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stillbirth

32: Dad Scott advises how to talk to parents who have lost a child

March 15, 2020 by Winter

After his daughter Henley is stillborn, dad Scott tells us of things that he doesn’t like people to say to him about his daughter and tells of how much he appreciates it when people say her name and acknowledge that she was a person.

Scott and Meghan: Fans of Disneyland

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission. This commission comes at no additional cost to you, our wonderful listener!

In the Advice podcast episode, dad Scott talks his life after losing his daughter Henley to stillbirth:

  • Time Stamp 1:58: Finding a support group was especially helpful and it doesn’t need to be a grief support group even
  • Time Stamp 8:57: What you shouldn’t say to a loss parent
  • Time Stamp 9:57: What you can say instead
  • Listen to Scott’s birth story of Henley who was stillborn here in Episode 31.
  • Listen to Scott’s wife, Meghan’s birth story of Henley here in Episode 29.
  • Listen to Scott’s wife, Meghan’s advice of dealing with grief after Henley’s stillbirth here in Episode 30.
  • Apple Podcasts
  • Stitcher
  • Google Podcasts
  • Spotify

Full Transcript

Lee 0:10
This is Still A Part of Us, a podcast where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Lee Redd, and on this episode of Advice and Encouragement from a Loss Dad, I chat with Scott, whose daughter Henley was stillborn at 36 weeks.

By the way, you can hear Scott and his wife’s episodes about the birth of their child on episode 29 and 31. Today, Scott and I talked about how he has a special doll that he bought for Henley, when they first found out that they were pregnant and how that holds a special place in his heart for his daughter. We talk about strategies that we can implement in our own personal lives, on how we can talk with people who have experienced loss.

As a word of caution to our listeners, this discussion contains emotional triggers of stillbirth and infant loss. Please keep yourself emotionally and mentally healthy and seek help if needed. Hope this helps somebody out there.

And we’re back with Scott, and he’s going to be talking about his daughter. Scott, give us a little recap.

Scott 1:25
Alright. Hi, I’m Scott. My daughter’s name is Henley. With what happened everything: she was 36 weeks. My wife was 36 weeks pregnant, and she was stillborn.

Lee 1:36
And now we’re going to be talking about advice. And I personally don’t like to call it advice. It is advice. It’s, it’s stuff that has helped you, that you would like to pass on to other fathers and other parents. What has been something that you have greatly appreciated that somebody has done for you or that you would like to pass on to somebody else?

Scott 1:58
Okay, one thing that really, really helped me out was the support group I have here with friends. And they, they really, some of them have had the same situation happen, or they’ve had some type of loss with a child, but they were able to help me out with talking with them. But also just kind of staying busy for me, and helping support my wife. I really threw myself into work, which sometimes is not always the healthiest, but I do that, and then I come home, I talk with my wife, with my friends. And I found hobbies have also been very helpful. We started a Disneyland social club and go to Disney. And we had a great time doing that, and meet a lot of really fun, interesting people, same exact things that they’re into. Yeah.

Lee 2:55
And with the social club, is it open to anybody or you sort of more select or…?

Scott 3:01
It is open to everybody. Anybody that would be interested in joining, it is a lot easier to join a social club than it is to make one, we’ve learned. It’s also very expensive to make one. But yeah, it’s open to anybody. It is preferable for somebody with an annual pass, just that way they can come more than once a year to do meetups and hang out with everybody. But really there’s…anybody can join. The president or the vice president I had that was with me, I still consider her my vice president, but she moved to Florida, and now she is the president of the Disney World chapter of our social club.

But yeah, it’s it’s really easy to join. If you wanted to look into joining our group, we have a…kind of like a scavenger hunt, a Disney scavenger hunt kind of thing to do. And it’s super simple. It’s usually like take pictures in front of, of all the mountains of the park, like Space Mountain, Magic–or Space Mountain, Splash Mountain, Matterhorn, Thunder Mountain. And then there’s a take pictures with certain characters, get pictures of certain scenery. And then we also do, I got this from another club, but four acts of kindness. So it could be as simple as just yousee a piece of trash and pick it up. Or you see a child who’s crying, and so you give them these little Disney pins that people buy and trade and stuff like that. Just give them a little pin just to make them happy, make their day a little better, or a way to make those parents of the child, their day a little easier. Because Disney with a little kid is usually not as fun as most people think. It’s pretty stressful, trying to make sure that they’re happy and entertained, and all that stuff. So little things.

Lee 4:44
Now, have you found with your social club with such a–I’m assuming it’s sort of a diverse group of people–are you able to share your personal like, do some of the people in your club know about Henley or is it–?

Scott 5:00
Everybody in my, everybody in my club knows, but several other social clubs–there’s hundreds of them–they know too. We all follow each other on Instagram and stuff. And we posted up. First we posted up that we were pregnant, and everybody was super happy and all that stuff like that. And then later on, we had to post what happened and to show what happened, we, my wife and I, we each had tattoos done on our arm. And we posted the pictures of our tattoos to show what happened and everything. And it’s been nothing but love. People coming up to us, hugging us, sending us messages. Some people have come up to us and they started telling us their stories, which has been fantastic. And it’s basically like there’s a larger club within all of these other clubs now, that people are more talking about now than they used to. They used to just be like, Oh, let’s all hang out. Let’s meet up. Let’s go ride this ride together. And now it’s–now people are getting to some different discussions going on.

Lee 6:02
It’s wonderful that there is that support group that you established and that has come around you.

Scott 6:08
And it’s also, it’s also fun because of Disney I mean.

Lee 6:11
Yeah. The happiest place on earth. Is that their…?

Scott 6:17
Supposed to be the the happiest place on earth, yes.

Lee 6:19
Supposed to be. That’s a good point.

Scott 6:21
Yeah, like I said, there’s some kids that not-so-happy, going around there.

Lee 6:25
Our five-year old, it’s not, at naptime, it’s not happiest time or the happiest place…

Scott 6:30
That or you didn’t buy them a lollipop they wanted or the churro…

Lee 6:34
Just never tell your kid that it’s an option. “Hey, where did those kids get those?” “I don’t know. I don’t know. Let’s go.”

Scott 6:42
“Maybe Mickey Mouse saw them and it was just a prize. They picked up a bunch of trash. Maybe you should try that.”

Lee 6:46
Oh hey, that’s a good way to get it. Was there any other advice that you’d like to…?

Scott 6:52
My main advice that I know my wife also touched on too, is doctors don’t tell everybody to look out for increased and erratic movement. I mean, if that’s something that we would have known, we could have had a completely different outlook. If we would have known that Henley’s kicking and tossing the night before could have been a sign of distress, and we could have gone to the hospital. Itt could have a different outcome. And doctors just don’t say that. They always tell people, Hey, do your kick counts. Make sure that…it’s not decrease movement. They just don’t tell you. So and if anybody listening, and that helps just one person, one family, I mean that’s, that’s really what matters, at least in my eyes.

Lee 7:39
Yeah, it was it’s–I’m not a medical person. And Scott, I’m pretty sure–we’ve been talking about what you do and–but it is one of those like, we didn’t know a lot of what was going on, as well. And I don’t blame any of our medical personnel, but it’s one of those situations where sometimes knowledge is power. And you know, like you said, if it helps one person, that’s a good thing, so…

Scott 8:06
And I don’t blame any of…our doctor, any of that. I don’t blame her. She’s been fantastic. We actually trying again, and we’re gonna stick with her and she was great. And the fact that she had so much emotion when everything happened, showed how much she actually cared. We weren’t just a number on a chart, that she was trying to push through. She actually took extra time with us every visit. And so, so I don’t blame her for any of that. It’s just, it’s not common practice for doctors to say, Hey, keep an eye out for this. And I truly believe it needs to become more commonplace for them to say, Yeah, look out for decrease, but you need to also look out for unusual and erratic movement that is outside of the norm that you have noticed over the last so many months.

Lee 8:57
Is there anything that people should not do? Not to point anybody out, but is there, there–? We talked about some good. If you want to bring up anything that you’re like, yeah, don’t, you know, come on people, let’s get over to this practice? If there’s not, you know, don’t feel bad, but…

Scott 9:15
No, I…yeah, there is some. The only two terms that I don’t usually use this word often, but I hate, I hate these two terms is, “it was God’s plan” or “it was all in the name of God” or something like that. Like those ones drive me nuts. And I’m, I’m okay with like, “Oh, we’re praying for you” and “You have us in your thoughts.” I appreciate all of that. It’s just those two, because I’m like, What is his plan that needed to take my child for me? That that makes no sense. And that’s pretty much it. Those are the only things that I think nobody should ever say.

Lee 9:55
It’s not a comforting thing to hear.

Scott 9:57
No, not at all. Like, Oh, you’re nn our prayers. Oh, we’re thinking about you. I think of Henley all the time. And use her name. That’s the other thing too that Meghan and I have noticed: people are like, Oh, the baby. Oh your baby. Like she had a name. She was a person. Like yeah, I mean in some states, they might look at it as, oh yeah you didn’t have a child. But we did. And her name is Henley. So I much prefer it when people actually use her name, especially with friends and everything. And they’re starting to catch on to that too. Because they bring it up. We start talking and we’ll use her name, and so then they start using it. And it actually makes me happy hearing other people say her name.

Lee 10:42
And as a parent as, you know, my son is my son and he will always be part of me. And I love, I love it when people do use, you know, in your situation when they do talk about Henley. And in my situation, I love it when people are like, you know. You know, we have, we live pretty close to the cemetery where we buried Brannan, and we’ll get texts and like, Hey, we were walking through the cemetery, and we stopped by Brannan’s. It was great to see him. And it’s just like, just little things where it’s like, yeah, they’re bringing up MY child. And I’m glad, I’m glad it’s not just our thing. You know I’m glad other people. And like you said, you like that your friends and people are using Henley’s name. We as parents of loss, we love our children. And we just want people to also talk about them.

Scott 11:35
Yeah, of course always love her. And I wish I would have been able to meet Brannan and everything. That would have been great.

Lee 11:45
If you’re ever up in Utah, we’d love to take you out, I guess.

Scott 11:51
Yeah, I mean, Utah could be fun. Only place in Utah I’ve ever been is a–actually no, didn’t go to Utah. My wife wants to take me to Utah to go to the Cracker Barrel up there.

Lee 12:04
We’d take you to the Cracker Barrel! There’s a lot of stuff here in Utah. It’s pretty cool. But yeah. Was there, is there anything else you want to say or we wrap this up?

Scott 12:15
I think we’re good. I think we touched on everything.

Lee 12:19
Well, wonderful. Scott, thank you so much. It was wonderful to talk to you about your daughter Henley.

Scott 12:24
Thank you so much.

Lee 12:25
Thanks for opening up and sharing this tender part of your life with us all.

Scott 12:30
Thank you. It’s been great.

Lee 12:32
And you have a wonderful day.

Scott 12:34
You too, sir.

Lee 12:44
Again, I would like to thank Scott for coming on the podcast. It was wonderful to talk with him and see how he’s doing in his process of grief. It’s good to hear his story of his daughter Henley.

Head over to our website, StillAPartofUs.com. There you could find the show notes including a full transcript of this interview and any resources that were mentioned. You could sign up for a short and helpful newsletter. And there you can learn how you can become a patron and support the work it takes to produce the show for a few dollars a month. And lastly, there you can find out how to get in touch with us if you want to share your child’s story on the show.

The show was produced and edited by Winter and Lee Redd.l Thanks to Josh Woodward for letting us use his song “Vanishing Note”. You could find him at JoshWoodward.com. Subscribe to this podcast and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they are still a part of us.

If you think you are too small to make a difference, try sleeping with a mosquito. The Dalai Lama

Filed Under: advice, late term stillbirth, podcast episode, stillbirth Tagged With: c-section, stillbirth, stillborn

31: Dad Scott’s account of Henley’s C-section birth, stillborn at 36 weeks

March 15, 2020 by Winter

Dad Scott tells about finding out that his daughter Henley would be born still at his wife Meghan’s, 36-week appointment, and describes her being born by C-section, and the time after with his daughter. After they decide to have her cremated, Scott finds a castle urn, because she’s “his princess”.

Scott’s and Meghan’s tattoos

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission. This commission comes at no additional cost to you, our wonderful listener!

In the birth story podcast episode, dad Scott recounts Henley’s stillbirth:

  • Time Stamp 1:54: Who Scott is and how he met his wife, Meghan
  • Time Stamp 4:25: When they found out that their daughter Henley did have a heartbeat
  • Time Stamp 11:24: C-section delivery of Henley by Meghan’s doctor
  • Time Stamp 15:04: Meeting Henley for the first time and seeing her hair
  • Time Stamp 20:15: Henley is cremated and Scott chooses her urn, a castle
  • Time Stamp 23:44: Scott’s last bit of advice to watch for erratic movements
  • Listen to Scott’s advice of what not to say to a loss parent in his advice Episode 32.
  • Listen to Scott’s wife, Meghan’s birth story of Henley here in Episode 29.
  • Listen to Scott’s wife, Meghan’s advice of dealing with grief after Henley’s stillbirth here in Episode 30.
  • Apple Podcasts
  • Stitcher
  • Google Podcasts
  • Spotify

Full Transcript

Scott 0:00
My daughter’s name is Henley Ryan.

She was small. She was about four pounds. Born October 3 at 12:49 am.

Lee 0:31
Welcome to Still A Part of Us, a podcast where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Lee Redd, and on this episode, Scott is telling the story of his daughter Henley, who was stillborn at 36 weeks.

As a word of caution to our listeners. This story contains emotional triggers of stillbirth and infant loss. Please keep yourself emotionally and mentally healthy and seek help if needed. Also, be aware that these stories may differ from his or her partner’s, as these accounts are told, from their own perspective through the lens of trauma, heartache, and the passage of time. Please respect our moms and dads, who are brave and gracious to share their children with us.

Scott 1:22
Yeah, it was a very long day actually. We went to the doctor’s October 2nd at 8am. Just a normal checkup. And Meghan was getting the checkup. I was supposed to go get the Tdap shot. And so, and then I had to go to work. So they were, Alright, here’s your shot. And then I was about to head out and doctor’s like, Hey, let’s listen to the heartbeat. And used a little–I forget what it’s called–couldn’t find a heartbeat. But then she got the ultrasound and still couldn’t find anything. And so that’s when we found out.

Lee 1:54
Let’s talk about you. What do you do, Scott? What do you–

Scott 1:58
Um, I work for a nonprofit. We help teach and train people with learning mental disabilities like autism, Down syndrome, traumatic brain injuries, how to join the modern workforce, either with custodial work, filing, stuff like that. The ones that we can’t find jobs out in the real world, we actually hire them inside of our company, and we pay them to do that same thing, custodial, stuff like that. Some of them do piecework, and they just put stuff together. And we package it up, and we ship it out to the different places that we have contracts with.

Lee 2:38
Wonderful. And then your wife Meghan, she recorded her podcasts earlier, but how did you meet Meghan?

Scott 2:46
I met Meghan through a friend of ours. I was working at a hookah lounge. And…yeah. And…she, our friend came in, my friend came in and then she came in. We just–that’s how we met. We hung out. Became friends. Had a great time. And that’s pretty much how it was. And that was about 2007, 2008.

Lee 3:12
Well, good. And your daughter, Meghan–sorry–your daughter, Henley. I hope you didn’t marry your daughter! Your daughter, Henley, is she your first?

Scott 3:24
She was our first. Yeah.

Lee 3:27
IS she your first, I guess…yeah.

Scott 3:29
Yeah.

Lee 3:30
And tell us–start at the very, very, very beginning. Were you guys planning on a child or…?

Scott 3:36
Yeah, for a long time, I was, you know, just wasn’t sure if I wanted kids. I had a rough childhood and I didn’t want to have my baggage put onto my kids, kind of thing. But after a while, I was like, Yeah, let’s, let’s let’s start. And that’s pretty much what happened. We just kept going and going and then finally everything was great. And she’s pregnant and I was super excited. Decorated everything, just went all out.

It’s a double edged sword right there. It hurts.

The room’s still set up too. Name’s still on the wall and everything.

Lee 4:15
Man. So you were going to go get your Tdap boosters.

Scott 4:18
Yeah. What’s that?

Lee 4:22
Is it a booster or just Tdap shot or–?

Scott 4:25
It’s a Tdap shot. I forget everything it does. I want to say it was like tuberculosis and some other stuff like that. It’s basically just a cocktail of different things. And so when in for that, and this is probably only the third appointment I’ve ever gone to with Meghan. And so it was like, Alright, well, I gotta get to work too. So her appointment was 8am, and about 8:15 or so I got my shot and I was about to head out and the doctor stopped me. And she was like, Wait, let’s listen to the heartbeat before you go. And I’m like, alright, yeah, okay. And so she grabs the little thing and can’t find it. And at first, I wasn’t thinking too much about it, because this was only my third visit with the doctor and everything. But then I’m looking at her face and–the doctor’s face and I can see that she’s looking a little concerned, actually a little pale. And she’s like, You know what? I’m just gonna go grab the ultrasound and she brought it over. And she’s doing it and I can see, Henley’s heart, and it was not beating.

And I instantly was just crushed. But Meghan was holding it together. She’s, she’s gotten really good with dealing with loss. She’s lost, she lost her father and her grandmother, both in 2016. So she’s like, Okay, let’s go to the next step. Meghan starts getting cleaned up, we grab her stuff, and the doctor’s in tears, and she’s hugging us. And I can see Meghan’s trying to hold it together, so I’m trying to hold it together for her. And we just get in the car and we start driving to the hospital, which is about 15 minutes away from my, our doctor’s office.

And we check in and there was like no rush. Nobody was like, Oh my god, let’s check this and everything. So we’re like, alright, obviously, they’re pretty confident in this doctor’s findings. And it was literally like, about an hour or so after we checked in the hospital before the ultrasound technician came with her machine to confirm. And they confirm everything. They didn’t even turn their screen away as they were typing their findings into the computer. So we were able to see and read everything.

Lee 6:39
That’s–I don’t know it, it’s one of those situations where, you know, who, what do you want to know? What do you want to do? And when we are in that situation, we’re just completely clueless and oblivious to what really is normal and that doesn’t sound normal to me like, Ah!, you know?

Scott 7:01
Yeah, it definitely didn’t feel or feel normal. I was just like, Why isn’t anybody coming in here? Like all we had was our nurse, who was adorable. She was, she, she’s a new nurse. And she, she’s in tears. As soon as we got she walked us into her room, she was in tears. And she’s like, I’ll be honest, I’ve delivered multiple babies. But this is the first situation like this I’ve dealt with. And she’s in tears. And Meghan and I were still focused on Okay, next steps. Let’s figure this out. And so it was a little rough seeing her cry.

And, but then later on, I guess we scared her, because none of us, neither of us are crying, and the nurse literally pulled me out of the room and is like, Is Meghan okay? Like, she’s not showing anything. Is everything okay? And I’m like, This is just–she’s just, she’s very…I don’t want to say goal oriented, but she’s very focused on the task. So that’s what was going on.

Lee 8:00
The time and place, time and place.

Scott 8:02
Yeah, pretty much.

Lee 8:03
So what happened after there was the confirmation that Henley did not have a heartbeat?

Scott 8:08
After the confirmation and everything, we waited a bit longer. And a different doctor than ours–because ours was still at her practice. She was actually not supposed to be scheduled to go to that hospital until the next day. So a different doctor came in, who does work alongside with our doctor, and a really, really nice guy. He honestly kind of sounded Jamaican, which was really interesting. That accent was definitely interesting to listen to while he’s trying to give us all the information of what’s gonna be going on.

But he gave us all these selections that we could do and what could happen, kind of thing. Like if we tried to induce, what could happen. Because Henley was really breech up in Meghan. Like her–Hendley’s head was actually up under her ribs. Yeah, she was way up there and he’s like, Well, you can try to induce. But the problem with this, is since she’s not moving around or anything, her head can get stuck. And then we’d have to do a more in depth kind of surgery, kind of thing, which could actually ruin Meghan’s possibility of getting pregnant again in the future. And so he’s like the safest, in my opinion, would be the C-section. And so, Meghan and I talked about it for a bit, and we decided to go with the C-section. But Meghan wanted to wait till the next day to have her doctor, the one that she’s been with this whole time. And so we kind of just hung out. Meghan and I–

Lee 9:45
Did you go back home, or…did you go back home or were you hanging out at the hospital?

Scott 9:50
We stayed at the hospital the whole time. Meghan, actually, her body started to realize something was up and started having mild contractions and stuff. So we didn’t want to go back home. And plus anything we’d be able to face going home, because we had nursery all set up and everything. Didn’t want to really see all that right now.

But we had a great family friend. She went and she came to the hospital. She was talking to us. Everything. I started making phone calls to people like Meghan’s mom, who was in California at the time. They were on vacation, her and her stepdad, her and Meghan’s stepdad, they’re on vacation. And so they’re like, We’re grabbing our stuff; we’re driving back now. And our friend, she went to our house. She picked up a whole bunch of stuff for us–laptop, pretty much anything to keep us distracted. And then I left my car at the doctor’s office. So her husband had to drive my car, because of the stick shift, back to my house.

Lee 10:51
It’s safety security right there.

Scott 10:53
Exactly. Nobody can steal my car.

But I didn’t want to leave it at the doctor’s office, because it has all my work tools in there. And so he grabbed that and he drove it back home. They came–she, uh her, his wife came to the hospital, gave us all our stuff and food. And we just kind of just, try to stay focused on what needed to happen. And also distract yourself. Watch Netflix and movies and stuff like that.

Lee 11:24
And so the next morning happened. Well, I guess–

Scott 11:26
It was later that night. Her doctor didn’t want us sitting in the hospital that long. And so she, after she left her practice, she went home, fed her kids, had dinner really quick. And then she came in around 10:30 at night. And she’s like, I’m coming in. If you guys want we’ll do this now. And that way, you guys can recover. You’re not sitting here suffering and thinking about all this. And that’s when it got me even more. I actually had to step out and just the fact that she was willing to come in, when she was already going to be on call the next day. She was already at work all day. And it just was really touching.

And so we said, Okay, we’ll do it. Meghan’s mom and stepdad finally got there at that point. And we told them what was going on, what the plan was. And her stepdad was awesome. He actually smuggled in a water bottle filled with vodka and cranberry juice for me. Because he saw I was on edge. He snuck that in for me, and then we got ready. And we did the C-section. And it was about an hour or so going. I was just there, focused on Meghan. The blind was up, so we couldn’t see anything. And both of us are in tears the whole time, just– And then finally like the nurses, the doctors, everything just went quiet. And that’s when we knew that Henley was, was finally out. And yeah, there’s–the silence is just, it was deafening.

And then after everything was sewn up, all that stuff with that, the doctor talked to us for a little bit after everything was cleaned up. And she believed that it was caused because Meghan’s placenta was on the front of her stomach area, not in the back, but her umbilical cord was abnormally short. It was…she said that she barely had enough to take Henley out and put her on Meghan’s stomach. It was so tight. So we think that…the doctor thinks that, every time Henley would try to roll to get into position, she was actually kinking her cord and cutting off all the supplies she needed, until it finally just collapsed. Yeah.

Lee 14:06
It is one of those situations where, after our son Brannan, the doctor, the doctor said it really is how anybody is ever born, is amazing. Because anything and everything can go wrong. So Henley is delivered via C-section, you guys wheeled back to the room, what happens after?

Scott 14:30
So, we get back to the room. We transfer Meghan into her bed and we did that. And we’re–the doc– nobody comes in for a bit. They’re cleaning Henley up and everything in the other, in another room. And we’re just sitting there waiting. Meghan’s kind of joking a little bit, trying to keep things light, because she’s like, The weirdest part is I have no idea where my legs are in space. She’s like, I can’t feel anything. I’m looking at my toes, telling them to wiggle, but they just won’t move. So she starts to get a little bit of movement back.

And that’s when the nurses come in and says, Are you guys ready to see Henley? And we bought an outfit and everything that Meghan’s mom purchased–this cute little Ralph Lauren, pink onesie. And I brought a hat from home and everything. And like, Yeah. And so she came in and handed Henley to Meghan. And she’s holding her, and we’re just, we’re just looking at her and admiring her. And the nurses, we asked her to take some photos with us. And so she’s taking some photos of us and everything. And the one thing I was super curious about, and I needed to see, was her hair. I needed to know she took after me or if she took after Meghan and she took after me.

Lee 15:55
In what way? She took after you because you have dark hair and, or–?

It was dark, thick, curly hair. So she didn’t take after my color when I–my hair color when I was born. I was, when I was born, I was a toehead. Just straight white blond hair. But with the curls and how thick it was, we knew she took after me, because Meghan’s hair is like, stick-straight and very fine. So that was the one thing I was super intrigued by. And I was sad, but so happy to see that she took after me in that point. But everything else was Meghan. She had Meghan’s nose and her cheeks. And it was…it was great. And I mean, not great, but great seeing it. And yeah…it was heartbreaking.

It’s a cruel situation. So you guys, how long were you in the hospital?

Scott 16:54
We got to the hospital around 9:15am. And we were there…

Lee 17:01
You delivered at midnight-ish…

Scott 17:02
We delivered at 12:39am. Yeah. Henley was born. And we stayed there for…we were cleared to go actually, the next day. The doctor was like, you’re doing great. Meghan was already walking around, struggling a little bit, but she was still walking in her own power. And the doctor’s like, If you guys want, you can go home the next day. And Meghan’s like, No, I’m gonna stay another night. And so we stayed another night. But when we had Henley with us, her mom, Meghan’s mom was in another room. And we were going to set up in another room for her to see Henley and the hold and stuff like that. We didn’t think that we’d emotionally be able to see her with her granddaughter at that point. And so, but we asked her and she, she’s like, No. She was more worried about her daughter, wanted to check on Meghan and everything like that. So we’re like, Okay.

We had her for a bit. And we both wish we would have had her longer, because we had the option to, for up to 24 hours. And but at the time we couldn’t do it. We started breaking down and we just…yeah. So we decided not to go home the next day. We decided to stay the night again. And so we just–hanging out watching movies, friends visiting, relaxing, and just taking care of her as best–taking care of Meghan as best I could. I keep saying her and I keep forgetting we’re recording.

Lee 18:39
Did you guys decide to have a funeral for Henley or–?

Scott 18:45
We didn’t do a…we didn’t do a funeral. We had her cremated. We got in contact–there’s an nonprofit here in Vegas Meghan found, and I–honestly I have, I’m really bad with memory, so I don’t remember the name of it. But they got us in contact with a funeral home. And they, I guess the owners had a loss as well. His child, I believe, was two, when it passed. And he decided that any child under under five, he will take care of all cremation for free just to help out a family and all that stuff.

Lee 19:26
It’s, it’s, it’s amazing because we’ve had so many people, so many people come to our aid and it’s a wonderful little mercy for us. It’s, you know, it’s hard to make decisions in that situation. And it’s, it’s just terrible.

Scott 19:46
For sure.

Lee 19:47
So do you have Henley–some parents have like…we have a friend who had their daughter cremated, and there’s this nice little heart that they have on their shelf. And then we have another friend who, they split up the ashes into vials and the husband has some and he wears it. Almost dog collar-ish, dog tag-ish…um not dog collar, but dog tag…

Scott 20:15
So it came, she came in a little box, and it looked plastic. I wasn’t a fan of this box. I actually hated this box. It just had a little teddy bear on it. I found online another urn and it’s a castle, and it reminded me instantly of the Disneyland castle. And I’m like, She’s my princess. We’re going to get this for her and ordered it and we transferred her in. And right now she’s sitting on her dresser inside of her room with a teddy bear that our friend got us, which was a huge help. She found out that there’s a group that you can purchase a teddy bear for them and they will weight the teddy bear to the exact weight of your child they lost. And so this teddy bear, it’s there. It weighs four pounds, 10 ounces, and it has Henley’s name on it. It has her weight and her birth date on it. And it’s just sitting there, along with some custom onesies that that we had with her name on anything. And it’s just sitting on the shelf on her dresser. And also on the castle is a set of Mickey ears that you get in the park with her name embroidered into it.

Lee 21:30
Now just to let everybody know, Scott and Meghan go to Disneyland a lot.

Scott 21:37
Every every four to six weeks.

Lee 21:39
Every four to six weeks, so…

Scott 21:42
Huge fans of Disney. I was really looking forward to taking Henley to Disney, because the first time we would have taken her would have been, not this last trip we did this weekend, but the one right before. She would have been old enough and had her vaccinations and we could have taken her.

Lee 22:02
Do you take that little stuffed teddy bear with you?

Scott 22:04
We have not taken the stuffed teddy bear, but I do have a little stuffed Groot. Not, not the one that I showed you before, but another one. And it was the first stuffy I purchased for Henley while Meghan was still pregnant with her. And it was the very first stuffy that she was going to have. That one I do take with me and I–sitting on my nightstand with me. I have a bracelet that’s custom-made with Henley’s footprint and her name on it, and at night when I go to bed that bracelet is sitting on top of that Groot’s head, just right there for me to just to always know to grab it. I was looking for an embroidery house here that will actually embroider her name on to that Groot.

Winter and Lee Redd 22:54
Oh?

Scott 22:55
Yeah, I have not been able to find one that I’m willing to leave the Groot with overnight, cuz it’s, it’s just so precious to me, that I don’t want to risk anything.

Lee 23:06
You might get a patch. And then you sew the patch on yourself.

Scott 23:10
Yeah, I was thinking the patch. I was gonna, I was trying to take it to Disneyland and see if they can do it with their machines there, that way we can actually get the same thread and font that we have her Mickey Mouse ears. And but they said that they won’t do it. They’ll only do the stuff that they personally sell in the parks and this one was never purchased at the parks.

Lee 23:33
Well, good luck finding a workaround, so…. Is there anything else you would like to tell us about the birth of your daughter Henley?

Scott 23:44
The night before we had the doctor’s appointment, is what really sticks with me and Meghan both. It uh…we were laying on the couch, and Henley was kicking up a storm. Like just crazy, more than she’s ever done before in the past. And we’re like, Maybe she’s rolling to get into position, stuff like that. Didn’t think anything of it. And then the next day is when we found out what happened. And that’s what really sticks with me, because I’m like, Was this actually her kicking in distress, and we just didn’t think about it? Because we were never–we were always told to look out for lower amounts of movement, not higher. That’s the one thing that really sticks with me that, that I think about daily.

Lee 24:31
It’s heavy. It’s…I have no words. But it’s–I’m sorry. That’s all I can say.

Scott 24:41
Thank you.

Lee 24:42
Thank you.

I personally would like to thank Scott for being on the podcast and opening himself up. It’s hard to be vulnerable, and to share this special story with us. Thank you, Scott.

Head over to our website StillAPartofUs.com. There, you’ll be able to find the show notes including a full transcript of this interview and any resources that were mentioned. There you could also sign up for a short and helpful email newsletter. You can also find out how you can become a patron and support the work it takes to produce this show for just a few dollars a month. And lastly, you can find out how to get in touch with us if you want to share your child’s story with us.

The show was produced and edited by Winter and Lee Redd. Thanks to Josh Woodward for letting us use his song “She Dreams in Blue”. You could find him at JoshWoodward.com. And lastly, subscribe to the podcast and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they are still a part of us.

“A balanced diet is a cookie in each hand.” Barbara Johnson

Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: c-section, stillbirth, stillborn

30: Mom Meghan’s advice to watch for large, erratic movements during pregnancy

March 1, 2020 by Winter

Because of her experience with her stillborn daughter Henley, mom Meghan tells of how she always warns and advises other pregnant mothers to watch for large, erratic, unusual movements from their baby, which may be a sign of distress. She also encourages other loss parents to do what is best for them when it comes to the time they spend with their baby after birth.

Newlyweds Meghan and Scott

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission. This commission comes at no additional cost to you, our wonderful listener!

In the Advice podcast episode, mom Meghan discusses some things that helped her after Henley’s stillbirth:

  • Time Stamp 3:51: What Meghan advises and warns pregnant women
  • Time Stamp 6:24: Leaving behind the land of “what if”
  • Time Stamp 8:12: Meghan and Scott attend grief support groups and therapy
  • Time Stamp 11:42: Getting tattoos so they can talk about Henley
  • Time Stamp 13:42: Best advice she has to other loss parents
  • Time Stamp 15:03: What not to say–it doesn’t make anyone feel better
  • Time Stamp 22:04: Meghan’s father and grandmother passed away in 2016
  • Time Stamp 23:32: How Meghan works as a nanny
  • Listen to Meghan’s birth story of Henley here in Episode 29.
  • Listen to Meghan’s husband, Scott’s birth story of Henley who was stillborn here in Episode 31.
  • Listen to Meghan’s husband, Scott’s advice after Henley was stillborn here in Episode 32.
  • Apple Podcasts
  • Stitcher
  • Google Podcasts
  • Spotify

Full Transcript

Winter 0:11
This is Still A Part of Us, a podcast where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter Redd and in this episode of Advice and Encouragement from a Loss Mom, I chat with Meghan, whose daughter Henley was stillborn at 36 weeks.

By the way, you can hear Meghan’s and her husband Scott’s episodes about the birth of their child on episode 29 and 31. Today, we discuss with Meghan how she makes it a point to tell Henley’s story and the warning she has for other pregnant women, how she encourages other loss parents to do what is right for them and to not let anyone else try and change anything,and how she and her husband have drawn closer to one another after losing Henley.

As a word of caution to our listeners, this discussion contains emotional triggers of stillbirth and infant loss. Please keep yourself emotionally and mentally healthy and seek help if needed. Hope this helps someone out there.

Meghan, thank you so much for being on this episode with me. I really appreciate you coming on telling Henley’s story. And it was beautiful. And I–it was so similar to ours, so it’s just like, Oh! Just heartbreaking. So I’m so sorry that has happened to you and your family. But thank you for sharing, because I feel like you–actually, I know you have something to share that I think is extremely important. You mentioned it already in the birth episode. So if you haven’t had a chance to listen to that, go back and listen to Meghan’s story. So welcome. Welcome, welcome.

Meghan 1:51
Thanks. Thanks for having me.

Winter 1:52
And for context, can you tell us about how long ago your child was born at the time of this recording?

Meghan 1:58
So she was born just under four months ago.

Winter 2:01
Just under four months ago, so and…so you’re, you’re kind of still in the very new stages, Meghan. How is the grieving process looks like for you,?

Meghan 2:12
Every day is different. I mean, the beginning was really hard. There was lots of crying. There was, you know, just lots of days but not wanting to do much. As time’s gone on, it’s, it’s getting–I wouldn’t call it easier, but I’m more able to do the normal things you got to do. You know, I went back to work and, you know, you kind of just have to move on with the day-to-day, but, you know, not necessarily do I cry every day, but there’s definitel,y at least a couple of times a week something out of the blue will strike that brings it all right back.

Winter 2:47
Yeah. Anything it feels like–

Meghan 2:49
It can be just the most random of things.

Winter 2:52
Yeah, anything.

Meghan 2:52
It doesn’t. There’s no rhyme or reason to it. And sometimes like this last trip, we went on to Disneyland, I started crying in the line for the Incredicoaster and I have no idea why. I couldn’t tell you, like you know… Scott looked at me and he’s, What making you upset? And I’m like, I don’t know!

Winter 3:09
Yeah, you’re like, I can’t tell you. It just happens. So what have you done–you mentioned before that you like to go and sit in her room sometimes and rock on her rocking chair, and maybe even sit with that little weighted Teddy bear. Other things, what are some other things that you like to do to think about her, to remember her, to celebrate Henley on a day-to-day basis?

Meghan 3:31
I mean, it’s my goal to, anyone that’s willing to listen gets told about her. And anyone that I know that is pregnant or intends to be, gets told her story. Not to scare them, but to tell them the things I wish I would have known that might have made a difference.

Winter 3:51
Yeah, because you…can you, can you tell us exactly what you tell people? I actually want you to say it again on this episode too, because I think it’s super important.

Meghan 4:00
I tell the whole story to pretty much everyone. I mean, I even have a friend currently that lives out of state, but she’s pregnant. And I didn’t know, but she knew she was pregnant when I told her I lost Henley. So she’s 22 or 23 weeks pregnant right now. So immediately, she tells me, she didn’t tell me until like two weeks ago, but when she told me my first thing was, Okay, I don’t want this to scare you. And I’m not telling you to scare you. But the doctors don’t tell you and you need to know: if your baby has–you know, you get to know their movement pattern, you get to know what their kicks feel like. If they start moving a radically a lot, crazy intensely, please go get checked out. Even if you get there, they check everything and they tell you you’re crazy, I would rather have you find out that everything was fine, than be me who didn’t know, and had I known and could have made me saved her.

Winter 4:53
Yeah. That is so, so important. That was the thing that struck me when you email to me, was your kind of emphatic plea like, I want people to know this, I need people to know this. I need women to know this, so that they can take care of their babies.

Meghan 5:08
Because I even took the time and asked my doctor–well, I didn’t ask my doctor, but I asked another doctor–why they don’t tell women this. So even though I’m not the only one that I know, that has had this and then had something happen. And basically I got told by this doctor, that if they told all women, that any kind of erratic movement could be a sign of distress, they’d have people in, getting checked every two minutes, and it’s just highly unlikely that that’s what it is. Now mind you, this wasn’t actually my doctor. This was just another doctor that I was talking to, because I don’t think my doctor would be that callous or cold. But it just makes no sense to me. I mean, so what we’re wasting the hospital’s time, a certain percentage of the time, but how many babies is it going to make a difference in?

Winter 5:54
Exactly!

Meghan 5:55
Like it’s worth it.

Winter 5:56
It totally is worth it. Ah–that, that’s frustrating.

Meghan 6:02
It really is.

Winter 6:03
It’s–that’s frustrating. So I–

Meghan 6:05
Obviously I didn’t have a reason to think anything of it. Also just had no knowledge. First pregnancy–I didn’t know. And everything had been so healthy and so fine.

Winter 6:15
Yeah, exactly. They’d been checking you out. You’d looked great. And I–yeah, it’s frustrating when you’re like, kind of takes your innocence away, right?

Meghan 6:24
Yeah, I mean, I’ve gotten to a place now where I know I can’t live in the land of “what if”. I can’t keep thinking, Well, if I had done this, maybe this would happen. Or if this had happened. I can’t, I can’t live there, because I can’t change it. So the best I can do is try and tell everyone else to hopefully prevent something bad from happening to someone else.

Winter 6:41
Yeah. I like that–not living in the land of “what if”, because that will eat you up.

Meghan 6:46
It will.

Winter 6:46
It was totally eat you up. Is there anything you guys do–and I think I know the answer to this–that you guys try and do to like physically escape and trying to basically take your mind off of it?

Meghan 6:58
We go to Disneyland!

Winter 6:59
You go to Disneyland! I was like, I know you were going to say that!

Meghan 7:01
That’s our thing–

Winter 7:02
Which I think is great.

Meghan 7:04
The first trip back after losing Henley was rough. I wasn’t even sure I wanted to go. I wasn’t sure how it would be. I didn’t know if my happy place would be ruined. It was hard. You know, seeing people with their children, thinking about all the things we thought we’d have her there for, was hard. But in the end, we did have a good time. And it was still enjoyable to us. And we’ve been back additionally, another time since then now and, you know, I made it through this last trip. I only cried one time, and I had a good time the rest of the time. So it’s still the place that we go to be happy.

Winter 7:41
Yeah, that’s– Yes, watching and seeing all the other little families with their little babies. And then kind of the, once again, the “what ifs”, like, Oh, Henley would be able to, you know, do this and do that. And yes, there’s a lot of–

Meghan 7:55
We really hope that one day that will be fulfilled with another child. Obviously, it never will be with Henley, but one day we’ll get there with a baby.

Winter 8:03
Yeah, yeah. Yeah. Meghan, do you guys go to counseling or any grief support groups or anything like that?

Meghan 8:12
We’ve been to the support group that our hospital runs, the hospital delivered at. We went once. And it’s bi-monthly. So they actually have it every month, but one month, it’s on one side of town, and then one month, it’s, you know, 40 miles in the other direction. We didn’t go to the very first one because it was like, the week after I had her and I was like, I just–can’t go there yet. So we went the next month, and then they didn’t have one. They had a Memory Tree event in December, where they have people bring in ornaments for their babies and they get hung on a tree that stays in the hospital lobby all through Christmas. So we did go to that. We actually, when we were at Disneyland, picked up an ornament, had her name put on it and everything. And that hung in the hospital through the Christmas season, and they’ll put it up every subsequent year.

Winter 8:57
Oh, that’s great.

Meghan 8:57
They’ll put all the ornaments back up. And then there’s another group, the grief support group, there’s another one in the next month, so we’ll go to that one. That was pretty helpful. And then I started counseling for the first time last week, so I’ve only gone once. But I felt like I found the right counselor. I found someone who, not only specializes in this situation, but also has personally been through it.

Winter 9:22
So experienced a stillbirth herself?

Meghan 9:24
Yes. She said about two years ago.

Winter 9:26
Oh, that’s, that’s pretty recent for her too, if you think about it.

Meghan 9:30
It’s impressive to me that she’s willing to counsel others about the same thing.

Winter 9:34
Yeah. Exactly. Well, that is, that’s great. And I, we’ve–I’m a huge fan of therapy. I mean, so and especially shopping around for somebody that is a good fit. And it sounds like it’s a good fit.

Meghan 9:45
I had, I actually had tried another place first, and I just didn’t–like it was one of those like, you walk in and you’re just like not feeling it.

Winter 9:52
You’re like, Nope.

Meghan 9:52
I was going, This is not gonna work.

Winter 9:54
I already know. I don’t know what it is. Exactly.

Meghan 9:57
And so the way I came about this therapist was actually very unique. I was at storytime at the library with my friend’s daughter. I was babysitting my friend’s daughter and had brought her to storytime. And I somehow ended up in a conversation with these other moms, talking about their C-sections. And I’m just not shy. So I just interject with mine. And I mean, obviously through the course of the story, they find out that, you know, Henley was stillborn. And not–didn’t really think much of the conversation just kind of said some things. They were just kind of impressed that I was there, you know. And then we went into storytime and that was the end of that. Don’t even know these people’s names, talked to them for maybe 10 or 15 minutes. The next time I came back to the library, now mind you this library, the librarians know me, because I’m a nanny, and I’ve brought lots of kids to storytime.

Winter 10:43
You’re there, you’re there.

Meghan 10:44
They’ve seen me with a rotating group of children and so they know who I am. The librarian comes up to me and says, Oh I’ve been waiting for you to come back in, you know. This woman that you talked to the last time you were here, she left this for you. She left me a whole letter, like four pages long about her story, about things that had happened to her. She had had loss, not stillbirth, but earlier loss. And then said, You know, I don’t know if you’ve thought of this, but I’ve been going to this counseling place and they’ve helped me immensely. And they specialize this, in this and left the brochure for the Counseling Center.

Winter 11:18
That is amazing.

Meghan 11:19
So it’s just another case of were like, talking about it is worth it. You know, as much as you’ll make some people uncomfortable, there are so many people that have a story that aren’t willing to say it, until you start the conversation.

Winter 11:35
Exactly. Exactly. Yeah. Right. That’s, this is why we have the podcast, so we can talk about it.

Meghan 11:42
I personally, so my husband and I both got tattoos after we lost Henley, and put them in a very visible place and it’s intentional. It’s on my left forearm on the inside, so, you know, if I’m handing anybody anything, they’re going to see it. And it’s it’s intentional for people to read it and ask a question. So my tattoo says “Henley Ryan. I carried you every second of your life and I will love you for every second of mine” and it has my birth flower and hers.

Winter 12:06
Oh, that is awesome. Ah look at that!

Meghan 12:10
There you go.

Winter 12:11
Oh, that’s so cool.

Meghan 12:13
So I intentionally put it there, so that, you know–there are people that read it and just you can tell they get the like, ahhhh look on their face and and don’t say anything. But there’s a lot of people that read it and go, Oh my goodness, that’s so sweet. What happened? And I totally want you to ask what happened. That’s why I put it there. I put it there, so you’ll ask me.

Winter 12:30
Yeah. Does your husband have it in kind of a similar location?

Meghan 12:33
He’s got a tattoo on the same spot.

Winter 12:34
Oh, really? Okay.

Meghan 12:35
His tattoo says something else. Got a different quote. And his statue instead of flowers has her actual footprint.

Winter 12:40
Oh, really?

Yay. That’s awesome. That–yeah, I…those physical reminders actually are, I think, very helpful. My husband has a tattoo as well. And that’s, he has it on his forearm so people can ask him about it. And it’s been very good for him.

Meghan 12:42
Yeah.

We got him done about four weeks after we lost her. As soon as I thought my doctor–well I didn’t even ask my doctor. I was just like, What’s the worst that’s gonna happen? She’s gonna yell at me? I’m doing it! As soon as I felt up to it, I was like I’m doing.

Winter 12:57
Yeah, yeah. Well, there you go. I’m curious what you would say to somebody that is experiencing a loss like this, that anything that you found comforting to you that you heard, that you would maybe want to pass on to somebody else?

Meghan 13:24
I mean, the best advice I can give is take all the pictures. Take, you know, take all the moments you can. Make sure you dress them, make sure you bring–you know if you had a specific like swaddle blanket picked out that you were like, I’m going to use this for my baby, put it on them and take a picture. Because these are the things that like you’ll regret not having them down the line. Call the professionals. Let them come take great quality photos for you. And no matter what you think anyone else is going to think about it, spend as much time as you want to with that baby. It’s totally up to you. I don’t regret my choice. I mean, I wish I would have spent a little longer with her, but I don’t regret what we did. It felt right at the time. And then there, you know, there’s other people that want to spend the full 48 hours they’ll give if they have a Cuddle Cot, and that’s fine. You do what feels right to you. Don’t let anybody else aside from you and your partner influence that decision.

Winter 14:18
Yeah. That is great advice. I have found that different people want to spend, yeah, exactly 48 hours or however long that they will let you have them. And then others were like, that was good. I need to…I need, for myself, closure. And they–

Meghan 14:33
We gave her back when we did, because she could started leaking fluid out of her nose and she just wasn’t going to look the same. And I wanted the last memories to be of her looking as good as she could. So you know, it’s a personal choice, and don’t let anybody else try and change how you feel about it.

Winter 14:54
Yeah, yes. Now Meghan, what would you NOT to somebody that’s experiencing such a loss?

Meghan 15:03
Well, we’ve had some things that people say that, I think, that no one should ever say to people.

Winter 15:09
Don’t call anybody out by name. But go ahead. I would love to hear them.

Meghan 15:12
Well, these aren’t like specific people we’re close to. This is just like, you know, in the course of people on the street. Right. No matter your religious beliefs, whether you’re religious or not–we’re not. Some people are. That doesn’t matter. Don’t ever tell someone it was God’s plan. Don’t do it. No matter how much you believe that, it’s not comforting in any way, shape, or form.

Winter 15:35
No, no, not at all. I mean…

Meghan 15:37
You can tell me that, you know, you’re praying for me. And that’s fantastic, because that means you’re thinking good things for me. Awesome. Don’t ever say that it was God’s plan. Don’t tell me everything happens for a reason.

Winter 15:48
Oh, yeah. Hate that one too.

Meghan 15:50
These are not good things to say. They’re not comforting. And if you don’t know what to say, at all, just say you’re sorry.

Winter 15:56
Yeah. That’s huge. I love when people say I’m just sorry about what happened. And I’m like, thanks.

Meghan 16:01
I’m so sorry. That’s horrible. Yep. That’s enough. If can’t think of anything else, that’s enough. You’ve said something.

Winter 16:08
Yeah. And you thought about me, so that’s good. Yeah.

Meghan 16:11
And don’t–you know, the other thing that was that I think now is hard, is don’t don’t not say anything because you don’t know what to say. Don’t just disappear, because you don’t know what to say. I know it makes you uncomfortable. It makes everyone uncomfortable. I’m going to be uncomfortable for the rest of my life.

Winter 16:29
Yeah, I’ve got this with me.

Meghan 16:30
But you’ve got to say something. Don’t just ignore the existence. Like say something! And I finally, I posted on social media a couple of days ago, I posted something telling people that I want them to ask me about her. I want them to say things. I got tired of everybody just kind of like skirting around the subject. This is what we’re doing.

Winter 16:54
So it was, it was–there was a lot of people kind of tiptoeing around?

Meghan 16:58
Oh, lots of people dancing around, not wanting to ask anything. And I’m like, just, just ask. The most comforting thing you can do, is ask me about her. She existed.

Winter 17:08
Yeah. I carried her. I gave birth to her.

Meghan 17:12
Oh, yeah. And then we’ve had, you know, in conversations with other people, you know, kind of like I said, when I jumped into that conversation at storytime, I’ve had other conversations where I’ve jumped into somebody’s conversation about pregnancy or birth. And you can tell it just makes them totally uncomfortable. I jumped into this conversation, and I want to be like, Look, just because I didn’t bring a baby home, doesn’t mean I didn’t have a baby. I went through the same thing.

Winter 17:35
Yep. Yep.

Meghan 17:37
The only difference is your C-section ended with a baby crying and mine ended with silence.

Winter 17:42
Yeah. Yep. You still gave birth.

Meghan 17:45
Yep.

Winter 17:46
You carried her.

Meghan 17:48
Yeah. And you’d be surprised how many people are totally uncomfortable with that. Or the people that are just like, I don’t want you to, you know–your story. It makes me uncomfortable, and I just I can’t talk about it. Well, then I guess you can’t talk to me like, I guess we’re done then.

Winter 18:05
Yeah, cuz you’re like, this is part of who I am now.

Meghan 18:08
This is my life. And if you’d like to be a part of my life, then this, this is part of what we have to talk about.

Winter 18:13
You know, it’s interesting. I listened to a TED talk and, and it was a woman who had experienced stillbirth. And she’s like, the one thing about stillbirth is kind of like, it’s like a fire, a slow burning fire, that it burns away all the stuff that doesn’t really matter. So sometimes those relationships and those things that really just don’t matter, kind of go away.

Meghan 18:32
You also kind of lose a lot of your filter for things. I’m real blunt with people now. You know, and, and sometimes the hardest conversations that people have, they haven’t, not meaning it for it to be an in depth, very personal conversation. You know, Oh, do you have kids? You know, just the general we’re just trying to have a chitchat. And I don’t lie. So I answer and I respond. Yes, I have a daughter, but I lost her at 36 weeks, and then they’re uncomfortable and they don’t know what to do now. Well, you asked the personal question, so you get the answer. If you didn’t want the answer, don’t ask the question. You could have just been like, you know, It’s been hot outside today.

Winter 19:14
Yeah, the weather!

Meghan 19:16
You chose to ask the question. Don’t be astounded by the answer.

Winter 19:19
It is a very personal question. People don’t realize it, but it’s a very personal question. So…

Meghan 19:24
It is, and I mean, it’s, it’s a personal choice on how you decide to answer. I refuse to say, I don’t have any kids. But honestly, there are some times where I think about it. And sometimes I will. If I’m never going to see this person again, and I passed them in the grocery store for five seconds, sometimes I’ll just be like, No, and then keep walking. Because it’s just, sometimes it’s exhausting to have to go through the whole conversation or just deal with the people that like, look at you, Ahhhh! I don’t know what to do.

Winter 19:48
Yeah. Don’t be like those people. Come on, people. So how has Scott, your spouse, handled the loss? How has that looked like for him and as a couple even?

Meghan 20:01
I mean, he’s been great for me, but he definitely is a lot more quiet about it. Like any conversation about Henley is initiated by me, not initiated by him. You know, everybody grieves differently and it’s been difficult for me to sit there and realize that just because he’s not grieving the same way I am, doesn’t mean he’s not grieving. But I think we’re closer than ever now. I mean, we have been through this and it’s probably the hardest thing we’ll ever deal with together and we’ve been together for a long time now. I mean, we started dating when we were 19. We’re 30, well I’m 32 and he’s almost 32 now. So been quite a while. Almost 13 years. So you know, it’s–every day is different and some days he does cry. Some days, he doesn’t say anything about her at all. And it’s it’s different for him than for me, because I talk about her every day, but you know, he’s never offended when I talk about her. He never doesn’t want to respond when I talk about it. I think he just doesn’t choose to initiate those conversation.

Winter 21:06
Right. And that’s fine. That’s just how he communicates. That’s what feels comfortable to him, it sounds like?

Meghan 21:12
Yeah, I’m sure his episode will be much less in depth on talking than mine. He just doesn’t talk quite as much as I do.

Winter 21:18
Most of the men’s episodes are a little bit shorter. And that’s perfectly fine. I think, kudos to you guys, though, for staying close to each other, and maybe even getting stronger in your relationship. Because these these can shatter a relationship pretty easily. These kinds of tragedies can be very difficult.

Meghan 21:23
I can see how it does.

Winter 21:36
Yeah. Because there’s so much stress and then you just like, Why aren’t you grieving like me? And it’s and it’s frustrating.

Meghan 21:41
Yeah. I mean, I think it somewhat helps that we had been through some loss together prior to this. And granted, it was my family, and not his, but we’ve been together so long that my family is basically his. You know, he was he was pretty close to my grandmother when she passed away and when my dad passed away, he was actually the one that found my father. So we’ve been through quite a bit together.

Winter 22:04
You have. So you, so mentioning these previous kind of deaths that you guys have experienced, did you think that was kind of a little preparatory? Or did you–? I’m just curious, like how you feel about having those experiences before Henley?

Meghan 22:20
Well, so we thought that 2016, the year that both those people passed away, was going to be the worst year ever, right? You get out of that and you go, Okay, this is as bad as it can get. Can’t get any worse than this. Well, I don’t think that way anymore. Because 2019 was worse than that. But I think that I was able to handle the loss of Henley a little more gracefully after having been through what I already have. I kind of already knew how my body was going to deal with grief, how my brain handled it, and you know, was able to deal with things a little better. I mean, I wouldn’t say you know, what really prepares you, but at least I had some background and experience on losing someone. Well, this is so much more intense than that. Even though that was my father and my grandmother. It’s still, this is more intense. This is somebody that didn’t ever really get to live at all.

Winter 23:10
Yeah. didn’t get a chance to–yeah. The death of dreams, is what they call it is. And I’m like, yep, that’s exactly what it feels like. I know it’s been short, a short four months, right?

Meghan 23:23
Yeah.

Winter 23:24
Have you had any realizations or “aha” moments about how you grieve or just about the entire process that you’re going through right now?

Meghan 23:32
Well, I’ve had people tell me that I’m kind of crazy, because like I said, I am a nanny. I wasn’t working when I…while I was working at the beginning of my pregnancy and ended up losing my job, because the family I was working for the mother got laid off from her job, and they couldn’t afford to keep me.

Winter 23:48
Oh, gotcha. Okay.

Meghan 23:49
So then I tried to find a job for a while, and finding a job as a nanny while you’re pregnant is just kind of next to impossible.

Winter 23:57
That’s rough, I’m sure.

Meghan 23:58
So I watched my little cousin for the summer while they were out of school. They’re, they’re twins. They’re nine-years old. So I watched them the whole summer while they were out of school, and it kind of gave me something to do in the meantime. And by the end of summer, I was really pregnant. So I was like, I give up. I’m not gonna try and find a job until after I have her. It’s fine, right? Like, so from the end of August until what was supposed to be the end of October, I was like, I’m just not gonna work. I ended up finding a job–well, I found the job the end of December, but I actually started this job about two-and-a-half weeks ago now.

Winter 24:29
Okaaay…

Meghan 24:30
And everybody thinks I’m crazy, because the child I’m watching now is two-and-a-half months old. And she’s a little girl. So, essentially, for all intents and purposes, I was due October 29 with Henley. This little girl was born on November 9th, so it’s exactly the same is what it should have been. Which some days is tougher than others. To look at her know, well, this is what she should have been doing. This is about how big she should have been. But for me, it would have been weird to find a job doing anything else, because I had a moment where I thought about not going back to nannying. And I’ve spent the last like, almost eight years of my life helping raise other people’s children. So I couldn’t fathom going and doing something else. And as hard as it as some days to be with her, it’s also healing in other ways to be with a baby, you know, for three days a week. Though, it’s not my baby, I get to be helping care for someone’s baby. So that that desire and that, you know, need to fill your arms is at least getting catered to in some way.

Winter 25:41
Yeah.

Meghan 25:43
I’m getting to do something with it. Yeah.

Winter 25:46
Oh, so hard, though. But that sounds like a little bit of a calling for you. It feels right, I guess.

Meghan 25:53
It feels right. And I think, you know, after what has happened to me, I’m probably the most attentive nanny to a baby that’s ever existed now. The intense anxiety and fear about something happening to a child is real. And I’m probably 10 times more attentive than anybody else would be. It took me a while to find a job, because when I was looking for work, I refuse to hide anything. So I refused to hide what had happened with Henley, and I was open about it. And I also refused to hide the fact that we do intend to try and have another child. I didn’t want to get into a position where I got hired for a job, and then got pregnant and somebody go, Oh, we can’t deal with that. So I was honest. And it took me a while to find a family to work for, but the family that hired me is very understanding. This is their first child. And they’re totally okay with the whole situation. They’re totally okay if I do end up pregnant. Like they’re fine with it.

Winter 26:55
That’s great.

Meghan 26:55
And the job schedule, I mean, it’s 10-hour days, but it’s three days a week, so it’s almost perfect if I do get pregnant, to be able to squeeze in appointments and things, it just seemed like the absolute right fit.

Winter 27:04
Yeah. Well, that is, that’s a blessing that that came along. And obviously you were patient to wait for the right, right opportunity, I guess. Oh man.

Meghan 27:15
Yeah, cuz I’ve been looking for a job actively, since I was cleared by my doctor six weeks after having Henley. So it took me, you know, a few months.

Winter 27:24
Yeah, it takes a while sometimes. Well good. I think that’s great that you’re doing that. I don’t know if I could do that. That would, I’ll be honest…

Meghan 27:33
I know, I have a lot of people that are like, I don’t know how you manage.

Winter 27:35
Yeah, I was like, I’m not sure how I would be able to do that. That would make me a wreck, I think. I’m pretty sure so.

Meghan 27:41
I know I’ve talked to some people that are like, I couldn’t be around a baby. And I’m like, everyone’s different.

Winter 27:47
It is! I and I was like, I think I still have not held a baby since our son passed away. Just I’m not really a baby holder either, so I guess it’s not too much out of the ordinary for me. I know that you’re going to be coming up here on, you know, Mother’s Day and Father’s Day in the next couple of months. Are you–do guys have anything planned? Are you kind of preparing for that or–?

Meghan 28:10
Not really. I mean, we start the “land of one year laters” February 19. Because February 19 was when I found out I was pregnant with Henley. So we’re kind of rolling into that. It’s been a year later about everything. Um, but we really kind of haven’t thought about it. I kind of just ignored it. To be honest,

Winter 28:28
Sometimes it’s, sometimes it’s easier, right?

Meghan 28:33
And also trying not to think about the, you know, like, one year later, whatever. My husband’s birthday is coming up, and we had found out right before his birthday. And so I’m kind of, just kind of–just gonna push that off to the side. We’re just gonna celebrate your birthday. Like we’re just gonna not acknowledge that totally right now.

Winter 28:48
Yeah. Sometimes you have to do that when you just can’t deal.

Meghan 28:52
I also you know, I’m the other hard thing, the day Henley was born, is actually–there’s a set of twins that I nannied for a full year from when they were like three months old until they were about 15 months, and I still see them regularly. Friends with their parents now. Henley was born on their second birthday.

Winter 29:10
Oh, really?

Meghan 29:13
So, I don’t know if that’s hard–if that’s going to be hard or if it’s going to be good that I’m distracted in their birthday.

Winter 29:19
Right. Well, it’ll always be a special day. Just a word of warning, like I would maybe just be aware of yourself on the day that you found out that she was [still]born, because that that day was rough for me, when my son was [still]born, because I gave birth to him the next day so.

This conversation has been awesome. And you’ve had some amazing things to say and I’m so grateful like how blunt you are and open you are about it, because it’s sometimes…people skirt around, like you said, skirt around, tiptoe around the issue and so it’s nice to…

Meghan 29:52
I just don’t think it helps anyone if you’re not just honest.

Winter 29:55
Yeah. This is the way it is. Kind of sucks. Or doesn’t. Whatever. They’re going to be good days and there’s going to be bad days. Any, any last pieces of advice?

Meghan 30:04
Take the time you need and don’t let anybody tell you how you should or shouldn’t feel. It’s, I mean, clearly, I’ve been told that I’m very different than most in this situation. And you know, I’ve had people tell me that was weird, and I don’t think it’s weird. Everyone’s different and everyone’s going to deal with it differently.

Winter 30:21
Yeah, totally. We’re all different.

Meghan 30:23
Well, there’s no wrong way to greive.

Nope. I think people, yeah, make judgments of like, you should be this way. No. It’s, we’re all different. And it’s surprising sometimes. It’s surprising sometimes. Meghan, thank you so much. This was so great. Like you are just–I appreciate your honesty and sharing your heart. And thank you so much. I really appreciate your time today.

Thank you.

Winter 30:51
Many, many, many thanks to Meghan for a candid, honest story and discussion about Henley. I also super appreciative, that she is helping educate other women who are currently pregnant and trying to get the word out, so that they can keep an eye on their babies and get them here safely. So thank you so much, Meghan, for coming on the podcast today.

Head over to our website StillAPartofUs.com, where you can find the show notes, including a full transcript of this interview, and any resources that were mentioned, where you can sign up for a short and helpful email newsletter, or you can learn how you can become a patron and support the work it takes to produce a show for just a few dollars a month, and lastly, where you can find out how to get in touch with us if you want to share your child’s story on the show. One thing that we wanted to point out on this show, is that you can go over to the show notes in your podcast player and find a link on how to donate a few bucks to help us keep the lights on, so we can continue bringing these beautiful stories to you.

The show is produced and edited by Winter and Lee Redd. Thanks to Josh Woodward for letting us use his song “Vanishing Note”. You can find him at JoshWoodward.com. Lastly, subscribe to this podcast and share it with a friend that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they’re still a part of us.

Lee 32:13
Facebook just sounds like a drag. In my day, seeing pictures of people’s vacation was considered a punishment. Betty White

Transcribed by https://otter.ai

Filed Under: advice, late term stillbirth, podcast episode, stillbirth Tagged With: c-section, stillbirth, stillborn

29: Mom Meghan tells C-section birth story of Henley, stillborn at 36 weeks

March 1, 2020 by Winter

Mom Meghan tells about her textbook pregnancy and the C-section birth story and with her first child, daughter Henley, who was stillborn. At her 36-week checkup, she and her husband Scott heard the words every parent hopes to never hear: I’m sorry. She has no heartbeat. 

Scott and Meghan with their stillborn daughter, Henley

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission. This commission comes at no additional cost to you, our wonderful listener!

In this stillbirth story podcast episode told from mom Meghan’s point of view:

  • Time Stamp 3:03: Meghan has a textbook pregnancy and she was feeling great–they even went to Disneyland at 33 weeks.
  • Time Stamp 5:44: Meghan and Scott get the news that Henley doesn’t have a heart beat.
  • Time Stamp 10:17: She makes the decision to have a C-section.
  • Time Stamp 17:52: Henley is delivered via C-section by Meghan’s doctor.
  • Time Stamp 21:39: Meghan tells how Henley was moving and kicking erratically the night before.
  • Time Stamp 28:46: How they chose Henley Ryan’s name.
  • Time Stamp 35:00: They choose to have Henley cremated.
  • Listen to Meghan’s advice of dealing with grief after Henley’s stillbirth here in Episode 30.
  • Listen to Meghan’s husband, Scott’s birth story of Henley who was stillborn here in Episode 31.
  • Listen to Meghan’s husband, Scott’s advice after Henley’s birth here in Episode 32.
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  • Spotify

Full Transcript

Meghan 0:00
Henley Ryan

We realized that her nose is exactly my nose, so the genetics carry strong.

Winter 0:19
Welcome to Still A Part of Us, a podcast where moms and dads share the story of their child who was stillborn or who died in infancy. I’m Winter Redd, and on this episode, Meghan is telling the story of her daughter Henley, who was stillborn at 36 weeks.

As a word of caution to our listeners, this story contains emotional triggers of stillbirth and infant loss. Please keep yourself emotionally and mentally healthy and seek help if needed. Also be aware that these birth stories may differ from his or her partner’s, as these accounts are told from their own perspective through the lens of trauma, heartache, and the passage of time. Please respect our moms and dads who are brave and gracious to share their children with us.

Meghan 1:17
My name is Meghan. I’m 32. I had to think about for a second. My husband and I have been together since we were 19 years old, but we’ve been married for about six and a half years now. Henley was our first pregnancy, first child. I am a nanny by trade. I’ve been a nanny for seven years. We have two dogs: a chiuaua and a Border Collie-Pitbull mix.

Winter 1:17
Meghan, thank you so much for being on today. I’m excited to chat with you about your little Henley. And to give us a little bit of context, tell us a little bit about yourself. Who are you? Where you guys at? Kind of just give us a little background of who you are.

Awesome. And what do you, what do you like to do in your free time?

Meghan 1:59
We are Disneyland people you That is our thing. We have annual passes to Disneyland, we go about once every four to six weeks. It’s about a four-hour drive for us.

Winter 2:08
No way! That’s amazing!

Meghan 2:09
Yeah, we love it. We were actually just there last Sunday and Monday.

Winter 2:13
Oh my goodness that it was crazy. Last Sunday and Monday, if I’m not mistaken.

Meghan 2:17
It was a holiday weekend. And the opening weekend of a brand new ride. It was insane.

Winter 2:23
Did you end up on that brand new ride?

Meghan 2:25
We did. We managed to get on.

Winter 2:27
That’s amazing. That’s, that’s very cool. You guys are based in Nevada…?

Meghan 2:33
Yeah, we live in Las Vegas.

Winter 2:34
Okay, so that’s why you’re four hours away from Disneyland. Okay, well, that’s awesome. And then can you give us a little bit of context about when Henley was born?

Meghan 2:45
She was born on October 3, 2019. So just under four months ago.

Winter 2:51
Yup. At the time of this recording, and this is very new for you, Meghan, so thank you for coming on. And how did your pregnancy go? Like, did you guys get pregnanat pretty quickly and everything?

Meghan 3:03
It was a pretty much textbook pregnancy. We weren’t necessarily actively trying when we got pregnant, but we also weren’t preventing anything. So it kind of just happened on the time frame it happened. But the whole pregnancy was pretty textbook, pretty perfect. You know, I didn’t have gestational diabetes. I didn’t have any high blood pressure. I had only–by the time I had her–I’d only gained 25 pounds total and I had her at 36 weeks. Everything looked great. Everything was perfect. I was healthy, to the fact that at 35 weeks pregnant, my doctor cleared me and let me go to Disneyland for the last time. I did a Disney trip at 35 weeks.

Winter 3:38
At 35 weeks! Oh man, so everything was really good. Did anything cross your mind about anything being wrong?

Meghan 3:46
At our 34-week ultrasound, we found out that she was still breech, which was okay. I mean, we were eventually getting to the point where we were going to have to have the talk about having a C-section, just because she wasn’t turning. But we also found out she was measuring in the 10th percentile, so she was measuring small. So the intent was, at my 36-week checkup two weeks later, she was going to schedule for another growth ultrasound to just kind of see if that was a fluke, because they were kind of having a hard time getting measurements on her just via position. And I have a very short torso, so they’re just between my bones, there wasn’t a lot of space to get the measurement on her bones.

Winter 4:22
Gotcha.

Meghan 4:22
So they were going to send me for another ultrasound ,just to check and see if if it was a fluke, or if she really was measuring small, but we didn’t make it that far.

Winter 4:31
Yeah. Did that worry you at all that he was maybe possibly measuring in the 10th percentile?

Meghan 4:38
A little, but the ultrasound tech that did it, had such a hard time getting a measurement on her thigh bone, and that’s the one that they use the most for measurement. So I was just kind of like, you know, it’s probably just the fact that she couldn’t get a true accurate measurement. Like, my belly is measuring normal. Everything else has been fine. I don’t think there’s an issue.

Winter 4:57
Okay. So kind of brushed it off as a possible, like, It’ll be, it’ll be fine…?

Meghan 5:03
We’ll find out. And if she’s still measuring small in two weeks, well, then we’ll talk about maybe delivering early and, you know, she’ll be small, it’ll be fine.

Winter 5:10
Yeah. Okay. Well, then, can you tell us a little bit more about what happened? So you, you went to that the 34-week ultrasound, and then you were planning on coming in for a 36-week ultrasound…and I’m assuming you got checked at 35-weeks. She was fine….?

Meghan 5:25
I didn’t.

Winter 5:26
Oh you didn’t!

Meghan 5:26
I didn’t have an appointment between 34 and 36 weeks. I came back in at 36 weeks for just my regular checkup with my OB, and my husband had come with me, because he was going to get the Tdap shot and at my doctor, if he came with me, they would do it for free. The insurance would cover the whole cost.

Winter 5:43
Yes, perfect.

Meghan 5:44
So he had only come to very few appointments just due to work. It wasn’t easy for him to take off to come. But this was one that he made it to, because he needed to get that vaccine, and so it just made sense. So we went in for the appointment. You know, they took my weight and I had lost almost a whole pound over the course of two weeks, which seemed a little off to me, but I was like, I just spent like three days at Disneyland walking like crazy. So it’s probably fine. It was probably just that I was more active than I had been. Blood pressure was fine. They give him the shot. And then my doctor as he’s about to rush out to leave to go to work, because he couldn’t stay for the whole appointment, my doctor goes, Hold on! Wait wait! Let’s just, let’s have, let’s do the heartbeat and let daddy listen to the heartbeat real quick.

And we don’t know why she decided to do this, but she did. So she gets out the Doppler. She puts it on my stomach. And I can tell that it’s taking longer than it should to find a heartbeat. Obviously, he wasn’t aware, because he hadn’t really been there for all the appointments to know how long it should take her to find it. And so she’s searching and searching and she keeps moving it around. And 30 seconds go by and nothing. And then almost a full minute goes by, and she can’t find anything. And she goes I’m having a hard time finding her heartbeat. I’m going to go grab the ultrasound machine. Comes back in with the ultrasound, puts it on my stomach. Starts at her head, you see her skull, you see her head. Goes down, and as soon as she gets on the chest, I could see that her heart wasn’t beating. I mean, by that point, you’ve seen enough ultrasounds, you know what you’re looking for. You know what it’s going to look like.

And I think it took a minute for my husband to catch up and realize that nothing was moving. And from that point, you know, my doctor said the words nobody wants to hear: I’m so sorry. She has no heartbeat. And I kind of just went into the mode that I’ve gone into with every other tragic event in my life, because my life has been a little intense from 2016 to now. I, in 2016, I lost my grandmother in April and my dad in December. So there’s been a lot of loss in the past couple of years.

Winter 7:48
Yeah, there really has been.

Meghan 7:50
So I went into this mode of just–the same thing I did when they passed away–just needing to get through the logistics. What, what do we do next? What do we do now? What’s the next thing that has to happen? So I didn’t, there was no initial tears, there was just like, Okay, now what?

So she sent us to the hospital. She had already called Labor and Delivery at the hospital and told them to expect us. So when we got there, we go up to Labor and Delivery. They put us in a room and we think, Okay, you know, somebody’s going to come in fairly quickly and do another ultrasound. They’ve got to want to be absolutely sure, because the ultrasound she used in the office was like, you know, it’s a terrible office-quality ultrasound. So, then it’s an hour, almost an hour and a half later, before an ultrasound tech finally comes in.

Winter 8:35
Are you kidding me?

Meghan 8:35
At that point, we’ve both gone, Well, they obviously think there’s no hope of anything. So, I guess we give up. The ultrasound tech comes in, does the ultrasound and obviously they can’t tell you anything.

Winter 8:49
Yeah, it’s not in their purview.

Meghan 8:52
But this ultrasound tech–and I think she did it as a kind of merciful gesture almost–she did not turn the screen away, when she was typing out her findings to send in the report. So she left it where I could see it when she typed, you know, Breech presentation. No fetal heart tones. Consistent with intrauterine fetal demise. She left it where I could see that this is what it is. And everybody that I’ve talked to seems to think that was terrible, but personally for me, I think she was doing it so that we wouldn’t be sitting, left waiting in limbo longer and longer and longer.

Winter 9:27
Yeah, you’d already been there for an hour.

Meghan 9:29
Yeah. So, at that point, they came back. The on-call OB came in, who this is obviously someone I’ve never met. And, you know, he tells us what we already knew. I’m so sorry. She has no heartbeat. Here’s your next options. And so she was, Henley was breech and she had her head pretty far up under my left ribs to the point that even still to this day, my rib cage is bowed out on the left side. Like visibly people can tell that my ribs look different on one side than the other.

Winter 10:02
Really?

Meghan 10:03
Yeah, I have a really, really short torso, so there just wasn’t a whole lot of space. And so my rib cage I, most doctors, I’ve asked and they’re like, Honestly, we don’t ever think it’s going to go back. So that’s like one of the permanent reminders of her.

So he comes in and he tells me, Okay, well, you could be induced, but here’s all of these possible risks confounded, you know, not just the normal risks of being induced with a stillborn baby, but to add to the fact that she’s completely breach. You know, so they went through all the things that could have happened, that I could have tried to be induced, and they could have delivered everything but her head and she could have gotten stuck. All these scary risks, and a lot of them were risks to my ability to have future children. Then they read me the list of risks for going through with a C-section. Those were far less intense. So without really any discussion with anybody, I just kind of sat there and went, Yep, I will have a C-section. No question about it. That’s what we’re going to do.

But then the waiting kind of began for the day. So that was at about nine, like 10:30, 10:30, 11 in the morning–

That you…?

That I finally decided, Okay, I’m gonna have a C-secion. This is what I’m going to do. And I had talked to the on call ob, and he said, okay, but I’m going to call your ob first and just kind of have a discussion with her, tell her what’s going on. A little while later, I get a phone call on the hospital phone in my room, my OB has called me. And she’s talking to me about the situation telling me, you know…I mean, my doctor was fantastic. She, she when she had to tell us that she had no heartbeat, she was crying even though we weren’t. She’s been wonderful throughout the whole thing. So she calls in between patients in clinic she calls and says, You know, I can’t be there right now, but I can be there late tonight. I can come at like 11 o’clock tonight to do your C-section. I have something going on when I leave the office today, because she has a family and children, so it’s understandable, but she says I can come in at 11 o’clock tonight and do it for you if you would rather wait for me.

So that’s what I ended up doing, because I wanted to be with someone I was comfortable with. It’s the person I saw the whole pregnancy. And I felt like having her deliver was more comforting, because she was the one there when we found out. So we kind of just spent the whole day sitting in the waiting–in the hospital room, waiting around.

Winter 12:33
Oh you did?

Meghan 12:34
I did find out, so since I decided to wait until she came in late at night, I hadn’t eaten anything at this point that day because I didn’t have breakfast before my doctor’s appointment. My doctor’s appointment at eight o’clock in the morning. I’m like, we’re going to go in this is gonna be a 30-minute appointment, and then I’ll just go get something to eat afterward.

Winter 12:48
Right.

Meghan 12:49
And so by that point, it was almost noon and I hadn’t had anything to eat or drink. So when I decided that I was going to wait for my doctor, she told me, you know, If you want to eat, you’re allowed to eat until, you know, 12 hours before when she’s going to do the C-section. So I had an hour and a half or so where I can, like, get some food and, and… You know, I had a friend there with me and my husband, and they both thought it was strange that I wanted to eat, and I’m like, But I’m going to feel so terrible if I continue to go the whole rest of this time and don’t eat anything. Like I have to try and eat.

So we kind of just spent the whole day sitting in a hospital room, watching TV, talking. Basically kind of ignoring, I mean, personally for me, I was kind of ignoring the situation. It was like, I have all this weird limbo time that I have to sit in now. And I just can’t think about it. Now, meanwhile, my body knew what was going on. I had started having, you know, mild contractions, like my body had figured it out. I opted not to say anything to the nurses about the fact that I was contracting at all, because I didn’t want to accelerate the process in any way. I wanted to wait for my doctor, so I just didn’t say anything. And it wasn’t like bad enough that like, there was any concern of like imminently going into actual labor.

Winter 14:08
Right. It was just very starting, starting contraction.

Meghan 14:12
My body was definitely starting to figure it out, but it wasn’t very intense or anything. So we kind of spent the whole day just talking and sitting in the room and waiting. And–

Winter 14:22
So Meghan really quickly: so Scott is there. He’s not really been there in for your doctor’s appointments. Not a ton of them it sounds like. So he’s probably shocked, I suspect.

Meghan 14:34
Yeah, we actually had driven two separate cars to my doctor’s appointment, cuz like I said he was supposed to leave and go directly to work. Yeah. We ended up taking just one car from the doctor’s office to the hospital because I was like, I can’t drive, like, it’s not something I can handle right now. And, you know, he just kind of was sitting there, and he just kind of let me decide what was going to happen. He’s like, you know, he’s obviously devastated, but he, I think he felt like whatever I decided to do from that point, was my choice of how it was going to happen. So I didn’t even really discuss my choice to have a C-section with him. I just kind of looked at him and went, This is what I’m doing. And he went, Okay.

Winter 15:15
Well, it’s yes, it does put you in a little bit better position medically.

Meghan 15:19
I feel like, you know, from all the women that I’ve talked to, you know, I’ve met several other parents who have lost their children, even one in town that I’m friends with now, and everybody says the same thing that it’s it’s very unusual that I got the situation I did, where I got to choose that I wanted to have a C-section and I got to choose whether I wanted my doctor to do it or not. Most people don’t have this time where they can just kind of make these decisions.

Winter 15:20
Yeah. That is pretty unique. And so you were sitting in your room just hanging out You say that you were ignoring, kind of ignoring the situation, in a sense. Did you–?

Meghan 15:58
We tried to talk about anything that wasn’t what was happening.

Winter 16:01
So did you contact any family members or anything?

Meghan 16:04
We did. After I made the decision that I was going to wait for my doctor and I was, you know, gonna have a C-section, we kind of called and told some people. I didn’t really call anyone. I kind of left it up to Scott. He called my mom and stepdad, who actually were in California at the time. They had gone on, you know, they were going to, they were going for a weekend away, and they figured it would be the last weekend away before I went into labor. So they were like, We’re going to go now. And you know, they were just going to stay at some hotel. Well, he called them and immediately they drop everything, pack up, and start driving back. So they’ve got a five-hour drive back, which is part of the reason probably that it was good that I decided to wait until later that night, because they got me there.

And then you know, we’ve let some other family members know, some friends. I have one friend that actually, we let her know right away what was going on. She found out just after we had gotten to the hospital, before we even had the ultrasound. At the hospital, we had told her, and she dropped everything, had her husband come pick up her daughter and showed up at the hospital and sat there with us all day. She and her husband went and got Scott’s car from the doctor’s office and drove it back to our house. And then she eventually went home, because we told her, Look, we’re going to be here a long time. We want you to go home. You know, put your daughter to bed. You know, you have things you have to do. And she ended up coming back, which I didn’t know until later. She came back while I was, right before I went into surgery, and was there until like three o’clock in the morning when I finally was like you have to go home. Your baby’s gonna be up in like three hours.

Winter 17:45
Wow, what a friend. That is–that’s awesome. So you waited. Your surgery was planned at 11 o’clock at night.

Meghan 17:52
Well, my doctor got to the hospital about 11 o’clock that night. And they started the prep for surgery and everything. The anesthesia, anesthesiologist came in and talk to me. Kind of did the whole thing. I think we ended up in the actual OR closer to midnight. And then you know, it’s the whole process of them actually numbing you and getting prepped and all of that. And Henley was born at 12:49am on October 3. So we found out the morning of October 2 that she was gone. I had her very early on October 3rd.

Winter 18:24
How was the surgery? Was it okay?

Meghan 18:27
It was fine. I had every reaction to the anesthesia that they say is normal. So the immediate things they warn you about is, you could have a really, really itchy nose. Yup, felt like I wanted to rip my nose off my face. And then because your blood pressure is going to dip, you also probably will get nauseous. Literally, they put the medicine in, laid me down, and like 10 seconds later, I’m like, I feel like I’m gonna throw up. So they had to pump anti-nausea medicine in. And I mean, I obviously had never been through anything like that, so the sensation of just like not being able to feel anything from your rib cage down was very strange.

Winter 19:02
It is very strange. I agree.

Meghan 19:05
But overall, I mean, it wasn’t bad. Just the same terrible situation of any C-section where the baby’s not alive. It’s everybody’s talking, the doctors are talking. There’s all kinds of noise. And then you can tell they get to a point where they’re pulling her out and the room goes silent. No one says anything. It’s just deafeningly silent.

They…I mean…the silence was followed up with, you know, She’s beautiful. I’m so sorry. But it was hard. Sorry.

So neither one of us looked at her initially. They kind of took her. Cleaned her up. They sewed me up and took me back to the room. And then got me all situated. And then they brought her in to us. They kind of they gave us the choice on what we wanted to do. I mean, before we even went into surgery, they had like a long list of things of: Do you want this? Do you want that? You know, do you want us to take pictures? Do you have an outfit you want to her put in? Is there any one specific you want to be here? All the different things that we could have done.

We ended up–Scott had gone home and gotten stuff for us earlier in the day, because obviously, we didn’t even have a hospital bag packed at this point. I still thought I had four weeks to go and it was my first baby. So I’m like, if I even go into labor by then… Like, I wasn’t–everything else was ready–but we hadn’t packed a bag. So he went home with all the stuff and I had him bring an outfit for Henley. And we had a stuffed animal that he brought that he specifically wanted with her. It’s a little Groot from Guardians of the Galaxy.

Winter 20:59
That’s amazing.

Meghan 21:01
It was the first thing that he had bought specifically for her. So they bring us back to the room and they had already taken her and cleaned her up and taken pictures of her for us.

Winter 21:11
Oh, they did! Okay…

Meghan 21:12
And changed her clothes, which we were given all the options, if we wanted to do these things ourselves, but I just, I was mostly afraid of what she was going to look like, that I didn’t know that I wanted to. So I knew I wanted to see her. I knew I wanted to hold her ,but I didn’t know if I wanted to dress her, because I just wasn’t sure, you know, exactly what was going to be. And I mean, we had a pretty good idea of how long she’d been gone at that point.

Winter 21:38
What did they say?

Meghan 21:39
Because the night before I went to the doctor, I was laying on the couch and about 9pm and my placenta was in the front, so we couldn’t usually like see her kicks like from across the room or anything. But there were these intense crazy kicks that Scott could see from across the couch. And it was crazy. That’s the last time I for sure know she moved. Well come to find out the thing that doctors don’t tell everyone, is that erratic and extra intense movements, can be a sign of distress. And had I known this and gone to the hospital immediately, we may have had a different outcome in the end. So this is something that I pass on to every woman I know that’s pregnant now. Like, your doctor is not going to tell you this and I don’t mean to sound scary, but you need to know this.

Winter 22:27
Yeah. Yeah. So you think it was the night before basically on the 1st?

Meghan 22:31
Sometime between 10, 10:30pm on October 1. And when we went to the doctor at 8am on October 2. So she had only been gone at most like a day and a half by the time I had her. And because, you know, I know after the fact now that because I had a C section she came out looking a lot more perfect than had I delivered her naturally. I mean, there’s just ,there’s less trauma, if they go through that way.

Winter 23:03
Exactly.

Meghan 23:04
So they brought her in and had her all dressed up and I held her. And you know, the first thing we noticed is that, like I said, we had noticed in an ultrasound, because we’d had a 3D 4D ultrasound at like 30 weeks, but immediately everybody, you know, my, my husband and me both are like, It’s my nose. My nose…my nose is very turned up. And it’s from my dad’s side. Apparently, it’s a very, very strong genetic trait, because my dad had it. I have it. My half-brother has it. And it passed right on to Henley.

And, you know, we took, we took a little bit of time. I held her. Scott just…I asked him if he wanted to hold her and he just couldn’t. He just didn’t feel like he could. I did be slightly pushy and I made him come in next to me and have a picture taken, so that we at least had one or two pictures of the three of us. Even Now I regret that I didn’t call Now I Lay Me Down to Sleep to come take really great quality photos, it just wasn’t something that was like, my mind was able to process that I should have done at that point in time. They had given me the paper with their phone number. But in that whole thing happening, you don’t really think about that. I honestly never would have even thought to bring her clothes, except for my friend that was there with us–it’s actually her neighbor, that has also lost a child–and she had actually, when she found out, she had immediately called her neighbor and gone, What do I need to tell her to do?

Winter 24:33
That’s awesome. That was so smart.

Meghan 24:35
Her neighbor lost a baby at 34 weeks, and it was about a year and a half ago. So she, still fresh, but like was able to tell her, Okay, you’re gonna want to tell her to take all the pictures, to bring an outfit for her to…you know, all these things that you don’t think about in the moment, and she didn’t think about in the moment, but she’s basing them off things she regrets or things that somebody else told her, that I’m so grateful that somebody told me, you know. It’s so helpful to have somebody that can actually be like, No, I’ve been there. And this is what you need to know.

Winter 25:09
Let’s try…yeah, you will, you’ll want this. Yeah.

Meghan 25:12
So we only had Henley in our room for probably 20 or 30 minutes. We actually gave the opportunity for my mom and stepdad, who were the only other–I had the one friend at the hospital and my mom and stepdad were there–we gave the opportunity for them to meet her, but I didn’t want them to meet her in the room with me. I just didn’t know how I would do seeing that. So they had another room right next to me that they could have brought Henley into, and my mom and stepdad could’ve met her in there. My mom and stepdad actually chose not to. I haven’t really asked the reasoning behind that. It was their choice I left to them.

Winter 25:48
It was their choice. Yeah.

Meghan 25:49
So, the nurses eventually, you know, we decided, Okay, you know, we’re ready to let her go. You know, gave her a final kiss and they took her. After that point, they actually took her in the other room. And we know now, that they took hand and footprints. They did them, you know, in ink. They did them into clay that was then given back to us later. And we have these really special things that, I guess we’re one of the first from the hospital that they’re actually started doing it, they’re three-dimensional molds of her hand and her foot.

Winter 26:24
That’s awesome.

Meghan 26:25
So, you know, you can see every detail, and her little hand is curved, so like you could put your finger in. And they took a bunch of pictures. And so we have all that stuff now. And then I was actually given the option to leave the hospital that night, the night of the third.

Winter 26:44
Really?

Meghan 26:45
So very quickly. I chose to stay overnight. Just because I didn’t want to go home at night. I was like, I’d rather go home–we have a roommate–and I decided I’d rather go home while he’s at work. I’d rather transition back into being at home while he’s not there. So waited and stayed one more night. And then the process of getting discharged was a little iffy, because they have to get your vitals in a certain area to be able to discharge you. Well, obviously, my blood pressure was high, because hi, traumatic experience. And then they kept having problems getting my oxygen level to be good. Well, they keep coming in, they’re trying to take my oxygen level, after somebody had said something that sent me crying. Well, clearly, I’m not breathing properly, because I’m crying.

Winter 27:34
Yeah.

Meghan 27:36
So eventually, we got everything. Okay. And I went home that Friday at about 11am. So I was only in the hospital from Wednesday at like 930 in the morning till Friday at 11am.

Winter 27:49
But it’s a C-section. Holy cow. I can’t believe they. They’re like, You can go home.

Meghan 27:54
Yeah, I was impressed that they would let me go home that soon.

Winter 27:57
Yeah, I–usually it’s a little bit longer than that.

Meghan 28:00
I was up walking, probably four hours after the C-section. They had me up and walking and so they were, you know, I had ticked off all the boxes of the things they need you to be able to do before you can go home.

Winter 28:14
Were you feeling okay?

Meghan 28:16
I was sore, but overall, yeah, I was okay. We found out through this process that I can’t have toradol, because that makes my nose itch terribly. So two doses of that, I went, No more! So, you know, I mean, I left the hospital on just ibuprofen, you know, 800 milligram ibuprofen, but ibuprofen nonetheless. And I mean, the recovery wasn’t horrible. I think part of that is, you know, it’s much easier to recover from a C-section when you’re not taking care of somebody else.

Winter 28:46
Yeah, yes. Yeah, that’s so true. Now, Meghan, can you tell me a little bit about Henley’s name? How did you choose her name?

Meghan 28:55
So her first name was picked out before she ever even was a thought. Scott I had watched a movie called “Now You See Me” and the main character that’s female, her name is Henley. And we both had just looked at each other, and we’re like, That’s what we’re naming a baby!

We hadn’t even talked about having children at this point. But that’s what it was. And so we chose her name then. And as soon as we found out, we were pregnant, I was like, I know it’s a girl. I know it’s a girl. And everybody’s like, Okay. We had an ultrasound at just before 15 weeks. We paid for one, because I was too eager to know.l I could not wait. And we found out she was a girl. And so immediately, she had a first name, she did not have a middle name until she was born. I had wanted her middle name to be Ryan. But I spent a lot of time bothered by the fact that like her first name is kind of gender-neutral. And so if I give her a boy’s name as a middle name, is she going to be that kid in school where they’re reading the attendance list, and nobody’s going to know if that’s a boy or a girl. So then I thought about spelling Ryan differently. I thought about spelling it with R-Y-A-N-N, so that screamed female, but I didn’t really love that. So after everything happened, we knew that all of my fears weren’t going to be a factor about her name. I said forget it. I made me here what I want and just went with it. So her middle name is just spelled just like any other Ryan.

Winter 29:08
Really? Okay!

Okay, that’s awesome. I was wondering, I was like that’s just kind of a unique name so… Yeah, it’s always tricky, right, names? So you…

Meghan 30:27
You kind of immediately go to: Okay, what are they going to get teased about with this name?

Winter 30:32
Yep, that’s exactly right.

Meghan 30:35
Or you don’t want to be me, who my name is Meghan. But it’s not spelled exactly the way everyone else spells it and you have to spell your name for everyone forever.

Winter 30:43
Yes, forever. It is what it is, right? I have a name “Winter” and everybody’s like, What? Yes, like the season. So you guys headed home, and did you end up having an autopsy? Was there any sort of conclusion about what happened?

Meghan 31:04
They gave us the option for an autopsy, which initially we wanted to, but then we found out that insurance doesn’t cover it. It would have cost us $3,000. So we decided, you know, I talked to my doctor, and she said, Realistically with everything I’ve seen after looking at her, after looking at the placenta, I don’t think there’s a high likelihood that an autopsy is going to give you an answer. And at that point, we were just like, Well, then it’s not–we’re not going to spend the money on it.

Winter 31:32
So even just the visual, the first, I mean, just basically looking at her once over, looking at the placenta, they didn’t have any conclusions either there?

Meghan 31:39
The only thing she came up with initially, is that she had a very, very short umbilical cord. So when they did the C-section, they pulled Henley out, she barely had enough cord to put her onto my stomach before she delivered the placenta. Her record was really, really short, and it wasn’t coiled as much as it should have been, because it was so short. So realistically the best guess on what we think happened, is that as she was trying to turn from breach, she was compressing her umbilical cord, because it was so short and that’s why she was measuring small. And I guess I should mention that in the end when she was born at 36 weeks, she was 18 and a half inches long, which is pretty normal for that gestation, but she was only four pounds 10 ounces. So she was almost two pounds too small.

Winter 32:26
Yeah. For being thirty…36 weeks. Yeah.

Meghan 32:31
So they think that as she was trying to turn, she was compressing the cord, and that’s why she had started measuring small, because she had compressed it somewhat, but was still getting some blood flow. And they think that just that night when after I felt her move last they think she just compressed it completely…

Winter 32:45
So much. Yeah. Oh. Okay. So that’s what they think happened.

Meghan 32:50
After the fact now, I’ve actually gone to see a genetic counselor and a high-risk specialist, just to prepare for the next time, to know, you know, what, what, what can we do if there’s anything different. Is there anything I should be doing, shouldn’t be doing. And they’ve labeled it as intrauterine growth restriction, cuz she was so small and they’ve labeled it as partially, a placental insufficiency. They think that my placenta was just starting to kind of crap out too early. But they didn’t really test anything. So they’re not positive.

We’re also running…we, they ran some blood tests on me in the hospital for clotting disorders, and I came back negative for all of those. But currently, I actually went for bloodwork yesterday. They’re running just like the huge panel of all the things just to see. And we’re also running genetic carrier screening, just to make sure. The genetic counselor, the high-risk doctor, and my doctor don’t think we’re going to find anything. And they do not think there was a genetic component to anything. You know, basically my doctor just said, as horrible as this is, it’s just a random, terrible occurrence. Nothing to be done to prevent it, nothing to be done to change it. It’s just like, you know, crappy luck, actually. So they’re running all these things, but they don’t, they don’t think they’re gonna find anything. It’s more just for peace of mind to know that, like, we’ve checked off all the boxes. Everything comes back normal.

Winter 34:14
Yeah. Did you have any genetic testing but done beforehand?

Meghan 34:18
I did not.

Winter 34:18
Okay. Okay. So this will be kind of the–

Meghan 34:20
I had opted not to during pregnancy. At the beginning, you know they offer you to do the early genetic testing, and I kind of had the mindset, you know, to me, it’s not going to matter what they find, so I’m just not going to do it. It’s not going to change what’s going on for me. Now, the next time I get pregnant, all the tests, all the time!

Winter 34:39
All of it, we’re doing it all.

Meghan 34:41
Anything you wanna do, do it!

Winter 34:42
Well, I was going to say, yeah, I was gonna say now that you’ve had the stillbirth and it’s…yeah, it puts you in a different category now and so you’re gonna check all the things!

Meghan 34:49
The wonders of I am immediately a high-risk patient the next time I’m pregnant.

Winter 34:54
Yeah, exactly.

Meghan 34:55
First pregnancy and now every subsequent will be considered high risk.

Winter 35:00
When you get home then, how was being home? Did you guys start planning any funeral services or memorial services?

Meghan 35:07
We decided not to have any kind of a funeral, just not something that either of us really wanted. We had her cremated, which that process was more dramatic than it needed to be with the funeral home. It took an excessively long amount of time, and there were issues where, you know, I called and called and called, trying to get information.. Nobody gave me information. It was just a whole mess. It took like three and a half weeks before we got her back. And actually, I found out from the certificate of cremation, that she had been cremated five days prior to the day they finally told me that we could go pick her up. It was a mess.

Winter 35:47
Oh. Did you, do…so you… no funeral services. You had her cremated. You did get her back though.

Meghan 35:53
We did.

Winter 35:55
And she just at home and with you guys?

Meghan 35:57
We actually just–yeah, I mean, we got…when we got her back, they just kind of had given the urn that they give for free, because the funeral home we went through is one locally that does things, that any baby under the age of two, they’ll cremate for just the state fee. So the $10 or whatever you have to pay for the state. They don’t charge for it, which is why we went through them because after this whole experience, it’s, I mean, it’s a lot of money that you didn’t expect to be spending

Winter 36:25
Yes, it’s so, it’s so..it’s like a rude wake up. It’s like what?! I have to–what?!

Meghan 36:30
We went from expecting $1,000 copay for a delivery to $4,000 in copays for a C-section and it happening four weeks earlier than we anticipated.

So, it was kind of crazy. So she came home in the urn they gave us, which we didn’t really love so we eventually purchased another one and it’s shaped like a castle. My husband picked it, because it makes him think of Disneyland.

Winter 36:56
Yeah. I love that.

Meghan 36:58
So her earn And you know, all of her hand and footprints and molds and everything are just kind of on the dresser in her nursery. Because I was 36-weeks pregnant. We had an entire room ready. You know, clothes washed and put in the dresser, diapers out, everything totally ready. So that just seemed like the right place for her to be. Eventually I’m sure we will do something else, because we’re very hopeful that there will be another baby to actually use that nursery. But for now, that’s just what feels right.

Winter 37:39
Do you go hang out in her nursery?

Meghan 37:42
I do. I actually sit in her rocking chair in there ,and I have a little journal that I write letters to her and it’s just…you know, about nothingness. Just about what’s happening that day or whatever, but makes me feel close to her. Cuz you know, the chair that I bought with the intention of–well it was purchased for me–but with the intention of getting to rock her, and we don’t get to. So that’s what is comforting. We also have a weighted teddy bear that’s weighted to her birth weight and sometimes I’ll just sit in there with that. But otherwise, we keep the door shut. You know, it’s the one room in the house. we keep the dogs out of.

Winter 38:24
It’s kind of a special area.

Meghan 38:28
Preserved.

Winter 38:28
Yeah, this is her room. This is her room.

Meghan 38:33
It’s actually connected to the room I’m sitting in currently by a bathroom. So it’s just the other side of the bathroom next to me.

Winter 38:40
Well, thank you for sharing that story. I can’t imagine.

Meghan 38:45
Thanks for letting me talk about her.

Winter 38:46
Well, we always want to talk about are our kids, right? I mean, I always want to talk about my son, so… Is there anything else you want to say to remember about her?

Meghan 38:59
I mean, just that, we just like everybody else, we wish things could have been different. But we’re so thankful for the time that we did have. You know, I got 36 weeks of having her with me, which is something that I would never trade. Even though the end was horrible, I would never trade getting that time with her.

Winter 39:21
Yeah. Thank you so much, Meghan.

So many thanks to Meghan for being vulnerable and sharing your beautiful story of Henley with us. Head over to our website StillAPartofUs.com, where you can find the show notes including a full transcript of this interview and any resources that were mentioned, where you can sign up for our short and helpful email newsletter, where you can learn how you can become a patron and support the work it takes to produce this show for just a few dollars a month, and lastly, where you can find out how to get in touch with us if you want to share your child’s story on the show.

The show is produced and edited by Winter and Lee Redd. Thanks to Josh Woodward for letting us use his song “Flickering Flame”. You can find them at JoshWoodward.com. Lastly, subscribe to this podcast and share it with their friends that might need it and tell them to subscribe. Why? Because people need to know that even though our babies are no longer with us, they’re still a part of us.

Lee 40:38
My opinions may have changed, but not the fact that I am right. Ashleigh Brilliant

Transcribed by https://otter.ai

Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: c-section, stillbirth, stillborn

Do I get a birth certificate for my stillborn baby?

December 26, 2019 by Winter

One of the shocking things that we were told when I gave birth to my son Brannan, who was stillborn at 38 weeks, was that we wouldn’t receive a birth certificate for him. I asked myself, “But didn’t I just give birth to my son?”

Birth Certificates are not issued for a stillbirth. However, there are some states in the United States where legislation has passed, that do issue a “Certificate of Birth Resulting in Stillbirth”.

We left the hospital with information on how we could go to our state’s Vital Records and apply and pay for a “certificate” for our son. I was relieved to find that my state (Utah) was one of the states that issues a Certificate of Birth Resulting in Stillbirth, rather than a Certificate of Stillbirth or just a Certificate of Fetal Death.

The debate around “Certificate of Birth Resulting in Stillbirth”

Joanne Cacciatore gave birth to her daughter, Cheyenne, who was stillborn in 1994, but she only received a Fetal Death Certificate. When she called her state’s Vital Records to request a birth certificate, they said to her, “You didn’t have a baby. You had a fetus and the fetus died.”

Because of this experience, Joanne created the MISS Foundation [source], which advocates for parents who have experienced the loss of a child and is the originator of the MISSing Angels Bill legislation. Many states in the United States before this legislation issued either a “Fetal Death Certificate” or just a “Certificate of Stillbirth”, which the Foundation claims doesn’t acknowledge that a mother actually gave birth to her stillborn child. The MISS Foundation helps parents bring legislation to their state, so that states have the option to issue a “Certificate of Birth Resulting in Stillbirth.” The purpose of having this certificate is to:

  • Recognize that the process and cost of pregnancy, labor, and birth are the same for a live born and still born,
  • Be consistent with the law. Each state law requires that the family bury or cremate the body of their stillborn child, but doesn’t acknowledge that this child ever existed, and
  • Give dignity, validation, and closure to women who have to endure the pain of both the death and birth of their children.

States that issue Certificates of Birth Resulting in Stillbirth

According to the MISSing Angels Bill resource website [source], parents of a child who was stillborn (as outlined by the CDC per each state’s reporting guidelines [source]), can request a Certificate of Birth Resulting in Stillbirth in the following states. There are states that will issue a Certificate of Stillbirth instead, but which the M.I.S.S. Foundation argues, though subtle, is not the same thing. The Certificate of Birth Resulting in Stillbirth is viewed as a BIRTH certificate.

There is also information on which states do not have this legislation in place.

Some states also allow parents to receive this specific certificate retroactively, so they can request one for stillbirths that occurred years ago.

States where you can get a “Certificate of Birth Resulting in Stillbirth”
**First state to enact this legislation
Alabama
Alaska
Arizona**
Arkansas
California
Florida
Georgia
Indiana
Iowa
Louisiana
Maine
Maryland
Massachusetts
Minnesota
Mississippi
Missouri
Montana
Nebraska
New Hampshire
New Jersey
New Mexico
New York
North Carolina
North Dakota
Oklahoma
Pennsylvania
Rhode Island
South Carolina
South Dakota
Tennessee
Texas
Utah
Virginia
Wisconsin
States with no legislation
Note: (CoS) – these states issue a Certificate of Stillbirth
*These states have pending bills as of November 2019
Colorado (CoS)
Connecticut (CoS)
Delaware  (CoS)
District of Columbia
Hawaii
Idaho  (CoS)
Illinois* (CoS)
Kansas* (CoS)
Kentucky  (CoS)
Michigan  (CoS)
Nevada
Ohio  (CoS)
Oregon  (CoS)
Vermont
Washington*
West Virginia
Wyoming  (CoS)

How to get a Certificate of Birth Resulting in Stillbirth for my child in my state

We wanted to receive our son’s certificate the same day, so we went to our state’s Vital Records office, since our state (Utah) allowed for in-person requests. There I completed a form with the information about our child, showed my ID, and payed a fee. Our wait time was about 30 minutes, before we received our son’s Certificate of Birth Resulting in Stillbirth.

For those states that issue a Certificate of Birth Resulting in Stillbirth, you will need to fulfill specific requirements in order to receive the official state-issued document. Once again, this commemorative document is optional and parents do not need to get one for their child.

A majority of states will require the following information:

  • Completion of a form, including, but not limited to, the applicant’s name and contact information, applicant’s relationship to the child, full name of the child, sex of child, mother’s name, father’s name, hospital or location of stillbirth, and delivery date.
  • A valid government-issued picture ID or a copy of valid picture ID of the person completing the application
  • A fee for each certificate issued 

Some states allow you to request certificates in person at the Vital Records office, while other states do not. You are also able to request a Certificate of Birth Resulting in Stillbirth by mail or through an online system (Arizona). You will need to print out and complete the form and mail it, along with the applicable fee and a copy of ID for the person completing the application. The certificate will then be mailed to you.

Please note that some states, such as Utah and Florida, have a form specifically for a Certificate of Birth Resulting in Stillbirth, while other states, such as Pennsylvania, require you fill out a different type of form (e.g. Application of Death Certificate) and indicate somewhere on that form that you are requesting a Certificate of Birth Resulting in Stillbirth. Other states, such as Virginia or Alabama, have no form and you will need to submit a written request with the required information to the Office of Vital Records or applicable government office. Check your state’s requirements.

Stillbirth and Social Security Numbers and Tax Exemptions/Tax Deductions

Despite having a Certificate of Birth Resulting in Stillbirth, babies that are stillborn do not qualify to receive a Social Security Number. According to the IRS, you cannot claim a stillborn child as a dependent [source]. which generally means that you cannot claim a tax exemption or deduction for that child.

However, there are some states that have legislation in place to provide some financial relief to offset the unanticipated costs associated with the birth of stillborn baby. The following four states have some sort tax deduction or tax credit for stillbirth families:

  • Minnesota: Tax credit [legislative source]
  • North Dakota: Tax deduction [legislative source]
  • Missouri: Tax deduction [legislative source]
  • Arizona: Tax deduction [legislative source]

Related Questions

Is there a death certificate for a stillborn? Yes, a Fetal Death Certificate is issued. Each state has their own reporting guidelines of fetal death and stillbirth. These state-issued definitions are largely based on weeks of gestation and/or the weight of the fetus [source]. A majority of states will prepare a Fetal Death Certificate for babies who are 20 weeks gestational age.

Does a stillborn child need to be buried or cremated? Each state has some sort of requirement that requires the disposal of the remains of a stillborn child. Many parents opt for burial or cremation, and the hospital in which the baby was born can help guide the parents with the options.

Resources

Dr. Joanne Cacciatore is the founder of the MISS Foundation and professor at Arizona State University, where her research, teaching, and speaking focuses on traumatic death, specifically child death. Here are two books that she has written or contributed to:

  • Bearing the Unbearable: Love, Loss and the Heartbreaking Path of Grief
  • They Were Still Born: Personal Stories about Stillbirth

“When we love deeply, we mourn deeply; extraordinary grief is an expression of extraordinary love. Grief and love mirror each other; one is not possible without the other.”

Joanne Cacciatore from Bearing the Unbearable: Love, Loss and the Heartbreaking Path of Grief

Filed Under: stillbirth Tagged With: stillbirth, stillborn

36 Ways to Survive the Holidays After Your Baby Has Died

December 23, 2019 by Winter

I’ll be honest, both my husband Lee and I don’t remember the holidays that first year after our son Brannan was born still. It had only been 6 months and we were still in survival mode, but we had a 4-year old daughter to care for and to make the holidays special for. I hope she isn’t scarred for life as she watched her parents walk around in a half-daze and/or crying. Now we’re going into our second holiday season and here is list of things that we are arming ourselves with for our second holiday season without our son.

First of all, it’s all about the expectations. Lower them. Lower what you expect from yourself, what you expect from others, what the holidays are “supposed” to be, and even for what you’re going to do to survive the holidays from this list below. Remember, we’ve just gone through something traumatic—please give yourself some grace and some wiggle room.

Take care of yourself physically

  1. Eat healthy, nutritious food every day: You don’t have to be a health nut (I enjoy all the treats that pop up this time of the year like everyone else), but try to get more healthy food options in. Grief is hard work and you need the fuel to deal with it all.
  2. Move your body everyday: Even going for a walk for 10 minutes will do wonders for your emotional state. I personally lift weights, and I am NOT the type of person you’d see and think, “Oh, she must lift weights”. I do it because I have something I like to call “anger-gy” (aka angry energy), and I’ve found that lifting heaving weights helps me channel that “angergy’, so it doesn’t spill over to my personal and professional life.
  3. Get some sleep: You might be having a difficult time sleeping–I did with so many things racing through my mind, but do the best you can, because your body needs rest. Practice good sleep hygiene. Try to make a bedtime routine. Sneak in a nap if possible. And talk to your doctor if you need additional help.
  4. Take a shower everyday: And brush your teeth. Just practice good hygiene, because you will be surprised how much better a hot shower and non-fuzzy teeth will make you feel after you’ve been crying all day.
  5. Relax: What do you like to do to relax, before you lost your baby? Getting a massage? Meditating? Taking a bath? Going on a walk? Listening to music? Reading a book? Whatever it is, get some of that in your life, because your tense shoulders and your aching head probably need it.
  6. Have a routine: Not a routine of “cry, sleep, cry, sleep”. I’m talking “Set an alarm to get up every single day, take a shower, eat something nutritious, and go for a walk” type of a routine. I wanted everything to be normal and familiar after our son died, but it wasn’t ever going to be “normal” again. A routine gives you some semblance of familiarity in your now “new normal.”  
  7. Avoid drugs and alcohol: Those can be emotion-numbing and you don’t want to not feel. You’re going to get through this if you feel all the feelings—the good and the bad. Brene Brown talks about it a little bit in her TED talk [source] about how when you numb the bad feelings, you also numb the good feelings and aren’t able to truly feel joy.

Take care of yourself mentally

  1. Go to counseling: Seeing a therapist or counselor can feel vulnerable, like you’re not strong enough and you need help or something. Guess what? You need the help. These trained professionals are equipped with tools and methods to help you navigate and process your grief. One tip: Shop around for a counselor. Not every therapist or counselor will be a good match for you.
  2. Shopping for the holidays: Navigating the crowds while doing my holiday shopping always stresses me out, so we opted to shop online last year. Know what you can handle and figure out solutions to minimize the frenzy of shopping, whether that be online shopping or grocery pickup.
  3. Get rid of the guilt: You think that you will disappoint someone this holiday season. You may or you may not if you don’t buy a gift for this person or didn’t have the energy to make neighbor gifts. But that’s okay. When our son passed away, so many things didn’t matter anymore. Let the guilt go and just be okay with where you’re at today.
  4. Let’s find the silver lining: I’m not telling you to ignore how crummy you may be feeling. I’m asking you to look around and notice things that you do have—the people in your life, the blessings you have been given. Practice an attitude of gratitude. Having a thankful heart helps pull you out of your sadness, even for a few moments.
  5. Recharge: Are you an introvert? Extrovert? What helps you rest and recharge? Then do it. For me, literal quiet time with no distractions (I’m looking at you, smartphone) does the trick. Others may benefit from time with family or a close friend, reading, or listening to music. Find what fills your energy back up and do that.
  6. Have a goal: Yup, goals aren’t for January anymore. Having a goal, even a small one, can nurture your mind and soul. Whether it has something to do with your baby (write daily about your child) or not (make a gingerbread Eiffel Tower), that accomplishment is rewarding.

Take care of yourself professionally

  1. Hire a cleaning service: Some of you reading this may be stay-at-home parents, and may think that you could clean the house yourself. If it’s de-stresser for you, then clean away. If it’s tough to clean most days and you can financially manage it, hire someone to clean your home, even just once during the holiday season. It’s one less thing to do and your home will be clean, and having a clean home creates calmness.
  2. Talk to your boss: If you are struggling to focus at work or find yourself breaking down crying, talk to your boss as soon as possible. Your employer is generally concerned with your well-being, because when your personal life is going well, it’s usually reflected in your work. Let them know where you’re at and see if you can figure out some tactics to help you deal with your emotions and your work responsibilities. And for you stay-at-home parents, talk to your spouse so you can figure out what you need to do together to care for your other children and home responsibilities. There will be some things that can go by the wayside until you’re all in a better place.
  3. Connect with co-workers: Sometimes you spend a considerably more amount of time with your co-workers, so try and socialize with them. If it’s appropriate, let them know how you’re doing, because there’s a good chance they want to see how you’re doing, but don’t know how to broach the topic. For you stay-at-home parents, get together with other stay-at-home parents at the park or children’s museum, so your kids can play while you talk and connect. My co-workers were helpful when I needed a break and kind when I wanted to talk about my son.
  4. Take a break: Take a walk, stretch, breath. Work can be a welcome distraction, but when the stress starts to build up because of deadlines and demands from your employer, remember to take a little time each day to rest. A little stretching or desk yoga will do wonders at keeping the stress at bay. For you stay-at-home parents, it’s going to be hard work to carve in breaks some days, but work to get even 5 minutes for yourself to stretch and breath.

Take care of yourself spiritually

  1. Connect with a higher power: Find ways to connect to a higher power. That could mean attending church services regularly if you are religious. It could look like daily meditation. It could be personal prayer or private worship.
  2. Journal: Writing is therapeutic and can serve as wonderful way to process how you are feeling and also to remember your child. You can write about your day, what you’re feeling, or about your child and your experiences through pregnancy and birth. As hard as it may be to write about those experiences, it’s a way of being close to your child.
  3. Do some service: Helping others, in small or big ways, will get you out of your own head and your own sorrow for even a short time. My husband found out another family almost lost their young mom two days after we lost our son, and his first reaction was to show up on their doorstep with food for them as they watched their mom struggle for her life in the days afterward. The outreach to others helped us realize that we weren’t the only ones with tough days ahead.
  4. Count (and express) your blessings daily: It might seem like there’s very little to be grateful for after your baby just died, but when you stop and take a look around and acknowledge what you do have—big and small—it can lower depression and increase your resiliency to stress. Take the time every day to notice one thing that you’re grateful for and express it openly or in a gratitude journal.

Take care of yourself socially

  1. Know it’s okay to change your mind: There are so many family parties and work get-togethers, holiday shows and end of the year recitals, and making gingerbread house making and looking at Christmas lights. So many wonderful things to do, to see, to eat! It’s okay to be wishy-washy while you’re grieving. Let others know what they can expect from you and be honest with where you’re at. If going to that live nativity show is going to leave you in a depression for days, then don’t go. Gauge how you’re feeling and give yourself permission to change your mind if you are not feeling it.
  2. Get together with extended family and also limit that time together if needed: Okay, so this suggestion can be tricky, because some family situations can be difficult or wonderful or both. They know you and you have history with your family members and that in itself can be comforting. Know yourself and your family and spend the amount of time with them that will be good for your soul.
  3. Get together with a friend, but choose wisely: There are some friends that will be there for you to listen, to cry, to mourn with you. There are others who are not in a good position to be there for you as you grieve and that’s okay. Be wise when you choose which friend to spend time with, because they could be more draining, than helpful. I have two former college roommates with whom I go to brunch every month or two and I know that we are all ready to listen to and know what’s going on with each other and it fills my cup to be with them.
  4. Create new traditions: We realized that things were different than we expected that first Christmas after our son died. The “new normal” was becoming more familiar, so we decided to create new Christmas traditions, especially ones that included our son. We have a tradition of hanging a stocking for him and decorating his grave with his own Christmas tree. We ditched other traditions for a time, because they didn’t feel right anymore and we didn’t have energy for them.
  5. Don’t be just “busy”: It’s okay not to be busy and slow down. You may feel like it’s best to be busy, but if you ignore your feelings or don’t give yourself time to mourn, rest, and recharge, those pent-up feelings will spill over and could result in shortened tempers and hurt feelings.
  6. Make a list of holiday don’ts: Everyone has their list of things they want to do during the holidays, but have you ever created a list of holiday don’ts before? On my list this year, is not taking our daughter to see Santa and not making our traditional family chocolates. When you intentionally write down those things you aren’t going to do this holiday, you’re giving yourself permission to not have those things weigh on you. All the things you “should” do to make the holidays merry and bright, can be stressful. Yay for less stress!

Take care of yourself emotionally

  1. Make an intentional list of your holiday dos: This goes hand-in-hand with the previous two tips, but there will be plenty of things that will want your attention. You don’t have to do “all the things”. Be intentional in which activities you do choose. Choose one or two that are meaningful to you, and be okay with catching the other ones next time. Your sanity will thank you!
  2. Turn off the Christmas music: I love love LOVE Christmas music, but I highly encourage you to turn it off. All the songs of the miraculous birth of Jesus are painful reminders that my baby isn’t here and that is hard. It’s okay to turn it off and have some quiet.
  3. Log out of social media: Go on a digital vacation in December, because all the beautiful pictures that you might think are “inspiring” you, may be putting more pressure and guilt on you to do more than you can and should. Plus, if your feed is anything like my feed is, you’ll be thankfully missing out on all the baby announcements and “Baby’s 1st Christmas” posts.
  4. Be honest about your feelings when someone asks: You need to acknowledge to yourself and others when you’re not doing well. Obviously, it depends on the person who is asking, but realize that everything may not (or may) be great. If telling someone that you’re terrible is scary to you, try some softer versions that we use that are also truthful: “I’m okay“, “I’ve had better days”, “It’s been a hard day, but I’m working through it”, and my husband’s favorite “It is what it is.”
  5. Go to a grief support group: We go to our local chapter of Share Parents every month or two. I am always surprised at the mix of people that attend—we come from all different walks of life, but we have one thing that we have in common and that common loss is comforting and connecting. We are all part of the worst club, and we can talk and cry about our children freely together.
  6. Do something other than sitting on your phone or binging Netflix: I am guilty of doing both these activities when I feel like I need to “escape”—they feel like good “numbing” activities, right? But your feelings won’t go away and you will likely feel crummier for having spent two hours scrolling through other people’s cheery and festive newsfeeds or spending 6 hours in front of the TV not doing much. I’ll give you a couple of suggestions of what to do instead below.
  7. Do 1 thing you enjoy and/or are good at every day: What are your hobbies? It may seem like a while since you’ve done any of those things you enjoy. Do one thing you really love to do or you’re good at doing. That could be knitting, baking, playing a video game (not hours’ worth though), working out, playing a board game, spending time with friends, fly tying, taking photos, going to the symphony, writing, catching up on your favorite sports team, drawing, yoga, traveling, and the list goes on. Introduce a little bit of joy by revisiting something you love to do every day.
  8. Make something with your hands: I was antsy and couldn’t sit still that first holiday season after our son died. I decided to sew this bag for my husband as a Christmas gift. This was quite the feat for me considering I had little sewing experience. Using my hands to make this bag helped me concentrate (and distracted me) for a short time as I worked on it. It was a much-needed break and I felt accomplished that I had created something.
  9. Make and take the time to grieve and let the tears come if they do: My husband Lee and I were at an appointment with our therapist six months after our son was stillborn, and I realized that I was doing okay, but my husband was not, having had a traumatic experience after our son was born. Her suggestion was for my husband to go out walking or driving alone for an hour, without any distractions, to think about our son and as she put it, “Let the tears come. Allow yourself to cry if you feel like you need to.” Her suggestion to me was to allow him to have the time regularly so he could process what he had gone through. Do the same for yourself. Let the tears come.

These are just a few things that we do to make the Christmas season more peaceful, calming, and sane for our family. What are some of your suggestions for surviving and even enjoying the holidays? Please comment below.

Filed Under: advice Tagged With: advice, baby death, self-care, stillbirth

13: Lindsay’s advice to become better, not bitter

October 1, 2019 by Winter

Lindsay shares with us on this advice episode what NOT to say to a parent who has experienced a loss, doing the little things like including her daughter Sadie means the world to her, and how you can become bitter or you can can become better after such tragedy.

Lindsay and Matt’s family picture

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission, which helps support our show. This commission comes at no additional cost to you, our wonderful listener!

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Filed Under: advice, late term stillbirth, podcast episode, stillbirth Tagged With: cord accident, stillbirth, stillborn

12: Lindsay’s story of Sadie’s birth, stillborn at 32 weeks due to cord accident

October 1, 2019 by Winter

Mom Lindsay recounts how she and her husband Matt were living in the United Arabic Emirates when they found our that their first child, Sadie Amelia, died in the womb due to a cord accident, and how they traveled back to the United States to give birth to their daughter at 32 weeks.

Sadie Amelia's feet. She was stillborn at 32 weeks.
Sadie Amelia’s feet
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Filed Under: birth story, late term stillbirth, podcast episode, stillbirth Tagged With: cord accident, stillbirth, stillborn

11: Advice from Hilary Erickson of Pulling Curls and L&D Nurse

September 15, 2019 by Winter

We are chatting with Hilary Erickson, Labor & Delivery nurse and founder of the popular parenting and pregnancy website and podcast, Pulling Curls. She covers how she prepares for a stillbirth or infant loss, how she helps the family during this difficult time, and what she advises and encourages those families to do while at the hospital.

Hilary Erickson of pregnancy and parent website Pulling Curls

Disclosure: Some of the links within these show notes are affiliate links, which means that if you choose to make a purchase, we will earn a commission, which helps support our show. This commission comes at no additional cost to you, our wonderful listener!

In this episode, we talk about:

  • Our new episode publishing schedule, where we will be releasing one family’s interviews during a month. The mom’s episodes will be released on the 1st and the dad’s episodes will be released on the 15th (if there are dad episodes)
  • What we did for our son’s would-be 1st birthday
  • We interview Hilary Erickson of pregnancy and parenting website and podcast Pulling Curls, and her background as a nurse on Labor and Delivery
  • What she does to prepare herself for a family that will deliver a stillborn baby or a baby that will die shortly after birth
  • What to expect while on the L&D unit when they’re expecting a loss family
  • Her advice to families to ask questions while on the floor and after discharge
  • Check out her Pulling Curls website here and podcast here!
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Filed Under: advice, podcast episode, Professional Tagged With: healthcare professional, infant loss, infant mortality, labor and delivery, nurse, stillbirth, stillborn

10: Lacie’s advice on how she “mothers” her stillborn daughter even now

September 1, 2019 by Winter

In this advice podcast episode, mom Lacie tells how she doesn’t avoid any emotions that came after losing her daughter Summer, being incredibly kind to herself in this process, and how she mothers her daughter even now.

Summer's ashes in glass heart
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Filed Under: advice, early term stillbirth, podcast episode, stillbirth Tagged With: stillbirth, stillborn, subchorionic bleed, subchorionic hemorrhage

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We're Winter and Lee Redd. Because of our sweet son Brannan who was stillborn at 38 weeks, we created this place where other moms and dads can share the birth story of their baby that was stillborn or who died in infancy.

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