of crying. There was, you know, just lots of days but not wanting to do much. As time’s gone on, it’s, it’s getting–I wouldn’t call it easier, but I’m more able to do the normal things you got to do. You know, I went back to work and, you know, you kind of just have to move on with the day-to-day, but, you know, not necessarily do I cry every day, but there’s definitel,y at least a couple of times a week something out of the blue will strike that brings it all right back.

Winter 2:47
Yeah. Anything it feels like–

Meghan 2:49
It can be just the most random of things.

Winter 2:52
Yeah, anything.

Meghan 2:52
It doesn’t. There’s no rhyme or reason to it. And sometimes like this last trip, we went on to Disneyland, I started crying in the line for the Incredicoaster and I have no idea why. I couldn’t tell you, like you know… Scott looked at me and he’s, What making you upset? And I’m like, I don’t know!

Winter 3:09
Yeah, you’re like, I can’t tell you. It just happens. So what have you done–you mentioned before that you like to go and sit in her room sometimes and rock on her rocking chair, and maybe even sit with that little weighted Teddy bear. Other things, what are some other things that you like to do to think about her, to remember her, to celebrate Henley on a day-to-day basis?

Meghan 3:31
I mean, it’s my goal to, anyone that’s willing to listen gets told about her. And anyone that I know that is pregnant or intends to be, gets told her story. Not to scare them, but to tell them the things I wish I would have known that might have made a difference.

Winter 3:51
Yeah, because you…can you, can you tell us exactly what you tell people? I actually want you to say it again on this episode too, because I think it’s super important.

Meghan 4:00
I tell the whole story to pretty much everyone. I mean, I even have a friend currently that lives out of state, but she’s pregnant. And I didn’t know, but she knew she was pregnant when I told her I lost Henley. So she’s 22 or 23 weeks pregnant right now. So immediately, she tells me, she didn’t tell me until like two weeks ago, but when she told me my first thing was, Okay, I don’t want this to scare you. And I’m not telling you to scare you. But the doctors don’t tell you and you need to know: if your baby has–you know, you get to know their movement pattern, you get to know what their kicks feel like. If they start moving a radically a lot, crazy intensely, please go get checked out. Even if you get there, they check everything and they tell you you’re crazy, I would rather have you find out that everything was fine, than be me who didn’t know, and had I known and could have made me saved her.

Winter 4:53
Yeah. That is so, so important. That was the thing that struck me when you email to me, was your kind of emphatic plea like, I want people to know this, I need people to know this. I need women to know this, so that they can take care of their babies.

Meghan 5:08
Because I even took the time and asked my doctor–well, I didn’t ask my doctor, but I asked another doctor–why they don’t tell women this. So even though I’m not the only one that I know, that has had this and then had something happen. And basically I got told by this doctor, that if they told all women, that any kind of erratic movement could be a sign of distress, they’d have people in, getting checked every two minutes, and it’s just highly unlikely that that’s what it is. Now mind you, this wasn’t actually my doctor. This was just another doctor that I was talking to, because I don’t think my doctor would be that callous or cold. But it just makes no sense to me. I mean, so what we’re wasting the hospital’s time, a certain percentage of the time, but how many babies is it going to make a difference in?

Winter 5:54
Exactly!

Meghan 5:55
Like it’s worth it.

Winter 5:56
It totally is worth it. Ah–that, that’s frustrating.

Meghan 6:02
It really is.

Winter 6:03
It’s–that’s frustrating. So I–

Meghan 6:05
Obviously I didn’t have a reason to think anything of it. Also just had no knowledge. First pregnancy–I didn’t know. And everything had been so healthy and so fine.

Winter 6:15
Yeah, exactly. They’d been checking you out. You’d looked great. And I–yeah, it’s frustrating when you’re like, kind of takes your innocence away, right?

Meghan 6:24
Yeah, I mean, I’ve gotten to a place now where I know I can’t live in the land of “what if”. I can’t keep thinking, Well, if I had done this, maybe this would happen. Or if this had happened. I can’t, I can’t live there, because I can’t change it. So the best I can do is try and tell everyone else to hopefully prevent something bad from happening to someone else.

Winter 6:41
Yeah. I like that–not living in the land of “what if”, because that will eat you up.

Meghan 6:46
It will.

Winter 6:46
It was totally eat you up. Is there anything you guys do–and I think I know the answer to this–that you guys try and do to like physically escape and trying to basically take your mind off of it?

Meghan 6:58
We go to Disneyland!

Winter 6:59
You go to Disneyland! I was like, I know you were going to say that!

Meghan 7:01
That’s our thing–

Winter 7:02
Which I think is great.

Meghan 7:04
The first trip back after losing Henley was rough. I wasn’t even sure I wanted to go. I wasn’t sure how it would be. I didn’t know if my happy place would be ruined. It was hard. You know, seeing people with their children, thinking about all the things we thought we’d have her there for, was hard. But in the end, we did have a good time. And it was still enjoyable to us. And we’ve been back additionally, another time since then now and, you know, I made it through this last trip. I only cried one time, and I had a good time the rest of the time. So it’s still the place that we go to be happy.

Winter 7:41
Yeah, that’s– Yes, watching and seeing all the other little families with their little babies. And then kind of the, once again, the “what ifs”, like, Oh, Henley would be able to, you know, do this and do that. And yes, there’s a lot of–

Meghan 7:55
We really hope that one day that will be fulfilled with another child. Obviously, it never will be with Henley, but one day we’ll get there with a baby.

Winter 8:03
Yeah, yeah. Yeah. Meghan, do you guys go to counseling or any grief support groups or anything like that?

Meghan 8:12
We’ve been to the support group that our hospital runs, the hospital delivered at. We went once. And it’s bi-monthly. So they actually have it every month, but one month, it’s on one side of town, and then one month, it’s, you know, 40 miles in the other direction. We didn’t go to the very first one because it was like, the week after I had her and I was like, I just–can’t go there yet. So we went the next month, and then they didn’t have one. They had a Memory Tree event in December, where they have people bring in ornaments for their babies and they get hung on a tree that stays in the hospital lobby all through Christmas. So we did go to that. We actually, when we were at Disneyland, picked up an ornament, had her name put on it and everything. And that hung in the hospital through the Christmas season, and they’ll put it up every subsequent year.

Winter 8:57
Oh, that’s great.

Meghan 8:57
They’ll put all the ornaments back up. And then there’s another group, the grief support group, there’s another one in the next month, so we’ll go to that one. That was pretty helpful. And then I started counseling for the first time last week, so I’ve only gone once. But I felt like I found the right counselor. I found someone who, not only specializes in this situation, but also has personally been through it.

Winter 9:22
So experienced a stillbirth herself?

Meghan 9:24
Yes. She said about two years ago.

Winter 9:26
Oh, that’s, that’s pretty recent for her too, if you think about it.

Meghan 9:30
It’s impressive to me that she’s willing to counsel others about the same thing.

Winter 9:34
Yeah. Exactly. Well, that is, that’s great. And I, we’ve–I’m a huge fan of therapy. I mean, so and especially shopping around for somebody that is a good fit. And it sounds like it’s a good fit.

Meghan 9:45
I had, I actually had tried another place first, and I just didn’t–like it was one of those like, you walk in and you’re just like not feeling it.

Winter 9:52
You’re like, Nope.

Meghan 9:52
I was going, This is not gonna work.

Winter 9:54
I already know. I don’t know what it is. Exactly.

Meghan 9:57
And so the way I came about this therapist was actually very unique. I was at storytime at the library with my friend’s daughter. I was babysitting my friend’s daughter and had brought her to storytime. And I somehow ended up in a conversation with these other moms, talking about their C-sections. And I’m just not shy. So I just interject with mine. And I mean, obviously through the course of the story, they find out that, you know, Henley was stillborn. And not–didn’t really think much of the conversation just kind of said some things. They were just kind of impressed that I was there, you know. And then we went into storytime and that was the end of that. Don’t even know these people’s names, talked to them for maybe 10 or 15 minutes. The next time I came back to the library, now mind you this library, the librarians know me, because I’m a nanny, and I’ve brought lots of kids to storytime.

Winter 10:43
You’re there, you’re there.

Meghan 10:44
They’ve seen me with a rotating group of children and so they know who I am. The librarian comes up to me and says, Oh I’ve been waiting for you to come back in, you know. This woman that you talked to the last time you were here, she left this for you. She left me a whole letter, like four pages long about her story, about things that had happened to her. She had had loss, not stillbirth, but earlier loss. And then said, You know, I don’t know if you’ve thought of this, but I’ve been going to this counseling place and they’ve helped me immensely. And they specialize this, in this and left the brochure for the Counseling Center.

Winter 11:18
That is amazing.

Meghan 11:19
So it’s just another case of were like, talking about it is worth it. You know, as much as you’ll make some people uncomfortable, there are so many people that have a story that aren’t willing to say it, until you start the conversation.

Winter 11:35
Exactly. Exactly. Yeah. Right. That’s, this is why we have the podcast, so we can talk about it.

Meghan 11:42
I personally, so my husband and I both got tattoos after we lost Henley, and put them in a very visible place and it’s intentional. It’s on my left forearm on the inside, so, you know, if I’m handing anybody anything, they’re going to see it. And it’s it’s intentional for people to read it and ask a question. So my tattoo says “Henley Ryan. I carried you every second of your life and I will love you for every second of mine” and it has my birth flower and hers.

Winter 12:06
Oh, that is awesome. Ah look at that!

Meghan 12:10
There you go.

Winter 12:11
Oh, that’s so cool.

Meghan 12:13
So I intentionally put it there, so that, you know–there are people that read it and just you can tell they get the like, ahhhh look on their face and and don’t say anything. But there’s a lot of people that read it and go, Oh my goodness, that’s so sweet. What happened? And I totally want you to ask what happened. That’s why I put it there. I put it there, so you’ll ask me.

Winter 12:30
Yeah. Does your husband have it in kind of a similar location?

Meghan 12:33
He’s got a tattoo on the same spot.

Winter 12:34
Oh, really? Okay.

Meghan 12:35
His tattoo says something else. Got a different quote. And his statue instead of flowers has her actual footprint.

Winter 12:40
Oh, really?

Yay. That’s awesome. That–yeah, I…those physical reminders actually are, I think, very helpful. My husband has a tattoo as well. And that’s, he has it on his forearm so people can ask him about it. And it’s been very good for him.

Meghan 12:42
Yeah.

We got him done about four weeks after we lost her. As soon as I thought my doctor–well I didn’t even ask my doctor. I was just like, What’s the worst that’s gonna happen? She’s gonna yell at me? I’m doing it! As soon as I felt up to it, I was like I’m doing.

Winter 12:57
Yeah, yeah. Well, there you go. I’m curious what you would say to somebody that is experiencing a loss like this, that anything that you found comforting to you that you heard, that you would maybe want to pass on to somebody else?

Meghan 13:24
I mean, the best advice I can give is take all the pictures. Take, you know, take all the moments you can. Make sure you dress them, make sure you bring–you know if you had a specific like swaddle blanket picked out that you were like, I’m going to use this for my baby, put it on them and take a picture. Because these are the things that like you’ll regret not having them down the line. Call the professionals. Let them come take great quality photos for you. And no matter what you think anyone else is going to think about it, spend as much time as you want to with that baby. It’s totally up to you. I don’t regret my choice. I mean, I wish I would have spent a little longer with her, but I don’t regret what we did. It felt right at the time. And then there, you know, there’s other people that want to spend the full 48 hours they’ll give if they have a Cuddle Cot, and that’s fine. You do what feels right to you. Don’t let anybody else aside from you and your partner influence that decision.

Winter 14:18
Yeah. That is great advice. I have found that different people want to spend, yeah, exactly 48 hours or however long that they will let you have them. And then others were like, that was good. I need to…I need, for myself, closure. And they–

Meghan 14:33
We gave her back when we did, because she could started leaking fluid out of her nose and she just wasn’t going to look the same. And I wanted the last memories to be of her looking as good as she could. So you know, it’s a personal choice, and don’t let anybody else try and change how you feel about it.

Winter 14:54
Yeah, yes. Now Meghan, what would you NOT to somebody that’s experiencing such a loss?

Meghan 15:03
Well, we’ve had some things that people say that, I think, that no one should ever say to people.

Winter 15:09
Don’t call anybody out by name. But go ahead. I would love to hear them.

Meghan 15:12
Well, these aren’t like specific people we’re close to. This is just like, you know, in the course of people on the street. Right. No matter your religious beliefs, whether you’re religious or not–we’re not. Some people are. That doesn’t matter. Don’t ever tell someone it was God’s plan. Don’t do it. No matter how much you believe that, it’s not comforting in any way, shape, or form.

Winter 15:35
No, no, not at all. I mean…

Meghan 15:37
You can tell me that, you know, you’re praying for me. And that’s fantastic, because that means you’re thinking good things for me. Awesome. Don’t ever say that it was God’s plan. Don’t tell me everything happens for a reason.

Winter 15:48
Oh, yeah. Hate that one too.

Meghan 15:50
These are not good things to say. They’re not comforting. And if you don’t know what to say, at all, just say you’re sorry.

Winter 15:56
Yeah. That’s huge. I love when people say I’m just sorry about what happened. And I’m like, thanks.

Meghan 16:01
I’m so sorry. That’s horrible. Yep. That’s enough. If can’t think of anything else, that’s enough. You’ve said something.

Winter 16:08
Yeah. And you thought about me, so that’s good. Yeah.

Meghan 16:11
And don’t–you know, the other thing that was that I think now is hard, is don’t don’t not say anything because you don’t know what to say. Don’t just disappear, because you don’t know what to say. I know it makes you uncomfortable. It makes everyone uncomfortable. I’m going to be uncomfortable for the rest of my life.

Winter 16:29
Yeah, I’ve got this with me.

Meghan 16:30
But you’ve got to say something. Don’t just ignore the existence. Like say something! And I finally, I posted on social media a couple of days ago, I posted something telling people that I want them to ask me about her. I want them to say things. I got tired of everybody just kind of like skirting around the subject. This is what we’re doing.

Winter 16:54
So it was, it was–there was a lot of people kind of tiptoeing around?

Meghan 16:58
Oh, lots of people dancing around, not wanting to ask anything. And I’m like, just, just ask. The most comforting thing you can do, is ask me about her. She existed.

Winter 17:08
Yeah. I carried her. I gave birth to her.

Meghan 17:12
Oh, yeah. And then we’ve had, you know, in conversations with other people, you know, kind of like I said, when I jumped into that conversation at storytime, I’ve had other conversations where I’ve jumped into somebody’s conversation about pregnancy or birth. And you can tell it just makes them totally uncomfortable. I jumped into this conversation, and I want to be like, Look, just because I didn’t bring a baby home, doesn’t mean I didn’t have a baby. I went through the same thing.

Winter 17:35
Yep. Yep.

Meghan 17:37
The only difference is your C-section ended with a baby crying and mine ended with silence.

Winter 17:42
Yeah. Yep. You still gave birth.

Meghan 17:45
Yep.

Winter 17:46
You carried her.

Meghan 17:48
Yeah. And you’d be surprised how many people are totally uncomfortable with that. Or the people that are just like, I don’t want you to, you know–your story. It makes me uncomfortable, and I just I can’t talk about it. Well, then I guess you can’t talk to me like, I guess we’re done then.

Winter 18:05
Yeah, cuz you’re like, this is part of who I am now.

Meghan 18:08
This is my life. And if you’d like to be a part of my life, then this, this is part of what we have to talk about.

Winter 18:13
You know, it’s interesting. I listened to a TED talk and, and it was a woman who had experienced stillbirth. And she’s like, the one thing about stillbirth is kind of like, it’s like a fire, a slow burning fire, that it burns away all the stuff that doesn’t really matter. So sometimes those relationships and those things that really just don’t matter, kind of go away.

Meghan 18:32
You also kind of lose a lot of your filter for things. I’m real blunt with people now. You know, and, and sometimes the hardest conversations that people have, they haven’t, not meaning it for it to be an in depth, very personal conversation. You know, Oh, do you have kids? You know, just the general we’re just trying to have a chitchat. And I don’t lie. So I answer and I respond. Yes, I have a daughter, but I lost her at 36 weeks, and then they’re uncomfortable and they don’t know what to do now. Well, you asked the personal question, so you get the answer. If you didn’t want the answer, don’t ask the question. You could have just been like, you know, It’s been hot outside today.

Winter 19:14
Yeah, the weather!

Meghan 19:16
You chose to ask the question. Don’t be astounded by the answer.

Winter 19:19
It is a very personal question. People don’t realize it, but it’s a very personal question. So…

Meghan 19:24
It is, and I mean, it’s, it’s a personal choice on how you decide to answer. I refuse to say, I don’t have any kids. But honestly, there are some times where I think about it. And sometimes I will. If I’m never going to see this person again, and I passed them in the grocery store for five seconds, sometimes I’ll just be like, No, and then keep walking. Because it’s just, sometimes it’s exhausting to have to go through the whole conversation or just deal with the people that like, look at you, Ahhhh! I don’t know what to do.

Winter 19:48
Yeah. Don’t be like those people. Come on, people. So how has Scott, your spouse, handled the loss? How has that looked like for him and as a couple even?

Meghan 20:01
I mean, he’s been great for me, but he definitely is a lot more quiet about it. Like any conversation about Henley is initiated by me, not initiated by him. You know, everybody grieves differently and it’s been difficult for me to sit there and realize that just because he’s not grieving the same way I am, doesn’t mean he’s not grieving. But I think we’re closer than ever now. I mean, we have been through this and it’s probably the hardest thing we’ll ever deal with together and we’ve been together for a long time now. I mean, we started dating when we were 19. We’re 30, well I’m 32 and he’s almost 32 now. So been quite a while. Almost 13 years. So you know, it’s–every day is different and some days he does cry. Some days, he doesn’t say anything about her at all. And it’s it’s different for him than for me, because I talk about her every day, but you know, he’s never offended when I talk about her. He never doesn’t want to respond when I talk about it. I think he just doesn’t choose to initiate those conversation.

Winter 21:06
Right. And that’s fine. That’s just how he communicates. That’s what feels comfortable to him, it sounds like?

Meghan 21:12
Yeah, I’m sure his episode will be much less in depth on talking than mine. He just doesn’t talk quite as much as I do.

Winter 21:18
Most of the men’s episodes are a little bit shorter. And that’s perfectly fine. I think, kudos to you guys, though, for staying close to each other, and maybe even getting stronger in your relationship. Because these these can shatter a relationship pretty easily. These kinds of tragedies can be very difficult.

Meghan 21:23
I can see how it does.

Winter 21:36
Yeah. Because there’s so much stress and then you just like, Why aren’t you grieving like me? And it’s and it’s frustrating.

Meghan 21:41
Yeah. I mean, I think it somewhat helps that we had been through some loss together prior to this. And granted, it was my family, and not his, but we’ve been together so long that my family is basically his. You know, he was he was pretty close to my grandmother when she passed away and when my dad passed away, he was actually the one that found my father. So we’ve been through quite a bit together.

Winter 22:04
You have. So you, so mentioning these previous kind of deaths that you guys have experienced, did you think that was kind of a little preparatory? Or did you–? I’m just curious, like how you feel about having those experiences before Henley?

Meghan 22:20
Well, so we thought that 2016, the year that both those people passed away, was going to be the worst year ever, right? You get out of that and you go, Okay, this is as bad as it can get. Can’t get any worse than this. Well, I don’t think that way anymore. Because 2019 was worse than that. But I think that I was able to handle the loss of Henley a little more gracefully after having been through what I already have. I kind of already knew how my body was going to deal with grief, how my brain handled it, and you know, was able to deal with things a little better. I mean, I wouldn’t say you know, what really prepares you, but at least I had some background and experience on losing someone. Well, this is so much more intense than that. Even though that was my father and my grandmother. It’s still, this is more intense. This is somebody that didn’t ever really get to live at all.

Winter 23:10
Yeah. didn’t get a chance to–yeah. The death of dreams, is what they call it is. And I’m like, yep, that’s exactly what it feels like. I know it’s been short, a short four months, right?

Meghan 23:23
Yeah.

Winter 23:24
Have you had any realizations or “aha” moments about how you grieve or just about the entire process that you’re going through right now?

Meghan 23:32
Well, I’ve had people tell me that I’m kind of crazy, because like I said, I am a nanny. I wasn’t working when I…while I was working at the beginning of my pregnancy and ended up losing my job, because the family I was working for the mother got laid off from her job, and they couldn’t afford to keep me.

Winter 23:48
Oh, gotcha. Okay.

Meghan 23:49
So then I tried to find a job for a while, and finding a job as a nanny while you’re pregnant is just kind of next to impossible.

Winter 23:57
That’s rough, I’m sure.

Meghan 23:58
So I watched my little cousin for the summer while they were out of school. They’re, they’re twins. They’re nine-years old. So I watched them the whole summer while they were out of school, and it kind of gave me something to do in the meantime. And by the end of summer, I was really pregnant. So I was like, I give up. I’m not gonna try and find a job until after I have her. It’s fine, right? Like, so from the end of August until what was supposed to be the end of October, I was like, I’m just not gonna work. I ended up finding a job–well, I found the job the end of December, but I actually started this job about two-and-a-half weeks ago now.

Winter 24:29
Okaaay…

Meghan 24:30
And everybody thinks I’m crazy, because the child I’m watching now is two-and-a-half months old. And she’s a little girl. So, essentially, for all intents and purposes, I was due October 29 with Henley. This little girl was born on November 9th, so it’s exactly the same is what it should have been. Which some days is tougher than others. To look at her know, well, this is what she should have been doing. This is about how big she should have been. But for me, it would have been weird to find a job doing anything else, because I had a moment where I thought about not going back to nannying. And I’ve spent the last like, almost eight years of my life helping raise other people’s children. So I couldn’t fathom going and doing something else. And as hard as it as some days to be with her, it’s also healing in other ways to be with a baby, you know, for three days a week. Though, it’s not my baby, I get to be helping care for someone’s baby. So that that desire and that, you know, need to fill your arms is at least getting catered to in some way.

Winter 25:41
Yeah.

Meghan 25:43
I’m getting to do something with it. Yeah.

Winter 25:46
Oh, so hard, though. But that sounds like a little bit of a calling for you. It feels right, I guess.

Meghan 25:53
It feels right. And I think, you know, after what has happened to me, I’m probably the most attentive nanny to a baby that’s ever existed now. The intense anxiety and fear about something happening to a child is real. And I’m probably 10 times more attentive than anybody else would be. It took me a while to find a job, because when I was looking for work, I refuse to hide anything. So I refused to hide what had happened with Henley, and I was open about it. And I also refused to hide the fact that we do intend to try and have another child. I didn’t want to get into a position where I got hired for a job, and then got pregnant and somebody go, Oh, we can’t deal with that. So I was honest. And it took me a while to find a family to work for, but the family that hired me is very understanding. This is their first child. And they’re totally okay with the whole situation. They’re totally okay if I do end up pregnant. Like they’re fine with it.

Winter 26:55
That’s great.

Meghan 26:55
And the job schedule, I mean, it’s 10-hour days, but it’s three days a week, so it’s almost perfect if I do get pregnant, to be able to squeeze in appointments and things, it just seemed like the absolute right fit.

Winter 27:04
Yeah. Well, that is, that’s a blessing that that came along. And obviously you were patient to wait for the right, right opportunity, I guess. Oh man.

Meghan 27:15
Yeah, cuz I’ve been looking for a job actively, since I was cleared by my doctor six weeks after having Henley. So it took me, you know, a few months.

Winter 27:24
Yeah, it takes a while sometimes. Well good. I think that’s great that you’re doing that. I don’t know if I could do that. That would, I’ll be honest…

Meghan 27:33
I know, I have a lot of people that are like, I don’t know how you manage.

Winter 27:35
Yeah, I was like, I’m not sure how I would be able to do that. That would make me a wreck, I think. I’m pretty sure so.

Meghan 27:41
I know I’ve talked to some people that are like, I couldn’t be around a baby. And I’m like, everyone’s different.

Winter 27:47
It is! I and I was like, I think I still have not held a baby since our son passed away. Just I’m not really a baby holder either, so I guess it’s not too much out of the ordinary for me. I know that you’re going to be coming up here on, you know, Mother’s Day and Father’s Day in the next couple of months. Are you–do guys have anything planned? Are you kind of preparing for that or–?

Meghan 28:10
Not really. I mean, we start the “land of one year laters” February 19. Because February 19 was when I found out I was pregnant with Henley. So we’re kind of rolling into that. It’s been a year later about everything. Um, but we really kind of haven’t thought about it. I kind of just ignored it. To be honest,

Winter 28:28
Sometimes it’s, sometimes it’s easier, right?

Meghan 28:33
And also trying not to think about the, you know, like, one year later, whatever. My husband’s birthday is coming up, and we had found out right before his birthday. And so I’m kind of, just kind of–just gonna push that off to the side. We’re just gonna celebrate your birthday. Like we’re just gonna not acknowledge that totally right now.

Winter 28:48
Yeah. Sometimes you have to do that when you just can’t deal.

Meghan 28:52
I also you know, I’m the other hard thing, the day Henley was born, is actually–there’s a set of twins that I nannied for a full year from when they were like three months old until they were about 15 months, and I still see them regularly. Friends with their parents now. Henley was born on their second birthday.

Winter 29:10
Oh, really?

Meghan 29:13
So, I don’t know if that’s hard–if that’s going to be hard or if it’s going to be good that I’m distracted in their birthday.

Winter 29:19
Right. Well, it’ll always be a special day. Just a word of warning, like I would maybe just be aware of yourself on the day that you found out that she was [still]born, because that that day was rough for me, when my son was [still]born, because I gave birth to him the next day so.

This conversation has been awesome. And you’ve had some amazing things to say and I’m so grateful like how blunt you are and open you are about it, because it’s sometimes…people skirt around, like you said, skirt around, tiptoe around the issue and so it’s nice to…

Meghan 29:52
I just don’t think it helps anyone if you’re not just honest.

Winter 29:55
Yeah. This is the way it is. Kind of sucks. Or doesn’t. Whatever. They’re going to be good days and there’s going to be bad days. Any, any last pieces of advice?

Meghan 30:04
Take the time you need and don’t let anybody tell you how you should or shouldn’t feel. It’s, I mean, clearly, I’ve been told that I’m very different than most in this situation. And you know, I’ve had people tell me that was weird, and I don’t think it’s weird. Everyone’s different and everyone’s going to deal with it differently.

Winter 30:21
Yeah, totally. We’re all different.

Meghan 30:23
Well, there’s no wrong way to greive.

Nope. I think people, yeah, make judgments of like, you should be this way. No. It’s, we’re all different. And it’s surprising sometimes. It’s surprising sometimes. Meghan, thank you so much. This was so great. Like you are just–I appreciate your honesty and sharing your heart. And thank you so much. I really appreciate your time today.

Thank you.

Winter 30:51
Many, many, many thanks to Meghan for a candid, honest story and discussion about Henley. I also super appreciative, that she is helping educate other women who are currently pregnant and trying to get the word out, so that they can keep an eye on their babies and get them here safely. So thank you so much, Meghan, for coming on the podcast today.

Head over to our website StillAPartofUs.com, where you can find the show notes, including a full transcript of this interview, and any resources that were mentioned, where you can sign up for a short and helpful email newsletter, or you can learn how you can become a patron and support the work it takes to produce a show for just a few dollars a month, and lastly, where you can find out how to get in touch with us if you want to share your child’s story on the show. One thing that we wanted to point out on this show, is that you can go over to the show notes in your podcast player and find a link on how to donate a few bucks to help us keep the lights on, so we can continue bringing these beautiful stories to you.

The show is produced and edited by Winter and Lee Redd. Thanks to Josh Woodward for letting us use his song “Vanishing Note”. You can find him at JoshWoodward.com. Lastly, subscribe to this podcast and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they’re still a part of us.

Lee 32:13
Facebook just sounds like a drag. In my day, seeing pictures of people’s vacation was considered a punishment. Betty White

Transcribed by https://otter.ai

Filed Under: advice, late term stillbirth, podcast episode, stillbirth Tagged With: c-section, stillbirth, stillborn

29: Mom Meghan tells C-section birth story of Henley, stillborn at 36 weeks

March 1, 2020 by Winter

Mom Meghan tells about her textbook pregnancy and the C-section birth story and with her first child, daughter Henley, who was stillborn. At her 36-week checkup, she and her husband Scott heard the words every parent hopes to never hear: I’m sorry. She has no heartbeat. 

Scott and Meghan with their stillborn daughter, Henley

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission. This commission comes at no additional cost to you, our wonderful listener!

In this stillbirth story podcast episode told from mom Meghan’s point of view:

  • Time Stamp 3:03: Meghan has a textbook pregnancy and she was feeling great–they even went to Disneyland at 33 weeks.
  • Time Stamp 5:44: Meghan and Scott get the news that Henley doesn’t have a heart beat.
  • Time Stamp 10:17: She makes the decision to have a C-section.
  • Time Stamp 17:52: Henley is delivered via C-section by Meghan’s doctor.
  • Time Stamp 21:39: Meghan tells how Henley was moving and kicking erratically the night before.
  • Time Stamp 28:46: How they chose Henley Ryan’s name.
  • Time Stamp 35:00: They choose to have Henley cremated.
  • Listen to Meghan’s advice of dealing with grief after Henley’s stillbirth here in Episode 30.
  • Listen to Meghan’s husband, Scott’s birth story of Henley who was stillborn here in Episode 31.
  • Listen to Meghan’s husband, Scott’s advice after Henley’s birth here in Episode 32.
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Full Transcript

Meghan 0:00
Henley Ryan

We realized that her nose is exactly my nose, so the genetics carry strong.

Winter 0:19
Welcome to Still A Part of Us, a podcast where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter Redd, and on this episode, Meghan is telling the story of her daughter Henley, who was stillborn at 36 weeks.

As a word of caution to our listeners, this story contains emotional triggers of stillbirth and infant loss. Please keep yourself emotionally and mentally healthy and seek help if needed. Also be aware that these birth stories may differ from his or her partner’s, as these accounts are told from their own perspective through the lens of trauma, heartache, and the passage of time. Please respect our moms and dads who are brave and gracious to share their children with us.

Meghan 1:17
My name is Meghan. I’m 32. I had to think about for a second. My husband and I have been together since we were 19 years old, but we’ve been married for about six and a half years now. Henley was our first pregnancy, first child. I am a nanny by trade. I’ve been a nanny for seven years. We have two dogs: a chiuaua and a Border Collie-Pitbull mix.

Winter 1:17
Meghan, thank you so much for being on today. I’m excited to chat with you about your little Henley. And to give us a little bit of context, tell us a little bit about yourself. Who are you? Where you guys at? Kind of just give us a little background of who you are.

Awesome. And what do you, what do you like to do in your free time?

Meghan 1:59
We are Disneyland people you That is our thing. We have annual passes to Disneyland, we go about once every four to six weeks. It’s about a four-hour drive for us.

Winter 2:08
No way! That’s amazing!

Meghan 2:09
Yeah, we love it. We were actually just there last Sunday and Monday.

Winter 2:13
Oh my goodness that it was crazy. Last Sunday and Monday, if I’m not mistaken.

Meghan 2:17
It was a holiday weekend. And the opening weekend of a brand new ride. It was insane.

Winter 2:23
Did you end up on that brand new ride?

Meghan 2:25
We did. We managed to get on.

Winter 2:27
That’s amazing. That’s, that’s very cool. You guys are based in Nevada…?

Meghan 2:33
Yeah, we live in Las Vegas.

Winter 2:34
Okay, so that’s why you’re four hours away from Disneyland. Okay, well, that’s awesome. And then can you give us a little bit of context about when Henley was born?

Meghan 2:45
She was born on October 3, 2019. So just under four months ago.

Winter 2:51
Yup. At the time of this recording, and this is very new for you, Meghan, so thank you for coming on. And how did your pregnancy go? Like, did you guys get pregnanat pretty quickly and everything?

Meghan 3:03
It was a pretty much textbook pregnancy. We weren’t necessarily actively trying when we got pregnant, but we also weren’t preventing anything. So it kind of just happened on the time frame it happened. But the whole pregnancy was pretty textbook, pretty perfect. You know, I didn’t have gestational diabetes. I didn’t have any high blood pressure. I had only–by the time I had her–I’d only gained 25 pounds total and I had her at 36 weeks. Everything looked great. Everything was perfect. I was healthy, to the fact that at 35 weeks pregnant, my doctor cleared me and let me go to Disneyland for the last time. I did a Disney trip at 35 weeks.

Winter 3:38
At 35 weeks! Oh man, so everything was really good. Did anything cross your mind about anything being wrong?

Meghan 3:46
At our 34-week ultrasound, we found out that she was still breech, which was okay. I mean, we were eventually getting to the point where we were going to have to have the talk about having a C-section, just because she wasn’t turning. But we also found out she was measuring in the 10th percentile, so she was measuring small. So the intent was, at my 36-week checkup two weeks later, she was going to schedule for another growth ultrasound to just kind of see if that was a fluke, because they were kind of having a hard time getting measurements on her just via position. And I have a very short torso, so they’re just between my bones, there wasn’t a lot of space to get the measurement on her bones.

Winter 4:22
Gotcha.

Meghan 4:22
So they were going to send me for another ultrasound ,just to check and see if if it was a fluke, or if she really was measuring small, but we didn’t make it that far.

Winter 4:31
Yeah. Did that worry you at all that he was maybe possibly measuring in the 10th percentile?

Meghan 4:38
A little, but the ultrasound tech that did it, had such a hard time getting a measurement on her thigh bone, and that’s the one that they use the most for measurement. So I was just kind of like, you know, it’s probably just the fact that she couldn’t get a true accurate measurement. Like, my belly is measuring normal. Everything else has been fine. I don’t think there’s an issue.

Winter 4:57
Okay. So kind of brushed it off as a possible, like, It’ll be, it’ll be fine…?

Meghan 5:03
We’ll find out. And if she’s still measuring small in two weeks, well, then we’ll talk about maybe delivering early and, you know, she’ll be small, it’ll be fine.

Winter 5:10
Yeah. Okay. Well, then, can you tell us a little bit more about what happened? So you, you went to that the 34-week ultrasound, and then you were planning on coming in for a 36-week ultrasound…and I’m assuming you got checked at 35-weeks. She was fine….?

Meghan 5:25
I didn’t.

Winter 5:26
Oh you didn’t!

Meghan 5:26
I didn’t have an appointment between 34 and 36 weeks. I came back in at 36 weeks for just my regular checkup with my OB, and my husband had come with me, because he was going to get the Tdap shot and at my doctor, if he came with me, they would do it for free. The insurance would cover the whole cost.

Winter 5:43
Yes, perfect.

Meghan 5:44
So he had only come to very few appointments just due to work. It wasn’t easy for him to take off to come. But this was one that he made it to, because he needed to get that vaccine, and so it just made sense. So we went in for the appointment. You know, they took my weight and I had lost almost a whole pound over the course of two weeks, which seemed a little off to me, but I was like, I just spent like three days at Disneyland walking like crazy. So it’s probably fine. It was probably just that I was more active than I had been. Blood pressure was fine. They give him the shot. And then my doctor as he’s about to rush out to leave to go to work, because he couldn’t stay for the whole appointment, my doctor goes, Hold on! Wait wait! Let’s just, let’s have, let’s do the heartbeat and let daddy listen to the heartbeat real quick.

And we don’t know why she decided to do this, but she did. So she gets out the Doppler. She puts it on my stomach. And I can tell that it’s taking longer than it should to find a heartbeat. Obviously, he wasn’t aware, because he hadn’t really been there for all the appointments to know how long it should take her to find it. And so she’s searching and searching and she keeps moving it around. And 30 seconds go by and nothing. And then almost a full minute goes by, and she can’t find anything. And she goes I’m having a hard time finding her heartbeat. I’m going to go grab the ultrasound machine. Comes back in with the ultrasound, puts it on my stomach. Starts at her head, you see her skull, you see her head. Goes down, and as soon as she gets on the chest, I could see that her heart wasn’t beating. I mean, by that point, you’ve seen enough ultrasounds, you know what you’re looking for. You know what it’s going to look like.

And I think it took a minute for my husband to catch up and realize that nothing was moving. And from that point, you know, my doctor said the words nobody wants to hear: I’m so sorry. She has no heartbeat. And I kind of just went into the mode that I’ve gone into with every other tragic event in my life, because my life has been a little intense from 2016 to now. I, in 2016, I lost my grandmother in April and my dad in December. So there’s been a lot of loss in the past couple of years.

Winter 7:48
Yeah, there really has been.

Meghan 7:50
So I went into this mode of just–the same thing I did when they passed away–just needing to get through the logistics. What, what do we do next? What do we do now? What’s the next thing that has to happen? So I didn’t, there was no initial tears, there was just like, Okay, now what?

So she sent us to the hospital. She had already called Labor and Delivery at the hospital and told them to expect us. So when we got there, we go up to Labor and Delivery. They put us in a room and we think, Okay, you know, somebody’s going to come in fairly quickly and do another ultrasound. They’ve got to want to be absolutely sure, because the ultrasound she used in the office was like, you know, it’s a terrible office-quality ultrasound. So, then it’s an hour, almost an hour and a half later, before an ultrasound tech finally comes in.

Winter 8:35
Are you kidding me?

Meghan 8:35
At that point, we’ve both gone, Well, they obviously think there’s no hope of anything. So, I guess we give up. The ultrasound tech comes in, does the ultrasound and obviously they can’t tell you anything.

Winter 8:49
Yeah, it’s not in their purview.

Meghan 8:52
But this ultrasound tech–and I think she did it as a kind of merciful gesture almost–she did not turn the screen away, when she was typing out her findings to send in the report. So she left it where I could see it when she typed, you know, Breech presentation. No fetal heart tones. Consistent with intrauterine fetal demise. She left it where I could see that this is what it is. And everybody that I’ve talked to seems to think that was terrible, but personally for me, I think she was doing it so that we wouldn’t be sitting, left waiting in limbo longer and longer and longer.

Winter 9:27
Yeah, you’d already been there for an hour.

Meghan 9:29
Yeah. So, at that point, they came back. The on-call OB came in, who this is obviously someone I’ve never met. And, you know, he tells us what we already knew. I’m so sorry. She has no heartbeat. Here’s your next options. And so she was, Henley was breech and she had her head pretty far up under my left ribs to the point that even still to this day, my rib cage is bowed out on the left side. Like visibly people can tell that my ribs look different on one side than the other.

Winter 10:02
Really?

Meghan 10:03
Yeah, I have a really, really short torso, so there just wasn’t a whole lot of space. And so my rib cage I, most doctors, I’ve asked and they’re like, Honestly, we don’t ever think it’s going to go back. So that’s like one of the permanent reminders of her.

So he comes in and he tells me, Okay, well, you could be induced, but here’s all of these possible risks confounded, you know, not just the normal risks of being induced with a stillborn baby, but to add to the fact that she’s completely breach. You know, so they went through all the things that could have happened, that I could have tried to be induced, and they could have delivered everything but her head and she could have gotten stuck. All these scary risks, and a lot of them were risks to my ability to have future children. Then they read me the list of risks for going through with a C-section. Those were far less intense. So without really any discussion with anybody, I just kind of sat there and went, Yep, I will have a C-section. No question about it. That’s what we’re going to do.

But then the waiting kind of began for the day. So that was at about nine, like 10:30, 10:30, 11 in the morning–

That you…?

That I finally decided, Okay, I’m gonna have a C-secion. This is what I’m going to do. And I had talked to the on call ob, and he said, okay, but I’m going to call your ob first and just kind of have a discussion with her, tell her what’s going on. A little while later, I get a phone call on the hospital phone in my room, my OB has called me. And she’s talking to me about the situation telling me, you know…I mean, my doctor was fantastic. She, she when she had to tell us that she had no heartbeat, she was crying even though we weren’t. She’s been wonderful throughout the whole thing. So she calls in between patients in clinic she calls and says, You know, I can’t be there right now, but I can be there late tonight. I can come at like 11 o’clock tonight to do your C-section. I have something going on when I leave the office today, because she has a family and children, so it’s understandable, but she says I can come in at 11 o’clock tonight and do it for you if you would rather wait for me.

So that’s what I ended up doing, because I wanted to be with someone I was comfortable with. It’s the person I saw the whole pregnancy. And I felt like having her deliver was more comforting, because she was the one there when we found out. So we kind of just spent the whole day sitting in the waiting–in the hospital room, waiting around.

Winter 12:33
Oh you did?

Meghan 12:34
I did find out, so since I decided to wait until she came in late at night, I hadn’t eaten anything at this point that day because I didn’t have breakfast before my doctor’s appointment. My doctor’s appointment at eight o’clock in the morning. I’m like, we’re going to go in this is gonna be a 30-minute appointment, and then I’ll just go get something to eat afterward.

Winter 12:48
Right.

Meghan 12:49
And so by that point, it was almost noon and I hadn’t had anything to eat or drink. So when I decided that I was going to wait for my doctor, she told me, you know, If you want to eat, you’re allowed to eat until, you know, 12 hours before when she’s going to do the C-section. So I had an hour and a half or so where I can, like, get some food and, and… You know, I had a friend there with me and my husband, and they both thought it was strange that I wanted to eat, and I’m like, But I’m going to feel so terrible if I continue to go the whole rest of this time and don’t eat anything. Like I have to try and eat.

So we kind of just spent the whole day sitting in a hospital room, watching TV, talking. Basically kind of ignoring, I mean, personally for me, I was kind of ignoring the situation. It was like, I have all this weird limbo time that I have to sit in now. And I just can’t think about it. Now, meanwhile, my body knew what was going on. I had started having, you know, mild contractions, like my body had figured it out. I opted not to say anything to the nurses about the fact that I was contracting at all, because I didn’t want to accelerate the process in any way. I wanted to wait for my doctor, so I just didn’t say anything. And it wasn’t like bad enough that like, there was any concern of like imminently going into actual labor.

Winter 14:08
Right. It was just very starting, starting contraction.

Meghan 14:12
My body was definitely starting to figure it out, but it wasn’t very intense or anything. So we kind of spent the whole day just talking and sitting in the room and waiting. And–

Winter 14:22
So Meghan really quickly: so Scott is there. He’s not really been there in for your doctor’s appointments. Not a ton of them it sounds like. So he’s probably shocked, I suspect.

Meghan 14:34
Yeah, we actually had driven two separate cars to my doctor’s appointment, cuz like I said he was supposed to leave and go directly to work. Yeah. We ended up taking just one car from the doctor’s office to the hospital because I was like, I can’t drive, like, it’s not something I can handle right now. And, you know, he just kind of was sitting there, and he just kind of let me decide what was going to happen. He’s like, you know, he’s obviously devastated, but he, I think he felt like whatever I decided to do from that point, was my choice of how it was going to happen. So I didn’t even really discuss my choice to have a C-section with him. I just kind of looked at him and went, This is what I’m doing. And he went, Okay.

Winter 15:15
Well, it’s yes, it does put you in a little bit better position medically.

Meghan 15:19
I feel like, you know, from all the women that I’ve talked to, you know, I’ve met several other parents who have lost their children, even one in town that I’m friends with now, and everybody says the same thing that it’s it’s very unusual that I got the situation I did, where I got to choose that I wanted to have a C-section and I got to choose whether I wanted my doctor to do it or not. Most people don’t have this time where they can just kind of make these decisions.

Winter 15:20
Yeah. That is pretty unique. And so you were sitting in your room just hanging out You say that you were ignoring, kind of ignoring the situation, in a sense. Did you–?

Meghan 15:58
We tried to talk about anything that wasn’t what was happening.

Winter 16:01
So did you contact any family members or anything?

Meghan 16:04
We did. After I made the decision that I was going to wait for my doctor and I was, you know, gonna have a C-section, we kind of called and told some people. I didn’t really call anyone. I kind of left it up to Scott. He called my mom and stepdad, who actually were in California at the time. They had gone on, you know, they were going to, they were going for a weekend away, and they figured it would be the last weekend away before I went into labor. So they were like, We’re going to go now. And you know, they were just going to stay at some hotel. Well, he called them and immediately they drop everything, pack up, and start driving back. So they’ve got a five-hour drive back, which is part of the reason probably that it was good that I decided to wait until later that night, because they got me there.

And then you know, we’ve let some other family members know, some friends. I have one friend that actually, we let her know right away what was going on. She found out just after we had gotten to the hospital, before we even had the ultrasound. At the hospital, we had told her, and she dropped everything, had her husband come pick up her daughter and showed up at the hospital and sat there with us all day. She and her husband went and got Scott’s car from the doctor’s office and drove it back to our house. And then she eventually went home, because we told her, Look, we’re going to be here a long time. We want you to go home. You know, put your daughter to bed. You know, you have things you have to do. And she ended up coming back, which I didn’t know until later. She came back while I was, right before I went into surgery, and was there until like three o’clock in the morning when I finally was like you have to go home. Your baby’s gonna be up in like three hours.

Winter 17:45
Wow, what a friend. That is–that’s awesome. So you waited. Your surgery was planned at 11 o’clock at night.

Meghan 17:52
Well, my doctor got to the hospital about 11 o’clock that night. And they started the prep for surgery and everything. The anesthesia, anesthesiologist came in and talk to me. Kind of did the whole thing. I think we ended up in the actual OR closer to midnight. And then you know, it’s the whole process of them actually numbing you and getting prepped and all of that. And Henley was born at 12:49am on October 3. So we found out the morning of October 2 that she was gone. I had her very early on October 3rd.

Winter 18:24
How was the surgery? Was it okay?

Meghan 18:27
It was fine. I had every reaction to the anesthesia that they say is normal. So the immediate things they warn you about is, you could have a really, really itchy nose. Yup, felt like I wanted to rip my nose off my face. And then because your blood pressure is going to dip, you also probably will get nauseous. Literally, they put the medicine in, laid me down, and like 10 seconds later, I’m like, I feel like I’m gonna throw up. So they had to pump anti-nausea medicine in. And I mean, I obviously had never been through anything like that, so the sensation of just like not being able to feel anything from your rib cage down was very strange.

Winter 19:02
It is very strange. I agree.

Meghan 19:05
But overall, I mean, it wasn’t bad. Just the same terrible situation of any C-section where the baby’s not alive. It’s everybody’s talking, the doctors are talking. There’s all kinds of noise. And then you can tell they get to a point where they’re pulling her out and the room goes silent. No one says anything. It’s just deafeningly silent.

They…I mean…the silence was followed up with, you know, She’s beautiful. I’m so sorry. But it was hard. Sorry.

So neither one of us looked at her initially. They kind of took her. Cleaned her up. They sewed me up and took me back to the room. And then got me all situated. And then they brought her in to us. They kind of they gave us the choice on what we wanted to do. I mean, before we even went into surgery, they had like a long list of things of: Do you want this? Do you want that? You know, do you want us to take pictures? Do you have an outfit you want to her put in? Is there any one specific you want to be here? All the different things that we could have done.

We ended up–Scott had gone home and gotten stuff for us earlier in the day, because obviously, we didn’t even have a hospital bag packed at this point. I still thought I had four weeks to go and it was my first baby. So I’m like, if I even go into labor by then… Like, I wasn’t–everything else was ready–but we hadn’t packed a bag. So he went home with all the stuff and I had him bring an outfit for Henley. And we had a stuffed animal that he brought that he specifically wanted with her. It’s a little Groot from Guardians of the Galaxy.

Winter 20:59
That’s amazing.

Meghan 21:01
It was the first thing that he had bought specifically for her. So they bring us back to the room and they had already taken her and cleaned her up and taken pictures of her for us.

Winter 21:11
Oh, they did! Okay…

Meghan 21:12
And changed her clothes, which we were given all the options, if we wanted to do these things ourselves, but I just, I was mostly afraid of what she was going to look like, that I didn’t know that I wanted to. So I knew I wanted to see her. I knew I wanted to hold her ,but I didn’t know if I wanted to dress her, because I just wasn’t sure, you know, exactly what was going to be. And I mean, we had a pretty good idea of how long she’d been gone at that point.

Winter 21:38
What did they say?

Meghan 21:39
Because the night before I went to the doctor, I was laying on the couch and about 9pm and my placenta was in the front, so we couldn’t usually like see her kicks like from across the room or anything. But there were these intense crazy kicks that Scott could see from across the couch. And it was crazy. That’s the last time I for sure know she moved. Well come to find out the thing that doctors don’t tell everyone, is that erratic and extra intense movements, can be a sign of distress. And had I known this and gone to the hospital immediately, we may have had a different outcome in the end. So this is something that I pass on to every woman I know that’s pregnant now. Like, your doctor is not going to tell you this and I don’t mean to sound scary, but you need to know this.

Winter 22:27
Yeah. Yeah. So you think it was the night before basically on the 1st?

Meghan 22:31
Sometime between 10, 10:30pm on October 1. And when we went to the doctor at 8am on October 2. So she had only been gone at most like a day and a half by the time I had her. And because, you know, I know after the fact now that because I had a C section she came out looking a lot more perfect than had I delivered her naturally. I mean, there’s just ,there’s less trauma, if they go through that way.

Winter 23:03
Exactly.

Meghan 23:04
So they brought her in and had her all dressed up and I held her. And you know, the first thing we noticed is that, like I said, we had noticed in an ultrasound, because we’d had a 3D 4D ultrasound at like 30 weeks, but immediately everybody, you know, my, my husband and me both are like, It’s my nose. My nose…my nose is very turned up. And it’s from my dad’s side. Apparently, it’s a very, very strong genetic trait, because my dad had it. I have it. My half-brother has it. And it passed right on to Henley.

And, you know, we took, we took a little bit of time. I held her. Scott just…I asked him if he wanted to hold her and he just couldn’t. He just didn’t feel like he could. I did be slightly pushy and I made him come in next to me and have a picture taken, so that we at least had one or two pictures of the three of us. Even Now I regret that I didn’t call Now I Lay Me Down to Sleep to come take really great quality photos, it just wasn’t something that was like, my mind was able to process that I should have done at that point in time. They had given me the paper with their phone number. But in that whole thing happening, you don’t really think about that. I honestly never would have even thought to bring her clothes, except for my friend that was there with us–it’s actually her neighbor, that has also lost a child–and she had actually, when she found out, she had immediately called her neighbor and gone, What do I need to tell her to do?

Winter 24:33
That’s awesome. That was so smart.

Meghan 24:35
Her neighbor lost a baby at 34 weeks, and it was about a year and a half ago. So she, still fresh, but like was able to tell her, Okay, you’re gonna want to tell her to take all the pictures, to bring an outfit for her to…you know, all these things that you don’t think about in the moment, and she didn’t think about in the moment, but she’s basing them off things she regrets or things that somebody else told her, that I’m so grateful that somebody told me, you know. It’s so helpful to have somebody that can actually be like, No, I’ve been there. And this is what you need to know.

Winter 25:09
Let’s try…yeah, you will, you’ll want this. Yeah.

Meghan 25:12
So we only had Henley in our room for probably 20 or 30 minutes. We actually gave the opportunity for my mom and stepdad, who were the only other–I had the one friend at the hospital and my mom and stepdad were there–we gave the opportunity for them to meet her, but I didn’t want them to meet her in the room with me. I just didn’t know how I would do seeing that. So they had another room right next to me that they could have brought Henley into, and my mom and stepdad could’ve met her in there. My mom and stepdad actually chose not to. I haven’t really asked the reasoning behind that. It was their choice I left to them.

Winter 25:48
It was their choice. Yeah.

Meghan 25:49
So, the nurses eventually, you know, we decided, Okay, you know, we’re ready to let her go. You know, gave her a final kiss and they took her. After that point, they actually took her in the other room. And we know now, that they took hand and footprints. They did them, you know, in ink. They did them into clay that was then given back to us later. And we have these really special things that, I guess we’re one of the first from the hospital that they’re actually started doing it, they’re three-dimensional molds of her hand and her foot.

Winter 26:24
That’s awesome.

Meghan 26:25
So, you know, you can see every detail, and her little hand is curved, so like you could put your finger in. And they took a bunch of pictures. And so we have all that stuff now. And then I was actually given the option to leave the hospital that night, the night of the third.

Winter 26:44
Really?

Meghan 26:45
So very quickly. I chose to stay overnight. Just because I didn’t want to go home at night. I was like, I’d rather go home–we have a roommate–and I decided I’d rather go home while he’s at work. I’d rather transition back into being at home while he’s not there. So waited and stayed one more night. And then the process of getting discharged was a little iffy, because they have to get your vitals in a certain area to be able to discharge you. Well, obviously, my blood pressure was high, because hi, traumatic experience. And then they kept having problems getting my oxygen level to be good. Well, they keep coming in, they’re trying to take my oxygen level, after somebody had said something that sent me crying. Well, clearly, I’m not breathing properly, because I’m crying.

Winter 27:34
Yeah.

Meghan 27:36
So eventually, we got everything. Okay. And I went home that Friday at about 11am. So I was only in the hospital from Wednesday at like 930 in the morning till Friday at 11am.

Winter 27:49
But it’s a C-section. Holy cow. I can’t believe they. They’re like, You can go home.

Meghan 27:54
Yeah, I was impressed that they would let me go home that soon.

Winter 27:57
Yeah, I–usually it’s a little bit longer than that.

Meghan 28:00
I was up walking, probably four hours after the C-section. They had me up and walking and so they were, you know, I had ticked off all the boxes of the things they need you to be able to do before you can go home.

Winter 28:14
Were you feeling okay?

Meghan 28:16
I was sore, but overall, yeah, I was okay. We found out through this process that I can’t have toradol, because that makes my nose itch terribly. So two doses of that, I went, No more! So, you know, I mean, I left the hospital on just ibuprofen, you know, 800 milligram ibuprofen, but ibuprofen nonetheless. And I mean, the recovery wasn’t horrible. I think part of that is, you know, it’s much easier to recover from a C-section when you’re not taking care of somebody else.

Winter 28:46
Yeah, yes. Yeah, that’s so true. Now, Meghan, can you tell me a little bit about Henley’s name? How did you choose her name?

Meghan 28:55
So her first name was picked out before she ever even was a thought. Scott I had watched a movie called “Now You See Me” and the main character that’s female, her name is Henley. And we both had just looked at each other, and we’re like, That’s what we’re naming a baby!

We hadn’t even talked about having children at this point. But that’s what it was. And so we chose her name then. And as soon as we found out, we were pregnant, I was like, I know it’s a girl. I know it’s a girl. And everybody’s like, Okay. We had an ultrasound at just before 15 weeks. We paid for one, because I was too eager to know.l I could not wait. And we found out she was a girl. And so immediately, she had a first name, she did not have a middle name until she was born. I had wanted her middle name to be Ryan. But I spent a lot of time bothered by the fact that like her first name is kind of gender-neutral. And so if I give her a boy’s name as a middle name, is she going to be that kid in school where they’re reading the attendance list, and nobody’s going to know if that’s a boy or a girl. So then I thought about spelling Ryan differently. I thought about spelling it with R-Y-A-N-N, so that screamed female, but I didn’t really love that. So after everything happened, we knew that all of my fears weren’t going to be a factor about her name. I said forget it. I made me here what I want and just went with it. So her middle name is just spelled just like any other Ryan.

Winter 29:08
Really? Okay!

Okay, that’s awesome. I was wondering, I was like that’s just kind of a unique name so… Yeah, it’s always tricky, right, names? So you…

Meghan 30:27
You kind of immediately go to: Okay, what are they going to get teased about with this name?

Winter 30:32
Yep, that’s exactly right.

Meghan 30:35
Or you don’t want to be me, who my name is Meghan. But it’s not spelled exactly the way everyone else spells it and you have to spell your name for everyone forever.

Winter 30:43
Yes, forever. It is what it is, right? I have a name “Winter” and everybody’s like, What? Yes, like the season. So you guys headed home, and did you end up having an autopsy? Was there any sort of conclusion about what happened?

Meghan 31:04
They gave us the option for an autopsy, which initially we wanted to, but then we found out that insurance doesn’t cover it. It would have cost us $3,000. So we decided, you know, I talked to my doctor, and she said, Realistically with everything I’ve seen after looking at her, after looking at the placenta, I don’t think there’s a high likelihood that an autopsy is going to give you an answer. And at that point, we were just like, Well, then it’s not–we’re not going to spend the money on it.

Winter 31:32
So even just the visual, the first, I mean, just basically looking at her once over, looking at the placenta, they didn’t have any conclusions either there?

Meghan 31:39
The only thing she came up with initially, is that she had a very, very short umbilical cord. So when they did the C-section, they pulled Henley out, she barely had enough cord to put her onto my stomach before she delivered the placenta. Her record was really, really short, and it wasn’t coiled as much as it should have been, because it was so short. So realistically the best guess on what we think happened, is that as she was trying to turn from breach, she was compressing her umbilical cord, because it was so short and that’s why she was measuring small. And I guess I should mention that in the end when she was born at 36 weeks, she was 18 and a half inches long, which is pretty normal for that gestation, but she was only four pounds 10 ounces. So she was almost two pounds too small.

Winter 32:26
Yeah. For being thirty…36 weeks. Yeah.

Meghan 32:31
So they think that as she was trying to turn, she was compressing the cord, and that’s why she had started measuring small, because she had compressed it somewhat, but was still getting some blood flow. And they think that just that night when after I felt her move last they think she just compressed it completely…

Winter 32:45
So much. Yeah. Oh. Okay. So that’s what they think happened.

Meghan 32:50
After the fact now, I’ve actually gone to see a genetic counselor and a high-risk specialist, just to prepare for the next time, to know, you know, what, what, what can we do if there’s anything different. Is there anything I should be doing, shouldn’t be doing. And they’ve labeled it as intrauterine growth restriction, cuz she was so small and they’ve labeled it as partially, a placental insufficiency. They think that my placenta was just starting to kind of crap out too early. But they didn’t really test anything. So they’re not positive.

We’re also running…we, they ran some blood tests on me in the hospital for clotting disorders, and I came back negative for all of those. But currently, I actually went for bloodwork yesterday. They’re running just like the huge panel of all the things just to see. And we’re also running genetic carrier screening, just to make sure. The genetic counselor, the high-risk doctor, and my doctor don’t think we’re going to find anything. And they do not think there was a genetic component to anything. You know, basically my doctor just said, as horrible as this is, it’s just a random, terrible occurrence. Nothing to be done to prevent it, nothing to be done to change it. It’s just like, you know, crappy luck, actually. So they’re running all these things, but they don’t, they don’t think they’re gonna find anything. It’s more just for peace of mind to know that, like, we’ve checked off all the boxes. Everything comes back normal.

Winter 34:14
Yeah. Did you have any genetic testing but done beforehand?

Meghan 34:18
I did not.

Winter 34:18
Okay. Okay. So this will be kind of the–

Meghan 34:20
I had opted not to during pregnancy. At the beginning, you know they offer you to do the early genetic testing, and I kind of had the mindset, you know, to me, it’s not going to matter what they find, so I’m just not going to do it. It’s not going to change what’s going on for me. Now, the next time I get pregnant, all the tests, all the time!

Winter 34:39
All of it, we’re doing it all.

Meghan 34:41
Anything you wanna do, do it!

Winter 34:42
Well, I was going to say, yeah, I was gonna say now that you’ve had the stillbirth and it’s…yeah, it puts you in a different category now and so you’re gonna check all the things!

Meghan 34:49
The wonders of I am immediately a high-risk patient the next time I’m pregnant.

Winter 34:54
Yeah, exactly.

Meghan 34:55
First pregnancy and now every subsequent will be considered high risk.

Winter 35:00
When you get home then, how was being home? Did you guys start planning any funeral services or memorial services?

Meghan 35:07
We decided not to have any kind of a funeral, just not something that either of us really wanted. We had her cremated, which that process was more dramatic than it needed to be with the funeral home. It took an excessively long amount of time, and there were issues where, you know, I called and called and called, trying to get information.. Nobody gave me information. It was just a whole mess. It took like three and a half weeks before we got her back. And actually, I found out from the certificate of cremation, that she had been cremated five days prior to the day they finally told me that we could go pick her up. It was a mess.

Winter 35:47
Oh. Did you, do…so you… no funeral services. You had her cremated. You did get her back though.

Meghan 35:53
We did.

Winter 35:55
And she just at home and with you guys?

Meghan 35:57
We actually just–yeah, I mean, we got…when we got her back, they just kind of had given the urn that they give for free, because the funeral home we went through is one locally that does things, that any baby under the age of two, they’ll cremate for just the state fee. So the $10 or whatever you have to pay for the state. They don’t charge for it, which is why we went through them because after this whole experience, it’s, I mean, it’s a lot of money that you didn’t expect to be spending

Winter 36:25
Yes, it’s so, it’s so..it’s like a rude wake up. It’s like what?! I have to–what?!

Meghan 36:30
We went from expecting $1,000 copay for a delivery to $4,000 in copays for a C-section and it happening four weeks earlier than we anticipated.

So, it was kind of crazy. So she came home in the urn they gave us, which we didn’t really love so we eventually purchased another one and it’s shaped like a castle. My husband picked it, because it makes him think of Disneyland.

Winter 36:56
Yeah. I love that.

Meghan 36:58
So her earn And you know, all of her hand and footprints and molds and everything are just kind of on the dresser in her nursery. Because I was 36-weeks pregnant. We had an entire room ready. You know, clothes washed and put in the dresser, diapers out, everything totally ready. So that just seemed like the right place for her to be. Eventually I’m sure we will do something else, because we’re very hopeful that there will be another baby to actually use that nursery. But for now, that’s just what feels right.

Winter 37:39
Do you go hang out in her nursery?

Meghan 37:42
I do. I actually sit in her rocking chair in there ,and I have a little journal that I write letters to her and it’s just…you know, about nothingness. Just about what’s happening that day or whatever, but makes me feel close to her. Cuz you know, the chair that I bought with the intention of–well it was purchased for me–but with the intention of getting to rock her, and we don’t get to. So that’s what is comforting. We also have a weighted teddy bear that’s weighted to her birth weight and sometimes I’ll just sit in there with that. But otherwise, we keep the door shut. You know, it’s the one room in the house. we keep the dogs out of.

Winter 38:24
It’s kind of a special area.

Meghan 38:28
Preserved.

Winter 38:28
Yeah, this is her room. This is her room.

Meghan 38:33
It’s actually connected to the room I’m sitting in currently by a bathroom. So it’s just the other side of the bathroom next to me.

Winter 38:40
Well, thank you for sharing that story. I can’t imagine.

Meghan 38:45
Thanks for letting me talk about her.

Winter 38:46
Well, we always want to talk about are our kids, right? I mean, I always want to talk about my son, so… Is there anything else you want to say to remember about her?

Meghan 38:59
I mean, just that, we just like everybody else, we wish things could have been different. But we’re so thankful for the time that we did have. You know, I got 36 weeks of having her with me, which is something that I would never trade. Even though the end was horrible, I would never trade getting that time with her.

Winter 39:21
Yeah. Thank you so much, Meghan.

So many thanks to Meghan for being vulnerable and sharing your beautiful story of Henley with us. Head over to our website StillAPartofUs.com, where you can find the show notes including a full transcript of this interview and any resources that were mentioned, where you can sign up for our short and helpful email newsletter, where you can learn how you can become a patron and support the work it takes to produce this show for just a few dollars a month, and lastly, where you can find out how to get in touch with us if you want to share your child’s story on the show.

The show is produced and edited by Winter and Lee Redd. Thanks to Josh Woodward for letting us use his song “Flickering Flame”. You can find them at JoshWoodward.com. Lastly, subscribe to this podcast and share it with their friends that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they’re still a part of us.

Lee 40:38
My opinions may have changed, but not the fact that I am right. Ashleigh Brilliant

Transcribed by https://otter.ai

Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: c-section, stillbirth, stillborn

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We're Winter and Lee Redd. Because of our sweet son Brannan who was stillborn at 38 weeks, we created this place where other moms and dads can share the birth story of their baby that was stillborn or who died in infancy.

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